"Title","Location","Age","Diagnosed","HowLong","Frequency","Duration","Preceding","Health","CurrentState","Triggers","Preventions","CurrentMeds","PastMeds","Surgery","Plans","Comments","acebutolol","amiodarone","anisindione","atenolol","aspirin","azimilide","bepridil","betaxolol","bisolprolol","bretylium","bucindolol","carvedilol","cibenzoline","dicumarol","digitoxin","digoxin","diltiazem","diphenylhydantoin","disopyramide","dofetilide","dronedarone","encainide","esmolol","ersentilide","flecainide","gallopamil","ibutilide","lidocaine","mibefradil","metoprolol","mexiletine","moricizine","nadolol","phenytoin","procainamide","propafanone","propranolol","quinapril","quinidine","sotalol","tedisamil","timolol","tocainide","trandolapril","valsartan","verapamil","warfarin","asthma","diabetes","gerd","hypertension","hypotension","hyperthyroidism","hypothyroidism","adrenergic","vagal","familial","lone","paroxsysmal","permanent","flutter","cardiomyopathy","CHF","PAC","PVC","SVT","syncope","bradycardia","tachycardia","heartblock","infarction","rheumatic","sicksinus","stroke","WPW","cardioversion","defibrillator","pacemaker","ablation","bypass","maze","Male","Female" "Brian","West Midlands","68","Paroxsysmal Atrial Fibrulation","12","2 weeks on average","10-12 hours","Hypertension","Good. Non smoker","Not. Cured.","None known","None known.","20mg Sotalol twice daily","Verapamil - poorly tolerated.","RF ablation 6 months ago","2nd ablation.","",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mario","Utica NY","63","Afib","6 months","3 times","1 day, last one just a few hours","A little High Blood Pressure, 4 years, lately having shortness of breath, heartburn","Excellent, Never a smoker, Eat very good, only social drinking and not heavy, exercise for years, followed the ","Not cured, feeling OK but I had a TIA during the last Afib, no damage but heart still burns a little but better since I have been on Proton Pump inhibitor","Light alcohol use, not sure Large dinner, not sure For the past 3 months I changed my diet, no sugar, low carb, no alcohol, caffeine or Fried foods. Increased my green and fruit intake, still had a afib yesterday for a few hours ","Beta blocker seems to help Reducing food portions Eliminating spicing food Proton Pump inhibitor Acupuncture over the past month I am on Ca-blocker since they have less side effects ","Losartan Potassium Beta blocker now went over to Ca-blocker Blood thinner Proton Pump inhibitor They had me on Metoprolol 50mg twice a day, I had major side effects, felt high, could not think, drive, or do computer work, after a reducing the Metoprolol to 25mg twice a day and it is manageable, still getting use to it. The Ca-blocker is better but both cause me serious case of Acid Reflux that will not go away with all the Gastro drugs and diet modes I have tried, now I have Bretts disease. ","None","Loop recorder installed under skin","Nuclear Stress test next week","I am in good shape, exercise 2-3 times a week, I have had a low stress job for 30 years, higher stress job for the last 4 years. Loss of a 30 young nephew from cancer 4 years ago has given me great sorrow. Low cholesterol, no heart disease in family, parents and grand parents lived into their 80's, grandmother 98! The acid Reflux is a serious threat that comes from the Ca blockers for the Afib, so which are the less threat? ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "MW","Kansas City, MO","39","Paroxysmal Atrial Fibrilation","7","Monthly","30 seconds to persisteny requiring cardioversion","N/a","Mild hypertension","In recovery phase","","","Toprol Eliquis","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Patty","Marlboro, Vermont","70","lone atrial fib","10","2 per month","6-12 hours","none","excellent, physically active daily","coping, looking for a cure","burping beginning exercise too rapidly, biking uphill right at the start heartbeat gets too high bringing on burping alcohol (therefore I don't drink) being hungry then burping then afib travel/stress dairy","meditation eat every 3 hours/ don't get hungry start exercise slowly take small amount of baking soda in water when I feel indigestion/ burping ","12 mg Atenylol daily It lowers my already lowish blood pressure and pulse Doesn't change frequency or length of episodes , but seems to settle the heart in between episodes 1 adult aspirin daily","diltiazem taken when I had an episode didn't have an effect except to lower heartrate during the event","none","I'm going to try a highly absorbable magnesium recommended by Carolyn Dean","Stress is one of the big triggers and I don't have much stress in my life. But more frequent episodes for longer durations have become very stressful!!! ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "SGH","Chicago, IL USA","64","paroxysmal atrial fibrulation","4 months","twice month with medication","12 hours","Death in family","very good","ok with medication.","stress ","50 mg Flecainide twice a day.","50 mg Flecainide twice a day. 10 mg Nadalol once a day.","Flecainide - dizziness,nausea and fainted on 4th day after starting medications. Dizziness and nausea on 5th day after starting medications. Am ok now since body adjusted to medications after day 5.","None","Stay on medication until side affects become too common or too severe. Am currently seeking alternate methods of treatment. I know what brought this on and I know my body's natural healing process can cure me. I just need to find out more information as such. Will keep searching!","Good luck to all suffering from this health issue. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Thomas Roos","Bronx NY","65","lone a fib","18 yrs","none since 2001","usually 2-3 days in ICU","Stress/Divorce","GOOD Still Working for Postal Service","I'm on 50 mgs of flecainide 2x a day for 14 Yrs Absolutely no episodes but because of my age my md wants me to go on xarelto or something similar and thats really got me worried.","They never could find any.I had 5 episodes from 1996 to 2001. Four hospital stays, 2 electrical cardioversions,and have been fine ever since,but I do take 50mgs 2x a day of flecainide acetate. ","","Just drowsiness","","","","I don't want to go on blood thinners but My MD might be right.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Joanna","Canada","64","Afib,arithmetic ","1year","1-2a week","1/2hour","Strok","No","Steable","Stress ","No","Diltiazem Walfarin","Non","Non","I don't know","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "John","Newcastle upon Tyne","56","Paroxysmal Afib","10plus","were very frequent now less so","1 to 8 hours","none","Good general health. Have excercise induced asthma","Managing","Alcohol, MSG mainly in Chinese food, sweeteners in diet drinks, hot bath, ","I have come to realise that episodes co-incided with gurgly stomach and excess acid. This is obviously affecting my heart. ","Daily Aspirin, Lansoprazole. I was given the Lansoprazole by my doctor to combat stomach pain caused by the Aspirin. I have been taking them for a few weeks now and my stomach problems and AF have completely disappeared. You can only take these for 8 weeks so I am looking for something long term to give the same result.","Bisoprolol knocked me for 6 so stopped taking them after consulting Cardiologist.","None","Looking at diet and supplements.","Also suffer from Benign Cramp Faciculation Syndrome which causes my calf muscles to contract constantly. Not sure if this has any bearing on my AF.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "dvdove","Ga,USA","93","COPD due to asthma since childhood ,O2 24/7@2lts min,AFIB 5 yrs,pacemaker","5yrs","variable","varible","walking in home","NO smoker or drinker","IN hospital recovering from pneumonia","No known triggers","none","Diazem,Eloquis","none","Hip repair 4 years ago Much pain on weight bearing","????","Retired Physician",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0 "Mark","Kent","42","Paroxysmal Atrial Fibrilation","10+","now rare - yearly or less","up to 20hrs","None","Very good","Day to day fine","Possibly extreme tiredness","Now ensure adequate sleep, healthy diet and regular exercise. Minimal alcohol intake and reduced caffeine intake","Bisopropol, Flecainide, Aspirin","None","None","Maintain current preventions","Have found own control strategy - having large drink of very cold water. Equally aware that previous episodes have been stopped by eating. Lucky for me, guy who did a structural scan of my heart was an old school friend and in discussing it he told me the vagus nerve follows your food basically and it seems the things I mention 'shock' the vagus nerve and seem to reset the signals to the heart, putting everything back in synch. Have used since we 'sussed' this and works - has stopped me needing to use pill in pocket stategy.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Anon","USA","60+","AFIB, A-flutter","4","3-4 months","<1 month","Unknown","Formerly athletic, non-smoker, moderate drinker","Despite ablation, still having episodes requiring electroconversion","Originally believed it was caffeine but no longer seems to have an effect.","None.","Diltiazem, Metoprolol, Multaq, Lipitor, Coumadin, Lasix, Pottasium chloride.","Rythmol - was replaced by Multaq","8-hour ablation procedure to address both AFIB and A-flutter.","Plan is to switch from Multaq to Flecainide this week after an electrocardioversion a few days ago.","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,1,0 "Debbie Elliott","Wallace, Canada","","AFib","Diagnosed in Sept. 2013","It Varies","An hour to two hours","nil","nil","nil","Still trying to figure it out.","Avoiding alcohol, caffeine, aspartame, MSG, sodium nitrates. Not being over tired.","Metoprolol (Tire easily) Warfarin, Ran-Rabeprazole","","","Try to figure out what triggers my AFib","I would like to lessen the attacks as I know there is no cure.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Noor","Dubai","59","AFib, Mild MVP, Diastolic Dysfunction grade 1","1.5","3 episodes Jan 2012, March 23 2013, April 9 2013","1-3 hours","Allergic reactions, to meds for urticaria, then side effects to Steroids, Stress","Non smoker, non drinker, No underlying issues, ","Could be so much worse but trying to manage the situation, control anxiety, excercise regularily","Stress.....","","Previously just pharmacuetical cardio version, but now offered Concor 2.5mg for a week to see if symptoms of throbbing heart, discomfort in left shoulder subsides.","None for the AFib but allergies to Sulphur (Bactrin), Ciprobay500, Possible Serum sickness after Augmetin. Pariet PPI's for IBS and gastritis,taken for two years took a toll and have been successfully tapered. ","Removal of Gall Bladder 2007.","Try to manage and optimise health, by diet lifestyle improvements. Vegetarian almost vegan, regular, daily walking.Try to control stress, by Mindfulness, meditation which seems to help a lot!","My father also has Afib which began at my age. He is now 81 and still managing although now on Warfarin and two other meds. He does not excecise but watches his diet and tries to avoid any stress, lives in the country, enjoys a slower pace of life, has still got a good caring wife and enjoys his time.Bless him.",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anonymous","Canada","40","Permanent Lone Afib, High Blood pressure too","Pernanent for 7 years, intermittent for years before that","","","","Athletic non-smoker, light drinker","Tired of being tired","Emotional stress Coffee Sugar Relaxation after strong excersise if low blood sugar","Cold Shower (after a while of hot) often makes me feel better","Asprin","Qunidine made me sick Flecinide didn't work","None","Expect to start Coumadin soon May try a Class III drug for a while and a cardioconversion Thinking about the Maze procedure","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "BawaSue","San Diego, CA","71","AFib ","One","","","Minor stroke","Good except for edema and fatigue","Never smoked ... Quit alcohol 2 years ago, not diabetic normal weight","Just the edema and tired ... Need naps","Good diet ... Fruits and veggies","Digoxin Pradaxa Diltiazem Don't know if they cause side effects","Avapro. ... No known side effects Atenolol chloral. .... No known side effects","Hysteroectomt about 1993 Ear canal enlargement in 2011","Continue regular activities ... Play banjo .... Walks .... Dancing ... Gardening","I just want to hear what others have done about edema, foot pain and not being so tired.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0 "David Ben Ya'akov - Previously David Ruffino","Eugene, Oregon","54","Paroxysmal Atrial Fibrillation","22","They have been abated","In the past from 10 seconds to 27 hours","Gall Bladder Removal","N/A","I feel I'm cured","Low potassium levels often brought it on. I lose potassium somehow. Eating a big meal and falling asleep with food in my stomach cause PVC's which sometimes lead to episodes of A-fib. Retaining water is the main cause I have determined. ","Sleeping on my right side helped a lot or sleeping semi-reclined in a reclining chair. Going to bed with no food in my stomach, even if it means staying up to insane hours of the morning. Keeping the stress level down. Keeping my stomach in good health; taking Omeprazole daily to prevent GI Problems seems to help. I feel that the problem is partially a vagal nerve response. The best thing that I found however, and what has kept me from having an episode for more than two years, even with loads of stress and bad eating habits; is the addition of two things. First, my cardiologist told me that some drugs like NSAIDS cause water retention and that causes the heart to grow. This causes a short circuit in the heart's electrical system - Afib. Doctor put me on furosemide 40mg a day and my water retention is gone along with the a-fib. Second, taking a prescription potassium a day helps me to maintain a correct potassium level. There are times when I need to take an extra one when my body is telling me that my level is low (PVC's and leg cramps).","Taking Sotalol 120mg twice daily. Have to have an EKG once a year because of this medication since it can cause the heart node to slow down. So far (after 11 years on the med) it has not. As I mentioned above, furosemide 40mg every morning and 10meq of KCL every evening. Omeprazole 20mg every PM to keep the stomach in good shape. Been taking 5000 units of Vitamin D because it rains a lot here and I don't get enough sun to produce it myself. Taking a high dose vitamin B Complex too because my levels were low on some of these. The doc gave me a script for diazepam which helps to calm me down on bad stress days.","Tambocor - No effect Atenolol - No Effect Quinaglute - Produced muscle weakness and I came off of it. Digoxin - No Effect Verapamil - No Effect","Not Applicable","I plan to live a long and happy life. My wife is very supportive and we both live to create a stress free environment at home. I know that this thing won't kill me and I know that God Almighty has an appointed day to die for all of us. I feel that his plans for that day are afar off.","I know that when this thing happens to people it freaks them out. I was told that if the condition persists past two days then cardioversion should be considered and warfarin started. When I had my long episodes long ago I waited one day and went to the ER to be converted. I really feel that in some of the folks who read this, especially if you feel that retain water or have edema in your legs, you should ask your doctor about getting on a diuretic. Also, ask for one potassium a day; can't hurt you. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0 "Anon","Leicestershire, UK","63","Paroxsysmal atrial fibrillation","7 months","with infection - 6 episodes at least","12-24 hours","Appendicitis","Generally good. Enjoy a glass of red wine. Non-smoker.","After strong palpitations and weak pulse in late October after two chest infections, am being seen by cardiologist seven weeks earlier than scheduled check-up. Had rapid heart-beat for an hour or so last night.","Fluid on lungs and round heart after operation, chest infections and possibly whisky ( one glass only! )","Would like to know what these are!","Sotalol, thyroxine, allopurinol. Possible effect on memory and energy levels of Sotalol? Was put on warfarin three months after the last episode of atrial fib. It has currently not stabilised at the magic 2.5 but am hopeful.","Atenolol - well-tolerated and effective at keeping blood pressure stable, but told in hospital that there are more modern beta-blockers ( was on atenolol for 13 years. )","Appendectomy last year.","To keep as fit and healthy as possible, to know more about this condition and what its implications are for the future.","Was very shocked to develop this condition two days after a successful operation. My blood pressure dropped and fluid developed in my lungs which had partially collapsed at the bottom ( basal atelectasis. ) It is a horrible feeling to be desperately short of breath when you have led an active life and tried to keep fit! I struggled with central chest and throat pain for over five weeks, had deranged liver function for two months and ECGs showed nothing until the crisis came with pleurisy and an empyema and I had to have a lung drained - nearly 500 ml of fluid was extracted. A doctor said that I was ' one step from pneumonia '. I would dearly like to have another echocardiograph to see if there is anything else going on, especially as a young relative has recently developed mitral regurgitation and my father had a mitral murmur, but even though my previous one was ' unhelpful ' ( owing to fluid round the heart and I was allowed to go home with that!! ) my cardiologist seems reluctant, maybe because my stress test was good? So here I am, popping pills for England, wondering what the future is, and no one will explain why I got A-Fib.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dave M","Lakewood WA","51","A-Fib","2+","Varies. Seem to come in clusters","usually 1 hour or less. Longer required cordiovesion 2 time so far","MI in 04, Aneuism repair in 2011","Overweight, smoke 1/2 pack per day, don't drink","","Havent been able to identify any triggers but most happen in afternoo and evening.","","Metorolol 75 mg/day, Pradaxa 150 mg 2 x/day, lipitor for high colesterol, Lisinopril 10 mg/day for high blood pressure, Prilosec 20mg/day for reflux/GERD. Also have propafenone for 'Pill in Pocket' treatment to abort A-Fib as needed 600mg","Can't remember name, but they had me in Hospital for 4 days while they tried another rymic med. Didn't tollerate. Went into Bradycardia. Also caused me to pass out after NucMed stress test.","Aneurism repair via stint placement in Iliac artery (abdomin) in 2011","Considering ablation before condition gets much worst. Cardiologist said I look like a good candidate. He would refer me to an electrophysiologist if I wanted.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,1,0 "Janie","Simi Valley, Ca.","61","A. Fib. Pvc's Svt","30yrs","Occasional","30sec to 2 minutes with faint feeling.","Runner","Low thyroid, high chol. (family genetic), Hx. Barretts esophagus. HBP Osteoarthrit","Atrial Ablation March 2012 because all beta blockers and rhythm control meds have side effects.","Caffeine, stress, dehydration Mother had A Fib.","Stopped caffeine, manage stress if need be with Xanax, keep hydrated.","Beta blockers depression. Rhythmol major side effects migraines no sleep,nausea hair loss, loss of taste. Now on Cardizem for HBP and rhythm control. So far so good.","Pradaxa GI upset. Now done with that on ASA 325mg.","Atrial Ablation 2012 Hiatal hernia repair to manage Barretts on 2007.","Knee replacement Oct 2012","So far so good with ablation.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,1,1,0,0,0,1,0,0,1,1,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Nic","Paris, France","32","Atrial Fibrillation","4","Every 6 months","Until cardioversion","Stomach cramps (diagnosed as ","Runner, never smoked, no alcohol, 1-2 coffees per day","Recently electric cardioversion","","","Pill-in-the-pocket flecainide","Different beta blockers (tiredness, bad dreams) Slow-release flecainide (lethargy)","","Ablation in the next 12 months","",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Siri","Essex England","Late 60s","P.A.F.","Currently 4 years - I believe I've had episodes in ealier years that were misdiognosed","every 3----6 weeks","4-----20 hours","stress","Glaucoma. ","Having acupuncture. Feel well but concerned it will increase ","I think stress at times but often there doesn't seem to be a reason.","I have tried pressing my eyes, blowing my nose, drinking ice cold water without much success. ","atenolol and aspirin atenolol makes me tired but does mean that during an episode my pulse doesn't go mad and it is bearable","propanolol","appendectomy many years ago","Trying not to go on to Sotalol because of all the side effects i keep hearing about. I am thinking of asking my G.P.if I can see an E.P. as they are the experts. Evidently most people in America with Atrial Fib regularly see one. ","I think it is important to stay calm, easier said than done! I do believe that I had episodes of this in the past and was told not to worry it is nothing to be concerned about-just forget it. Perhaps that is why I didn't have it for many years - I certainly still had stress in my life",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Cathy B","St. Louis, MO","57","afib","2 months","multiple per week","from 2 to 14 hours","","overweight, sedentary","paroxysmal","Alcohol, caffeine, chocolate, lying down, lying on left side.","Deep breathing can sometimes convert me","Tikosyn/dofetilide (250 x 2) and diltiazem (180 24 hrs) Lipitor (10 mg) Potassium (10 mg eq) Xarelto (20 mg) Fish oil (1000 mg/day) Zantac (150 mg)","Propafenone (diltiazem) 225 x 2, GI upset, not effective aspirin (325 mg) HCT (hydrochlorothiazide) for borderline blood pressure, 4 years. Hospital cardiologist discontinued at diagnosis with the comment 'cardiologists hate that drug.'","uterine artery embolization 2000","ablation if it doesn't settle down","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Paul","Cardiff, UK","56","paroxysmal atrial fribulation","5 - first noticed it April 2007. ","between 3 and 6 times a year","anything between 15 minutes and 31 hours","Nothing really - woke up about 2 a.m and was aware of an erratic heartbeat. However, ince then I have wondered if my use of beta blockers (atenolol) to treat my high blood pressure may have slowed my heart down too much and this might have been a factor?","Have been on blood pressure medication for about 20 years and had what may have been a mini stroke in 2008 (my doctor doesn't think it was, but he can't rule it out completely), but pretty good apart from that.","I'm having an episode as I type this, but, if anything they've been shorter and a bit less frequent lately. ","I've had episodes while laying on left hand side, laying on stomach and laying on back. Alcohol and, possibly, eating just before going to bed.","Quite often an episode stops after I've climbed a long series of steps on the route I use while walking my dog first thing every morning - so exercise I suppose.","I take various pills for my blood pressure and one to prevent gout daily, but the ones I take specifically for A Fib are 10 mg of Bisoprolol and 7 mg of Warfarin. I'm not aware of any side effects with the Warfarin, but I do get a wheezyy cough occasionally which I believe may be connected to my Bisoprolol intake.","Before Bisoprolol, I took Sotalol for a short while, but it seemed to increase the number of episodes I had. ","None.","As soon as I went on Warfarin, I cut right down on my alcohol intake, but did still have a couple of drinks on a Saturday night. However, with the large majority of my episodes occurring on a Sunday, I have now stopped drinking alcohol completely in the last month - my current episode proves that this is not a prevention, but I'm hopeful it will mean fewer of them. I also aim to continue with the jogging which I took up after my 'mini stroke' - I'm not sure it does any good as far as the AFib goes, but it's got to help my general health. ","Reading the comments on this database, I'm struck by the fact that, although I view my AFib as a nuisance, I'm pretty well off compared to many sufferers. On my doctor's advice, I'm able to carry out all of my usual daily activities except for my jogging while having an episode. My Doctor tells me that a high heart rate is more of a concern as far as potential blood clots go than the erratic heartbeat I tend to suffer from when I have an episode and so, with my heart having been thoroughly checked after my possible mini stroke (I was told that, apart from one slightly enlarged chamber, it was 'in good shape'), he is happy for me to live as normal a life as I can and only contact him if and when an episode goes into a third day. I realise that there is a good chance the condition will worsen in the future, but, as of now, I'm pretty optimistic about it and am thankful that it's not having a major impact on my life. ",0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mark Wilkinson","Gloucestershire UK","50","AF","5","4 times","up to 12 hours and several days","Exercise","Diabetic","good health","Have been through exercise cycling squash and badminton. I think my recent episode may have been in conjunction with a chest infection lasted 8 hours","only have caffine am and tried to be less competetive in sport ","Diabetic medication","","cardioversion","having a stress test at Cheltnham Hospital Try and reduce excessive exercise","Would like to talk to someone with similar issues with exercise",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Dan","US","51","Persistent A-fib/ Cardiomyopathy","5 months","Persistent ","seconds-minutes","Stress realted to work/ sleep apnea","Smoker (no longer), Moderate drinker","Very Ill, seeking disability","Work related stress, any trigger that causes increased blood pressure","","Unable to tolerate Warfrin, nearly bled to death in October taking this. Bleeding in right and left legs, right kidney and right arm. Now on baby asprin, metropalol and Cardizem","","","Trying to get watchman device implanted to reduce stroke risk","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Frances Green","Scotland","68","Lone AF","approx 20","usually ever two weeks sometimes more","from 5 to 30 hours","High Blood Pressure. Stress","Good!","Managable but difficult","Stress too Have not been able to identify more triggers. Episodes seem to appear after perhaps 6 days usually.","Have changed diet & lost weight. No dairy, little meat, lots of fish and veg, I take freshly juced fruit and veg at least twice a day + whole fruit and veg. Avoid anything pre made, no sweet drinks. Keep well hydrated and exercise as much as poss. (usually long walks)lift weights. This regime has helped tremendously! and my episodes althogh still as frequent are no longer painfull. Would recommend!","Have discontinued medication except for asprin and losartin(high blood pressure) Took Ameoderone for one year, made episodes more frequent and made me feel wretched and very ill...sickness, lethargy inability to think straight, and hair loss (hair now growing thicker since stoping Ameoderone)","Up to eight years ago when the AF became much worse I was not on any medication, have always been a strong person","None","Explore the relationship between AF and 21st century diet. Feel that it is associated with the sort of lives we lead and food we eat which is often lacking in the things we need most! If I am sucessfull in continueing to controle my AF to some extent with diet and general 'wellness' regieme, producing paperwork/book to help others! Do not intend to resort to drug therapy again.","This is a horrible and life limiting condition! Initially I excepted and tried all the help that the medical profession offered, but successive drugs seem to make me worse and made me feel very ill. I decided that in some way I must be able to help myself and take responsibility for this condition, since then I have had a great deal of success particularly with weight loss and change of diet. I would recommend anyone with AF to buy a good juicer and made good use of it! The extra vitamin and minerals have got to be good. They certainly helped me.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Reggie","Virginia USA","53","Lone A fib","4","from once a week to many times a week","1 minute to 6 hours","digestive disorders","great health other than stomach and a fib problems","still trying to figure out what all the triggers are.","Digestion problems, laying down at night, stress","Magnesium helps a lot","","metoprolol 25 mg, does not help even if I take two. Tends to upset my stomach and make the problem worse the next day","Ingrunal hernia","not sure","Would love some suggestions on alternative methods of healing for this issue. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "amee","surrey","54","paroxysmal atrial fribulation","1","2/3 p.w.","3/5 hrs","husband in accident in Dec","drinker","only just diagnosed after 3 times back to docs","","","aspirin beta blockers","","","","",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "John Powell","Mid wales","56","A Flutter/A Fib Paroxysmal","1","2 per week","2 hours","stress,lack of exercie, obesity","","flutter cured with Cath Abl, A Fib remains","certain postures, lying left side","none","propafenone and verapamil, verapamil, BF, asprin - ","beta blockers - kinds, both caused severe breathlessness, flecanide caused visual disturbance","cathater ablation successfully eliminated A flutter","review of medication, currently being assessed form further surgery to deal with A Fib","despite a total of 20 days in cardiac monitoring units, I have yet to meet another person with AF - even nurses seemed less knowledgable about af than other heart disease.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Lia","Central Florida","80","AFIB plus celiac and diabetic ","9","first one 8 hours none for 8 years and now continuous","now 24/7","stress over coming trip?","celiac and diabetic, moderate hypertension and hypothyroid","being tested, new medication to start, trying to return to normal rhythm","Lack of potassium caused first episode,no further episodes for years while on zebeta and diovan. Don't know what triggered this except possibly stress but it has been continuous for over a month. Didn't go to the doctor until my regular appt last week. EKG mid July was normal.","medication?","heartburn","Allergic to penicillin, sulfa, bumex, levaquin and some xray contrast dyesa","Tonsilectomy,appendectomy, arthrotomy on left knee, hysterectomy, bilaeral cataracts, cystocele-rectocele & bladder resuspension, facelift, right parotidectomy with reconstruction, rt quadriceps tendon repair, numerous basal cell carcinomas surgically removed at various time on face, chest and back.","Complete testing, start new medication and follow any other instructions from my cardiologist","Historically every chronic condition I have had from seizures to facial tics have been a deficiency or an intolerance.. I take numerous supplements for this reason. I especially lack minerals and B complex.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "James","Melbourne Australia","52","Paroxysmal Atrial Fibrillation","Min 1.5","Daily","30 mins to 2 hours generally","None identifiable","Good, former smoker (stopped >10 yrs)","Recently had AF ablation. Early indications are not encouraging. New symptoms (low HR as well as high HR) as well as those preceding procedure","Caffeine Alcohol Lying flat, and on left side Sitting hunched Exercise Rest after exercise, especially if coupled with alcoholic refreshment Work stress","Avoiding all the above is impossible","Sotalol 160 mg/day (before and after FR abalation). Some tiredness, some breatlessness. Coumadin (post-operative) 6mg/d. No clear side effects","None","RF Ablation 29 July 2011. EP was happy with procedure, initial indications very good but gradually seeing symptoms as before procedure and potentially worde","Potentially will require second RF Ablation.","It's an insidious condition. You are not 'unwell' but are limited, especially in exercise.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Nan","Brunswick, Maine","64","Atrial Fibrillation","1/2 year","3 times a week","Since Multaq about 2-6 hours, prior 24-36","No","Asthmatic, non smoker, non drinker","Waiting for ablation 8/12/11","Cheese, wheat, tuna salad but not fresh tuna Heat and humidity","Staying away from panini, 'heavy' cheese...parmesan in small amounts or yogurt ok","Multaq..stomach symptoms like heart burn Diltiazem (sp) tiredness warfarin...bruising and bleeding","flecainide...increased heat racing","Planned 8/12/11","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0 "opak","Granby QC CAN","75","paroxysmal jan 2010 Granby Hospital","since 2002","presently (july 2012) none since 5 days","recently (july 2011) 2 to 480min","SSS(SickSinusSyndrome) incl.Tachycardia, Bradycardia","stopped smoking 1985","healthy except SSS, pacemaker since april 2012","physical stress and/or mental stress, big meals, hot liquids","avoid any stress and triggers","Coumadin=Warfarin anticoagulant 7.5mg/day Metoprolol for RateControl 2x37.5mg/day/often tired/cant run anymore because of short breath","aspirin/none","DDDR pacemaker installation april 2012","For the time being I observe and generate stat.data.Might comment in more detail by the end of 2012. ","To limit the duration of the episodes I have to lay down as soon as I feel it coming in my gut (vagal?). This works fine at home with durations smaller than 2 min, but less well outside for obvious reasons. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,1,0,0,0,1,0 "ChrisB","Sydney","46","a-fib","7","varies","1 hr - 3 days","nil","Overweight, social drinker, regular excersie 50km walk per week","Not sure, hoping","Deep sleep Big meal weird dreams","Running Cold","Flecinide - bad dreams, blurred vison Verepimil - not sure Kidney discomfort ","Sotolol - increased AF ","Flutter ablation 2004 Plumonary Vein Isolation 6 weeks ago 02 June 2011","See what happems from PVI Come off all drugs on 20 September 2011","Nervous about coming off drugs in September. Don't know if blurred vison (its only mild when reading a book) is connected Very bloated since operation. Docs say its normal and nothing to worry about",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Staci","Pennsylvania","22","Paroxsymal Afib","5 years","everyday","8-10 hours","none","smoker, overweight","somewhat better with medication","Caffeine, stress, humid weather, exertion","","flecainide, metoprolol and aspirin Side effects: dizziness, shakiness","Cardizam and lower doses of the flecainide and metoprolol","","Try another ablation and lifestyle change. My ultimate goal is to not have to take medication for the next 50 years.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "anon","Washington State, USA","49","Afib","3 months","Discovered to be in afib all the time during a sleep study","Sleep study was in January, other doctors in December had not detected it or had trouble reading blood pressure, so it was determined to have begun in January.","Nothing. Some lifestyle stress in the prior year.","Non smoker, very light social drinker (3/wk max), very light coffee drinker (1x day), significantly overweight, sedentary, no thyroid condition, no heart disease, normal BP 110/75, Cholesterol TL/LDL/HDL 170/110/60, blood sugar 95, sleep apnea 10+ years, ","Cured so far","Possibly caused by Vyvanse, ADD stimulant, or Drisdol, Vit D high dose supplement, which list cardiac electrical activity as a side effect. Also possibly caused by sleep apnea, though sleep apnea doctor disputes as CPAP has been used nightly.","Unknown","","Vyvanse, discontinued, may have triggered, possible side effect to electrical activity of heart Drisdol High dose Vitamin D (1x week, 50,000 IU) Possible effects on electrical activity of heart","Ablation 2011 ","","Non smoker, very light social drinker (3/wk max), very light coffee drinker (1x day), overweight, unfortunately sedentary (will change), no thyroid condition, no heart disease, normal BP 110/75, Cholesterol TL/LDL/HDL 170/110/60, blood sugar 95, sleep apnea 10+ years, CPAP compliant user 10 years Taking Pradaxa 2x day which is not on the list below. It is a blood thinner deemed safer than coumadin.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "anon","Oulu Finland","51","paroxysmal afib, vagal type","5","1-5 per year","2-6 h","hypertension","smoker, occasional alcohol consumption","ok, still with afib","alcohol, too little sleep","not known","flecainide ratard 100 mg / day no side-effects hypertension: enalapril+hydrexin","","","??","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Jerry","San Leon, TX","59","Paroxysmal Atrial Fibrillation","3","Varies, more frequent lately","I never know, seconds, minutes, hours, days","Stress following losing house in Hurricane Ike","Good, excercise frequently","still looking for cause and the proper drug for treatment","Sometimes it just starts on its own, usually late in the day. Other triggers are MSG, caffeine, alcohol a cold drink and stress.","I don't know of anything that can prevent it, if I did I wouldn't have it anymore.","Rhythmol, beta blocker, Pradaxa","","","To find something that will stop the A-fibs. Sometimes they are so severe it feels like someone is using my heart for a punching bag, it makes me ill, nausea, dizziness, light headed, cold sweat. I am pretty much incompacitated during a severe attack.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Debra Leineweber","Kenosha, Wi","55","A-Fib","9 months but I think it's been since 18 yrs old","Was every week, now once a month","4-6hrs","Stress","Stopped smoking 13 yrs ago","Getting much better, trying to walk 1 1/2 miles per day along with water exercises. ","Eating to much at one time, stress, heart pvc's or just doing nothing","V-8 large can and bananas","Cartia 240mg once daily, Metropalol 25mg 1 1/2 twice daily Asprin 325 daily Fish Oil 1,000 daily Magnizian 500mg daily Vitaman D 2,000 daily Multi Vitaman ","Atenolol just didn't work anymore","Elbow shattered needed hardware","possible ablation","Praying that soon there will be a cure for this beast!!!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "ClaraP","Arizona","71","sick sinus /atrial flutter","diagnosised in 2009, but it may have existanced for years.","daily before ablation, after ablation I'v had 4 episodes","4 episodes from1-5 hours since April, Had a 5 hour episode1 week go","fainting, l muscle aches, fatique depression, SOB, lack of sleep,PTSD"," allergies, depression, sleep disorder, hypothyroid","fatique, doing better after meds","Lack of sleep, recurring PTSD and possibility thyroid","taking meds to sleep better, ","diltiazem,thyroxine, temazepam,citalopram, aspirin, claritin ","flecainide, pacerone made me very ill, with vomiting, nausea, and low blood pressure","toncils, hip surgery after car accident, ","To build a social net work, and to find help with PTSD with out going bankrupted I'v had to go to the ER too many times for A-Fib and this is a financial drain.and makes me more depressed and anxious."," Its not the fast heart beats and SOB that bother me as much as the confusion, left sided headaches and drunken feelings that I get when I have these a-fib attacks. This last attack has left me feeling venerable and anxious. I am also wondering if anyone else has had these problems with confusion after a-fib episodes, and if any one else has had problems with warfin. I started out with 5mg and went up as high as 20mg with no results. MY INR remained at 1.5 no matter what I did, but the drug was making me sick to my stomach, so my doctor stopped it., and put me on aspirin (that also causes stomach problems.) ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,1,1,0,0,0,1 "Lisa Bell ","Monroeville, OH","50","Atrial Fibrilation","6 months","daily","","Depression, Anxiety, stress from work.","Depression and Anxiety. Otherwise no other issues.","in A-fib all the time, short of breath but doing ok.","","","Warfarin Atenalol Digoxin Cardizem","Sotolol, caused my heart to beat too slow.","Cardioversion in Sept. 2010.","Catheter Ablation in March 2011","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Michael Ethridge","Jonesboro AR","56","occasional At fib","6","only 1 episode in 5yrs... then 3 episodes this year ","10-30 mins","none","great","great","episodes have always occurred at night. All while going to sleep except one after dinner. (chili) and 2 donuts!! shame on me! I was lying on my left side 3 times when it started. My thoughts before reading this forum were that large, spicey meals, caffeine, alcohol, maybe sugar, a low potassium level, stress may have triggered my episodes. I am just not sure. I am finding many of these same triggers are found among others listed here. ","I have had 4 episodes: one converted in Er with IV cardizem (30 min duration) one converted spontaneously (30 minute duration) two converted with a 60 mg cardizem tablet (one10mins the other 30mins.)","I have been on lipitor 10mg for 4 years. One episode before starting the lipitor Also a baby aspirin every night","none","none","read more info on At Fib, and try to avoid the triggers. Do not want to become a chronic at fibber!","Very confusing trying to find exactly what triggers an episode. I have always ran a slow heart rate of upper 40's-low 50's. Always thought it was the track and sports. My doctor says that bradycardia has a higher incidence of At Fib. I still run on the treadmill, am not overweight and healthy.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Frank","Canada","51","Atrial Fibrillation","3","daily","1 to 2 hours","little high collesteral","very good health, non smoker.","a-fib daily, but feeling good otherwise","always at the time of sleep, right at the onset of sleep or just dozing off. Other triggers may include bloating and upset stomach, also if I don't eat for 4 or 5 hours and feeling very hypoglycemic.","Eating properly every 3 hours during the day, not to much, not to little and nothing that upsets the stomach. But not matter how satisfied my stomach is at sleep time, the a-fib still triggers! No matter what I do.","none","none","none","seeing a nutritionist and planning for the suppliments of 'taurine', 'magnesium', 'fish oil', 'CoQ10' and maybe 'l-carnitine' if I can obtain it in canada. Others have reported NSR after dosing of these suppliments.","The heart is a complex organ, and I feel when LAF, which is what I have, is triggered, the heart is telling you something else in wrong in your body. Possible known problems with LAF is the ANS, autonomic nervous system, and vagal nerves which all links to the hearts natural pacemaker. It’s possible something in my body is out sync, not in tune, deficient, over exhausted, malfunctioning, or whatever, but in turn send signals to the ANS alerting you through your pacemaker. With PVI having only a 50% success rate with LAF, and medications having so many side effects, I am optimistic in finding a natural cure for now. This is my personal feeling for my condition. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Alice","Ohio","58","A-Fib/A-Flutter....Anxiety Disorder (Panic attacks)","15","Comes and goes but causes lots of anxiety","Not hours and hours in A-Fib, just minutes of coming and going","Not really anything that I can associate with, had irregular heartbeats as a teen and the older I got and my anxiety disorder together made me pretty miserable.","Good....just had ablation so still recuperating from that 6 hr. procedure. Ex social smoker and do have a touch of asthma, need to lose about 40 pounds and I'm sure I would feel better.","","Well, this is Sunday and I just had a 6 hour ablation on Thursday so still feeling a bit rough. It is the 5th of December and I am wondering why I had this done so close to the holidays but it's done and I am going to think positively! I do have an anxiety disorder that is not at all helpful when it comes to A-Fib but try relaxation tapes to alleviate my stress. No alcohol or smoking at this point in my life but as a younger woman would drink and smoke socially and did feel awful after a night of doing both=-) Anxious to hear all about others' experiences on here and what has helped them....vitamins, faith, etc.","","Coumadin....Sotolol....Altace....Xanax....Lexapro","","2 ablations....one in 2008 and 2nd one 3 days ago, so 2010","","Just interested in others with A-Fib/Flutter and wondering if anxiety disorder is common among A-fibbers. Ready to live a life without thinking what is going to happen. This sounds pathetic and I am not like that....normally a fun person but do feel like a portion of my life has been affected by both conditions. I am married to a great guy for 32 years and have 2 children....a 26 year old boy with autism and a 23 year old daughter. They are both great kids. I am close to my 2 sisters and 1 brother so my life has been full of blessings. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Steve Dalbey","U.S. Southern California","54","A-Fib, A-Flutter","1","up to 4 times a month","30 mins to 24 hours","Exercising","good","CA","exercise, fatigue, overeating, position of body.","relaxing","20 mg sotalol 2 times a day. 81 mg asprin a day","metoprolol, flecaninde, asprin, warfarin, ","October 2009, A flutter ablation, August 2010, Pulmonary vein ablation isolation","currently 75 days in normal sinus rhythm","probably the worst experience of my life.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Todd Pearson","Vashon Island, WA","57","Refractory atrial fibrillation","20","8-10 per month","12-40 hours","None","Very good. I run 25-30 miles per week. Resting HR low 40's ","Living with it. Continue to run and exercise and pretend that it is not there.","Lack of Sleep.","None.","Coumadin. Nexium. Simvastatin. ","Atenelol. Propafanone. Flecainide. All pretty ineffective - continued episodes in spite of taking the damn drugs for 15 years. Amiodarone. After my first ablation procedure I was given Amiodarone for a very short time. I had what doctors have called an allergic reaction, which threw my thyroid way out of whack. I know from my own experience and my mom's toxic reaction to it late in her life that it is a dangerous and excessively aggressive drug. Avoid it at all costs.","I've had 2 ablation procedures, each performed by my cardiologist. He is an excellent doctor, the head of Electrophysiology Services at a major hospital in Seattle. The first surgery was ineffective, but the second one gave me nearly 2 years of symptom-free living. Gradually, however, the symptoms returned, though they are not as severe or debilitating as they were prior to surgery. Having tasted the magnificence of living without afib, I will not stop trying for a cure, and to that end have decided to have another procedure. My cardiologist agrees that my third (and hopefully final) procedure ought to be done by another doctor. I'm currently trying to convince my insurance company that the best, most effective clinic (ergo, ultimately the least expensive) is the Haut Leveque Hospital in Bordeaux, France. The father of the catheter ablation procedure, and the most consistent innovator in heart rhythm technique is Dr.Michel Haissaguerre. I think this clinic presents the best chance in the world for a cure, and I'll be going there soon, I hope. ","Live a healthy, active life that is free of the cursed atrial fibrillation.","Unfortunately, most of us live acutely aware of our symptoms. It's hard to avoid feeling the slightest rhythm variation, and to feel the disappointment, anger and sometimes fear as another episode bears down on you. I have trouble differentiating between PAC's and afib, and for my money PAC's are nearly as insidious. I feel them almost as strongly as afib, and if I don't push myself they will keep me from living the life I want to lead. I want a life free from all arrhythmias, and I won't quit till I get there!! You have to fight the bastard.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0,0,1,0,0,1,0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Anon","Ireland","61","Atrial Fibrillation and Atrial flutter","4. Many before diagnosis.","1 or 2 per month before medication. Now 1 or 2 per year.","Between 1 and 12 hours","None","Non smoker, non drinker, slightly overweight, high blood pressure","Condition seems to be under control at present.","none","none","bisoprolol. aspirin, propafenone","none","none","No plans. If condition deteriorates would consider surgical procedure.","It has a bad effect on holiday plans. High travel insurance, concern over having attacks abroad etc.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anon","Peterborough, UK","46","Ectopic heartbeat/ AF/ PVC/ flutter","6","Was daily, now variable","1 - 8 hours","None","Non-smoker, teetotal, vegetarian and fit but have recurrent heartburn","Ablation twice, comes back in a lesser form after 8-months or so.","None, although some things, at some times, make it worse like MSG. I suspect this to be some kind of vagal stimulation as it happens after large meals and often occurs when I have an upset stomach. Possible relation to blood sugar levels.","None.","Sotolol, Propafenone (I tolerate this well).","Atenolol (tight and wheezy chest in the evening) Propranalol Warfarin ","Ablation twice.","Keep seeing the consultant at Papworth, consider third ablation.","This ruined my marriage and makes me periodically miserable. The impact of this condition on my relationships has been significant.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Richard","Bay Area California","71","Atrial fibrillation","9","once a year","less than two hours","gall bladder problems","until lately very good","went into continuous atrial flutter nearly a month ago","Starts while resting. ","Daily vigorous exercise prevents attacks.","Started on Flecainide after flutter started. I am on Coumadin in preparation for cardioversion.Will continue Flecainide after cardioversion.","Atenolol, metoprolol made it worse. Cardiologist believes the Flecainide will keep me out of AF. We will see.","Had pacemaker installed but it is essentially turned of (starts if pulse goes below 30 BPM). Gall bladder removal. I believe that an inflamed gall bladder caused the atrial fibrillation. Had GERT, numerous bouts.","Cardioversion on October 7, 2010. ","We'll see if cardioversion is the beginning or the end of my problems. At it worse I was have three or four attacks a night. Found that all sorts of stimulants (caffeine,hawthorn, ginger)help Found by experimentation that number of episode related to lack of exercise. A sufficiently rigorous exercise routine prevented AF. . Ginger pills when I couldn't exercise work but too many cause migraines. All this until the attack last month that put me in atrial flutter.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0 "Madge","Rhode Island, US","50","persistent Atrial Fibrillation","unknown, but greater than 1","chronic, never in NSR","chronic","none","Overweight and working on it. I have lost 170 pounds since May 2009.","I feel fine, but am in constant AF","NA","NA","Warfarin Metoprolol 25mg - gives me insomnia and cold extremities, but helps with exercise tolerance ","None","None","I will have my first (and only) cardioversion in Sept 2010","I believe that my AF was caused by being extremely overweight, especially through my 30's and 40's. I also had moderately high blood pressure. After my weight loss, I was feeling really good and healthy, working out, wondering why my heart rate would get so high. Now I know! I am at the beginning of the AF journey. So far, rate control, anticoagulation, and ruled out sleep apnea. More to follow!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Pam","Auckland NZ","72","Paroxymal Atrial Fibrillation","Symptoms present many years but only diagnosed 1 year ago","2-4 times a week","few minutes to several hours","Unknown","good","partially controlled with diet and flecainide","overexhertion, wheat, yeast,","avoiding triggers reduces number of attacks","Flecainide, Omerprazole, Aspirin. No obvious side effects ","Dilitazem. Always tired & didn't reduce attacks Simvastatin. Cardiac specialist thought this was contributing to AF attacks","Nissan Fundification to cure Hiatus Hernia. Wrap too tight so further operation to loosen wrap. Still have sliding Hiatus Hernia with silent reflux. Breast Cancer treated with 6 weeks radiation therapy 9 years ago","No more overexhertion. To isolate exactly which foods stuffs I have an intolerance to.To be able to eat properly without triggering an attack. Can these intolerances be cured. Am going to try magnesium/potassium/taurine supplements.","It takes 2or3 days of eating known food triggers to bring on an attack.This shows I have an intolerance not an allergy. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "MsG","Boston Area","45","Paroxysmal Atrial Fibrillation","5",">7<30","30 min - 18 hours","Atrial Septal Defect Closure with Amplatzer Septal Occluder","Seasonal Allergies, Normal Weight at onset, Average physical condition","Afib frequency & duration increasing","Excess Caffiene Green Tea (but not black tea, mate, or herbal teas) Stress Fatigue Attempting to sleep, particularly when laying on left side Dehydration Cold/Flu symptoms Decongestants ","None","Toprol XL - fatigue, very slow heart rate, weight gain Flecinide - dry mouth, dizziness, headaches Aspirin - none Allegra - drowsiness, so only take if allergies are really bad","","ASD closure in 2005 Gallbladder","Hope Flecinide works for awhile Explore possible surgical options. ","Not a good candidate for catheter ablation because of ASD closure device It is frustrating to feel so tired all the time. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "LouiseUK","Stansted,Essex","55","Paroxysml Atrial Fibrillation","15 months ","I have had 8 but 3 episodes in the last five weeks quite strong","6-8 hours","lots of stress for years","Fibromyalgia, Half thryoid removed, Osteoarhtiritis, stomach acid, diverticulitis","havent had AF since 17th june 2010. Feel fatiigued and very depressed","I have stopped all caffeine, trying to keep stress down but difficult because I was job hunting. I am so tired i cannot work at present. Im awaiting ablation in October 2010. I should be going on Warfarin in September. I take Sotalol which make me extremely dizzy and very tired. The heat dosent help but it wont last long in the UK unfortunately.","Keeping relaxed and trying not to get stressed ","I take 80mgSotalol Thyroxine Statins 40mg Aspring 75mg","Pain Killer Didronel but have now stopped because I was told they are not good for the heart and the stomach Perhaps thats what caused it","Thyroid surgery and bunion surgery","Im having ablation in October and then wait and see I have to have more surgery on my feet but have to postpone everything until I have dealt with my heart","I have been job hunting for two years and have one thing after and nother with my health. I was anaemic, low thyroid, fibromyalgia, osteoarthititis, terrible pain, fatigued, diverticulitis. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Pauline Barnett","Manchester UK","66","arrhythmia, paroxysmal af","7 with arrythmia, 5 with af","2 only - Feb 2005 and June 2010","i) 24 hrs and 36 hrs","long term stress at work, 60 hr weeks, 4- 6 hrs sleep, sometimes less","Very good. Non-smoker, little alcohol","5 days after last episode - feeling good, heart beat fine, just picking up confidence again.","Prolonged periods of poor sleep - initially would miss sleep for as many as 3 nights - literally, would be up and about, not tired. Never wound down. This episode - many months of 4-6 hrs with frequent waking for painkillers, due to injury, poorly teated. No other known triggers. Highish blood pressure before first episode. ","?","Flecainide 2 x 50mgs per day, and losartin 25mgs per day. Not aware of any after-effects. Feels much better on current med than on previous. ","2005: atenolol initially, followed by 4 1/2 years on sotalol. I believed sotalol caused the symptoms since I felt better off it when I twice accidentally lost my tablets for nearly a week.","None","6 months on Flecainide then hope to be weaned off. Consultant suggests cardioversion if further prolonged episode, and ablation if more experienced. Will look into replacement of amalgam fillings.","Its extremely frightening, especially when you've been very fit all your life. Worst part, apart from the fear of dying, is the complete lack of control or ability to calm it down in any way.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "B Walker","Winfield, WV","32","A-Fib","4","1/year","1hour to 12 hours","Grave's Disease diagnosis","asthma, allergies, water retention, no smoking or drinking, mid-level diet","Occasional flutters and skips retaining lots of water","Even small amounts of sodium, caffeine and sugar. Medications such as HCTZ, Singulair, decongestants and inhalers. Significant stress of any sort.","Unknown","Flecanide - may be causing the flutters-- not sure Inhaler Singulair & HCTZ - known cause of fluttering Antihistamines (no decongestants) Synthroid - may be a flutter cause","Claritin-D enduced a-fib. Others cause flutters","Gall Bladder Thyroid Removal Nose & throat surgery ","Possible ablation after synthroid leveled ","This is a very scary condition. Not knowing what the future will hold. I am engaged at the moment and have to wonder if I will be around long enough to grow old with my fiance. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Steve","Orange, CA","51","A-fib","1 1/2","Persistent","","","Excellent","Persistent A-fib, ablation scheduled","","","diltiazem, warfarin Always tired, can't sleep on left side.","digoxin, rhythmo, multaq","","Ablation","Never knew I was in A-fib until a routine colonoscopy found it. Once corrected by cardioversion I knew when it triggered and have had two additional cardioversions and failed two drugs. Ablation is next step",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John","Sydney, Australia","69","atrial fribrillation","8","less than once a year","up to 5 hours","New Years Eve party 2003","Good overall health, controlled hypertension, light drinker","under control","alcohol. tiredness (after long air trip). after fasting and liquid diet prior to a colonoscopy examination. ","reduction in alcohol intake (not more than 2-3 drinks at any one time)","sotalol (2x80mg) slow heartbeat (55-60bpm) Prazosin (3x2mg) enalpril maleate (1x10mg) lipitor (1x10mg) asprin (1x100mg)","adalat oros (1x20mg) intermittent skin rash; constipation","eye surgery skin cancer graft inguinal hernia (x2) TURP","Stay alive as long as possible","I have had 4 AF episodes over 8 years and all have occurred at night. All had known trigger except the last (this year) which occurred spontaneously in the night. Episodes have been between 1 and 5 hours and I have attended hospital casualty on each occasion. Each time given blood test, ECG and x-rays. Only medication given in hospital was one 80mg soltalol.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Suzie","Austin, TX","66","Atrial Fib","6 months","continuous","","Caregiving & death of brother and husband","Good","Stopped with cardioversion yesterday","Stress","","digoxin, diltiazem, flecainide, coumadin Somthing is causing numb fingertips, cramps in bottom of feet","","","Hope to stay out of afib and eliminate all meds","This was the result of a period of severe stress.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Suzanne","Massachusetts, USA","55","SVT and AFib","SVT - 10 years. AFib only recently diagnosed, but maybe had it for years?","Could go for months / could happen several times a week","A few seconds or up to half an hour.","stress","overweight, non-smoker, non-drinker, poor exerciser due to other conditions","life severely compromised and constantly in fear of an attack","An attack can be triggered by stress, being stuck in traffic, flying (I hate having an episode when I'm confined in a small space and so avoid it if I can), any and all alcohol, going ahead with heavy work (shovelling snow, etc) when I know I don't feel 'right'. Also, when I go on a restrictive diet .. Medifast, Atkins, low/no fat, or just calorie controlled, it seems to trigger my heart. The worse I eat, the better my heart seems to do! But, sometimes, just as I'm drifting off to sleep, I get an episode. ","1) When I used to drink, I was almost always woken up in the night with one. So I gave up booze completely 8 years ago. 2) When I was on Medifast and used a lot of diet soda (Aspartame) or on Atkins and ate a lot of jello (more Aspartame) I was unwell... so I avoid Aspartame. 3) After a few episodes following coffee and/or chocolate, I gave up caffeine. I feel like I'm constantly avoiding things & giving things up but I'm still not free of these dreadful symptoms. My life is so compromised now because of it and I live in constant fear or another attack. I'm only 55, but I live like an 80 year old; trying to stay calm, avoid stress and keep these episodes at bay. It's exhausting! ","Simvastatin (for cholesterol) - no side effects Atenolol - as needed - no side effects I'm on a 30 day heart monitor, and so far have captured many 'events'. As unpleasant as they were, I am grateful, since now I don't have to describe them to people any more.. they can see them for themselves. When I meet with my doc in a couple of weeks' time, we'll have a discussion about options, I guess.","","Nothing heart-related. Emergency appendectomy, nasal polyps removed (7 times through the years). ","To follow through with this (electro-cardiologist) doc and see what she has to say about all this new data on me.","My husband is also a sufferer of AFib and he had a TIA three years ago, due to it. But, whereas I am almost always in synus rhythm, he is almost always in AFib. We are both seeing different doctors and hopefully one or both of us will see some improvement in our symptoms. We're both sick of this.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Richard Walford","Taunton, Somerset","61","Atrial Fibrillation","20+","Heartbeat is irregular all of the time","see above","None ","Previous smoker - 25 per day up until 1987 - none since","still here","rich food, chinese etc.","","Atenolol","","None","","I am not reallly aware of the condition unles it flares up due to excess as stated above.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Alister","Northants","39","Paroxysmal AF","Nearly 7","Infrequent - 1 or 2 per year","24 to 36 hours although first episode was a week in hospital","Father very ill","good","Had PVI March 2010 - no events since","Stress/Anxiety Strong coffee (caffeine)? ","","Sotalol 80mg twice daily (one generic brand (Almus) causes very low HR and skin rash) current generic brand (APS) OK Ramipril 5mg once daily - major headaches when first started Aspirin 75mg per day","Warfarin","PVI - March 2010 - Papworth UK Conscious sedation","Controlled withdrawal from Sotalol starts in 2 weeks Losing weight and hope to withdraw Ramipril this summer as was never high BP but my first cardiologist wanted to rule out hypertension and he considered I was borderline. Personally I've never known a high BP reading.","First episode I stayed in hospital for a week until I reverted. Had Heparin drip for the week and various drips including Digoxin . Finally reverted with Flecainide IV on 5th day and within 1 hour of being given the dose As I had been in AF so long I was kept in for a couple of days after. When in AF (fast - circa 200 bpm) most effective treatment is Flecainide IV, I now have some Flecainide as 'pill in pocket' but have never taken one. I have also had Amioderone through a central line. Had PVI at Papworth. Very worried before hand but the procedure and hospital stay was fine. Had chest soreness for 5 or 6 days and very severe heartburn for a couple of weeks. Feel fine now.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Anon","UK","43","Lone Para Atrial Fibulation","1 year","1 after long haul flight/visit at Altitude","12 hours, 48 hours, 12 weeks","Long haul flight / visit at Altitude","Non smoker, drinker, fit ","CArdio version cured, but experiencing breathlessness. ECG fine on testing","None known. All four major episodes occured after long haul flights (sometimes on landing!)haing also been at altitude. Symptoms was fluttering in throat and then breathlessness","None known","Sotalol","Sotalol and warfarin (for Cardio version). Headaches","Cardio version","Increase physical exercise, and remove alcohol to see if any affect","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Debbe","southern CA","52","PAF","1","weekly","16+ hrs","none","hypothyroid","officially diagnosed 3/2010","none yet","magnesium, potassium & taurine","Diltiazem replaced w/ Sotalol AF 40mg BID 3/12/2010 - unknown side effects ","Diltiazem ER 120mg, ASA 325mg BID, Bystolic 5mg for 1 year - no side effects refused coumadin and plavix","none","repeat echo & ekg on 3/19/2010 (locally) then move my care to an EP and women's cardiologist","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Gayleyne","Sydney Australia","58","paroxysmal atrial fibrillation","8","Daily","Vary from short to 24 hours","None","Blood pressure","Struggling to maintain normal life and am about to consider ablation.","I do not seem to be able to identify a trigger but when I'm in AF I can not drink or eat as this increases the heart rate.","I do not have a prevention that controls the episode.","Metoprolol 100mg twice a day Warfarin (Coumadin) various depending on INR ","Sotalol Flecainide Enderal I do not tolerate these very well and have had many side effects. Plus they do not control may AF.","I have had cardioversion both electrical & drug. Each time I am an emergency at hospital. I have not had any surgery.","I am about to undertake an ablation as the AF is causing great distress. When I experience long episodes I feel very unwell with dizziness, vomiting & sweating and can not function with my daily life. I am quite concerned about the procedure and am interested in other peoples experiences with ablation.","I hope that I can gain an insight to other peoples experiences through this site. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Dave","London, UK","37","June 2009","17","Weekly","less than 1 hour","none","ex smoker, moderate drinker","ill - controlling through lifestyle","fatigue, hunger, caffeine","enough sleep","aspirin","none","none","possible ablation","scary disease!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sandy Esterhuizen","Bracknell, Berkshire","48","A-Fib","3-4 years","4 peer week","up to 2 hours","burning sensation in upper shoulders & arms, sweaty hands, short of breath, dizzy, no 2 flush, urine frequently, mouth dry, thirsty, nausea, entire body shakes, tired, no energy","ex smoker (stopped 5 years ago) smoked for 20+ years","on medication, but still having episodes, considering Ablation ","Any form of alcohol, do not take any caffeine, in the beginning I had the episodes after dinner (but not now), walking long distances","Not sure","Flecainide 50mg 2 per day Bisoprolol 1 per day 75mg Asprin Nausea Often headaches","None"," 1. Hysterectomy 2. Gall Bladder removal Nissen Appendix removed 3. One ovary removed ","Discuss with Cardio to have Ablation","I have been a very enegetic person with no major illness. Getting the A-Fib episodes has made me very scared, as I am out of control and really worried that I may die. It has changed my entire life, I had to resign a really good job, enjoy life less, change diet, afraid to go anywhere on my own. I am very tired and drained and frustrated that I cannot have a normal life again. My only hope now is to have the Ablation operation and hope it will cure me.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Tom Clarke","Delaware, US","48","Lone Afib","15","Varies, sometimes 1x a month to 2x per week","Varies, few minutes to 12 hours","None","Very healthy, Gym Rat","2x per week","Unknown airborne triggers such as molds, auto fumes, bleach and other houshold cleaners, cigars, stress, MSG ingestion, on occassion alcohol, coffee and chocolate, but only 25-50% of the time. Many times cause is unknown, but thought to be food related.","Avoiding the above ","Flecanide, 50-100mg/2x day (brings on flutter sometimes, dizziness) Verapamil, 180mg 1x day (constipation) Aspirin 81mg ","Atenolol. Slight depression","Hernias (2) Appendix ","Would like to wean off the drugs if possible, considering abilation, but not until more effective and clotting threat lessens. Visiting allergist to see if they can find possible allergies. Looking for another docotor sho may try some different things instead of just claiming nothing can be done.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Peter K","Austin Texas","59","Chronic AFIB since the end of 2001","11 years","+71% of the day (time to up-date 11-2012) only once in the last month","Continuous (was, ok now 11-2012)","Overheated too many times during the Summer of 2001, cycling in Texas.","Excellent, never a smoker, was a social drinker (non-drinker now)Live and eat really well. No caffeine now. ","Very disappointed about my condition (happier now 11-2012)","Alcohol Caffiene Excessive heat, probably some dehydration, avid cyclist Had worked as a mechanic and have read that automotive exhaust can trigger AFIB. Not sure, might have contributed? Chronic AFIB since the end of 2001 Not enough sleep. ","Magnesium Glycinate helps No ALCOHOL or caffeine Stay well hydrated Plenty of sleep!","Coumadin (getting off in a month) COLD all the time! Flecaninide- 100mg 2x a day Metoprol- 25mg 2x a day ","2012- tried Tikosyn after ablation but I couldn't tolerate it. ------- 2009-2010 Acupuncture- smooths the problem, hasn't cured it. I feel much better afterwords but just for a day. -------- 2007- Coumadin, 2.5 mg daily- slight dizziness & feeling cold/ freezing all the time. Bleeding of course. One episode of urinating blood for 4 days! No reason found. Very scary. Multaq (Dronedarone)- At first (2 weeks) I felt tons better, still irregular beat but smoother. Side effects- occasional diarrhea (nothing else). Co-pay is pricey. ------ 2002- Flecainide (Tambocor)- at times I couldn't ride a bike. My lungs would freeze up and I'd have to stop and rest a while, start-off real slowly to get home. Didn't fix the A-FIB either. "," 2012- 1) Ablation (w/ a hematoma side effect, very bad pain, very slow to recover from +5 weeks!) Tried Tikosyn, couldn't tolerate it. 2) Cardioversion- w/ +10 second gap of no heart beat) 3) Pacemaker to stimulate the SA nerve that had gone to sleep after 10 yrs of A-fib. (Don't let it go long!!) ------- Cardioversion Sept. 2009- lasted less than a minute in sinus mode 7mm Kidney stone blasted with ultra sound Nov. 2009 (not the reason for the blood in urine) I'm sure the kidney stone came from the use of coumadine. It leaches calcium out of the system. Cardioversion, max jewels of 360, Dec. 2009- only lasted a minute","2012- Let the ablation do it's thing and it is! Hoping that the pacemaker can come out after a year or so if the SA nerve comes back on line. They are giving me hope! ------- 2009- Not sure. Wishing for more alternatives. I DON'T want to be on drugs! Considering ablation (fallowed by acupuncture0 but my surgeon says I have less than a 20-30% chance ablation will work in my case. ","2012- It's been a long couple of months but I'm very hopeful at this point! A word to the wise~ do something about your A-fid rather than putting it off, which makes it much harder to deal with. --- 2009- Very disappointed about my condition mainly because I don't ever want to be on any drugs.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Peter","Denver, Colorado","80","persistent A Fib","17","infrequent","15 min.","none","good","2 ablations-2 and 4 years ago, no meds, infrequent episodes","Alcohol Coffee Stress Sometimes, large meal","Medications - xarelto","","Toprol Rythmol Sotalol Multaq Flecanide","none","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "ysbae49","Seoul, Korea","60","Afib","3 ","once a month","1- 2 hours","Heart attack","","Cured","","","aspirin, plavix, ","","PCI in Feb.,'06, Ablation in June, '09","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0 "Steve","Pueblo CO","59","November 2009","6 yrs - definitively diagnosed only recenlty","Several times a week","2-8 hours","None ","Good health, was 10K runner. Have had controlled hypertension for years.","Starting treatment with atenolol - too soon to tell. ","Attacks seem to occur most often either after meal or when reclining in bed.","Sleeping on right side seems to help. Nothing has succeeded in stopping an attack once it starts. ","Atenolol, coumadin. ","","None","Monitor and stay aware of my options","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","US","55","Chronic A-Fib","5 years","Chronic","Chronic","Cancer","Muscular Dystrophy, Rheumatic fever, CHF, Valvular disease and replacement","very ill","none","none","metropolol, coumadin, ","","Open heart in 2005, partial ablation in 2008, pacemaker in 2006","","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,1,1,1,1,0,1,0,0,0,0,1,1,1,0,1,0,0,0,0,1,1,0,0,1,1,0,0,1,0,1,1,0,0,0,1 "Camille","Florida","71","Paroxsymal AF/AFlutter/Tachycardia; HBP, thyroid removal (benign) age 57; some problems dosing thyroid meds.","4","usually, every year or two, while at rest each time","12-16 hours","root canal using epinepherine and later codeine","overweight but fit; ride recumbent bicycles daily; 2 hr workout min.","last episode 3 weeks ago was the first time Dr. tried to convert with 225mg 3x's daily propafenone; added metaprolol to slow HR; HR for last 3 weeks is 100+ instead of usual 68-74; BP also increased.","Thyroid hormone replacement being off-kilter all but the last time. Converted twice chemically IV in emerg.room. Latest episode while driving, increased propafenone, then, went into tachycardia which continues with high HR. 2 Scotch drinks was a trigger once. For nearly a month since last episode, I finally converted with drugs but I believe the propafenone is causing the runaway pulse. For the first time, I can't feel that inside my chest. I usually know when I'm in AF or AFlutter. This time, I can't tell unless I take my BP and get a pulse reading. My BP machine detects irregular pulse and that icon usually shows up. Docs don't seem overly concerned. Went to emergency room yesterday with BP of 190/110 and pulse of 130. Did nothing but monitor me and ekg plus usual bloodwork to rule out any cardiac difficulties. No pain; released me after 2 hours. Thyroid normal. Today, Thanksgiving Day, I feel pretty normal. It's amazing what relief can do for your head and cause calm. ","I've tried it all; every single thing I can find. Thought I'd found a good combo with magnesium (Peter Gillham's Natural Calm), rx Potassium, 10meg every other day, COQ10, Vit C, Calcium, etc., but maybe because I dropped the Hawthorne Berry. Will go back on that. Open for any and all natural solutions. Bike riding also seems to help me the most! ","Resisted coumadin until this last episode. Then, I was ready. It almost killed my mother, so I've always been afraid of it. My INR was 2.7 in emergency room yesterday. That's about where I'd like to keep it, although at that rate, I have a little problem with minor bloody nose. Propafenone was increased with last episode and metaprolol was added, 50mg twice daily. I am convinced that this drug is causing my rapid heart rate. I just am afraid of this drug, but the doc says it's best in the absence of structural heart disease. Have hiatal hernia 22 yrs. Have insomnia the worst. Sometimes GERD. Have rx for amitriptyline, for sleep, but don't take it very often. ","Cardizem 240 mg did not help blood pressure or arrhythmias, so I had to return to beta blocker. When I tried to wean myself off propafenone, had major AF episode which required chemical conversion in emergency room in 2008. ","Thyroidectomy (benign).. Had small tumors all over both sides, so thyroid was removed in its' entirety. I moved away from my original EP, so I plan to get a new one after the Holidays. I am not, at all, impressed with current cardiology group where I live. There is no rhythm specialist in the group, so I will have to go out of town.","Possible procedure that will get me off these meds after meeting with a new EP in Ocala, FL, where an AF Lab is scheduled to open the first of 2010. Keeping my fingers crossed for this pursuit. Continue to lose weight. Keep up exercise. Try to stay positive and keep stress at bay. ","These groups provide invaluable help. I have found several people in this database who could be me, exactly. I plan to call one person who left a telephone number for people who want to know more about iodine's effect on AFib. I went to a Wellness group in Central Florida who also were proponents of iodine, but I never got that far. That group started me on Armour thyroid and I was WAY overdosed which caused my AF episode in 2008, so I never returned. Her med changes for me really messed up a perfectly good blood work panel, and my regular physician had a 'fit.' Oh, well...but I'm surely curious about the iodine theory! Hope to find others who have tried it.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,1,1,0,1,1,0,1,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Joe","Limerick Ireland","58","Afib","3","","varies","none","fit non smoker nondrinker","almost cured","when nervous or stressed","","sotocor makes me tired warfin digoxin lipitor","","2 cardioversion 2 ablation","try to get off medication","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "anon","Sunderland, UK","40","Atrial Fibrilation","5","2 times a month","varies between a few mins and 2 hours","Hangover and drank loads of diet cola","Drinker","Intermittant","Alcohol, lack of sleep, de-hydration.","Lots of water seems to help.","Metaprolol, took one day (today) and had to stop because as I normally have Sinus Bradycardia my heart rate went too low (48 BPM). Asparin.","N/A","None","Avoid consecutive nights of too much alcohol. ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Huw","North Wales","52","lone paroxysmal atrial fibrilation","over 10yrs","at present every 2 weeks, in past went 3mths without an episode.","5hrs","Death of Wife, years of heavy drinking","at present i don,t drink or smoke, overweight","I had an episode this morning.","Eating late,dehydration,stress, disturbed sleep, doing too much at one time and too long a gap between meals and too much chocolate.","prevent doing the above","75mg aspirin Propafenone HCL (arythmol) 2x300mg to be taken an hr after the onset of attack.","n/a","n/a","More exercise","It doesn,t prevent me from going to work,as they happen at night when i,m in bed. In 10 yrs i,ve only had episodes 6 times during the day.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ivan","Florida, USA","39","Lone Afib","First episode at age 27 for 30 min after workout. Next one 9 years later after over working myself all day outside in 90 degree weather and not drinking enough water.","First 2.5 years every 3-4 months for 3-4 hours, then every week for 3 hours.","2-4 hours","Heavy bodybuilder until age 27. used Creatine Monohydrate heavily during exercise.","HEavy 2nd hand smoker from birth to age 21","Completely NSR for over 2 months","Sleeping on left side or supine Exercise or manual labor (Afib would start next morning) Caffeine Heavy meals ","None until 3 months ago when I started Taurine, L Arginine, Acetyl L-Carnitine, Hawthrone, COQ10 and fish oil.","Reduced Toprol from 50 mg daily to 12.5, Hoping to go completely soon. Blood pressure rising though.","Norpace (Held back urine, felt dry.. Didn't work) Rhythmol( Put me in Aflutter for 23 hrs... Got off it ASAP) Toprol XL( Worked well to lower HR only, made me sleepy/lethargic, didn't really stop AFIb) ","None","Stay on natural meds as long as in NSR. ","I will consider cryoablation if necessary and only as a last resort. The combination of supplements I am taking have really made a difference... Like night and day. I hope I can help others with this information!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Phil S","Manchester, UK","39","Lone AF","2.5","2 to 5 weeks","6-16 hours","Virus + holiday heart (drink, food overindulgence)","Good, active, light drinker","Stable - managed with PiP flec suppliments","Heavy exercise too much alcohol large late meals dehydration too much coffee","minimise alchohol intake and heavy exercise","Flec PiP - light headache sometimes","Bisoprolol 2.5mg - fatigue","n/a","Monitor ablation technology/outcomes","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John","Upstate, NY","57","Atrial Fib","1","2 weeks","2hrs to 2 weeks","none","sleep apnea, slight hypertension","awaiting cather ablation","","","Toprol-50mg, Rythmol-150mg 2x day. low resting heart rate. headaches, light headedness, nausea, blurred vision.","Beta-Pace-160mg 2x day. Legs very heavy during day, restless at night. very foggy brain. fall asleep at work in afternoon. Very low resting heart rate. panic wake up in night gasping for air.","none","Awaiting appointment with EP to talk about cather ablation.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","Cheshire","55","paroxysmal AF","0.25","2","8hrs,19hrs","none","good","normal","alcohol, caffeine, possibley emotional stress","alcohol reduction, caffeine reduction","75 mg/day aspirin, no side effects. Simvastatin 40 mg/day no side effects","flecainide by IV was used to revert first episode of AF, post event orally prescribed at 100 mg /day. Discontinued after 1 week","none","continue to monitor trigger events. Take magnesium suppliments","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Don","Cultus Lake, B.C.","51","A-Fib","15 Months","Almost Daily","15 to 30 seconds","Type II diabetes","No smoke, Moderate drinker, Diabetes under control","Better than 15 months ago","It can come on with without any triggers. Ususally just while sitting or laying down. Standing up quickly can also bring it on. Have only had three major bouts where hospital/emerg. was used. Two of which actually took place in the hospital while visiting my son. Attempts to cardiovert during one session not successful. (three jolts) Converted on it's own once and a by using drugs the other times. (slow drip of Magnesium sulfate)","none","Was on Metaprolol but taken off after a few months because it was not allowing me to exercise without giving me arrithmias. Currently on Rythmol, Altace, Indapamide. Don't really feel any side effects from the drugs but there may be some. Also Warfarin for a blood thinner.","Altace, Indapamide, Metformin","Knee surgery a few years ago.","I'm going to explore ablation with my Dr. I don't care if I have to wait and am not considered priority I just don't want to be handcuffed by this for the rest of my life if I don't have to be.","This came out of the blue with no warning signs. I have always lead a fairly active life with scuba diving, hunting and fishing, motorcycling and riding ATV's It hasn't completely stopped me from doing things but it's always in the back of my mind what the consquences could be if I were to have even what normally could be considered a minor injury accident. I really need to get off of the thinners and get my life back.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Ken","Florida, USA","61","Afib","2 months","once","12 hours","none","Generally healthy, not overweight occaisonal PVC's","being treated, feel fine","Excitement, fear, anger","Relaxation, Exercise","Flecainide 50mg twice daily, Toprol 25mg once daily, Aspirin 325 mg once daily, Simivastatin 20mg daily Nitro-glycerine in case of chest pain Slight dizziness now and then, not sure if it's flecainide or Toprol. Simvastatin seems to upset my stomach sometimes. No chest pain to this day, so far no need for NG","Dialziatem 120m was changed to 25 mg Toprol. Notice a slight decrease in heart rate 53 BPM resting.","None","To hopefully once again regain a 'normal' life. Right now I am still afraid to venture very far from home. Up until my diagnosis, I was an active adult. ","I wish I had more information. My hospital appointed cardiologist is not one to explain much. He has said I should have a catheterization due to an negative stress test which showed blockage during stress. No restriction was seen when at rest. Since I have no insurance, the catheterization will not be done. Has not explained if there are any risks involved, but only said to not worry, and go back to my normal routine.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Marianne","Lexington, KY","52","Paroxysmal AF","15","1x/month or less","3-4 hours but has been up to 36 hours","migraine","non-smoker, non-drinker, diabetic type II","waiting for first ablation in September 09","exhaustion, insomnia, stress, anxiety","Getting plenty of sleep, taking Ativan at first sign of agitation","Tambocor - 150mg b.i.d., Cartia XL 240mg -q.d., Digoxin .125mg - q.d. No appreciable side effects","Verapamil - extreme weariness and sluggishness, poor brain function and response Sotalol - no side effects, and no effect on AF Metoprolol - no effect on AF","Tonsillectomy, Septiplasty","PVA on 09/09/09 - ","I've gotten to the point where the AF episodes have become disruptive and annoying, so it's time to try the ablation.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Paul Gilmour","Decker, Michigan","43","A-Fib","I will update by i think about 6 years","average about 1 a month","4 to 5 hours","","occasional drinker ( a alot less since diagnosed with afib","Have had 2 ablations thought i was cured starting to get more episodes. Doctor appt. 7/31/09","Caffine, 99 percent of my episodes start when i am laying down to go to sleep.","","none","Coumadin, toprol.","1st ablation done in Saginaw michigan by doctor Yunis. 2nd ablation and current E.P. is a doctor Kutinsky in Taylor Michigan. That was performed at Beaumont Hospital in Royal Oak Mi.","I have a appt. on 7/31/09 and will see what the doctor tells me.","My A-fib eppisodes do not seem to be as bad as a lot of stroies i have heard on the A-fib support group. I do know that i would like to have it cured. When i thought I was done with a-fib after the second ablation i was elated, and then when i started to have more eppisodes it was quite depressing. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Sheri","Virginia","62","afib","6 months","2","1st -had cardioversion , 2nd-heart converted medication changed","exhaustion, shortness of breath","excellent","good","currently on-sotalol, unsure if dosage is corect. I do not know when it happens so it is hard to even know what triggers it. Have cut out alcohol, 1 cup coffee per day, exercise constantly. I am frustrated since I cannot pinpoint any trigger and medication is not completely taking care of the problem.","I don't know how to prevent it since I have no symtoms until I have been in afib for a period of time. ","sotalol-seems to make me tired at times ramapril-no side effects coumadin-blood checks, level is not consistent lexapro-no side effects","","Dec-hospitalized with afib, high blood pressure, enlarged heart (upper chambers) and low pumping function. Had the catheter test and ecc showed no blockages. Cardioversion in Jan-worked and put on sotalol. June- hospitilized for afib heart converted after higher dosage of sotolal. ECC showed heart normal and pumping function 60.","I want to get this under control so that I can live a normal life. ","This is the first major illness I have ever had. I want to learn as much as I can and seek the best treatment possible. It is so frustrating not to know when it happens or why. I ignored symtoms in Dec thnking I was recovering from the flu but now I know I must take my blood pressure and monitor my heartbeat to avoid further issues",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0 "Richard","vancouver BC","51","afib lone","6 months","occasional daily heart flutters,3 cardioversions from afib,1 time returned to normal sinus rythum by itself,","12 hours until cardioverted","n/a","great physical shape, daily exercise to raise heart rate,non smoker,rare drinker,good health","trying to get on wait list for EP exam and speak with someone that does ablations,disapointed with health care system waits.Disapointed that medical system doesnt see this as life altering because they see so much of it they are not proactive in solutions","3 times after exercise and typically at rest either sitting or lying down in the evening, although one time it came on during exercise in the middle of the day. Off coffee,chocolate,tea,alchohol, and it hasnt made much difference.","","bisoprolol 5mg in morning and 2.5 at evening. Makes me tired due to low heart rate, but when in afib my rate at 91 compared to non-drug times it has been at 170. So the bisoprolol helps keep the feeling of a heart pounding in the chest down and that helps keep the anxiety down during episodes.The beta blocker has limited me from running to walking. I have propafenone but refuse to take it until I understand more.","none","none","seeking ablation information.........not just success stories to make an informed decision.","Disapointed in getting doctors to see this as life altering. They see it so much in the elderly and end to leave them in it. I find this discouraging concidering there is, by the information I have so far, effective ablation techniques. One doctor actual said I can speed the process up if I was in afib all the time and had a stroke. I though this was a sad statement......presently there is a 2 year waiting list for ablation,after getting on the list,which so far has taken 6 months",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Michael","Maputo, Mozambique (American abroad)","40","atrial fibrillation","newly diagnosed/possibly one year","have only had three known episodes over a month.","1-4 hours","none known","Very good health: non-smoker, occasional social drinker, exercise regularly, eat well.","Just released from 4-day hospital stay and under treatment in Pretoria, ZA.","First episode was exhaustion before a run unable to continue exercise. Other were after very late night working in home office and waking up to feeling of nausea and lightheadedness. Passed out briefly once. ","Still too new to really know, but after looking at suggestions here, I think I'll work on lowering stress, improving my sleep habits, cutting caffine, losing a few pounds and adding a couple of vitamins like magnesium and B-10.","Heparin (temporary, 7-days); Tambocor (100 mg) twice daily; Concor: 1/2 tablet (2.5 mg) daily; 1 apirin daily.","None known","No history of surgery.","I'm overwhelmed by this relatively new bombshell being diagnosed with AF. I've been on a binge of learning as much as I can since being released from the hospital yesterday(6.11.09). My doctors are baffled and still trying to determine why someone young, with no family history of AF, and in good health has atrial fibrillation. I will continue with the drugs for at least 6 months as advised by my doctor until evaluation. I am troubled by the idea that I am not cured, even under medication, until what seems an inevitable surgery takes place sometime in the future. My doctor says that technology has been improving at a rapid pace and thinks I should hold off as long as possible. Still, should I have a stroke or simply just another episode, that advice seems awfully foolish. Meanwhile, I hate the idea of being on medication (being American, I am not a fan of big pharma and our horribly expensive and inadequate medical industry, even though I am insured and can afford my treatment). I am a photojournalist and processing the idea of being limited in where I can visit and travel too based on my recent medical advice/warnings. However, being the father of two incredible boys (2 and 4), I am thankful that treatment exists and that there are others whose experience with AF I can learn from. ","One of my doctor has caused me much stress by mentioning a pacemaker on more than one occasion as in the cards for me.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Timothy D","Asheville North Carolina","49","Parocysmal A- Fib, left Inferior pulmonary vein occlusion","4","once to twice per month","several minutes to days","strenuous run ","longstanding HTN - distance athlete - marathoner, triathlons - sprint to half ironman distances ","paroxysmal - exercise tolerance is affected by pulmonary vein occlusion, ","strenuous or prolonged exercise sessions, dehydration, fatigue","adequate sleep, careful hydration, ","propafanone, coumadin, lisinopril, omeprazole","Sotalol - extreme fatigue and severe exercise intolerance Flecainide - pro arrythmic","Ablation - 2007 - with recurrent arrythmia Pulmonary vein angioplasty - 2007 - vein quickly reclosed","I don't want to have another ablation for fear of additional damage to my pulmonary veins. ","I am looking for ways to advance exercise without increasing frequency of A-Fib episodes. I have devleoped a whole host of behaviors trying to get in quality workouts - Chicken Noodle soup before workouts - 60 oz gatorade on runs - naps within an hour of hard workouts - etc. Not sure if any of it actually works. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "linda ","california","60","lone atrial fibrillation","1 year","varies - 1-3 months apart in beginning, now every few weeks","1-4 hours, always in evening, rapid heart rate up to 163 bpm","none","hypothyroid, no smoking, alcohol, caffeine - digestive problems - vagal afib","waiting for ablation consultation, allergic to propafenone, flecainide","after meals, resting, lying on back","trying taurine with some preliminary success","allergic to propafenone, flecainide, metapolol Diltiazem OK - 150 mg. 1X/day 1 aspirin taurine, 1500 mg./day, more with afib episode","see above","none - considering ablation","ablation???","have had 4 ER room visits in last 2 months during afib episodes due to rapid heart rate, dizziness, shortness of breath. one cardioversion. very disruptive to life. Just started taurine - converted to NSR during last episode after 30 minutes with taurine. Want to give it a chance before going for ablation. Don't want ablation unless absolutely necessary. Digestive problems - vagal afib. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Sandra","Cape May, NJ","43","Atrial Fib/Flutter","6","daily","1 min to three days ","none","Good, non smoker, social drinker","In three month healing stage post ablation, still experiencing A-fib/flutter daily.","Caffine, stress, alcohol, and just because.","Medication~sometimes.","These are for A-fib/flutter post ablation Asprin 81mg Diltiazem 240mg-just changed to 360mg Mag Ox 400 Propafenone 225mg 2 x day Warafin 5mg These are for the chronic cough post ablation Veramyst 27.5 Tessalon Pearle Protonix 40mg Nasacort AQ Other Premarin.625 1 x per week Vitamin D-3 1000 IU Caltrate 600-D Amitiza Alendronate 70mg Have blurred vision ~not sure which one causes it.","Toprol 25mg- discontinued after chronic cough began. Made me tired. Flecainide (tambocor)-did not control a-f/flutter. Felt horrible 24/7.","Gallbladder removed 1985 Hysterectomy 2001 Ablation 4-2009","Hope the ablation corrected a-fib~still in healing phase. Doctor already said he has to go back in to correct a-flutter. Hope to some day be medication free for a-fib/flutter... ","Surprised post ablation that I experienced many bad episodes of a-fib/flutter. Concerned about chronic cough post albation- I have been coughing for 5 1/2 weeks... Doctor is going to try new Multaq. Does not want me to stay on Propanpanone long term.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Aly","CA. USA","67","PAF","2 years","Once every 2-3 months","2-3 hours, ","","Good health, non-smoker, drink moderately","Feel great unless I am having an episode","Caffeine, alcohol,once when I had the flu. Twice on airplanes","Avoid caffeine, limit alcohol to an occasional glass of wine with dinner.","Aspirin 325mg - none Zetia 10mg - none Fish oil Diltiazem 120mg PRN - I haven't taken it yet","None","None","If episodes increase, I might investigate an ablation","When I get an episode I feel no chest pain but have palpitations and lightheadedness",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "woebegon girl","Richmond, VA","62","A Fib and PVC","life","Currently controlled by ablation and drugs","sometimes 12 hours","Born with WPW, had ablation at 45 then AF started at 59","good health, non smoker, social drinker","","currently not having any AF events went on flecanaide last year to control PVC","","Metoprol 25 mg extended release and flecinade twice daily 50 mg","","ablation - 1991 for WPW ablation 2006 for A Fib ","","Very pleased to have the ablation procedure for the WPW and the A fib. Hope that the Flecinade continues to work for the PVC",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,1 "Lisa G","South Australia","55","Lone Atrial Fribliation","2 1/2 years ","was 3-4 times a week now 1 every 2 weeks ","16 hours ","Stressful week and very nervous and jumpy ","Non smoker ,non drinker would get headaches now and then ","Feeling very good now ","Anxiety, matured cheeses, chocolate sometimes, run down, if I over eat or eat in a hurry, chilli and spices,bananas, suspect Thyramine foods as well, I suspecte low blood sugar as well."," For me keeping less stressed no anxiety if possible Avoid matured cheese, bananas and lots of chocolate Not too much coffee or tea ","Executive B Vitamins by Blackmores 1 tab x 2 day Fish Oil 1 capsule x 2 day Cardio Nutrients 1 capsule x 2 day by BioCeuticals no side effects ","Tambacor 25mg x 2 day stopped taking this as they didnt prevent my AF no side effects on this low dose ","non","Will continue to take Fish Oil, B Vitamins and Cardio nutrients as I feel less stressed out and less anxiety since I have been taking these supplements Will continue to have Bicom Therapy as this also has helped tremendosley with desensitising of epinepherine (adreline) and Thyramine ","I was pissed off when the Dr. said that I would have AF for the rest of my life....Im determed to keep trying out new therapies if needed. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dan Simmons","Smithfield, NC","59","AFIB","7","twice a month","up to 100 hours","none","good, non smoker, non drinker","frequency increasing and considering atrial ablation","none","none","metoprolol","amniodarone","Pacemaker/ av ablation","atrial ablation within the next 2 months","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0 "Jean","U.S.","77","Atrial Fib /Flutter- Mitral valve disease","2 years","2 episodes","First one converted spontaneous, prestently in one-4days","Mitral valve stenosis","good no bad habits","anxious, ","","","amiodarone 100 mg daily metropolol 100 aldactazide 25/25","fentenyl Morphine, codeine, demeral Sulfa drugs (bactrim etc) ","Valvuloplasty for Mital stenosis Ablation procedure for A.Fib. (unsuccessful)","Valve replacement","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,1 "Sarah","Portsmouth UK","22","Wolff-Parkinson-white syndrome","22","every day several times a day","anywhere from 5 mins to several hours ","was diagnosed with WPW at 6 months old","drink occasionally, smoke very little","quite ill and uncurable apparently!","seems to happen no matter what i do although it is worse if i havnt had much sleep","none work for me have tried everything that has been suggested to me to no avail","have just started taking flecainide acetate (Tambocor) and im not feeling to good with it seems to be making things worse if anything","i have tried several beta blockers and things which always seem to make me worse ive tried digoxin atenolol bisoprolol metoprolol and some others that i cant remember!","i have had 5 radio frequency ablations starting from the age of 12, i was due to have another but it has been decided that because of the position of the extra pathways in my heart it cannot be done by an ablation","i am due to have a heart monitor on for 7 days to see how things are, will continue with the flecainide until something else is decided","",0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,1 "marshall walker","madison, ga. us","70","A-FIB","8","3-4 times per 24 hrs.","as long as 4- 5 hours","none","excellent","cured","stress, alcohol, coffee, ?","ablation","none","about 7 different drugs tried, some worked for a short period of time","none","keep on keeping on","i would like to help someone who has this condition by giving my non medical advise",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Nick","Torbay UK","62","Paroxysmal AF","diagnosed 1 - possibly many before diagnosis","Don't know","fleeting - measured in seconds","acute stress","good, was heavy drinker, non-smoker, fairly active","pronounced 'cured'","Stress, Alcohol","alcohol abstention ?","Diltiazem, Sotalol, Warfarin","Atenolol, digoxin","none","stop drinking for at least 6 months","I had my first tachycardic episode when I was about 14. I thought I was going to die, but didn't. Had successive tachycardic episodes throughout my life, but they only ever lasted max 10 minutes. I believe I may have had my first AF episdode about 10 years ago. After a heavy night drinking in preparation for a very very stressful meeting the next day. After this meeting I had a tachycardic episode. The difference was that normal rhythm didn't restore itself. My heart rhythm seemed all over the place. After a few days I went to hospital for a cardiogram. This caused my heart to race, and become tachycardic again, after which normal rhythm restored itself. Later my doctor put me on Diltaziem for hypertension. That seemed to be that, until last year I woke up one morning and knew my heart rhythm was't right. Into hospital again, and there I was diagnosed with AF, due in their opinion to alcohol intake. Luckily for me cardioversion worked 1st time. After 6 months on a check-up they discovered 2 very fleeting AF episodes from a 24hour monitor, both of which I was completely unaware. They switched me from Atenolol to Sotalol. After 1 week they checked out my heart rhythm again and pronounced me 'cured' - as long as I stay off alcohol. I still have not yet seen my (?*??!!) consultant, I guess I am not important or ill (should be positive here really) enough. I am seen by the local arrhythmia nurses, who do a great job. However it would be nice to meet my consultant to get some answers to questions that the nurses can't really field. ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Sammy ","GA","46","A-fib","3 years confirmed - ","Since ablation A-Fib has been controlled with medication","A-Fib had been persistant daily before ablation","About 3 yrs. before 1st diagnosed would have real dizzy spells, cold sweats, nauseated, weak, shortness of breath. Dr. kept saying I had a sinus infection. Finally got so weak I could hardly hold out to walk.Knew then something else had to be wrong.","past smoker (had to quit because they made me feel sick apparently the nicotine speeded up my heart rate even more) Guess I should have known something was wrong then - social drinker","Good at this time with medication","Who knows?","Tikosyn","Tikosyn Coumadin Quinapril Mobic Coreg weight gain & diarrhea. When 1st started taking Coumadin had severe stomach pains ",""," Never had any health problems prior to A-Fib. Had 2 Cardiac ablations in '07 Even though the Ablation Procedure takes about 6 hrs. they were both done out-patient and were not really that bad. If you need to have an ablation done I would'nt put it off! ","To be A-Fib free.Trying to put off having my 3rd ablation for fear of damaging pulmonary vein.","Had 1st TEE 9/06 which revealed a blood clot in heart. had 2nd TEE 11/06 then had cardioversion.12/06 2nd cardioversion 1/07 went to Emergency Room w/a-flutter.2/07 had 3rd TEE.4/07 4th TEE.5/07 had ablation done it lasted about 6 weeks. 6/07 had another cardioversion which lasted 6 weeks.9/07 2nd ablation done.Had only 1 episode in 08. 1/09 Dr. took me off Tikosyn.Went back into a-fib 3 times over the next month. Was taking 3 Tikosyn a day so went back to taking 1 Tikosyn a day.Back in NSR for now, have to wait and see what happens.UPDATE:10/30/09 now back to taking three tikosyn a day & having on average 3 episodes/week lasting 20 or 30 minutes each.",0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Ericafib","Venice, FL US","65","1st Degree heart Block, Paroxsysmal AFIB, High Cholesterol, Cornerary artery 40% blocked, Bradycardia ","Afib 3 yrs, Bradycardia 20 yrs?, heart block 4 yrs","Daily","<4 minutes","pneumonia/flu, scarlet fever as child","good","symptoms rare: blurred vision/night sweats","Possibly drinking cold water/ rushed eating","","Aspirin 81mg Coumadin 34mg/week Lipitor 80mg Sotalol 240mg ","digoxin did not work adenosine lowered heart beat too fast","Pacemaker 12/21/08","Try another beta blocker as Sotalol/Pacemaker not fully effective. Look into electrical cardioversioning/ablation solutions.","First eye floater coincided with Coumadin",0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0 "anonymous","Nevada, USA","52","atrial fibrillation","25","2-3 times per week and increasing","5 seconds to 12 hours","none I'm aware of","good, MVP, migraine, hiatus hernia","occasional afib, rare migraine","caffienated beverages","","sotalol, 320mg per day / no known side effects","","none for afib, knee surgery (arthroscopic), thyroglossal duct cyst excision, oral surgery","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Brendon","UK","52","HOCM","30","Permanent","24/7","HOCM","Good non smoker no alcohol","Tired uncomfortable otherwise OK","None","None","Atenolol Warfarin No significant side effects","Atenolol","None","Seek alternative solutions","It has been comforting to know I am not alone and there are others who will understand.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "j","Houston TX","37","Atrial flutter","1.5","Variable: Sometimes no symptoms for weeks; then everyday or a few times in a week","Variable: minutes to many hours","None noticed prior to first event. Have noticed throbbing headache prior to more recent prolonged events. Doctor noticed 'large' area of electrically inactivity in atria during ablation and speculates some sort of viral infection may have caused it.","Good. Non-smoker, social drinker.","OK","None specific noticed. Alcohol and/or tiredness may be related but not definitively.","See meds below.","Rythmol 325mg 2x/day (started Dec 2008) Aspirin 325mg 1x/day Toprol 50mg 1x/day as needed during episode","Toprol 50mg 1x/day Jun 07-Dec 07 Somewhat successful in controlling episodes but during episodes gave high heart rates (200bpm), falling back to 90-100bpm on rest. Sotalol 120mg 2x/day Dec 07-Dec 08 Moderate success in controlling episodes, but less high heart rates during events (120bpm). Tendency during episodes for heart rate to get 'stuck' at 100-120bpm for long periods, even at rest. ","Cardiac ablation Jul 07; Aug 08; both unsuccessful. Second surgery more sophisticated mapping employed and aggressive ablation performed. Reduced symptoms for month after second ablation, but symptoms returned Oct 08.","Try meds for extended period of time. Wait and see how surgery progresses before trying again.","Frustrating not to be able to say what is the most likely cause.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Sally L","Barnstaple, UK","46","Paroxysmal Atrial Fibrillation","5 months","2/3 times a week to start, 2 month AF free, then another episode","2-7 hours","Stress, possibly too much thyroid hormone","Hypothyroid, CFS, non-smoker, infrequent drinker","Still waiting for 2nd Cardio appointment","Stress, lying on left side, otherwise very difficult to tell","Not known","Bisoprolol Side-effects - Fatigue, feeling spaced out, water retention in toes, difficulty focussing eyes to read, poor short-term memory, depressed, irritable, cold intolerance and cold hands and feet. 75 mcg Thyroxine (not yet taking optimal dose) 15 mg Lansoprazole (for gastritis)","None","None","Hoping that once my thyroid medication is balanced the AFib will clear up. Possibly pay privately to see a proper EP as I currently see a general medicine doctor with an interest in Cardiology who seems to have no interest in me. I need to get my AFib managed more effectively.","Doctors don't seem to appreciate the devastating effect that Afib can have on a patient and their family. It is so unpredictable and scary. It is difficult to think of anything else since I was diagnosed 4 months ago. I don't want to go out or make plans because I am afraid of an episode. I'm scared to lie down in bed and sleeping propped up is uncomfortable. Anxiety is causing insomnia and depression. My quality of life on bisoprolol is pretty bad - I feel like a zombie. I'm not happy that I'm just being treated as a routine case by the NHS and have been given very little help or information and that I'm not even important enough to be assigned a proper cardiologist. ",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Bridget B.","United States","46","Rapid Arterial Fibrillation with Paroxsysmal Supraventricular Tachicardia","diagnosed around Sept. 9, 2008","almost daily","on and off pretty much all day","Diabetes, high cholesterol, borderline high blood pressure, sleep apnea","smoker, otherwise very healthy...until THIS","on meds but they are NOT helping sick of feeling this already","eating beyond not being hungry, caffeine, maybe even my meds, stress, salty foods, maybe everything maybe it's all in my head but the heart racing/palping doesn't lie and it's VERY real","nothing has stopped it for very long so in my oppinion that means failure.","Atenolol 25 mg one half pill twice a day, then we stopped that and put me on Metoprolol 75 mg twice a day,plus simvastatin 20 mg daily for cholesterol, plus Metformin 500 mg twice daily for Diabetes, PLUS a 325 mg aspirin every day plus I'm suppose to use a c-pap every night but I keep pulling it off in my sleep ( I'm a bit of a chlosterphobic )","as I said above, was on Atenolol 25 mg half a pill twice daily now discontinued. It didn't help, either.","Appendectomy at age 8, 2 laporoscopies in mid and late 30's A colonoscopy in Sept 2008. For THESE particular diagnosises, I have so far had an echocardiogram which showed no damage and the size of the heart looked normal. I have had a thyroid test and it was normal. I have had my hormones checked out and the blood work said except for a couple leaning towards menopause, everything looked normal. Will be going in for an upper GI next week ( first week of Nov, 2008 ) EKG's in ER showed PSVT and/or RAF.","Would like to HAVE a future & if I can get rid of this I might. Am trying to get a doctor to submit a provider request to my Insurance company for prior authorization for me to be seen at the Mayo Clinic so I can see an Electrophysiologist and find out if I really have both PSVT and RAF of just one or the other and what type(s) and hopefully get ablation and all the questions answered that go with it as I am still not sure what is going on and have MANY moe questions than answers.","see all of the above. Would also like to know if I have some sort of arterial disease and maybe some artery blockage...reasons why this came on and happened so fast. Before this happened, I had been diagnosed with diabetes 3 years prior and sleep apnea 1 year prior and high cholesterol 2 years prior and heard so many horror stories about Big Pharma and the Pill Pushers (sounds like a 50's rock band) and such that I stopped all my prescription meds and tried to control these ailments with herbs and such. I was not faithful in my diet nor was I consistent in taking the herbals everyday so I failed miserably and my numbers were out in orbit when this came on. Since then I am back on pharma meds and have lost 40 lbs and have gone from smoking 1 and a half to 2 packs a day to 10 to 15 a day and I eat beans, brown rice on occasion, some fruits and lots of veggies, mostly. I even completely removed the chocolate food group from my food pyramid! Gave up any fast, take-out salty cholesterol ridden sugary saturated fat ANYTHING from MY menu. Which pretty much leaves bird seed. (just kidding, but almost.)",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "W Mather","South East UK","37","Atrial Fibrillation","7","paroxysmal prev. and more recently- intermittant","All the time or until cardioversion","Over then underactive thyroid gland","Ex smoker/low alcohol intake poor but improving diet","Post 2nd ablation","No known triggers as such. 1st time I was diagnosed with AF was in May 2001. I was given Warfarin and Bisoprolol to keep me in check. My rate remained irregular and fast until cardioversion in Feb 02. In April 05 it returned again...after a couple more cardioversions I was put forward for catheter ablation. This took place in April 07...It was successful and only one blip in June 07 which required a further cardioversion.(this is an expected occurance after ablation) After a fairly stressful year 07-08 the AF returned in May 08 which I was given intravenous Digoxin to releive in A+E. The rate slowed and returned to sinus rythmn 3 days later.(East Surrey A+E were much appreciated turning me out at 0330hrs!!) Two weeks later it returned and I was cardioverted the following day and changed from Flecainide to Sotalol 2x40mg a day. In August I saw my consultant and after a nudge he agreed to attempt a furhter ablation. (don't ever be scared to push, it is your health!!) That was ok till Sept 08 when it returned again. I was given Digoxin to no avail and also given Adenosine (to stop and restart heart) to no avail either. I was cardioverted on the ward the following morning. 3 days later it retuned again. Due to the events days earlier, they opted to give me another Sotalol to see what moght happen. 4 hours it resored to sinus rythmn again. Due to it's repeat nature, they upped my dosage to 3x 40mg Sotalol a day and wrote to my consultant to urge my ablation...fortunately I got seen last week instead of waiting till January. I am now 4 days past a secondary ablation and can feel that my heart has stopped trying to go ut of synch. Only annoying bit is restarting the Sotalol after stopping them 5 days prior to procedure. I would say i was more tolerant of Flacainide than Sotalol but they chose to keep meon the Sotalol as is apparently better at keeping the rythmn. My typical heartrate at rest when AF is active is between 130-175bpm...my ECG post ablation was 71.","N/A","Thyroxine 150mg a day Warfarin 5mg a day Sotalol 3x40mg a day Omacor x1 a day Alverine Citrate 2x 1 a day (IBS) Only side effects encountered are with the Sotalol...Sore head, light headed, nauseous and when restarting after stopping for surgery- visual problems whereby I have to lie down as getting like kaleidoscopes spinning in my perippheral line of vision","Similar with Flacainide but not as bad as Sotalol","2 x catheter ablation","To eat better diet and be fitter again as AF does tolerate excercise so well. I was at a good level of fitness prior to AF recurrence in 05. ","To anyone encountering AF...and reading this...Just keep pushing your doctors to get the result you require...catheter ablation may sound nasty and look scary on reading up on it but it aint too big a deal at all and so if you can push to get it done, then do...AF is a shitty condition you would only wish on those who have done you wrong...it controls your life cos you never know when your next episode might kick off... Good luck to any other sufferers and hope that your episodes are short and get dealt with asap.",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,1,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Linda","Toronto","50","A fib","2001","variable from three to four months to daily","three to twenty four hours","nil ","healthy","One month post ablation with no episodes yet","overeating, alcohol use, lying on my left side, laying in the recliner. Over tired, over hungry.","Nil","Flecanide to control the arrythmias. Coumadin post procedure for three months. Monocor to for rate control in the event of an episode. I am having occasional irregular beats since my ablation on Sept 19th, but no real episodes of fibrillation. I was started on flecanide in Nov 07 and had not had any episedes since feburary this year. Prior to that I had been having episodes of fibrillation daily for a year. My life was hell. I feel very tired all the time and can fall asleep on a dime. I am due to come off the medication in December to see if the ablation was effective. I am sure that the monocor is the cause of my tiredness. ","I was initially started on sotalol. It worked for a while and eventually I was having episodes every few days. I was then changed to digoxin and it worked for a few months before it no longer stopped my episodes. I was given propafenone and it worked for me for a couple of years. I was then changed to cardizem. It made my ankles swell and made me constipated. It did nothing for my fibrillation.I had to be admitted to Er twice and later to the CCU for cardoversion. On one of my admissions I was given IV amiodarone. I had an anaphalactic reaction and almost died. So flecanide was the medication that had the best results for me.","PVI ablation, transseptal on Sept 19t. Has conscious sedation which means I was able to feel the burining, but I would sort of sleep in between I spent six hours on the cath lab table. It was worth every minuite and I would do it again if necessary. I hated my life while I was held prisoner to these episodes. I work aa an Er nurse and there were times while on duty I felt I would pass out. I am feeling very positive about this procedure and I advise anyone who has episode as I have described to speak with your family Md or cardiologist.","I will be taken off the flecanide in december 08 and also the coumadin( I think). If I have no further episodes in the next month I will be taken off the monocor. If I have further episodes I will require another procedure which will not be as long or complicated as the one I have just undergone.","Afib is a very debilitating condition for some people such as I experienced. I was feeling very depressed and like I had lost control of my life. I want to let you know there is a cure in most cases that have no underlying medical condition. to the person who withdrew due to pain after on hour. Give it another try. If you ask for more sedation they will give it . It is important that you are awake because as I am sure you are aware there are some serious risks involved, The doc needs yu to tell him if the pain is to severe in case of injury to areas not meant to be ablated.",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Jen","Us","35","A Fib","1 mth but they think i have had it longer","unsure","unsure","none ","hypolgycemia , smoker , soccer player","?????","dont know yet","dont know yet ","atenolol 50 mg aspirin 81 mg","felt great until i started taken meds","lateral release, spainal injection, cardiac cathererization","to get this fixed and back to my life","This just seems so unreal I was a healthy and active 35year old who player soccer and enjoyed doing other outdoor activity , and was not even feeling sick and then one day i had a pain in left arm pit i thought i just pulled something i was not even going to the doctor until my husband made me go to the ER and i was there for a while and they where going to discharge me until i had a heart rate of 365 then they told i was not going anywhere that was on a Thrus and On that Mon they had me in surgery then told me i had A Fib and I just can't understand all of this i have looked it up on the Web but it just still does not explain what is going on with me or question i should ask when i follow up with my doctor maybe you can help",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "greg yang","muntinlupa. philippines","52","paroxysmal atrial fribillation","3 years","2 to 3 times a week","a few hours to 24 hours","colon surgery to take out a non malignant polyp","no other sickness","not cured episodes continues","caffein, over exercise, sudden emotion or anger,exersicing right after eating, or food with excess MSG, too much chocolate ","It not clear sometimes just resting and at times just continuing with the activity such as playing golf. or have fun chatting and socializing with people.","Tanbocor, 200mg daily, 100mg in the morning and the other at night. Cardiosel, 12.5mg each in the morning and night. plavix, one at night No side effects that i am associating with the medicine","","colon surgery","still evaluating and wondering if i should go for ablation","Just want to know more about atrial fribillation and the recent finding on best and less risky ways to cure it. Also how to best handle it when i get an episode.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "jackie martin","usa","54","a fib, hypertension","3","once a year","5 hrs to 5 weeks- last one","hormone changes menopause","great","I just had a cardioversion for the 5 week afib"," hormone changes","none that I know of","was only on cardizem but since the cardioversion I am taking coumadin and rythmol- I feel a little dizzy on the rythmol but I take .5mg of ativan and that takes care of it","cardizem prempro- hormone replacement","none","just wait and see since it is not so bad.","I have a family Hx of afib. My father and brother and sister all have/had it. My father was on quinadine for 20 yrs and then stopped at 40 yrs old and never had another episode again",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Fay","Perth Australia","67","Paroxysmal atrial fibrilation","30","Getting more frequent","hours","","non smoker, non drink. non asmatic","paroxysmal attacks getting more freuent","Coffee alcohol chocolate tiredness stress","Rest relaxation less coffee and tea","Tambacor no known side effects","Metropylol","Appendectomy hysterectomy","Hopefully to live without episodes of irregular heartbeat","I do not know why I am having thses episodes of PAF",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "TOM","FLORIDA","65","PAROXYAMAL ATRIAL-FIBRILLATION","1","3 IN PAST YEAR","1-4 HOURS","NONE","GOOD...NON SMOKER AND DRINKER","IN SINUS RYTHM","NONE","NONE","PROPAFENONE-LISINIPRIL","NONE","HERNIA ","GET OFF MEDS. AND BE CURED BY IODINE THERAPY","BEING TOLD BY MY DOCTOR IODINE FULLFILLMENT IS CURE OF MOST A-FIB PATIENTS ALONG WITH VIT.C THERAPY AT HIGH DOSES.IF YOU WOULD LIKE MORE INFO. YOU CAN CONTACT ME AT 727-846-0713.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "kevin","manchester -england","55","atrial fibrulation","2","was ave 10 times per week ","1 hr -8 hrs","none","good-do not drink ,do not smoke","stumbled on what seems to almost be a cure","6 weeks ago i bought a saxophone. by coincidence also had my tablets changed to acetate flecainide-2 a day the playing of the saxophone in the evenings seemed to halt the fibrulation-at first i thought coincidence. after 6 weeks it is not a coincidence. this week at work i have used 5 bend straws 2 elastic bands and this stops the fibrulation before it kicks in properly. i may have found something here kevin ","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tibbar","Boston, MA","62","afib","1","avearge once a week","10 minutes to 6 hours","","very good....marginal high blood pressure","takes meds","alcohol stress","","50 mg of metoprolol....can make me tired or to dream funny but MUCH than atenolol which made me anxious and gave me vertigo 5 mg warafin ","","","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0 "hercupam","Hertfordshire","69","Chronic AF","6 months","Daily","30 min","aortic valve failure/hole in heart","non smoker,social drinker,salsa ,line dancing four times a week","successful op. for valve replacement and repair to hole","","","","","heart surgery to replace aortic valve and repair hole","","",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "David","Berkshire UK","65","Paroxysmal Atrial Fibrillation","4","every 3 -6 months approx.","5 min. to 3 hrs.","nothing obvious","Good: non-smoker: 5 units alcohol/week . Hypertension controlled by drug therapy.","Waiting for the next episode","Have had about 10 attacks over 4 years. Initially hard to define triggers, but stress/excitement/claustrophobia all seem to be factors. The last three episodes definitely followed large meals late at night. Most episodes have occured when asleep. Sleeping on the left side doesn't help. 3 episodes resulted in visits to A & E but in all cases reversion to sinusoidal rhythm occured before any medical intervention was carried out. I was diagnosed with a moderate hiatus hernia some years ago, but this doesn't seem to produce acid reflux etc., and appears to have no bearing on AF as far as I am aware.","Will try to avoid large meals as recent episodes seemed to follow these.","Atenolol, Cardura XL and lowdose aspirin. No obvious side effects to date. Flecinaide has been suggested, but I have not taken up this option.","None","None Have had several ECG's whilst AF was ongoing, but the cardiologist made little comment. An echocardiogram showed good LV function but slight valve leakage, consistent with my age.","To continue to monitor this condition with assistance from GP","AF is becoming a considerable problem for me. It definitely is restrictive on personal confidence and activity, and from what I read is likely to get worse. Episodes are also extremely un-nerving. I find that it helps to pace up and down continuously during an attack and breath as regularly and deeply as possible. Thissometimes reduces the intensity of the fibrillation and restores morale a bit !",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tom","Norfolk, UK","11","Paroxysmal Atrial Fibrillation, Posteroseptal concealed accessory pathway","3","Originally 1 - 2 per month","1 - 60 minutes","","Good","Stable","Anxiety and stress trigger AF along with prolonged exercise.","None","Flecainide (liquid)","Flecainide (tablets), not absorbed into bloodstream enough so switched to liquid.","Catheter ablation Sept 08.","Play for England!","Had catheter ablation Sept 08 but consultant discovered a posteroseptal concealed accessory pathway (a pathway coming in from outside the heart). He ablated the entry point but isn't hopeful of success. However - no episodes since the operation, continuing with Flecainide liquid.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Liz","US","79","persistent afib","8","every few weeks","usuall 12 hrs or so. one 36 hrs. most recent 16 days","?","one drink daily before dinner. have discontinued","just converted to sinus rhythm after the 16 days of afib"," MSG",""," coumadine, amiodorone, 81 mg aspirin, diovan"," lanoxin. ",""," continue on coumadine for three to six months. May be able to cease taking depending on how I do during this period of time"," basket case because of fear of coumadine and amiodorone",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon2","Ontario, Canada","60","A-Fib (intermittently)","4","Now almost daily","Previously as long as 12 hours, now several seconds to several hours","None","OK","Daily episodes are frustrating in the extreme","Have not been able to ID any","None","Sotalol, 160 Mg. x 2 daily, Dogoxin .125 Mg daily. Aspirin 81 Mg daily Possible: New Irregularities. Specifically double heart beats. E.g. beat-beat - pause, beat-beat - Pause","Bisoprolol, Propafenone, Aspirin. Increase in skipped heartbeats","Pulmonary Vein Ablation Feb. 2007. Improvement until September 2007 then back to irregular beats and A-Fib","Second Ablation","Extremely frustrated that there are only a limited number of options and that to date none have been effective. Condition affects lifestyle and mood in a negative way. Would like to form Southern Ontario A-Fib. Support Group if there is sufficient interest.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "John","Washington-USA","60","A-FIB","8","6 times a year.","Until I get cardiverted","I have no idea.","Good. I could excerise more, but my overall health is good. I don't smoke, I am a moderate drinker, weekends only. ","I seem to go out of rythym anywhere from once every 1to 2 months to sometimes 2 times a month.","It can be a variety of things from eating the wrong food to overdrinking, which I try very hard to avoid. It seems to really be tied to my stomach. I can't over eat or eat late at night. ","I have no idea.","None. Other than some ED. I only take sotolol, lipitor, low dose asprin, and advair now. No more toprol, amoroderone, or coumadin.","Same.","2 Ablasions. Over forty Cardioversions.","Hopefully theres a cure out there for me. I'm getting really tired of being cardioverted.","When I'm in rythym I feel great. That is why I always go in and get cardioverted when I go out of rythym. I hate being out of rythym. I don't have the stamina or energy level when I'm out of rythym. There has to be something out there that can be done to cure this affliction.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Lisa","Stone Mtn., GA","54","Atrial Fibrillation (rate up to 350 bpm) + arrhythmia","20 mild & infrequent / 10 months SEVERE","every 3 -5 days","30 mins to 38 hours","none known; do get pain/pressure/swelling in upper abdomen - just below sternum, prior to attack & during","obese; minor heart murmur (aortic valve leak); ex-smoker quit 1980; 1 kidney; previous endometriosis; menopausal; arthritis & bursitis; July2008 Sarcoidosis diagnosis","very ill some days; some mildly ill & in between","anything & everything....Stress; bending; strenuos activity; eating heavy; going too long between eating; dehydration; lack of and/or poor sleep; hurrying; walking too much - too fast; becoming emotional; HORMONAL!; keeping eyes focused in one direction too long; changing head/neck position; etc..","stay hydrated; eat small frequient meals; avoid heavy meals, esp. fried food; destress (trying); get plenty of good quality sleep; avoid emotional issues/ stress induc- ing people & situations. ","-Accupril 10 mg daily (BP) : 'ticky' cough, mostly dry -Toprol XL 50 mg twice daily (afib) -325 mg Enteric coated Aspirin -1 multi vitamin/mineral -CoQ10 50 mg daily *had quit 9 months, just restarted -Prilosec 40 mg daily -turmeric 450 - 1500 mcg daily *by pill or powder is sprinkled on food","Levaquin : severe allergic reaction Macrobid : moderate allergic reaction Tetanus (both LIVE & Killed virus): severe allergic reactio Benadryl: caused mental/nervous problems *Take 2000mg Amoxicillin pre-meds before dental & medical procedures: I feel better for 1 to 7 days after taking it but none of the drs will consider a prophylactic course of antibiotics. UPDATE: per cardiac dr, do NOT take pre- meds in the future. ","-several D & Cs -left ovary removal 04/1994 -hysterectomy 12/1994 *dr left the other ovary -mediastinoscopy 07/2008 biopsy of chest lymph(s)","-continue seeking solution for A fib. -Trying to lose weight...haven't had much luck over the years. Tried numerous diets & exercise regimens. Eat a very healthy diet, so I'm trying to eat less of it. -Work in construction, so was very active prior to 1st major Afib attack 10/2007....can't do much anymore. -Also, a CT shows I have enlarged lymph nodes in chest area...had subsequent bronchoscopy with biopsy(s). Showed lymphs are 'stained black'...usually only seen in coal miners or their family (exposure thru dust on clothing). Now, I'm to see Thoracic surgeon in 10 days for consult on surgical biopsy of lymphs in chest. Dr. doesn't think it has anything to do w/Afib. Who knows?! July 29,2008: had mediastinoscopy for biopsy of chest lymph glands....results show no lymphoma (praise God!). Cardiac/Thoracic surgeon and pulmonary dr say it is Sarcoidosis. They believe the a-fib is due to it. Only treatment really is prednisone (steroids). As I'm already obese and have only 1 kidney, I won't be taking steroids at this time. Should symptoms get worse, then I may have to reconsider. The a-fib is better recently...still have 'hard' palpitations sometines, but the rate problems are mostly under control. Do have mild to moderate palpitations fairly often, but it is tolerable. Most of the many other symptoms that I have of sarcoidosis are mild to moderate and fairly tolerable at this time. (to see the list of symptoms go to: http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_signsandsymptoms.html","I'm a 54 year old female who is used to rushing around all the time. Doing a very physical job climbing ladders, carrying up to 110 lbs. @ the time, walking many miles on concrete floors every day, moving constantly while working out in the field and coming in to do all the paperwork in the office. Handling all the communications for both our personal & business and for a few family members. Since this severe Afib has started, I'm almost unable to function most of the time. I'm praying for a miracle. Based on everything I can find, many people are living with this condition. I'll keep you all in my prayers.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anon","England","59","AF","6 years ago but only had 1 attack in year. Only last couple of years attacks getting monthly and longer.","Once to twice a month","12 - 20 hours","Had paracetamol with water","Non smoker and now drink very seldom","Not cured getting longer attacks","Drinking cold drinks especially in evening - when most attacks start. Slouching in chair when eating. Laying on left side in bed. Stress. Eating chocolate. Sudden fright. Being tired.","None. Tried straining, coughing, sneezing. Have to wait until I feel myself going black and heart beat returns to normal.","Sotatol for AF - have to have certain brand or get bad heads Aspirin for AF Bendroflumethiazide Simvastatin","","Gallbladder removal with gallstone Have kidney stones ","","Would love to have these episodes of AF stop as can't do anything when having attack.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Shannon","USA","44","paroxsmal atrial fibrillation","24 years","daily","minutes","sleeping","healthy","","cold temperatures, hot temperatures, alcohol, sugar, hot tubs, emotional stress, caffeine, excessive physical activity","try to avoid triggers","baby aspirin ","digoxin, verapamil, tambocor","catheter ablation, didn't help episodes ","","nothing has helped with reducing or eliminating my episodes",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Elaine ","California","72","Atrial Fibrillation","18","constant","7-10 days","None","good health, beer a day","Fibrillation is bothersome, usually only tired at end of day","None. I've tried several different lifestyles, more/less exercise, no stress, it just starts on it's own.","None, sometimes if I pound on my chest or cough when I feel a skip or pound in my heart, it will go back to normal. Other times it goes into full fibrillation.","Verapmil, Digoxin, Mevacor, Warfarin - no side effects","The above medications are all I've taken","Appendectomy at 8","Live with it. I have researched various sites on the Internet, nothing seems to be a perfect solution. I have recently read about an ICD, or Implantable Cardioverter Defibrillator, I may ask my cardiologist about it.","I have lived with AFib so long, but one still thinks about it when one's heart is involved. Will it lead to other heart problems? One never knows. The first few years it was a hit and miss thing, always starting in the middle of the night and lasting 5-12 hours. After I retired from my stressful job, found a new love in my life and totally settled down to being happy, my AFib became worse, for over a year I fibrillated constantly. It comes and goes at it's own will, seems there is nothing I can do to prevent it or stop it once it starts. It has not impaired my life style, I hike, travel 4 months of the year, garden and do all the things in life I would like to.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "David","US","55","AFIB","10","almost daily","2 minutes to 30 hours","nothing","excellent","awaiting ablation","Stress, exercise, sleep","Deep breaths and long exhales when I sense it is starting. ","Atenolol 12 1/2 mg, asprin and recently Rythmol as pill in pocket. light headed","Atenolol 50 mg - couldn't function when not in afib","None, ablation scheduled for June 23","Hope ablation works and I can eliminate all medication","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Linda","Portland, OR","54","","2 1/2","Daily","30 seconds to several hours","fainting","getting worse, gaining weight and high cholestrol","going for second ablation in June2008","caffine, stress, ","surgery","dofetilide - headaches, lack of energy atenolol - no side effects warfarin","","First ablation Jan 2008. Second ablation scheduled June 2008","Loose weight, get cholestrol down, get back to work.","I have been battling this for 2 1/2 years and have been steadly getting worse. I am on leave of absence from work since Jan. 2008. Because it is very difficult to exercise ( very little) but some walking for 10- 15 minutes maybe twice daily. I have gained 42 lbs since Jan. My cholestrol is up to 271 without changing my diet. And I am very uncomfortable in general. I feel I am falling into a hole and won't be able to get out. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1 "Mike B","Suffern, NY","53","paroxysmal Afib","First eposide 13 yrs ago; Started again in 2006, most recent 5/08","every 2-3 months","24 - 36 hrs","Stent, CAD, MI, High Cholestrol, Sleep Apnea","non-smoker, occasional drinker, back to cardiac rehab","Normal sinus rhythmn, soltalosl 120mg x 2/day for control","stress, eating dinner late, sleeping. It occurs when I'm at most relaxed state","avoid caffeine, alcohol, back to exercising","soltalol 120mg x2/day, cholesterol meds, aspirin, plavix, fish oil, atacand.","replaced toprol 200mg/day with soltalol","stent","contemplating ablation ","in previous instances, i became very panicked which increased my heartrate. I have been cardioconverted 3 times. The last two instances, I sat it out and dealt with the afib until it subsided ( with cardiologist interaction). My most recent episode occured this week and seemed to be mild. I have learned not to become anxious and let it ride out. I am concerned about consequences of repeated ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0 "Janet Francis","Riverland, South Australia","57","Atrial Fibrillation","5","have gone from occasional to several times a week","gone from 2-3 hours to currently 6, sometimes just minutes","had short palpitations since childhood","general health good, except overweight","episodes getting more frequent and longer, but not as pounding","episodes often start early hours of morning, currently waiting to have a sleep study to find out if snoring or sleep apnea could be triggering AFib. Also stress and anxiety. otherwise very random. ","don't know about preventions. avoiding caffiene and salty foods, avoiding very stressful situations. Trying to see if healthy eating program and weight loss will help.","Verapamil recently a short time taken off verapamil and tried on Sotalol, but pulse rate and blood pressure went very low so was put back on verapamil. Have been on verapamil for 25 years after having an EPS study - firstly for palpitations then left on it for AFib. take warfarin and lisinopril","as above","no heart surgery to date.","hoping that losing some weight and being able to exercise more, will maybe lessen my episodes of AFib - worth a try anyway.","try not to let AFib stop me from enjoying life, getting harder though. Have emotional times because of it sometimes but generally keep activities going and have fairly busy life with voluntary work and hobbies.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Vivian","USA","59","A F","4","every six months sometimes sooner","4 hours","High Blood Pressure","","Still have it","I am normally asleep and it happens around 3 in the morning.I do not drink or smoke. ","Unsure","Digoxin which has just been recalled. ","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "David","Keswick UK","61","Chronic AF","6","Continuous","Continuous","Unknown","Very good. Non-smoker. moderate drinker.","Well","Continuous","Continuous","Asprin","","Open heart surgery 23 years ago to patch an atrial-septal defect and to tidy up some leaky valves. I was almost the fittest person in the ward when I went in (staff included)and I recovered and was playing badminton in 8 weeks. 6 years ago I went for a regular cardiac check-up and the doctor said 'Did you know you were in AF?'. I did not but I sure realized it after - bump thump flutter pause thump tick tick - really crap beat. After further tests they decided it was well controlled (pulse resting 75) and that regurgitation back into the atria reduced the stroke risk so only aspirin was needed. ","Appreciate my good fortune and carry on","I wish that I could help my wife more with her AF and palpitations",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0 "Shirley","USA (North Carolina)","74","atrial fibrillation/flutter","2+ since diagnosis","don't know","don't know","none","drink, former smoker, diabetes, CAD, ","reasonably healthy, preparing for Tokisyn ","none","none","Coumadin, metoprolol, Cozaar, digoxin, potassium, furosemide, Metformin, Januvia, Nexium, Nortriptyline, Vytorin No side effects","NSAIDS - upset stomach Soma - disorientation Percocet, Percodan, Vicodin - prolonged effect Bextra, Celebrex, Vioxx - upset stomach Cardizem - swollen ankles Enalapril - cough ","will return to fill out what will be a lengthy note","scheduled for Tikosyn loading on 5/22/08","I was first told that I had an irregular heartbeat approximately 30 years ago but was never treated for it until I was diagnosed with atrial fibrillation 2+ years ago.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Debbie J","Centertown, Missouri","49","Atrial Fibrillation","Less than one (that I know of)","Since being diagnosed in 9/07, four episodes","Last one was 7 days, had third electro cardioversion as a result","None, except I had walking pneumonia in 1/07.","Very good health until this--non smoker, non-drinker, walked 3 miles each day, lost 40 pounds five years ago and kept if off","Feeling terrible, in sinus rhythm awaiting catheter ablation at Barnes Hospital on 4/30/08. Very anxious and depressed.","None that I know of. Twice, my heart has gone into afib while I was in my kitchen cooking or doing dishes. I know my anxiety doesn't help anything, but can someone please tell me how you have this condition and not be anxious?","If I knew how to prevent it, I surely would. Cardizem in the emergency room always calmed down my BP and rate, but only once have I converted without electro cardioversion. ","I now take 120 mgs. Coumadin (warfarin), Sotalol twice a day and 120 mgs of Cardizem once a day. Had a horrible rash a couple of months ago that doctors thought was the result of the Cardizem so I went off it. At latest afib episode, the emergency room doctor decided to try it again and I've had no reaction this time--praise God. ","When first diagnosed, I also took Toprol and Digoxin and a couple of others--when I went to a better cardiologist, he pared down my medications and did my first electro cardioversion.","None, yet, but have a catheter ablation scheduled for 4/30/08 at Barnes Hospital in St. Louis with Dr. Faddis.","To somehow try to get my life back. I just became a grandmother for the first time on 3/27/08 and I want to be around for my new grandson and for my family. I'm only 49, but this disease has aged me years in the few months I've had it. ","I'm an anxious person anyway, but this has just floored me. I'm no longer the person I used to be. I'm very frightened about the ablation, but with all the reactions I've had to medicines, the bad allergies that I can' treat since I'm a 'heart patient' and my constant nausea (nerves and allergies, I think) and the number of times I've gone out of sinus and into afib in just a few months, not sure what choice I have. I will appreciate all prayers and will be praying for my fellow afibbers.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Phyllis S.","NY, USA","64","Paroxsymal AFIB","10","1-2 per month","4-10 hrs","Overstressed- In Charge of Volunteer Fund Raiser- lot of coffee","Non smoker, rarely drink, no caffine","Cured after 2nd Ablation !","Caffine, Stress, Lack of sleep, Beginning of an Illnes/fever, High altitude, Nighttime -dreams? ","Magnesium, Potassium, Epsom Salt baths, Hawthorne Berry extract, Co Q10., Meditation","Coumadin- 5mg daily","Was on Toprol XL 25 mg before 1st ablation,stopped 3 months after 1st ablation. Only use one 25 mg Toprol XL if in AFIB to slow heart rate. Now only on coumadin. Eventually will only be on Aspirin 325 mg when I come off coumadin. Had Lovenox injections for 1st week after ablation-did get nosebleed 2X. None since stopping Lovenox.","1st Ablation November 2006- improved condition but not a complete cure done at Roosevelt / St Lukes in NYC 2nd Ablation February 28th,2008- at St. Lukes in NYC- Dr. Steinberg. Seem to be fine - some rapid heartbeat but in NSR. No AFIB! Still healing. Glad I opted for 2nd procedure!","Hopefully this ablation has done the trick. Plan to maintain healthy lifestyle and lose some weight, get back to more exercise and enjoy life.","Have inter-ventricular septal defect from birth Had TEE prior to Ablations. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Karen","Northants","41","Paroxysmal AF ","6","No major episodes any more. Last one in Sept 07","","Hysterectomy","non-smoker, little alcohol","medication managed","Lack of sleep Odd movements Fizzy drinks Stress","None","50mg flecainide twice daily - halo vision effects 4mg candesartan daily 7mg warfarin daily - get very cold and sweats 1.25 mg bisoporol twice daily - lightheadedness and low blood pressure","Propafanone - severe breathing difficulties - ended up back in hospital Amiodarone - sensitive to sun and vision problems Digoxin Sotolol - severe breathing problems Dipridamole - flushing Aspirin - stomach problems heparin verapamil valsartan Many more but I forget the names","Hysterectomy in 2002 - tachycardia afterwards (150 beats recorded during operation) 5 or 6 cardioversions - never worked for longer than a few hours between 2002 & 2005 2003 - Atrial flutter ablation. Paroxysmal af afterwards 2005 - virus that affected my heart - organs shut down and on life support - dialysis for kidneys until function came back ( 3 and half months in hospital)- left with 60% heart function Heart biopsy but did not establish cause of virus 2006 - Pulmonary vein isolation 2007 - cardioversion on relapse ","Hope to either maintain a reasonable equilibrium using medication with the odd cardioversion on any relapse or if things worsen to have another Pulmonary vein isolation or other ablation as necesary","Finding the right specialist is key to beating this condition. I had many problems with heart medication and it was difficult to find medication that worked and I tolerated. Due to my being so severely ill at one point they had to give me both flecainide and amioderone together which despite the side effects worked to cardiovert me. Unfortunately when my heart flips into AF it is between 170 & 220 beats a minute and needs to be acted on quickly as my heart function is now compromised. I will be on medication for life now. ",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Barbara","Scotland","59","Paroxysmal AF and atrial flutter","2-3 years","Variable: 2-3 times a week to daily","Variable: 1 hour - 3 days","Stress at work - bullying","Good: non-smoker, minimal alcohol, fit and active","Cured, I hope!","Stress, excitement, anxiety, caffeine, alcohol, very cold drinks and some cold semi-solid food eg yoghurt, swimming, particularly front crawl, climbing hills/stairs, lying on my left side.","Avoiding the above! Otherwise none.","Sotalol - initially swollen ankles, headaches, blurred vision. Simvastatin Warfarin","Aspirin Bisoprolol Atenolol Verapamil - swollen ankles Flecainide Digoxin Propafenone Diltiazem (Tildem Retard) - swollen ankles GTN spray ","Attempted ablation in July 2007. Developed tamponade, procedure aborted, drain inserted. In CCU for 36 hours. Developed pericarditis. In hospital for a week. In persistent AF for about 7 weeks. Reverted to sinus spontaneously. Paroxysmal AF returned. 2nd ablation in January 2008. Straightforward (took about 6 hours). Some episodes of AF since but far fewer and becoming less frequent and shorter. Looking promising.","To enjoy having my life back!","It was a difficult decision to have the ablation first time round and even more so the second but I had been in hospital 7 times before the first and 4 more times before the second (11 in total in 18 months). My quality of life was very poor which helped me make the decision.",0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Sikenward","Birmingham UK","60","Paroxysmal Atrial Fibrillation","8","1 per month","8-9 hours","none","Good health, non smoker, was a moderate drinker, slightly overweight","Tolerating episodes, feel quite good between episodes","Stress. Possible triggers are chinese food, alcohol, caffeine, chocolate, body positions, bending","","Bisoprolol, aspirin General fatigue most likely because of lowered heart rate","Flecainide Increased number of episodes, bad fatigue, poor sleep due to ectopics at night. Propranolol","None","Possible ablation. EP says 'I am heading towards an ablation'","Episodes once a month resolve with Flecainide as 'pill in the pocket' in 1 to 3 hours. This I can live with while I watch the technology of ablations rapidly progress. I would hope to get an ablation before age 65.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "schultz","Central Point, Oregon","38","lone atrial fibrillation ","2","2 a month on medication, 1-2 a week not on meds","15-30 minutes on meds, 1-3 hours not on meds","Snow boarding, Stomach Issues","good, non smoker","Stomach pains, tired easily, body aches, tight chest and pain","Stress, little sleep","Medications Laying Down","metoprol, digitek, clonazapam stomach problems - not sure if from these meds or something else since I had stomach issues before going on meds. Cold alot and was tired at first.","verapamil ","2006 - hernia repaired","Keep taking meds until surgery is a valid option.","I just never feel right anymore. I have lots of anxiety about going out and being away from home since I was told I have AF. I also cannot stand the cold weather anymore. I feel depressed sometimes because I feel like my life has changed so much at such a young age. I used to be more active.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Barb","MA","59","tacycardia, atrial fib","18 years, tachy - 2 1/2 years - a fib","tachy became several times daily at the onset of the afib - afib initally every few weeks, lasting only a few seconds, then a few times per week, again only lasting 5 or 10 seconds - annoying, but manageable","had a 3 1/2 hours episode a few weeks ago (my first of that duration) went to the ER - they used magnesium, cardizem and adavan in the IV for conversion -","in 05 - was treated for Lyme disease - had all the symptoms but no positive on the testing - was on doxy for about 10 weeks- prior to all this I had gone thru about 3 years of extreme stress ...","never smoked, never drank, health is very good for my age, aside from this","after the 3 hour episode - I am having a hard time coming to grips with this - I am afraid to go anyplace for fear it will happen away from home and then what will I do...........the mental aspect is as bad as the physical for me","physical exertion after eating - eating until I feel full- rushing to get someplace on time - being tired -","I recently doubled my dose of lopressor - I am hoping that will stop it - but it's too soon to tell at this point","Lopressor (metoprolol) - ice cold hands and feet, a bit off balance at times, overwhelming tiredness","none - when I only had the tachycardia I refused meds - with the afib - I gave in and am sorry I didn't do so sooner. The first two years of the afib I refused to take anything - always thinking it would 'go away'","last surgery was over 10 years ago (hysterectomy) I don't see any correlation between the two","keep searching for an answer to make this 'go away'","Has anyone tried acupuncture??? Herbs??? Sometimes I feel like it's due to a chemical imbalance - like when your eye twitches or you get a leg cramp (calcium works for the leg cramps) why not something of that nature for the heart - it is a muscle....... I see a mainstream cardiologist - and I also see a holistic cardiologist - take Vit D, magnesium, b complex, fish oil I find it interesting that in the ER one of the things they gave me was magnesium in the IV.......",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Glenn Halloran","Sydney, Australia","24","Atrial Fibrillation","1 1/2","Twice in above time period","Remained until cardioversion","Nil","Heavy weight training since 15 years old and heavy alcohol consumption since 18 years old. Minor asthma when young. Overall good health with no illnesses prior to development of AF.","Serve ectopic beats at times. Ectopic beats originally caused AF episodes. Now being treated around 95% effectively with Tambocor.","Alcohol, fatigue, stress, change in elevation rapidly (eg walking up stairs).","Burping seems to help (Not sure why). Moderate exercise seems to set it back into rhythm sometimes when getting many ectopic beats. Medication.","Tambocor. Usual side affects as listed. Weakness in the eye muscles and occasional dizziness. However medication received well by body. On supplements of fish oil and magnesium acetate and 150mg of aspirin per day as well. ","Beta Blocker. Extreme fatigue and no will to do anything physical. Also no sexual performance. Isoptin next for almost 8 months. Did nothing to prevent ectopic beats however may have stopped AF from occurring. ","Cardiovertered in December 2006.","Not sure, just want to go back to my old life.","Lived 23 years with no problem with my heart or other health problems. Good health prior to developing AF. When first occurred had no idea what was happening and had never heard of it. I am a Police Officer that works shift obviously meaning nightshift. Doctor said that change in body clock very frequently could of set it off. Also the Police has a culture of alcohol consumption when no on duty. Used to drink daily. Did not drink daily to excess, maybe 3 to 4 drinks. But on weekends I would binge drink. I miss my beer. :-)",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "M. Nachman","Stevens Point, WI","47","Lone Atrial Fib, paroxsysmal","22","years apart, extra beats","several hours, usually convert to NSR myself","Stress","Good","not cured","stress nerves also hypothryoid","","tenormin synthryoid","","","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Helen","Mo, USA","38","AFib, AFlutter, SVT's","15","frequency varies","8-48hrs","birth of first child","good","could be better","work stress, lack of sleep, caffeine, child birth - hormone changes, dehydration, foods high in sugar and salt, cold medicine, diet pills, cleaners(bleach and anomia), driving, air conditioning, cold air, sometimes; bending or standing up. Clarification of stress reaction -not generally while in the middle of stress, but when everthing seems calm and under control. ","none known. avoiding triggers. ","Flecainide - seems to have increased occurences, however has decreased intensity of occurences. Have not had severe episode since start of medication - 6 mos. ago. However, it feels like my rhythm is off most of the time. Warfarin - blood vessels in face showing, bruise easily and long term, still have not been able to level amounts needed to take - so blood tests every two weeks. I'm not eating as healthy as I was, because I've had to limit my favorite health foods: spinach, green veggies and cranberries. ","Beta Blockers previous taken - most of them seemed to make me tired.","Three C-sections","Want to explore more options. Would like to find good doctor, alternative to lifelong medications and do not wish to go through random ablations. Working to learn as much as possible. ","Unexplained episodes starting 15 years ago, only recently diagnosed the last 6 months. High Blood Pressure for many yrs. Episodes generally hit without warning. Breif blackouts proceed some episodes. Heart rate and blood pressure higher than hospital equipment able to register. Over the years, had heart stopped twice, the third time this was attempted it didn't work, remained hospitalized and started med. therapy. Not sure what I need to do next. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Craig W","Los Angeles, CA","49","Atrial Fibulation, Block Artery and Flutter","First occurence 1995 then off and off for last 7 years","Daily","Hours each day","None","Marathon Runner and avid exerciser 30-40 miles a week running","Toleratiing it","Stress and Anxiety, Alcohol, and excessive exercise","Exercise","Linsinopril, Coumadin, crestor, plavix, tikosyn and digitek","amiodrone (caused hyperthyroid went off it but it worked) solatol (slowed my heart rate so slow that I could not walk up a flight of stairs without feeling like i was going to faint)","2007 was a tough year was in the hospital 8 times trying to correct my Afib and then found out I had a clogged artery, which was fixed. Did 1 pulimonary ablation, 1 abalatioin to fix flutter, 3 cardio versions on 3 different drugs. In spite of this I was able to keep up a 30-40 mile running pace. ","Dr. appointment on Friday 1/11/08 may try and do another ablation although the thought is a little scary but I am getting really tired of AFib","Atril Fibulation is a pain but I try and grind my way thru it and just learn to deal with it. So far it has not really slowed me down but it seems to be getting worse. I would definitely see an Electrophyisoligitst instead of a normal Cardiologist. That was a mistake I made and I think it really set me back for a long time. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "lee7reynolds","USA","67","Paroxysmal AF","8","about one per year","2 - 3 hours","none","excellent","OK","anxiety, alcohol, sudden exercise, and perhaps others","Rythmol SR, detraining? (I am an avid runner) exercise in the morning instead of evening & who knows what else.","Rhythmol SR 325 BID; lanoxin .1875 BID no side efects","none","Laparoscopic hernia repair, 1999","avoid ablation until it achieves a better success rate; postpone AF episodes as much as possible","This is a very helpful BB. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Bman","Los Angeles","60","atrial fibrillaton","seven years off and on.","four times","two months","","good","in atrial fibrillaton - considering ablation","anxiety, being overweight.","","sotalol lipitor and now I'm on coumadin","","none","wondering if I should have ablation procedure?","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Anon","Texas, USA","39","Atrial Fibrillation with PVC's and irregularly irregular heartbeat","25","In past 3 years until diagnosed, constant, with meds, about 2-3 times a week","from 2-10 hours, mostly at night","Childhood trauma","fibromyalgia","medication working","stress, overexertion, eating too much, caffiene, over-the-counter medications ","meditation, massages, light music, keep away from drinks or medications (cough medications)","fatigue, light headed,nausea","","c sections, appendix removal, foot surgery","","For many years (from age 14) doctors told me I was experiencing panic attacks. By the time I would get to the doctor's office, the a-fib was gone. When I began to stay in Afib, it was finally diagnosed by wearing a halter monitor. People may be receiving an improper diagnos, just as I did. I am now taking Rhythmol.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Tom","Arizona USA","56","A-Fib, A-Flutter, SVT & Bradycardia","1 month, I'm new at this","3 - 4 + times a week","2 - 48 + hours","none, never been in the hospital before","Excellent health, non smoker, non drinker, I used to swim a mile and hike several miles a week.","struggeling with frequent and long lasting episodes, frustrated, scared, trying to get a handle on what's going on ","I haven't been able to figure out what the triggers are. I seem to notice the A-Fib more often when in bed. Maybe lying down is a trigger. I suspect exercise and stress... but the jury is still out on those.","I have no clue.","Propafenone (Arythmol) 225mg every 8 hours - this causes me to have a metallic taste, Metoprolil 25mg every 12 hours, Aspirin 81 mg daily, Lescol 80mg once a day. I've been on various doses of Warfarin but the doctors have not been able to control it's effects on me yet. My blood keeps getting too thin. ","Lescol for controlling my cholesterol. And occasional ibuprofen for joint pain.","I've had 4 arthroscopic surgeries on my knees. Sports injuries involving cartilage repair. These were all done in out-patient. Atrial Flutter Ablation 12/14/07. NSR for about 1 week and then A-Fib and Flutter reoccurred. Electro Physiologist said the Flutter Ablation targeted the right Atrium. The new flutter appears to be in the left Atrium. Bummer.","Resume normal active life style. Return to teaching, high school science, with some new colorful stories for my students. Researching the pros and cons of various A-Fib treatments. Thinking about going to the University of Arizona Medical Center, in Tucson, to consult with Electro physiologists there. ","I'm very frustrated. It seems like the more I learn about the treatment options for A-Fib and Flutter, the more confusing it becomes. Is Ablation a good option or is treating the 'beast' with drugs the best way to go? At this point I can argue both ways. It is scary. It can't be good to have my heart racing at 160 + beats a minute for 2 days. And a day later it may drop to 35 - 40 beats a minute (which is what it's doing right now as I write this). It's comforting to know I'm not the 'lone ranger' with this. Thanks for your entries!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Linda Mansfield","Milton Keynes, UK","58","14.12.2007","None","Not yet determined","Not yet determined","Stress ","Excellent health","Waiting progress","","","","","","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Dave S. ","Southern California","45","Atrial Fibrillation with slow ventricular response","9 years","twice a year","until converted (have gone 9 days)","none","super fit (competitive cyclist)/endurance athelete","victim every 6 months","Only one that I have found so far is icy, slushy drinks (slurpees, frappachinnos, etc.)","none","take Quinidine Glucanate at onset. Current resting Heartrate 36-44 bpm, when afib has gone as low as 20 bpm (in hospital)Gaps between beats have been as much as 3.5 seconds.","none","none","stick with curent fix for now,hope that I will not need ablation in future. A pacemaker is not an option!","At present time chemical conversion takes 24-36 hours. I have been converted electricly once (300 joules- Ouch!). I am currently training to win a state championship in cycling and have a very active work life (power lineman). Afib sucks,completely derails life for minimum of 2 days.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Donald Campbell"," Zephyrhills, FL 33540","68","A-Fib","nearly two years","I don't think it's to often- mild ones - not sure","minutes and it's gone","nothing- something simply felt wrong- like fultter in chest area","physical last month- doctor said I was doing fine-asthma/a-fib","shortness of breath when doing physical work","family matters (stress) over work(like yard work, mowing, cutting brush- after an hour on two sometimes I get tired and need a rest","5mg of valium helps me to calm down-- maybe use three or four a week"," I take 1 1/4 mg of warafin daily-- blood stays at about 2.4 which they say is good--I take lopressor and lovastatin also"," n/a"," orthoscopic knee surgery years ago- tonsils(years ago) eye surgery (catherack ? sp)","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "steve","warrington ,Cheshire","49","Loan Paroxysmal AF","7","Every 2 weeks recently","10- 12 hours","None","good health very fit","Prolonged episode of AF for last 2 weeks awaiting cardioversion","Alcohol","No alcohol","Beta blockers ( Diltiazem), warfarin","None","None","Cardioversion at end of November","condition started 7 years ago with ectopic beats when resting or asleep after meal or a few drinks.It got steadily worse over the years turning to episodes of AF again starting when asleep self converting after about 12 hours.Time between attacks shortened over a 2year period to every 2 weeks to to date when one attack didnt self convert,ended up in hospital for 2 days.Now waiting for carioversion after 4 weeks on beta blockers and warfarin.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Anon","Canada","59","Lone Persistent AF","about 2 years? but actually diagnosed one year ago","several times a week before medication","usually about 3 to 6 hours but sometimes just a few minutes","no","good health, normal weight, healthy diet, low normal blood pressure","only occasional PACs - 3 months post-ablation","Stress seems to be the big one but sometimes no known trigger.","haven't found any yet","Diltiazem and Propafenone - unusual taste, poor short term memory, constipation, shortness of breath on exertion, hair loss, poor heat tolerance? Warfarin","Bisoprolol - fatigue, hair loss, light headedness, poor memory, depression, difficulty concentrating Digoxin - gastrointestinal ","Pulmonary Vein Ablation one year after initial diagnosis.","","Off medication - 3 months post-ablation. Having only occasional PACs and maybe very short runs of AFib. Feel great! ",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Jen","Canada","","","","","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "30 yr old female","London","30","paroxysmal A fib","11","weekly, sometimes nightly.","1-15 minutes","chronic amphetamine use, heavy smoking and drinking","moderate drinker, drug free, quit smoking 5 or 6 yrs ago. Active.","undecided. ","bending over too quickly; drinking coffee, though it's not always a problem. Sex. Smoking marijuana and taking ecstasy both cause a marked increase in flutters, for days afterwards (which is why I do neither thing now) Resting after stress, excercise, excitement (usually when I'm resting at night)","I wish I knew of one! Avoiding caffeine helps vastly (same with avoiding drugs). Taking flecainide for 6 yrs helped to the point of almost eliminating symptoms but thick headed canadian cardiologist refuses to re-prescribe it. ","None. I was mis-prescribed Atenolol by a cardiologist who didn't seem to realize that it increases frequency of palpitations in people with my kind of A-fib (vagal). It also induced a new symptom, PVC, which I never had before trying atenolol. As a result I was hospitalized for a day and have had frequent recurrence of PVC and afib. I'm very annoyed I was taken off of flecainide to go through this charade. I'd sue if I had the money!","Flecainide. It had bad side effects - numbness, dizziness, some extra palpitations - for the first 4 to 6 weeks but these were balanced out by the regulating effect on my heart rhythm, which I noticed straight away. I recommend giving it a chance it you are healthy enough to hack it, as it definitely suppressed my a-fib in the long-term.","n/a","Seeking a second opinion! The Canadian cardiologist I saw was incompetent and should probably have his licence revoked. ","Don't listen to doctors who tell you it's 'just stress' (especially if you're a female! They ALWAYS say that to women!!) Insist on a holter monitor test, because it's worth knowing what's going on. You'll avoid all the visits to emergency at 2 or 3 a.m. because you don't know what's wrong with you. (I've had at least 20 and half of them were before a doctor finally took me seriously enough to send me to a cardiologist)",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anon","Liverpool, UK","26","Paroxysmal SVT (Nodal)","3 (6 mths diagnosed)","Not frequent, 1 month -/+","Variable 1-30 minutes","Amphetimine overdose","40 Marlboro Reds per day (quit for 6 months). Regular drinker, though not excessive. Former paratrooper good general health","Acceptable level of paroxysms.","Smoking is a definite trigger. Quinine in tonic water. Stimulants obviously (Caffiene, narcotics etc). Lack of sleep possible and belive it or not, loud music in nightclubs can cause a flutter if the bass is excessive.","Not smoking is all I can say","Non. I use a controlled diet, plenty of exercise and vagal massage (Valsalva) and breathing against resistance if suffering a paroxysm.","Non.","Non.","A tough one. I am re-enlisting with the Army and wish to keep the condition quiet. Exercise and physical exertion seem to have no bearing on any attacks I have, though the lack of sleep during training could be a problem, for that reason I am going to try and control it the way I am doing currently. If I am refused entry or the paroxysms become more frequent I shall consider ablation.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Nick - nmmc01@yahoo.com","Houston, TX","40","Lone Afib","3","weekly","10 minutes to 36 hours","none","excellent health, kiteboarding, mountaineering, endurance athlete","afib weekly, not cured yet","caffeine, large meals, vigorous exercise, alcohol, drinking water immediately after exercise often causes afib for me, swimming, pretty much anthing that tires the heart","none yet","toprol 12.5 mg, flecainide 100 mg - nothing works for me, aspirin","rhythmol sr 325 mg - failed this one","apendectomy 7 years ago","hope to get ablation in 2008","Living with afib is not fun. Would like to try vitimin alternatives to the antiarhythmic drugs such as Q10, vitimin C, B-complex, magnesium etc. Can anyone recommend anything?",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Roy","Wilmington, NC USA","54","atrial fibrillation/flutter","4","2 per month","varies widely","none","fair, overweight, moderate alcohol use, lack of exercise","Just released from hospital after 2nd electrocarioversion","alcohol, caffeine","none","Rythmol-just started too soon to know side effects","Toprol XL 100mg daily fatigue weight gain depression","none","Improve physical conditioning lower triglycerides ","I have been hospitalized three times in four years for afib episodes. The last two have required electrocardioversion. I experience infrequent episodes about 2-3 times per month that will last from 2 minutes to 2 hours. Hospitalizations occurred when episodes did not end following several hours. Toprol side effects were difficult to endure but the medication did have some positive effects I believe. Waiting to see what the Rythmol does. I am scared somewhat by the descriptions of some of the side effects. Unsure of what my triggers actually are.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "PaulC (paul.craig907@ntlworld.com)","portsmouth uk","37","lone af poss vagal","4","2 - 3 times daily ","5 minutes to 1 day","none known","non smoker non drinker hiatus hernia","still living with it","large meals, caffeine, msg, white bread!, exercise, sex, adrenaline","dont eat, dont drink, dont move","75mg aspirin for stroke prevention recomended sotalol but this was stopped just moments before i took it due to unusual electrical pathways being discovered ( although it was me that highlighted this little problem with the cardiologist-- go figure!)","","","I am awaiting an appointment with my local cardioligist. i have seen one privately in 2006 who felt sure my af was due to my hiatus hernia diagnosed in 1997 ekg showed my heart muscle to be 10% larger than usual probably due to the cardio exercise i do (running, cycling etc...) and i also have non specific t wave flattening (whats that then?)","when the af first began i thought i was going to die i visited my gp but by the time i got there it had converted and appeared normal, i was sent home made to feel a fraud on the next occassion i had a 24 hour holter tape that recorded a couple of blips but nothing significant. eventually i got to the emergency room and they made a record of a full blown af with rates from 40 up to 200 bpm. my af always was erratic but fast, it has changed and is now all over the place with no rythm whatsoever the rate will go extremely low and then come bounding back (happening as i type). i am now at a loss for what to do next, my job requires me to be fit when i am not in af i am fine when it hits i feel like death. for info my resting heart rate is approx 44 - 48 bpm all suggestions greatly appreciated.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "joe","northern ireland","54","atrial fibrillation","6","regular","10 minutes to 6 hours","heart attack","social drinker, non -smoker","still have blocked coronary artery and some stenoses of one valve suffering but bearable","high blood pressure-msg-coffee-alcohol-sleeping on left side-tiredness ","walking at reasonable pace","arythmol-aspirin-no real side effects was on two 300mg doses but came off one 300mg dose myself just over a year ago as when i took it at night as soon as alay down my heart would go into AF ","lipitor-cardicor-aprovel cardicor slowed heart rate to much when taken with the arythmol","three angiograms ","have spoke about surgery to consultant and about a pacemaker but they do not wish to go that road yet","AF is a very difficult thing to live with and affects you mentally as well as physically. very difficult to hold down a job so i do not work",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,1,0 "jerene","hawaii","64","a-fib dialated cardiomyopathy","8 years w/episodes/ 3 months continual","","continual","","good","stable","high altitude, stress, sugar, alcohol, caffeine","none","warfarin, lisinopril, spironolactone, digoxin, coreg night leg pain dry cough","","","cardioversion","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Joyce","Katy,Tx","51","A-fib","?1-2","3x week","minutes to hours","Hypertension","Hypertension,Syncope,ulcerative colitis","OK","Don't know. Will try to start associating things with episodes","Very new new to this","Rythmol,metropolol,nifedipine,HCTZ,clonidine,isorbidenexium","","Hysterectomy,gall bladder","Live as normally as I can","I think this has been going on at least 1-2 years and ignored by docs d/t uncontrolled blood pressure.Trying to learn as much as possible.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,1,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "R.A.","Mi","48","AFib/Aflutter","9yrs","2-3per month","7days","none","good","cured","caffiene,heavy exercise","exercise in moderation,limit caffiene","tenormin-none","Rythmol, flecanide,sotalol,digoxin-many and varied","July 17/07 Mini Maze Sept 7/07 catheter ablation was needed for atrial flutter. I was in A flutter for five weeks after my MMaze. I now am in NSR and plan to stay that way!","To get off tenormin","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,1,0,0,1,0,1,1,0 "Dawn","New Jersy USA","42","AFIB","12","ALMOST EVERDAY","30 MIN TOO A COUPLE DAYS","NONE","I DO SMOKE BUT HAVE CUT WAY BACK, SOCIAL DRINKER","VERY WEAK TIRED AND DEPRESSED","stress can through into a full blown attack.. other wise it just comes out of no where. i have cut way way back on caffeine.","just to breath as normally as possible. try to focus on something like maybe folding clothes. anything to keep my mind off it.","200mg flecainide twice a day....cardizem 120 mg twice a day asprin 1 a day","flecainide 100 mg per day..cardizem 100 mg per day asprin 1 a day","none","i hope to over come this. but i think its a life long process. i do alot of research and hoping of finding diffrent ways to cope.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "jan","somerset","60","Atrial Fribulation","10","now everyday, ","from 1 hour to sometimes 10 hours","none","non smoker, light drinker, high blood pressure","quite ill most days","red wine, caffiene, M.S.G. ","none, although sotalol makes the heart rate much slower.","Sotalol,warfarin,diltiazem, ","I have been on most medications for Af, one of which gave me a big problem with tyroid function, last year it was too high, this year it is too low.( Amioderone, flecanide) sorry but been on so many cannot remeber them all!","pacemaker fitted in 2004, was due to have a AV node ablation in Oct, but since having a scan of my heart last week was told the AF, had caused alot of damage to my heart, and they may not be able to proceed with the ablation.","havnt made any, feel too ill most of the time. although my daughter emigrates to Australia soon and I would like to visit every couple of years if it is possible.","I am really sick of having AF, my days are filled with trying to fit everything into one day, ( very difficult when I am sometimes in AF 6 hours to 10 hours at a time.) I can only walk a few steps to the bathroom, or to make tea when I am in AF, as I feel too breathless and faint when I move about too much.",0,1,0,1,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1 "Mark G","Northwich, Cheshire","33","Atrial Fibrillation","Diagnosed 2 - Undignosed - much longer","Dwer daily, now intermittent","5 Minutes to several hours","Was at rest before first maor AF - however pre-existing heart damage from pericarditis several years earlier.","Fair to good - non drinker, smoke 3-5 cigarettes a day, walk regularly","Mostly controlled","Unknown - however heavy exercise, bending down too quickly / standing too quickly, stress, chinese foods (MSG) appear to have played a role ","Reduced caffeine intake, sensible diet, reduced high impact exercise in favour of less energetic exercise. ","Sotalol 80mg x twice a day, 75mg aspirin x once a day. Sotalol appears to be managing the issue, however side effects include but aren't restricted to: fatigue which hits like a thunderbolt, coldness in the extremities, indigestion - reflux issues","","Had Type B meningitis in 99 - very serious, following this had myo-pericarditis, which was controlled with drugs....... however @ the time the doctors did not do any follow up studies and hence did not find the damage to my heart that had been caused... 5 years later when on a 999 trip to the hospital with chronic AF and subsequent proper follow ups I find that heart damaged caused at the time of the pericarditis predisposes me now to severe AF........ and I should have been on B-Blockers from then. Have had a couple of minor ops - but neither of hese I would say bore any impact to this condition. ","","I have been astounded at the chronic lack of interest by doctors and specialists.......... apparently young people shouldn't have heart conditions like this. The levelling side effects of the medication appear to have numbed the annoyance of the incompetence that could have caused me to be in a much more serious situation than I am already in. It is difficult to explain to people that I am not as healthy as it would appear and that some of the things that they assume I can do are impossible. There is a cost issue here too - I am not wealthy - yet am probably saddled with the med costs from hereonin...... and reading some of the other postings I would assume that at some point I may be having to go further with my medications. I have little faith with doctors just now and have managed to glean more information from the experiences of others than I have from doctors.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Stu","Newcastle, UK","34","paroxymal AF","2","about 1 every year","until cardioversion","None","Good","Live in fear of next episode","No real know triggers. Cardiologist thought it may be alcohol, but last episode was after not drinking for a year.","None","None","Warfarin. Atenolol. Have tried to cardiovert with Propafenone but did not work","None","Wait and see, no doubt I will get another episode and need a DC cardioversion","It is very hard to live with the spectre of an episode happening again and then needing to be cardioverted. I am afraid to travel etc. I do not understand what triggers it- or why I always need to be cardioverted. The good thing is I do not really have any symptoms.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "David","Liverpool UK","63","atrial fibbrillation - flutter - paroxsamal - lone","2","minimum once weekly","48 hours","none","good non smoker moderate alchohol","still suffering on an intermittent basis","alcohol but sometimes not affected.Can be large or small amount poss chocolate","no alcohol whatsoever usually ok sometimes minmal flutter","unable to tolerate drugs. Side effects when tried feeling internal body movements. blood vessells moving in legs eye pain unable to concentrate daily asprin","no previous medication","none","Considering Catheter ablation and obtaining info on maze treatment","alcohol combined with stress may be my cause",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0 "John T","USA- Pa","52","AF","32","1 to 2 Times a month","About 12 hrs","none","overweight, sleep apnea, hypertension","Managed by meds","Stress and over tired","None","Flecanide, blood thinner, Avapro","Quinidine Sulfate","None","Just wait and hope it stays under control","Having it for 32 years the biggest problem is mentally trying to calm yourself that you are not going to die from this. Must make sure you are on blood thinners, my sister had a stroke from AF because she refused the blood thinners",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Judith","US","65","AFIB","8 months","every day, usually don't last long","usually short, once about a day before medication","none","no","ill","Not sure what the triggers are, sometimes in the middle of the night, a lot of times when I am busy doing things or exercise, even house work","","Was taking sotalol HCL I took 80 ml twice came back after about two weeks. They doubled the amount to 160 twice a day, lasted about two months then came back again. Then the doctor put me on Tikosyn 0.5 mg once a day. I've been on Tikosyn for about 8 days. I feel very week and shakey. I can feel my heart beats.","","","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Gary","USA","60","Lone AF","20","4 to 8 per year","8 to 16 hours","Caffeine intake, work stress","Non smoker lifetime, Social drinking only","Recurring with somewhat regular frequency","Diagnosis of bradycardia at age 21 Panic disorder diagnosed at age 25 LAF associated 100% with vagal nerve parasympathetic reactions during sleep","None known - spontaneous conversion to NSR 100% of events","digoxin 0.25 mg/day for 18 years clonazepam 0.5 mg/night for 8 years (nighttime panic disorder; vagal nerve stimulation)","None","None relevant to this issue","Have consulted cardiologist for 20 years, multitude of tests confirm LAF Plan to consult electrophysiologist to look again for cause; ","Familiar with Hans Larsen LAF site - digoxin contraindicated for vagal LAF - plan to followup with new cardiologist to determine if digoxin can be stopped",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jack Dee","Joliet, Illinois","56","AF - Paroxysmal","6","Varies 1-1/2 yrs longest to 2 days shortest","Longest 12 hours - shortest 1-1/2 hours","Very Heavy Drinking","Over weight but still losing, Also have a Patent Foramen Orvale","Working with it, becoming more educated about it.","Triggers are bs, I have avoided all kids of known triggers, but beleive most are in peoples minds. Medication can be mitigating cause as I found out with Flecinideand Rythumol.","","Sotalol 80 MG twice a day, Plavix, Aspirin, Lisinopril HCTZ 20/25, Klor-con M20 Twice a day","Rythumol, didn't stop afib, and I believe made it worse, had 3 different episodes in 1 day, every other day 2 hrs to 18 hrs. Flecinide was no better.","None","Live!","Do not drink (Quit), do not smoke, very little sodium, no external MSG, low fat diet, no diet soda, I eat mostly fresh foods, and am on a diet for the last two years, and lost over 100 lbs. Drink plenty of water, and moderate exercise. Try to eliminate stress as much as possible, as I used to be high strung and was easy to get into rage situations. A Total life style adjustment, but feel much better. In 6 years at least 20 episodes, but they are becoming more frequent. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mary Ruth Ramirez","Austin, Tx","51","Atrial Fib","30+","occasional at first, now all the time","seconds at first, now all the time","Rheumatic Fever causing Mitral Stenosis","overweight, otherwise healthy","feeling 1000% better","none","none","Coumadin, Amaryl","Digoxin for 22 years Inderal LA for 20 years Coumadin for 22 years Quinaglute for ~ 2 years ? frequent diahrrea then changed to Tikosyn for ~ 4 years Amaryl for 2 years","Tonsillectomy at 12 years old Tubal ligation at 30 years old Valvuloplasty at 43 years old Cardioversion at 51 yeasrs old AV Node Ablation and pacemaker at 51 years old","keep feeling this good as long as possible","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,1,0,1,0,1,0,1,1,0,0,0,1 "Ed H","Colchester","55","paroxysmal atrial fibrillation","30","varied - now 1 per yr - at worst 1 per month","4 - 72hrs","sleepless nights - new baby"," OK, drink moderate, smoke little (now 1 small cigar per day)","stable - in control","sleep deprivation alcohol (day after intake) stress forgetting medication (flecainide) viral infections (cold, flu) sudden shock/fright. Most common trigger now is sudden awakening (1hr after going to sleep) usually with dead arm (ie sleeping on arm and cutting off blood supply) No dreams at time of awakening)","adequate sleep flecainide excercise can revert","tambocor - have been taking for 17 yrs initially - noticeable incresed heartrate now - none observed","verapamil - for 1 day = awful made situation much worse","surgery for meckels diverticulum in 1986 prior to surgery had been ill with blood loss, anemia, needed blood transfusions, severe constant abdominal pain but had no episodes in this 4 yr period. In fact no episodes between 1976 and 1986, ie had one episode at birth of baby in 1975 and then none until after surgery in 1986. Shortly after surgery - when feeling weel ad not stressed - had second episode of AF preceeded by rapid heart beat on waking from sleep","Keep taking flecainide and enquire re ablation","sibling has same condition but is on sotalol Reading other entries I see some similarities with other respondents I particular there seems to be a self limiting element which givesa a period of normal rhythm after an episode. The longer the episode of AF the longer the respite period. On occasions when an episode has been cut short by excercise then it seems to return sooner (based on experience before taking flecainide)",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "john hogg","Burgundy France","58","Paroxsysmal afib","8","Every 2 or 3 days","24-72hrs Naturally cardiovert to NSR","None","Reasonable for age - stopped alcohol after stroke.","fairly ill","Alcohol, Stress","None","Verapamil - low blood pressure Previscan blood thinner - none Zocor - none","Sotolol - no side effects Amioderone - bad peripheral neuropathy - still had afib attacks Aspirin - didn't prevent stroke Acebutolol - lowers blood pressure excessively","Broken leg - 1999 Pacemaker implant - March 2007","Due for catheter ablation in Paris in July 2007. Update - ablation completed. NSR for the week following. Some tachycardia events but no irregularities. The medical treatment in Paris under Dr. Cauchmez has been excellent. Not on any antiarrythmic drugs. The procedure was approx. 5 hrs and concentrated on the left pulmonary vein with a total of 80 burns. Hope to feel better and better as healing process continues.","Had stroke in January 2007 and was found to have bradycardia. Pacemaker implanted March 2007 for bradycardia but no alleviation of afib despite atrial pacing. A very difficult condition to treat or control and when in afib I am extremely symptomatic. Has ruined family/social life so hope the ablation works. The drug therapies seem at best to control afib for a very short period only and at worst have no effect at all. I empathise with anyone who has afib - it's a very insidious condition and just gets harder and harder to control the longer it lasts. I hope everyone gets some relief or cure from it.",1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0 "Liz","South west Scotland","59","Paroxysmal vagal atrial fibrillation","14","2-5 per year","2-18hrs","nil","good","still occurring","a lying on left hand side b cold drinks c heavy meal before bed d going over pothole in car and sitting down with a heavy 'plonk' into an armchair","a lying on my right hand side in bed b if I am awake and feel it starting I move very quickly to a different position and walk around which often stops the arrythmia","Flecainide 300mgs crushed in water as a bolus dose as soon as I go into AF.No medication taken regularly","","nil","Will try to keep on with the current regime","My life has been transformed by reading Hans Larsen's publication 'Atrial Fibrillation Towards a Cure' in which I read that often the Af could be halted by taking a bolus of 250 mgs of Flecainide as soon as the AF started.I have been doing this for several years now and it has saved an enormous amount of visits to casualty and subsequent cardioversion.My resting HR is 50 and when I go into AF my ventricular rate is 170 so my body is extremely stressed and I am unable to do anything until I am back in SR I have had a small stroke from my Af causing right sided hemiparesis",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1 "Lance","Walnut Creek, CA","49","lone-persistent A-FIB (asymptomatic)","showed up on EKG last year","persistent","NA","unknown as I have been asymptomatic","good, drink occasionally. since diagnosis I have lost 50+pounds on a diet plan","'cured'","unknown I did use to drink at least 2-3 liters of diet coke a day for almost 15 years.","unknown","will be on Coumadin (~50mg) for a few more weeks. no side effects. Have been on this drug for almost 8 months now","Rythmol (lead to a bout of atrial flutter - very scary event as my wife was gone and I was taken care of my daughter, the bout lasted most of the day - heart rate at 130+ BPM) Amiodarone (200mg) took for about 6weeks post ablation Attenalol (30mg) Toprol (50mg) (reduced heart rate may have caused my depression)","spinal menogitis(sp?) as child three electrocardio versions (one of the three was post ablation) PVAI surgery by Dr. Nibley, Mt Diablo Medical Center in March of 2007","complete drug treatment in a few weeks. then start aspirin and hope the ablation sticks.","A little history My job requires a full medical every other year. Starting about 10 years ago the technicians began to noticed that I had premature atrial contractions (PACs) in my EKG. At my last physical one year ago they diagnosed A-Fib from the EKG. I went through a stress test and they noted my exercise intolerance. I went to a cardiologist and he recommended an electro cardioversion. I went through two, I was in normal sinus rhythm (NSR) for about 4-5 days and then back to A-Fib. We tried Rythmol,,,that did not work at all. He put me on Warfarin to protect against stroke. He told me that the medical data said that at my age I could take aspirin and just live with A-Fib since I was asymptomatic. I would have done so, except I learned that persistent A-Fib will remodel your heart such that you could have valvular problems,an enlarged heart in the future and A-Fib could become chronic. Even though asymptomatic I opted to try the Pulminary Vein Ablation Procedure (PVAI). I had the work done in March 07 as well as the electrophysical study. Post surgery I was put on Amiodarone, Toprol and Warafin. About a week after surgery I was again in A-Fib so I underwent one final electro-cardioversion. Since then I have been in NSR. I elimenated the Amiodarone and recently the Toprol. I do still have ocassional bouts of skipped (ectopic?/PACs) beats but I always go back to NSR. Emotionally this has been tough. I am keenly aware of every skipped beat now. Sometimes at work I feel like I am in a fog. It has effected my life adversely. I am somewhat optimistic now as I have been in NSR for close to three months.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "English Mike","South San Francisco, CA USA","45","Atrial Fibrillation","27","<2 a year now","couple of days","none","Smoke half pack per day, moderate drinking, snore like a freight train","well controlled","Stress, tiredness, certain perfumes","","Digoxin 0.125mg daily Attenolol 25 mg daily","Coumadin - Bruising and bleeding","None","Stay healthy","Initilly mis diagnosed as a teenager - idiot doctor said I was probably anxious - finally diagnosed properly 18 years ago. have had some fairly serious episodes in the past requiring hospitalization with ventricular rate > 200 and lots of PVC's. Now well controlled.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Lyn","Athens, Ohio","60","AF, maybe strokes","Don't know","constant","constant","unknown","excellent","asymptomatic","none","none","warfarin","aspirin","1948 arm vascular surgery 2003 hemarrhoids","investigate left atrial ablation and exclusion of the left atrial appendage","My AF was noticed by a neurologist examining me for headaches. Otherwise, I would not have known. I have multiple brain lesions that may (or may not) be effects of thrombotic strokes. I have no sensory, motor, or cognitive symptoms. The bottom half of my heart is fine. So, I have no cardiovascular symptoms, no exercise intolerance. Would like to drink my favorite alcoholic beverages again, but am not for fear of stomach hemorrhage on warfarin. This is a big motivator for surgery, but don't know how to compare possible benefits and risks of surgery. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "raymonk","Florida","56","Atrial Fibulation","6 months","monthly","30 seconds","stress","diabetic","controlled by meds","stress, overeating","relaxing, meditating","Toprol XL - none Avandia ? - none Verapramil - none Lisinopril - none Lipitor - none Prevacid - none Metaformin - flatulance Niaspan - facial flushing","","Hip Replacement 11/2001 Appendectomy 1961 Tonsilectomy 1963","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Terry","Sydney, Australia","56","AF","0.3","2 months","first: 7 days, second: 1 day, third: 5 hours","none","excellent","coping and learning, developing strategies to self manage","strong coffee after dinner (not a problem at other times), cold drink after exercise (sometimes, if drunk too quickly), lying on left side when asleep (first hour or so), being suddenly awaken in first hour of sleep, possibly overtraining (ie not allowing sufficient recovery periods in exercise program - this may be the substrate rather than the trigger)","moderate exercise likely, but not confirmed. ","no medications since first attack","aspirin for two weeks during/following first attack","none","Gone back to normal exercise cycling, running, bushwalking with more attention to recovery periods. Plan to switch from gatorade to a sports drink that contains magnesium. May give taurine a go.","still learning about this",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "marilyn","michigan, USA","67","Intermittant AFib","5 years","more and more frequent","5 hours and more","post lung biopsy","none","good health","coffee, large meals, sleeping on left side and basically, anything","","ASA q. day prinivil celebrex hyrocholothiazide Vytorin","none","lung surgery foot surgeries","I am seeing an electrophysiologist at William Beaumont Hospital, Royal Oak, Michigan. I am considering pulmonary vein ablation in the future. ...Maybe even ultrasound ablation.","I carry a 'pocket cocktail' of Inderal, 20 mg and Rythmol 600 mg. to take orally when episodes of A fib occur. Episodes convert in 2 - 3 hours. I definitely know when I am in A Fib. Thr pocket cocktail didn't work! I had a pumonary vein abaltion performed in November, 2007, and it looks like I am cured! One year later and I am Afib free!!!! No meds except for ASA. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon","indiana, US","56","atrial fibrillation","3","1 (about 3 years ago, none since then)","2 months","none","healthy, non-smoker, not overweight, active","sinus rhythm returned with first jolt of electrical cardioversion","none","atenolol","50 mg atenolol twice per day/no side effects","75 mg atenolol 1X per day/no side effects","Atrial septal defect (sinus venosis type) repaired at age 22.","Stick with atenolol","My single experience with persistent Afib occurred 3 years ago and probably derived from the atrial septal defect repair that occurred 30 years earlier",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "MickEnt","Southampton UK","54","Atrial Fibrillation","1 year from May 2006","weekly","10 to 24 hours","Drinking alcohol","Good, overweight, have never smoked regular drinker","Premanent AF","Alcohol, lying on left side, coffee & tea.","Cutting out Alcohol","Amiodarone- erectile disfunction, numb fingers , cold feet. Warfarn no side effects so far. ","Digoxin, only taken for a few weeks","Varicose vein removal from 1 leg in 2000 Cardioversion in April 2007 (didn't work)","I want to get off Amiodarone as it doesnt seen to work, my pulse is always around 105 bpm at rest, it usually goes up to around 180 when exerecising. Will try another drug, try to get fit, lose weight and try to cut down on alcohol, currently drink around 8 units a day(2 cans of strong larger)","Over the past 20 years I occasionally had irregular and fast heart beats lasting a few hours after drinking red wine. With me it's not so much the fast heart rate that bothers me, it's the floppy feeling in the chest and the feeling of only firing on 3 cylinders.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "rocker","Philippines","32","intermittent AFIB","1","5 times a week during sleep","3 to 6 hours","non","good, mild hypertensive, GERD","under medication","stress, anxiety, excitement","valsalva manuever, coughing hard, pray","atenolol, coumadin, pletaal","bisoprolol","none","live with it","got depressed because episodes with AFIB is really scary and the thought of dying at the early age. however, reading the afibbers database really is comforting since i am not alone with this kind of illness. i will try to continue to live my life and enjoy it because i know that i have to always be positive to combat anxiety and depression",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Rhea","USA","54","Atrial Fibrilation - Flutter","8","intermittent","unknown - cardioversions alway necessary","none","smoker","continuing episodes","unknown","unknown","My in case of medication Flecinade. Has worked once.","Too long to list. ","Ablation. Went into AFib next day after ablation. Had another ablation about 3 years later. Lasted six months.","unknown - looking for answers","Medication makes me feel tired and listless.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "jack minneapolis","minnesota","67","a-fib","4","always","same","high blood presure","previous smoker and heavy drinker","heart attack","stress& anxious states","?","metoprolol - digitek [lack of energy]","","none","unsure","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0 "Pattison Esmiol","Glenwood Springs, CO USA","76","Atrial Fibrilation","? for years irreg. ht beat thought to convert to reg with exercise;25 yrs running;'89 ran Pikes Peak Marathon","No sxs of flutter, pain, SOB etc.Continuous AF in 100s> 1 episode each of chest pain, loss consciousness while driving>off road, wife yelled> corrected a near roll over.","9 mo prior: dear, youngest son 39 died paragliding accident; 2 mo prior middloe son 45 died in sleep, ? cardiac event while he had flu like sxs over counter meds, methadone, +liver, + heart","2-4 wks prior to onset, ,? Flu with lethergy, ennui, lack of energy, ?? shortness breath all thought to be Sxs of depression/grieving.","30 yr 0 smoking, 22 yr recovering alcoholic 0 alcohol. Active, athletic.","died March 5, 2008","Grief, flu?, overweight 40#","currently on Coreg 3.125 mg daily and building up coumadin for 4-5 wks to prepare for cardioversion with defibrillator.","see above. Initial tiredness on coumadin, now no sxs, feel good more active, mod. exercise with no sxs.","0","Bilateral inguinal hernias ~ 2000 R Ulnar nerve release 1985 Hepatitis B? with jaundice 1953 & full recovery","Tx, above under preventions Activity- camping, hiking, biking as tolerated.","Appreciate any thoughts, suggestions, especially re: the possible role of viral infection, a/o emotional stress triggering sxs in previously assymptomatic AF. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "ANON","CUMBRIA UK","58","paroxysmal atrial fibrillation","4","monthly","usually few hours, sometimes longer","extreme exertion","slight asthmatic, modertate wine drinking (12 units per week)","UNDER REASONABLE CONTROL","caffeine (very strong coffee only) extreme exercise work-related stress ( only sometimes)","NONE","Flecainide 200mg daily + up to 100mg during AF episodes Aspirin (warfarin refused due to unpredictable and erratic INR)","Digoxin (reduction in severity of symptoms, but ineffective in preventing episodes)","NA","NA","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Linda","toronto","55","PAF","6 YRS","for the past month daily sometimes twice a day","from one to seven hours","healthy","nil. social drinker","stable tired of all the medication","left side lying. over tired or hungry.Too much alcohol.","none","Propafenone........causing tiredness and problems with losing weight. Cardizem same as above","amiodarone.. anaphalactic reaction. spent a night in coronary care unit. Sotalol ... eventually failed to maintain sinus rhythm","nil","peraphs ablation will become a more feasible option as the quality of life becomes more and more impacted.","there has to be something out there to help prevent these episodes in a otherwise healty person. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Darin","Alberta Canada","38","a-fib","4","never goes away","never goes away, only gets less severe","none that I know of. I believe stress to be the initiator","reasonable, I do smoke (yea, I know my bad...)","I feel as though I am quite ill as my condition puts quite firm limits on me","I have symptoms almost constantly, I don't think any one thing initiates it","None of the zillions (OK, maybe I embellished a LITTLE ;-)) of doctors I have seen have been able to make this go completely away. They just keep poking and dosing me.","I take amniodarone (200 mg BID) Atacand (16mg once a day) Bisoprolol (5mg once a day) Rat poison (Warfarin) (7mg once a day) and carvidelol. The Amiodarone has caused some torubling side effects, I see a blueish haze around everything, and my skin is turning a lovely shade of blue-grey. The most troubling thing is that I am told that the hue of my skin is probably permanent. The doctors in thier obtuse humour (it actualy seems worse than mine) call it 'smurf syndrome' believe it or not. Everyone notices, I get stared at constantly.","none","I have had two ablations and am slated for yet another. Anyone that has endured one of these things, will empathise. They are not too fun. They start with a two hour trans esophageal echo and go down hill from there.","Try to keep my spirits up, try to beat this darn thing. Try to keep my doctor apts. Try to keep my sense of humour and try to keep my composure.","I am curious if anyone else has this to the degree I do. Has anyone else have/had this condition be as persistant as mine seems to be? The symptoms can (read ARE) very distracting and a little scary. I spend about one out of eight weeks in the cardio care unit of either the local hospital, or the larger hospital three hours away in a much larger city (where the electro-cardiologist keeps shop). Even lying in bed I have trouble breathing, climbing a flight of stairs can be a real chore. I sweat constantly and to a degree that I have to be careful I don't dehydrate. I sweat even sitting in a chair watching TV. The thing that bothers me the most is my poor kid. He wants to go for a walk, I can't, he wants to play hockey, I want to as well, but my darn body won't agree. I would have the doctors make me bionic if I could play with my son again. Is anyone else in this boat?",0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,0,1,0,1,1,0,0,0,1,0,0,1,0,0,1,0 "graham","havant hampshire","57","permanent af","10","bad episodes 2 per month","8-10 hours","none","was very fit distance runner non smoker moderate drinker","stable but have forgotten what really well feels like","first episode occured whilst running hard up steep hill whilst training for distance running. just seemed to pop felt like bubble in chest. reverted to normal in about 30 minutes whilst still running.Have given up running but think that excessive exercise would still trigger an attack.Triggered by raised blood pressure so have to avoid overdoing the alcohol.","Blood pressure treatment is now working well after trying several drug combinations this keeps af under control. The addition of amlodopine to perindopril and dioxososin has worked very well for me. Not drinking to excess i know just what i can get away with.","Warfarin.. no problems clotting factor quite stable. Amlodopine.. My wonder drug helped me to sort out raised bp at last. Perindopril.. No problems some ankle swelling occasionally. Dioxososin.. No problems Nebivolol.. No problems Co-Codamol..No problems a bit de-hydrating.","Flecainide..Didnt really have any effect taken off . after heart attack. Sotalol... No benefit taken off Bendrafluozide..Taken off on introduction of Amlodopine.","Nose operation 15 years ago Nerve operation on arm 10 years ago. Heart attack 1 week in hospital 6 years ago. NO SURGERY RELATED TO CONDITION.","Would like to have ablation or some form of corrective surgery if possible.Doctor has said that they would probably not consider me for this.Possibly because of heart attack.","But i am very optomistic about the future. A few years is a very long time in medicine and i am sure that an effective treatment is just around the corner. So hang in there fellow sufferers. And if yours is triggered by high blood pressure.ask your doctor about amlodopine it has made my life much better. Best wishes",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0 "Jim","Arizona","46","Afib - A flutter","1.3","x1 a week","seconds to hours","None","Generally health is OK, no diagnosed diseases other than Afib","Getting worse in one sence, better in other.","Onset seems to be totally random. Stress, bending over, sleeping or just lying down...sometimes no reason even while standing or sitting. Usually is preceeded by ectopic or skipped beats which are getting worse.","None","Flecanide as pill in the pocket if duration is lengthy. Lisiniprol for blood pressure which has been averaging around 130/75 with a delta of 115/70 to 159/81 over a 10 month period. Klorkon: they claim my potassium was low on trips to ER.","Atenolol: anxiety, tightness in chest, malaise. Digoxin: anxiety, shortness of breath, tightness in chest, malaise. ","Ablation for A-flutter. On trips to ER with 12-20 hour Afib, EP found that I was flipping between A-fib, A-flutter and PSVT. A-flutter was ablated in Aug 06. Afib events are now shorter and if they last more than 15 minutes, I take 250mg of Flecanide. Longest events since ablation have been around 5 hours. EP could not trigger PSVT so no ablation for that was performed.","Ectopic beats are getting more intense and more frequent. Some nights I only get several hours of sleep as they wake me up. I have been going to Mayo clinic for tests and this is still continuing.","Despite the docs assurance that this is just a condition of inconvenience, a lack of sleep, feer to travel anywhere without modern medical facilites, and a general lack of ability to focus on daily responsibilities due to this 'jolt' that occurs is depressing. I think the biggest problem is the speed at which are medical system works. Slow would not describe it. Take a test...make an appointment a month from now, try this pill, take another test, more pills.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Barbara","Florida","49","atrial fibrillation - hypertrophic cardiomyopathy","diagnosed 10 months ago","every day","variation of physical activity","heart raced 120-150 beats","good","Not quite 1st cardioversion - can't handle antiarithymia med","Lifting heavy items (Over 10 lbs), trying to rush doing things, walking real fast.","Stop and take deep breaths."," Warfarin - Afraid to bump into anything or bleed. Metoprolol - Stomach problems. Cartia XT - tired","Diogoxin - On for one week - felt very sick - quit on my own - ended up in hospital. Amiodarone - On for 4 days - felt very out of it and like a zombie - Procainamide - I lasted 17 days on this one - same thing listless and zombie-like","Hammertoe surgery - 1996 - Breast biopsy surgery - 2000","Would like to try my first cardioversion. Was scheduled for one at St.Lukes in Jacksonville on March 28, 2007 but got sick with a upper respiratory infection - had to cancel. Was so looking forward to it. Had about 4 months to get 4 readings in a row of PT/INR. Not giving up!","Still have alot of questions about A-fib and A-fib cathethar ablation. Been doing alot of research. Still on the fence about it, but I would love to get off the medications. Very medication-sensitive.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Anon","Portsmouth","48","PAF","3","Every other day","4 to 24 hours","No","Good","Post ablation recovery period","Over exercise Alcohol Long hours at work Lack of sleep","None","Disopyramide - blurry eyes and dry mouth","Flecainide - sleep disturbance","PVI ablation using circumferential approach - June 2006 Tricuspid isthmus abaltion - December 2006 Repeat PVI plus WACA plus repeat tricuspid plus vena cava isolation - February 2007","Wait and see if last ablation successful","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Brian","East Kent, UK","54","paroxysmal atrial fibrillation","1","only one so far","36 hours","Hip resurfacing six weeks previous","Arthritic, hypertensive","one hip resurfaced, BP controlled","no known","taking sotalol","meloxicam, ranitidine, valsartan, doxozosin, moxonodine, aspirin, codeine, paracetamol, sotalol - no obvious side effects","ibusartan, beta blockers, ACE inhibitors - shortness of breath ibuprofen, voltarol - gastric discomfort digoxin in hospital to steady first episode","uvulopalattopharyngoplasty for sleep apnoea left hip resurfacing - 'Birmingham' hip","having a 24hr ecg tape fitted echo cardiogram","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Roger","USA","65","AFIB","6 Months","2","Less than 24 Hours","Triple Bypass","Good","On medication","","","","","Sept 15 , 2006 Triple Bypass","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,1,0,1,0 "Anon","New Jersey","48","Lone Atrial Fib/Flutter","4","couple times a week","10 minutes - 8 hours","none","fair","preparing for an ablation","No triggers. Events happen more during the day than the night. I do have sleep apnea and my doctor seems to think this my cause some of my attacks at night.","none","Sotalol 180mg 2x a day - bradycardia events, syncope Atenolol 25mg when needed Coumadin 9mg ","Cardizem - 240mg 2x a day - syncope, did not help to stop or limit my Afib attacks. Rythmol SR - severe reaction, put me in V-Tach Amiodorone - bradycardia, syncope - my doctor feels I'm too young to be on this med ","Heart surgery - none","right now I am preparing for an ablation","Last year my doctor wanted me to have an ablation after the V-Tach episode, but we decided to try one more med. I was fine for almost 7 months [my attacks were mild and only lasted for a few minutes] than all of a sudden my attacks changed, and I have been in the hospital 3 times this year.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Rebecca","Washington","33","Lone A-fib","0","1","4 hours","none","Non-smoker, rarely drink, excellent health yet under high stress, high caffeine intake","great, yet worried I am going to have another attack","Bending over, taking a big breath and running up stairs, Standing up to quickly.","","Atenolol...new medication, still feeeling a bit light headed and nervous.","none","Cosmetic","","I am a very high stress individual and this happening to me has made that worse. I am hoping someone can ease my mind about this experience.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "David B","Tampa, FL","35","Atrial Fibrillation","1","Every few months","Days","None","Moderate drinker, good health","Maintaining","Illicit drug use, Methamphetamine, Cocaine, Ecstasy. 7 day binge drinking ","Not doing stimulants","Current just taking blood pressure medicine. Just started Taurin and L_arginine today for PVC's.","Was taken off Coumadin and Toprol because of my age. Toprol depressed my sex drive and made me lethargic. Coumadin made me bleed more and bruise easily.","None","Lay off the drugs, try to limit alcohol binges.","I am still pretty young and thinking I'm invincible, so I haven't made the smartest choices over the past couple of years with the drug use. That finally is gone though and I'll be a new dad in August, so I've got to get my life on track... which I feel I've been doing lately.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "peter","australia","48","during knee scope operation","diagnosed 1995","none that I can remember","none that i know of or felt","","good","well heart rate 68 resting BP 110/70","","","50ml of Cq10 once per day Nil side effects","1995 prev Warfrin and Digoxin combo under GP direction for 2 months after initail diagnosis. HR 110 resting. 1995 Cardio reversion - failed - still 110 resting. 1995/6 Chinese herbs combo by Chinese Dr of herbel medicine, director of RMIT Complimentry/ Natural medicine department. 12 months treatment HR 80 resting. BP 140/ 80, rate still in af then put on continual dose of 50mg Cq10 since 1996. Latest checkup on 10/3/2007 H/R 68 resting BP 110/70, can become irregular when under extreme physical activity. "," Cardio reversion 2 months after original diagnosis that failed. Since then, 2000 knee scope, right knee. ","still have check ups, I swim 3 times a week about 2km, find that my recovery time from hard extreme physical exercise is good. ","I work outdoors and with me taking the Cq10 my recovery from extreme physical exercise is quite creditable. Find that I can bleed a little longer than average person not on medication. Strangely finding that my healing quality from cuts, scraps and such is quite remarkable. Hand blister 6cm on palm in diameter complety gone in 3 days. A deep cut on my hand from work healed to scap gone in 5 days.very wierd",0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "peter wiltshire","London UK","63","2004","20","daily","1 to 60 mins","none related","heart disease - three stents 1997","status good and maintained","indigestion, fatigue","Simple gastric medication, sleep","warfarin giving digestive problems, pravastatin 40mg giving digestive problems, Lansoprazole 15mg.","As above with Amiodorone but without Lansoprazole for 2 years. Miraculously found I could stop Amiodorone by taking Lansoprazole.","Three stents in heart 1997 after angina. No significant recurrence. AF not diagnosed then, but episodes were occurring.","Trying to establish best medication/eating routine.","My father had same problem. I assumed for decades that the problem was some sort of hernia problem. Not sure about meaning of paroxysmal - assume this means beat skipping. Episodes prevent sleep - produces gastric problems - creates AF.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "robert elliott","west sussex","60","paroxysmal a/f","9","increasing recently to 2/3 events a month","anything from 3 hrs to 3 days","nervous excitment adrenalin rush","good health non smoker and occasional very light drink","3 days out of a 44 hour event","none diagnosed","","75mg asprin once a day no side effects","beta blockers and sotalol. side efffects include drowsiness to the point of dangerous..ie going to sleep whilst driving ","surgery for enlarged prostate (not cancerous) surgery for double hernia Both operations performed since onset of a/f with no effect on the frequency or duration of events","appointment with cardiac specialist booked for june 2007 to review current possition in light of the recent increase in frquency of events","",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "KathyR","Westerlo, NY","64","Paroxysmal A-fib/Flutter","27","17 yrs bwtn 1st-2nd then 3 yrs, then 6 yrs then 3-4 per year","usually less than 24 hrs.","None. could have been major partying that night.","Fairly good inspite of obesity, well controlled diabetes,","losing weight ,down to one diabetes med, last attack 10/06. Daily ectopic beats though.","Lying down.(used to be just left side but now any position). So far, all events happened while lying down except one during exercise. I have daily ectopic beats provoked by excercise going up and conming down.Bending over.Full stomach. Swallowing cold liquid.Pressure on my midback between spine and left shoulder blade. A pillow could do it. Many episodes start with flutter and then break down to fib.I not only feel the beats when I have an attack but I feel the fluttering atria in my throat. Spend a lot of time worrying.The rhythm triggers a trauma response. ","??? I spend my life adjusting my position, not getting full especially at night. Not eating after 5 or 6PM. Not bending over for too long. Not leaning against the back of the couch or chair. Drinking slowly. Who knows if that helps.","Digoxin. Coumadin in anticipation of Ablation March 19, 2007.","Atenol, made palpitations worse-depression, fatigue, Lopressor made palpitations worse-depression, fatigue & A-fib broke through, Sectrol made palpitations worse, Verapamil made palpitations worse, Flecainide made palpitations worse,Cardizem, A-fib broke through.Cardiologist laughed at me about the meds making the palps worse. Wouldn't belive it, wanted to increase dose until Holter proved it. Changed cardiologist!","None.","Scheduled for Pulmonary vein ablation at The Cleveland Clinic in Ohio March 19.Could give me Left A-flutter or other complications but I'm praying not.","I'm sure I sound whiny to you folks out there that have far more trouble. To you I apologize and admire your stamina. I don't seem to be able to get my reponse to the attacks or the fear of them under control. It just feels so awful in my chest when it happens.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,1,0,0,0,0,0,0,1,0,0,1,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Annie","New Hampshire","53","A Fib / AFlutter","5","started out one every few months, progressed to several per day","most under 30 minutes, had one last 24 hrs.","possibly a 3 month stint on diet pills - but I had taken them in the past","overweight, heavy drinker in past, nonsmoker, high bp","much better on flecainide (3 weeks) - no full-blown episodes","caffeine, alcohol, lying down, chocolate, excessive sugar, moderate to strenuous exercise (after), stressful situations (after), my ex-boss, lack of sleep","no caffeine and more sleep seem to help; less alcohol decreases severity and duration but no alcohol doesn't stop them completely, changing jobs has helped so far (but that coincided with starting on flecainide). Nothing really helped much until the flecainide.","flecainide - 50mg/twice per day metoprolol - 100mg/twice per day aspirin - 325mg/first thing in the morning Started out on 100mg of flecainide and felt like I was taking poison - Extreme stomache pain, blurred vision, dizziness. I was afraid to sleep because I would stop breathing and wake up gasping. I stopped taking it for a week but then decided to try taking half as much because it did seem to work on the Afib. At 50mg it's working great and no side effects! Metoprolol made me dizzy in the beginning but that went away. It does make me more sensitive to cold.","Lipitor - made me extremely unwell. I stopped taking it about a year ago. My doctor's not very happy with me.","none","I plan to exercise more and lose weight while I still feel well enough to. Am trying to give up alcohol completely but it's proving more difficult than I would've thought. Will probably try some of the vitamin therapies. Hopefully they'll come up with a reliable permanent solution in the next few years. I have my doubts about this - except for the stroke risk they don't seem to take it that seriously.","I still can't believe how much this condition has affected my life. I barely left my house at all for two years. I was exhausted and out of breath and had this horrible feeling of dread all the time. I lost my job because I couldn't cope with things that I had done very well for over 10 years. Only someone else with the condition could begin to understand. Your friends, family and coworkers think you're crazy. There would be months between doctor's appointments and in the meantime you're having to decide on a daily basis whether to take yourself into the emergency room or not. Thank you so much for this website. It's helped me more than anything else.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Helen","Glasgow","40","Paroxysmal Atrial Fibrillation","7 months","several times a day at moment","mostly seconds, occasionally 20 -30 miutes, first one 26 hours","On Holiday, lots of strong coffee, red wine","none smoker, fit and active","Was stable for 2 months but was on ski holiday and worse than ever","Stress Coffee red wine fatique","Don't know any. Arythmol seemed to work for two months but I think the altitude has made everything worse again. Hope it will settle again now that I am back at sea level.","Arythmol 150mg 3 times per day Aspirin 300mg omeprazole 20mg per day","sotalol - unable to function, depression, loss of concentration, drowsiness","None","Am interested in ablation therapy but consultant hasn't suggested it.","Really struggling with this at my age. Am fit and well otherwise but feel awful when I get a run of extra beats. It does feel life threatening althought I've been told that my heart won't stop. Worried about long term effects of medication and condition generally. I have had about 10 flutters since starting typing this page.Would be interested to find out if altitude has affected other sufferers.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "lorna","london","35","Atrial Fibulation","4 years","3 - 4 times a day","30 mins to 3 hours","none","smoker - drinker","hopefully cured","alcohol, stress","","only asprin","flecinide acetate 200 mg daily, asprin, plavix. no known effects","had ablation surgery in october 2006. Only had one episode since. Have very short mild flutters. Hopefully has worked","","Although ablation is painful, if only sedated, seems a very good cure. Can only say good things about it. Had mine done at major heart hospital in london. Good luck everyone",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "JCH","Missouri , USA","born 1943","Lone Atrial Fibrillation, frequent PACs, pre-hypertensive","began 2003","3 episodes as of 2/07","about 3 hours (long enough to get to the emergency room)","none","excellent, non smoker, non drinker, endurance athlete","10 months post last episode (as of 2/07)","none identified","control blood pressure with medications","Cartia-XL, Cozaar, digoxin (very small dose) no side effects. Supplements: fish oil, Slo-Mag (magnesium)aspirin","beta blockers: fatigue, chronic cough, orthostatic hypotension, nasal discharge discontinued","none","hope that medications control AF, control blood pressure, diet, exercise, weight control","I realize that the use of digoxin is controversial. I've discussed it with three of my cardiologists (one of whom is EP) and since no side effects and no reoccurence in 10 months will continue. (serum digoxin level is below therapeutic levels (0.3 ng/ml). My mother had high blood pressure and atrial fibrillation. She lived till age 87. My AF converts in less than 20 minutes post IV cartizem. Quality of life is reduced by curtailing travel abroad especially to third world countries. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","usa","54","a-fib and mitral valve prolapse","25+","varies widely","varies (3hrs to 24hrs)","none","excellant/non-smoker, non-drinker, non-drug user","cautiously optomistic (no attack in 3 months)","no definites. 'maybes' include alcohol, stress, radical change in schedule (eating and sleep)","none ","flecainide 100mgs 2Xday; and 325 aspirin 1X/day no side effects except maybe weight gain (not sure if related)","digoxin 25mg 1X/day; and 89mgs aspirin 1X/day. no side effects","none","if i go 6 months on current meds withiut an attack,i plan to try to cut back tp 100mgs/day of flecainide.plan to maintain aspirin therapy based on current literature.","starting at 12 years old experienced STV regularly during vigorous sport workouts. especially prevalent on sports requiring sudden movement such as jumping (basketball, volleyball). was highly conditioned, elite athlete during late teens thru late 20's. as i got older (around 35 or so) condition changed to A-Fib. episodes would occur with no apparent pattern or trigger. i studied every possible cause including diet, sleep patterns, environment, stress, etc. No pattern or cause developed. Episodes would occur sometines twice weekly or sometimes not for 4 months. Very frustrating! The only possible trigger i could discover was alcohol. I was a weekend-only drinker during this period. I gave up all alcohol for 10+ years. That slowed, but did not eliminate the episodes. Most recently, i have given up all caffiene (although i was not really a heavy user - 2 cups of tea a day); and as of 11/11/06 started on regimen of Flecainide (100mgs 2X/day). Have not had an episode since 11/11. But i have often gone this long without an attack. So i have my fingers crossed. I'm told i am not a candidate for ablation based on frequency. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Peter","USA","36","AF paroxysmal","unknown (potentially 3-5)","2-3 week prior to medication","6-8 hours","alcohol, exercise, lack of sleep","binge drinker","on medication","alcohol, lying down, sleep, large meals, high adrenaline/panic attack","vigorous exercise to interrupt episode","amiodarone - none yet aspirin","none","none","discontinue amiodarone ablations - flutter and PVI","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Don","Savannah GA","49","Afib paraxsymal","5","constant","constant no normal heartbeat","none","good","cured, 500mg flecanaide daily","none","none","500mg flecanaide; bloating, weight gain warfarin topral 100mg 4 cardioversions","various","none heart related","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Hal","Arizona","68","Atrial Fibrillation","2","None in past 23 months","3 months of irregular beat prior to elec. conv. Few short episodes the fol mo.","Stress","non smoker, non drinker, overwieght, regular light excercise","No know episodes past 23 months","not known, not afflicted with normal listed causes or conditions","drugs","Flecainide, 150 twice a day Atenolol, 25mg once a day Aspirin, 325 once a day Sleepier than usual, or I am just using these meds as an excuse? also take Vytorine 10/20 once a day","Started with Flecainide 50s then 100s with some AF still indicated on monitors and then went to 150s and symptoms went away. ","No major surgery or heart surgery.","Lose weight.","I sometimes think that I could be weaned off of the drugs, but my doctors are hesitant.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ryan","Seattle WA","29","Lone A Fib","0","~1/day","<2mins","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "al newberry","augusta, ga.","60","prox A-Fib","4","twice a week","2hours","2 ablations preformed","good","improved","being nervous, upset about something, to much caffenee","i have experenced that a mild pain medication will releave and relax myself out of a fib. Heart rythem medication such as amiodarone and keeping blood pressure under control.","amiodarone-no side affects,tropel-xl no side affects along with blood pressure medications.","amiodarone-none, tropel-xl none, blood pressure medications-none","two heart ablations for a fib. two knee scopes, herneia repair.","stay on medications, keep blood pressure under control along with heart rate. may consider another ablation in the future.","I was under a lot of stress at work when i first new i had a fib. i got a medical retirement from my job. now that i'm not under a lot of stress and having two ablations and taking the right medicanes my symptoms are minor and the only downfall is having to take the heart medicanes and blood thinner. when i first came down with a fib my symtomes were severe and it was very hard to work and i was always having to leave my job and go to the emergency room for care.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Roy","Mandalay Bay, CA","75","Paroxysmal Atrial Fibrillation","14","started once every few months, then increased to 3 times/week","2 hrs - 16 hrs","Triple By-Pass Surgery","High Blood Pressure under control w/meds, non-smoker, non-drinker","Cured!","","","","","","","After many years of suferring and tolerating the AF episodes -- always fearful of getting a stroke from clots that may form in the Atria, I finally decided to see a an electrophysiologist who was recommended by my cardiologist (I had read about their treatment of AF and asked for a referral). AF is an electrical problem, so why go to a regular cardiologist --it's like getting a plumber rather than an electrician to fix an electrical problem. The cardiologists only prescribe medicines to try to control the AF episodes -- some with devastating side effects. This is not a cure for AF. Over the past 10 years, electrophysiologists (who are cardiologists that specialize in the treatment of electrical circuit problems in the heart) have perfected a cure for AF (especially with the help of new electronic machine technology). The electrophysiologist I saw did a Catheter Ablation -- an outpatient procedure similar to an angiogram where he mapped the abnormal electrical pathways coming from the atrial chambers of the heart. Then, using a Radio Frequency (RF) catheter, he burned away the abnormal electrical pathways -- leaving only the single Sinus Node electrical pathway which maintains the normal, regular heartbeat. I felt no pain during this outpatient procedure and went home the same day. It is now about nine months since the procedure and I have had no AF episodes. They consider it a cure if one year goes by without an episode of AF -- so far so good. Be aware that the new technology uses what they call 'focal point mapping and ablation' or 'Pulmonary Vein Ablation' techniques. Older technologies didn't use these procedures, which now allow for crossing over to the left atrial chamber where most of the problem occurs. The cure rate is about 80 to 90 percent. I know of two places that specialize in this new procedure (although I'm sure there are more now that electrophysiologists all over the world are getting trained in it). They are the Cleveland Clinic in Ohio and Dr. Nademanee in California. Dr. Nademanee, who has perfected this procedure over the last 10 years, was my physician. He is world renowned in this field and has doctors from all over the world coming to learn his RF Ablation procedure. Do a Google search of 'Dr. Nademanee'. You'll see quite a bit of information about him and AF treatment in general.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0 "Elaine","Amesbury","58","Paroxysmal AF","3","weekly at present","1.5 - 20 hours","Hypertension, anxiety?","Fine - no vices!!","on edge of seat waiting for next episode......","Can't think of anything particular except high BP, menopause and a tendency to worry.","Am open to suggestions! GP recommended relaxation tapes/excercises.","Bisoprolol fumarate & bendrofluozide for BP. Seven Seas cod liver oil & garlic.","previous BP medication made legs swell - most attractive!!","Nil","Try to stop worrying about it. Distract myself when episode occurs. ","GP/consultant do not seem too worried about it, so maybe I should take a leaf out of their book.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Deb Dz","Co","44","Lone A-fib","1","daily","20 minutes","none","Good , no smoke, little drink","Considering ablation","Rest & relaxation. I can be in the middle of very high stress situations & I'm fine. The second I 'let down' they start.Now I stay away from coffee-bummer!","I don't know, do you?","Just started 150mg Flecainide two times a day- side effect seems to be that I slightly A-fib about 20 minutes after taking, then I'm okay for the day.Also take Cartia 240mg in the am. As yet haven't noticed any side effect. asprin a day.","Rythmol- AWFUL! Makes your mouth taste like metal, my skin felt strange all the time, and the lack of a sex drive.HATED THIS DRUG!","Gastric Bypass","I am considering Ablation, I want my life back!I am otherwise in great condition, eat right, excerise, dont drink in excess, no smoking. I guess I'll keep that up!","My condition has gotten markedly worse in the last 3 months enough that it has started to scare me. I want to learn all I can about it & get better!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Ed Bishop","NJ -- USA","56","Atrial Fibrillation (Paroxysmal)","Diagnosed 3 months ago (Reality probably about 15 years)","varies from daily to a couple of times a week","sometimes 18 hours","None","","Not cured","Big Carb Meals, Stress","","Toprol XL 100mg Tikosyn 500mcg (twice daily) Warfarin 10mg No persistant side effect except some water retention. I don't knowe if that is from the Tikosyn or is because of A-Fib","none","none","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Cath","London","68","AF","3 months","3 -4 times a day","usually short time. seconds","Rheumatiod Athritis/death of parent","smoke","just been diagnosed","When I am stressed or tired, especially with the pain of the RA.","deep breathing to steady the attack sometimed regulates the heart beat","Digoxin and warfarin plus steroids for the RA,Side effects not yet known","","","","Am concerned as to the long term side effects of warfarin and dioxin--also I question whether the RA which I developed earlier this year is a contrubiting factor of AF. I would like to find out what alternative treatment there may be, as I am not keen on taking prescritive meds",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Dawn","New Jersey","41","Lone Atrial Fib","6","Couple of times a week","Anywhere from a 15 minutes - 4 hours","No major event or illness, onset out of the blue","Fairly good health, light smoker, nondrinker, no other heart conditions","On my 4th different med, last shot before Ablation","No identified triggers as of yet. All episodes are random, no more frequent during the day than at night. ","None","Tikosyn 250 mg AM/125 mg PM - mild Bradycardia events/mild syncope Coumadin - 10mg/15mg alternating days ","Rhythmol SR - mild Bradycardia, fatigue, numbness and tingling Rhythmol - mild Bradycardia, fatigue, vertigo Amiodorone - Severe Bradycardia, nausea, syncope episodes","Not at this writing 11/28/06","May agree to try ablation, EP is trying to convince me this is worth a shot, putting off PM as long as possible.","Learning to cope with AFIB, is a battle in itself, if you can learn to live WITH it, instead of AROUND IT, you have half the battle beaten.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Barb Johnson","Orland Park, IL","71","A-Fib","1 year","almost continuous","--","--","high blood pressure for 30 yrs - no smoking, drinking, etc.","had an ablation and a pacemaker and defibrillator","don't know what started this. All it could be was too much caffeine. But the doc says no.","During the ablation the doc set my pulse at 80 and it hasn't moved from that at all. He said he didn't want to go any lower because sometimes my pulse was as high as 130 and that would be too much of a change.","the side effect I have the most is fatigue and I don't know which med. to blame. Amiodorone Warfarin Coreg Altace Synthroid Furosemide Norvasc Zetia","Previous medications were a variety of blood pressure pills. Also the Zetia for Cholesterol and the Synthroid for thyroid. The rest are all medications they gave me for the A Fib and I hope to get rid of some of them soon!","Two knee replacements and the ablation (which they don't call a surgery, they call a procedure)","Get rid of some of these pills and hopefully the pacemaker and defibillator do their job.","Thanks for the database, it is interesting to see how other people are doing with the same problem.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,1,1,0,0,0,1 "jMcW","NCUSA","81","Afib,pseudomonis,","12+","constant","constant now","?? think it was present long before it was recognized - pneumonia","Poor - Chronic colonized pseudomonis, chronic lung infection, avium bacterium, O2 constant, non smoker","Permanent pacemaker, 2nd ablation performed today- 1st one nearly killed me.","Pneumonia, otherwise currently in constant episode, on 02 constant, ","","Pacemaker implanted August 2006. A Catheter Abalation of AV Node today - Hopefully will eliminate all heart medications except Coumadin","Had ablation by orthoscopic surgery dec 2005 - Hospitalized for 3 months - nearly died - no positive effect and health state is far below that of before surgery. Detection of a swallow problem is the only positive outcome of this surgery and my family recommends EXTREME Caution before having this surgery as a lung is deflated and peumonia is somewhat common Coumadin,Amioderone and 4 others - with every nasty side effect in the book evident. Found DRs unwilling to acknowledge them - very frustrating. Life became mostly misery although i know others who love amioderone. ","1st Ablation Dec 12 2005, Abdominal feeding tube Dec 30 2005 02 march 2006 Pacemaker August 2006 AV NODE ABlation Nov 21 2006 ","hope to actually feel better - and perhaps be allowed back home from Nursing home. I left a healthy 80 year old just shy of 1 year ago and am now a near invalid.","You are the only person in charge of your health despite what Dr.s tell you. Learn all the side effects of every drug and proceedure that is recommended. New proceedures are often exciting and can be effective but understand that you may become a deciding statistic for future reference. Don't expect miracles - Appreciate what you have now - it may disappear tomorrow.",0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,0,0,1,0 "Steve","Surrey","50","Atrial Fibrillation","15+","3-4 weeks spells of events every 2/3 days lasting months","4.5-12 hours","Not known","Reasonable, smoker, moderate drinker","Moderately ill","None","None","Had AF for 15-20 years without fully realising. 4 years ago events became far worse but nothing could be done until they were caught on ECG. Results showed fibrillation with sporadic flutter. Went through complete range of drug treatments to no avail. Eventually had ablation for flutter which minimised symptoms by 40% making life much easier. Recently August 2007 on have been getting events every 3/4 days which are making my life miserable. During event am unable to walk due to interuppted blood suply to muscles. All the usual symptoms but never know when it will revert spontaneously. Unable to work the last few months due to events.","Warfarin, Digoxin, Soltalol, Current Flecainide acetate Bisoporol All usual efffects","Atrial fluttet ablation","","Remember that it is your heart and if you are not happy with anything DO NOT let it go ahead. It seems that atriall fibrilltion cannot be cured only minimised and something like flecainide has serious effects on other drugs which doctors may want to give in the future. Warafin usage in the U.K. is standard practise in a lot of places but if you are not happy with it TELL THEM. My consultant said that at the age of 50 the risk of a blood clot in the brain far outwieghed the benefits of taking warfarin full time . Also was unhappy at being kept at very high levels 4-4.5 for weeks at a time. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Jamie","Cambridgeshire","35","AF","10","Very rare now I am on medication","10 mins to 1 day","None","smoke and drink occasionally","Great! ( Famous last words!)","Tiredness,gardening leaning forward and getting up quickly. I sometimes find my heart beats very hard and strong (not fast)","","Flecanide - Bisoprolol","None","None","To keep going! Enjoy life and to let AF live with me and not me live with it!","I wish i did not have this condition however lots of people have far far worse conditions",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jo","Austin, TX, USA","65","atrial fib","1","had 6 episodes within 3 months","18 hours","too much, too vigorous exercise","excellent","no episodes in 5 months, since I drastically lowered my exercise level","too much, too vigorous exercise--with all but one of the a-fib episodes occurring about 7 hours after my most intense work-outs The only time I had an episode that wasn't hours after an intense workout was after an extraordinarily stressful week. Two of my episodes occurred about 10 minutes after drinking an afternoon cup of coffee, so caffeine may have been an additional trigger.","Dunking my head in ice water seems to have worked the one time that I tried it.","Doctor wanted me to take flecainide and metoprolol. After reading about these and other drugs of these types, I decided not to take them and see what would happen. Because I haven't had any episodes since I stopped exercising, I'm hoping I won't need antiarrhythmic or rate control drugs. I'm on warfarin, though, but considering dropping it. ","","","Gradually increase my exercise level, keeping good records of everything I do. If I have another episode that appears to be related to exercise, I will scale back again.","I believe that we a-fibbers must learn all we can about this condition and specifically about our own condition. This database is a good place to start. If we can find ways to prevent our own episodes, we may be able to avoid the risks involved in drugs and operations. Doctors aren't much help in prevention, as their focus is, naturally enough, treatment after the fact. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Sandy","Kansas","51","atrial fib","1","3 in a year","Had to be cardioverted","Had ohs in 1983 replaced mitral valve","good non drinker or smoker","will always have problem","My trigger points are getting very tired. I haven't noticed anything else.","I was on Sotolol but it was making me very tired and still wasn't controlling it. Then I went on Rythmol SR and this seem to work.","Coumadin 2.5 4 times a week and 5 mg twice a week for life Rythmol sr 425 mg twice a day synthroid .1mg daily premarin .625 mg daily Vytorin 40/10 mg daily calcium 1000mg daily Digoxin only if I need it","Sotolol was causing me to be very tired and it also couldn't concentrate very well.","March 1983 mitral valve surgery replaced with B-jork Shiley Two tubel pregnancys 1995 Hysterectomy 1998 Gallbladder removed 2006 Ovaries removed","To continue to work as a nurse and retire at age 66 so I can travel with my husband","I joined the club to support others and for my on support.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1 "Howard","Wales","52","PAF","7 years","twice weekly up until about two months ago, now about once every ten days","5mins to 10 hours, average 5hours,","divorce and everything that comes with it.","good, never smoked, light drinker, average weight, regular light exercise.","ok when in sinus, lousy when in AF.","Nothing positive but, stress, too much alcohol, too large a meal at anytime, but worse late in the evening, lying on left side in bed, vigorous exercise, e.g. squash, running, etc, - all can cause a bout to occur. Flecainide plus red wine became like flicking a light switch from sinus to AF - I now don`t take either. ","Meds keep it under reasonable control but doesn`t actually prevent bouts of AF occurring. A bag of frozen peas on the back of the neck, or getting into a hot bath can shock me out of AF and back into sinus quite effectively but not everytime. ","5 years on Arythmol as prescribed daily, - two tablets in the morning and two around 6pm. aspirin. No major noticable side effects from the Arythmol, it, at first left a bad taste in my mouth, but I don`t notice it now. An update on taking Arrythmol is that I changed to taking two tablets just before going to bed as most of my bouts of AF come in the early hours and there has been a marked improvement in my condition. I still get bouts of AF but now only about one every 14 days. ","Flecainide worked well for about two years but then stopped being effective. Sotalol did nothing good or bad. Beta blockers had no effect except to slow me down but didn`t prevent AF.","nothing related to AF","To live a life of moderation, i.e. less food, alcohol and stress whenever possible. I don`t fancy any of the surgical options as yet, as the results gained don`t seem to outweigh the risks. Eagerly awaiting a cure.","A recent diet to loose half a stone, unexpectedly reduced the bouts of AF down to about once every 10 days from about twice weekly, presumably as I ate less in the evenings and drank less alcohol overall. Most bouts start in the early hours of the morning and the constant visits to the toilet to relieve the accompanying urination are particularly annoying as my sleep pattern is disturbed. Thanks for an excellent site - we`re not alone. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Charles","Carmichael CA","72","AF","6","Daily","Currently Constant. Controlled by medication","None","Excellent;","Chronic","Unknown","Deep relaxation; meditation; self-hypnosis","Diltiazim: /Mild headaches","I took Cumadin (Warfron) for about two years to avoid stroke. But, the medication caused internal cranial bleeding. Since then I have stayed with 81 mg asprine. So far so good. Also, I took digoxin (lanoxin) for a time. My PCP advised against it. He indicated that there is research indicating digoxin effects the heart walls, making them less flexible over time. I refused amiodarone (cordarone,pacerone)after learning the side effects. I hate the side effect of any medication.","None","May opt for ablation","AF is a mystery for me. It began suddenly and has persisted regardless what lifestyle changes I make. But I am learning how to live with it. Some days are almost symptom-free; others are full of episodes of rapid pulse and mild discomfort. I find that my AF is very unpredictable.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Samantha Powell","Surrey, UK","30","Par AF, Ectopic beats, slight mitral value leak, pulmonary flow murmur & slight mitral value murmur","6","every 1-2 days","varies from seconds to on a off all day","Glandular fever & ME","Non smoker, non drinker, no caffine, good health except AF and ME","trying Flecanide as Bisoprolol became ineffective","Excercise, tiredness, fatigue, bending forward, stress and anxiety, breathing too deeply!","","Flecanide Seeing a heamotoloigst next week regarding starting anti-cogulation","Bisoprol - made my ME worse","Not heart related - 2 c-sections - one in 2003 and one in 2005 and AF got worse after each operation","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Bob (anon)","US","78","AFib",".3","","2 mos, converted, lasted 10 days","","excellent","asymptomatic mostly","?? suspect anxiety","","Few side effects Lisiniprol Digoxin Warfarin","","","2nd try at cardioversion with sotalol","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0 "JC","Lancashire","54","Paroxymal AF","1 and a Half","A 'big' one every 6 weeks","'Big' one - 3+ days","Major stress","Drinker, Diabetic","Not at my best!","Alcohol, heavy meals, fatty foods,stress.","No drinking and small meals","Warfarin - no side affects Beta-caradone - no side affect","Nebivolov","None","To stop getting A-Fib! Which means no or very moderate drinking, smaller meals and more exercise.","I find this very dibilitating when it happens - i am not good at not being able to work and look after my home etc! The sooner we find a 'quick' cure the better for everyone.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Kaoru","Irvine, CA","","Atrial Fibrillation","less than 1 year","","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Teresa (Terri) Pless Brandt","Hesperia Michigan","35 (4-2-71)","A fib with occasional A flutter small leak in mitral valve","Seven","every day","minutes to hours to constant","Endometrosis (reason for af unknown)","Just quit smoking 2 weeks 5'2 133 pounds pretty healthy","just had ablation on 9-28-06","Stress,big heavy meals,bending over,to much coffee and hormone's (always went into afib 5-7 days before my period)","Trying to limit stress the best I can.Quit smoking.","Rythmol 225mg sr, tenormin (lowers my bp to low),aspirin,coumadin, and vicodin for endometrosis pain.","none","Had ablation surgery at Meijer Heart Center in Grand Rapids Michigan by Dr. Bousha Finta. Had all five (got an extra one) pulmonary veins ablated.Hoping it worked. Have had a tough time sense surgery. Had a reaction to general vomited in my sleep and had to be in recovery for 5 hours. Now have dry cough and chest heaviness. No afib though. Just a couple dropped beats.","To live my life and treat my endo (limited on that because of afib).","If you have chronic afib you don't have to suffer. Get a good cardio and fight it.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Ruth","Boston Ma","68","A fib, A tachycardia, high bp, PVCs and PACs both","10?","1 or 2 a day","short","Wish I knew! Not in recent family history","otherwise ok I have mild hayfever type allergy, what I believe to be sensitivities to foods~milk, nuts, sugar and salt mostly","same","Don't know triggers. I awake with the tachycardia sometimes at night","Wish I knew","This is the problem. I don't seem to do well at all on the meds. Atenolol 25 mg worked for many years without serious side effects and then suddenly dropped my bp to 90/40 and sent the pulse into the 40s too. I was sweitched to Labetalol which made me horribly fatigued and feeling a strange inner tremor (feels like a fluttery small motor is running inside my head and body) I switched to a cardiologist at Brigham and Womens Hospital who, I heard, specializes in arrythemias in women. She started me on I Cartia XT 180mg. I feel better than I did on Labetelol, but still the motor and still fatigue but not as bad as on the Labetelol. Taking the drug at night helps. Although older, I have a lot of social and family obligations, chronicly ill husband and 90 year old mother who needs help. I need to feel ok","see above","none","I need suggestions how to manage things. Otherwise, I feel overwhelmed by what needs doing and how I am feeling. No one in my family knows how little strength I have at times and I don't like to complain.","I have been treated in the past for acid reflux with famotidine. After drastic diet changes (low fat) I don't have much acid reflux and don't take it except on rare occaisions. I am currently on Zetia for high cholesterol, which remains high despite eating a 40gm fat/day diet (Husband has chronic pancreatitis, non alchohol related, so I cook very low fat. The doctor who prescribed Labetolol took me off my zetia for a month during which time my total cholesterol shot up (shown in a blood test at the end of that month). So I know where I stand with that!",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Diane","SE MI","50","AF and Flutter, Hypertrophic Cardiomyopathy (congenital)","30?","About every 6 months","Variable - from a couple hours up to 10 days","Pre-wedding stress","Good - x-smoker/non-drinker","Good - waiting to see if ablation done last wee works","Physical or emotional stress, lack of sleep","Reduce stress, get 8 hours of sleep, don't eat junk.","Coumadin Tikosyn 225 mcg Lipitor 20 mg Magesium Taurate Calcium CoQ10 Lasix and Potassium as needed when in AFIB for water retention and subsequent shortness of breath. Toprol 25 mg. as needed to reduce heart rate while in AFIB. ","When I was about 20, my cardiologist prescribed Inderol for my palpitations which I only noticed when I was going to sleep. It lowered my BP too much, so I stopped taking it after a few months. Probably had AFIB then, but they didn't know what it was. Rhythmol 225 SR worked well for about 8 months. Only major side effect was severe constipation. Sotolol didn't work, and was started while hospitalized for a sustained episode of AF in anticipation of a cardioversion that also didn't work. ","Have had several cardioversions in the past - the last 5 were unsuccessful. Had a left atrial radiofrequency ablation 9/06 with Dr. Fred Morady at U of M. He was able to initiate AFIB during the procedure and while they were working, it converted to flutter, and then to sinus. They saw this as a positive thing, and his prognosis was positive. I'm recovering OK except for a small hematoma in my groin. ","Holding my breath to see if the ablation works. Planning to lose 10-15 lbs, eat a lot healthier, stay on supplements, and reduce stress whenever possible. Am hoping to avoid pacemaker, although one cardiologist thought I should have one and a defibrilator because of my family history. Dr. Morady has said it is rare for those who have had my type of ablation to need one. My normal BP and pulse are fairly low, but when I'm not in AFIB, I have all the energy I need for 'normal' living. Can't play tennis or do aerobics any longer, but my golf game has improved. :-)","This has been a real challenge, and the worst part is never knowing when AFIB will start and not go away. This database has been very helpful and I've learned lots of useful things from other entries. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Cliff","London","50","PAF","5 years","About every 6 - 8 weeks","8 - 24 hours","Hypertension","Very fit (except for the hypertension), non smoker, enjoy the odd beer. Have gout but under control and no attack for several months.","Currently in NSR with frequent ectopics.","Eating heavy meals late at night. Too much alcohol","If I have had a late meal I will try to stay awake as long as possible because all of my episodes happen when I am asleep.","Sotalol 80 mg - slow pulse Aspirin 75 mg Valsartan 80mg for hypertension Indapamide 1.5mg for hypertension Allopurinol 100 mg for gout Co Q10 Cherry extract for gout (brilliant)","Amioderone - horrible drug. Took it for about 2 weeks only. Atenolol","None","Changing from Sotalol to Flecainide with Bisoprolol within the next 2 weeks as suggested by my Cardiologist. Cardiologist also suggested a PVIA which I will give serious conseration to if the Flecainide doesnt work.","Whe I first had AF episodes I used to get really worried. Now I see them as a nuisance which can make things like travelling overseas a problem as you are always wondering if the 'devil' is going to show up.",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jim","Arizona","45","A Fib, A Flutter, PSVT","23","Pre 01/06, 1-2x year; Post 01/06, 1-2 months; Post 08/06, every other day.","1-2 seconds, somethings several hours, up to 29 hours","None","Non smoker, non drinker, mild exercise","Ablation for Flutter, (fixed?), getting worse for A Fib, docs unable to reproduce PSVT, think it was misdiagnosed.","Stress originally, now when ever it wants to. Lying down now is also big trigger.","None","Rythmol 325 SR ($$$$) Palpatations, metalic taste, ( Ithink A fib may be getting worse since on it)","Tambocor, Digoxin (nasty stuff!) Beta Blockers, not effective","Ablation for A Flutter","Working with new Electrophysialogist and alternative medicine MD.","Very frustration and depressing, poor sleep as lying down big trigger now.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Barb","British Columbia Canada","63","Persistent Atrial Fibrilation","two","constant","constant","On medication for high blood pressure but controlled","Good","Good but for palpitations, breathlessness, insomnia","None","None","Lack of ability to exercise; consequently experiencing knee and hip joint problems","skin problems, constipation, nightmares, irritability, anxiety, bad taste in mouth","Surgery for ovarian cancer Ablation for Afib","I've tried all of the control medications and none have worked and all have side effects. Failed attempt at curing AF with an ablation. Considering an AV node ablation with pacemaker but I'm not sure that it will work for me","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Mike","Huntsville. AL USA","51","atrial flutter w/ rapid ventricular response","1","multiple each day","minutes now for the most part","hypertension","type 2 diabetes, peripheral nuropathy","recovering from ablate and pace","unknown for sure, too random","still working on this","amiodarone 200 mg x2 daily still adjusting dosage metoprolol 100 mg x2 daily still adjusting dosage digoxin 0.25 mg x1 daily warfarin 5 mg x1 daily still adjusting dosage meds to new to quantify side effects","metoprolol 50 mg x2 daily seemed to lessen severity of episodes for a while","AV node ablation and pacer implant 6 wks ago","Hope to gain control of AF episodes. Hope to return to more sedintary employment so episodes will be less debilitating.","Still have other conduction paths so when in AF random pulses are still getting to ventricles. Doc says I'm in the 5%-10% of patients who have these conduction pathways.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,1,1,1,0,0,0,0,0,0,0,1,1,0,0,1,0 "John D'Onofrio","Boston, Ma","62","AFIB after 18 years of AFIB/cardioversion episodes","2","#2 (5 yrs after #1), #3 (2 yrs after #2), #4 - #14 (1 yr increasing to every 3 months over a 10 year period","see above","possible mild MI","overweight, low HDL, sleep hypopnia","Permanent AFIB","high exertion, a few glasses of wine ","","Aspirin 81mg 1x PM Warfarin Sodium (Coumadin) 5mg 1/2x PM Cartia XT 240mg 1x early AM Niaspan 2.5g 1x PM Toprol XL 50mg 1x AM; Spironolactone (Aldactone) 25mg 1x AM Zocor 10 mg 1x AM Zetia 10 mg 1x AM ","digoxin quinaglute rhythmol","none","wait for a better ablation procedure","Now that I am in permanent AFIB, probably for the rest of my life, and I am prone to stroke, I believe I have no more than 10 good years.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,1,0 "David","Warrington UK","65","Paroxysmal Lone Atrial Fibrillation","Condition in mild form had been there since my late twenties but it became much more agressive 12 months ago.","When on anti-arrhythmic drugs every other day. Now , whilst just on verapamil, once a week","Shortest 2 hours, longest 10 hours","none","non smoker, played sport all my life apart from this last year.","Have daily mini episodes lasting less than a minute and one long episode at least once a week","Lying on left side, sudden bending down, especially after meals, belching, leaning on left arm and sometimes cold drinks."," Have terminated a couple of episodes with exercise and recently have terminated overnight A/F episodes immediately on getting in the shower in the morning.In the main I am just watching my diet and trying not to eat large meals especially in the evening.Have found that soaking in a bath containing epsom salt crystals has, for the moment,increased the time between A/F episodes. ","Verapamil, 3 times a day. Makes me feel lethargic and for the first few weeks caused constipation. Just started warfarin one week ago.","Flecainide, propafenone and sotalol.First two increased frequency of A/F episodes and sotalol, whilst making episodes less frequent took my heart rate down to less than 50bpm.","No major surgery.","I have been put on the waiting list for a PVI procedure at the Cardio Thoracic Centre Liverpool.Update, have just been given a date of early November Update, now 8 months after PVI and so far no more A/F. Would hesitate to say I am cured in case I tempted the 'beast' back but have been in NSR since the procedure and have just had occasional 'missed' beats.","Like most A/F sufferers it took me a couple of months to come to terms with the condition but I am now learning to live with it, although, when in A/F,I can't do anything energetic, hence my going down the PVI route.If this doesn't work the next step is going to be ablate and pace with the down side of staying on meds for life. Update, now off all meds since the PVI and I cant praise Dr.Waktari at the Liverpool CTCL ENOUGH.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,1,1,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "KERI","IL","29","atrial fib, cardiomyopathy, heart failure","9"," chronic","continuous","Urinary tract infection during pregnancy leading to bacteremia","'exertional' asthma","increasing episodes of right heart failure"," Have been chronic afib for 7yr.","none","Aldactone 25mg 2x daily Toprol 25mg daily (unable to tolerate higher dose) Coumadin 5mg daily Lasix 40mg 2x daily","tried numerous other beta blockers flecanide digoxin cardizem corvert nausea, vomiting, hyptension","numerous attempts at cardioversion ablation 1999","am attending school for business degree. would like to have another child in future. scheduled for cox maze procedure with mital and tricuspid valve repair/replacement","I am entering all this information for my daughter. Keri has increasing episodes of fluid retention (seems to corrospond with mensus). She has had multiple hospital stays related to afib. She suffered an embolic stroke 2 years ago, has recovered with only slight weakness to the left arm and leg when tired. She is raising a 9yr old daughter by herself. I am amazed at the strength she has.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,1,1,1,1,1,1,1,0,0,0,0,0,0,0,1,0,1,0,0,1,0,1,0,1 "gabrielle","Phila Pa","50","A-Fib,Lupus Sle, Diabetes, Barretts Esphagus,crest,Sjögren's ,asthma","6 years","every couple of months","1hour to 3 days","fatigue,stress,sickness, bending down, execerise","good","Ill and hate it!","I think my a-fib is activated by foods I eat, salad dressing being one of the things that sets me off. Any type or kind! Also stress and worry and lack of rest.","sleep and try to each all natural foods, unprocessed foods! I have a lot of trouble if I eat out ! Benadryl seems to calm the beast (fast heart beat)","none for a-fib, I take children's benadyl liquid 1 teaspoon when I start feeling the irregular beats start,, that always follows with a-Fib. Warfirin , do you know that this medicine is rat poision?","Ameordorin ate the crap out of my liver,, I was on it for 8 days at 800 mgs a day and it almost killed me. I am allergic to all heart meds beta blockers, calcuim channel blockers and ace inhabitors. I have problems with all of them! Lo press,diggoxion and the like all caused major prpblems. You not suppose to take lopressor or some of the 'blood pressure' meds if you have ASTHMA-- make sure you check and ell the doc if you have ASthma!!!!","2 C-Sections, ovary removed due to pre cancer, endometerosis abdominal surgery, and total hysterictomy appendix included with cervix, tubes,ovary and uterus! ! polp from vocal chords.","Try and stay ALIVE!!!","Does nayone get the irregular heartbeat before they go into a-Fib?",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Sarah D","Reading UK","29","atypical complex tachycardia","1.8","every 1-2 weeks","from a few minutes to hours","stress","heavy smoker, drink occasionally","on medication and managing the problem","Lack of sleep, caffeine and alcohol. Also if I am unwell, e.g. a cold.","Take medication. Also burn aromatherapy oils everyday, ylang ylang slows down heart rate. Don't rush around so much anymore, take things a bit easier.","I take sotalol twice a day and if I am having an episode I take two flecanaide. No real side effects with the sotalol but taking the flecanaide really slows me down. I cant do much after that.","Flecanaide every day at first, then changed to sotalol.","None.","Wanted to have an ablation but the specialist won't operate. I have multiple new cells that are firing and he says he cant get them all and it would take too long. Will carry on with the medication and wait for medical science to come up with a new treatment. Finish my degree this year!!!! ","I don't really think about my condition too much, just get on with enjoying life. The only worry is if I pass out and I am on my own with my two children. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon","New York, USA","57","atrial fibrillation","1","2/year","5 days;1 month","none","good, light drinker, never smoked","fibrillating but heart rate controlled by medication","stress, caffeine, chocolate","","Coumadin (warfarin) Propranolol feel tired but can't tell if this is from the medication or the fibrillation","Coumadin Digoxin (in hospital)","none","hope to be able to take medication to regularize heart rhythm (flecainide?)","I don't know much about this; came here for information",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Anon","Jordan","28","Lone AF","3","once/twice a year","6-24 hours","Panic Attack","smoker","I take beta-blocker (concor)","allergy stress smoking and caffine consumption phobia ","beta-blockers ","beta-blockers ","","none","","I try to breath and relax after it starts and it is effective. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mark","Adirondacks","58","persistent atrial flutter, vagal-mediated","13","varies, every 1 - 3 weeks on average","varies, three hours on average","a long mountain hike","good health, athletic, non-drinker","episodic","fatigue, lack of sleep gastrointestinal upsets lying on left side slow heart rate excessive sugar intake ","","aspirin ","Toprol, Verapimil, Sotalol cannot tolerate beta blockers -- fatigue when exerising ","hernia repair/appendectomy ","more sleep, less stress, maintain vitamins and nutrient supplements, minimize refined sugar intake, maintain regular exercise. May undergo an ablation if problem becomes too frequent and of longer durations. ","It is important to minimize triggers and maintain cardiovascular fitness and good nutrition. If the episodic problem become too frequent and of longer durations, I may decide to undergo an ablation ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Dorothy Freeman","USA","62","atrial fibrulation","4+","veries","were very short but getting longer before controlled","unknown - took many years before diagnosis","","maintenance with vitimin","working in heat, sugar, fatigue","follow recommended vitamin, mineral dosages recommended on lone afibbers site. Use Attenenol when episodes occur","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Pauline ODonnell","Cambridge, MA USA","78","AFib, High Blood Pressure","2","was in constant afib until pacemaker implanted 12/04","","","non smoker, non drinker, very good health, was working part time until the afib started.","the pacemaker is pacing 40% of the time but I am back living a normal life.","","","digoxin .0125 mg toprol 100mg lisinopril 40 mg lasix 20 mg lipitor 10mg coumadin 2.0 mg 4 days a week, 1 mg 3 days a week","amiodarone 200 mg (before pacemaker implant) was never comfortable taking it although my Doctor told me I was handling it well, I was very frightened of all the side effects it had. atenolol 25mg made me dizzy and anxious. It actually put me in the hospital for 4 days in September 2004, because it slowed the heart rate too much. ","12/7/2004 pacemaker implanted by Dr. Stanley Forwand at Mount Auburn Hospital, Cambridge, MA.","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1 "Pam","Dunedin New Zealand","79","17 July 2006","","5 since 17 July 2006","2-3 hours","None","Excellent. 1 sherry, 1 wine per day","Very stressed due to husband's hospitalisation with spinal injury","Not really known","Have been prescribed 25 mg Metroprolol when attack starts. If attack lasts longer than one hour, to cntact hospital.","Metroprolol Aspirin Inhibace Diltiazem","Labetalol (for migraine) .5mg Inhibace ","Right hand for Dupuytren's Contracture","Trying to remain unstressed but this is unlikely in present situation.","Frustration as before all this happened was very fit, had an excellent diet, some alcohol although I feel it was a reasonable amount, took regular (daily) excercise.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Joe B.","St. Louis, MO","43","a-fib","10","depends, at times every day","varies - longest was 36 hours","none","smoked for a few years in college, was a weekly drinker (occasionally heavy), jog 3 times a week - 2 miles each time.","after several weeks of frequent episodes, I recently went on Tykosyn. This hasn't worked either.","Not sure. Believe drinking and stress. Also possibly lack of sleep and dehydration. Truthfully I think if I avoided all these things I would still have some a-fib. ","none. I have stopped drinking caffiene and alcohol but that hasn't helped.","Tykosyn - no side effects yet. Also a daily aspirin. Also taking cardizem again and recently started coumadin in preparation for ablation","Took cardizem for 7 years. Kept the a-fib in check for 6 years but also caused dizzieness due to low heart rate. Eventually this did not control the A-Fib. Feel much better in general since I stopped taking it, but having more A-Fib.","Only a pyloric stenosis when I was 5 weeks old. ","Ablation since Tykosyn doesn't seem to work.","Wish I really knew what caused this. Would love to be off the drugs. Tired of feeling dizzy. I am worried about long term effects of ablation, as this is a fairly new procedure.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "mary","indianapolis, in","53","atrial fibrillation","","all the time","all the time","none,","over weight, , had a stroke in april.","on medication","WHEN I lift something heavy I can feel it coming on","Don't know","lipitor, altace,toprolxl,lanoxin,coumadin,norvasc something makes me light headed. ","none.","none","I want to feel a lot better than I do.","I can't live the way I feel. Something has to be done. I'm light headed when I stand. I'm seeing an EP.I'm hoping he will make me feel better real soon.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1 "Anon","Las Vegas, NV","52","Afib","15","Once Monthly","36 hours","None","overweight","Afib getting wosre","Bending over, Drinking lots of ice water after exercise","Light exercise when I detect missing beats.","Rythmol, Toporol, Coumidoin","","None","Considering Mini Maze","Rythmol worked for ~5years, but not any more. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "peter","athens greece","46","recurrent AF","3 months since may 2006","two in may","7/1 day respectively","prob holiday heart-golf holiday with lots drink/eat","non smoker,regular drinker but not excessive otherwise generally have been in good health","currently no reoccurrence,but am teetotal at moment and on drugs","believed to be alcohol,although maybe maybe vagal as had far more food that i would normally have.","first eposide was cured by iv drug after 6th day in hospital (believe called angoran but is maybe local greek name).one week later back in again and again iv drug restored sinus rhythm after 22 hours.","on propafenone 150 mg 3 times daily on sintrom (blood thinner) 2mg daily on tildeum (diltiazem hydrochloride-calcium channel blocker 90 mg twice daily coversyl (perindorpil-ACE inhibitor) 2 mg once daily had been put on diaretics but saw second consultant who said not necessary if no swelling in ankles/wrist) heart ejection rate was 48 pct so first doctor prob being bit too cautious. currently fortunate not to have any side effects ive noticed although feel need to change my glasses perscription as propafenone has maybe slight side effect there.?? ","first doctor recommended soltalol after 2nd episode but second consultant said should have been monitored on it first and bad side effects (as i see from this site) so put me on propafenone which much more tolerant. ","appendicitus in 1972 abcyss removed in 1986","have twin boys aged one so want to remain a fit father.am doing all things in moderation at moment. also to keep getting opinions as feel that each consultant has different ideas and new methods coming in. ","was quite shock to system when first occurred as couldnt understand why me,having been non smoker always thought my heart would be ok.(father had heart attack at 50 as was smoker).now see sometime no real reason for it and affects people in different ways.feel these sites/resources are useful as need to build knowledge so can question what consultant say and not always meekly go along with what they recommend.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John Doe","Alaska","51","Afib & Aflutter","2","chronic",">12 hr","Lymphedema","Morbid Obesity","Morbid Obesity","Chocolate Caffiene Lying left side Physical exertion ","Use of nitro before exertion lying on right side","acebutolol - lowers PR to 40-50's verapamil - limited effectiveness through time - short term memory loss with high dosage","cardizem - short term memory loss, limited effectivness","None","Weight loss attempt","Thanks for the site.",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","Edinburgh UK","50","Paroxysmal Atrial Fibrillation","3","once every 3 months","12 hrs to 1 week","Viral Flu","Obese ex drinker and ex smoker","managing","eating Sleeping on left side caffiene exercise light exercise after heavy exercise Tension","combination of: Increased dosage of Beta blocker, taking Flecainide when event occurs, exercise always seems to precede going back into sinus rhythm.","Bisoprolol/tiredness Lisinopril.?, Aspirin/? Flecainide(only when event occurs)/sickness, flatulence,fatigue","Bisoprolol/tiredness Lisinopril.?, Warfarin/lethargy ","None","Loose weight and use the flecainide when I have an episode as this shortens its duration significantly. Keep off caffiene in all forms.","I was diagnosed with atrial cardiomyopathy when I had first episode, but this has been cured. I had a year without an episode up to April this year (2006). I have had PAF recently which the flecainide seemed to put a halt to in combination with exercise & an increase betablocker dose( 10mg from 5mg per day). I think this could be due to drinking too much tea, which I am now stopping. I had already given up coffee. ",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Chris","Wales","66","AF (paroxsysmal )and A flutter , type unknown","2 years","2-5 episodes a week at present","momentary flutters, 3-19hrs in AF","Stressful period husband having heart surgery .","Good, very active. Asthmatic as a child, non smoker, little alcohol","Trying to find a cure! Flecanide doesn't seem to be working after 10 days","Stress and anxiety main triggers. Social occasions and excitement. Pushing myself physically Caffeine and Alcohol....perhaps sugary foods? Getting too hot or too cold.","None that are consistent. ","Flecanide 100 twice daily but may have to stop as it seems to be making things worse. Aspirin 150, 300 during an episode. Do not want to go on Warfarin as I work with animals outside a lot. Simvastatin EPA/DHA oils, TMG, Coenzyme Q10 Multi Vitamin Vitamin E 400 Vit C, Garlic Magnesium 400 Folic Acid and other B vitamins","Hawthorne and Taurine when I first started AF. They seemed to help a lot but Istopped taking them when I tried a supplement regime as described by Patrick Holford to lower Homocystine levels. I have successfully lowered levels to acceptable level for my age but still want to lower it further. I am still taking these supplements as shown above. Sotalol when I was first diagnosed...Terrible, total loss of energy and fuzzy mind Dijoxin very brief as I had a visual and balance reaction.","None...just tonsils as a child","Try to beat it and not let it get me down. Cardiologist thinks I might be customer for Pulmonary Vein Ablation...Would like to avoid it as success rate not guaranteed. There might be other options in a few years if necessary Give myself breaks and try to slow down a little. Try to avoid stress and pushing myself physically but important to maintain physical exercise and fitness. Come off Flecanide Try to cure myself with good Nutrition and supplements. Experiment with lowering food intake of high glycaemic foods. Find out whether I need to increse potassium? and generaly be more specific with supplement dosages Have my Thyroid checked.","I have found AF takes over the organisation of one's life a bit and this can be frustrating but I want to not let it interfere too much with my quality of life....though it does! The risk of stroke worries me more than anything and I find that really scarey. My father had AF and started as I have in his sixties. He was put on Dijoxin. He died of a stroke when he was 74. I hope I will be able to live longer!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Marion","Canada","67","paroxsymal/afib/flutter","4 yrs","recently been in fib for 2 months. On new meds so the jury is out!","Can be an hour or two or longer - days","Breast cancer 2000. High blood pressure for 25 years.","non smoker","hopefully cured","Mostly when just laying quiet or to the extreme when stressed out. No more wine at the dinner table.","","Sotalol 160 mg 2 x day - tired most of the time. Zestoretic 20/25 mg Lipitor 10 mg. Adalat 60 mg. Potassium Warfarin 3 mg.","Metoprolol - very tired - headaches daily. Did not lower my blood pressure at all. Diltiazem gave me a rash - had to discontinue. Propafenone - had atrial flutter while on those meds. Digoxen had no effect Verapamil had no effect ","No surgery for this as yet.","Trying to stay on meds as long as I can - before I have to have any procedure. Trying to avoid going on amiodarone - maybe unavoidable if I run out of options.","I am trying to learn more about this problem and coming to this website certainly is helping. I realise it an illness which is very unpredictable and hard to find the right treatment for each individual - we can only hope in time someone will put their finger on the right button and then we can all breath a sigh of relief as we slip back into NSR.!! ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Ian Degarnham","Odessa, Ukraine","56","LAF","16","every day","1minute to 5 days","asthma","good, non smoker occassional drinker","waiting for a second ablation","food, stress, illness","ice, resting, drugs","warfarin","beta blockers...make me miserable.","one ablation April 2006","second ablation July 2006","nil",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,1,0,0,1,0,0,0,0,1,0,1,0,0,1,0,0,1,1,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Dave","San Francisco","69","AF","7","5 months","a few hours to a few weeks","Pigging out at buffet restaurant","Very good except for hypertension","Still get incidents.","Pigging out, eating late, drinking caffeine, or stress.","Avoid the above","atenolol 50 mg.day, digoxin .25 mg/day, lisinopril 40 mg/day. ECASA (enteric coated acetylsalicylic acid) 81 mg/day","amiodarone--sensitivity to sun","None","Would like to find a cure. Dr. wants me to take warfarin but I don't want to.","Incidents always start in the middle of the night and seem to stop sooner now. In the past I took amiodarone for weeks, was electrocardioverted, they stopped spontaneously, or I used the Valsalva maneuver.. ",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "Betty Jansen","Leiden, The Netherlands","Born 1962","AF & AVNRT","since 1988 AVNRT/ since 1998 AF","AVNRT 2 or 3 times a year / AF also","AVNRT less than a day / AF sometimes needs cardioversion","Cardiac surgery in 1972 due to congenital heart disease","Good","After MVR & MAZE still paroxysmal boosts of AF","AV-nodal reentry tachycardy (AVNRT),infection or flu (propbably higher CRP-level than normal), overactive exertion especially after meals, fatigue.","Staying calm after meals, no bike riding in stormy weather after meal with alcohol. I need to prevent getting ill or cathing a cold. I need enough rest and sleep at night.","Flecainide and metoprolol if needed. No noticable side effects. Coumadin (in Dutch: Marcoumar)for anti-coagulation. I am managing the whole thing myself at home. Things are going very smoothly.","I tried all sorts of anti arrhytmica. In the end none of them stopped AF from reoccuring. With verapamil ( calcium antagonist)I had thick legs and feet during high temperatures.","1972: ASD I & II VSD cleft mitral valve. After this operation I could lead a perfectly normal life. 2003: 2 ablations of the AVNRT, both without success. 2004: Mitral valve replacement & Maze surgery on left atrium (the maze was not possible on the right atrium due to the many adhesions I had after the first operation). Since this operation I have had 3 cardioversions but AF episodes are much milder and shorter. My left atrium is enlarged and that is probably why the maze did not completely worked out for me.","Since 99% of my AF episodes are triggered by the AVNRT, my EP will probably later this year try to ablate the extra bundle near my AV-node again.","Although the maze surgery was not completely succesful for me, due to my congenital heart disease history, I recommend all people to consider this operation. Quality of life certainly increases and risk for complications, like stroke or heart failure decreases.",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,1,0,1,0,0,1,0,1,0,1,0,0,1,0,0,0,0,0,0,1,0,0,1,0,1,0,1 "David","Exeter, UK","56","Chronic AF","1","Continuous condition","Continuous","Hypertension thought to be root cause","Good health, fit, good weight, non-smoker, occasional beer","Controlled BP; constant AF","Hypertension; following CV experienced occasional 1-off AF attacks, always at 5am, but returned to NSR (except the last time) ","","Ramipril (10mg to control BP). No side effects but not convinced of effectiveness Amlodopine (10mg to control BP - Calcium channel Blocker). No side effects - effective in reducing BP (200/115 to 120/78). Atenolol (25mg low dose beta blocker) helps reduce oxygen deficit but very cold fingers/toes, ankle swelling. Warfarin (4mg anticoagulant). No side effects. General lethargy probably due to one or more of these meds. ","Digoxin, gave me cystitis-like symptoms, night sweats","Cardioversion March 2006; stayed in NSR for 8 weeks","Repeating cardioversion. With NHS meant 6 month wait so paying to go private (planned for July 2006). Not put on anti-arrythmics after first cv, plan is to start after next cv. If cvs not long term effective then consider PVA. ","Find the AF a discomfort and sense I'm only operating at 70% capacity. Persistant feeling that my heart is racing slightly; get breathless and tire easily. In NSR felt great. ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "ANON","Albany, NY","58","Lone AF","16","for 1st 15 1/2 had only four lasting over 2 hrs. Now 1 x week ave","Most ave 1 hr, have had 6 lasting 8 to 14 hours in the past 16 years","none","good health, overweight, quit smoking 14 years ago (25 pack years) Sleep apenia (mild)","Fair amount of ectopy some runs of AF.","Alcohol, hard workouts at the gym, stress, sleeping on left side. ","Moderate workouts only, sleeping on right side, xanax when ectopics are frequent. ","Tikosyn, Metoprolol, Lipitor, Benadryl for sleep, xanax od prn. Asa 325 mg OD. Less energy, dizziness on moving in circular motion. Difficulty falling asleep. Sweat easily. Esophageal reflux at times","flecainide no side effect noticed","Emergency appendectomy, polyps of bladder removed, nasal reconstruction","considering either a PVIA or a Wolf Mini Maze","Tambocor worked beautifully untill 6 months ago. I was on a home monitor an a 13 beat wide complex tachycardia was detected. Since then I was tried on Sotolol, which failed to prevent AF, and now on Tikosyn which isn't doing a very good job.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "MIKE PETTEE","WESTPORT, CT","77","ATRIAL FIBRILLATION","8 YEARS WITH NSR IN BETWEEN","FIRST CV IN MAY 1998 PLUS PACEMAKER IN MAY 1998; NSR TO 2002 & CV #2; NSR TO FEB 2006 & 3RD CV; NSR TO APR 2006 & 4TH CV; AF AGAIN IN MAY 2006 NO CV","SEE ABOVE","COINCIDENTAL: PROSTRATE CANCER TREATMENTS IN 2002","EXCELLENT","IN AF NOW","I WAS A COMPETITIVE SWIMMER FROM COLLEGE IN 1951 UNTIL 1987. THEN SWITCHED TO COMPETITIVE ROWING. CONTINUED ROWING WITH PACEMAKER BUT I HAVE STOPPED RACING AFTER LAST AF IN MAY 2006. I STILL ROW - LIGHTLY. MY TRIGGER BELIEF: PHYSICAL STRESS WHEN PERFORMING MAXIMUM PHYSICAL OUTPUT (E.G. MOVING FROM AEROBIC TO ANAEROBIC WORK) WHICH LIKE THE FIGHT/FLIGHT RESPONSE RELEASES ADRENALIN AND OTHER STRESS TRIGGERED SUBSTANCES WHICH THEN TRIP ME OUT OF NSR. THIS HAS BEEN A CONSTANT PATTERN FOR EVERY ONE OF MY NSR TO AFIB EVENTS. ","I SUPPOSE AVOIDING MAXIMUM PHYSICAL OUTPUT, BUT ONE CAN'T VERY WELL RACE COMPETITIVELY UNDER THOSE CONDITIONS. SO . . . I'M IN AF WITH CARDIOLOGY FOLLOWUP EVERY 60 DAYS AND PRIMARY CARE GIVER FOLLOWUP EVERY 90 DAYS.","COUMADIN (WITH INR TEST EVERY 2 OR 4 WEEKS, DEPENDING ON READING). 20 MG LISINOPRIL (ZESTRIL). 0.125 MG LANOXIN-DIGOX. AND 0.4 MG FLOMAX (FOR POST PROSTRATE CARE). SIDE EFFECTS: WITH COUMADIN-NATURALLY- I CUT & BRUISE EASILY. ","NONE, REALLY","SEE PROSTRATE TREATMENT ABOVE. SOON: REPLACEMENT OF BOTH KNEES.","MONITORING. LET'S SEE WHAT DEVELOPS WITH MEDICATIONS AND ABLATIONS. NO RUSH. CONTINUE EXERCISE BUT WITHOUT STRESS OF MAX OUTPUT RACING.","A LONG-TIME (AND AGING) ATHLETE WITH AN ENLARGED HEART. MY CARDIOLOGIST & THE THAT PRACTICE'S ELECTROPHYSIOLOGIST RECOMMEND AGAINST CURRENT MEDICAL AFIB PHARMOCOLOGY AND CURRENT ABLATION PROCEDURES. WE WILL CONTINUE TO MONITOR.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,1,0 "Ron J","USA","58","lone AF (paroxysmal)","17+","2 or 3 / year","4 to 96 hours","none","smoked 1 pack / day up until 5 years ago","hopefully cured after an ablation in February","alcohol, stress","","325mg x 2 Rhythmol 25mg Toprol 5 mg Warfarin No noticeable side effects","Digoxin - frequent PVC's Atenolol (25mg) and Tambocor 100 mg x 2 frequent PVC's and syncope when converting to NSR","Gall bladder removed in September 2005 PVI Ablation in February 2006","I hope to be taken off of meds and maintain NSR, ie, cured.","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Gerard Slattery","Ireland","44","permenant atrial fibrillation","12months","Do not suffer episodes its there all the time with different symptoms .","Variable","Shortness of breath but I put it down to lack of exercise, some palpations I put that down to stress.","Non-smoker ,Love a pint of Guinness,suffer from gout ( 4 bouts yearly)","Fatigue in the afternoon and after meals,due for first EP visit June 2006.","A stressful event 12 mths ago could have sparked something,I had some dental work 12 mths ago and am currently looking into the dental fillings as a possible trigger."," I cut back on the pints to just 3 a week from 12 ,avoid stressful situtations and cut back on the hours I work.","Emcor 2.5mgs,Tritace 5mgs,Warafin 6mgs.The side effects vary and I'm not too sure if its the a-fib or the meds. I'm definitely lacking in energy ,Fatigue especially evening, Light headed after lying down for a time,sweating after little exertion,shortness of breath,feet can get very cold even numb in colder weather,indigestion and heart burn after certain foods.","Did'nt take any meds previous except Difane for the gout and the odd tablet for a cold ,no side effects.","Appendix removed,surgery on a smashed wrist after a hurling game.None so far on the above condition except an angiogram.","Planning on another attempt at Cardio--version (1st one failed).Meeting an EP for the 1st time 26th June.Hoping to get back to NSR and will have ablation if I'm a suitable candidate.","Quality of life has changed some what,I'm a self employed Electrical contracting engineer with a staff of eight to look after as well as a wife and 4 children 2 of which are school going , 2 out working.I have a positive view and consider myself lucky that this is an illness which I can cope with .I'm generally in good health and know alot of people worse off than me.I play music twice weekly and this helps to concentrate the mind and helps me relax.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bob Weinberger","Oregon, US","65","Afib (persistent)","3","constant","until cardioverted (sometimes weeks)","suddenly stopped 100mg/day altenolol - 2days prior to first episode.","smoker ( quit 7/2005), overweight","semi cured","none apparent","altenolol, sotolol","warfarin, cardizem, lasix, zocor, acupril, potassium suplement, aspirin. some shortness of breath - can't tell if associated with any specific med.","Amiodarone - blurred vision, sensitivity to light, did not stop afib. Sotolol - slight bradycardia, prolonged Q-T ratio. Altenolol - shortness of breath, dry cough","ablation on 3/2/06 @ St. Alphonsus Hosp., Boise, ID. Dr. Karl Undesser. Alot of afib for 2 mos. following procedure. - needed to be cardioverted from one episode that had lasted 3 weeks. Have self converted from all subsequent episodes (never ever self-converted prior to ablation). After the first 2 mos. had a month of uninterrupted NSR. Subsequently have had episodes of afib lasting from a few minutes to 6o+ hrs. Have started taking a 50mg altenolol whenever afib starts & that seems to stop it within an hour or so.","In October will consult w/ Dr. Undesser on need/possibility of second ablation.","Over weight.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Jeff Rushton","Derby UK","59","Paroxsymal AF","c. 8 years diagnosed but a long time undiagnosed","irregular, maybe 3 times a month","12 hours or linger; 1 episode lasted 2 days; 1 episode caused serious chest pain and shortness of breath","none that I am aware of","stopped smoking >30 years ago (ran 2hr 44 marathon since); drink immoderately","","None that I am aware of but occasionally episodes are triggered by a cough. Have had a number of high stress incidents in recent years and am convinced that stress doesn't trigger an episode.","none that I am aware of","Propafenone (Arrythmol) 300mg 3 times per day; reasonably effective but doesn't stop episodes. Bisoprolol during an episode Aspirin","various beta blockers (no effect);disopyramide; rythmodan (worked for a long time) Don't want to 'progress' to anioderone warfarin ","nothing relevant","Am considering PVI Update 24/10/06: Underwent PVI on 7th at Glenfields Hospital (Dr. Stafford). Quite a daunting procedure but certainly didn't hurt as much as I was led to expect. Will have a good idea after three months if it's been successful. It may be of interest to others that I exercise really hard on a bike (though not when I have the symptoms). I can cycle at 75% of max heart rate for quite a while and can work my heart rate up to 90% max on a climb (I have a polar heart rate monitor). I'm convinced that exercise isn't a trigger.","When I'm not having an 'attack' I wonder what I'm worrying about, then I have an attack.......... Don't want to exaggerate the effects, but during an attack it's really unpleasant. Think its probably worth trying PVI as I don't want to deteriorate or have to start on warfarin again. HAD PVI PROCEDURE OCTOBER '06; NOW DOWN TO ONE 6TH OF ORIGINAL DOSAGE OF PROPAFENONE AND INTEND STOPPING IT ALTOGETHER IN TWO WEEKS. NO SYMPTOMS AT ALL SINCE HAVING THE PROCEDURE. VERY OPTIMISTIC THAT IT WAS A COMPLETE SUCCESS. THE PROCEDURE IS UNCOMFORTABLE BUT NOT AS MUCH AS I HAD BEEN LED TO BELIEVE, AND ONLY INVOLVED AN OVERNIGHT STAY IN HOSPITAL. ",0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Denny","Tampa, Fl","51","af","5","2-3 times weekly","2-3 hours","none","good","waiting for PVA on several meds","don't know","","cardizem toprol-depresssion tambocor-fatigue-slow heart rate lanoxin coumadin ","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Herb","Yokohama, Japan","72","Atrial fibrillation and flutter","12","1/week","1-3 hours","None","Non smoker and drinker","Normal","emotional stress or physical overexertion heavy meal gaster discomfort especially diarrhea lying on the left side Aspartame","vegetable juice (potassium content > 500mg/200cc/day)","cibenzoline 300mg/d bisoprolol 2.5 mg/d digester","1. flecainide (150mg/d) with propranolol (30mg/d) was very effective to prevent episode for 4 years long 2. flecainde (150mg/d), bepridil (100mg/d) and propranolol (15mg/d) was not effective 3. pilsicainide (150mg/d) with bisoprolol (2.5mg/d) was not effective ","1. Oct/2001 pulmonary veins ablation by thermal balloon catheter. Few hours after the surgery fibrillation and flutter occured. Result was bad. 2. Nov/2001 ablation for flutter. Fibrillation and atypical flutter were occured soon after the surgery. 3. June/2004 3 pulmonary veins were isolated by catheter ablation and things got worse especialy during the 2 months after the surgery. Frequency and duration of the episode increased 10 times as before the surgery. "," Looking for a skilled physician for the ablation ","Follow up data for the pulmonary veins ablation will be needed.",0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","Taipei","38","Suspected Lone A-fib","3","Originally monthly, now daily","10 mins to 2 hours","None - Monday-morning stress maybe?","Former smoker, very occasional drinker","Variable - currently in good health","Lack of sleep, stress, heavy meals, coffee (regular and decaf) predispose me toward attacks. Highly vulnerable for up to three days following drinking of a few units or more of alcohol. Heavy exertion (running, climbing stairs, lifting heavy weights) will also trigger a bout (these are the worst kind because a-fib wont allow my body to recover from exertion). Confined spaces (packed bus or aircraft cabin), stifling humidity and high ambient temperatures also seem to contribute. Of all foods, only pizza seems to reliably set it off.","Adequate sleep (nap whenever possible), cool temperatures, low humidity, avoiding excercise like stair and hill climbing. ","None","Propranolol and Nadolol, both of which worsened the condition. ","","None - awaiting further deterioration before doctors will take any significant action.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Tish","USA","53","Peroximal atrial fibrillation","1","with stress, varies, maybe as freequent as every 2 weeks","10 minutes to 4 hours, never over 4 hours","hyperthyroidism","not great, have hypoadrenia, which I am sure is ultimate cause of events","unable to excercise or have too much stress. Otherwise I am ok","--Work stress and the feeling of needing to hurry lasting a day. Usually accompanied by not eating on time. --Any physical activity or exposure to heat beyond my adrenal capacity and in which I do not take enough hydrocortisone for. If I guess wrong on how much cortisone I need for the activity or heat, then I will get a-fib within the next 24 hours. --Cold drinks - only when accompanied by stress prior to having the drink. Otherwise in low stress times I can drink cold drinks, no problem. --Diarhea and intestinal inflammation from illnesses lasting more than two days. --Caffiene free diet sodas seem to very slightly worsen --Too many sweets eaten druing times of stress will increase my likelyhood of having a-fib ","--Taking enough hydrocortisone for stress at the right time or while I am having the stress. --Avoiding stress, physical or mental. --Recently I have discovered that 1/4 teaspoon of salt after strenuous activity or excess heat exposure helps avert events and makes me feel better. I cannot tolerate any potassium supplements without getting diarhea. I also will become unwell, develope lots of tachycardia, and not sleep well with the use of magnesium supplements. My research on this indicates that those with low adrenal function suffer from a build-up of potassium and magnesium and loss of sodium. Increasing sodium also lowers aldoserone production. --Avoiding any hormones such as estrogens (plant of natural), progesterones (plant of natural) and DHEA. --Staying away from diet drinks and too much sugar or simple carbohydrates helps a little. --Avoiding wheat. I am a celiac and wheat exposure sets me up for an event with any other little trigger. --Avoiding anything that causes intestinal inflammation. --Wine can trigger it if the conditions are right, meaning if I have had stress prior to drinking it. ","I am on no prescription medications. I refuse to take them. I use herbal ACE inhibitors, aspirine, Taurine, L-arginine and 800mg of natural vitamin E only when I have an a-fib event. None of these help end the event more quickly or in any way make it better. They do calm me some. The ACE inhibitors seem to make me more likely to have irregular heartbeats the next day. I just do it out of desperation I think. I take the aspirine and vitamin E to thin my blood to help prevent stroke during an event. I take 400 to 800 mg of vitamin E daily and when I have a-fib, I add another 800mg. Over 2000mg of vitamin E daily works as well as Wafarin according to my research. Recently, I have discovered that taking salt at the first signs of heart irregularity that preceeds a-fib seems to stop it before it developes. ","ACE inhibitors. I developed hyperkalemia from several weeks of use of ACE inhibitors. Now, cannot use them for more than a few days without developing tachycardia and other problems from a build up of potassium. Also, I had trouble with my blood pressure going too low (100/50) and I do not feel well at all with low blood pressure. Beta Blocker. I abandoned this drug after reading that it could make Vagal type a-fibbers (me) become permanent a-fibbers. I never felt well on this drug. It made me ill and unable to think and do my work. I do not have high blood pressure. It has always been 120 over about 75. My blood pressure went too low and I felt awful. Digoxin. I abandoned this drug after learning that it is totally discreditied by research and is dangerous. I was not on it long enough for any real side effects.","I had abdominal surgery for uterine fibroids, but still retain my uterus and ovaries. The fibroids were caused by undiagnosed hypothyroidism. I've had surgery for cateracts. I think this is due to oxidative stress from long undiagnosed hypothyroidism and celiac disease.","I plan to continue to research adrenal function and electrolyte balance and try to find ways to improve my adrenals function and get off hydrocortisone. I do not have Addison's, but have low function. My adrenal situation underlies my a-fib. I am sure of it. If over the next years I am unable to find some solutions and improve my adrenal situation and if my a-fib worsens, then I will probably seek ablation in India. I currently do not have good insurance and they will get out of anything I try to do here in the US or pay next to nothing. So, I have limited options at this time.","I opted to not take prescription drugs for my condition. I do not have any heart disease that was found. I found a couple of studies showning that those who took no drugs tended to fare better in the long run. I try to address the stroke risk with vitamin E and aspirine used only when needed. I believe my situation is different from the vast majority of a-fibbers in that I cannot tolerate potassium or magnesium supplements of any kind. I do better supplementing with sodium, which would horrify some I am sure, but makes sense when you know my adrenal situation. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "rob a","southampton uk","42","afib","4 years possable more never really knew","1 week depending on circumstance may be longer","10 hours about","none","no","waiting for the next attack","over eating lots of chilli (spicy food) being over weight i think not to sure","dont eat before 6 small meals a day ","stop taking sotolal warfarin omperzole","none as of yet not to to sure on the beta blocker though, stop taking them and it seems to settle the heart down at night","none","get on wth my life and dont let it get me down","I feel there is somthing that agravates it not quit sure which as doc dont seem to care another number etc at 42 i just got it early than most",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "willy","vermont","63","AF","3","1YR BETWEEN 1,2 3 NOW EVERY THREE WEEKS REGULAR","FROM 4 TO 12 HOURS","VARIES","GOOD, NON SMOKER FROM 35, DRINKER NOW STOPPED","MEDS FOR HI BLOOD PRESSURE, COLOSTROL","EXERCISE FOLLOWED BY ALCOHOL, EXERCISE WITHOUT FOOD, RESTING AFTER EXERCISE WITH SUGERY DRINK, ","","LOW ENERGY ","NONE"," ","KEEP ELIMINATING THINGS THAT TRIGGER AF","IF AF OCCURS AT NIGHT, MEDICATION AND SHOWER AND MOVING AROUND IN AM STOPS AF ON FIVE OCCASIONS. I CHANGED MY DIET IN JUNE TO TRY TO GET BALANCE.I CHECKED AND WAS ACID, ATE STUFF TO GET MORE NUTRAL. HAD LAST AFIB ON JUNE 16 AFTER HAVING THEM EVERY TWO WEEKS THIS WINTER AND SPRING. LOTS OF EXERCISE THIS SUMMER AND MEDS GOT BLOOD PRESSURE DOWN. I FEEL A LOT BETTER BUT SUSPECT THAT AFIB WILL RETURN SOMETIME THIS WINTER WHEN I DON'T EXERCISE AS MUCH. STOPPED ARTIFICIAL SUGARS IN JUNE. USE RAW HONEY??",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Rachel A","Philadelphia, Pennsylvania, USA","47","AFib & Diabetes","1 month or more","first one... and it's still continuing","1+ months","???? Don't know what's starting this","Asthmatic, obese, found out I'm diabetic when I was hospitalized","still experiencing AFib","I don't know","again, I don't know","see list below. Because of coumadin, I can't take NSAIDs... and my arthretic back is impossible without the ibuprophen and arnica! OUCH!","still on original regamin","tonsils","cardioversion, soon. Deal with diabetes because at least there's something I can do to address that...","I'm feeling really helpless about this AFib. Seems like there's nothing I can really do for it, and taking the coumadin is really limiting what I can do because of back pain. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon","USA","59","ATRIAL FIBULATION","1","4","3-4 DAYS","LATE NITE MEAL RED WINE ,HOT PEPPERS","NON SMOKER,LIGHT DRINKER, 140/80 BP 200+ COL. NO HEALTH PROBLEMS","NO AFIB","DRINKING, HOT PEPPERS,LAYING ON LEFT SIDE","","WAYFARIN,CARDIZEM,LOPRESSOR,ATACAND,ASPIRIN- WAS TAKING ZOCOR-IT CAUSED TOES AND BALL OF FEET TO SWELL","NONE","NONE","PURSUE OTHER TREATMENTS","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Frenchgoose","Buckinghamshire, UK","56","Paroxysmal AF","18 months but on reflection about 16 years of short flutters","Single flutters up to 6 times a day, mini AFs lasting up to 30 secs about once a day","One lasted 5hours 18 months ago, now about 30seconds","controlled high blood pressure, gall bladder removal 24 years ago","Never smoked and stopped drinking after first long AF.","Stable I suppose and dreading any progression!","Getting overtired, on starting exercise.","Not getting too tired","Amlodipine and Valsartan and aspirin","","Gall bladder removal. Varicose vein removal","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Johncop","Essex, England","54","PAF - paroxsymal atrial fibrillation","1","infrequent - first 5 years ago then 2 in last six months","several hours as much as 6 hours","stress","non smoker, asthmatic, reduced drinking now","on Felcanide 300 mg seems to be okay - urinate more often (especially in night) visual disturbances","alcohol - red wine mostly and sleeping on left side seems to bring awareness","none really. Tried nose blowing thing - sometimes walking on cold tiled floor and drinking glass water helps.","Flecanide 300 mg , Adizem XL (high BP) Aspirin 75 mg. Only side effects some disturbed vision and excess urinating at night","none","gall bladder, septoplasty","try and not get overly worried and paranoid! It is a distressing condition but I am no where near as bad as some on this site. Hopefully they will find a cure once they stop wasting NHS money on none life threatning cases! ","Thank goodness for this excellent site. Notice several patients on site have Asthma - wonder if cause may be related to stress/lifestyle we now have with ever increasing allergies i.e. pollution? ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "rvmote","Waikato New Zealand","51","chronic atrial fibrillation","1","continuous","","emotional upset","good","continous atrial fib asymptomatic","alcohol, emotional upset","two previous episodes which came right by themselves","warfarin, 1/2 betaloc 47.5mg, low dose asprin 100mg","","","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Sam","United States","40","Paroxysmal atrial/atrial fibrillation","1.5","daily","1minute to 1 hour","none known","fair, bit out of shape","stable","Caffine, alcohol, stress, allergies","Only medication","Propafenone 450mg - bad taste in mouth ALL The time Toprol 25mg - tirednes, low blood pressure","Flecainide 100mg- blurred vision, dizzyness, no energy ","","Just started Propafenone in hospital this May. Next option Dofetilide or ablation.","Very frustrating diagnosis- I did not even know I had it until an EKG. All down hill from there.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Tim","Minnesota","45","AF","6","3/yr for 5 years, then 10/yr lately","12 hours to 3-4 days","big meal at Emeril's in New Orleans","good, nonsmoker, very infrequent alcohol, genetic hypertension","constant fib converted to chronic flutter","sleeping on left side, moderate exercise, flutter starts about 12-18 hrs after taking atenolol/wafarin","bad episodes of flutter generally subside 1-2 hours after next intake of medication","wafarin - 5mg atenolol - 50mg flecainide - 50mg 2 X day don't know what causes what, but I'm extremely tired and sleepy right after taking the wafarin and atenolol and then again about 12 hours later...naps help take fish oil and magnesium on my own (ok'd with dr)","","","waiting on science to make this better, maybe an ablation","First early episodes were diagnosed as 'panic attacks'. Holter monitor showed nothing, of course. Within last 5 months, fibrillation was much stronger and I was not 'panicing'. Drove to a friend who is a cardiologist and he immediately diagnosed the problem. Atenolol and wafarin, then my first cardioversion. Had exactly 24 hours of blissful sinus rhythm, then started fluttering and 100-115 heart rate. Increased atenolol an added flecainide, then a second cardioversion. Regular sinus with flutter episodes since then. And really, really tired. Reading all of the other entries has been very helpful.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "anon","Australia","56","Paroxysmal Atrial Fibrillation and Flutter","4","every 2 to 4 days","12 to 30 hours","none other than I did have eptopic beats from time to time several years prior to the onset of AF","good","fatigued and lethargic during AF","over eating, cold drinks, alcohol","Sometimes excercise can delay AF onset but not for long","Wafarin and Tenormin, nil side effects","sotalol - well tolerated but over time became pro arrythmic flecanide - made me feel generally ill, converted me to SR but was pro arrythmic if taken regularly disopyramide - dry eyes, dry mouth and thirst verapamil - made me feel generally ill cardizem - made me feel generally ill digoxin - made me feel generally ill","Atrial Flutter was ablated in October 2003. However, AF continues and atypical flutter was noted by the EP.","Will proceed with an ablation in 2006.","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,1,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "April","NB Canada","57","A-Fib","very new","daily","at first one week, now daily for minutes at a time","Still figuring it out. But I believe stress was the big factor, major stressing for about 5 years. Then a bout of Intestinal Flu and suddenly my occassional bouts of heart arrhythmia (adrenal induced) turned in A-Fib.","Asthma, non-smoker, non-drinker, big stressor","get regulated with medication and diet","Stress, heavy meal, lying on left side when reading or watching TV","Sit upright. Stop stressing by Yoga breathing and daydreaming of calming place. ","Warfarin, Nadolol. Tiredness.","none","multiple","Try and beat this thing. Eat right and lose weight.","The fear invoked when diagnosed didn't help things any. So panic attacks happen on occassion. These forums really help! ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Christine","SC,USA","61","paroxysmal a-fib","2.5"," every 3 weeks","6-11 hours","surgery","excellent, hypertension","great when not in fib!","Lying on side, bending over, leaning against hard surface. Extreme exercise (fib begins when resting) Seems cyclic, ? hormonal","Getting up and moving around to increase HR when palpitations begin (usually have palpiations before onset of fib). Changing position.","Acebutolol (Sectral) Lipitor Asprin Avalide Potassium Vitamins - multiple, folic acid, C","Norpace - prolonged QT, extreme fatigue, chest discomfort, hyperdynamic heartbeat. Metoprolol - extreme fatigue, couldn't exercise. Didn't prevent fib anyway!","Infarcted omentum Hysterectomy ","Scheduled for ablation at MUSC Charleston but concerned over potential adverse complications. Seeking second opinion at Cleveland Heart then will decide whether to go ahead or wait until procedure is safer. Time (my age) is against waiting too long. Scheduled to see my GYN to see if this is triggered by hormones. May try progesterone.","Wish there was more effort put into researching etiology of this horrid problem rather than just treatment. It would be nice to correct the underlying problem (electrolytes, hormones, for example).",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "C.T.","Little Rock, AR.","57","AF","14","2-3 times a year","4 to 12 hours","stress","Fair to good non smoker, non drinker","almost cured","stress","take my meds......sleep","amidodarone, atenolol, norvasc, cozzar, asprin and crestor","digoxin, rythmol, verapamil","angiogram....not really surgery but my arteries are clear as of Jan.2006","try to keep the stress down, lose some weight","The meds seem to make me tired. Have trouble sleeping and have to take a sleeping pill.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Nykos","Vermont, USA","53","Atrial Fib and Flutter","10","Extremely variable. From zero/month to several days continuous","several minutes to several days","none","excellent. No substances","episodic symptoms but currently none. When I'm in NSR, I feel terrific.","Exhaust fumes the most predictable trigger, e.g. outboard motors, chainsaw, standing behind the schoolbus, smoke from woodstove. Don't know whether this is carbon monoxide or fine particle air pollution. Coffee and caffeine, alcohol. MSG possibly. Both vagal and adrenergic can trigger","Avoiding the above.","None ","Tried Flecainide. Side effects too much: nausea, swollen tongue, muscle weakness, diarrhea. Tried 'pill in the pocket' method of taking Flecainide plus Inderal (see JAMA 12/5/05). Not successful.","none","Avoid known triggers and buy time until the technology matures for cardiac ablation and long term outcomes start to emerge. I am reluctant to have pva because of the irreversability of the decision - but I still consider it."," There is a very interesting article in Havard Magazine May-June 2005 about research led by Petros Koutrakis pointing to fine-particle air pollution as a significant trigger for arryhthmia. I think this is a promising line of inquiry. I'm about to experiment with use of vapor dust mask when using combustion engine tools.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bender","USA","44","AF","3","2 in 3 years","24-36 hours","none","great, not a smoker, drinker","temp ok","none","cartizum 60mg prn","none - tired!","none","none","wait another 3 years and see if it occurs again!","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "claire","ca","60","A F","8","2-3x a year","12-24 hrs","major family episode","non smoker-ex drinker","good","Stress anger saddness","avoid anger and stress"," propafenone i50-3x a day coumaden 2mg one day -4mg the next at this time thyroid 50mg metoprolol 50mg at bedtime with propafenone Been on propafenone for 3 months,since my last episode,feel blurred vision at times aches but seems to have settled the heart so far,am seeing the cardiolagist tomorrow will see if I should reduce the dosage.","metoprolol 2x a day-felt sluggish/ I convinced my Dr. to take me off Beta Bockers,than had an episode in Aug. and another in Sept went dack on then another one in TX. Ishould say that my 2 previous ones I wascardio converted,but my last one was with medicine,felt much better being cardio converted","Had an angiogram 8 years ago which when I was on the table my heart went array thus A F was the the result and to this day giving me problems. I had a low ejection fraction 35%now is 59% and steady.","Looking at Ablation-but my DR. seems to think I should try the defibrillater-meds at this time","Like many comments I am in constant worry about travelling and where this led.My fear is going for surgery and will it control this for many years,I feel with time surgery will get better and more effective",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Liz","Buffalo NY","43","Lone AF","13","2-3/year","10 minutes-12 hours","Flu like syndrome","Quit smoking 19 years ago, occ alcohol","Stable but always waitingfor the next episode","Fatigue Heavy alcohol Laying on Right side","Avoid fatigue Avoid heavy alcohol Alwayssleep on Left side at night","Norpace CR 150 twice daily Verapamil SR 120 mg every day","Digoxin- visual disturbance and excessive salivation","None","Watch and Wait","IV cardizem always converts me",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Alex","Pittsburgh, PA","73","AF","8","3 daily","less than one minute for most","none","Limit alcohol to one drink or less per day","Fair to Good","Alcohol, anger, sleeplessness, anxiety","Have not been able to find preventions","Currently taking coumadin, cardizem, lipitor, nexium, niacin and 81 g aspirin. ","Was taking flecanide but it made me very tired. I quit approximately 8 months ago. I did not feel any episodes of AF but pacemaker check revealed I had increased episodes from approximately 120 in 6 months to 450. Most were only a few seconds. ","Had a cardiac ablation and also have a pacemaker. My AF is lone.","Very discouraged as I thought the cardiac ablation would virtually eliminate the AF episodes.","I am not sure when I am having an AF episode or if it is my imagination when I am tired. I wish there were a way to check to determine when I am in AF. My PCP (not my EP) told me he can be wrong 50% of the time by just checking one's pulse. Stroke is listed below, but I do not see TIA. I have had one, and possibly two TIAs.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Murray","Michigan, US","57","Atrial Fib","3","Varies","Approx 8 hrs.","Divorce","Good Non smoker, social drinker","Worse lately","MSG","Stay away from processed foods. Get good rest. ","Lopressor at time of event - Feel terrible. No energy. Can't continue taking it. ASA.","Local anesthetics - heart pounding and unconciousness. Multiple antibiotics - possibly the filler or preservative? Hivelike rash on neck and face.","Appendectomy, Cholecystectomy","To see an electrophysiologist. Lose weight. Avoid preservatives in foods.","I would like to hear from others on possible causes and cures for this condition. Are all beta blockers alike?",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Mr T","Lexington, KY","65","Irregular heart beat","45 years","Under control with new medication","Three hours to two days","None","Had a stroke a result of irregular heart beat","Still having problems and also diabetic","My A-fibs are triggered by caffeine, stress, alcohol.","Medications and avoiding my known triggers. When I am experiencing an episode, I take a 50 mg Atenolol about every two hours. It normally shortens the episode.","Rythmol, Atenolol Constipation is a major problem","Flecainide/ no problems with it.","None","Considering procedures being seen in the news to alleviate problem with heart beat","I learned that intense irregular heart beats can cause a stroke but it was after my stroke that I learned this.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Rob Young","California, MD","43","Lone, paroxysmal AF, bradycardia","14","Progressed from 1x per year to now where I am in and out.","hours to weeks to months, it depends","none","Athlete, no smoking , no drinking","Cured???","Caffeine, lack of sleep, too much stress, bending over, alcohol consumption, etc. ","At first, long duration/low intensity aerobic exercise helped me to convert. 500-1000mg magnesium also seems to work when I feel my heart getting irritable.","50mg Atenolol 7mg warfarin I've tried everything else, but they eventually stopped working.","I have taken almost everything. They either had bad side effects, didn't work, or eventually stopped working. Was on amiodorone (the medication from hell) for 30 days. Didn't work and I gained over 30 lbs in that month. Had severe side effects on sotolol. Felcinide and ibutilide were the best until they each stopped working.","EP study RF ablation (unsuccessful) DDDI pacemaker insertion PVAI surgery at Cleveland Clinic in May 2006 (I feel 100% better). Restored NSR. Only 2 days of a-fib that went away on its own. Very few symptoms, very few palpatations. Best I have felt in 10 years. I highly recommend PVAI surgery at Cleveland Clinic.","Return to Cleveland Clinic for a followup in Oct 2006.","I played football in college and was a competitive racquetball player. I also used to ride 100-150 mile bike tours. I am now out of breath climbing a set of steps and struggle to force myself to work out. I feel every irregular beat that my heart makes and it is very annoying. It creates a sense of anxiety. Ever since the PVAI surgery, I feel great. Still a little winded but it's getting better.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,1,0,0,1,0,0,0,0,1,1,0,1,1,0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Keisha Henderson","New York City","33","Atrial Fibulation","3 Years","Weekly, getting for frequent","Minutes to hours ,","Caffine, Stairs, after eating,","Never smoked, drink occasionally, exercise","Condition getting worse, attacks more frequent","My attacks are becomeing more frequent, they can be severe blacking out, dizzyness, my head tightning, hard to breath. Caffine was a huge trigger, I don't use it any more and it occurs more frequently anyway. ","None","Toprol and Cardizem"," Blood thiner,Coumidine","None","Think of changing my diet Increase exercise","Glad to know I am not alone. I was never taking the medicine regulary, now I need extra doses. I don't want to depend on the medication, I am seeking other alternatives. I can feel my heart becoming weaker, I am not sure what to do, I believe in a higher power and will utilize it. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "steve","ca.","50","afib","1","monthly","3-6 hours","1st event lasted 3 weeks didnt know what it was","drinker good health","1 abaltion too soon to tell if worked 7 weeks","heavy meal, heavy drinking, M.S.G","lots of vitamins light eating, drinking. lost 20 pounds","coumadin, sotolol- tired alot","","1 abaltion","may have second","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Jan","Oxfordshire","55","paroxysmal af","7 yrs ","at least once a month or more","8 hrs or more. ","no illness went up the stairs to quickly (A & E ) paf diagnosed","non smoker non drinker slightly overweight","still on all tablets. still have af. ","anxiety relaxing sleeping seems to be both extreems ","Have no control over when it will happen.","Bisoprolol 5mg daily Flecainide 300 mg daily asprin 75 ml daily Flecainide now on maximum dose. ","Amiodarone Warfarin Sotalol warfarin was scary i was glad to come off it. my dr would like me to go on it again instead of asprin but i refused i would be more worried about the warfarin than the possibility of a stroke, and that is a constant problem with af. you have to go with your own feelings and live the best you can.","Half my Thyroid gland removed 2000. My thyroid was overactive. So it did not surprise me that my heart decided to do the same. But my thyroid is now underactive and my body temperature seems to be getting lower. Two new symptoms that i have to get my head around. I am very concerned this will be too much when my af kicks in again. I'm very lathargic out of af, not my usual and af takes alot of energy from me. anyone else have this problem.? We do not know in my case if it is the thyroid that triggered the af, as any problem would cause me to be over anxious."," I get on with things as normal as possible when not in af. I try not to worry. (not easy) I do not know when af will happen, But usually once a month. I find my legs go very weak, unable to get up the stairs and then usually that night I will go into af. I wake up in af and it will be afew hours after my next tablets that it will kick out again."," I find that people don't realise that you can be in so much pain when in af, my symptoms are breathless, faint, weak, I have to lie down after afew minutes of walking about and like a kick in the chest when it goes back into a normal rhythm. And that I feel I am running a marathon while sat down. ",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Joe S","SE Michigan","72","Paroxismal Afib/flutter","11","Now continuous flutter","Continuous","Possibly job/marriage stress","80 lbs overweight, quit smoking 25 years ago. out-of-shape.","Continuous Aflutter, coronary heart disease, sleep apnea.","Unknown triggers, maybe exertion.","None known.","Synthroid, .088mg daily Plavix, 75mg daily Diltiazem, 240mg daily Atenelol/Tenormin, 50mg 2x/day Coumadin, 4mg daily buffered aspirin, 325mg daily Nitrobid time release, 6.5mg 2x/day Vytorin, 10/20 mg tab daily Uraxatrol, 10mg daily Protonix, 40mg daily Senior formula multi-vitamin daily Tylenol as needed for arthritus ","Many through the years, mostly forgotten. My afib has progressed through various stages. Rythmol didn't control it Cordarone controlled it for a while, but eventually failed. As a side effect, it damaged my thyroid to the point where I must take Synthroid forever. I don't know if it affected my lungs or not, but I had to be tested frequently for damage. ","Benign Lipoma removed from transverse colon, 1986 One salivary gland removed, 1988 or so Arthroscopy of both knees and one shoulder. One shoulder replaced. Stent in one coronary artery, 1999, reopened 2002 with Bracheytherapy to prevent reclosure. I have had two procedures performed by the U.of M. Hospital group headed by Dr. Fred Morady. In 2001 I had a left pulmonary vein isolation to correct Afib, and at the same time another procedure in the right atrium to correct flutter. This was referred to as 'The French Procedure.' Due to a recurrance of symptoms in 2003, I had another procedure ('The Italian Procedure'). This consisted of additional lines being placed in various places in the left atrium. I did well for about 22 months. Sadly, I have now developed atrial flutter. My heart rate remains steady but fast, while the atrium flutters, reducing its efficiency.","My regular cardiologist refers to his 30 years of experience in telling me that 'Afib is inevitable, but that with continuation of medications, survival rate is unchanged'. He also warns of the possibility of accidental uncorrectable narrowing of the pulmonary veins during another procedure. I feel tired all the time. His attitude is that since I am 72 years old and retired, I should sit back and smell the roses, enjoying what I have instead of fretting over what I can't do. Unfortunately, I can't persuade him to come over to my haose and take the garbage out to the street, or mow the lawn, or plow the driveway. Sitting, watching TV and snacking isn't good, either! Dr. Morady, at University of Michigan hospital, feels that It is worth another try at ablation. He is well versed enough in the condition to have published papers on it, so I have confidence in him. So-o-o-o, I am going back in on February 16th for another shot at it, hoping that 'The third time will be the charm.' ","This has been a long hard road, and I had a really hard time even getting it diagnosed, at first. I would feel like I was having a heart attack, and went into ER's three or four times telling them I just felt weird, sick and dizzy, fluttery in the chest and cold. Of course by the time I went through the 'System', my heart would resume normal rythm and they would find nothing. My physician even prescribed Prozac at one time. Finally, I ws lucky enough to have it caught on a EKG, and at least I knew what it was, and that I wasn't crazy! Right now, I'm somewhat concerned about things, but have put my faith in God's plans. If it is to go well, it will. If not, I'll do what I must. A side note: I'm not sure if the condition is congenital, but my mother used to complain about her heart 'Wanting to jump out of her chest' at times, and my daughter is starting to display some symptoms, too. Mom lived to 86, though.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Ted S","Florida","41","AFIB","11","3-5 times a year","3-6 days ,usually 4-4.5 days","Holiday Season, engagement, Other Stress","Smoker, Drinker, 20-30 lbs over weight","Fuctional, no caffiene , attitude adjustment, dont let stress get to me, recently stopped smoking again.","Caffiene, Adrenaline , lack of sleep ,stress, excessive alcohol , excessive nicotene ,a bad combo of the above. Being in a total state of rest and have something occur that 1)startles me for more than a few seconds (adrenaline rush) 2) waking up and having sex for a prolonged period of time (when possible;) 3) requires immediate phyical excurtion when not prepared. Failure to take meds for more than 3-4 days in a row.Which has only happened once or twice in 11 years( I am good about taking meds.) I have found certain foods (ie chocolate, cake with certain types of frosting) will do it. Sometimes things have lots of caffiene when you a least expect it.So i read labels when I wonder. I lot of things dont address caffeine on the label and should!","Regular sleep! If I dont get 7- 8 hours a night i try to make it up on the weekend. I try to think before I act. I don't let things stress me out too much. (It may be a crummy attitude but frankly my health is more important to me , i have taken an attitude that I really dont give an fu__.) if I find that I am borderline AFIB I will deligate the problem to an employee and go on and deal with it later when I want too and can. Surprising this has worked really well and usually the problem gets resolved without me. It shows me I should delegate more.","Lanoxin .5mg alternating with .375 every other day Lipitor Now 20mg use to take 10mg Side Effects, well I hear that E.D. comes from lipitor and I have had that on and off over the years. But you can still shoot with a broken stick. I should take aspirin more often but it seems to make my face red or flush.","I have been on both of these drugs for most of the eleven year. Insurance tried to change me last year to i think Zocor ?? not sure. I took it 1-3 months. We chnged ins co and I went back to Lipitor. When I first was diagnois I was on coumidin for 2-3 years.","None for this condition. ","I plan ablation in the next few years. But a lot has changed in the last 10-11 years. When I first got this the only option involved open heart surgery. And at 30-31 that was not a good option. I have managed to keep this under relative control even though i have continued a relatively poor lifestyle.ie smoking,alcohol,smokin,. I expect that the technology will continue to offer new options as it has so far I expect that before i reach upper 40's that I will seek a perminate soltion to this problem.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Lesley","Nottingham, UK","45","Lone AF","Ten years diagnosed","Constantly in and out on a daily basis","Usually short","None, but diagnosed when pregnant with first child","Good","OK, but I feel like I'm always operating 20% below par","I have no known triggers, and think that I have adrenal rather than vagal AF, so it does get worse when I am stressed or nervous. I do however, avoid excessive caffine, only one cup of tea or coffee a day, and very little alcohol. I am very careful not to overdo it phyisically. My AF always gets worse when I have a virus, or any other minor illness.","None, it seems to come and go at will.","Bisoprolol fumarate 10mg Flecanide 25mg morning and night Aspirin 300mg Bad circulation - I always have cold hands and feet","Atenolol - made my hair fall out","None","At the moment I am waiting it out. The UK seems a bit behind the States and France with regard to ablations. Also, due to the complicated pattern of electrical impulses that make up my very erratic heart beat, I have been told that it may be difficult to ablate my heart anyway.","",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Jack Z.","Belleville, Ontario","70","AF","since May 1997","increased to regularly after by-pass surgery","from 2 hrs. to 72 hrs.","Heart Attack in 82 Stroke in 99 By-pass 03","non smoker, glass a wine with dinner, good health","I am on a waiting list for PVA this coming year","I tried to keep a record of my triggers. Chocolate, cafeine and definitely stress are factors. Everytime I thought I had it figured out something else seemed to trigger another attack and nothing made sense anymore. ","Needless to say that I don't have any chocolate or cafeine and as far as stress is concerned I do my best but it's impossible to avoid stress completely. After reading the bulletin board I tried walking on the treadmill when in AF and at first I converted back to NSR but eventually it didn't work anymore. I found too that sleeping on my left side can trigger AF, so I avoid sleeping that way.I have my meals at the same time everyday. ","1 Adalat 60mg. XL 1 sotalol 160 m.g. HCL in morning and 80 m.g. at night 5 1/2 Coumadin or Warfarin 1 m.g. 1 Crestor 10 m.g. 3 clonazapam 0.5 m.g. to help with my anxiety I also take Omega 3 Fish Oil, Folic Acid and Vitamin C","I used to be on Amiodarone which seemed to control my AF better but the side effects were terrible. After my by-pass I was put on so many medications that gave me bad reactions and didn't work. I can't remember all of them. I also was on Plavix after my stroke. At that time my AFs were not too often. After my by-pass and complications, I ended up in ICU , they gave me IV amiodarone and when I went in NSR they sent me home with amiodarone pills and put me on coumadin. A while later I had internal bleeding. The coumadin was stopped. After a colonoscopy, they removed a large polyp which was likely the cause of my internal bleeding.I went back to taking Plavix. When my AF became more and more often and longer and longer in duration, my doctor put me on Coumadin instead of Plavix. Strange enough my AF have been better since.","By-pass surgery in 03. Hernia Operation in 04. ","I am now on a waiting list to get PVA. I was told that I was a good candidate for PVA. I am hopeful for the future.","When in AF, I feel totally exhausted, I lose my voice, I don't sleep well, I just feel lousy, I get anxious not knowing when it will start and when it will end. Luckily so far, I've converted on my own even though they are lasting longer. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,1,0 "Edwin Dean","Boulder, CO","69","AFIB","10","2x per week","2 hours","","drinker","PM, failed ablation in Oct. 05","Stress, alcohol, apnea","sound sleep","sotolol, 120 mg 2x daily toprol, 50 mg 1x daily digitek, 250 mg 1x daily warfarin, 5mg 1x daily","flecainide, 100 mg 2x daily Very effective for 6 years, then failed.","October 13, 2005 RF ablation","Uncertain","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 " Nord Vakrisson","Santa Barbara, CA","61","atrial fibrilation","1.5","huge variations","A few minutes to several hours","none","No smokes, sporadic drinker, lots of exercise, no heart disease, cholesterol getting higher, BP normal","Well most the time","Maybe cafeine in larger amounts. Otherwise it all looks like superstition in my case.","Unknown","Sotalol and warfarin. Hard to get heart rate high enough for active lifestyle. Sometimes wonder if drugs are depressants too. Heart rate was fairly low before taking Sotalol and has dropped more, from 60 to low 50's sometimes high 40's at rest. 54 as I am writing just now.","none","none","Keep hiking, paddling, brush clearing, walking. My cardiologist plans to do another echocardiogram this month and said he may recommend removing the warfarin and reducing the sotalol if that goes well.","My symptoms at their worse are quite minor compared to what I have read most people on this site write about. Still, I definitely prefer to avoid the afib experience.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","New Jersey","59","Atrial Fibrillation","26 years","Varies - more frequent recent years","Varies from a few hours to several days","","High Blood Pressure (controlled)","2 PVA's in past year looking at a possible third","stress and dieting","None","Flecainide - hand tremors Zocor Lotrel - very constipating Atenolol Warfarin ","Calan Quinaglute Rythmol - constipation Digoxin Inderal - terrible nightmares ","Hernia","Looking at possible third PVA, jury still out but not looking good.","I have suffered for over 25 years, some years were better than others. As I have gotten older my AF has gotten worse. This past year I had 2 PVA's and there is a possibility a third one will be needed. My most recent cardioversion was a month ago. After each medication change, ablation or cardioversion I get atleast 4 weeks of NSR and then it starts all over again. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Lyn","Cumbria, UK","50","Paroxysmal Atrial Fibrillation","9 months","less than 3 per month","few seconds to 2 hours","Death of father and mother in law within 3 weeks of each other","Good health, light drinker, little overweight, slightly high blood pressure","Coping on medication .... just","Unable to identify with any certainty. Possibly stress/anxiety - not helped by the fact that the condition causes severe stress and anxiety! ","None yet","Flecainide (100mg per day)and Irbesartan (350mg per day)Low dose aspirin once a day. Haven't noticed any side effects to speak of, but may notice more 'heart flutters' than before and also appear to be aware when I am getting close to needing the next flecainide, i.e keeping the levels constant in the blood stream seems to be best by taking as close as possible to each 12 hours.","Sotalol - devastaing! turned me into a complete gibbering wreck. No energy, couldn't sleep, depressed to the point of feeling suicidal, and didn't stop the AF either. Slowed heart rate down to less than 40 on some days.","None","Just want to find a cure so that I can live a normal life again.","This has been pretty devastating and I find myself very tearful and depressed a lot of the time, especially when I start to feel a flutter and wonder if I'm going into AF again. GP's OK but don't really seem to appreciate the mental effect this can have, as they merely see it as 'not life threatening' and tell you to get on with your life. Easier said than done. Cardiologist seemed more in tune with the psychological effects illness can have but no real answers. I really hate the idea of being on drugs for the rest of my life. Great to find this site and realise you are not alone.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Gene S.","Manteca Ca","53","lone afib","1","2 times","1year and it just reappeared 3 months after cardioversion","Possibly pneumonia","good health, nonsmoker light social drink","just back into persistent afib after 3 months of normal rythum","latest onset came after dinner when I went up stairs","","5 mg coumadin, toprol","coumadin, no side effects","none","cardioversion and long term beta blocker","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Aryeh","California","61","A Fib","16","chronic","","","good","3 prior ablations","","","toprol warfarin","all except Amiodaron","@ previos abalations on the left side and one on the right side","No idea","looking for options",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0 "Maryann","Wisconsin","56","Atrial Fibrillation","2 1/2","daily - sometime 4-5 x day","2 minutes to hour","none","high blood pressure/1year; overweight","Had ablation surgery in July, afib still present and more frequent 7 months later","caffeine, sugar, over-exertion, ","","coumadin (warfarin), sotalol, side effects = dizziness, stomach upset, exhaustion, lack of strength, ","","Had VATS Microwave surgery in July 2005. Minimally invasive, 6 small incisions. Up to 4 months later doing very well with perhaps 2 episodes of Afib a week (lasting only 2 minutes each time) Within last 2 months Afib has increased and side symptoms of dizziness, exhaustion have increased.","Pray alot.","Very difficult and life-changing illness, full of uncertainty and frustration. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Dan","MI","35"," A Fib","<1","constant","constant","unknown","asthmatic, diabetic, exsmoker, social drinker","In A-Fib (was out of it yesterday for the first time in a few months - from flecainide today went back in it)","","","Verapamil - none flecainide - unknown warfarin (coumadin)-none ","","","not sure","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "kenoakley","london","51","atril fibrallation","10","variable","variable","none","well","atrial flutter after being in atrial fib","none","none","flecainide, propoponol flecainide","as above,also had amiodarone","6 cardioversions 1 internal cardioversion. 2 pvi ops in last 9 months","may ask to have maze surgery","10 yrs ago was running marathons and competing in triathlons. Have noticed attacks becoming more frequent. heart jumped out 4 days after first pvi, second op gave me 3 months of joy. waiting for a cardioversion to hopefully get rid of flutter. seeing doctor end of jan to discuss long term prospects",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,1,0 "Janet","Colorado","42","2005","1.5","about once a month","1-45 min","running intensely on treadmill","excellent health, non-smoker/drinker","manage episodes, but annoying","caffeine, stress, exercise, dehydration","avoid caffeine, stay well-hydrated, able to stop an attack by holding my breath, vasalva maneuver, or bearing down.","None.","None.","I am taking a 'wait and see' approach to an ablation. ","Cardiologist says he will do an ablation when I want it. It depends on how much it bothers me. Right now, I am living with it, but it annoys me that it affects my running. I am able to stop running when an attack happens, stop the attack, and continue running, but I am not sure how long I can get away with this.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Glenside","Aberdeenshire, UK","52","Atrial Fibrillation","2 months, First episode 19 November 2005","2 in three weeks","15 hours, 6 hours","Hypertension but under control","Good, no alcohol, non smoker, 40 minutes walk per day. previous asthmatic but not this year.","No further events since 5 December 2005","Entrapped air and indigestion","Do not drink diet lemonade, diet coke etc. Do not eat large amounts of food or food that can cause indigestion.","Verapamil 120 mg daily since 5 December, Asprin 75 mg since 5 December, Imapril 10 mg daily. Resting heart rate circa 58 from 61. Tiredeness mid evenings. Some light headedness, BP reduced about 4 points from 138 / 76 to 132 / 74.","Imidapril 10 mg daily. Resting heart rate from circa 64 to circa 61. BP controlled.","None","Watch what I eat and drink. Treadmill in mid February.","After being told by my GP that I had hypertension in March 2005. I purchased an Omeron model 6 BP meter. On both occasions it is the unstable pulse warning on the Omeron that alerted me that I was in AF. On both occasions I spontaneously reverted to sinus rhythm in hospital waiting to be shocked.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Duncan","South Yorkshire UK","43","Atrial Fibrillation","3/4","Irregular - comes and goes","I day - several weeks","None","Good , non smoker, moderate drinker","Ongoing episodes","Alcohol - sometimes one glass of wine does it sometimes a bottle has no effect.","None","Propafeone hydrochloride (Arythmol). Ongoing discomfort in left chest - acutely aware of activity in this area Some dizziness/effect on peripheral vision 1-3 hours after taking medication.150mg 3 times a day Also aspirin","Flecainide (?) Inneffective Atenolol - in combination with Arythmol - increased dizzines - general malaise especially mid/late morning. Sotalol - initially effective - eventually less so. Also taking a daily statin - history of heart disease on fathers side of the family.","None relating to this condtition","Under a specialist consultant in local NHS hospital (annnual consultations).Contemplating procedure involving using wire in artery to 'kill rogue cells' which cause the electrical irregularity.Consultant is reticent about performing this procedure if the drugs are effective as the success rate is low (30-40%).I would if at all possible like to get off the drugs ","I would like to obtain further information on my condition , the medication I am on side effects and the long term picture. I feel that the attitude of the health professionals I have dealt with is very hands off. I am concerned that as soon as my AF was diagnosed further investigation such as its cause were ignored as were other heart related 'symptoms' which pre-date the AF.In addition to the history of cardiac problems mentioned above there is also Diabetes and Thyroid illness in my family and I want to explore any links. I have a three year old daughter and another child is due in June.I feel I owe it to my wife and children to find out more about my postion in both the short and long term.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "ANDRAY RIGA","NORTHBORO MASS.","54","PAROXYSMAL A - FIB COPD","10","EVERY DAY NOW","AT NIGHT IN THE MORNING","NONE","FAIR","VERY ILL"," OVER EATING----SLEEPING ON MY RIGHT SIDE ----EATING LATE AT NIGHT ----SOMTIMES JUST SITTING DOING NOTHING ----CAFFEEN"," DONT EAT BIG MEALS DONT GO TO SLEEP RIGHT AFTER EATING STAY AWAKE DONT SMOKE OR DRINK IT CAN AND WILL BRING ON A FIB ","1. NORPACE 150MG AM 300PM 2. LOPRESSOR 50MG 3. ASPRIN 82MG 4. LASIX 40MG 5. LEVOXYL 100MG 6. LIPITOR 10MG 7. TRICOR 108 MG 8. WARFARIN 9. POTASSIUM 10MG 10. COMBIVENT 11. ZOLOFT 50MG 12.COLACE 13.LORAZEPAM 5MG 14. VICODIN 500 MG 4 PER DAY ","NO SIDE EFFECTS","1. FAILED ABLATION RESULTED IN HOLE IN MY HEART 2 MONTHS IN HOSPTIAL 2. PACEMAKER INPLANT 3. OPEN MAZE PROCEDURE FAILED STERNUM OPENED UP AFTER SURG AND IS STILL OPEN AFTER 8 MONTHS 4. SECOND PACEMAKER INPLANT FAILED DUE TO THE DOCTOR NOT PLUGING IN THE LEAD WIRE HAD TO RE OPEN AND REPAIR 5. ON FEB 16 GOING IN MASS GENREL HOSP. FOR A SECOND ABLATION 2006 THEN HAVE MY CHEST REPAIRED CLOSE THE SERNUM AND FIX 4 BROKEN RIBS FROM MY OPEN MAZE OPP."," LIVE LONG ENOUGH TO SEE MY SON HAVE A CHILD ","MAKE DAM SURE OF EVERY PROCEDURE THAT YOU HAVE DONE IS WELL LOOKED AT AND DONT GIVE UP GOD BE WITH YOU ALL",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,1,0,1,0,0,1,0,1,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,0,1,1,0,1,1,0 "Anon","Dundee, UK","55","Paroxsymal Atrial Fibrillation","15 years","5/6 per annum","4 hrs - 36 hrs","None","Good, smoker, drinker","Still struggling to find a cure.","Alcohol","Not known","Sotalol 80MG twice daily. No side effects that I am aware of. 75mg Aspirin. ","Propranolol? changed to sotalol by A&E consultant a few years ago","None","Have given up alcohol to see if it is the only trigger. If it is I will rejoice as a teetotaller. If not, then I will continue to keep a journal to try and find out what it can be.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "sue peters","pa","58","PAF","4","2 x per mo","3-4 hours, intermittent","none","extreme fatigue, smoker","under good control","unknown","stay on medications","flecainide and diltiazem - fatigue, constipation","sotolol - not on it long enough to know","none","continue with current tx","My father was diagnosed with AF in his fifties. My brother was idagnosed in his forties and I was diagnosed in my fifties. Wonder about genetic link.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Diana","United States","25","Atrial Fibrillation","1 year","every 30 seconds daily","1-2 minutes","none","healthy","very ill","too much alcohol, anxiety, stress, menstral cycles, not sure exactly they happen all the time even when I'm asleep","none known","propafenone 600mg/day - major dizziness, constant ringing in ears, extreme nausea, so tired I'm sleeping close to 16 hours a day, headaches ","betapace - had no impact on palpitations coumadin - constant nose and mouth bleeds and bruising","tonsilectomy in 2000","Considering getting the cathater ablation, however I want to wait until I find an extremely experienced doctor and/or find out more about the procedure. ","I was diagnosed at 24 years old and immediately quit smoking cigarettes. I still have no reason why or how I got A Fib, let alone why I have it so bad. I literally have had heart palpitations every 30 seconds that last about 1 minute or two for over a year now. I think for me, it's more of an annoyance than anything. And it's very hard to not be able to control my body and not know how to stop it or how to prevent the palpitations. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Larry","Australia","54","A FIB","PVC 8 years, A FIB 3 years","A FIB 4 to 5 times a week","anywhere from 15 minutes to 5 hours","nil","Good","apart from A FIB my health is very good","More than 4 nips of Alcohol in one sitting. Caffeine","I have kept a diary of everything I have eaten during the past 6 months, but the only obvious Triggers that I have found are the ones listed above.","Tambocor 50mg twice per day. Slight dizziness and light headed, nothing drastic enough to affect my everyday living. My doctor doesn't like it, but I try to keep my blood thin with garlic and light consumption of alcohol - 2 nips per day.","Aspirin, had to discontinue due to stomach problems.","No surgery, but I have been treated for a bleeding Stomach Ulcer.","I am becoming convinced that the Mini-maze procedure offers the best hope to get rid of this condition once and for all. I hope to wait a couple of years until the procedure becomes established in Sydney.","I find AF to be like walking around with a time bomb in my chest, never certain whether today is going to be an AF day or a good day. I just wish that i could find every trigger for these events so that I could avoid them. That is the biggest mystery for me, one day there is A Fib and the next day it is gone, why?",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "TERRI JAY","UNITED STATES","46","paroxsymal atrial fibrillation","1","2 per month","2 hours to 36 hours","stress","fair overweight","episodes increasing in frequency and length","stress, over eating, tired, exercise","try and rest, no prevention yet","diltiazem-tired, weak at first but better now.","toporol-heart rate to low made me to tired","hysterectomy","starting flecainide tomorrow","cardiologist is starting me on flecainide, i am a little concerned to start my first antiarrythmia drug, but my episodes have become more frequent and longer in duration, i also am having short bursts of palpitations several times a day. inactivity and fear of raising my heart rate during exercise is affecting my general health and weight gain since diagnosis.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Annie","Wisconsin, USA","56","Mitral valve replacement, A-fib,Congestive Heart Failure, Stroke","1","Continuous","","Had a tooth pulled","Poor now, Before surgery-good health, no smoking, no drinking, exercised regularly, lifted weights, worked 12 hour days","Very weak, feel better last two months, cold all the time, except during a hot flash","","Nothing seems to prevent it. Acupuncture works quite well to slow the heart rate to below 120 bpm. The acupuncturist has shown me how to needle myself to bring the heart rate down, but it will increase again over a period of time.","Metropolol 100mg, Enalapril 5 mg, Asprin 81 mg, Digitek .25 mg, Warfarin 10 to 12.5 mg per day.","Cardizem, Potassium Chloride,Morphine, Nitroglycerine, Acetaminophen, Oxycodone Apap, Temazepam, Magnesium Hydroxide, Promethazine, Metoclopramide, [inj] Docusate Sodium, Amiodorone, Enoxaparin [inj] Pantoprazole, Prilosec, Macrobid, Zocor. A lot of medicines were given to me when I had the strokes, but I have no record of what they were. Gave myself lovenox injections twice a day for 3 months, [caused extensive bruising]","Tumor removal, left knee.1990 Tooth pulled Oct. 2004, Valve replacement Jan.2005 Had ablation during valve surgery, also removed sections of atrium and left ventricle. Cardioversion did not work. Pacemaker was removed because the heart would not speed up during exercise; stayed at 50 beats a minute","Keep on living: Try to get some of my strength back. Would like to feel useful again.","Watch out for dentists!!!",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,1,0,0,0,1,1,1,1,0,0,0,0,1,1,0,0,1,0,1,0,1,0,1,1,0,0,0,1 "courtney","michigan","66","Atrial fib = occ Atrial flutter","3","3 episodes in 3 years","3 - 4 hours","Started after lung surgery","good","worried","","","Take Inderal and Rythmol when A fib occurs ASA Celebrex diuretic","","Lung surgery - benign lesion","Ablation","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Frankie","Milwaukee, WI","66","was Atrial Fibrillation, now A Flutter","less than one year","two weeks approximately/getting longer between episodes","couple of hours","stress of major snow storm driving in/drinking coffee/eating chocolate","excellent health/do not smoke/one or two drinks couple of times a year","had Radio Frequency Ablation October 11, 2005 - the thinking now is this is the first line of defense not drugs - this is my 6th week after ablation each day I feel better - may have to have another procedure","coffee, chocolate, Clariton D, stress, not enough rest, over eating, panic attack.","Only drug I take besides my prescribed ones is Regular Strength Tylenol. I drink only decaff coffee - when I eat out, I do not have coffee - usually drink milk. If I feel an episode coming on I try to relax. I drink bottled water that has not been chilled. I have started to have an episode and took medicine according to my doctor - 2, 50 mg Flecainide and 1, 50 mg Toprol XL - than waited an hour and could repeat it if my Blood Pressure and Pulse don't come down - this worked for me. ","I take Toprol XL 25MG am and pm - Flecainide 100 mg am and pm - Warfarin 7 mg once a day. Flecainide makes me bloated and constipated - I usually eat prunes to help with the constipation.","allergy to sulfa drugs","None. Had two children and the Radio Frequency Ablation was a breeze to childbirth.","Plan to continue working for two years than retire. Would like others to know about this Atrial Fibrillation which can become all consuming in one's life.","I feel that the Radio Frequency Ablation is the way to go - it is much better than the drugs - which are poisons - and do not seem to work after awhile. There is another procedure to cure AF which is with laser. With Atrial Fibrillation it is very frightening - it is constantly in the back of your mind - with modern medicine strides have been enormous in the last two years even - there will be a cure for this condition.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Robert D.","Maryland","49","AFIB","10+","Sporadic","Varies","Mitral Stenosis","Basically normal while in NSR. non smoker and occassional drinker","Takind meds to stay in NSR","Alcohol, large meals, spicy food, stress.","Exercise, no alcohol, smaller servings.","Tikosyn - none. Digoxin - none. Cumadin - none.","","Valvial Plasty - Opening of the mitral valve with a catheter.","Hope to have some form of ablation to be cured.","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0 "anon","Virginia Beach, VA","53","Atrial fibrillation","7","3 times per week","10 hours","","excellent","continuing, even after cardiac ablation procedure","chocolate, wine, big meal, hot bath, fatigue","","Warfarin Diltiazem Sotalol","","I had a cardiac ablation two months ago, and it helped, but now the frequency is increasing. Before the procedure, it happened almost every day. After the procedure, it slowed down to once or twice a week. Now it is starting to pick up again. In the hospital, two days after the procedure, I had afib and they tried to cardiovert me, but it didn't work! The afib went away on its own several hours later.","I plan to pursue alternative therapies for now.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Michael","Cambridge","30","atrial fibrillation with re-entrant tachycardia","20","daily","seconds to minutes","None","ex-smoker, very light drinnker","re-entrant tachycardia 95% cured","Physical exertion, swimming","deep breathing exercises can stop tachycardia and trigger or stop short AF bursts","None","Verapamil(tight chesty crushing feeling with instant curing effect), felecainide(don't go there), Sotalol(side effects get you in the end). Aspirin(profilactic).","2x EP Study, 1x RF Ablation, awaiting Pulmonary vein isolation.","getting on with life","This is debilatating but living with it for as long as I have makes it seem part of every day life. A cure or part cure for AF would be great! I hope the PVI does it.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Anon","MI","55","Atrial Fibrillation with rapid ventricular response","3.5","chronic","chronic","bronchitis and/or migraine","Good before Afib","pretty ill - now have cardiomyopathy","Gluten MSG Lack of sleep Lack of food Chocolate Caffeine Lay on left side Lay on back Stress Electrolyte inbalance (esp. low magnesium and potassium) Physical activity Low magnesium Low potassium","Gluten free diet Better sleep habits Better eating habits Stress reduction Improvement of electrolyte inbalance High doses of magnesium (glycinate or orotate) Nutrient IVs twice a week with 2grams of magnesium Increase potassium consuption - from food Improve hypothyroid","Coreg/cough with high dose, very little improvement Coumadin/menstrual hemorrhage, inflammation, allergic to warfarin - must use non-generic Armour Thyroid/none","Amiodarone/increased afib Toprol/cough, decreased BP, no improvement Metropolol/cough, decreased BP, no improvement Lisiniprol/decreased BP, no improvement Digoxin/inceased afib, no improvement Lasix/affected electrolytes/don't have a fluid problem ","Catherization - no cardiac issues.","Possibly ICD pacing and/or pulmonary vein ablation.","Supplements and gluten free diet have given greatest refief. I was malabsorbing before finding gluten intolerance. Correcting the electrolyte inbalance is causing improvement. This has included having nutrient IVs.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,1,1,1,0,1,1,1,0,1,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "René Larivé","Grand-Mere, QC Canada","65","Atrial Fibrillation","5 years","Once a week","30 hours","Heart attack 1985","Good health. Quit smoking in 1985. Two drinks a day.","Ongoing","Stress, exercise","Rest, Tai chi, maybe magnesium supplement","Sotalol, Altace, Apirin, Zocor. No side effects","Acebetulol; no side effect","None","Considering ablation procedure next winter if my AF condition does not improve","Great site. As others have mentionned, it helps to know that others have a similar, sometimes identical history of AF, with triggers and fixes behaving the same way. My AF events will often occur after a nap which followed a dinner meal. I have also often awaken to AF in the middle of night. I can tell that AF is on because the heart throbs are always accompanied with a stuffed nose. HAd my first noticeable AF event in 1998. All symptons went away for 2 years, and then came back. After taking up Tai Chi in 2002, I had been AF free until a bad case of the flu seemed to have awakened the monster last January. I had stopped doing TAi Chi regularly the previous September because of torn ligaments in an ankle playing catch football. AF has ruined this summer and fall this year with unpredictable onsets. I suspect that stress is partly responsable for my AF condition. I lead an electronic equipmemnt manufacturing company and work is stressfull on occasions. Future events: just went through echography (AF present)and 24 hour holter no AF at all) preparing for my decision to go through ablation procedure next winter. Once again, I am so glad to have found this site and be able to add to the data base. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0 "Bill","West Haven, CT","56","PAF, PVC","25","PAF - Seldom PVC - Daily","PAF - Hours to Days PVC - Minutes to Days","Stress","Obesity, Diabetes","Under Control with periodic breakthrough episodes","Caffeine in all variations (soft drinks, De-Caf, Chocolate, Tea). Cold medicines (pseudo-ephadrine), alcohol in excess, DHEA. ","","Felcainide (Tambocor) 150 mg 2x day Atenolol 25 mg 1x day Pottasium 20mg 1 x day Aspirin - Adult enteric coated 1 x day Lipitor - 20 mg 1 x day Celebrex 200 mg 1 x day (was on and preferred Viox) Glyburide 1 x day Metformin 2 x day On my own I take Magnesium 500 mg 2 x day Fish Oil 6,000 mg 2 x day No side effects from current meds","Corgard Quinidine Sulfate Sotalol (poor control and fatigue)","No heart surgery. Gastric bypass for weight loss - December, 1997","Continued weight loss. Improved exercise program. Stick to medications. Continue taking fish oil and consider additional vitamins and minerals that may benefit me including Taurine, CoQ10, Copper, L-Arginine. ","My espidoes of PAF are blessedly infrequent. Always puts me into the hospital. Generally only for a few hours. I like my current meds and I have good control. My main problem is PVCs. When I get episodes it lasts off and one for days or weeks. My chesk muscles and sternum get sore. I can live with my condition at present. My doctor mentioned ablation for PAF but it is not bad or frequent enough to justify the risks. Ablation does not help PVCs which is my major problem. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Joy","GA.","42","Afib, pvcs","21","on and off, lately for months","a day or two then off then comes back(didn't have for a long time for some reason)","just had a tachycardia event out of blue when I was about 21","good, hypothyroid take synthroid for this - very little dose","taking lopressor to help but still have weird heartbeats","bending over, exertion, stress, caffeine if I have any.","don't know??","lopressor - makes me tired feeling","started out taking some other betablockers but was years ago so I forgot what they were. (think one was inderal?)","had ablation back about 10 years ago.","About to try Rhythmol. ","This condition is so frustrating. Interferes with daily activities when acting up. Never know what you can do. Can't complain too much though cause mine hasn't bothered me a lot in years just recently for some reason.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Walt Woolfolk","Cincinnati, OH, USA","64","Chronic atrial fibrillation currently controlled by medication","10 yrs - 7 years paroxismal, 2 years chronic, 1 yr controlled","24 x 7 during chronic stage","24 x 7 during chronic stage","None known","Good - non smoker, non drinker, no other chronic illness","Probably temporarily controlled following two RF two ablation surgeries and a cardioversion","Exercise Stress Often no apparent trigger I have a bicuspid aortic valve which so far works fine and various doctors are in disagreement whether it could have caused the AF. There is some family history of AF. ","None","Toprol - fatigue, constipation, coordination, mental dullness Warfarin - no side effects","See checklist - most side effects are related to blanket nervous system depression including difficulty swallowing, poor coordination, unreliable sense of body and extremity position, constipation, mental fuzziness, difficulty making mental connections between obvious topics, mental and emotional passivity","Oct 2003 - RF ablation of pulmanory veins for AFib - resulted in AFlutter - persisted after cardioversion Nov 2004 - RF ablation for AFlutter temporarily successful May 2005 - cardioversion for AFib succesful - so far have to remain on Toprol, otherwise get exercise-induced AFib","Reduce load on adrenals caused by low level food allergies and stress, increase fish oils, cont current levels of Mg and CoQ10, add flax seed oil - explore Resveratol, Berberine, and Chinese medicinal herbs - get tested for H. Pylori infection, increase exercise very gradually, retire from stressful job ","My suggestions for someone diagnosed with paroxismal AF is to treat it aggressively to prevent it progressing to the chronic stage, avoid the usual early treatment with Digoxin which can make it worse, be very aggessive re diet and supplementation before resorting to surgery, but consider surgery before the AF gets chronic, understand that a different ablation approach is needed for chronic AF than for paroxismal AF, and subscibe to Medscape (free) for the most current info on allopathic approaches to AF. If you are taking Amiodarone be sure to have your liver enzymes checked regularly. ",0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Bonnie","Vernon,NJ-USA","50","Atrial Fib","newly diagnosed-Oct 2005","In AF since October 5","NA-Chronic?","NONE","non-smoker, non-drinker, obesity, hypotensive, low choleterol","SOB, lethergy, dizziness, elevated Heartrate with an movement","I have no idea","","digitex .25mg OD toprol LX 100mg BID Coumiden 5mg OD Nexium 40mg","Allergy-X-ray dye,Penicillin(anaphylatic), ceclor, sulfa Psychotic reaction to steroids","Gallbladder Hysterectomy D&C-3 Carpel tunnel T&A ","Dr, Wants to cardiovert in three weeks He said if I can't convert will go in hospital to be placed on antiarrythmic drugs","I have had palatations for many years that the Dr.s could not find.(just found some infrequent PVC'S and PAC's. (by the time I went to doc or ER no longer a problem) For the past 4 years just ignored the sensations. Also have an on again off again heart murmur. Had Rhumatic fever as a child with no apparent heart involvement.When I called my doctor was feeling very ill for about a month. Said to go to ER-I then had a 185 and very irregular pulse. Found AF and gave me cardizem to bring HR down after over 200 HR. Not doing very well. More or less housebound.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Michael","London","41","Paroxysmal AF","3","varies - latest 2 episodes only 4 weeks apart, previous to that usually ave 2 per year","varies - 5 mins to 6hours","Excess alcohol at works christmas party - thought i was having a heart attack!!","average - ex-smoker [1 year], trying to cut out alcohol which seems to be the biggest factor!!","Just had episode last night, took Flecanaide tab & reverted to NSR whilst asleep","Alcohol - particularly red wine! Stress, late nights, anxiety, ","Normally just wait for NSR to come back - have been in casualty 3 times but AF has always reverted to NSR without drugs [apart from latest episode - so I'll have to wait for another episode and not take any Flec to discover whether I can still revert unaided!! My fitness levels plummetted through my 30's and I put a lot of weight on. I'm regaining a reasonable level of fitness now, I cycle and run fairly regularly [3x per week]and this seemed to deter PAF until recently. I'm worried now that it's getting worse, but just have to see how it goes!","Flecanaide if and when episode starts. No noticeable side-effects yet.","Atenolol for 1 week after first episode - didn't seem to do anything. Have had full range of tests [Echo, bloods, ECG, Scans 24-hour monitor etc] 3 times since 2003 and all have concluded no underlying cause.","Minor unrelated surgeries - 1989/2005","Just gotta get on with it. I have 3 young children and a wife getting over skin cancer, although she's dealing with it better than me! So just try to keep telling myself it ain't that bad!! Coming from an Irish/Musical upbringing alcohol/smoking and late nights have always been a big part of my social life! Trying to resist overdoing the alcohol.","This website is a great idea. It is always some comfort to know you're not alone with these things. My Cardiologists have been really good, although I do get the impression that AF and in particular PAF is regarded by the medical profession as more of a 'nuisance' than a real condition!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John R","Brisbane, Australia","58","Chronic Atrial Fibrillation","First event 1980 overnight, then 2002 chronic, now 18days chronic","Chronic","Chronic","Stress, then too much alcohol preceding onset","Drinker, red wine only","Annoyed, tired, waiting for next cardioversion","Caffeine including chocolate, too much alcohol (more than a bottle of red over 4 hrs), STRESS, sudden cold water like diving, sitting at computer with a tight belt on. Random as well I think. ","Eliminate as much as possible of the above.","Prinivil for blood pressure, no side effects noticed. Coumadin 5mg, Lanoxin 250mcg. One of these last two is causing some constipation.","Cordarone X for 20mths. Sunburn, loss of hair, general feeling of unwell. Very glad to get off it.","Umbilical hernia operation 8wks ago, 1hr general anaesthetic.","Another cardioversion. (The last one was good for nearly three years, then I slipped back into caffeine and alcohol. Won't do that again.)","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Hkrieg","NJ","46","Mitro Valve replacement, Afib","25","once a year","2 days - 4 days","Smoking, Stress","good health","General good health","cold drinks, stress, no sleep","Tricor","Coumadin, Tikosyn, Lopressure, Zedia, Tricor, glucotrol none 20 years","","Mitro valve replacement 92 AICD Implant 89","Continue to exercise, keep healthy, ","It is important to remain active and stay heathy and warm. free from colds and germs.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0 "john s","tucson arizona","49","atrial fib, lone, paroxismal (sp?)","7","about once every three weeks","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "JJ","Slipton, UK","55","paroxysmal AF, tachycardia, AVNRT","20","weekly","1 to 12 hours","","Average for 55. Moderate drinker. Non-smoker. Active lifestyle","OK except when having attack","Eating when very hungry ie. sudden sugar surge. Fear or anxiety. Embarrassment. Low adrenalin when relaxed.","","Sotalol. Weight gain and lethargy Asparin","morizizine...high blood pressure amioderone....skin sensitivity flecaininde....none propafenone....none","ablation for AVNRT ablation for flutter pacemaker....now sithched off","for what??","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,1 "Faye","USA","63","A Fib","2 months","3","1st and 2nd: 48hrs - 3rd: 29days","2 ablations","good health - non smoker or drinker","Fast heartrate with irregular beats on exertion","none","none","diovan and coumadin","Cardizem CD - very slow irregular heartbeat and sleep disruption and severe rash","4 EP studies and ablations since March 2005","","Since my fourth ablation on 15 Nov. 2005 I have not had any afib or aflutter. I do have PACs and can't tolerate any of the medicine for them. Each day is spent managing my energy and 'getting on' with living.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Derek","Canada","54","atrial fib","5","0-3 per month","8-14 hours","none","high blood pressure, heavy smoker up to diagnosis, moderate to heavy drinking up to diagnosis, obese","recurring attacks","alcohol, caffiene, cigarette smoke, overeating after 8 pm"," avoiding triggers and eating smaller meals and nothing after 8 pm.","propafenone 150mg as needed. Plavix to prevent clotting. when i feel a flutter or am in atrial fib I take the medication - sometimes up to 4 tablets depending on the severity. self medicated but sometimes have to enter hospital because of duration of attack. after 12 hours not safe. no noticable side effects as yet.","sotalol - prescribed by attending doctor after first attack and before seeing cardiologist aug 2000 none.","none","loss of weight and regular eating habits. avoiding triggers. regular check-ups with cardiologist. regular exercise routine","I have had several attacks over the last year which came out of the blue and i have no idea what caused them. I am scheduled to see my cardiologist next month oct 05 am am hoping for a thorough exam.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Clive","London, UK","59","Chronic atrial fibrillation","Not known - diagnosed July 2005","Do not suffer episodes, it is all the time - except sometimes what could be called worse episodes at night","Variable","None","General health good; hadn't seen a Dr. for five years; gave up smoking in May 2005; moderate drinker (mainly red wine)","Feeling moderately unwell most of the time.","Possibilities thought about so far: hot, humid weather, particularly at night; lying down to sleep, particularly on left side; eating fatty food late at night - e.g. cheese, pate; having one alcoholic drink too many, or two strong a drink - e.g. gin and vermouth - instead of just table wine; stress and worry about work and money.","Try to avoid things listed above.","Digoxin and warfarin. Difficult to say because I don't know if some things are caused by AF and some by the drugs. Since diagnosis and medication I have experienced night head sweats; indigestion; feelings of panic; shortness of breath; extreme tiredness, particularly in early afternoon after even a light and healthy lunch; poor memory; a general feeling of unwellness, vagueness, not being quite with it. After my daily 6pm dose of warfarin, I often feel as if my legs are burning within an hour or two.","No previous medication.","No surgery.","Waiting to see a cardiologist in a month's time.","Discomfort easy to cope with. Not so easy to cope with day-to-day life as I am self-employed and every moment I am not working no money is coming in; I am the registered carer for my disabled partner and we also have his 80-year-old father living with us. I never have a moment to myself.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mark Chaplin","Cambridge, UK","47","lone atrial fibrillation","7","6 weeks average (min 3 weeks, max 17 weeks)","same day (50 of 58), next day (8 of 58)","work related stress","conditioned athlete, non-smoker, light drinker, vegetarian","frequency of episodes gradually increasing","work or emotional stress racing (episodes triggered by racing usually start on the second night after the race, not the first) after evenings out, could be alcohol or food related disturbed sleep all 59 known episodes have started while in bed there have been no episodes within 3 weeks of the previous episode","Running is about 80% effective at restoring sinus rhythm, usually with a short session of sharp 1 min efforts. Running is least effective in post race episodes, when I am usually too tired to run fast enough. Strong Belgian beer has worked a few times when running hasn't.","None. (I have a history of intestinal bleeding so try to avoid anticoagulants because of their side effects).","None","None","Management of triggers and preventions.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jon Fisher","Oklahoma City, Oklahoma, USA","25","AFib and SVT","7","3-4 times per month","1 hour","None","Hypertension, GERD, Asthma","Having a second EP study and ablation soon.","Sleep","No caffiene, nicotene, or alcohol.","Toprol XL 50mg, Altace 5mg, Nexium 40mg All once daily.","Verapamil","One EP study with no findings.","Second EP study with possible ablation.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Clay","Minnetonk, Minnesota","47","Persistent afib","1","8 weeks","persistent","none","Good, now cutting back on alcohol and caffeine, non-smoker","currently NSR, on third drug","Possible trigger: dehydration + beer Really can't finger anything. ","Ice pack to the back of the neck.","Flecainide 75 mg twice/day. No side effects.","Sotolol 120mg: very low resting pulse (44), some lethargy, persistent low-grade headache, felt inhibited from exercising, but felt better if I did. Atenolol 50mg: low resting pulse: mid-50's Neither beta-blocker held me in NSR longer than 7 weeks. ","None.","Still trying drug therapy, modest life-style changes. ","Lost 40+ lbs in the 18 months prior to AFIB diagnostics (thank God!), and I attribute my comparatively mild symptoms (when in AFIB) to that. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Gerry","Thailand","60","Atrial Fibrillation","10","weekly","1 to 2 days","none","Good","Manageable - improved in as much as when I have the fibrillation it is less","Food, especially a late dinner, and definitely lettuce, but not rocket. Coffee Tea Stress","Regular exercise I take enzymes ('Enzyplex') with meals and it has improved my digestion and (hence?) my AF. ","Amiodarone for 5 years - no side effects yet","None","1977 Removal of Appendix 1989 Removal of arterial venous malformation in spinal cord 1992 Removal of polyp (non-cancerous) in throat 2002 Separation of fistula between colon and bladder (due to diverticulae)","Carry On!!","I definitely have mostly food-related and gas-related onsets of AF but am generally in good health and annual blood tests don't show anything untoward. Mostly the AF starts at night.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Paul","Antwerp, BE","58","Lone Arterial Fibrilation","3 since diagnosys but probably a lot longer","1 in 6 months to 2 times a week","1-2 hours after taking tambocor, never tried without","none","Exellent apart from AFIB, smoked for 35 years (quit 5 years ago), one bottle of wine a day, hiatus hernia","Cured","All the following I presume, if I was sure it would not happen again: Very heavy ongoing physical effort Heavy meals Getting not enough sleep ","Apart from avoiding the abovementioned : If only I knew Then again, what was a trigger before does not trigger anything the next time.","tenormin 100 - no sides cardioasperine - no sides","Tambocor - did not work as 'stand alone' But helps every time I get an episode together with other current medication Cordarone - caused hyperthyriody - lasted 8 months - cured now","RF ablation Oct 2006. One episode 3 days after ablation. Free of AFIB since !!!!. Off medicine since Jan 2007.","Try to get of Cardarone as everyone says you cannot take this forever (However I take it for 3 years now and aside from some sleeping disorders I do not feel any aggravating side effects) I try to get a fair idea on PVA history for others with +/-same age and condition.","Seeking history of people who have already been treated with pulmonary vein ablation to find out about results on the long term. I am concerned about the number of people having stomach problems together with AF. My GP and Cardio keep saying there is no relation ..... Good luck to all of you trying to get this condition 'solved'",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Michael","USA","70","AFib & AFlutter & Atrial Septal Defect","Lifetime for ASD & Unknown for AFib (maybe 30 years)","Short term - all the time","all the time","Flu condition which would not leave, dizzie spells, passing out","No","AFib is gone, I feel much better, peripheral problems I still have","caffeine, MSG, exertional exercise, stress, over eating, short on rest, ","There were no known preventions at time of Pulmonary Vein Isolation ablation. Nothing worked, even electrical defibrillation.","Warfarin 6MG a day Tiksoyn 250 mcg twice a day (If all goes well, I might be able to give these up)","Will come back and fill this part in","12/1999 St. Jude Medical Mod 5342 Pacemaker 05/2000 Stomach Hernia Repair 09/2002 Cataract left eye 10/2004 Cataract right eye 01/2005 Repair of Cataract left eye 03/2005 Right Flutter ablation 07/2005 Pulmonary Vein Isolation","Will come back and fill this part in. I'm not sure. ","Improve my health by working on what I call sensible recovery from my Pulmonary vein isolation procedure. This involves a daily exercise program of walking and slowly increasing the intensity over many months. Stretching and self massaging my body on a daily basics is also very important. Very light weights are also important especially if one is not physical active. I have found that through all the years of having ASD and AFIB that being physically active (but not over stressing my heart ) is the best medicine. Any kind of house chores I do, painting, gardening, up and down stairs, and much more. For me the important point to remember is not to over exert. Over exerting or doing nothing always caused me AFIB problems. I feel it is very important to exercise my heart through the range of 55 bpm to 110 bpm every day or another way of expressing this is to say I do about 3 hours of moderate activity a day. ",0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,1,1,1,0,0,0,1,1,0,1,1,1,0,0,0,0,0,1,0,1,1,0,0,1,0 "Sue","Kent UK","54","Atrial Fibrillation","8","Many years with almost none with meds. More now.","seconds to days","Illness/Death of Mother","non smoker, tea total (in last few months) bit overweight but was cycling and swimming until recently.","Condition worse in last few months. Drugs gradually increased but effectiveness waning. Quite ill now. Off work.","Alcohol, eating late, stress, digestive problems but don't know if this is result or cause, strenuous activity, tiredness.Vivid dreams. Seems fairly random sometimes. The worst is in bed at night. When I lie down,heart beats so hard it vibrates whole body. I cannot get to sleep, which makes it worse too.","The holding your nose and breathing out thingy very effective sometimes. Rest. Meditation. Having a laugh. Anything that can get your mind off the bloody thing. I think listening to your own heartbeat makes it worse. Avoiding alcohol. I used to smoke marijuana and that made it much worse. Trying to lose weight with some success. magnesium, potassium, cardioace, coenzyme Q10, ","Flecainide Sotalol. Doctors weren't struck on me taking both but they put me on Flecainide alone at first and although heart was regular, it was hard and fast which stopped me sleeping. So GP put me back on Sotalol as well. Worked well for 8 years then became shop steward. Mistake. Symptoms back with a vengeance. Increased meds but taking more and more with lessening effect. Side effects not too bad. Tiredness but worth it to be free of AF. Aspirin.","None","None","Investigating Ablation. Appointment with Cardiologist next week.","This complaint has not been taken seriously by GP's. When I lived in London, my GP told me it was 'my age' I was 46 at the time. He took notice though when I walked into his surgery a month later with a sitting heartbeat of 140. I think things are a bit better now. I was treated at Harefield up until recently and they were very good. When I first git it the registrar told me stright that it gets worse. I hated him for it at the time but am grateful in retrospect.I changed my life. Moved to the seaside, gave up my high stress job, focussed on things I wanted to do. Because of these things I can try and see a positive side to having it. I would not be living here by the lovely coast if I had not developed it. I would still be a work rat in London.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "John L","Bradford, UK","49","Paroxysmal Atrial Fibrullation","2","daily","sometimes 10 mins but occasionally up to 12 hours","None","Good Health","Living with it","Seems to be if I eat a big meal, or lots of wheat based foods, cereals, bread, pizza, or beer and after excercise, walking up many flights of stairs back to the office at lunchtime (after a meal say) I also get a runny nose, red eyes and sneeze a lot after eating slightly too much of these foods and think that the trigger could be food related ? ","None, just wait for it to go away.","Daily Aspirin 50mg (when I remember)","None","unrelated surgery 1990","Delay having to take Atenolol for as long as I possibly can","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Jeff","Reynoldsburg, Ohio","34","AF","5","constant 24/7 controlled w/drugs","constant 24/7 controlled w/drugs","head injury / construction accident ,","non smoker non drinker","they say it's controlled I still feel it","congestive heart failure","cant prevent it","way too many to even start too list, calcium blockers,colesterol meds, potasium, percocet, soma,lunesta,demadex,lasix,effexor,lodine,and more","Rythmol,","3 electro cardio inversions countless IV drugs and stays in the hospital all too say it wont go back into normal rythm","I would like too be able too walk without being out of breath like I use too, I just want to be in normal rythm","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Roseann","Santa Cruz, California","54","Atrial Fibrillation (probably lone if not associated with overweight)","2","Was every 1 to 2 weeks","minutes or hours. Have been cardioverted on 3 of these occasions","Drove 1000 mile trip, exhausted and a bit dehydrated. Happened after I ate a meal and drank coffee (large)","Good...no heart problems, quit smoking 8 years ago. No alcohol, some chocolate (won't quit that!)","Just had a PVI at Stanford by Dr. Andrea Natale a little over a week ago","I'm recovering from the procedure. I had a difficult time breathing right after the procedure. They used 3 liters of fluid into the chest cavity while doing the procedure. They immediately took me off Rythmol but I continue to stay on Toprol and have started Coumadin. I am having PVC's here and there but no afib. I'm hopeful this was a success. I won't know for sure for a few months as the scar tissue has to build up.","For now, just Toprol. I've tried many things during the past two years, however. Nothing was working. Rythmol wasn't even working anymore. I'm interested to know how others are doing after the PVI."," Toprol....sometimes drops my blood pressure. I take Ativan at night as I was becoming very anxious anticipating the afib. I need to get off the ativan now.","Flecainide....didn't like it...didn't keep episode away. Same with Sotolol. Toprol didn't take it away. I think Rhythmol worked well for a time. Inderal never worked at all. In the hospital, IV Cardezem worked well but it dropped my blood pressure way low. Also had IV magnesium.S","Scoliosis in 65...harrington rod procedure. Wonder if spine and vegas nerve are doing this now. Why now and never before? Post procedure...I understand I was a challenge due to my curved spine and metal rods. They had to go more from the upper chest than groin to be able to thread the catheters correctly and get to the angle they needed.","To be afib free after the procedure I just had! ","I've had afib for two years.....now post PVI procedure...I hope to be afib free. I have a lot of past experience with this and hope to talk to those who have had success from the procedure....or not so good success. Would like to know if what I'm feeling is to be expected.... Best wishes to all...please write. Roseann from Santa Cruz Sicilyrosie@aol.com",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Nick Turner","London, UK","50","AF","5.","very variable, flutter probably 2 - 4 episodes a month, often less","< 1min","vomiting","good, ex-smoker, alcohol about 30 units/wk","sinus","all sustained episodes triggered by lying down on left side to sleep. I assume vagally mediated. ","valsalva manouver, coughing","B-blocker","amiodarone - thyrotoxicosis, increased LFT","none","Fingers crossed","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Jim","USA","42","afib","10","Lately, daily","several minutes","none","excellent","constantly annoyed","caffeine, alcohol, lying down at night, exercise","metoprolol helps but doesn't eliminate problem","sotalol","switched from metoprolol to sotalol, but I think metoprolol is better.","none","Thinking about surgery but need to do a lot of research first","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Paul","New Jersey","58","Atrial Fibrilation","20","chronic a-fib","","","","","","","coumadin and pindolol","","none","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sue A","Boston, MA","65","PAT and AFib, A flutter","12","Daily","a few minutes to several hours","Sinusitis","Non smoker, quit alcohol, mild allergies to pollens and dust","Cured","Paroxysmal","None","","Digoxin Atenolol","1st ablation June 21, 2005 for aflutter and minor afib 2nd ablation June 24, 2005 with partial pulmonary vein isolation and over 280 'zaps' 3rd ablation May 2006 with compelte pulmonary vein isolation","Discharged 10/07 from Dr Roy John, head of EP lab at Lahey Clinic in Burlington, MA","I was diagnosed with PAT in 1993, controlled with mild doses of digoxin, then digitoxin plus atenolol. In June 2005 afib was diagnosed (I was in the rhythm at an annual checkup). Dr Roy John (Lahey Clinic - Burlington, MA) took a conservative approach as the first procedure indicated atrial flutter only. The second procedure was focal in nature, and did not control the rate or rhythm. I was on amiodarone and toprol XL. Side effects were a brain that slowed way down and gave me similar symptoms to alzheimers or senility. When I stopped the Amiodarone, the symptoms stopped but the afib came back, leading to the third and final procedure in May 2006. Depression became and issue so toprol was stopped as well. I am now off all medication and feeling better than ever. My brother also has had ablations at Cleveland Clinic (Dr Natale) but had several small strokes. He is now asymptomatic as well - see Peter in Houston on this website.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,1,0,1,0,0,0,1,0,1,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "R Krieger","South Carolina, USA","44","Atrial Fib","12","twice per year (while on flecanide)","6hrs - 2 days","Sleep Apnea","Good health","Mostly under control with medication","Coughing or holding my breath while bending over. Sleeping without a cpap (or losing air pressure)","Medicine","Rhythmol (on it for 1 week now) the only side effect is the bad taste in my mouth. ","I was on flecanide (Tambocor) for 12 years prior. I did not notice any side effects.","No previous heart surgeries. I have had surgeries for broken bones.","On Rhythmol now. If this does not stop the episodes, the doctor recommends ablation.","On the flecanide, I could feel a pain in my chest when I forgot a pill. This helped me to remember to take them. My mother and my Aunt both had Attrial Fib and my mother says her grandmother probably did as well.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Michele","Nevada USA","52","LAF","5 months","varies","varies","Ran 9 miles/then heavy meal","good","struggle with it even on meds","Sugary cereals for breakfast","eat protein for breakfast. ","Inderal - low dosage so far","Was given flecainide in the ER. Caused heart to pause. 4 day stay in the hospital due to drug.","","Too early to tell","I would really like to talk to women around my age who live with this. It's terrible! ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "female","usa","48","paroxsymal a-fib","one","1-2x a month","few minutes to 12 hours","hypertension, hypothyroidism, poss menopause, stress","they tell me good, enjoy my glass of wine a few times a week","fustrated, part time employed, active, mother of 3","i was first diagnosed after being at a wedding, drinking, eating, dancing, all the things most normal people do at weddings. my heart was racing and i felt faint. thought i drank too much. went to er, hr 170, converted to nsr after iv digoxin. after one year of this, i'm not sure what triggers it. food, menstral cycle, stress, anxiety, have had acid reflux for about 2 years prior and untreated hypertension which is now under control. ","i have tried to change my eating habits. i have stopped all caffiene, soda, hard alcohol. I do occassionally drink my glass of red wine. I joined a gym, excercise 3x a week. I don't think it has made much of a difference, but it makes me feel better emotionally. When it is coming on i can feel it, I sit down quietly, take deep breaths, massage my neck, and i take a zanax, this controls the anxiety you get which to be seems uncontrolable. feeling calm helps to get me through the episode. certain times of the month, perhaps going with the menstral cycle, i feel more anxious than others. on these days taking a xanax .25 or even a half helps. I feel as though i have stopped the a-fib from coming on. not sure if this is so, or because i have eleviated the anxiety. but xanax can be habit forming they tell me, so you have to be aware of yourself and not abuse. also, calming walks outside help while taking deep long breaths, but doesn't make it go away. on occasion when i don't convert on my own within a reasonable time frame, my cardiologist suggest taking extra cardizem. this does seem to work. my kdneys have been checked to make sure i am not producing too much adrenilin. ( not sure of spelling. ","180 cardizem, synthroid for hypothyroidism in the a.m. diovan for hypertension noon time 240 cardizem and coumadin in the evening. no problems with any except for occasionally low heart rate 49-50. then i skip a dose of the late cardizem, and start over in the a.m. this sometimes leads to a fast resting heart rate. not in a-fib though because it is steady. "," it took about 3 months to get me to the med dosage i am on since onset. nothing has changed since. i am tolorating well. ","3 c-section babies","i am on my 2nd cardiologist. he is informative, encouraging and reassuring about my a-fib. however, i have an appointment to see a rythum specialist to further educate myself on this fustrating problem. i look forward to hearing what she will say. ","in retrospect i know now that i have probably had this problem for about 6 years. my first time i had a racing heart was as i was driving to the mall, it was like a panic attack. it happened again several times, when i would go to the doctor and explain, he would do an ekg, listen to my heart, find nothing wrong. i complained for a long time, even about pulsating sounds in my ear, acid reflux. nothing was found. not even my hypertension was found because the doctor always checked my left arm, it was not until another doctor took my pressure in the right arm, that i was told i had a problem. I had begun treatment to my hypertension prior to my initial episode. all of my symptoms that i complained about all that time went away, except for this a-fib and occasional anxiety. my echo cardiogram show trace of l atrial enlargement, which they tell me is from my undiagnosed hypertension. this may be causing the a-fib. so excersise, medication and knowing that this is just some thing i have to live with is some what reassuring. I would like to take a trip to europe next year, i said to my cardiologist, what happens if i go into a-fib in the plane, he replied, who gives a shit, what are you going to do , turn the plane around. just enjoy and don't let the a fib run your life. easy for him to say!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Sue","Wales","58","Paroxismal Atrial Fibrillation","4","Yr.1-6 episodes,Yr.2-4 episodes, Yr.3-5 episodes,Yr.4-12 episodes","between 5hrs and 36hrs (mostly at the longer end of this)","None","Good, non-smoker, non-drinker, vegetarian","Pacemaker fitted to correct slow pulse rate by AF episodes are unchanged and always convert back in under 36hrs.","IBS Stomach upsets Eating late in the day Eating very spicy food","Treatment for IBS problems Eat last meal no later than 6pm","Sotolol. Side effects are dizziness, tiredness and lethargy. I don't think it helps prevent the AF much.","Flecanide Amiodarone Could not tolerate either of these drugs, very bad effects so both were stopped.","None","Wait and see. Ablation will only be considered as a very last resort.","This illness has taken over my life. I spend all my time trying to stop it ruining it completely. I think I am doing quite well now that I have a pacemaker.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1 "Barb in PA","USA","74","Paroxysmal AF","08","weekly or more","5 to 24 hours + sometimes days","pneumonia","ashmatic bronchitis","good","caffine, stress, exercise, rest., cold drinks,.many of the same triggers as I get with my migraines","try to avoid stress, before Afib I was a real type A and have learned to relax and enjoy a slower pace","tikosyn cartia, coumadin, lipitor, & toprol ","propanal, altace, aspirin 80mg sotalol - tireness digoxin","appendectomy, laminectomy, hysterecomy, gall bladder, shoulder","Went onto Tikosyn hoping for help but finally had an ablation July 07 which did not succeed and planning on a second one but maybe with another doctor.","Tikosyn has not worked, episodes became very long, for days and days. Ablation did not work, episodes came more often but less duration.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Gordon","San Francisco","70","Afib","4","Every 2 - weeks","4 -14 hours","Panic disorder","Good","In NSR since ablation in November 2005 - Some Ectopic beats","Always comes on in the middle of the night. Sleep?","None","Aspirin. Monopril. Lipitor Allopurinol Atenolol","amiodarone - pooped out after 4 years. Side effect - photosensitivity, double vision, crystals in cornea. Amiodarone caused hyperthyroid condition Flecainide after amiodarone. Vision problems and photosensivity Still on Atenolol with some lower stamina and heart rate.","Right side (flutter) ablation in 2003. PVAI at Marin General 11/03/05 by Dr.s Natale/Hongo","Stay in NSR Get off Meds","Ablation by Dr. Natale was one of the better decisions I have made regarding my health.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Steve","Northern Ireland","53","Dilated Cardiomyopathy with permanent Atrial Fibrillation","4 years","Permanent last 24 months","permanent","Stress/anxiety","Exsmoker and Exdrinker (moderate)","Breathless, fluid retention, dizziness (mornings), anxiety, depression","Dilated Cardiomyopathy. Normal coronary arteries.","Didn't find one yet!","Digoxin Amias Bisoprolol Frusimide Multivitamines Thaimine Warferin Folic acid Cipralex Atorvastatin Main side effects removed sinced I stopped carvedilol, and got bisoprolol instead ","Amioderone - Dead man walking, could not tolerate it, asleep at the breakfast table, until bedtime. Going to sleep mid conversation etc became slate grey. When given with metroprolol, violently sick, blood pressure dropped through the floor, nurses tilting the bed to maintain blood flow to head. Fleccainide","None. ","Remove as much stress / anxiety from our lives with early retirement and live a smoke free, non drinking, simpler life.","My family have a history of thyroid with my grandmother and my sister badly affected. Three cousins also affected by thyroid. Also a wide ranging number of diabetics. I have not tested positive to either problem. Since had first contact with a cousin in New Zealand, both he and his mother have same problem - familial?",0,1,0,1,1,0,0,0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Tony","Las Vegas","51","lone afib","1","3 times in 1 year","12hr, 3hr, 12hr","none","good, never smoked, drink some","good, not cured","none known","ginger for pac/pvc","toprol 50 x1/day","none","none","cryo-ablation","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Lou","New York","58","AFib","1/2","3 x a week","1 to 24 hours","None","Excellent","Still with Afib","Sugar, stress, lay on left side.","None","Flecaine, atenanol, warfarin.... Drowsy, lethargic, slow to get up to full exercise speed","sotalol and digoxin. Had not effect on afib...but had the same symtoms as above, lethargic, sleepy","None for Afib. achilles tendon and arthritis.","None unless the afib gets worse","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Kathleen","Edmonton, Canada","33","Paroxysmal Atrial Fibrillation (primarily vagal), flutter, SVT","1 year (diagnosed)","Once a day","5min - 72 hours","none","Smoker","OK, living with it","caffeine chocolate rest AFTER exertion cold drinks/ice cream MSG stress slouching down when sitting bending over laying on left side","???","Verapamil 360 SR/day - makes me bloated, tired, & constipated, but noticeably reduces frequency & severity of AF episodes. Seems to be raising blood pressure a bit though. Rhythmol - 150mgx3 day - makes me a little dizzy but OK Aspirin 81mg/day","Metprolol - 3 trips to the ER as BP dropped & I'd pass out...wake up to speeding heart (though not necessarily in AFIB), shaking all over & short of breath,","None","Wait & see... if Verapamil keeps the episodes down. Considering the mini-maze","I'd do anything for an iced cappucino that wouldn't set off the AF!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,1,0,1,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "alexandru roseanu","Romania Bucharest","","atrial fibrilation","3","every day","more 60 min","2002","excelent","","unknow","yes","concor 5 mg/day","","","","",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Matt","British Columbia","63","AF","4.5","varies--every 2 days recently","2-24 hours","none","20 lbs o/weight, non-smoker(5 years),no more than 2-3 beers,","ongoing","I believe it may be a combination of fatigue, alcohol(even in moderate amounts},lying on left side & a heavy meal consumed later than usual. However, this is speculative at this time.","At the moment nothing other than trying to avoid above conditions.","Amiodarone which makes my skin more sensitive to sun; also results in an itchy condition on my face, neck, arms & back. Warfarin- no side effects that I'm aware of.","none","Dual chamber pacemaker installed in Jan 05 due to lower than normal hb at times.","Will see how amiodarone plays out as I've been on & of it a few times(presently back on). Would consider ablation to get of meds but need to know more about success rate. Would appreciate hearing from others who had this procedure done.","This is an absolutely great site!",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,1,0 "James","","33","Lone Prox Afib","9","5+ / Wk","1-12hrs","None Known","Perfect Health","Living with Afib","Lying Down, After exercise, After large meals, cooking with lots of herbs, spices,sitting for long periods of time.","Lying on Right Side, Exercise - when Afib PACs / PVCs start, ","Flecanide 50mg X2/ day- However, does not always prevent all episodes - certain break through episodes - usually with a faster Ventrical response - have noticed 220BPM on an ECG when in AFIB w/ Flec. Flec 'on demand' ALWAYS works. 50mg chewed with Pedialite will convert 100% of the time 1-2hrs tops. Other side effects of Flec - Some chest pain, lack of energy, vision - but, at the lower dose, one adjusts to it.","Beta Blocker- Toprol XL - 50mg / day. Caused more Afib then it prevented - low low BP, really low HR. Episodes were not noticably more controlled then w/o any med,. Did not like the lack of energy and breathless response. Also - some feeling of 'weezing' on deep breaths.","None","Possible Ablation PVI, etc. Concerned about stenosis","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Shaun","Boston, MA, USA","51","Paroxysmal A-Fib","6","18 days","30 hours","none","Good","suffering from A-Fib","Not been able to indentify any!","none","Atenolol and Aspirin, no side effects","Tambobor, sever side effects","none","Plane to have pulmonary vein ablation ","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Pauline","UK","46","Paroxysmal Atrial Fibrillation","3 years since TIA not know when it started","every day","Varies from few seconds to hours","","Good health, fit, never smoked very occasional drink excerise regular, about 10 lb overweight","feel ok none of the meds are working, coping with the A fib","Not sure as I am in and out of A fib throughout the day resting night time bouts occur between 2-4am sitting down PMT","magnesium helps with the symptoms Feel better if I excersise","Warfarin Flecanide - no side effects but not working on the a fib","Atenelol - feeling very tired and ineffective, dizzy when standing up or bending down, cold handa and feet. I didn't like taking it Amiodorone - would not take it again started it when in hospital - when I found out about the side effects told the doctor that I did not want to take it sotolol - slowed heart rate - passed out ","Duel chamber Pacemaker fitted in Jan 2003 due to slow heart rate adn 5 second pauses","Waiting for further investigation - while coping with the condition. I have made a decision to do a degree course and further my education in september,I am a firm believer in life long learning","I am not sure how long I have had the condition. Was told after I had a TIA. The more research I do the more I think I could have had the condition for many years. It is getting worse up from 31% last year to 42% this year. I have little faith in the meds every working and I certainly do not want to take ones that make you feel awful. I think I have the Vagal type which would explain the averse effect of the beta blockers. I am really glad that I found this site, if helps to know that there are other like me. I only wish that the medical proffession took the condition more seriously, I know it will not kill you, but the symptoms are not very pleasent",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1 "Yann","Montreal, Canada","29","October 2004","1 - 1/2","1 every 6-8 months","24 to 30 hours","none","Good. I quit smoking after last episode. I drink wine almost every night (2 or 3 glasses). Very fit (training for marathon), run 5 times a week","i had 1 ablation, but a another episode since then. Currently taking Rythmol and Lopressor","Heavy meals.","Changes my diet... We will see if it helps","Rythmol and Lopressor. Very slow heart beat, fatigue, i am gaining weight","none","1 testicular operation and 1 ablation","if it continues and if it increase frequency i will take my chance for another ablation. Since the last one i have started taking medication. Hopefully it will prevent new episode","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "anon","US","57","atrial fibrillation",".5","every 14 days; every two weeks","3 - 9 hours","benign paroxysmal positional vertigo","managed hypertension, managed high cholesterol","in sinus","large meals, sitting while eating, stress, most vulnerable in bed before sleep, or in bed just after waking","eating light evening meal early, coughing, standing, walking","warfarin, no known side effects atenolol, unknown side effects hydrochlorothiazide, unknown side effects potassium supplement, unkown side effects lipitor, unknown side effects allegra, unknown side effects beconase, unknown side effects prednisolone eye drops, unknown side effects xalatan eye drops, unknown side effects celexa, unknown side effects centrum multiple vitamin, unkown side effects ","aspirin, upset stomach if not enteric","no major surgeries. bunionectomy 1987, tonsilectomy 1950's, ","travel, gardening, walking, urban pedestrian advocacy, bicycling, lifelong learning","very useful database to give me perspective on my own afib, thanks.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Angela","Doncaster","59","Paroxysmal Atrial Fibbrilation","14","Daily or Weekly","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Anon","Tonbridge, UK","47","Paroxysmal Atrial Fibrillation","2-3","About every 5-6 weeks on average","24-36 hours","Stress at work","Very fit - do lots of running, moderate+ drinker, very good health otherwise","Living with it, evading permanent medication or ablation","Stress is a primary trigger and is always prevalent before an attack along with one or more of the following secondary triggers: - alchohol: usually only one or two beers - pizza and beer together (usually only one beer) - lying down: attacks occur when relaxing on the sofa or when asleep in bed - having a lot of things to fit in a day (e.g. travelling to muliple appointments) ","None of the usual tricks seem to work for me. However I've discovered recently is that my heart sometimes races for periods of about 30secs or so the day before an attack of AF. My cardiologist thinks this could actually be what is causing the AF. So if I get this I try and destress as much as possible and take propanalol. I haven't assesed yet whether this is effective in practice. I have also discovered that, for me, my AF attacks seem to go in three phases - these are subjective but I have got to know these stages fairly well: phase 1 - the heartbeat starts to go irregular but the irregularity does not seem that excessive (may be 4-8 hours) phase 2 - the heartbeat is extremely irregular ( may be 16-24 hours) phase 3 - the heartbeat becomes less irregular and almost seems to be trying to come back to a normal rythym. When I have got to stage 3 I usually find a short relaxed work often flips the heart back in Sinus rythym. I may have to try this several times some hours apart before it works. I suspect the key here is more that the walk relaxes me rather than the gentle exercise. There is no hope of this working in phase 1 or 2.","Supposed to be taking a daily aspirin (75mg) which I do when I remember and have them (which isn't very often). I take Propanolol when the attacks occur and stop taking it when back in Sinus. (10-20msg 3 times a day). This does seem to help in that it reduces the length of the attacks. Also have the option of taking Flecainide permanently instead of Propanolol, have resisted this so far as don't want to go on permanent medication if I can avoid it as the cardiologist has said once I go on it he may not be able to guarantee I can come off it.","Atenolol - just made me dizzy when I got up, didn't like it Sotalol - Too strong, doctor said it lowered my BP too much, made me very chilled (quite nice stuff actually!) but also zonked me out too much. Think it was probably quite effective as an anti-aryythmic but just too strong for me.","Minor (unrelated) operation in 1988.","Cardiologist has suggested an ablation may be a possibility if still having problems in 6-9 months. However last few years have been extremely stressful and this stress should be significantly reduced over the next few, so am hoping this will eliminate the AF. Am also trying to avoid medication as long as I can.","This is a very scary condition when it first happens to you. I have been looked at by medics and told my condition is not life threatening although I am supposed to take daily aspirin to minimise the risks of stroke when the attacks occur. The worst thing for me now is that when these attacks happen I feel tired and weak whilst in AF and for a day or so afterwards (the latter I suspect because I have been taking Propanolol during the attack and it stays in the system). I cannot run or cycle when these attacks occur which is very frustrating as I really enjoy both and know that I am losong a great source of stress relief. When I am in AF I feel it is difficult to cope with even minimal stress levels and this just increases my anxiety about the attack. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ed FL","Sarasota","70","A-fib","13","varies","2 days","none","good","Recently on Tikosyn","","","Tikosyn no side effects as yet","Amiodarone no side effects noted Rythmol ' ' ' ' Betapace ' ' ' '","None","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Fred","Seattle","45","Paroxysmal AFib","1","every 2.5 months","12-20 hours","stress at work.","healthy non-smoker","on medication therapy","pizza, emotional stress, excitement. Two of three episodes inlcuded late night pizza consumption. PAC salvos","n/a Possible potasium and magnesium supplements. These seem to limit PACs which can lead to Afib.","Rythmol 225SR BID, Lopressor 25 BID, Maxide","n/a","n/a","meds for a year or two, then to consider ablation as thechnologies evolve.","This is a nightmare. It is like a nemisis in my back-pocket that can strike at any time. My emotional reaction to it has been very poor. PTSD?",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Susan K","Callander Ont","49","Atrila Fibrillation/Flutter /Rheumatic Heart Disease","22 years","daily","1-48 hrs","mechanical heart vlave replacements mitral and aortic","good","miserable","","","amiodarone/coumadin/digoxin/vasotec","verapamil/rythmol/cadizam","1986 Mitral valve commisorotomy 2004 valve replacemnt mitral and aortic","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1 "Elizabeth B","Nottingham , UK","57","paroxysmal A fib","diagnosed July 2004 but have had problems probably due to Afib for 10 to 20 years","every 10 days (approx)","6-48 hours","training hard for black belt in tae kwon do when very stressed due to divorce","diagnosed asthma 1992 , now thought breathlessness caused by A fib","good general health, problems tolerating exercise and feel perpetually tired when in Afib","stress, vigorous exercise, recovery period after exercise, tiredness, alcohol, heavy meal","","1. bisoprolol (cardicor) 1.25 to 2.5 mg per day side effects: tiredness, depression, slow heart rate 2. Aspirin 300 milligram tablet daily","10 years on salmeterol and beclamethasone for supposed asthma - now discontinued prescribed digoxin when first diagnosed - remained in Afib for 2 weeks until I discontinued tablets","","would like catheter ablation treatment eventually but cardiologist advises waiting until more research on use of the technique for Afib has been carried out. Currently, main aim is to keep in sinus rhythm as much as possible.","I used to enjoy running but now running for more than a mile or two at a slow pace causes my Afib. I have a naturally slow heart rhythm from all my running (approx 45 bpm) and beta-blockers slow this down to the extent that they sometimes give me problems. I feel OK most of the time when I'm in sinus rhythm but in Afib I quickly get breathless, feel tired and find even climbing stairs, housework etc difficult. Sometimes get very depressed - suspect this is side effect of the beta blockers",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon","PA, USA","58","atrial fib","5","1/month","3-9 hours","","excellent, high BP, high cholestrol","controled w/medication","large meals, late meals, spicy foods late, always while sleeping, frequently after stressful situation","sleep on right side","aspirin, atenolol, digitek, Occuvite (vision formula multi vitamin), lipitor","Have used Quinidine as a recovery drug, but it doesn't seem to speed up conversion.","none","","Personally convinced my afib is vagally mediated.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jeanne Richards","Norwich, Vermont","54","afib","five years","three to four times a year","few minutes to twelve hours","none","never smoked, enjoyed wine but not often any more, overweight"," I enjoy pretty good health, but worry about these episodes constantly.","Stress {usually delayed a couple days after a stressful incident.} Too much alcohol. Caffiene. There are lots of things like bending or raising my arms that will get me going again when I feel like I'm starting to come out of afib. Sometime no obvious trigger. This is hard to describe, because it is different every time. Once I was lying on my right side and it started, but I hear lying on the left side is supposed to be the trigger.","The obvious ones are the things I put into my system. What worries me most is that stress cannot be avoided. Just living life can be stressful. My twenty-five year old daughter was diagnosed with melanoma two years ago and her Dad, my first husband and his brother both died of it. Anne is doing great, but I would be dishonest to say it isn't far from my mind. Everyone has a story of stressful things. I avoid caffiene, and rarely have a drink these days. I can sometime stop a'flip-floppy' heart by lying down or using the computer to distract myself. "," Toprol XL 100mg once a day and warfarin. The toprol makes me thirsty. I have been taking these for two years. ","none","none","Being more open about this condition and learning more about it. A healthy life style, trying to avoid the things that set me off. If this doesn't help I will take whatever steps I need to to cure this. ","Just reading all the things I wrote down does not make this whole situation look as complicated as it is. I have palpitations all the time that make me feel like I'm going to go out of nsr and I get terrified. I feel like I have adrenelin flying through me. The depression is sometimes overwhelming, yet when I read some of these other folks stories I can't imagine having afib happen constantly, so I know it could be so much worse. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Karen","New Jersey","24","Lone Atrial Fibrillation and Flutter","8","Weekly","1 hour to 6","None","None","Middle of the road","Preservatives (in food) Stress Tiredness Dehydration ","","Toprol XL (75 mgs daily) (Exhaustion, vertigo) Flecainide (50 mgs daily) (Flutter) Baby Aspirin (81 mgs daily) Synthroid (88 mcgs daily) For Hypothyroidism","Propafenone (300 mgs daily) (Muscle shakes, passing out) Verapamil (Tiredness) Cartia (tiredness, vertigo) (Didn't really cause many side affects, but didn't control afib/flutter) ","EP Study, July 1997 (yielded nothing) EP Study, January 2004 (yielded EKG showing Afib)","Looking to catch this on an EKG, hope to have an ablation to cure it. ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,1,1,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Régis Couture","Roberval, Canada","52","Lone atrial fibrillation (paroxismal)","3","twice month before ablation (2005/03/17); each 2 days since","10 hours (before ablation); 30 hours since","Hockey tournament (stopped during a game; stress from organizing all)","Excellent; athletic; drinker (1 bottle wine about 3 times a week)","Recovery from ablation that aggravate my AF","Majority: getting in bed; sleep Minority: stress, vagal stress","Exercise","Amiodarone (cordarone): deposits o cornea, insomnia Avapro TM: for hypertension Warfarine (coumadin): only for 3 weeks (post-ablation), none yet, wondering if it can trigger AF","Sotalol: extreme bradychardia (<40 bpm)","Ablation done in Québec on march 17, 2005. Still on recovery. Actually my AF episodes are very more often. Before ablation: about ten hours, each two weeks (twice a month). After ablation: about 26-30 hours, each two days. First time, I see someone for whom AF was aggravated by ablation (I pretty read much of the current medical litterature). First time my electrophysiologist see this too","Appointment with EP, april 11. Considering new medication or new ablation. I'm pretty much bewildered.","I thought my ablation would have killed AF. So i am a bit disappointed. But we'll see.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Wes","Atlanta,GA","47","Atrial Fibrillation","3 years","Average 1-2 every couple of weeks.","1-18 hours","Started one day when I got home from work.","good","Dealing with it and going on as best I can. Trying different medications.","excessive fatigue extreme stress overeating alcohol(I notice just about any amount will do it). ","Avoid overeating especially in the evening. Get more rest. Try to keep stress down as much as possible whenever possible. Avoid alcohol.","Betapace 120mg x 2 per day Aspirin - 81mg x 1 per day. Toprol - 25mg(I take 1 if in Afib for several hours). Magnesium - 250mg x 1 day.","Tambocor - made condition worse and episodes more intense. ","Tonsils removed 1979.","Continue on Betapace and see what happens. Although very very difficult try not to think so much about the next episode. ","In the 3 years I have had this condition I have made some lifestyle changes. Extreme stress, fatigue and especially alcohol seem to be my major factors. Always had lots of anxiety attacks as a kid. Very frustrating dealing with Afib or the possibility of yet another episode on daily basis. Considering ablation at some point. Have spoken with my doctor about this recently. Not decision yet. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Graham","Tauranga NEWZEALAND.","67","atrial fibrillation","10yrs","daily","more or less continuous","type 2 diabeties, diet controlled","good non smoker, daily glass of wine. Walked almost daily until the last six months.","very ill. He has been to hospital for three stays 4-6 days duration, From January 2005 Drs and cardiologist have change medications which made him so ill. I think if he could have curled up and died he would have.","strenuous excercise. Graham hasn't noticed any particular foods to trigger his A.F.","resting","nil","sotalol,headaches dizziness, nausea. Flickinide headaches, dizzines, nausea. cardizim- pounding heart and chest pains. Digoxin Headaches dizziness and Nausea. Betaloc. Headaches dizziness and Nausea. warfarin Headaches dizziness and Nausea. Most of these medcations made Graham very lathargic also. ","tendenitis in wrist. Piles.","Keep on looking. Have heard that a Herbal practioner in Christchurch N.Z. Has had some success treating A.F. If all else fails we will give him a shot. 30. 04.05. Found herbal practioner in Tauranga and she is very good. He has stated magnesium potssium and Vitamin 'C'.","Graham has been unwell for 18mths now and his G.P. wouldn't listen. In the end he and the G.P. Had words and Graham hasn't been back. ALL HE AND I WANT IS FOR HIM TO LEAD A NORMAL HAPPY RETIREMENT. At Present he has been refered to a G.P. Who has an interest in herbal remedies. She has put him on Magnesium Potassium and vitimum 'C' Also the DR Peter J. A'damo book eat right for your blood type. Hates all the awful side effects that the medications bring. He is so frustrated with the inactivity and wants to get back to a normal life. 30.04.05 Graham saw the cardiologist 2 weeks ago. He was very pleased that Graham was looking so much better without the meds. Did an ECG and his heart is still barreling along at the rate of knots which is not good. He talked about ablation versus pacemaker. Unfortunately neither procedure are done in our local hospital. Means a visit to either Christchurch for ablation or Hamilton for the pacemaker. Asked about the Maze procedure.It hasn't reached our friendly isles yet!! Must ask if it is done in Australia, will go there if need be!! Graham will have to go back on warfarin prior to having any procedure done which dosen't thrill him. We don't know why his body is reacting so badly to the meds. Has always been able to take meds in the past.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "jk","australia","42","Af","6 yrs","5 long over last 6 yrs , short ones every 1-2 weeks","long ones 8-21 hrs..currently in af for 6 days, otherwise only last few seconds to 10 seconds","nil","no smoke, no asthma in good health..no medications. Have had irritable bowel 15 years ago","on Noten beta blocker..but walking aound and getting used to the drug and warfarin","EACH major EPISODE SEEMS TO ALWAYS be related to food...The first major espisode in 1999 was set off after a large meal which included a lot of peanut satay sauce. I had 3 more episodes in 2002 between Sept and Dec. I noticed that peppers or capsicums were in each of my meals preceding these attacks.Also my meal was a large serve. When I recognised this, I made changes and as a result, it significantly reduced the number of minor af episodes. I also had no more major attacks until this week. I had a larger that normal meal of 7 supermarket sausages that were salty and these later made a rather acidic ast feeling in my gut. I had no salads with this. At midnight, I got into bed...then after a short time, it started into AF. I can feel that when the contents of my stomach enter into the intestine,thats when the Af will start. Triggers that may cause short episodes include: stress, certain positions when lying down. ","Avoid spicy or too much of 1 food Avoid large meals before bed....have a larger meal during the day if you have to Have easier to digest meals for the evening Avoid foods that will make you feel acidic in the stomach If you eat late, stay awake and in a more upright position..if it means going to bed or sleep at 2-3am.do it If you are doing an activity, even if it is thinking about something that causes a short episode, immediately cease that thought and move onto that thought at a later time ","NOTEN...has reduced Bp to a lower level 100/60./.make me a bit drowsy but this could also be part of the condition Warfarin..no side effects yet","nil","nil","if it doesnt revert,will probably have cardio version in 3 weeks","I wish that there was more info available on the internet about this. The American Cardiology and all those other sites dont seem to be satisfactorily researching the vagal miediated type of af which I am almost convinced is whats happened with me. I found a anon website www.vagalafibinfo.fsnet.co.uk/vmpaf_faq.htm. This site made the most sense to me and while I know its not been done by a medical professional, it has been done by a sufferer of af. Can you please advise if there are any other sites that I can go to? Are there any clinicla trials that you are aware of?..Ive ticked the boxes below for treatments received over all of the episodes Ive had. I may have missed some...thanks..james kerrigan",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ralph","Phoenix, AZ","47","atrial fibrillation","6 months","undetermined","15 minutes to several hours","unknown","Transverse myelitis- asthma- acid reflux- AF","I must consider myself as ill, but not so bad that I can't work.","Caffeine, exhaustion, chocolate, alcohol.","","verapamil","cardizem - caused headaches","None","Hopefully to keep working, somehow. ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Willie","Scottish Borders UK","61","paroxysmal a fib/dilated left atrium/left bundle branch block","36","six or so annually","one lasted forty days, most around 50 hours","suspected viral myocarditis (back in 1971)","non smoker, light drinker, good general health","very symptomatic while in a fib- breathless and weak/ fit and active when not in a fib","Usually happens resting in bed. Alcohol has almost certainly been a factor on one or two occasions. Very cold ice cream caused one episode, exercise caused one once years ago, suspect too much tea also on another occasion. And tiredness. Usually it's difficult to put the finger on exactly what the trigger is.","Holding my breath worked once. I've tried all the other tricks without success. I avoid alcohol these days and take very little.","Bisoprolol 2.5mg daily, Aspirin 75mg, Warfarin if long episode experienced Bloating, headache, feeling cold, insomnia","Procaineamide Inderal/Eraldin Sotalol (which I had to come off- it was like poison for me) Rythmol Digoxin Bloating, tiredness, sleeplessness. ","Had an ablation procedure at Edinburgh Royal Infirmary in late November 2008. No problems whatsoever since. Now, eleven months later, appear to be cured after thirty eight years of paroxysmal atrial fibrillation. Stopped taking medications five months ago. Now in excellent health and enjoying the benefits of being free from the effects of both a-fib and its medications.","Hope to remain free of atrial fibrillation permanently.","A very unpleasant and restricting condition. Don't feel much progress has been made in the past thirty odd years until fairly recently. I very much identify with sufferers and wish anyone going for an ablation the best of luck. It appears to have fixed me after almost forty years and, although I know it doesn't work for everyone, I hope it works for you too. ",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,1,0 "Dom","Illinois","","","","","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "anon","Richmond, Surrey","58","paroxysmal AF","1-2","6-14 per week","30-60mins","nil","minimal asthma","semi-controlled","possible caffeine xs alcohol lack of sleep","","sotalol, e/c aspirin","","","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John","Las Vegas, NV","51","Parokamyl Atrial Fib","15","twice a month","30 hours","","Overweight","Getting By","Caffine, Hot Tub, Stress, but mostly nothing.","","Rythmol, 300mg 3x day Toporol XL","","None","None","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Larry","British Columbia, Canada","53","PAF","3","approx 1 every 6 weeks @ this time","1 hour up to 36 hours","none","fair- high blood pressure-diagnosed/depression and anxiety-on proper diet and exercise regimen-waiting for resolution of condition before tackling cholesterol","on medical leave-episodes while uncomfortable are not so bad that I can't function-better since medication but on medication for 3 years","alcohol-work related stress-not eating regularly-late meals ie long period from last meal and then eating heavily-strenuous work without proper hydration","Staying with small meals throughout day as opposed to 3 squares/day seem to reduce frequency- Since away from lousy work situation while on medical leave episodes are much less frequent.","Apo-Sotalol-Accupril-Effexor-Aspirin--Drowsiness, dry mouth, blurred vision, occasionally lightheaded, little or no urine, sexual side effects ","propafenone, atenolol- daily rapid heartbeat along with irregular heartbeat episodes, constant drowsiness and dizziness- stopped taking after 3 weeks and returned to Sotalol","none for this condition- past surgeries for testicular cancer","","Have finally had PVA procedure done. Only a week but no new episodes. Still a bit weak but am sure to improve. My procedure took just under 2 hours. Person before me was in for 6. ",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Jemma Bailey-Kunte","upstate, NY","53","lone atrial fib","5","constant","","none known","asthmatic, low stress tolerance","constant a-fib interferes minimally","stress ilness lack of sleep beta agonists (asthma meds) high carbohydrate meal","","digoxin coumadin","propaferone--fatigue solatol--fatigue, difficulty breatheing","PVIA july 2004 Johns Hopkins no conversion propafanone and attempted cardioversion 9/04-unsucessful solatol and attempted cardioversion 12/04-unsuccessful","REturn to previous EP or investigate new EP or procudure. Have been experiencing some increasing SOB and concerned with pulmonary stenosis.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "oddlo","Boston, MA","37","LAF","8","1-2 / week","8-12 hours","none","good overall health","experimenting with differnet approaches","alchohol high stress drinking cold glass of water diet? ","avoidance of triggers modified diet?","Cartia Xt Propafenone (pil in pocket approach)","digoxin- really did nothing and probalby was deleterious beta blockers- made me dizzy and fatigued. Did not help","Just oral surgery for wisdom teeth.","depending upon outcome of meds I may have to have a surgical procedure in the coming years.","AF is mentally driang even though the physical side effects are tolerable. Trying one approach after another and having most of them just not work tends to suck the wind out of your sails after a while but I just have to keep plugging away.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "anon","New Jesey","50","5 years","unknown","daily","seconds to hours","Rheumatic Heart Disease","good","valve disease worsening a-fib more frequent and severe","hard to tell, stress ","","hyzaar digoxin coumadin Lasix Potassium","","mitral valvuloplasty 2003","Replacement of Aortic and Mitral valves","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,1,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1 "Helga","Tampa, FL","50","afib/flutter","5+","weekly","minutes to 2 days","Stress and GERDS","overweight, hypertension (controlled)","moderate control after flutter ablation and Rythmol","eating the wrong foods (possible food allergies)or overeating, alcohol, exercising without hydration, hypoglycemia, indigestion, not properly warming up prior to weight lifting, caffeine, fatigue","eat healthful foods, avoid stress, take pepcid or antacids at first sign of indigestion, exercise, maintain normal weight, avoid herbal interactions such as arnica or kelp,","Rythmol SR 425 bid - no side effects Verapamil SR 120 bid - no side effects Xanax 0.25 PRN for anxiety - tired","","Flutter ablation ","Plan to have AF ablation when technique improves","Would like to see more research on GERDS and Vagal afib",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,1,1,0,0,1,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "kellyj","usa","33","atrial fib","7-8","getting worse by the year now, once a month","19-20 hours","none","slight smoker/ moderate drinker","depressed!","crackers,bread,diet pop, antihistimens spelling?, cough medicine,high stress are the worse.but this does not happen all the time, just some of the times.","have none. it has no ryhme, or reason. ","I take inderal la 80mg twice daily just started that no side effects.","","knee surgery 3 years ago.","just wish these would stop","I was told that the afib that I have there is nothing out there as far as a cure. Ablation cannot be done on me because I have numerous places in my heart where I have these trigger points. i am a guinea pig.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Patrick Ford","San Jose, CA","45","Paroxysmal Atrial Fibrillation","2","Several times per week","from two to over 24 hours","none","good","On medical disability leave from work due to frequency and intensity of episodes","Exertion","None","Warfarin Diltiazem Flecainide Leads to occasional bradycardia and dizzyness","Digitek led to headaches and nausea","None","Seeking pulmonary vein isolation surgery from the Cleveland Clinic.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Mike","USA","45","A-Fib","<1","?","?","N/A","Yearly physicals for the last sixteen years indicated very good condiction. Ocasional Drinker","Mich","Previouse episodes were diagnosed as general anxiety attacks. At the time of my fist attack, I was under allot of stress on the job.","Eat a heathly diet and maintain a reasonble weight.","Zocor, Corarone, Effexor XR, Coumadin, Cardizim Feel Tired","Effexor XR Slightly Tired","Appendix at age four.","Try to keep my job and fight like hell!!!!!!!!!!!","While at work my heart started racing and I thought it was just another anxiety attack. This time it seemed to last much longer and I felt dizzy and felt pressure on my chest. I ask a co-worker too take me to the medical department to to see the plant RN to be checked out. My heart rate was 210 and my blood pressure was 65/49. EMS was called and I was hospitalized for five days.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0 "Herm","Boston, Ma area","75","afib","13","1/mo","18hrs","bought a boat","excellent","PVA done 10/04..still having af","stress, anxiety, excercise, caffiene, alcohol, nothing","none","tenormin, benicar, coumadin, vitamins, ","digioxin, rymthol, cardizem..no help or the condition worsened","Pulmanary vein ablation performed at Mass General on 10/22/04...still experiencing afib every 2 months till last August when I began to experience afibs once a week averaging 18 hours????i am now experiencing mitrial valve regurgitation. Acute. Was not there before the Ablation on 10/22/04. per echo results.","Meeting at MGH on Feb 17 to review these tests: VQ, echocardigram, stress test. ","I have been an active runner for the past 27 years. I want to continue...",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Terry Harrison","Dayton, OH","57","AFIB","4","2 to 7 days","4 to 30 hours","none","general health is good. Smoker","Cured","Maybe Stress","None","Lipitor ","Betapace Amiodarone Coumidin","Pulmonary Vein Ablation January 2005","","Had Pulmonary Vein Ablation Procedure Jan 05. A rough road with PVC's frequently, 5 days in a row, but no AF. Now occasional PVC's, once or twice a week, but only last a couple of minutes.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Nell J","Manassas, VA, USA","56","atrial fibrillation","1",">3 per week",">1 hour <12 hours","unknown","smoker, general health good","recently diagnosed, under doctors care, trying to determine course of action","spicey foods, stress, lack of rest, laying on left side","","cardazem toprol SR These medications make me extremely sleepy which affects my ability to drive and to work.","none","none","To learn all I can about the condition and pay close attention to the dos an don'ts of my own body","My condition went from very occasionally to every other day almost overnight. The medications seem to make me more uncomfortable than waiting out an episode. Once the Dr has finished all his tests, I will try to determine how to keep the episodes at a minimum and stay away from the drugs. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Carol Gibson","tyne and wear uk","53","atrial fibrillation","two years","every two weeks","3 to 7 days","High blood pressure started about the same time, don`t know if the bp caused af or visa versa","never smoked, very occasional drinker , overweight general health exelent, Have full time job as a district nurse,","still in af symptoms. Breathless on excertion, oedema of lower legs, pre syncope, occasional angina, nocturnal dyspnoea, symptoms vary, from very ill to feeling slightly unwell.","No triggers identified. episodes start without warning, at various times day and night.","none","10.8.05 change in meds from atenolol to sotalol 160mg bd. 27.5.06 change in meds from sotalol to Flecainide 50mg bd. digoxin 250mg daily ramipril 10mg daily amlodipine 5mg daily simvastatin 40mg daily warfarin daily levothyroxine 25mcg daily","atenolol 100mg daily changed to sotalol 10.8.05 usual side effects. lethargy, ankle oedema, changes in eyesight blurred vision.","no history of surgery, have had one cardioversion, in nsr for three days then reverted back into persistant af.","March 2005 Awaiting angiography. and possible second cardioversion. 27.5.05 angiogram done, results normal, no atheroma, heart normal size. Electro Cardioversion with amiodarone medication was to be next step. However thyroid function test was borderline, my cardiologist did not want to use amiodarone, as this will further effect my thyroid. He felt that he had reached the limits of his treatments. As all tests to-date have been normal I have been referred to Freeman hospital, which is a specialist heart centre, and an electrophysiologist for further treatment. 10.8.05 new cardiologist has found my latest echo shows heart normal but evidence of pulmonary hypertension, still waiting to have the cause diagnosed. Update 27.3.06. still on same medications. pulmonary hypertension investigated, most likely due to back pressure from AF. new diagnosis of left ventricular diastolic dysfunction. Next review with consultant, 26.5.06. 27.5.06 Afib occuring more frequently over past weeks. Saw consultant today meds changed from Sotalol to Flecainide 50mg bd. "," I feel that proceedures and treatments are too few and far between to have any impact on af, that this condition is stressful enough without all the waiting, don`t know if this is due to N.H.S. limitations or hospital proceedure. 27.3.06. update, I feel that the medication side effects are part of the problem. Still hoping for a cure that would end or reduce the need for the meds.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,1,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Neil","Hampshire, UK","62","Paroxysmal AF","5","2 or 3 times per 12 months","72 hrs to 10 days","Stress","Good, non-smoker, non drinker (now)","Paroxysmal AF","Stress, excessive physical exercise, alcohol, caffeine","Avoid above as far as possible","Sotalol 80mg 3 times a day 75mg Aspirin ","Fatigue, falling asleep, cold hands and feet","None","Investigate alternatives to Sotalol (except Amiodarone) and possibly RFI ablation","Also had high blood pressure now under contol with medication",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","Manchester, UK","41","AF","4","approx 1-2 a year","1hour- 48hours","none","good","undergoing investigations","vomiting","","warfarin","","","","People don't seem convinced brought on by vomiting but each time it has happened has starting immediately after vomiting",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "grant","mohnton, pa","69","afib","7 years","episodes caused by life style","short and seldom","","diabetic","controled","overeating,phyisical stress, mental stress,","","dofetilide,toprol xl,warfarin,lisinopril,protonix,zocor ","rythmol,corderone,betapace,digitoxin with time drugs did not work. many side effects ","","","hope dofetilide continues to work with no side effects have been on drug for 2 years with very good results. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Henry","Los Angeles","57","stand alone Afib.","7","in the begining once a year now every couple of month","10 min to 7 hours","none","good , non smoker, non drinker","i just had one episode about 10 days ago lasted abour 15 minutes then it went away","the first few time it was caused only by drinking alcohol. Thereafter it started also by heavy eating and lately no cause at all. 90% of the time it occured at night or early morning hours. MY BIGGEST PROBLEM IS THAT MOST OF THE TIME I WAKE UP FEEL THE FASTR HEART RATE AND WITHIN MINUTES THE FAST HEART RATE CAUSES PULMONARY ADEAMA AND HAVE TO GO THE EMERGENCY HOSPITAL. ","Not drinking alcohol, caffein, not going to sleep after eating","provacol, zetia, altace, cardezim, sotalol, aspirin(adult) sotalol causes sexual dysfunction and therefore I stopped it.","I been on Stalol since the inception of Afib, until yesterdayand stoped becasue it did not work anymore and causes sexual side effects.","none","eperiment with different medication until I find one which slows the heart rate down to a point that when I get the Afb it wont cause pulmonary andema.","This illnes changes your entire life style. I love to travel but now I am concerned, I have to stay up for about 3 hours after I eat before I go to bed. I have to prop up my head in bed. This illnes just sucks big time.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Rich L","Austin, TX","46","","1","1/yr","1 day","no","good","good health","relaxation after exercise","none, but magnesium glycinate seems to reduce the pounding of the heart","","","","drugs first (flecainide)","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tom","Boulder, CO","62","lone a-fib (vagal)","17","several episodes","24, 12hr., 5hr, 3hrs., usually during sleep","sodium (movie popcorn), soy sauce, chocolate, surgery","good","controlled except for recent virus (triggered)","alcohol *** ozone (from air cleaner) *** virus *** sodium late in day*** stress various drugs: sympathetic reducers: alpha and beta blockers statins: Lipitor *** dehydration","stopping Lipitor changing electronic air cleaner (see below) vegan diet (see 'The China Study')","Prescriptions: Flecainide As needed (currently 150 mg per day) Testosterone gel 50 mg/day Crestor 5mg every other day Supplements: Aspirin 320 mg/day Saw Palmetto Extract 320 mg/day cod liver or flax oil 1 tbsp/day vitmain B12 500 mcg/ day ","","2000 - strabismus","I have confirmed the connection between my vagal AF and Lipitor (see below), as well as ozone (air cleaner). Now am reducing meds further since I switched to a vegan diet (see 'The China Study'). I am trying to reduce the Flecainide due to the side effects (see below, with iron). ","Google: statins + 'vagal tone' for more details. My last extended vagal AF episode was in November 2009, which was eight months after stopping Lipitor (20mg/day), and three months after starting Crestor (5mg, every third day). Since then I have had infrequent short AF episodes. I have entirely lost that 'on the edge', vulnerable feeling that accompanied vagal AF. I can now enjoy the occasional Guiness and chocolate with no ill effects. The change is so remarkable that at this point I feel that I can point directly to Lipitor as a root cause of my AF. Also, I had my cholesterol checked six weeks after starting Crestor, and my total cholesterol was 170 with good LDL. My strength and general health are coming back. Because I am taking Crestor for cholesterol, I have switched to a vegan diet (based on 'The China Study'). As a result of that, I have, with my doctors help, reduced Crestor to 5mg one every third day. 4/2012: I have had no a-fib now for over a year. So am trying to cut back a bit on the Flecainide. Because of my vegan diet, I thought that I might not be getting enough iron, iodine, and selenium. It feels like that has stabilized my heart rhythm somewhat. 7/2012: After the 4/2012 experiment I found that I needed the 150 mg of Flecainide a day after all. Still no problem with a-fib. I eat some Product 19 cereal for the iron. I'm still eating a pesca-vegan diet (see 'The China Study'). 10/2013: After the stress of the great Boulder flood and an accompanying virus, I had my first multi-day AF in years. Went to the doc who checked on ozone in the household air (from my electronic air cleaner which ran 24/7 after the flood) and saw studies implicating ozone and AF. So I got a new air cleaner, (see http://envirosept.com/) that produces no ozone. So far so good with the new air cleaner. 2/2014: Confirmed that new air cleaner solved the AF problem last fall. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Chris","North Yorkshire, UK","34","Paroxysmal AF","4.5","Once every 6-12 months","4-12 hours","Birth of first child!!!","Overweight, ex-smoker, light drinker","Still overweight. Trying to lose it.","Caffeine, Alcohol, Stress, Viral Infections","Avoiding all the above (when possible)","Flecainide, 150mg a day. Causes headaches and lethargy. Aspirin, 75mg a day.","Atenolol. Made me feel very ill, slowed my heart down too much.","None to do with AF. ","Looking into possibility of having an ablation, on top of losing my excess weight.","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Keith","London","34","AF","2 years","first year daily but reduced after first ablation.","A few minutes to 24 hours","Heavy cold, hypertension","Overweight, Non smoker, heavy drinker before AF with hypertension.","Just had 2nd Ablation so feel better than before although still experience fast heart rhythem.","Alcohol, stress, anxiety, sleep/ relaxing, caffeine. Smokey rooms i.e. pubs. Talking too much! Exercise","None.","Warfain, Bisoprolol 10mg per day but I can increase to 20mg per day if condition requires.","Digoxin - no real effect on AF Flecainide (makes me very tired)- initially no real effect on AF but re-started in Nov 2004 after week spent in hospital due to AF. After 1st Ablation - Atenelol (tiredness)and Amiodarone (stopped after 3 months). At the time I was also being treated for depression which I am sure was made worse by the meds and in particular the Amiodarone.","Catheter Ablation - Jan 2004 - partially successfull but remained on Atenelol, then AF returned in force in Nov 2004. After a weeks stay in hospital I have since had a further ablation in Jan 2005. Hopefully this has done the trick, although I will not know for sure until another 3 months once the heart has recovered from the ablation. Currently still experience a fast heart rate from time to time but appear to be in NSR.","Just to get on with life. In the past the fatigue would really get me down and stop me from doing things. I also intend to lose some weight and generally increase my fitness levels, which is something I just didn't have the energy to do before.","The Cardiologist Consultants I have seen have been excellent but I get very frustrated with other doctors, as they seem to think it is a very minor complaint and that you are making a mountain out of a mole hill.",0,1,0,1,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Fred G.","Scotia, NY, USA","68","Atrial Fib","8 years since diagnosis, but may have had for years prior","2yrs, then 1 a year, then every 6 mos, now 1 a mo.","1 hr. to 12 hrs.","after stress test","good health, no smoking, was moderate beer drinker","not cured yet","Extreme exercise; alcohol; pizza; spicy foods; large meals; indigestion; anxiety.","Gave up all alcohol; avoid spicy foods and large meals; try to remain calm, but being in AF makes me anxious, and it's difficult.","Toprol, 50 mg. 1 a day--anxiety and severe nightmares. Tambacor, 50 mg. 2 a day--no effects I'm aware of 81 mg. aspirin 1 a day--no effects Lipitor, 10 mg. 1 a day--mild body aches Hytrin, (for hypertension) 2 mg. 1 a day--no effects I know of","Nadalol, 20 mg. --extreme dizziness","None.","Continue research and experimentation with meds to determine ALL my triggers, and to find a balance of meds that does not cause nightmares, resulting in anxiety and poor sleep quality.","I would like to hear from anyone who had nightmares from beta-blockers who switched to another medication that was successful in stopping the problem. If I could lick that and get better sleep, I could live with this condition. You may contact me at: FRGlaser@aol.com. Thank you. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Kathy","Boston,Ma","49","parox lone afib","7 years","every day","8-60 hours","Familial-parox lone afib started for myself, my mother and younger female sibling around 45 years old.","","unchanged","lying down, leaning back in a chair, large meal, stress, low blood sugar....","","Flecanide 100mg/day Verapamil 240 mg prn coumadin 7.5mg/day","Beta blockers feel 'exhausted,' weight gain, and shortness of breath. Flecanide-intermittent chest pressure, tip of tongue feels burnt.","Have had 2 RF ablations: Feb 2004-complication: Cardiac Tamponade October 2005","wait as long as I can stand it until the procedures are perfected and advanced.","The thought of this afflication for one more day, never mind the next 30 years, drives me crazy!",1,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,1,1,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Steve","Kentucky, USA","57","lone paroxsysmal vagal atrial fibrillation","1","1 x week","10 minutes to 3 hours","none","good","almost cured","none","flecainide","","","Dec 2004 atrial flutter ablation","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Tom Ryan","Harrow Weald","60","Atrial Fibrillation","2 weeks","just once but went back to sinus rhythm on its own","once i think","Trapped nerve in neck since May 2004","Good, non smoker, occasional drinker.","not very good some good days& some bad but maybe medication","Alcohol","don't know","I am taking warfarin 4mg a day till they get the blood level INR right, currently 3.8. Amiodrone 200mg now twice a day (was 3 times a day for first week) and 3rd week will be once per day. Simvastatin 1 tab at night. Omeprazole 20mg once a day morning. Have not felt that good for a week or so but don't know if medication is the cause. Feeling anxious, nervous, chest and back pains. Excess acid and burping.","","Hernia operation 18 months ago and Vasectomy 22 years ago. ","don't now but want to try vitamin E to try as have read that it may have the same effect as Warafin. Would also like to see if herbal/homeopathy would help. Herbs like Hawthorn for example. ","Would like to hear from others re side effects of medication I am taking to see if they had the same",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Diane","USA","48","Hypertrophic Cardiomyopathy / AFIB","Congenital","Every 3-4 months","8-24 hours","Wedding stress?","good - non-drinker, x-smoker","Dealing with occansional episodes and not enjoying it","??? Most of my afib episodes have started when I'm sleeping. I do not drink a lot of caffiene, nor am I doing any regular exercise (the treadmill arrives for our home next week)","??? I am trying a combination of Magnesium Taurate, Calcium Citrate, and CoQ10.","Warfarin and asprin - just the usual excessive bruising and bleeding","One cardiologist prescribed Toprol and Rhythmol, which I took as prescribed and ended up in the ER for 24 hours due to very low BP","None, but my cardiologist thinks I should have a combination pacemaker and debfibrillator put in because of family history. ","Find a way to stay out of AFIB!","My sister's HCOM was much more severe and she had a (successful!) heart transplant 4 years ago. I count my blessings daily, but would like to find the magic bullet if there is one to avoid AFIB.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Stan Stille","Toronto, Canada","73","atrial fibrillation","5","2 weeks or longer between","5 min. to 3 hours","none","good","good","Indigestion forming gas that is burped excessively Getting overly excited or tired, causing rapid heartbeat, that then at times becomes irregular.","Take Betaine HCl and Enzymes when eating Take cayenne pepper","","No medicines--drugs","None","Relax, especially when eating and take the acid and enzymes","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "John"," Australia","61","AF","1.5","on and off depending drug protocol","3-4 weeks","work stress, rotating shift work, with possible sleep apnea, lack of exercise.","Good, non smoker & social drinker, BMI =35.","cured for the time being. ( Amiodarone has a long half-life over 100 day+)","(1)If my AF was induced by sleep apnea (low blood oxygen levels)then alcohol was the probable cause, so now nil intake and my sleep breathing rhythm has returned to normal. (2) I noticed that Coffee affected my heart beat, so nil intake of all caffeine products. (3) After a strenuous one hour walk, after a few days of no exercise at all. Now a little and often. (4) Stressful situations and sudden explosive noises. ","(1) No alcohol. (2) No stimulants, eg caffeine, drugs in cough medicines (pseudoephedrine etc.) (3) Regular exercise every day on flat ground building up to about one hour per day every day! (4) Weight reduction to bring BMI to < 30. (25 if possible) (5) Healthy diet of lots of fresh fruit and vegs. (6) Develop a happy attitude, laugh as much as you can each day. See a funny movie, tell jokes (buy joke books and read them out aloud to your spouse and family etc.) It works! (7) No salt.","Verapamil 240mg per day; occasional rash, tired, lassitude, swollen bloated stomach, anxiety. Cartia (Aspirin) 100mg per day. nil side effects noted. Stopped Amiodarone (200mg per day maint dose) 10 weeks ago, but residual still effective due to its long biological half-life up to 105 days. Very unpleasant side effects and glad to be off it. ","as above + (1) Warfarin 3.5mg per day gave INR 1.8 - 2.0. caused brusing and copious bleeding from any minor wound. (2) Amiodarone caused horrific nightmares, a sensitivity to sun light, skin colour changes, a drugged stupor state, a mottle skin tone, rashs under arms, crutch, between toes, on arms and legs. Sometimes headaches that lasted all day, then revert to a throbbing pressure ache, a negative attitude and depression. Excessive anxiety that caused an excessive eating disorder-'comfort eating'. You need to pre- warn your spouse of these behaviour changes in you.","2x DVT in calf muscle 10 & 14 years ago. Various bowel scans for routine cancer checks, nil. 1x cardioversion - OK.","Get fit, lose weight, eat lots of fresh fruit and veg, no food preservatives(sodium nitrate etc)and then when two biological half-lives of the Amiodarone drug have elapsed (210 days), commence a reduction of the verapamil dosage, a progressive step reduction of 50mg at-a-time, over a 12 month period to nil. Will stay on the Cartia (asprin)100mg per day for life. ","Not enough information to people about AF and healthy life style.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0 "Shaun","West Midlands,UK","41","Lone AF","3","2 episodes lasting 6 - 8 hours","6 - 8 hours","Cyclo-cross race ?","Good, Fit","In Limbo ?","Too early to say what are the known triggers. Suspect a combination of things - excersize, wine, stress....?","No idea","Asprirn (75mg/day) Flecainide (50mg twice/day) I am sure that one or both of these has reduced my performance capacity for cycling - aching muscles, reduced top-end heart rate - using Polar HR monitor to analyse.","None.","None.","Get off the drugs for AF... or take something else... or pack in competitive cycling if performance does not come back to 'normal'. Anyone got a clue ?","I also have Ulcerative Colitis - and take Asacol to control. This has no performance side effects. However, I wonder if Aspirin is reducing muscle efficiency, and Flecainaide is holding me back at the extremes of performance requirements.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Dan","Silver Spring, Maryland, USA","37","chronic atrial fibrillation","15","Continuous without medication; Every 1-2 weeks with medications","Continuous without medication; 30+ minutes with medications","First diagnosed while in recovery after appendectomy","Good, but high cholesterol","Managed","Decongestants Caffeine High stress","","Toprol, Flecinide, Coumadin","Lanoxin","Pulmonary Vein Ablation #1 = December 2002 Pulmonary Vein Ablation #2 = December 2003","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "travis","bc, canada","67","chronic atrial fibrillation","15","avg. 1/month first 10 years","avg. 2 days ...continued to increase as years went by","high stress @ high altitude","good, non smoker, social drinker","chronic a-fib","stress, alcahol, lack of sleep, coffee","none","aspirin 180 mgs, acebutolol 100 mgs, varapamil 240 mgs","lanoxin .25, quinidex 300, isoptin 240, sotalol 80, accupril 5, coumadin 3.5, novahydrazide 25,","1/2001 - right atrium ablated - nsr 4 weeks 12/2001 - left atrium ablated - nsr 4 hrs.","5/2005 left atrium ablation - new technique","make yourself comfortable with as few drugs as possile and continue to seek complete cure.",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "David M Wicker","guildford uk","54","af","2","3-4 pw","1-5 hrs","none","believe af was triggered initially by lack of excercise and stress for >6 months","unfit and overweight","tiredness stress alcohol cafeine excercise","sotalol rest ","sotalol 3*40mg pd tiredness and also sleeplessness iritability, depression,lack of motivation loss of libido, constipation, lack of energy impaired vision and coordination ","","2 ablations, the 2nd PVI","3rd ablation soon, all 4 pulmonary veins etc","thanks very much for your significant contribution",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Bill","West Haven, CT","55","PAF","24","Weekly","4-5 hours","None","Otherwise healthy obese adult male","Under control","Caffeine (including decaf coffee), DHEA, DayQuil, Alcohol (just found that out thanks to this database...had new episode and could not figure out why until I found this site..thanks). Stress. ","Avoidance of triggers. ","Flecinide and Cardizem. Just started this new med.","Sotalol. Worked well for me but my cardiologist did not like it in the doses I was taking so he changed it. Qunnidine - Gave me the runs. Corgard - Lowered my bp and heart rate too low. ","None","Meds. Would love to have it ablated so it is gone forever but it is not severe enough for that.","Most of my problems are due to my own stupidity. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Murray","GB","48 (first entry - now 53 and updated entry Feb '10)","Paroxysmal AF","3","two or three per week","5mins to 12 hours","Significant intake of alcohol at my sisters 40th birthday celebrations.","Good, non smoker","Feel OK - but concerned for the future.","Cheese (particularly cooked); Red Wine; Feb 2010 - nearly cured but require a DC cardioversion every 12-18 months.","","None - have been prescribed Flecainide but not taken it as yet. Feb 2010 - still none but considering a touch up ablation following my original one in Jan 2007 which has been almost a success other than two cardioversions in three years.","On original presentation I was prescribed Atenalol which caused more problems than I had otherwise so after a few weeks I came off them and have had no other antiarrythmics since. I take 10mg Simvastatin daily to control cholesterol. Recently tried a total ban on alcohol for three months which made no difference.","Angiogram in 2001 - all clear. Jan 2007 - left circumferential atrial ablation at the Radcliffe hospital in Oxford. Dr Yaver Bashir was EP. Almost perfect - needed 2 DC cardioversions in 3 years for atrial flutter on the left side of the heart so considering a 'touch up.'","My doctors expect that I will have radiofrequency ablation at some future date - expected to be when the technology improves sufficiently to move the risk/reward ratio sufficiently in favour of the procedure. Hope & pray!","I have come to realise over the years that AF is not a sprint - it is a marathon! So settle in to it, get used to it and prepare for the long haul! ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Janine Revel","Massachusetts, USA","46","Lone atrial fibrillation","13","varies - usually one per week or more","2-30 hours","none","good","AF episodes increasing","Alcohol Startle/shock Large heavy meals Locking knees Swallowing large amounts of fluid at once Pre-menstrual ","none","Amoidarone - just started Digoxin .25 mg - none Cardizem - none Avapro for HBP - none Warfarin - the usual bruising ","Started with digoxin at first, low dose. Currently on moderate dose which my cardiologist calls 'subtherapeutic' because I metabolize high amounts without ill effects. Was on Beta Blocker for a time, but it made me drowsy. Higher dose of Cardizem caused edema. Now on amiodarone temporarily after first RF ablation - results of ablation inconclusive, too soon to tell.","RF Ablation 9/9/08; instigated RF flutter which may need to be separately abated.","Hope for the best!","AF episodes are part of my life now. However, if the episode exceeds about 15 hours I get extremely anxious, hyperactive, and paranoid - almost psychiatric symptoms. Fortunately it has always corrected itself without intervention, but it's hard to wait out those last few hours! Good luck to all of you.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,1,1,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Jim","Hawaii USA","47","AFib AFlutter","4","5 days / week","1 - 5 hours","none","Excellent - Daily cardio workouts","Almost dialy afib/flutter","Maybe Stress","none","none","Digoxin,Toporol,Amiodarone All had no effect or worsened condition. Main side effect: Tired, slow heart rate, increase in episodes.","RF ablation in Aug 2004. First 2 months were fine. AF returned 3 months after procedure. Same frequency / duration as before. ","Considering a second 'touch-up' procedure.","This is ruining my life. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "anon","Bay area USA","61","Afib and Aflutter","6 years","3 per day","5-10 minutes","working hard and long hours, with lot of travel","overweight, heart murmur","still have Afib and Aflutter","Stress, exercise, fatigue, lack of sleep, cold-flu or some kind of illness, bend over while sitting, meals and food after exercise","Relax, deep breathing, sit down in reclining chair, rest","Statin-Zocor Calcium Channel Blocker-Tiazac Aspirin","","2 Ablations","As conditions gets worst get a PVA, more aggressive blood thinners ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0 "Harry","London, UK","59","Paroxysmal Lone Atrial Fibrillation with Ist degree heartblock and possible TachyBrady Syndrome","Five from diagnosis.","Varies. Five or six times a week on average but some weeks hardly any and then on infrequent occasions it can be more often, including every day for a number of hours.","From a few minutes mainly, to two or three hours on occasions. Has been as long as eight hours very infrequently.","None.","Ex-smoker. Drinker. Have small carotid and femoral arterial plaques. Osteoporosis. Osteoarthritis. Frozen Shoulders. Costochondritis. All these have inflammation as a possible root cause.","Intermittment frequency of AF seems same as in previous years,","Large meals. Sleeping. Often just sitting around. Standing up from lying down or kneeling. Alcohol. Sometimes stress, but usually this remits to normal state quickly. At other times it just seems to happen for no identifiable reason.","Exercise will often reduce or stop the arrhythmia.","None specifically for AF. Atorvastatin - to control inflammation and cholesterol. Actonel for bone density. Rolcoltrol for bone density. Whole load of vitamin and minerals, of which the following are primarily for prevention/amelioration of AF attacks: Fish oil, magenesium, potassium. The following are for blood thinning and anti-platelet coagulation: Grapeseed extract, garlic, alpha lipoic acid and fish oil.","None specific for AF.","None specific to AF.","Awaiting evaluation for ablation, either by drugs or electrophysiology.","I have had a history of arrhythmia dating from 1984. I believe that I had paroxysmal AF many years prior to diagnosis in 1999, at least from 1989 when I first experienced postural hypotension. Before this I feel that I had PAC that has moved eventually to AF - had four different hospital investigations for cause of arrhythymias I experieinced, including a week as in patient in 1984 - I believe these were mainly stress related. It was only because of the continued and increasing instance of postural hypotension that I was referred to a neurologist at first in 1999 and it took a good six months before I was referred (under protest by the neurologist!) to a cardiologist who diagnosed the cause as AF. Interestingly the incidence of postural hypotension has reduced in last two years whilst the AF has slightly worsened. Motto is, know your own body, research your condition and don't take no for an answer from these doctors. Also, do check out first what they prescribe - I have often found that my micro research into the condiction and drugs has given me greater and more recent information than my GP and often my consultant has. It provides a far better basis for discussion and choice.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0 "Don keating","Barnsley, South Yorkshire, UK","57","Persistant AF","4","All the time, to varying degrees.","N/A","None","Non smoker for last five years, like a glass of wine, but well within the current recomended guidelines of 21units.","AF not very well controlled, feeling absolutely drained most of the time.","Stress, bending down, over excercise, walking up gradients, stairs etc. All seem to worsen the condition.","Keeping calm and resting when I feel the need. ","Wafarin Sodium 7mg daily(fluctuates slightly) Bisoporol Fumerate 2x2.5mg daily Atorvastatin 10mg daily Not sure whether I feel so rough sometimes as a result of the medication or the illness???","Aspirin 300mg. Digoxin Amioderone...Dreadful side effects with this horror, glad to be off it.","No surgery as such, however I have been cardioverted twice the first effort lasting for 5 months of sinus rythm, the second time only two weeks.","I have never been offered Ablation, I only found out via the internet of it's existence, I might not be suitable but I aim to find out. Keep reseaching to try and find non drug related means of lessening the effects of the AF. Keep listening to fellow sufferers, this site has been a great help tonight, thankyou all. Oh and I need to find out what this 'Maze' treatment is.","It looks as if I might have to give up my (much loved) work because of this wretched illness, I have already reduced my hours to part-time, I am always totally drained of energy and I beleive the doctors, mine at any rate do not take the condition seriously enough, so COME-ON the medical profession get a grip.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "J.P","Suffolk,England","51","Atrial flutter, hypertrpic cardio myopathy","Flutter 9 months, HCM eversince I can remember.","Varying - 2 daily ,2 weekly","As short as 10 secs, As long as 7 hrs of waves of intesity","Hyperthyroidism due to Amioderone","Non smoker, reformed drinker ect, active","Permanant heart rate 120, and AF.","Alcohol hangovers ie day after,are the worse.Tiredness lack of sleep or poor sleep ( drink,hangovers?!). Food, I'm not sure what sometimes a sandwich and tea at work lunchtime, definately a largish meal in the evening. I am interested to see if there is a correlation with body functions,ie enzymes ect 'in digestion and the 'waking monster'.I can tell when AF is about to happen as the feeling starts in the gut solar plexus area, sadly I can never be sure how intense the AF will be. ","Stay clear of Alcohol, very hard, I love a pint.Littler meals more often,curiously no breakfast and a sandwich at lunch triggered the worst AF yet. No chinese food. Keep active.Good uninterupted sleep. No late meals or hotdrinks. Laying on the left side makes the heart sound like its straining making sleep difficult ","2x 160mg Propanolol(betablocker. Sluggishness, low self esteem. 1x50mg Profanothiouracil. For thyroid,no side effects discernable but betab's have that covered! Warfarin","Amiodarone. All the side effects mentioned in the leaf- let given out with the drug.I'm glad to be off it but I see it works for some.","One ablation in July 2003","Awaiting second ablation at Papworth hospital, listed before christmas 2004. Ablation worked for me until the Amioderone kicked off the thyroid which in turn started the AF.The very thing that was supposed to help, hindered. To anyone prevaricating about cathater ablation I recommend the procedure. Its blissful experiencing a drug free life in normal sinus rythm if only fot a short while. ","I was amazed by the similarities that we share with this condition.My Gp looked askance when I mentioned food being a trigger for instance. Its very hard describing what its like to have this condition to someone other a fellow sufferer. Until they pick you up off the floor of course but even then, its even harder knowing that your own ' non life threatening' monster can wake up at any time. ",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,1,0,0,1,0,0,1,0 "Anon","Midwest USA","57","chronic atrial fibrillation","5","permanent AF, but worse episodes a few times per month","hours","bad flu before first major event","overweight","ongoing mild AF","In permanent AF, but do have some triggers to worse episodes: lack of sleep or highly irregular sleep/eating pattern, unusual emotional stress. Raising arms above head for long time (as when putting up curtains). Other times I have no idea why.","Helps when I keep a regular schedule, especially sleep. Seems to help if lie on right side rather than left to sleep. I use some energy psychology techniques when stressed (EFT, TAT) and that can help. Am playing around with mudras (hand-modes) related to breath and heart, and, oddly enough, that seems to help at times (and I don't care if it's merely placebo effect). ","Lisonopril/HCTZ 20/12.5 tabs (ACE inhibitor with diuretic for high blood pressure). Bisoprolol Fumarate 5 mg tabs (generic Zebeta, a beta-blocker for heart rate which was too high). Aspirin (regular 325 mg) as blood-thinner. Digitek 0.25 mg tabs. Synthroid 75mcg tabs (for hypothyroid). Side-effects: light cough from ACE inhibitor, easy bruising from aspirin.","Cardiologist wants me on Coumadin (rather than aspirin), and I was briefly. Felt very odd, as if starting to lose motor control when walking. Many years ago, whatever I was on for hypertension (a calcium-channel blocker, not beta-blocker) might have been a contributing factor in depression. Was on estrogen/progesterone until recently, having been told it would be heart-protective (did not choose to take merely for menopausal symptoms). Was previously on digoxin and lanoxin, which I gather are about same as digitek.","No heart-related surgery. Pituitary surgery long ago (with all that implies hormone-wise), breast lesion, gallbladder, ovarian tumor -- all benign.","Plan to read up on the relationship if any between swallowing reflex problems, abdominal pain, subscapularis muscle and related neurolymphatic and neurovascular points. And breathwork.","And now to read your survey results and files... Thanks for doing this!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Steven","Southern California","49","Paroxismal AF","3","Between once in several months to Several times a week","2-18 hours","6 beers and a Viagra","good, overweight","Not having them for now","Loud Music or Noise, Smoky Environment, Alcohol, Caffeine, Indigestion,","","Amiodarone - tired, constipation, blurry vision Adult Aspirin Mevacor Atenolol","Flecainide - Worked for awhile (6 months), and then didn't Coumadin ","None","I was put on 200 mg Amiodarone when Flecainide stopped working. The Flecainide kept me AF free for 6 months, but by the 9 month mark, I was back to 5 episodes per week. So far, I am 2 months AF free with the Amiodarone. I don't know how long this will last, but I hope for a long time. Perhaps long term, I can switch between the two, and they will maintain their effacacy.","All the indulgencies in life trigger me, and sometimes spontaneously starts with no trigger. Sometimes a brisk walk after a couple hours of AF can help it to convert. From what I understand, paroxismal AF is much more symptomatic than the chronic form (although I'll take it anyway over chronic). But I do get very fast rate, dizzyness, anxiety, and shortness of breath.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sander","San Jose, CA USA","37","Atrial Fibrilation","20 (properly diagnosed 3 years ago)","only 1 lengthy episode of several hours, short ones monthly","from seconds to hours","none","healthy, no smoking/drinking/drugs. Patent Foramen Ovale defect in heart.","under control","Stress, anger, high carb diet perhaps. Eating too much can cause stomach pressure which sometimes seems to trigger AF. In at least one instance I felt my diaphram contract right before a short AF episode. Exercising too hard can cause AF. Once had this occur after beating the heavy bag 'with spirit' during martial arts training. It wasn't diagnosed yet at the time.","Propafenone 50 mg 3x daily seems to help, taking vitamins/minerals (potassium in particular), staying away from sugar. Moderate exercise (field hockey, weights) seem to generally help health and AF.","Propafenone, aspirin 81 mg. No side effects that I know of.","None","None","Perhaps ablation once the technique matures further and if I decide to get my PFO fixed.","I have known for a long time that something was wrong with my heart however doctors were never able to pinpoint what was wrong. It wasn't until I had my first multi hour AF episode and I was rushed to the hospital that I found out what I had. That's when they started looking for trouble and found that I had a PFO. Thankfully it's small so it doesn't (yet) require surgery. I think that just knowing what it is that I have relieved some of the symptoms because I'm not stressed about it anymore. When it happens I'm still somewhat afraid but I'm not afraid of it happening, if that makes sense. I noticed GERD in the list below. I was diagnosed with that 10 years ago and occasionally took OTC acid blockers like Zantac 75. However once I switched to a low carb diet and generally tried to avoid wheat my GERD disappeared entirely. I never wake up anymore with acid indigestion even if I eat right before going to bed.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tony Rairden","Santa Barbara, CA","62 (in 2006)","Was Permanent AFib w/ Rapid Ventricular Response for 3 mos. ; angiogram also found mild atherosclerosis and ruptured plaque in the LAD, but nothing warranting angioplasty or a stent.","Probably paroxysmal for years, disregarded. Eventually blasted (adrenergically, that is...) myself into permanent.","Prior to permanent, went from a couple a month to perhaps one a day over probably 10 years, but wasn't diagnosed-- Thought what I felt (probably multiple PVCs & AFib) was under-used heart complaining - no big deal...","Don't really know","I'm an adrenaline junkie (former carrier-based Naval Aviator) and former endurance athlete (marathoner 17-20 years ago)...","Generally healthy non-smoker, overweight (was 40 lbs., now 20), not getting enough exercise,","Cured, after initial and touch-up PVI ablations by Dr. Andrea Natale @ Cleveland Clinic","Extreme adrenergic situations","Yoga? I believe it helped quite a bit...","ASA (aspirin) 81mg QD - no known side effects for me Lipitor 20mg QD - Beginning to question muscle fatigue and general fatigue side effects - May go off to evaluate...","Warfarin 5mg QD - no known side effects for me other than slower clotting (not really a side effect...) of cuts and more ready bleeding of scratches (cat-type...) - got off it end of June '06. Sotalol 160mg QD - Was on 120mg after initial visit to Natale and having had rate control (Toprol XL) effective at rate control but limiting lifestyle; broke through 120, local cardiologist put me up to 160mg QD. Lisinopril (ACE Inhibitor) 10mg QD - Persistent, frequent dry cough. REALLY irritating. Replaced with Cozaar (ARB). Toprol XL 100mg BID - Was effective bringing RVR rate down from 120-140 to 80s, but felt somewhat lethargic. DC Cardioversion from that base failed, so Dr. Natale switched me (outpatient) to sotalol 120mg BID as an antiarrhythmic. Imdur 30mg QD - Dropped because BP was running low. No other known side effects for me. Digoxin 0.25mg QD - Dropped after conversion at slow pulse rate. Pulse (avg.) only came up about 3-4 points. No known side effects for me. Cozaar 20mg QD - no known side effects, except that my blood pressure was generally on the low (108/80, e.g., sometimes with systolic in upper 90s...) side. Pre-AFib (the permanent variety, that is...), my BP was typically 125/80. Dropped post-PVI when BP was lower than necessary. ","PVI Ablation w/ Natale @ Cleveland Clinic March 1, 2005. Had some break-through AFib while weaning off Sotalol. Touch-up PVIA November 17, 2005. Both procedures went smoothly, with no side or aftereffects. Angiogram in June 2004. Hernioraphy in '91.","Had final 48-hour Holter in June 2006, after which I got off Coumadin and am down to just Lipitor and aspirin as cardiac-related meds. Activities at that point were, and continue to be, unrestricted.","I was doing yoga (essentially Anusara style...) 4-5 times a week, and I believe that had as much to do with my pre-ablation relatively stable NSR state as my meds. It also helped me moderate my (previously highly adrenergic) responses to frustrating or challenging situations. I am taking a lot of anti-oxidant supplements (SOD, CoQ-10, Vit. C, Vit. E, fish oil) after my research indicated that doing so might slow or even reverse some of the electrical remodeling going on while in AFib/RVR.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Jen","New York","37"," A-fib"," 11 months","up to 10 a day","any where from 15 min to 1 hour","Had a bad cold and then an asthma attack directly preseeding the episode which set of my AICD 5 times in one night","I have hypertrophic Obstructive Cardiomyopathy, asthma and had a TIA in February of 2004, CHF","A-fib under control so far thanks to a Radio frequency ablation performed by Dr Al-Mugummda @ St. Josephs Hospital in Syracuse New York","Colds (coughing), stress, caffine, "," none","Amioderone 400mg vision problems, Toprol 50 XL, Verapamil 240, Lasix 40 mg, Coumadin 3mg, singular 10 mg, spriva 1 inhalation per day, flovent 4 puffs a day, xoponex nebulizer as needed. Tired all the time","Dysoperimide (norpace), toprol 300 mg a day, lasix, verapamil the combination drugs weren't doing the job.","Jan 2001 had a Cardiac Cath and then a dual chamber AICD put in, on June 29th 2004 had a Cardiac Cath and Radio Frequency Ablation. "," I am taking it one procedure at a time assuming the rfa worked which I will find out on sept 30th, the I want to take care of the HOCM symptoms, I hope to convince my DR. that a Septal Myectomy is the way to go. I am also hoping go back to work and to continue my education in the field of forensic science. ","I have been living with HOCM for 10 years now and I take it one day at a time but the feeling I get when I have an episode of A-Fib is something I want to stop for good as soon as possible. Good Luck to everyone and God Bless",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,1,0,1,1,1,1,0,0,0,1 "Anon","Hong Kong","58","LAF","less than 6 months","No regularity. Seems to be less frequent by avoiding by triggers","up to 12 hours","nil","fit non smoker - veteran athlete - rower. Borderline cholesterol (6.2mmol/L) before went onto Ezetrol","frustrated!","heavy exercise, digestion ","Only to avoid overdoing it and no late-night meals!","aspirin, vastarel - changes energy cycle in heart to glucose rather than fatty-acid ezetrol - blocks absorption of cholesterol in gut and since reduced cholesterol to 4.5 mmol/L. I think the aspirin although low dose is irritating my stomach a bit. I also feel that vasteral makes me feel a bit lightheaded at times but nothing serious. Given rythmol for week and felt like death warmed up, so I stopped taking it. Cardiologist says will only need to take medication if gets to be regular weekly episodes. ","nil","nil","Have eased back on exercise to rest for a while - walking only. Trying also to reduce work stress and keep digestion under control, which got really bad after first episodes because of worry and I think triggered two episodes. Although episodes went from nothing to almost weekly in space of couple of months, have not had any episodes for three weeks since eased back and got my digestion better under control. Will simply try to avoid triggers and gently ease back into exercise - in simple terms act my age!","Found inverted T wave in annual medical ECG in early July. Have alwys had sinus bradycardia due to exercise. Started having AF episodes after that, although I suspect had at least one earlier this year during rowing but disappeared during later part of training session. Earlier this year have been doing more exercise than normal in past few years although always have run/row/weight trained several times a week since teens. No obvious heart defects found after tests including angiogram. 24 hr Holter test showed some premature heartbeats. Cardiologist thinks is LAF but always self terminates before I can get to see him. I think is vagal AF as have always had 'nervous tummy' which is made worse by exercise and nervous stress, and first episode came after heavy evening training session and late night eating afterwards before going to bed. Subsequent episodes seem mostly related to evening meal digestion issues as triggers in sleep, although one precipitated during resting immediately after heavy mid-day exercise session before eating. Went to hospital and ECG showed AF but self terminated shortly after. Only ECG-recorded episode of AF. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "wf","Texas","49","atrial tachycardia","3","every two and half years","two hours","ice cream","good","maintained SR with lopressor - 100 mg a day","very cold drinks like ice cream and malts. Cold cokes don't do it. I have to get a good vagal freeze to set off the afib. ","Lopressor","Lopressor","","Had an atrial septal defect repaired when I was 9.","Take my medicine and exercise","When I get a rough day of ectopics I just keep telling myself that it won't kill me. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Shelby","Huntsville Alabama","73 (in another two months)","AF (I convert spontaneously)","7","Daily of late although sometimes I am blessed to go as long as 2 1/2 or so days without AF","Erratic--current episode is of 5 days duration, somewhat longish","Congestive Heart Failure---went away spontaneously","Excellent considering my age","Nuisanced but not debilitated by AF"," All the pleasurable things in life are reputed triggers. Rather than abstain I indulge in all in moderation (Coffee, chocolate, wine, beautiful women, an occasional cigar, an occasional drink, dairy products, dancing...)"," None known"," Coumadin 6mg Toprol 100mg Verapamil 360mg Thyroxine 0.2mg Lipitor 10mg Ambien 5mg Magnesium 400mg Calcium 1200mg Fosamax 70mg weekly Vitamin-mineral supplements/Coenzyme Q10/Vitamin E/etc "," Amiodorone 200mg (was increased to 400mg this February prior to requesting to be taken off). Wasa no longer working although I personally did not experience the horrible side effects described by others. Some of the medications checked below were only taken briefly and except for the above have long been discontinued"," Thrombectomy this past December--I was lucky; passed a clot from atrium that lodged in my right arm rather than going to cerebrum.Had not been on coumadin since 1999. Am back on for life. 2004 Refused sinus node ablation with pacemaker implantation 1997 Refused catheterization to explore for blockages (none show on echocardiograms)"," Listening seriously to all the histories of PVAs--may go that route if my episodes get me down. (Usually I stay below 120 bpm which I am adapting to)"," It is comforting to have found a group of fellow (and lady) afibbers.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ed","Toronto Canada","37","Lone A-Fib","20","Every 3 to 4 Years, 2x in 2004","Until Cardioverted","Usually none, 1 time stress","Good, non-smoker, very occassionally 1 beer","In NSR...for now","All but 1 of 7 episodes sleeping. Once was under a fair bit of stress.","Wnet 8 years on Qunididene with no re-lapse came off it and have epridoes every couple of years. Take Omega and Vit E","Sotalol increased after last episode to 80 mg 2x per day. Dossage has varied between 120 daily total to 240. No side effects now but had probelm with depression compunded by medication.","Quinidine, no side effects, converted me to NSR Metoprolol, not effective","Appendix when small","Magnesium supplement","Had EP studies a few years ago..inconclusive. Wanted to go back to Quindine but was told it was too dangerous.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Pete Bernard","Upstate NY","54","? a-fib","1 year","About 3-4 months","? cardioverted after 9 hrs","Possibly routine colonostopy","overweight-High blood pressure","ok in NSR for 2 months","Not sure","Not sure Changing diet","aspirin Vasotec 10MG Lopressor 50 MG Coumadin 6.5 MG Hydrochlorot 25 MG Tired all the time","","Roto cuff surgery in left shoulder Developed DVT in right leg ","Find a specialist to find out exactly what kind of A-fib I have and options if I continue having episodes.","Confused and scared",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "NOBBY","ROCHESTER UK","58","AF","15","CONSTANT","10 YEARS/2 YEARS/2 YEARS","NILL","GOOD/ SMOKER/ DRINKER/OVERWEIGHT","IN AF","ALCOHOL STRESS","","WARFARIN DIGOXIN SWEATS COLD CLAMMY SKIN TIRED","CARDIOVERSION IN 1999 OK AFTER A DRINKING WEEKEND AND EXERCISE BACK IN AF 2001 CARDIOVERSION IN 2001 DRINK AND STRESS BACK IN AF, EARLY 2004 IN AF NOW, WAITING FOR CARDIOVERSION, NO ALCOHOL","TWO OPPS FOR RENAL COLIC","LAY OFF THE BOOZE STOPPED SMOKING 14 YEARS AGO LOOSE WEIGHT","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Eldon","Houston Texas","48","Constant AFIB","6 months (that I know of)","Constant","","Went in for physical to start lossing weight","Overweight, high blood pressure","under medication","Unknown","Troprol 50 mg seems to help","Topral Coumadan Lotrol Hypocholorothaziade Met/Gygl ","Sortin - Depression, sleepy all the time, nervous","2 cardioinversions neither took","Review other medication options PAV","I had been gaining weight and never had the energy to exercise or feeling to do anything. I thought the loss of energy was due to the weight, now it appears that the weight may be due to the AFIB. Had I not gotten a physical to start a weight loss program, I would have not know about the AFIB. I had never heard of it until that.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "anon","michigan, USA","45","atrial fibrillation, right atrial flutter, left atrial flutter","8","2 per week","1 - 5 days","none","excellent,","frequent episodes","none known","none known","metoprol, magnesium, fish oil","veralin, verapamil, propafenone, amiodorone, tambacor, cardizem","2 ablations","3rd ablation","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "HC","france","46","","1","all","all","","","1 afib ablation but not successful","","","hemigoxine isoptine 240 sintrom","cordarone : all skin was red sotalex flecaine","radiofrequency ablation of afib. ","another ablation to fix atrial flutter","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Jeff R","Los Angeles, USA","42","Atrial Flutter and Afip","10","Every 2 - 4 weeks","1-12 hours","None","Good","No change...episodes every 2 -4 weeks","Indigestion, Intense Exercise, Bending Over Quickly with full stomach. PACs always precede an episode","Eat smaller meals throughout the day, avoid fatty/oily food, avoid strenuous activity and stress when PACs are present, avoid alcohol & caffeine","Atenolol 50 mg (no side effects)","None","EP Study Dec 2002, RF Ablation Jan 2004 (failed), EP Study & RF Ablation April 2005","EP Study in 2005 discovered 3 flutter circuits on the right side of the heart and Afib on the left side. Flutter ablated....determined too risky to go after Afib. Will wait and see if I can live with Afib alone...I was more intolerant to the flutter....","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,0,0,1,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "aura","us","47","afib","10","once a day","5=10 minutes","stroke","","very ill","stress, tired","relax, stress free","digoxin, atenolol, comadin, gas pain, dizzy ","","mitral valve replacement","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,1 "GRAHAM","HAMPSHIRE ENGLAND","54","permanent af","8","EVERY FEW WEEKS","FROM A FEW HOURS TO A COUPLE OF DAYS","RUNNING HARD UP STEEP HILL WHILST JOGGING","GOOD NON SMOKER LIKE TO HAVE A FEW DRINKS","STABLE","HIGH BLOOD PRESSURE ALCOHOL IN EXCESS EXTREME ACTIVITY","KEEP BP DOWN DRINK IN MODERATION","WARFARIN FEEL FINE ON THIS NEBIVOLOL SOME HEART FLUCTUATION AFTER EACH DOSE COVERSYL SIMVISTATIN","SOTALOL VERY LITTLE EFFECT FLECAINADE SOME HELP CUT DOWN EPISODES BUT TAKEN OFF AFTER HEART ATTACK TWO YEARS AGO.","NERVE OPERATION AFTER ARM INJURY NOSE OPERATION","KEEP POSITIVE KEEP LISTENING TO MY DOCTOR IF DETERIORATION THEM SEEK ABLATION.","I AM A REAL OPTIMIST AND AM SURE THAT A CURE FOR THE AF IS ONLY A MATTER OF TIME AWAY. THEY SEEM TO BE WORKING AT IT AND WE MUST WORK TOWARDS MUCH BETTER DAYS AHEAD. I USED TO GET VERY WORRIED WHEN I TRIPPED OUT BUT I AM LEARNING THAT ALTHOUGH VERY UNPLEASANT IT IS NOT REALLY DANGEROUS. HANG IN THERE FELLOW AF SUFFERERS.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0 "Jennie","southern CA","37","Cardiomyopathy","7 months","one that I know of","one cardioversion and hospitalization","pneumonia","good","adjusting to activitity limits, less energy","pneumonia, caffiene, was on cold pills too long (over a month)","My cardiologist says it is more an issue of being on the right meds, but I would like to know more about what I can do to prevent this.","atenelol- low energy side effect warfarin- risk of bleeding from activities","Amiodarone- caused hair loss Disopyramide- caused blurred vision and difficulty swallowing/ dry mouth","cardioversion","find how others with my similar problem (septal defect, congenital) are being treated- esp patients my age range","My mother has a stroke in her early 40's, so I don't mind being on Warfarin.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Alan","Kent (UK)","49","PAF","9 since diagnosed","About 1 every 3 weeks on average.","Anything from 2 to 18 hours","None","Good health, Non-smoker, low alchahol intake","In NSR - Last bout 16th June - No other symptoms.","As time goes on, its looking increasingly like dehydration is a trigger for me.","I've recently twigged on that I reckon I can attribute most, if not all of my bouts to dehydration so since my last bout I'm trying to drink at least one and a half/two litres of water a day. ","100mg Flecainide twice daily 75mg dispersable Asprin daily. No noticeable side affects.","Sotalol 80mg twice daily for 8 years. Cold hands and feet. Slow heart rate. Amiodorone for 4 months 200 mg twice daily. Wouldn't touch it with a barge pole again but I didn't know any different when I was prescribed it. Side affects included shaking and rather unpleasant dreams. ","None.","I have an appointment with Dr Gill of Guys and St. Thomas's in London on 12th August with a view to ablation - Don't know if I'm ready for this yet. I might not even be a suitable candidate - I have lots of questions for him. ","Most bouts occur in the early hours of the morning for me anytime betwen 02:30 and 04:30. The transition between being asleep with a nice slow hearbeat and waking up seems to be where it all goes wrong. Can't seem to make up its mind whether to start beating quicker or not so starts throwing a wobbly. I have had a couple in the afternoon at rest after I have been doing some particularly manual work at home. As time goes by, I am learning to cope with it and not get so worried as I did at first and the bouts only stop on their own when I am half lying down on my left side. Most of the information I have found about this menace has been from the Internet and the Afib support group on Yahoo has been invaluable. Having discounted alcohol and caffeine as a trigger, I am now embarking on the process that dehydration may be a cause and drinking plenty of water - so far so good, but I'm always aware that uncle Afib may just be lurking round the corner. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "kathleen green bay","new york","64","chronic permanent AF","1.25","chronic","chronic","none (mild atrial tachycardia for about ten years)","good","good, some fatigue, otherwise very active","none - chronic","none for almost ten years, propanolol worked in 45 minutes to stop what we thought was tachycardia but was probably early paroxysmal AF","atenolol and digoxin for rate control coumadin for anticoagulation lasix (furosemide) for some ankle swelling","propanolol - worked for years, then lost effectiveness toprol - caused gas - switched to atenolol calcium channel blockers - caused terrible edema","artificial hip, three years plus, no AF surgery","considering ablation, probably won't do it, comfortable at about 85% of normal energy level, no 'episodes'","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "billy171","alberta canada","55","AF","11","seldom","2 hours","exercise weekend warior","overweigth, apnea (remediated),non smoke non drinker","very improved","intense exercise , alcohol,high fat food, caffien,sleep apnea, sleeping on left or back,some drugs and supplements,heavy eating,high stress , ","fish oil , co Q10 ,magnesium, (medium confidence .health food eating ,eating lightly , staying active without excess.","coumadin (to satisfy the doctors for cardioversion if i need it )","Amio./slow heart rate ,constipation , low circulation , leg cramping, general loathful unease.","gall bladder (dificult recovery unknown details apnea, heart related possible heroic measures )","stay in NSR . retire in no more than 5 years.","I progressed to persistent ,went health food, lost weigth , Docs barely agreed to cardiovert ,they required Amio. quit after sucessfull. perscribed metoprolol I rejected on severe rhythm disturbance . had some instability periods much better now. still on coumadin to keep cardioversion available . there is much pressure to go rate control these days.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Barbara","NY, USA","55","Lone Afib","5","varies, can be months or a year","10+ hours","weight gain","good health but still overweight, have lost quite a bit but not enough yet","waiting for the next episode","alcohol. Don't know any others as it usually happens at night when I am sleeping. Cold drinks do not bother me and diary does not seem to be a trigger as I have gotten episodes several times when I was vegan and not since I added dairy back to my diet. I have eliminated all caffeine.","Taking magnesium seems to help as it has reduced my ectopics a great deal but it is too soon to see if it helps reduce my AF episodes.","Sotalol 80mg bid. Side effects are being more tired but that has decreased with time. Also I have not been able to continue to lose weight since my Sotalol increased from 40mg to 80mg.","Sotalol 40mg bid, no side effects with this one but it did not keep me in NSR.","Minor stuff that has no association, knee surgery, carpal tunnel surgery, ovarian cyst surgery, etc.","Wait and see if the increased dosage of Sotatlol does a better job of keeping me in NSR, continue to try to get the excess weight off and continue with the magnesium and see if that helps overall. If I continue with episodes or they continue to get more frequent, I plan on seeing a EP and making an appt with Dr Natale.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Elizabeth","Thailand","40","atrial fibrilation","not known","not sure","longest=10 hours","no major event","light smoker","seeing a cardiologist","fatigue, caffeine (sometimes)","none","occasionally take 2.5mg propranalol, prescribed rhythmol but haven't taken it yet, aspirin.","none","none","intracellular testing for magnesium or other deficiencies","have previoulsy received a number of different diagnoses - bradychardia, SVT, PAC, PVC, L-G-L, Short PR R/O",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Kathy","Ontario Canada","33","Congenital Heart Defect, Atrial Flutter, Torsades de Pointes, SVT","33 years of Congenital Heart defect, Atrial Flutter 1996, Torsades de Pointes 2003, SVT 2001","At first every 18 monthsish. In 2003 I had two episodes in three weeks in March. Then another episode in July and another episode in August and again in September. Septembers was the Torsades de Pointes episode.","Few seconds to 80 hours","Several surgeries from a Congenital heart defect created scaring and enlarged right atrium.","Allergies but fairly healthy","Doing very well since Pacemaker implant.","None","Anti-Tachycardia Pace Maker, possible AF Ablation","Sintrom (Coumadine bi-product) Ramipril ACE Inhibitor ","Amiodarone Hyperthyroidism Sotalol Torsades de Pointes Atenolol Tired, depressed, Cold, no energy ","1972 Left BT Shunt 1974 Waterson Shunt 1978 Aorta Shunt 1987 Fontan 1989 Coil Occlusion 1997 Wisdom teeth 2003 Pacemaker ","To live life to the fullest","",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,1,0,1,0,0,0,1,1,0,0,1,0,0,0,0,0,0,1,0,1,1,0,0,0,1 "Matt","Rochester, NY","32","atrial fibrillation","11","3-4 times per year","30 seconds - 15 hours","stress/smoking/heavy drinking","good health, light drinker","controlled by meds - no episode in 3 years","dehydration stress caffeine smoking/chewing tobacco heavy meals triggers racing heart ","betacpace AF exercise light meals no caffeine no nicotine","betacpace AF, 120 mg twice a day: main side effect is slow resting heart rate (pulse drops to 30's while sleeping and is in 60's at rest during the day) Aspirin, 1 adult tablet per day","quinidine: did not control AF metoprolol: did not control AF, also tired continuously verapamil: did not control AF flecainide: made AF symptoms worse","had electrophysiology study done in 2000. They were able to induce atrial fibrillation and had to do a cardioversion twice to revert to sinus rythm. However, the only ablation option for treatment was ablation in the pulmonary veins, which at the time (and still is I guess) was very experimental.","Meeting with doctor next month to discuss lowering my betapace dosage. Otherwise I am very happy with Betapace. None of the other drugs helped much. I haven't had an episode in 3 years. I fought taking medication for years and now I am kind of afraid to stop or change dosage. Keep exercising. I have been running and it has helped. I weigh 25 pounds less than I did for my first episode.","I hope this information helps someone else out there. It is a frustrating and frightening condition.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Kathy","USA","46","Atrial Fib","Since January 2004","Every couple of weeks","All day off and on to occasional or every couple of weeks","None","Used to smoke and occasionally drink","Feeling ok but tired","Alcohol, chocolate, caffeine, stress, extreme worry, fear, inhalants and antihistamines, adrenaline rush, resting at night, lack of sleep ","I stopped smoking, no alcohol, caffiene, chocolate. I can however enjoy cold drinks, eat ice cream and all kinds of dairy. I also try and keep more calm and do some deep breathing when having an AF event. ","About the only side affect is being tired. Small amount of gum bleeding from the coumadin. ","toprol and verapmil - spikes in blood pressure and pulse rate. More dizziness and fatigue. Not keeping me in NSR. More trips to ER. More constipation.","EP study was done and attempted ablation. Unsuccessful! Have had stress test,TEE, ultrasound Previous surgery - tubal, bunion, birthmark removal - nothing serious.","Going for second opinion to Cleveland (Dr. Natale) in September. Have talked to Dr. Saltman about his procedure and possible second opinion. Want to pursue ablation with hopes of permanent NSR and no meds.","I have been a very healthly person all my life. I did have some lifestyle changes to make which has been good for me in general. I am trying to lose weight and do more exercise. AF is not fun and very scary to me. I am comforted to know there are other people with whom I can share my experiences with and get support from. I miss being able to do the things I used to. I probably have had this for some time and it just never became bad until now. All docs until now never took the time to check my complaints and questions about. I am my own best advocate. I say keep asking until you get answers.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Lorrie","USA","40","a fib/afkutter/SVT PACs and PVCs","1 year","was almost daily","3 mintues to several hours","none","good general health non smoker/drinker","still having symptoms","have them at night while sleeping, after large meals","none yet","sotalol 240 mgs"," was on 200 mgs metolprolol, tried Flecainide but had SEVERE chest pains.","gallbladder","","Just started on Sotalol March 2005. Now Ihave chest pain and multiple PVC or PACs.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Tom","Texas","46","atrial fibullation","9 months","2-3 per month","12-36 hours","low potassium level with hypoglycemia","smoker/overweight","otherwise healthy","none","reduced caffeine intake has helped","cardizum & aspirin","none","none","live with it till they find a cure","first episode occured after not eating all day then grabbing a snickers bar just before officiating at a high school fooball game. AF started during second quarter and was transported to hospital. was injected in the ambulance and had conversion. Don't recall the drug. was misdiagnosed at hospital and had second episode 2 months later, natural conversion to sinus rythem after 24 hours. Have had two episodes since, one 2-3 hours the other 5-6. Normal conversion without medical assistance.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Liz","Suffolk, England","32","Paroxysmal atrial fibrillation","diagnosed 1year, symptoms many years","now almost daily","minutes","loss of job","non-smoker, non-drinker (inc. alcohol, caffeine); veggie; fit","self-controlled","social situations emotional upset cold, wind sudden waking ","general distractions warmth fear of being taken back into hospital!","Aspirin - 75mg (I dislike this as my nose is constantly runny!)","Sotalol (40mg x 2 daily) - felt tired, lacking in energy and cold, even through summer. Hated this and unfair on family. Sotalol wiped out the flutters but it also wiped out my personality...","No AF-related","To explore alternative techniques for relaxation. Tried hypnotherapy after first AF episode, but not for me.","After (early morning) AF which did not revert, I was admitted to cardiac ward. Cardiologist diagnosed medical cause; I go with stress-exacerbated. Have had several bouts of flutters / heavy heartbeats since. Still get AF frequently, but resisting drugs - side effects of Sotalol outweigh fear of arrhythmia so far. May reconsider. It's hard to convey scariness of condition to others. I'm glad I found this site.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mavis","California","57","Lone Atrial Fibrillation","At least a year, just diagnosed June 2004","They went from very infrequent to every onther day","The last one, in which I went to the ER lasted about 6 hours","Nothing at all","I thought good health. My cholesterol is 232 but my HDL is high. My cardiologist says that does not matter. I must get it down below 200. I am femail 5' 8 1/2' and weigh 135. I have always been very nutrition and health concious.","They admitted me when I went to the ER I was put on Betapace. I have not had an episode since. I feel good .","I love wine. Wine dinners and knowing about wine has been a real source of entertainment for me. I just went to a new cardiologist yesterday for a second opnion. He says I should not drink at all. THat is hard but I will do it. If that is what is triggering it. He did say it is hard to tell what the trigger is now that I have already been put on Betapace.","I do no not know. I feel I always knew when I was having them, my new cardiologist says they may still be occuring in sleep.","Betapace. I read all I could on internet. It scared me but I don;t want to have AF either. I am lucky that so far no major side effects.","None","None","As I mentioned I got a second opnion and than changed cardiologists(to him). He would not have treated me in the ER by trying to medically cardiovert me becuase of my history of how long I have been having them. That is when the clots are most likely to happen.He would have put me on coumadin than which the others did not. I am going in for a stress treadmill and wear a holitor for 24hours. I was diagnosed by wearing an event monitor."," My biggest fear is of a stroke. I also am hyperthroid but my blood levels have alwyas been closely monitored by my internist. I have been on Synthroid for over 25 years. They at first thought that may be the reason but there does not seem to be one. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Richard","UK","39","SVT/AF","6 since diagnosis/2 months","infrequent since taking medication","1-3 days","","good","early days of AF - hopefully medication working","Alcohol","","Sotalol 2 x 80mg pre day Noticeable side effect - lethargy","","None","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Paul","Georgia","34","Afib","2 months","once","2 months","none","overweight","waiting for treatment","none","none","coumadin toprol","lovenox","none","electro cardioconversion","I'd like to get more info on what happens in the cardioconversion procedure.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Vic Shorney","Essex, UK","59","May 2004","Have no idea","Only diagnosed last month","n/a","Tight chest, fluid on lung","General health very good - liked a lager or two - non-smoker","under medication at Southend General Hospital - health much improved","n/a","","Warfarin, digoxin","","none","none","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John S.","Atlanta GA (area) --- USA","67","atrial fib./flutter","puberty...50 years ago","several times/week (after age 55)","8-12 hours","1 mile run in boy's gym class in school","good","tolerating the condition. quality of life terrible","alcolol, heavy meal, stress, lack of sleep.","eating lightly, avoiding all known triggers.","Tambocor: none that I'm aware. Atenolol: physical fatigue. Warfarin: standard---bleed easily.","Amiodarone: Just stopped working.","Tonsillectomy at age 6.","Retired, part-time work.","Recently found that taking Magnesium supplements have decreased frequency, duration and discomfort of afib episodes.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,0,1,0,1,0,0,1,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0 "Dale","Melbourne Australia","47","Lone afib","5","Every 6 or so months","Anything from 1 hour to 17 hours","Pre-eclampsia during pregnancy. Came home from hospital after birth and experienced frequent ectopics. I believe that this was connected to my later diagnosis of afib.","Good. Non smoker and since afib non drinker","Afib wise best I've been since diagnosed.","Dehydration Stress Alcohol Lack of sleep ","I have dramatically lessened the occurence of afib by drinking at least 2 litres of water a day. I used to just have 1/2 cup tea mornings and apart from a glass of milk, that was my total fluid intake. Prior to starting this I was experiencing afib every 5 days or so with durations of usually 12 to 17 hours. Since I have adopted this measure I have been free of it now for almost a year except for one episode 6 months ago when it went for 1 hour, the shortest time I've ever experienced.","Sotalol..No side effects.","None","None","Keep drinking my water!!","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anonymous","NH, USA","31","A--FIB","2 mos. ago, one occurance","Only one ER visit episode so far---otherwise, have some palitations occassiobnally with dizziness and exhaustion","minutes","Awoke with AF after sleeping on stomache, plus, stressed from 18 mos. old","Overweight, otherwise healthy","Had EKG, ECHO, StressTest, and Holter Monitor for a day---all normal, but Holter shows irregular heart beat","Stress, Sleeping on left side or stomache, eating a lot at once, anxiety, have GERD and think I may have a Hiatal Hernia (from pregnancy and weight gain)that cause it.","Have been taking Heart Advance Dietary Suppliments from GNC Nutrition Centers...adds Q10, Vitamins E,B12, B6, Magnesium,etc., plus taking a Potasium Suppliment...Relaxation, Chamomile and Ginger Tea...No meds so far. No Caffiene. Have been trying to lose weight. Light walking for excercise.","Was given Verapamil by the ER doctor---but have never taken it. Take Asprin at the onstart of palpatations.","N/A","C-Section and Plianital Cyst Removal (lower back)","Seeing my Cardiologist in Aug. '04 ---having chest X-ray and more blood work done 2 wks beforehand. Saw a dietician--trying to loose at least 10 more lbs. by Aug.","A-Fib was very scary. I worry about having another bout of it every day---especially worried for my baby...who I care for all day. Would appreciate anyone's help or advice on further treatment, remedy, or info on this ailment. Thank you! e-mail: knmclaughlin@yahoo.com",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mavis","Fraser Valley, British Columbia","65","perm. AF","?","as above","ditto","Think it must have been my hysterectomy surgery exactly 1yr. befor diag."," Moderate high blood pressure, tad overweight, non smoker, social drinker.","Very good, no symptoms of AF or medication."," Can,t tell, since I am in perm AF."," ? ","3MG Warfarin. 360MG Tiazac 25MG Atenolol Magnesium supp, fish oil cap., vitB Complex, Cal/Mag/D No side effects.","Was on Digoxin for 2 months when first diagnosed, which made me feel very lethargic and out of breath.","Tonsils out when a child. Total hysterectomy year before diagnosis.","I plan to enjoy the rest of my life, this has been a bit of a reality check, as it were. In short 'I'll not fret the small stuff and try not to get anxious about the larger stuff.':)","This board has been an amazing comfort to me and I wish all of you that post to help others, the very best in everything and thanks so much to you all.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Haze","NW UK","47yrs","Mitral valve leak and triscuspid valve leak (both minimal) and Atrial Fibrillation","Many I suspect but only know 6 months","Lessening all the time as I discover triggers, so...3 X a week"," an hour","Very very high stress on on going basis as teenage daughter got herself on drugs and was missing overnight a lot of the time, 1st attack came after an argument when I was overtired (up all night looking for her)","Non smoker, very occasional drink, mild asthma with hay fever, hypothyroid","Feeling great!","Lack of sleep, STRESS, Adrenalin (even pleasant adrenalin rush), migraine, sometimes excercise can bring it on.Monosodium glutamate. Food additives (havent isolated which ones yet but again savoury foods) Digoxins and suplhates (Preservatives) in processed cooked ham, meats etc","Not over eating, not getting overtired, drinking grape juice, eating organic everything, avoiding sugar, taking multivitamin and magnesium supplements.","Bisoprolol when needed, and plavix (anti platelet) Occasional antihistamine (benedryl) and lorazepam","Previously tried atenolol, (woke me at night with odd short runs of V tach), soltalol ..( felt ugh) and flecainide, no side effects and controlled Afib and ectopics well ","Non on heart but Dilate & curettage (5 times after miscarriages) and apisectomy on gum....heart stopped during labour due to dehydration and haemmorrage putting body into medical shock, was resusitated. Leg vein ligation.","At present am feeling my way as to how things affect the Afib, so far so good, seem to have found some good preventatives(magnesium and grape juice) (Not necessarily together lol) May have to have a mitral valve replacement sometime in the future and would have a maze procedure then. If that valve op isnt necessary, hoping for cryo ablation when the technique is more perfected or the Afib controls my life more than at present."," This is a great resource, thanks james!",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,1,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "MJ","Texas, US","53","","0 - 2 months","Once every few weeks","2 months","None","Good, chronic sinus","","MSG? sleeping on left side, salty meals, volume depletion, high carbs/sugars","","Toprol, aspirin, magnesium, flaxseed, lecithin, potassium, multiple vitamin, calcium","Lopressor","None for this ","","I have hot flashes every hour, and am often soaked in sweat. Think this might lead to volume depletion and subsequent afib.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "kayjaybee","Arizona, USA","28","SVT with mild regurge, IST, possible stenosis","8","daily","varied","otherwise healthy","asthmatic, non smoker or drinker","run down","stress, caffeine","sotalol, flecanide","Sotalol, Lasix, Paxil ","","EP and Ablation 4/16/04","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,1 "JD","Southeast USA","25","Atrial Fibrilation","3","once a year","24-48 hrs","Overdrinking, smokeing, eating greasy food right after waking up","Quit smokeing shortly after first episode","cured","Brain Freeze from a Pina Coolada at the Cheesecake Factory, Smoke, 3 beers","None","Sotolol, no side effects Childrens Asprin","","CardioVersion","Quit Drinking, ABSOLUTELY no smoking (its not as satisfying anyway)","Nobody believed that it was triggered by the Brain Freeze, they think it was the alcohol in the Pina Colada",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "anon","Central UK","28","Atrial Flutter / AV Node Re-entry","3","Varies 1 per month to 6 per week","10 seconds to 48 hours","Fatigue & Stress","Non-smoker, average drinker","Seems to be cured","Caffeine Tiredness","Light exercise, Alcohol, Vagal Maneuvres, rest","Verapamil, causes headaches Warfarin","Sotalol, feeling cold Aspirin Adenosine (to stop long term tachycardia) side effect of back pain.","Glenn Shunt Fontan","Verapamil RF Ablation if Verapamil fails","Currently living a normal healthy lifestyle, thanks to the Verapamil",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Frances","Suffolk, UK","62","Paraoxysmal (lone) atrial fibrillation - no other heart problems","7 years","Hospitalized in 1997 for 7 days (first attach). I had no adea what AF was at the time","Nov 2003 (hospitalized for 3 days)","None","Excellent","Not too sure what's happening right now!","1997 was put on AMiodorone (200 mg) Warfarin (was always 3mg but no forever changing (mostly higher). Medication stopped working last year and was causing a lot of missed beats, etc. The Cardiolgist I saw privately took me off the Amiodorone (takes 6 months to get out of your system). However my seventh month was last Nov 03 and I went straight back into AF. ","Don't know any really, although I sometimes think getting too tired may be a contributing factor.","Now on Sotalol, 40mg twice a day. Warfarin (dose keeps changes constantly at the moment) No side effects but it hasn't put my heart back in rythmn Sotolol that is)(it's quite irregular at times). I am now awaiting to see an Electro-Cardiologist in a couple of months time. Feeling a little more hopeful! I certainly do not find the doctors very helpful at all (they appear to know very little about AF and never seems to be able to discuss or answer questios that I ask them).","Amiodorone (200 mg) and Warfarin (3 mg). Amiodorone was an awful drug for the first 6 months - made me feel so ill, shakey, sick and lost a lot of weight. However, after that period it was wonderful for 4 years - I was able to carry on normally with everything, apart from swimming that is. Apparently you can not swin if you have AF and cold water is a BIG 'no-no', I was told it could kill you (that info was from a consultant). Oh yes, I was given Flecainide but it made me extemely ill after 3 days and on leaving it off I ended up in AF!","None","Hopefully, to be able to find a cure and carry on normally for a few more years.","It's so nice to have found your site and hopefully we can all be of help to one another in some way or another.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "A Jones","Pennsylvania","53","Lone Atrial Fibrillation","2?","constant ? was undiagnoised for most of the time but in af","constant","pneumonia","Excellent, non-smoker, non-drinker, runner and vegetarian","in sinus rythmn","extreme physical exertion, possibly smokey environments","please tell me","coumadin, flecainide acetate / difficulty sleeping. ","I was on atenolol and before that toprol which made be feel tired allot of the time.","Three electrical cardioversions in the last month and a half!","If the A fib persists hook up with an EP and try ablation.","I am speculating that the bout I had with pneumonia caused the afib. I converted to afib two weeks after each of the first two electric cardioversions. Each time was preceded by a demanding physical exertion for a long period.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "telboy","UK and Portugal","55","Chronic AF","Diagnosed in 1999","24/7","na","None known, but do suffer from stress","Smoker, drink one litre beer/day, no spirits, no drugs.","April 2004, going in to Atrial Flutter. But normally not a prob. unless I do anything at all strenuos, like walk up 2 flights of stairs","As I am in constant AF, I do not even think about triggers. But I do avoid caffeine ( I do remember one event before AF diagnosed, drinking strong coffee and almost immediately feeling my heart beat change) and try to avoid stress. ","None except sleep","Sotalol 160mg Warfarin 5/6mg Recent addition of Digoxin 125mg( only 2 days) Recent addition of Thyroxine ( TSH up to 4.5) ","Amidarone.....UNBELIEVABLE. When first diagnosed I was put on to this..within 3 weeks I was in NSR and felt 21 again. Little sensitive to strong sunlight. Don`t recall any other side effects. Deposits built up in eyes, but no visual disturbances. Gradually benefit seemed to wear off. NHS in my new area of UK do not like Amiodarone and withdrew immediately. Put me on Digoxin,only, within 3 months my Thyroid had gone into overdrive..HypoThyroid state, not nice!! ( they did not check Throid before taking me off Amidarone?) ","Electro cardioversion tried in 1999, only 4 months after first diagnosis. Went back into nsr for 4 days, then back to AF None, but Papworth Hospital suggest Pacemaker and AV node ablation. I have so far declined as I `m not convinced it is the answer.","Desperatle hope and trust in the Medecine men to find a cure for this problem, which seems to be becoming almost epidemic in size. Will suffer the probs unless it gets hopeless, then I will consider pacing, as a last resort","Seems to me that there is much divided opinion in not only country to country, but within countries themselves, as to the best way to tackle the prob. As my original cardio said. Do you want to live well for the next 20 years and then Maybe have a prob within Amiodarone effects, or suffer from AF 24/7 for the rest of your life? Its a tough call to make when you don`t know the answer.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0 "anon","Australia","67","","6 mths","3 to 4 a week","36 to 48 hrs","hypertension","ex smoker","well except AF","not known","not known","cardizem 240 mg perindopril 4mg allopurinol 300 mg aspirin 300mg Supplements: Acetyl l carnitine,magnesium, CoeQ10, l arginine,Vitamin E, Vitamin C, glucosamine, lipoic acid, taurine, omega 3 fatty acids","Sotalol tired, sleepy Atenolol ' '","","try to get off pharmaceuticals gradually,hoping the supplements will help or a miracle","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Shelby","Huntsville, Alabama","72","Paroxysmal AF with mild mitral valve prolapse","Seven","Initially infrequent (Quaterly?); lately one to eight days apart","Sometimes minutes, sometimes hours, sometimes days","TIA (trans ischemic attack) probably caused by undiagnosed AF","Good except for AF--doctyors say remarkable for age","Frustrated that I can not stay in NSR--threw a clot in December;","Not known. Seems to happen most in my sleep. Also sometimes is brought on by execise (dancing) and sometimes converts while exercising---seemingly without rhyme or reason"," Wish I knew"," Verapamil--360 mg/day (since end of Jan) Coumadin--5 mg/day Thyroxin--0.2 mg/day Lipitor Ambien"," Amiodorone, 200 mg/day for seven years: Sun-sensitive, increasing lumbar congestion No coumadin for last five years but back on since I had an embolism in December that luckily went to my maxillary artery (upper right arm). 'Unusual outcome' per the doctors--normally would result in a major stroke or death."," Embolectomy, right arm--Dec 16, 2003 Nothing prior for over ten years"," Hard to plan in this state. Still working half time--plan to continue as long as I am needed and can contribute. "," Lucky to be alive, grateful for each beautiful day and for beautiful people. Lost my beloved wife to pancreatic cancer five years ago.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "DaveMH","Eastern Penn.","61","lone afib","Diagnosed 8 years ago: probably had symptoms for many years.","2 or 3 per year; When medicated no symptoms for 6 years; now more frequent","usually self converted within 36 hours","None","Quit smoking on first diagnosis. 20 pounds too heavy. Active lifestyle - paddle kayak, garden, raise trees.","6 Years controlled with Rythmol; Now controlled by lopressor, I hope.","Wish I knew! First awareness was a high adrenaline situation (watching daughter in rowing regatta)at the same time I was using Sudafed (pseudo ephedrine). Another simply at work. Another simply driving to the airport to pick up sister. Another chain sawing a tree in mid Aug. Many just happened when they wanted to. But you know that. ","Rythmol used to do it. Before dx I used to lie down and wait a few hours for it to go away.","Lopressor 100mg 2x Side effect -when dosage changed, lethargy for 2 weeks. Coumadin 5mg 1x no side effects. I initially worried about bleeding from all areas but have experienced no problems at therapeutic level - INR 2.3 to 2.6 with 5mg nightly. Pepcid 20mg 2x Asacol 800 mg 2x both for past ulcer condition ","Rythmol: eliminated episodes for 6 years; gradually became ineffective over the last year - dosage increased gradually. Last June had 3 weeks of fib; started and increasing coumadin but did not reach therapeutic level fast enough; Stroke occurred after stressful day. I noticed visual deficits/ called cardio/ went to ER and treated. Now have minimal visual cut in left field and tingling in left pinky. Fortunately no significant functional impact.","None My heart is actually healthy other than this. All the tests, echos, stress, MRIs, etc show good size, shape, no blockages, low cholesterol etc. But this is enough! You know that. Two basic forms: infrequently it's like a squirrel trying to escape from inside my chest. Usually a fuzzy vibration. Many times it's hard to tell whether I'm in fib or out. (I guess that's nice?) My most reliable symptom is when Im worn out and out of breath.","Continue rate control strategy. If/when that stops working try other rhythm meds. Postpone ablation until meds don't help or af becomes more disruptive. Allow ablation techniques to evolve. ","DON'T DELAY THERAPEUTIC LEVEL OF BLOOD THINNER WHEN IN/OUT OF AFIB FOR ANY LONG PERIOD. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0 "Stef","Alexandria, VA","41","afib","3","seldom.. couple times a year","<5minutes to 6 weeks as longest .. average a day or two","workout on eliptical trainer","social drinker","controlled","drinking cold liquids ALWAYS while standing ","I drink room temp drinks unless I'm sitting. No gulping of cold drinks. No caffeine, no decaf coffee.. minimal alcohol","Tikosyn 250 x 3 - no side effects Atenelol - 50 x 2 - low bp, low heart rate (good), cold hands Synthroid .125 - makes you feel GREAT! Prevacid - no heartburn! Coumadin - 7mg ","Sotolol - horrible.. headache, nausea, lethargy.. Digoxin - works quickly to bring my heart rate down Cardizem - used to work to bring me out of afib if I doubled up. Armour Thyroid - doctor thought synthroid was a little 'easier' on the body. Verapamil - made me quite lethargic and tired","no surgery ever.","AFib control until it either gets worse and interfers with my life, or until they have more experience with ablations.","Learn all you can about your condition and find a good doctor to whom you can talk honestly. Don't stand for medications that make you feel crappy unless you've gone through them all already... But most of all.. examine your life and cut out the stress as best you can.. learn that there are things you can change and things you can't and don't fret about the things you can't! Find things that make you relaxed and happy and do them often!",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,1,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Wes","USA","33","1998","6","Now 1 every 6 months Before 6 times a week for over 8 hours","3 to 8 hours","none","tabacco user and drinker","Have to pace myself but im fully functional at this time","Sleep need more rest than before have to schedule my life high stress sometimes triggers it high jumpyness ","","St judes arrythmia pace maker and drug theropy of tamacor and ditizem and warafin has greatly helped from before ","Everything from old style drugs to experimental thru phizer nothing seemed to work made condition worse ","","Abbaltion ","Hang in there i was lucky to find a Doctor that was very aggresive in finding a fix for me or to help the problem is still there but it is alot more under control",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,1,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,1,0,0,0,1,0 "John","Ireland","55","(Lone) Paroxsymal Atrial Fibrillation","18","Once/twice yearly","Presently 3 to 5 hours","Heavy alcohol intake over one month period","Good","Good","Absolutely none. With each attack, I examine my lifestyle to try to find a common denominator. No luck, most happen at night... Wish I could find a trigger, so that I could do something about it! Believe it or not, the closest I ever came to a 'known trigger' was that it often happened when I was cleaning my teeth at night! Must stop cleaning my teeth!","Again, wish I knew","Daily aspirin - 300 Carry Tambocor to be taken when in fibrillation.","Digoxin in early years Didn't work.","None","Like everyone - hoping for a cure. And constantly, when not in arrythymia, telling myself not to panic when the next attack happens...","Two attacks within days recently, hoping it is not the beginning of a pattern. Stay tuned...",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Paula in Massachusetts","Boston, Massachusetts","52","Paroxysmal Atrial Fibrillation/Atrial Flutter 2001/Now more persistent 2006","Noticed symptoms in early 20's diagnosed at 47","Early 20's to 47 occasionally, 2001-1, 2002-0, 2003-9, 2004-4, 2005-5, 2006-5 so far","Early 20's to 47 few minutes to few hours self convert, 47 to 49 five to ten hours need help converting on occasion","Around time my mother was diagnosed with terminal cancer/Niece diagnosed with Hodgkin's","I am overweight (yo yo dieting all my life), I just recently had an embolism to my right eye (eye damage), brain tumor left frontal (meningioma), asthma, kidney stones, mitral valve prolapse","I was Paroxysmal afib/flutter but since I allow chemical conversions in the hospital Im considered persistent afib now. I seem to be having afib every 4-8 weeks. Winter months and the holidays every 4 weeks and summer every 8 or more.","MSG, Caffeine, chocolate, fatigue, postural (bending over too fast, sitting in a recliner to fast (at times), getting up or laying down too fast, I avoid additives + preservatives as I will get PVC'S if I have too many leads me into afib,aerobic exercise, flu or sickness puts me in a fragile state and Afib usually follows,(dehydration or fatigue) , soy products (I get lots of PVC's after consuming), alcohol, emotional or work-related stress,Physical overexertion like shoveling snow or lifting heavy stuff, pushing,lying on the left side,Aspartame (NutraSweet),too much sugar, It is clear that the triggers for afib are many and varied and highly specific to each individual except for excessive emotional and physical stress which is pretty well universal. ","I pace myself and rest often. I try to avoid all known triggers. I make sure I take my medication on time. I take a daily nap. If I am feeling fragile I take that as a warning to go easy and not do much that day.","Sotalol 80 mg x 2 a day 3-11-04 120 mg x 2 a day 12-04-04 160mg x 2 a day 4-30-05 Warfarin 4-11-04 5mg daily Diltiazem 30mgs Take one tablet when in afib 12-01-05 I have been on Sotalol for two years now. Warfarin for the same amount of time. The Sotalol is keeping me in NSR more than any drug I have tried up to this point. I am having an afib attack every 4-8 weeks now. Summer time I will go longer but winter months I work hard to make the 4 weeks as I think the cold contributes to the attacks. When I first started the Sotalol I felt tired but now four months into the drug I'm getting back to normal. I still have my fragile days often but I'm not kicking into afb on them like I use too. I'm finding there are certain things you cannot eat with Sotalol and Warfarin. I watch my Vitamin K intake and I have had some reactions to fruits example Mango. I just read that papain interacts with Warfarin (enzyme papain in Mango). But other than that its a learn as you go and if it doesn't feel right question it so you can fix it. After two to three breakthroughs my doctor changed the dose on the Sotalol. It is holding me in rhythm anywhere from two weeks to eight months so far. I also take 1 - 30mgs of Diltiazem when I pop into afib. This seems to keep my rate down so I don't have to go to the hospital every time I go into afib.","Nov 2001 Cardizem Cd 120mg to 180 mg, Adult aspirin. No side effects that I noticed Jan 2003 Lopressor 50mg x 2 no side effects, Adult Aspirin. Oct 2003 Toprol XL 50 mg x 2 to 100mg x 2, Adult Aspirin. I was tired on the Toprol XL, I was always cold and my fingers would turn blue in the cold weather and I started to pace myself and do things at a slower pace because my get up and go was not there now. March 2004 Sotalol 80mg x 2 a day, December 2004 Sotalol 120 x 2 a day April 2005 Sotalol 160 x 2 a day I still get the finger and toes turning blue in the cold weather or if im chilled. I started off being tired but I adjusted well and tolerate this well. My hair is falling out with Sotalol but a Normal Sinus Rhythm out weighs my hair. Aspirin, I started out with one baby aspirin a day. After a few trips to the ER room and chemical conversions they told me to take 1 Adult aspirin a day. I was taking the uncoated baby aspirin at first and if I cut myself I could see a longer time till clotting. After a few months on the Adult aspirin that was coated I noticed if I cut myself I was clotting faster now. I don't know if the coating had anything to do with this? I also noticed too late and I passed a clot to my eye. Im not sure if our bodies build up a tolerance to Aspirin or if the coating has anything to do with what happened to me? April 2004 Warfarin (Coumadin) taken off Adult Aspirin December 2005 I also take 30mgs Diltiazem when in afib ","Biopsy on breast negative, Two operations for my ovaries one removed, Gallbladder removed.","I'm not sure yet. We are all individuals and progress differently. ","Sotalol is the first drug I have taking that I can actually feel a calm heart. My whole life I have never had the feeling of calm. I always felt a fast unsettled rate and thought that was normal. I now have a more persistent afib in the past three years and IM still trying to find the right drug to keep me in normal sinus rhythm. I don't think there is any one drug that will actually do that but they can assist us in a better quality of life. It has been over two years now and I am going in and out of afib anywhere from 4 weeks to 8 months between each episode. I will be in afib from 2 hours to 11 hours. I noticed since I started to take the different drugs to control my afib I have lost my get up and go. I now have to take it one day at a time. I can't push myself to exhaustion without feeling the consequence's now. I take it one day at a time and on the days I feel fragile I hang around the house and take a nap. I find if I have a normal feeling day and over do it this will set me back for a few days being fragile again. I have learned that less is better for me and I try to accept and live that way at least for now.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Paul H","Charlotte, NC USA","62","Paroxsymal Afib, diabetes type 2","9","once a year","a few minutes to 40 hours","","good","good","Vagal? most events start during sleep. But also can be brought on when cooling down from strenuous exercise.","","150mg flecainide, twice a day / none 325mg aspirin daily / ringing in ears 160 mg valsartan (Diovan)daily / none 40mg Lipitor / none","","electro cardioversion (twice)","avoiding Coumadin, awaiting a better anticoagulant?","Considering PVA if episodes incease in frequency",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "mark","hampshire, UK","52","Paroxysmal (lone) atrial fibrillation (vagal/mixed), no other heart problems","10+years","every 2-3 days","12-24 hours (before current medication)","no events before first AF","very good health, non smoker, regular sport","Currently partially stabilised","Used to be stress and sometimes sudden exercise, chocolate, caffeine, now after a meal in the evenings","Relaxation helped a little, avoidance of triggers. But this just delayed the onset.","Sotalol (1x80mg and 1x 40mg per day), aspitin (75mg). The Sotalol initially upset my rhythm even more than normal and have me a light headed feel. I nearly gave up but persisted. After 2-3 weeks side effects reduced. Now effects are that it reduces my heart rate from 60 to around 50 and also reduced by BP from 110/70 to 90/60, causing a slight lack of 'get up and go'","Bisprolol - limited effect no side effects Flecainide - some reduction, no side effects Propafenone - no effect","None","Try reducing Sotalol to 80mg per day. May also try Magnesium tablets as recommended elsewhere. In about 5 years time may opt for ablation once this has become a standard practice that has been well investigated.","Looking at this database I must be the only person that has benefited from Sotalol. Up until 3 months ago the AF was a pain as it interferred with the hockey I play. In over half of games I would get AF. I was able to continue but my recovery period from running was extended and I enjoyed it less. I then started Sotalol on the recommendation of my cardio (having tried various other drugs with limited or no benefit). Initially the side effects were quite bad but I stuck with it and these improved. Now, I have been playing twice a week for 3 months with no AF! Brilliant!! I now only get some AF in the evenings but that has relatively little impact on my lifestyle. Around the same time I started on Sotalol I increased my cod liver oil capsules to 2p.d. and reduced the glucosamine I take for my joints to 1000 mg p.d., but I don't think this was responsible for the improvement in the AF.",0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tony Cruz","Clermont, Florida","49","cronic Atril Fibulation","5","on going random","5 to 10 minutes","1999 car crash was the first episodes","none smoker/ drinker/drugs uses","lost jod @ Disney due to medical restristions","Any time sleepping or standing, active or setting it kicks in thounth out the day. It is in the tramam of the nerves in the spinal core. A state of stress has had it toll in aggeravating known trigger episodes. large amounts of frash gralic helps control stress/blood pressure/collesterol assisting the blood flow and reducesing recoving time of episodes. Take four to five cloves for two hundred pound men every thrid day. Just bring water to boil and drop cloves in for one or two minutes no longer than that. Serve on a low sodium ritz cracker and a small cup of red wine. please get creative if you are not a garlic lover as I. ","Prayer in Jesus's name.","Taking doxazosin, digoxin,lisinopril,metrolol, vioxx side effects dizzness, fainting, sleeppness,tirerness,heart burn,nassea,restless sleep. ","Recoving is inhanceed by stongthenning your adbe's and learning to control your breathing patterens.","None","None","Shit! #&^$(*&*^#$!@*&^*(nuts); I wish every one well with their sole in thier own walk and pray they do not walk it along.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John F","Surrey UK","76"," AF","20+","Continious","","Hypothroidisem","good, hypothyroidisem","better after pacemaker withou ablation","Sudden cold (going outside into cold, jumping into cold sea) ","none","Bisoporol, Warfrin, Thyroxine","Flecainide, no side effects. Only stopped (after tapering dose down over three weeks) March 2004 Sotalol, about 20 years ago, did not work so went on to Flecainide Gave up asprin when started Warfrin","Ablation 1 year ago, worked for a while. Then went in to continious AF. Pacemaker with AF supression fitted August 05. Pacemaker AF supression never turned on as AF continious.","To live as long as possible","",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0 "Lucy","London","27","Atrial Fibrillation with Wolfe Parkinson White Syndrome","2","Daily","10 seconds to 5 hours","Wolfe Parkinson White Syndrome","Smoker","Wolfe Parkinson White cured with ablation. Awaiting further ablation for AF","Lack of sleep Lying in bed Alchohol ","Cold drink","Sotalol. Side effects; weight gain and loss of libido","Flecanaide. Dizziness, hallucinations, confusion.","Ablation - July 2003","Awaiting further ablation.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,1 "Bill","Ontario, Canada","42","Lone AFIB","4","Three or so annually at first; now every two weeks","8-28 hours","","Haven't consumed alcohol in a year; smoker","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Marguerita","essexUK","61","Atrial fibrillation","10","Very frequent until given flecainide but returning after 16 months","6 hours to 48 hours","major operation","overweight with hypertension and possible diabetes","semi cured","alcohol, cheese, milk,lying on left side, bending down","none","flecainide worked well for 16 months now af episodes have restarted","amioderone this had no effect on condition","no heart surgery have had thalium scan that confirmed no underlying heart problem","to find out as much info as possible and try self help","I have found the af websites v interesting and wish that heart specialists knew more about VAF",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anthony Young","London UK","50","paroxysmal atrial fibrillation","2","variable - approximately monthly","variable - up to 12 hours","none","general health good. do drink. don't smoke","taking medication","none certain, possible food allergy trigger","none","atenolol + flecainide cold extremities","atenolol alone as above","no","no change in medication proposed at present","interested in other reports of sweating as I exhibit this with the condition initial presentation was syncope but previous bouts of dizziness probably due to AF consultant says that syncope not a sign of AF but other websites indicate that it can be",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Wayne","Calgary,Canada","42","2000","20","cronic","constant","panic anxiety tension","good","still cronic","used to be hangover from drinking to start @ 22 yrs old. then started to become more frequent at rest and after big meal or MSG in meal. Attacks just started coming on more and more intil cronic @ 40","None","Beta-Blocker ,Aspirin, Digoxin","Sotalol Did not really do anything. A strong anti-arrythmia made me really sick and did not help","none","I am trying to ingnore the uncomfortable symtoms but there are getting unbearable. I think I am going to look into Abalation but they don't do it in Canada so I will have to see how much it costs in the States","I am convinced my problem came on from 20 years of tension and stress as I have alot of fear. I tried to get help for this for the past 20 years but in Canada u are just anouther expense and you can't get psycological help unless you are a millionare. Unless you have a distinct cause your are probably keeping in a big secret and it finally got to you. Your heart can't handle mental unrest. We have to learn to some how let go of our demons!!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "bob j","cleveland oh","45","Doctor indicates periodic benign atrial fib","8","1 every 3-4 months","13 to 25 hours","none","great, athletic and fit","doing fine but wish it would go away","Monosodium Glutamate, Red Wine, sleeping or turning over rapidly to left , also adrenalin rushes/ panic when feeling a small flutter. ALWAYS happens while in bed at night without exception","Avoiding the above","aspirin","none","none","none","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Debbi","Oklahoma City, OK","52","Afib/Aflutter","9 months","daily","varies","Acute Lung Infection","COPD, Hypothyroid, Smoker","Still trying to cope","Excercise and excertion","","Tiazac 360 mg, Metoprolol 25 mg twice a day, Coumadin 5 mg daily,Lanoxicaps .2 mg Side effects: general overall fatigue","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dave Brown","Nottingham, UK","42","Atrial Fibrillation","approx 5","4-5 per week, random","Generally at bedtime, so don't know","none","was smoker & drinker, not now","health fine, just an annoyance","Drinking a glass of cold orange very quickly. Lying down in bed before sleep.","None as yet","sotalol","none","none","none","none yet",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sue","Manchester, England","49","herniated atrium","1","1-2 months","until cardioversion","none","n/s, little alcohol, good health","chronic AF, symptomatic","stress","","digoxin, verapamil, warfarin","flecainide, aspirin","","waiting to see what the medics suggest","this is driving me mad- the lack of stamina, persistent bag of frogs jumping about in my chest",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "A","Mass","31","SVT is 'official' diagnosis","unknown - serious episode @ 28","Daily sometimes 10 x per day or more - ALWAYS have episode at night. Was at 3:00, now its 1:30","Varies - some will last minutes - sometimes all day","Had Epstein-Barr for second time, then was in middle of endurance event - believe i had them before this time, but was not taken seriously","EP virus 2x, Asthma","just had ANOTHER EP study and ablation","dehydration, none others noted ","plenty of fluids, well rested","Currently - 150 mg flecinide twice daily, 50 mg atenolol and on aspirin therapy","Prior to ablation was taking 200 mg atenolol Side effects: bruising, fatigue, insomnia, blurred vision","sinus surgery, a/v nodal ablation, second ablation just done in a separate area. Found a/v node held up, but there was another area to address","continue flecinide. hoping to get my life back soon","I had complained for years of 'pain' for lack of a better term. Since we were unsuccessful in recording an episode, I was told it was panic attacks. I continued on 'dealing' with the pain. My heart rate was always high. Dutring endurance events, it would not recover. I think doctors need to LISTEN more to what patients say. The only person who knows how I feel is me. After all these years, I feel frustrated",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Female age 40","Vancouver, WA","40","Atrial fibrillation and atrial flutter","3 months","Dozens of times per day / night, maybe averaging once per hour","Anywhere from a few minutes or a few hours","Emotionally stressful / hurtful event","Good general health, overweight","Very ill","They seem to happen whenever I relax. I can't sit down or lay down for more than a minute or two and they begin. Sometimes they even happen while I'm walking, exercising, etc. This makes it hard to sleep, I'm awake on my third day straight right now.","Nothing prevents them, I've tried everything I could find on the Internet.","Tenormin, 50 mg a day. I started out with 25 mg. a day, but they made the palps no better, actually got worse. Doctor said 'Double the meds.' Palpitations seem to be actually more frequent and severe with this treatment than without, so I am weaning myself off of them. My doctor tells me it's a problem I'm going to probably have to 'live with.' He hasn't actually seen me in person for this, it's all been diagnosed over the phone and with a take home heart monitor. I hate HMOs. Also, an aspirin a day.","None.","None.","I plan to get off Tenormin / atenolol, have been weaning myself down for a week now since it does me no good anyway. Plan to continue to take an aspirin a day, and pray a lot.","Sudden death from heart attacks runs in the female side of my family. My cousin died at 42 while in a fight with her husband and daughter. My aunt died at 48 of a heart attack. My mom is on heart meds. But get this: my TWIN sister has no symptoms.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anthony","Prague (Czech Republic) and Edinburgh (Scotland)","39","Paroxsysmal A F","18 years","Approximately 6 years between episodes","12 to 24 hours","Student drinking session with friends!","Generally fine, suffer from stress and anxiety, Blood Pressure needs to be monitored from time to time, average 130+ / 90+ Occassional smoker, social drinker","stabilised/cured","Alcohol Consumption? Smoking? It seems that each episode has been preceded by a period of drinking large amounts of alcohol, no more (and in some cases less) than any of the other people I was in company with, but I guess I have a sesitivity to alcohol?","Flecainide and avoid prolonged periods of alcohol consumption ","Flecainide 50mg x 2 or 3 a day / Slight visual disturbances Inderal L.A. 80mg x 1 per day / Sleepy sometimes","None","None","Look at stopping Inderal altogether, explore 'alternative' anti-arrythmia measures, e.g. Magnesium etc. Maintain sensible levels of alcohol consumption","Good Luck and Good Health to all!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bill M","Easton, PA","39","Paroxsysmal Atrial Fibrillation","6","1 - 2 times per month","30 minutes to several hours","Caffiene, Alcohol","Gerd, moderate drinker, overweight, don't exercise","Well controlled. No hospitalizations since 2000","Exercise after drinking, too much caffiene, taking decongestants (i.e. tylenol sinus, Nyquil).","Limited drinking, no caffiene intake.","Tambocor 100mg / twice a day. Makes me tired and a little jittery. Diltiezem 180mg / once a day. Tiredness. Protonix for Gerd Asprin 81mg / once a day","Betapace 120mg twice a day - Hated it. Caused sexual side effects. Made me constantly tired. Lopressor / Digoxin - this was the first combo I was on and I felt awful until I stopped the Digoxin. Had breakthrough episodes and was hospitalized and put on Betapace.","None.","Waiting for the Afib RF ablation techniques to mature to a point where I am a candidate for this.","Being on Tambocor has been an issue because of the number of other drugs that I cannot take because of potential interactions. Being tired all the time cretainly does not help matters either....",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "JIM","CALIF","57","ATRIAL FIBRULATION","40","FROM 1 TO 2 PER WEEK TO 2 OR 3 MONTHS APART","5 MINUTES TO 1 1/2 DAYS","HYPERTENTION/NO KNOWN EVENT","GOOD.NON DRINKER,CIGAR SMOKER 4-5 P/WEEK.MILD ARTHRITIS.","GOOD,WORKING 50-60 P/WEEK","NO KNOWN TRIGGERS.COFFE SEEMS TO AGGRIVATE BUT NOT SURE.","NONE.IT SEEMS THAT STRESS MAY BE A TRIGGER BUT NOT CONSISTANTLY.","ACUPRIL 2X DAY,CARDURA 1 PER DAY,NORVASC 1 PER DAY,DIURETIC 1 PER DAY.PRYLOSEC AND NAMBUTONE FOR ARTHRITIS AS NEEDED. 7 MG. WARFARIN 1 PER DAY,1 DIGOXIN PER DAY SOME SWELLING IN LOWER EXTREMITIES,UNKNOWN WHICH MEDICATION IS RESPONSIBLE. I SPEND MOST OF MY DAY ON MY FEET DUE TO MY JOB.12-HRS +","HAVE TRIED 25 OR 30 DIFFERENT HYPERTENSIVE DRUGS,SETTLED ON THE ONES LISTED ABOVE.","ONLY MINOR SURGERIES TO NECK AND HANDS/FINGERS(INJURIES)","HOPE TO CONTROL THE A/FIB BETTER,ITS GETTING TO BE A PAIN IN THE ---","ONSET IS USUALLY DETECTED AFTER FEELING A 'THUMP' OR DOUBLE BEAT. MY 32 YEAR OLD DAUGHTER SEEMS TO HAVE A/F ALSO.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anthony George","Wales,UK","39","Lone Atrial Fibrillation","7","max 5 years : min 7 weeks","24-48 hours","chronic flu in 1996","non-smoking very fit individual","NSR","postural or high-intensity exercise whilst being dehydrated or having recently had too much alcohol or aspartame","alcohol abstention or no exercise or exertion for a few days following alcohol ","flecainide (tambocor),warfarin (coumadin)","flecainide and amiodorone ( the latter for conversion only)","3 electro-cardioversions - conversion by amiodorone on other three occasions","Once back in NSR the cardiologists just say to get on with life. No testing or analysis involved.Hoping to see a different one soon but have no great expectations. Just hope that flecainide reduces the frequency of episodes ","It appears I fall into the category of a vagal AF sufferer as typified by age and sex, fit and athletic as illustrated by low heart rate (mine is 54 the day and was 48 in my twenties). Certainly two (and possibly four) of my episodes seem to be ‘postural’ in nature. All of them have involved high-intensity activity that has elevated the heart rate. The reversion after vagal manoevres seems to further confirm the vagal-nature of the attacks. In addition to the ’activity’ element there also appears to be a co-existing factor that seems to have possibly ‘imbalanced’ the autonomic nervous system. The toxins, alcohol and aspartame, have been mentioned previously. If the episodes had been solely activity-initiated I would sureIy have had many more episodes as I have regularly participated in rugby, soccer, athletics and weight training. I have tried to manage the potential triggers but it is not easy as regards the food-chain toxins.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ken","Massachusetts, USA","34","Atrial Fibrillation/Flutter","Just diagnosed as of 12/15/03","Daily - usually only in morning","5 to 20 seconds","","Asthma (mild)","Going for tests/treatment","","","Toprol and Cumatin I get kind of tired/lethargic from the medication ","None","None ","I am optimistic I can overcome this once we find out everything we need to about my specific condition. I am young and in good health. I'll beat it. ","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "PATTI A.","usa","60","Atrial Fibrillation/AFlutter","1 year","Now about every 3 weeks","4 to 6 hours","None I can recall","Very healthy, non smoker/non drinker, I work out and eat very healthy foods, have taken no medications prior to this condition, except for Prempro and after the controvery I threw those out. I am a believer in vitamins and have taken them for years.","I have eliminated caffein, dairy, sugar from my diet since my last 'episode' a week ago and am hopeful there will be a change. I am also makiing myself get more rest throughout the day and I don't eat later than 7 pm. I am hopeful this will possibly go","I believe caffein, stress and being overly tired. I wish I knew, but am trying to find out.","Eliminate caffein, dairy, sugar, stress, exhaustion from my life.","Metopropol and coumadin. I haven't really noticed a difference except that I may be more tired and my heart seems to beat 'softer', than when I was not on medication","Prempro. I t possibly contributed to a DVT I had post surgery on my knee.","2 biopsies for breast cancer (both benign) Orthascopic knee surgery ","Continue to try to find the reason I am having this and to live my life as before.","I realize this is not life threatening except for stroke, and I am grateful for that. I know the anxiety which happens during these 'episodes', and mine last only 4 to 6 hours. Some people are experiencing so much worse than I and my heart goes out to them. I know the biotech companies are doing everything possible to come up with a cure and I am hopeful this will happen within the next few years. Until then I will continue to try on my own to find my own cure.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "gordon","illinois","53","a flutter, a fib","2","were 3 a week before tykosyn","hours to days","none","never smoked, was light drinker (wine) with some meals","in sinus with tykosyn one episode in 2 years","stress, alchol, holidays,larger holiday meals, very cold drinks, ice cream, tonic water","","potassium 20 meq. tricor 160mg once a day mag-ox 400mg twice a day tikosyn o.5mg twice a day norvasc 5mg twice a day avapro 150mg twice a day coumadin 5mg once a day not sure which meds or combmination give which side effects- occasional dizzy, tired, strong heart beats, hollow chest feelings. ","never took any meds before a-f","broke sternum cracked several ribs in college sports","really want to stop meds. possible abalation in future","a-f for me triggers very high 230-260 hbpm and have also triggered multiple 15 to 30 sec pauses in the past. with my meds i have only had one a-f,tackacardia attack in the past 2 years, am lucky tikosyn works for me, as life was really, very difficult and anxiety driven in the past never knowing when the next attack would occur. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "Rob Breneman","United States","36","Paroxysmal Atrial Fibrillation, Sick Sinus Syndrome, AV Block","1","Not Often","Seconds","No","Non-smoker, Very good health","On Toprol for heart and Methimazole for hyperthyroidism","Alcohol Stress Unknown","Medication Low stress No more than one drink of alcohol","Toprol for heart and methimazole for hyperthyroidism. A little more fatigued and occasional depression.","NA","NA","Hyperthyroidism cause is presently unknown. Find cause and go from there as hyperthyroidism may be causing irregular heart conditions.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,1,0 "Doug","Oregon","53","atrial fibulation",".5","very seldom if on Tikosyn","until next dose","heart attack","good, non-smoker, borderline diabetic","controlled with drugs","caffine and whiskey","use of Tikosyn fully corrected the problem","Warferin (Coumadin)10 mg, Toprol XL 100 mg, baby aspirin 86 mg, Zoloft 50 mg, Crestor 10 mg, Tikosyn 500 mcg","Soltalol 200 mg no effect, cardioversion twice but didn't hold, use a CPAP and find it very usefull and benificial, father has same problem and has had a pacemaker for the last 11 years","2 medicated ladder stents installed following heart attack.","reduce stress and change occupation","unnerving situtation, wondering what the long term prognosis might be, concerned about another heart attack",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0 "Jim","Kentucky, USA","64","Afib","1","6 mos","treated within hours","severe stress","good","not sure","GERD Gas and bloating ","","Propafanome, None apparent Toprol XL, None apparent","Tenormin, None apparent","Angeioplastia & stents","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "David Silver","Hawaii","47","Atrial Fibrillation, Arrhythmia","15 years","currently dealing with Arrythmia all the time, Afib is 1-2X per week","10 mintues to 8 days","Always seemed related to cold or flu....thought eating bananas was the cure","I could take better care of myself. I smoke, but that does not seem to have much impact...and I have clear lungs. Major problem with weight control as every time I exercise, I go into Afib","Sick and tired of the meds, the fatigue, under too much work stress","Work stress, cardio workouts, caffeine (none for 15 years), sleeping on my left side, bending down and standing too quickly, not getting enough sleep, colds and flu.","Not certain what that means","amiodorone (200 mg per day) and one aspirin. Low energy, trouble sleeping, swollen ( retaining water), and,um flatulance and smelly urine. Ok, its a bit graphic, but its the truth.","Tambocor - Gave me Ventricular Fib after 1.5 years Digoxin - out of breath all the time attenolol - same as dogoxin","None, unless you consider two internal cardio conversions. I have a consultation with Dr. Natale (Cleveland Clinic) at Marin General in December and am currently wait-listed for RF Ablation with Dr. Natale.","See above. I am hoping to get my energy back to enjoy life.","I appreciate everyone's contribution to this website and the yahoo support group. Without it, I would not be seeing Dr. Natale next month. There is no one in Hawaii who does the RF ablation so I figured I would wait for the best.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Margaret","U.S. - Michigan","49","lone atrial fibrillation","3","2 -3 x year","30 mins avg; longest was 6 hours. Have always converted on own.","Caffeine intake","good health, have never smoked, drink wine","For one year on atenolol, no problems at all; then this year 3 episodes so far; concerned that condition will continue to worsen","Stress Caffeine Fatigue Ectopic beats","Stop ectopic beats before they get into a fib by deep breathing, holding breath, massaging neck, sometimes going for vigorous walk. Once started -- try same things.","Atenolol 25 mg twice a day Rhythmol only when needed to stop episode (only used once so far -- today!) No side effects to date","","","If condition worsens, thinking of ablation","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Tom R","Texas","38","panic, benign ectopics (funny beats), now a lone afib","first AFIB","I think I had one other about 3 years ago at high altitude","8 hours","COLD SLUSH, minor flu-like symptoms, stomach acid, caffine, nicotene, cold medicine, withdrawing from the evil drug effexor","Good, but overweight, just quit somoking and excessive caffine. I have had a treadmill test and echo, all very good.","no afib but some funky beats when stomach is upset.","ICE COLD DRINK right before AFIB w/ 'brain freeze' stress, elevated BP, lack of sleep, psudophed, coffee, nicotene, withdrawl from Effexor.","Not sure yet, let you know in a year or so :) Or maybe less.","Toprol XR 50MG X2 - makes me a bit tierd but not too bad. Xanex - love it to calm my fear, but can get hooked on it.","none for afib, just antidepresants and anti-anxiety drugs.","none","Never smoke again, eat smaller and less fatty foods, decaf. Exercise everyday (the only thing that really has a long term calming effect on me).","I think reflux and anything that stimulates my esophogus causes almost all of my funny beats and my AFIB. Doctors who don't believe this can read these boards and then try to deny the connection. It is not that stress causes the beats (i don't think), it is the effect on the esophogus or vagus nerve.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,1,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Billy","Charleston, SC","48","Lone A-Fib","8 yrs","approximately every 3 days","12 to 36 hours","none","General good health no other heart problems","condition worsening","none","none","amiodarone, cardizem, coumadin Current nor previous drugs have controlled A-Fib","","pulminary vein ablation","AV Node Ablation with St. Jude pacemaker to be done 11/4/03","",1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Shevawn Romine","Dallas, TX","44","AF","5","once every couple weeks","1 hour or less - until today - had to go to ER","Removal of 1/2 thyroid","good","Starting beta blocker","Can't find any","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dave","Pennsylvania, USA","49","Paroxysmal Atrial Fibrillation","Diagnosed Sept 2003, suspect it has existed for years","Four per week","short about 15 minutes to an hour or so","Don't know","Good, non smoker, drinking TBD based on correlation to Afib","Definitely Paroxysmal","Stress and fatigue especially when combined with alcohol Does not seem to be caffeine related","relaxation seems to help quite a bit","Zantac 150 mg twice a day Warfarin Sod 7.5 - 10 once a day (still adjusting) Diltiazen 180 mg twice a day ","None","None","Try to limit time in afib Getting married Feb 15, 2004 ","Just getting started on this journey",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Marilyn","michigan","64","Atrial flutter","9 months","1","4 hours","experienced AF after chest surgery","good, quit smoking 30 years ago","no symptoms","caffeine? antihistamines?"," eliminating caffeine and putting up with sinus drainage without antihistamine therapy","none","","Minimal invasive lung surgery for removal of benign lesion hysterectomy various foot surgeries","I had one episode of AF after my lung surgery in 2002. This is common with chest or heart surgery. I experienced what I thought was AF in August, 2003. I went to E.R., I converted with IV medication and was put on medication for AF. Met with Dr. Morady at University of Michigan Electrophysiology. He states I did not experience atrial fib - I was in atrial flutter. He suggested right atrium ablation to prevent it from occurring again. He took me off all medication and gave prescriptions for a 'cocktail' to take if the atrial flutter occurs again - Rythmol and Inderal. Instructions are to take one tab of each, wait 3 hours, take another Inderal, wait 3 hours and repeat one tab of each. If I do not convert in 12 hours, go to E.R. I am presently only on one ASA a day. I will probably go ahead in the future with the ablation for flutter. It will probably re-occur. However,I saw Dr. Morady in November and I have not had a re-occurence "," ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "JohnP","Michigan","54","Atrial Fibrillation/Coronary Artery Disease","Afib 3 years/CHD20 years","Recently: once a month/ since back on Amiodarone ,10 months between episodes","Persistent until cardioverted.","","Heartt Disease. Otherwise perfect.","Sinus rhythm","1)Has been caused by Alcohol twice. 2)Recently possibly triggered by lack of sleep and fatigue. 3) Mostly there are no triggers. It comes on for no reason.","None","Amiodarone: shaking hands, thyroid problems....problems resovled with a lower dose Verapimil: None Coumadin: bleeding, bruising Aspirin: none Cholesterol Lopid: none Zeita: None Lipotor: none Stomach Nexium: none "," Sotolol: depressed, faigued, tired, spacey feeling in head. Didn't work at keeping in NSR...longestwas 2 months Norvasc: none Lanoxin: none Plavix: bleeding bruising Pravachol:none","2 quadruple bypass surgeries 1983-1993 6 balloon angioplasties 13 electrocardioverions 1 coated stent","PVI ","I have a history of heart disease starting at age 33 in 1983. I developed Afib in April of 2000. After my first conversion I was taking Corderone and was fine for 18 months until the Corderone started to affect my thyroid and I had to go off of it. It was been downhill ever since. Sotalol did nothing for my afib, my dose of corderone was lowered with no problaems to date. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0 "MS","Manitoba, Canada","37","Paroxysmal AFib","2","3","6-8 hours","none","good","waiting for the next episode...","none known for sure, some suspected... stress? Large Meals?","","Lorazepam","","","Docs are recommending Sotalol (80mg x2 daily) & aspirin. Thinking about it & will probably start meds soon.","Went to hospital each episode, they tried to convert to NSR with drugs, no luck. Cardioversion then done after about 5 hours, usually NSR although the last time took two tries to get NSR to stick. That was 4 months ago. Before that it was about 12 months between episodes. Echo showed nothing (normal), a couple of stress tests (normal) & Holter moniter showed normal except for rare PVC's",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0 "garyyoung","Hood River, OR","61","Afib","1","daily","continious","increased blood pressure 166/110","good","cardioversions only last a few days min to 10 days maxium","","","","","","","",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Mariew","Oregon","66","Atrial Fibrillation","1","2 to 3 per week","1 hr to 8 hours","Son died just prior to first episode.","Quit smoking June 2000...","I would say I have gone from rare episodes to chronic in less than one year.","Excess sugar for sure, like a handful of jelly beans. Sleeping on left side. Over tired or stress. ","I haven't found any preventions yet, try to relax. I am not a relaxing type person.","Currently on 160 mg Sotalol HCL twice daily. Coumadin 2 mg and 3 mg alternating. I have constant breakthroughs on the sotalol, dizziness, chest pain, short of breath. Have a first appointment with Electrophylogist on October 28, 2003. Hope to get off Sotalol. ","Started on Cardizem, I was only on it about 10 days and had an attack while driving to work, called 911 on my cell phone..I was taken by ambulance to ER, and stayed in the hospital 6 days. They tried different doses of Cardizem and was actually doing quit well on it, but after 2 months the cardiologist wanted to try Sotolol. I feel I have gone down hill from there. I was hospitilized for 3 days and changed over to Sotolol, and had an a fib attack one week later.","Complete hysterectomy 1986. Laproscopic gall bladder surgery 1991. Retinal re-attachment 2000.","I am most anxious to see what recommendations the EP will have. I am not adverse to having an ablation if the odds are good it will cure it. I have had echocardiogram, EKG's by the dozen, stress test. Was told the heart muscle was in good shape. ","I have a real problem, in that the doctors do not explain anymore than they absolutely have to. When i was diagnosed with Atrial Fib, I was basically told it was not life threatening. But when you are about to pass out and your heart rate is 190 to 210 bpm, tell me then it is not life threatening.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Kymarose","Oregon","65","Afib diagnosed Feb. 2003","several years.. before I really knew what was the problem (10 yrs)","about 1 a month","the two that sent me to ER were about 10 - 16 hours","no major illness... have mytral valve prolapse","good health","occasional afib attacks","heavy exercise - stress","","atenalol - synthroid - aspirin","warfarin/accsessive bruising Diltiazem - this seemed to put me into Afib","no surgery for heart problem","I am retired. Afib as diagnosed is fairly new to me. I will be careful in the future to try to control the stress in my life, and to not over do physically.","This is a very interesting data base. Also I have gained much from the Afib news group.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,1 "Harvey","U.S.","45","a fib","Diagnosed 10-7-03 but have had undiagnosed simptoms for 2 years or more","up to 4 per day but only every 3-10 days","10-40 min","no","good health, do not smoke or drink , but over weight","still have attacks able to work with very lite work load","at first all attacks would happen at rest most just after waking up in the morning. some after being active and then sitting down to rest for 15-20 min. I felt like heart always returned to NSR after. now I am in constant AF and only have attacks when I over do it. or take hot shower.","dont take hot showers","I am on diltiazem 30mg 4times a day swelling in legs not bad but it seams to irritate verecose veins. asprin 81mg a day / no side effects","none","none","wating on doctor","hope this turns out ok",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","USA","39","afib","12","5","2 hours to more than 24","first was cocaine use-the rest were due to stress and caffeine (I no longer use drugs-12 years clean)","general health is good non smoker (ex-smoker) rare alcohol use","","caffeine and stress","unknown","toprol for now, until i meet with my Dr.","none","none","i plan on having the ablation ","none",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Wyn Reid","Twizel New Zealand","57","Atrial fibrillation","Unknown","permanent","permanent","noticed it worse after alcohol and when resting on L side","was smoker/drinker...do neither now","in permanent A Fib....","It sort of crept up on me but I did have strange palpitations and chest feelings after alcohol....stress....frights","Not sure","warfarin","None","Electrical cardioversion...unsuccessful","Remain in A fib with warfarin to help prevent stroke","My condition was diagnosed four months ago but the health professionals are sure I have had A Fib for some time",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Steve","San Francisco","59","Mitrovalve prolapse and 2 episodes of A-fib over a 7 month period","Mitrovalve- Approx 6 years; A-fib-7 mos.","1st-March, 2003; 2nd-Oct., 2003","1st-Approx 3 hrs; 2nd-4 hrs, but terminated with cardiconversion","Not sure, maybe clogged artery","Very good","Very good","I haven't had enough episodes to determine triggers, but stress could certainly be one. (First episode was the day of my stress test, second was during a move)","??","Toprol, 25 mg, bid No side effects Altase, 5 mg,no side effects Plavix, 75 mg, no side effects except an occasional bruise ","NA","NA","Like to get on top of A-fib episodes","Curious about this project of yours. As a health psychologist, very interested in triggers. would be happyto make input into research.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "KT","AZ","62","artial fibrillation","less than one","chronic","chronic","stress afib was first symptom","exellent, ex-smoker, quit 1987. light drinker","out of afib for 6 months, but on amiodarone, so do not know.","Stress, lifting over 50 pounds, ","","Amiodarone, sensitivity to light. Nedd dark glasses on cloudy days. Haloes around lights at night. coumadin/warfarin. none coreg. none furosemide. none lisinopril. none spironolactone. none","digoxin. Went toxic on .0125 qd and was taken off it.","Went into afib 10/02. Had a cath 2/11/03 and dr tried to remove and/or squoosh the 'interluminal filling defect with mobile characteristics'. It rolled away from his instrument and dissected the artery in the process.(In English, he said it looked and felt like a pebble stuck onto my artery wall.) Had immediate bypass sugery 2/11/03. Several shock delivered during surgery for afib. Went back into afib 2 days later. Put on IV Amiodarone and held in hospital till afib stopped.Episode of extreme bradycardia a month later led to hospitalization insertion of pacemaker. Taken off Amiodarone and digoxin. Afib returned in 3 weeks. Put back on Amiodarone. no afib for 6 months. ","Have badly leaking mitral valve. Most likely another surgery and recovery in future. Retired, gardening, cooking, reading, writing, family affairs","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,1,0,0,0,1,1,1,0,0,0,0,0,0,0,1,1,0,0,0,0,0 "Deb","Indianapolis, IN","50","A-fib","Est. 5","Every two weeks","4-36 hours","None","Moderate smoker, drinker","cardiologist classified my a-fib as 'nuisance condition' ha!","Alcohol overindulgence, large meals before bedtime, exhaustion","","Atenolol, Cardizem, Lanoxin; no side effects unless I double-up when in a-fib","","None","Normality!","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Stephen Cooley","Liberty, Missouri (MO) USA","55","PAT AF/FL","12","Daily","5 minutes to 54 hours","Over Stressing (again) Over Stressing JOB","T-II Diabetes (well under control)","Sure could be a LOT BETTER","Eustress Distress Makes no difference, happy times are as devestating as illness, death of family member, car wreck, etc. Being TOO TIRED (on CPAP, and that alone keeps me from getting a really restful sleep. Anxiety disorder, I just can't make my brain understand that these (Mule Kick) irregular beats are 'Not Life Threatening'. Sure feels life threatening to my 'primative brain'.","Drugs to induce stupor. almost PRN Xanax, Ambien, Tylenol #3 plus all the effects of 240mg Inderal X2, 300mg Ethmozine X2, 10mg Hytrin X2, Amioderon 2X20mg (Loading) x2, Synthroid (tumor removal), Actos 15mg X1 ","Intense fatigue, depression, inability to concentrate, blurred vision, shakiness, (I KNOW BETTER THAN TO ATTEMPT TO DRIVE A CAR) leaving me 'Home Alone'.","Most of them made me feel like I'd have to DIE to feel better. The ones that didn't cause that reaction were totally ineffective.","Two angioplastic radio frequency ablations... Somewhat successful. Thyroid removal with non malignant adanomas...3cm and 5cm diameters.","Give Amioderon a chance. Maybe a pacemaker I feel like taking a bandanna and wrapping a couple of sets of underwear, tying it to a 'walking stick' pole, and just RUNNING AWAY. Maybe if I ran away fast enough, I could fool the Gremlin that took the place of my heart and I might LOOSE him.","8/10/2004 will see me getting a Medtronic AT500 PaceMaker. The Medicines have failed, and even in the Dr's Office, from one second to 50 seconds later, my pulse will wildly fluctuate from 34 to 150+... and the blood pressure 'Flys' along with my pulse. My pace will be 65, and even though I'm only 54, I feel like my heart is 90, and my activities reflect that fact. I'm bed-ridden most of the time, and really important events happen, and I just MISS THEM. I'm really tired of missing out on life. Even if I'm not in bed, I have to watch out that I don't 'Pass Out' with the ever-changing pressures. 4 syncope's in just the last 2 months. Good Lord Willing, by Tuesday, 8/10/04 at about Noon CDT-USA, I'll be on an even kiel, just beating along, pumping away, and I can forget the gremlin that took the place of my heart.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,1,0,0,1,0,1,1,1,0,1,1,0,1,1,1,0,0,0,0,0,0,1,1,0,1,1,1,1,1,1,0,0,0,0,1,0,1,0,0,0,0,0,1,1,1,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Richard Schulten","Ct., USA","56","A-fib","7","5-6X/yr initially, now chronic","flutter needed cardioversion, a-fib usually < 24 hr","none","endurance athlete","","initially vagal","none","warfarin","none","flutter ablation duel chamber pacemaker due to symptomatic bradycardia secondary to high degree A-V block (resting rate < 25)"," catheter fib ablation Cleveland Clinic , Jan 2004","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,1,1,0,1,0,0,0,0,0,1,0,1,1,0,0,1,0 "Mike Dayton","Huntsville, Alabama","39","lone afib","2","once per week","1 to 4 hours","none","excellent","still have afib","stress, anxiety","relaxation","Toprol XL - 25 mg : no adverse side effects other than I'm more tired than I used to be - especially in the evenings","None","None other than routine stuff like tonsillectomy, wisdom teeth, etc.","Since the Toprol has greatly reduced the severity of my afib episodes, I am going to stick with it and try to reduce the frequency of episodes by relaxation and trying to generally reduce stress in my life.","I must be relatively lucky with my afib as the episodes are mild enough that even though it makes me feel pretty badly, I can still function. I can work, etc., without alot of disruption. My ventricular contractions become very pronounced and I get some serious headaches along with dizziness, etc., but other than that, I can still function normally, so it hasn't been a major impact on my life.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bob","Minnesota","60","paroxysmal idiopathic atrial fibrillation","10","4x's year","6 hours - 18 hours","sleep","good","asymptomatic","red wine sleeping on left side anxiety/stress significant lack of sleep ice cold drinks caffeine in colas","none","profafenone/fatigue lisinopril/none atenolol/none lipitor/none niaspin /none asprin ","lanoxin/ineffective","none","desire to get off medications or at least reduce the number/dosage","A-fib is constantly in the back of my mind. Am concerned about travel, particularly to Europe, that an event may occur and it would spoil the event for all around me. Frustrated over constant apprehension regarding this.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Oscar","St. Louis, Missouri","61","Atrail Fibrillation","3 + (Based on the fact that last EKG (3 yrs ago) did not show AFib.","24 x 7","24 x 7","None","Excellent","Considering Alternatives","Strenous exercise High Stress ","Not sure - 9/2003","As of 9/2003 ============ Coreg/Carvedilol Coumadin Hydrochlorothiazide Monopril Xanax Vitamins Selenium * General light headedness, confusion, tired ","N/A","None","Not sure","As of 9/2003 ============ Diagnosed as a result of a yearly physical (7/2003).. Recently (9/2003)started on Coumadin etc... In the process of determining way forward....",0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Wilograce","Sacramento CA","53","A-Fib","4","dailey","1-7 hours","none","high blood pressure","still afibbing daily","resting after exertion,driving home after work,going to bed etc....","none","Atenolol (100 mg) Procardia (30mg) side effects...fatigue","none ","none","none","I am currently not doing any of the things I love to do as",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Chris","Sydney, Australia","38","Atrial Flutter","7 Months","t3 times per month","First before cardioverted was 4 days. Usually 5-10 hours","Very bad chest cold, work stress, big night out, lots of beer","Slightly overweight, excellent health, daily exercise, drink 4-5 beers 4 days a week. Keen sea Kayaker, mountain biker, walker","Hopfully cured","Alcohol, large meals late, stress, nightmares. Always happens 2-3 hours after going to sleep","Dr's can not / have not given any useful or consistent advice. Sotalol seems to help ","Sotalol 80mg twice per day. 1/2 asprin 1 per day Most of the day feels like there is a brick lying on my chest Otherwise some fatigue Getting 'catch up beat' 2-3 times a day which is a bit unnerving Pulse is around 45-50","None","Cardioversion for first occurance Just had Catheter Ablation 3 weeks ago","See what happens","I feel wonderful now i've had the Ablation. It was a minimal procedure and I put to sleep for it. Very sore still where femoral artery cut but otherwise heart feels fantatsic and settled. I am confident that I am cured",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Gavin","Everett, WA USA","36","Lone A-Fib","8","4 times a day","30 seconds normally, recently had 24 hour episode","None","Good health, light drinker. A little sleep deprived","Still get several very short episodes, no extended ones for 2 months","Things such as alcohol, caffeine, stress, lack of sleep and especially standing up too quickly are definitely triggers. However, even when I avoid these things I still get short bouts of a-fib for no apparent reason. ","No known prevention","Currently on Cardizem. No apparent side effects, but also doesn't seem to control my heart rate or my a-fib very effectively.","Previously I was on Metoprolol. It definitely slowed my heart rate way down, but did not curb my short bouts of a-fib whatsoever. Metoprolol also made me very lethargic and tired. Lack of sex drive. ","None","","Cardiologist can't find any defects in my heart, but may want to start me on antiarrythmia meds. I'm not sure these are safe. Metoprolol and Cardizem seem to be safe, but don't control a-fib much, only slow the heart rate. I recently read that it's more important to control the heart rate than the a-fib. I'm not sure what to believe, but I'm tired of being scared and uncomfortable most every day.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Kristin","Kennewick, WA","38","lone a-fib","6 months","varies a great deal. Sometimes less than one a week, sometimes several in a week","usually a few hours","Considerable emotional stress","asthma, non-smoker, non-drinker","coping","Stress. That's all I know so far. Still looking for triggers.","Not a clue","Took cardizem but it seemed to make me worse, so currently not on anything for the LAF. Do take asthma meds as needed.","","","Learn to better cope with this","Check list has a place for electrical cardioversion, but not chemical conversion. I have had chemical conversion in the ER. Thanks for putting this together. It's very interesting and helpful.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Michael L. Watson","Hawaii","30","Lone Atrial Fibrillation","2 years","1 every year","24 hours","Cold fluids, esp. sport drinks after hard exercise","non smoker, one light drinker beer only, exercise 2-3 times week","Unknown","Cold fluids after exercising, caffine, excessive drinking","Avoidance of excessive alcohol","One Aspirin a day","None","None","Try to continue exercising and keep my heart in good condition. Change to more healthy diet.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "david h.","omaha, nebraska, USA","42","a fib","8 years","usually 4-6 months","usually 1-3 hours","(on my honeymoon) very long, hot, exhausting walk...and then a frozen margarita.","very good, non smoker","just diagnosed","cold drinks after moderate exertion. lack of sleep. dehydration. ","","flecainide","none","none","Experiment with diet. Atkins diet brought on unusually high number of short episodes.","My first episode was 8 years ago, then off and on every six months. Of course I didn't seek help until 18 months ago. Cardiac rhythm specialist tried King of Hearts monitor 6 months ago for a month, but had no episodes. Two weeks ago my wife and I started the Atkins Diet, after four days I had them off and on all day. Short 2 minute episodes every 15-20 minutes(which I have never had), and usually either a :40 or 2 hr. also. They put me back on the KOH monitor and was diagnosed AF for first time.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Kristin","USA","12","SVT","3","various","few minutes","","good","cured","none","none","none","","ablation","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Ian","London","34","AV-node re-entry tachycardia (episodes degenerate into AF)","10","6 monthly on average","1 to 10 hours","none","very fit prior to glandular fever in 2001","currently still suffering fatigue, digestive problems, ectopic beats","digestive upset causing wind/flatulance always causes problems but doctors never accept this.bending down alcohol fatigue","keeping digestive problems under control with strict diet. breathing out when bending down. abstinence form alcohol (unfortunately). ","fleccanaide diltiazem mebeverine (anti-spasmodic for digestion)","","radio frequency ablation immediately before becoming seriously ill with glandular fever! episodes of AF since the surgery as well, so not successful.","To get well through nutritional therapy. Have recently had all amalgam fillings (10No.) removed under controlled conditions (rubber dam etc) and currently taking cilantro, vit c, msm for de-tox. Initial mercury test showed (KELMER test) showed mercury increase of 1000% up on normal. Will test again in several months time to assess whether de-tox has worked.","I am interested in IV magnesium, can anybody tell me how I would organise this?",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Bob Buchner","Lansing, Illinois, U.S.","48","Atrial fibulation","1 month","2 weeks","2 hrs","Mowing lawn","overweight","medication","over exertion","","Aspirin Pacerone Micardis Wafarin Digitek","","","Angiagram","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Phil Walker","Northampton UK","56","'Lone' atrial fibrillation","16","most recent August 2003, previous January 2000, 17 in total","from a few seconds to several hours","First event took place on holiday in Italy following a long flight and then going out the next day for an hour long run!","Almost all the time excellent. I am a non-smoker and drink just a little mealtime wine. I run 10k and half marathons and do quite a lot of cycling.","I am in a sort of 'limbo.' When will the next attack come along?","I guesss that old devil 'stress' plays a big part for me. I have carefully logged each of the episodes I have suffered and every single one has followed a stressful situation or event. The most recent AF occurred during the night a nd awoke me. I had spent most of the day driving in extreme heat (although the car was ice cold due to air conditioning)and probably became dehydrated due to lack of sufficient to drink. I returned home, went out for a long walk with my wife. We returned home, had a nice meal with two glasses of wine and then I worked late into the evening accompanied by two glasses of sherry! I also think that chocolate and very cold drinks might be possible triggers, and drinking too much tea. I have had two attacks following bending down and lifting a fairly heavy weight. There are probably a million other things that I don't even know about!","Avoid stress. Avoid people who tell you they have something much worse! Avoid caffeine.","Asprin (75mg)once a day Flecainide Acetate (50mg) twice daily (morning and evening) Side effects initially were slight light headedness, slight sensitivity to bright sunlight and generally feeling a bit 'spaced out!' Now I am not sure what is side effect and what is 'life!' I do suspect that there has been a small increase in the number amd frequency of 'ectopic' beats since starting taking Flecainide.","None. I had several episodes of 'lone' AF before I took myself to Accident and Emergency and was given 'IT'S' name. As a fit athletic person I just thought my heart was having a bit of a sulk!","None","I am determined not to be completely controlled by the condition. I find the most debilitating aspect of AF is the limit it places on one psychologically (when will the next attack come, will I be near a hospital, will I be half way up a mountain, will I be out of the country etc. etc.) I intend to continue with all my sporting activities, but having been very fit for all of my adult life, I feel really dejected sometimes that I still have aquired this condition. My cardiologist is very dismissive of my concerns and calls 'it' a common nuisance!!","I think it is very difficult to fully understand anyone elses 'predicament' unless one has had personal experience. I really wish a time were near when all AF sufferers could be taken a bit more seriously by the medical profession. My own experience has been that because my attacks are (or have been so far) relatively infrequent, I shoud just get on with my life. I guess easier said than done! Keep beating as normally as you can, friends.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ed","Fairfax, VA","64","Persistent Atrial Fibrillation","5-7 months","Continuous","Continuous","","Good, but smoke and drink.","Converted to NSR Aug. 5, 2003","","","Cardizem 360mg - No known side effects HCTZ diuretic 25mg - none Coumadin 7mg - None Lisinopril (Ace Inhibitor)- 10mg - None","","","If remain in NSR great! If not, explore dietary and other options. Staying in chronic or permanent afib is an option for me since while I was in it I was essentially symptom free.","I decided to add this because some will wonder whether electric shock cardioversion is viable after 5 or 6 months in chronic afib. I certainly wondered. Turns out I converted easily and stayed in NSR for at least several hours. If I go back into afib I will take a little time to get rid of my bad habits and improve my diet and try it again. I'll also update this.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "bacanon","NY suburbs","63","atrial fibrillation","6+","none in the past vew months with medication & lots of excercise","few minutes to days, when occurring","prolonged intestinal upset","quit smoking in 1999 - drink less wine and no caffeinated drinks - except tea","very good - just did a half marathon, but experienced swelling and redness in ankles - Dr. agrees it is from the coumadin","I think they are mostly caffeine - was probably also smoking and a steady diet of a little too much wine. I also think that anger is a big one for me - and fear of the condition. I have always tended toward depression, and I began to feel like being alone would kill me. I am now with my husband and son.","exercise","Toprol XL 100mg, digoxin .25, coumadin 2.5, lipitor 10mg, synthroid .75 I also take a multiple vitamin, calcium 1000 mg, Vitamin E, Co-Q-10","At first, took only Toprol and Aspirin, until a prolonged bout with afib that required electrocardioversion to return to sinus rhythym. That's when they added digoxin and put me on coumadin instead of aspirin. I didn't go on synthroid until later","none - except removal of a red raised 'mole' (forgot the word for it)","look into ablations (sp?) - I'm very scared of the prospect, but feel I should try.","I have a sister with a pacemaker, another died at 2 days old from 'blue baby' condition (probably a hole in her valve), so I feel there is a heart defect in the family. My mother and father died with strokes contributing to their demise. I want to get off of coumadin - and if possible off of toprol and digoxin as well - then lipitor too. But I don't want a stroke.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "ag","Buenos Aires","56","normal heart","1","1 in a month","up to 8 hours","none","none","same as at initial","dinner if it is too much, or pasta, tomato, banana","if I avoid dinner or if eat to little","nothing, only omeprazol or lanzoprazol and antibiotics for helicobacter pylorii","no medications","no","chage my evening dinner","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Fred","KY- USA","39"," AFib and Aflutter","1yr","2 with in the last yr","2 days","CAD, Angina","","stable"," Stress and other factors such as onset of angina","","Digoxin Pacerone Zetia Lescol Norvasc plavix Minitran (transdermal patches)",""," Quad- bypass Mitral valve replacement","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,1,1,0,1,0,0,0,0,1,0,0,0,1,0,1,0 "francois modave","texas","33","Lone AF - Vagal AF","1.5","1/yr","7-8h","none","very good. professional triathlete.","last episode 3 days ago - very anxious","cold drinks bending over ","??","aspirin","none","none","active prevention meet with an electrophysiologist. ","worried about losing athletic abilities.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Robert Wavell Lawrence","Northern California","69","AFIB","15","Twice per week","1 minute","None","Good","Cured","Work stress","None","Amiodarone, 2000 MG/week. Numbness, tingling in lower legs. Decreased libido.","Digoxin, Atenalol for only a few weeks each. Got off coumadin when episodes decreased.","None","Considering Catheter ablation.","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","Dayton, ohio","41","AFib/PAT/SVT","13","Almost Daily","usually <30 seconds. Upon occasion, hours.","Pregnancy","obese","Better than when it first started. No hospitalizations since 1991","Lack of sleep Stress Spicy food ","Potassium Magnesium Lots of rest","Toprol Aspirin","Rhythmol Quinidine Digoxin Calan","","Radiofrequency ablation?","There seems to be a familial component for me. My grandfather, one uncle and five first cousins have/had Afib.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,0,1,0,1,1,1,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Tony Barton","Fredericton New Brunswick Canada","51","AF","?","all the time","continuous","stress from poisoned work enviorment","over all was in good health","still being diognosed","Stress","positive thinking","50mg metoprolol 2 times per day 3.5mg warfarin once per day (at night)","Zomig (migrane)as needed Tylenol #3 as needed oxazepam 15mg 2 times a day as needed","none","early retirement and enjoying my life and family:)","excellent site, there are alot of caring people in this world:)",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "DH","Toronto, Canada","45","Paroxysmal Atrial Fibrillation","10","once evey 18 months approx.","24 hours to 4 weeks","Unkown. Probably stressful situation","Good health, nonsmoker, occasional drinker. No heart disease.","I suppose I am between episodes...","Alcohol. Strenuous activities (raking the lawn, washing windows). Cold Medication (NyQuil).","","Tambocor 100mg twice daily No side effects but just been found I have a fatty liver, maybe caused by this drug?? Aspirin 325 mg daily Rare nose bleeds","Sotalol twice daily Was ineffective. Light head. Digoxin No side effects noticed. New cardio found the drug useless.","Tonsilectomy age 6","I try to eat a low fat diet.","My AF episodes alwayes require a trip to the ER. I neglected to go once and was put on warfarin for 6 weeks before the cardioversion. Chemical cardioversion worked once only (Pronestyl), the other times it was electrical. My advice: go to the ER inside 24h of the beginning of AF.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0 "Carolyn","London, UK","53","Atrial Fibrillation","3 years","Varies - had over a year between last two attacks and last one was 3 months ago","Usually a few hours, since medication started, but last two required treatment - intravenous flecanidea nd oral amiodarone worked on these occasions","None","No major health problems (non-smoker and low alcohol intake)","Reasonably healthy, although overweight","Attacks wake me from sleep, but no other triggers apparent. ","Deep breathing used to seem to help shorten attacks and the valsalva manoeuvre seemed to stop one episode in 10 minutes. ","Sotalol 2 x 80mg daily. Side effects included cold extremities, flatulence, slow heart rate and feeling a bit slow, but these have receded with time. Irbesartan 2 x 150mg daily. No side effects Warfarin around 8mg daily. Usual problems with bruising and bleeding.","None.","None.","Wait until ablation techniques have improved enough for me to try, or my condition has deteriorated enough to warrant the risk.","If I had not had private medical insurance my condition would not have been investigated. My one appointment with a NHS cardiologist, for which I waited 6 months, lasted minutes and he told me that I did not need to see him again. I have been taking chelated magnesium supplements for the last 18 months, which may have helped my condition.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Brenda","London","57","AF","started November 2001","1 yr - 2 weeks","10 hours - 1.5 hours always at night","Stress","Moderately good, non-smoker, overweight","having more frequent episodes lately","Stress","None","Tambacor - Hot Flushes","Sotolol - extreme tiredness","None","","After recent A & E admission I am to have a 24 hr halter ECG and my medication increased to 3x50mg per day",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Sammy","USA","47","Afib-A flutter","1 3/4","varied","2-4 hrs","stress","excellent health","having ablation in August 03","Stress,alchohol,caffiene,aerobics","I stopped working and my symptoms have lessened by an incredible amount.I also take CoQ10,Magnesium and a bunch of other supplements as well as stopped drinking alchohol and caffeine.","150 mg Flecainide,75 mg Toprol,20 mg Nexium..Mostly lethargy and dizzyness","","None","I have a PVA planned for Aug 13th with Dr. Larry Chinitz head of NYU Med Ctr. EP and Cardio.","I`ve been almost symptom free since I stopped working a month ago.I was having breakthrough every weekend(I work on weekends)and since then not one breakthrough..I only feel flutter when laying down or feeling anxiety..",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Cheryl","Ashland, Oregon","62","Proximal atrial fibrillation and mitral valve prolapse","15"," it bagan at once or twice in several months and worked up to seven or more a week","range from a few seconds to 41/2 hours","my first serious episode occured the day after I had a painful surgery. My nurse didn't give me my pain meds and I believe the stress of all that pain set it off.","good","not cured but reasonably healthy","heavy meal & indigestion, fatigue (lack of sleep),alcohol occasionally, stress occasionally, resting after exertion, ","25 mg twice a day of atenalol helps control it.","atenalol- 50mg/day - decreased stamina and exercise capacity, light headedness when bending down and then getting up quickly 65 mg warfarin/ week - bruising (but it's been virtually impossible to reach my 2.5 protime level since I eat so many vegetables.)","I took digoxin for 10 years for PAC's/PVC's and rare, very short (seconds) episodes of afib. My doctor switched me to atenalol a year ago after 2 weeks of PAC's/PVC's and then a 4 1/2 hr. episode of afib.","I've never had cardiovascular surgery.","I hope to see another cardiologist for a second opinion since my current cardiologist is just letting it go on. I feel like there must be more I can do to help myself besides just waiting for my heart to wear itself out.","My mother had atrial fib. and at that time, her doctor wouldn't take her seriously. Whenever she went into afib he would tell her to take a Vallium. He never put her on beta blockers or Coumadin and so at the age of 70 she had a major stroke and thereafter she continued to fibrullate and have TIA's. After several years she went into congestive heart failure and died two years after at the age of 87. I don't know if she had mitral valve prolapse (as I have) because her doctor never told her or us very much about her condition. I have had the mitral valve prolapse for a long time, I suspect. I also suspect that I could have gone on for much longer without the a-fib if I had not been such a big drinker. I used to average about 2 or 3 glasses of wine a day. I also believe that stress has played a huge part in my condition. I have a husband who is a boarderline personality (very angry, high-strung and unpredictable) and I taught junior high school for years so stress has been a huge part of my life. Also I have had GERD most of my llife and sometimes it seems as though my afib attacks coinside with GERD problems (for instance, if I forget to take my Prevacid.) I gave up the drinking except for an occasional glass of wine with food and I'm excercising way more now. ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anon","US","56","Atrial Fibrillation","less than one","5 in 3 weeks","a few seconds up to 11 hours","sinusitis, adverse reaction to Diovan","good","under control for three weeks","I began taking Diovan for hypertension. The first night I took it, I went into tachycardia - not noticing Afib. On the eight day I was so disoriented from the Diovan that I was stressed. I can't remember if I drank anything cold before the attack. After the first attack, I had three small attacks lasting only a few seconds after drinking cold water and cold club soda. The last attack I had lasted 11 hours and it was after I gulped down cold club soda out of a bottle.","I am on sotalol and digoxin since my last attack. I am avoiding gulping drinks down or drinking anything cold. Before I started taking Diovan, I drank everything icy cold and did not get an attack. However, I can remember one time last summer when I took my pulse and it was erratic for a few minutes. Had not had a problem for almost a year until I started the Diovan. I don't know whether the meds are keeping the afib under control or eliminating cold beverages.","Sotalol, 80 mg. am and pm, Digoxin, 250 mcg.; Ecotrin, 81 mg I was a little tired and short of breath with the above meds but I have been on them for three weeks now and seem to have no problem.","Diovan: Within 7 hours after taking first pill, tachycardia, dizziness, soaking wet, could barely stand up. Was like this for 8 days until I went into atrial fib. I was then put on Diltiazam but I think the effects of the Diovan had not diminished, so put on Toprol XL. I felt heaviness in my ears and tingly in my face. The nurse practioner decreased the am dosage and went into afib after drinking cold beverage. The cardio. thinks the dosage was too little to prevent afib. I think it was the cold beverage. Who knows.","No heart surgery","Stay away from icy cold beverages and Diovan!!!","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Peggy","cleveland","58","Occasional Atrial Fibrilation Vagel","5","from first episode it was 3 years then about every few months","4hrs to 24hrs","none known I moved to different city Stress","good health but I have allergies don't smoke or drink","good unless I have AF","Possibly eating to much to late. I just wake up with it, but have many ectopics some days, but not necessarly the days I have a-fib.","Wish I knew! I don't drink or smoke. I don't eat after 6:00 PM.","1 aspirin 81 mg a day I take a couple extra when in a-fib.","While in hospital cardazem and a blood thinner. I always go home from the hospital with hives. I was on lopressor for a while and it only made my a-fib worse. My BP is normal and I think it stressed me out thinking it was a BP med. ","T&A , L Inguinal hernia","I guess to live with it and hopefully it will not get worse. My doctor said I did not have to go into the hospital because I always convert by myself. If it lasts over 24 hrs and is rapid he said to go to the hospital.","I will try to say home take an extra aspirin, but I have a bag packed with everything I need just in case I go to the hospital. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "M.Z. Fleming","Claremont, California U.S.A.","39","Vagal (?) Atrial Fib","Official medical diagnosis established seven years ago (1996)","Cyclical. Minor episodes on a near daily basis. Major attacks 2,3X annually","Anywhere from a few minutes to 36+ hours","Slow build up of minor episodes, then a 48 hour attack","Mild hypertension. No drink, smoke, drugs. Am within acceptable weight range for my height","Chronic A-Fib","Sleeping on left side. Temperature extremes (Cold/Hot). 'Slouching' posture. Anger/Stress. Food products such as soy, tomatoes are suspected. Caffeinated beverages. Excessive intake of air. Alcohol. Overexertion during exercise. At times there is no identifiable 'trigger'; the attacks can appear at random. They are really quite unpredictable.","Anger/Stress management,avoidance of alcoholic/caffeinated beverages,suspect foods,moderation in diet and a healthy exercise regimen, along with med intake have probably all played a role in reducing major incidents, but the attacks have by no means been eliminated","Atenolol,50 mgs. Was on Diltiazem,125 mgs., from 1996 until 2002; discontinued calcium channel blocker on the advice of a cardiologist. I have also opted to take one 375 mg. aspirin per day, along with the atenolol.","Diltiazem, 125 mgs. Drowsy throughout the better part of any given day.","None.","Actively seeking to reduce the episodes to a bare minimum. When major attacks occur,I must work towards gaining greater control over the stress and anxiety that it produces (this is the most worrisome aspect of this illness; the fear that something will go critically wrong with my heart when these frightening episodes occur). If illness becomes progressively chronic (to the point where the major episodes make life barely tolerable)then I may seek invasive procedure (ablation) to reduce or eliminate this problem.","I am quite pleased that support and information sites such as this exist for the afib community. I do not feel so alone; the anxiety producing tension that comes with an illness that could strike at such a sensitive organ at any given time has made my life quite miserable. Just knowing there are others like me provides for a semblance of emotional comfort and understanding. Thank you.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","Maryland","45","a-fib","10+","weekly","hours","","","ill","","","","","Last year my wife underwent PVA @Johns Hopkins by Dr. Calkins and Dr. Brinker. During the mapping procedure, the lasso catheter got tangled in her mitral valve muscles. The catheter sliced through the papillary muscles. Her mitral valve had to be replaced with a prosthesis. She suffered from inadequate post-op care, had a stroke, went into a coma, and suffered nerve and eye damage. Since then I have spoken to many others who have had unpleasant experiences there. -Dan Walter ","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,1 "Larry Greene","Pennsylvania USA","69","a fib","3 months","","","","","","","","blood thinners","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "OP15thole","Ocean City Maryland","62","Atrial Fibrillation","UNK - diagnosed June 2003","continuous 24/7","continuous 24/7","no illness nor event","Good health: jogger, weight training, golfer, moderate drinker. Diagosed with Mitral Valve prolapse in 1987 - no issues","3 months since diagnosed with AFIB- no issues","none","none","Coumadin/blood in urine - stopped coumadin - restarted on lesser dosage rate TOPROL ES/none","","Gum surgery in regard to peridontal disease","considering electro cardioversion","Previous EKG in 1997 didn't show anything (I guess). Remember only a few 'panic attacks' since. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Rosemary","Eugene, Oregon","46","rheumatic heart valve stenosis - chronic afib.","6 known","persistent","continual","mowing the lawn","good","moderately impaired for exertion","the reason I'm in afib. is because I had undiagnosed rheumatic fever at age 8-9. The strep virus settled in around my mitral valve and laid down tissue which eventually resulted in a narrowing of my mitral valve - the valve between L atrium and L ventrical. At the point is was discovered I had a blood clot in my L atrium due to blood backing up in the atrium because it couldn't fit through the mitral valve quickly enough. I had slowly become more and more tired, and sought treatment when I realized how irregular my heart rate was.","I guess rheumatic heart disease is fairly rare in the US - best prevention would have been to diagnose and treat it years ago. Now I try to avoid caffeine because it seems to worsen my afib., and don't drink too much alcohol either.","Tiazac/diltiazem, warfarin tiazac constipates me - I take psillium husks twice a day and add prunes at times. It may slow me down a bit, but not like the beta blocker I first tried. ","Digoxin initially - I felt soo much better. Flecainide - I was in normal rhythm for about 4 years - no known side effects for me. Aspirin - while I was in rhythm.","After I was diagnosed with the valve disease it was a year before it got really bad. Initially I was cardioverted and stayed in normal sinus r. Then in 1998 I had a procedure called mitral valve valvuloplasty in which a cardiologist inserted a balloon into my mitral valve and blew it open. This was amazingly helpful and I felt better immediately. I was in normal rhythm for about 4 years. This year, 5 years later, my valve is beginning to close down again. If anyone knows any tricks for stopping this growing-together process, I'd love to hear about it.","Monitor annually for the size of my mitral valve opening and possibly have another balloon procedure down the road. I'm looking at the potential for a valve replacement at some point. I DO plan to continue with blood thinners - stroke risk is too high.","I think afib. makes me feel more anxious than I would otherwise feel, especially if I'm tired. I have been working out for about 3 months, and feel pretty good. My cardiologist tells me not to worry about my heart rate numbers - just to self-monitor as to what feels okay. I know I'm over the top if I start wheezing while exerting - I slow right down - all I need is lung involvement.... I notice a diminishing capacity to exert as my valve opening is getting smaller. As an aside,I had the option to buy long term care insurance with no physical or medical records and I signed up - it's cheap for now, and it's my way of taking care of some of my anxiety.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1 "Robbie Anne","Mid Michigan USA","49","Paroxsysmal Atrial Fibrillation","less than one","only 2 so far","2-6 hours","Menopause and hot flashes are all I can think may be related","ex smoker, occasional drinker","Controlled","Bending down to pick things up from ground the first time. The second time I had a severe headache and took some Tylenol with ice water, then the fib started.","","Cardizem 120 mg once daily, Rhythmol 150 mg twice daily, Premarin once daily, Ultram for arthritic pain.","","Cholecystectomy 1987. Hysterectomy with retention of ovaries in 1995.","Considering the Pulmonary Vein Isolation (Ablation) procedure as soon as I feel they have perfected it a bit more or if the meds I am taking stop working... Whichever comes first.","Very frightening experience for sure. I do consider myself lucky though as I work in the Cardio-Pulmonary Dept of a hospital and have frequent contact with Cardiologists so I can bounce things off of them so to speak. My initial bout of A fib happened while at work and landed me in the ICU very quickly. I don't care to repeat this... It took 6 hours and Cardizem, Lanoxin, Rhythmol and Procanamide to convert me.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Overdoingit","Ashburn, VA","34","lone AF","1 year after diag, probably had for awhile to less degree","almost daily when diag","6 - 36 hours","Started an extreme health kick for 7 months, running 3 days, raquetball 2 days, diet to lose weight. Went from 175 - 155 lbs","Good health, no symptons except noticeable heart palpitations, poundings, skipping","Normal Sinus, no meds, Stopped all excersice went back to bad diet, junk food, fast food, now 170 lbs","Stress, poor sleep, vigorous excercise, too few calories. Dr's said excercise and healthy diet shouldn't be a problem, they always said alcohol, caffine. But in my case they were wrong, I now drink and eat poorly, and do no excercise except mowing the lawn&golf, but Afib is completely gone with no meds. In my case I definitely attribute the cause to trying to do more than my body could handle, I have a strong will and didn't listen to my body and pushed it beyond its limits. I have never been athletic. The excercise routine on top of very demanding job, and stressful family life with young kids, on top of very healthy low calorie diet was too much for my heart to take.","Pay attention to body. Before I just ignored signs of strange beats etc, I was in denial, I just ignored this stuff and rationalized that since it didn't make me weak or anything else that it was okay. I was probably in Afib frequently but just ignored my body. It got so bad that my heart was POUNDING and flip-flopping like a fish and I couldn't ignore what was going on in my chest, I went to a cardiologist. Within 3 days I was in the hospital for a week. This was a shock to me, and wasn't good for my condition at all. They did all sorts of tests and I missed many meals as prep for tests, lost 5 more pounds. Had a cardioversion that didn't work. Went on Sotalol. Scared me about to death. Having never been to a hospital in my life.","Got out of hospital. Took Sotolal and Comadin for awhile, sotalol made me cold, weak, and dizzy, heatbeat down to 60 beats per min at times. Stopped all excercise and diet. Went back to eating poorly, drinking beer, caffine. Afibs happened a few times at first but now are completely gone after 1 year. Off all meds and never felt better.","Sotalol, comadin, asprin. Asprin gave me acid reflux.","none","Take it easy on myself. Everyone has a limit as to what they can do. Don't overdoit. Fast paced life is stressful enough, dont' kill yourself doing too much. Take time off, cut out added stress. If you are 10 lbs overweight it isn't going to kill you. A few cups of coffee, a little chineese food, a diet coke or two, a big mac here and there are okay if thats who you are. Trying too hard to be healthy can kill you!","Everyone's different. This is just my unique situation. Doctor's don't seem to know anything about cause of lone aFib. All they know is how to treat symptoms. I was so surpised to learn that doctors do very little to understand each persons situation and have a standard treatment only to treat the symptoms. People are complex interactions of mind and body with multiple systems interacting, not just a collection of mechanical parts. It's not their fault, they are paid by the procedure, prescription. Not by the cure. Once you are cured, you have no need to keep seeing them to get your next prescription or test. If you have any choice, stay away from the hospital. They will kill you in there! They get paid by keeping you in there the longest. Trying to get a doctors see you when you are in the hospital is impossible. The nurses treat you like a vegatable or at best an annoyance. They love to stick tubes in your arm and give you drugs and hook you up to all sorts of computer monitors because then they can bill the hell out of the insurance company. The longer your stay the more money they make.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Katie","Dryden ON CAN","57","Paroxsymal atrial fibrillation","3","about 2 a year","5-12 hours","hyperthyroid","good,","holding my own. 2 episodes this year so far.","suspect alcohol, coffee, tea","avoid these triggers just in case they are the cause but have had AF without taking these","Sotalol 160 twice a day. Sometimes fatigued and short of breath, aspirin","metropolol and lower dose of sotalol","none","Considering an ablation down the road but need more input and waiting to see how others are doing after the ablation. Concerned about side effects","I wish this would just go away as I never know when it will hit. Had to cancel a trip to Vegas in Feb and am on a travel ban from my cardiololgist til Aug. Otherwise manage to do everything and enjoy life.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Shouvik","Virginia, USA","40","Lone Atrial Fibrillation/Neuro Cardigenic Syncope","4","Several times a year","12 to 24 hours","None","Good","Not cured - on beta blockers","Full stomach, stress, hot and humid condition.","Have converted 4 out of 5 times within 10/12 hours thru medications. Last time had to be cardioverted.","Atenolol, Cardizem.","","","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Dennis C","St. Louis, Missouri, USA","45","paroxsymal a-fib","16","now, approximately once per month","18-20 hours","holiday heart, excess alcohol","do not smoke or drink, somewhat overweight","occasional episodes","alcohol, flying - altitude - hypoxia, large meal late, onset hours after exercise. My episoldes always happen at night, typically shortly after I have fallen asleep. Lying on my back or left side seems to trigger it.","running up stairs or uphill briefly when I feel the precursor ectopic heart beats. ","Attenolol, feel tired on occasion. Aspirin daily.","I have had in the past Digoxin, verapamil, propanonal.","none","I would like to try catheter ablation, either RF or newer cryogenic when enough data is available to evaluate. I may try to get my cardiologist to cut back on my beta blocker as I am reading that beta blockers might be contraindicated in vagal induced a-fib.","I am pleased to know this web site exists. It gives me some comfort in knowing others have this same problem. I would love to know more about ablation.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Charlie Koeth","Apex NC","46","afib diabetes","just a month","constant","","","ex alchoholic ex smoker adhd? just a nervous wreck","","","","","","none","none yet i am in the learning phase","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "pat K","florida, USA","52","atrial fib","3 months","several times a day","hard to say, dr. says after stress test I am always in AFib","flu","gave up smoking when ge afib, used to have occassional beer","going to get electrical conversion , in Afib presently","lying on left side at night, when resting.In whirlpool/hot tub (thinks its from masssaging effect on back), when walking round shops. Hard to say, it just sets off when I least expect it, and have to sit and rest when its uncomfortable.","still looking","sotalol, verapamil, cumadin fuzzy head, tired. Blood pressure and pulse rate are kept very low purposefully, makes me feel tired.","none","Congenital defect. Tetralogy of Fallot Left blalock at 7, further surgery at 20. Appendicitus a couple of months ago.","electrical conversion","Rather a nuisance, be glad to get rid of it ;-)",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "michael wright","leicester","44","atrial flutter&fibrillation","5yrs","permantly","few seconds/ 1day at first/ now permant.","none","4 pints aweek /non smoker/no other illness","very ill","the consultants are not sure. maybe. caffine alcohol stress a syndrome because my arms are longerthan the total height of my body.","none","bisoporol 10mg. dialtzem 200mg. warafin varies","flecanide atenol digoxin sotalol made condition worse.","i have had 4 atrial ablations since 1999 the condition is now the worst it has been.","they are now planning yet another operation at glenfield hospital,maybe apace maker and drugs to try and solve the problem.","i have no faith in what they tell me about this illnness as they keep changing the goal posts,can never get a straight answer from my consultant. from what i have found out on the internet you cannot remove atrial fibrillation by performing ablation operations you can only cure atrial flutter but my consultant has never told me this,i am also it is not a serios condition, but in the u.s.a. it is considered to be.",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "anon","Houston, TX, USA","60","Atrial fibrulation","~5","varies from near-daily to 2-3 months","few minutes to several hours & (very) occaisionally half-a-day","none known","excellent","ongoing; no particular trend evident","ANYTHING that constricts the left carotid artery; certain accupunture points when otherwise tension-predisposed to an episide; leaning back against a chair back (or other object) that puts pressure for a prolonged period just below the left scapula; being overly tired or overly stressed out; shallow breathing; sometimes an excess of coffee, especially when combined with elevated mental (not really physical) stress factors); MOST episodes have NO known / identifiable / apparent 'cause' (of which I am aware) -- they just seem to 'happen' -- sometimes with 'symptoms' for ~1-hr preceeding -- sometimes 'out-of-the-blue' -- with no particular (known) concentration within this range","not much, in general; however, some things seem to help: good sleep / rest; breathe deep & long (meditative / yogic calming & deep breathing); maintain moderate stress levels; avoid (especially) prolonged stressful situations","* tambacor / flecainide 50mg 2x per day (no apparent side-effects); * warfarin 10mg 1x per day (side-effects: some swelling in lower extremities, particularly if remain sitting without leg motion for long periods; some excess water retention over all); * norvasc 5mg 1x/day (no side-effects apparent)","diltiazem (cardizem) -- which seemed to work okay re AF -- but acted like 'governor' on a car when doing exercise; felt as if my heart rate had a cap on it & just couldn't go faster (during exercise -- I exercise regularly); can't recall the dosage also used digoxin (lanoxin) for a while prior to the diltiazem; can't remember why this was discontinued or the degree of its effectiveness (or lack thereof); can't recall the dosage; used aspirin along with this ","no major surgeries; only: tonsils when young; arthroscopy on one knee 15+ years ago","eat well / moderately / healthily; sleep when / as feel the need; exercise; practice yoga / mediation & do other (mostly gradual, but often demanding & intense) exercise, such as trekking, cycling, inline skating, etc.; minimize stress levels (insofar as is possible)","so far, AF is an occaisonal 'pain-in-the-rear' & 'inconvenience' -- but overall it is not 'debilitating'; during light AF episodes, I often can pretty much 'carry on' with whatever activity I'm engaged in, including meetings & exercise (but need to carefully watch / monitor / avoid sudden, large increases in stress or physical demands); for many episodes, I can just concentrate on deep-breathing / (meditative) calm & 'weather' the episode at the 'minor inconvenience' level; perhaps 2-3x/year I have (more) 'major' episodes which cause me to need to 'retreat' / 'retire' from whatever I'm doing -- &, generally, to sleep / rest for up to half-a-day before the (more severe) symptoms go away. Often, the symptoms will start with a feeling of tension in the area of my left carotid artery (like a tense knot) -- or I will feel a 'conflicting beat' (or beats) in the atrium of my heart (which I call an 'instantaeous knot') -- after which the AF episode will begin. The episode typically will end in a (somewhat) similar way to how it began -- i.e., I will feel (instead of an ongoing irregular heartbeat) a 'tension' around the heart -- & (after a sort of 'soft knot' feeling) the atrium simply will start to synchronize again -- after which all will be 'just fine' (most often this occurs virtually 'instanteously' -- meaning, I can't remember any case where I went in & out of AF, or where there were ANY 'false (re)starts' re coming out of the AF -- when I was 'ready'; also, sometimes, say 5-10 minutes before I come out of AF, I feel that I am about to come out of AF 'soon' -- & almost always do come out when that feeling occurs",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "rosaleen","California","55","Chronic lone Atrial Fib","10","chronic","chronic","none","Excellent health. non smoker. Was social drinker but gave it up upon starting medication regime for A Fib","Chronic atrial fib. stable","None Known","None Known","Lanoxin. Atenolol. Coumadin. I have a coagucheck monitor which I can check my INR level and therefore able to adjust my coumadin level. The atenolol has taken away some of my 'get up and go'","No previous medications. i understand i am on the State of the Art medication regime for Atrial Fib. Current regime in place for over three years. No trips to the emergency room with rate out of control for past three years.","No surgery. Did have cardioversion twice when first diagnosed but after a few weeks rate went out of control again.","I understand a new anticoagulant drug has been tested in England and it is much safer than coumadin and would not require the type of monitoring that coumadin requires and side effects are almost none so i will be wataching this. I dont believe I would ever have any invasive therapy but the thought of never having to take medication would be nice.","When I was 45 I experienced my first episode of Atrial Fib and it was dx as lone A Fib. As i said above I was cardioverted twice and it didnt take. I then was in denial and didnt want to take the atenolol because I didnt want anything to slow down my life style. Once I decided to take the medication recommended by cardiologist and got used to my heart rate being irregular I then decide to change my life style. I exercised and got my weight down. I changed my eating habits and eat small meals with lots of fruit and veg and little meat some fish. My health is now good and I feel well. I dont have the energy i used to have due to the atenolol. The only difficulty I have is when out walking with my husband and he wants to go up hill I have to take it real slow because my heart rte will not kick in to high gear due to the atenolol.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "JJLeger","PARIS, France","53","Lone paroxismal atrial fibrillation","12","Almost permanent now. From 1993 to 1998, no episode perceived","< 1mn to > 48 hours","Unknown","Excellent, light drinker, non smoker","AF almost permanent, very well supported","After eating, cold drinking","During the day, drink 1 to 1.5 liter mineral water containing 110 mg magnesium per litter","Aspirin 160 mg per day, Rythmol 300 (Propafanone): from 1998 now on, Sotalol: I stopped it after a few days since I was sleepy the all day and I was even not able to drive safely my car.","Flecaine: from 1991 to 1993 Cordarone (Amiodarone): stopped after a few weeks because of bradicardy ","Found in permanent AF, electrical choc cardioversion in 1998: Back to sinus rythm during 24 hours, then paroxystic AF from that time up to November 2002. AF Almost permanent from November 2002 now on","I am investigating all solutions. My cardiologist suggest ablation, but I am reluctant. I hear that we have a veery good specialist close to Bordeau city.","I am very happy I found your Web site, since my only contact concerning AFib is my Cardiomogist. I received already some of your messages and I found that AFibers are very well educated concerning their illness. I am setting up my English vocabulary before I write in your forum.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Dave Lemond","Union County North Carolina","50","symptomatic A Fib.","2","Constant without medicine","8 to 12 hours","Saw Doctor after having tired dizzy, shortness of breath symptoms.","very light drink at times, Non smoker,","was controlled well for a while with Tambacor, now frequent occurances","I guess stress, however seems to occur even while sleeping and doing non stressfull times as well.","tried almost everything without success until Tambacor, which worked well about a year or so. now they are going to try a hospital stay and take me off Tambacor then try Dofetilide.","Tambocor 150mg 1tab at 1:00pm & 1½ at 1:00am HCTZ 25mg 1 a day Mavik 4mg 1 a day Norvasc 10mg 1 a day QUIT TAKING 3/27/03 Synthroid 0.1mg 1 a day (Changed from 0.75m 1 a day NIASPAN 500mg 2 at 1:00pm & 2 at 1:00am g on 2/10/2003) Allegra 60mg 1 twice a day Coumadin 5mg 1 a day (Changed From 4mg on 2/10/2003) Labetalol 100mg 1 twice a day(started on 02/12/2003) QUIT TAKING ","","","April 28th trying hospital visit with dofetilide (tikosyn) They said if that is not helping that a pacemaker then rate control may be next option.","",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1,0,1,1,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,1,0,0,0,0,0,1,0 "OK","Boston & Los Angeles","63","A-Fib (new), MVP, MR, HCM, VT's, BP Borderline High","Permanent A-Fib, 6 months; other, 15 years","2 episodes in four months","48 hours","Jet Lag","Good, non-drinker, non-smoker","Unpredictable","MSG, food additives; over-eating; frequent post-prandial symptoms; alcohol; sleep depravation; stress.","Good night's sleep; eating very little; empty stomach; pure food; weight loss.","ICD Gem III AT with Amiodarone, Warfarin, Atenolol; So far, so good. Side effects from Amiodarone only: eyes very sensitive to light; some problems with balance; appetite less and no tolerance for salt. Atenolol: bradycardic but it was meant to relax heart and keep rate safe; A-Fib developed when MVP and MR worsened thus making Atenolol unsafe without pacemaking back-up. 2006 Update: Amiodarone is finally causing Thyroid problems which have contributed to 2 A-Fib episodes in 6 months. Not happy with Norpace and not sure what to do.","Mexiletine for earlier VT's along with Cardizem; Cardizem caused shortness of breath, did not tolerate well. Before that Lopressor for hypertension made me bradycardic and may have contributed to VT's; Propafenol caused VT runs; Aspirin, okay but changed to Warfarin. Have learned to love my ACE inhibitor (Lisinopril). It's saved my life, helping me breathe. ","ICD implant, February 19, 2003; Cedars-Sinai Hospital, Los Angeles.","May try to lower paceing rate since 98% of heart is being paced; need for Atenolol has increased from 25-75 mg. Will try to hold off on surgery as long as possible. Eventually Mitral Valve will probably need repair or replacing along with other procedures such as ablation. Hoping for new and magical techhnologies in the future. 2006 Update: Just returned to Boston where I am being followed at MGH. Care is not as good as Cedars and no one can compare with Dr. Cannon who kept me A-Fib free for 3 years!!! ","Suffered with undiagnosed paroxysmal A-Fib for years; only two episodes of sustained A-Fib ever but first was Sept 2002, second, February 2003. ICD was put in (to prevent further damage to heart) and, since then, have been very fearful of mechanical unknown in control of my life. Good support group in L.A. that meets quarterly run by Dr. David S. Cannom. Found it very helpful and am changing my PCP to Good Samaritan to be followed by him. Site here is very informative and helpful. Thanks. ",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,1,0,1,0,0,1,0,0,1,0,0,1,1,0,0,0,0,0,0,1,1,1,0,0,0,0,1 "anon","Adelaide Australia","34","AF","1","n/a","2 months","pluracy, pnemonia","smoker","cured?","","","mineral supplement","","","","unsure if this was a one off or will occur again. history of AF in family.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Steve","Kansas City, MO","46","Lone paroxysmal atrial fibrillation","10","3/month","variable, 1-2 hours","stress, lack of sleep","Overweight, non-smoker general health good","Tolerating with medication","Stress, lack of sleep, sugary foods","Exercise seems to help, low carb diet seems to help","Toprol XL 50 mg daily and Digoxin .25 mg daily. Something makes me tired and dopey, but it isn't constant. It seems that if I get lots of sleep (10 hours) that the tired/dopey symptoms lessen.","Was on digoxin alone, higher dose. Controlled a/f well for a couple of years, then required higher dosage, finally added Toprol XL and dropped digoxin dose in third year, have been on that combination with reasonable success for 7 years. Cardiologist pushing Rhythmol/Betapace, I haven't seen the need to switch.","Tonsils as a youth, no other surgical experience.","Try to live life normally and avoid getting depressed. I struggle with the feeling that I'm going to die soon--no particular rational reason for that.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "V. Gill","Iowa USA","55","1998","4 1/2","daily since ablation","minutes to hours","none","good, very active","Failed PVA due to bleeding, A Fib daily","Stressful job, large meal, wine, ice water, ","nothing","Coumadin none Tiazac, edema on higher dosage Aspirin 160mg none Zocor","Rythmol PVC's, prolonged QT, A Fib worsened Flecanide, A Fib worsened, did not convert Atenolol, none Amiodarone prolonged QT ","None","Repeat Ablation again this year!","Had Ablation in November 2002, unable to complete due to bleeding. Had Cardiac Tamponade and pericarditis post ablation. I was in the hospital for several days and had constant arrythmias for weeks following the ablation. I am going to have a repeat as this is my hope to be free of Atrial Fib. I am a nurse and even with my complications I do recommend the Ablation. At least now I convert out of the A Fib and previously I had to have a cardioversion to convert. My EP feels confident that I will have success with the repeat. I do have an enlarged left atrium that was noted this year and had not been noted previously. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Louise","Philadelphia","59","Afib","6 months","1","15 hous","none","diabetic/overweight","possibly a one time event","As I reflect back, I was having stress at work and home with trying to get everything done, pigged out on chocolate (caffine) and diet Lipton ice tea (5 bottles a day). I believe it caught up with me. A doctor I met in emergency (India) when I asked if heat and cold had anything to do with it, said yes. They use to put ice around the patients head to get them to go back to sinus rhythm. My husband had an attack at 12 noon and I gave him ice water and by the time we got to emergency, he was back to normal.","Electro Physiology Physician. In the Philadelphia area, it is Frank Marchlinski. The process is a cure. Read: http://www.healthfinder.gov/news/newsstory.asp?docID=506427 just do a search for his name on www.google.com but there is a year wait list. ","I was taken off the cardizine in December and was told by the cardiologist that when I came back he would take me off the rhythmol. When I went back, he told me the heart monitor proved I had a heart skip, and said I could stay on the R or go off of it. My decision since there was no way to tell if it would happen again. He seeme to think it was one time. However, another doctor said I should have had a stress test to make sure my arteries were not blocked before staying on just the Rhythmol. He immediately reduced it to 1/2 a tablet 3 times a day and I felt better. I had shortness of breath, some quivering in the chest area. The new doctor said I could have had a heart attack if I had been blocked. Beware....This drug is not to be given alone nor before a stress test. I did not have to go on coumadin like my husband.","none","Tonsils, foot surgery and cyst from neck.","","I did not feel well, like humid in the bedroom when I woke up, but no heart attack symptoms. Just overall feeling of not being well. Did not go to work and called husband at noon to take me to the doctors. Just a feeling I should go. EKG had no P wave, went to emergency (4 PM) and up to ICU. Before they took me up at 8 PM I was back to normal sinus rhythm. My husband has afib for past 2 years so I know what it is, but had none of his symptoms nor his ailments. He is asthmatic, diabetic and has sleep apnea. I was released the next day on cardizine and rhythmol. Taken of R in Dec and changed cardiologist last month (see above). ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "harry m","australia","43","paroxysmal AF","21","6weeks sometime months regular of late","1.5 hrs to 4 hrs","nil","drinker","nornal health","bloating,feeling full ,bending , shock of fright,","nill,exercise helped","nil","sotalol gave me really bad asthma 2years ago cant throw it","only ablation for 2 yearsworked then af came back","tambacor works 100 % of the time ,cardio recomend pacemaker which cuts in when af is about to strick seems ok concept??","shit of a problem LOL ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Richard","Washington State","57","Vagal AF and flutter","2 1/2 years","daily to weekly","ranges from minutes to days","hiatal hernia/ headaches/ rotator cups/ cortisone shots","non-smoker, was occasional drinker, ate pretty good","more episodes than ever","large meals, resting, believe dysopyramide is making it worse and went off of beta-blocker, spicy foods, or anything that causes gastral upset","Unknown, as of yet, but I'm turning my diet around and taking multi-vit., magnesium, high doses of vit. c, l-lysine, l-proline, l-carnitine, alpha lipoic acid, co q10, fish oil, E, green drinks and acidophilus/probiotics.","dysopyramide quit toprol (beta blocker) aspirin do not like any of the drugs, as they make me feel foggy in my thinking, depressed, fatigued.","rhythmol and labetalol not good for vagals and felt awful flecainide for a year and it worked well, but lost its effects.","open heart for atrial septal defect at age 20 rotator cups in shoulders no surgery, just cortisone hiatal hernia endoscopy 2 ablations for flutter, then went into AF and now both","Diet changes that will hopefully work, but if they don't I will try another ablation or the maze, only at the Cleveland Clinic by Dr. Natale. I am going to wait for approx. 6 months before I consider and give dietary changes a chance. I will get off of all meds. and do on demand if necessary until my body can heal itself, as well.","In all my research, the most enlightning was a more newfound knowledge for Vit. C. www.paulingtherapy.com and magnesium. It is my present opinion, and after reading everyone's posts here, that there is a direct correlation with the need for vit. c. This nutrient is very important for the making of collagen which keeps our body's elasticity working. The heart and vessels leading to the heart needs this mostly, but so do our rotator cup, knees, hips, backs, skin, etc... There are allergy and asthma sufferers here that need more C & Mg., esp. C. Did you know that the plaque that forms on the artery walls is not the problem, but the body trying to fix a crack in the vessel from lack of collagen to keep the vessel supple. Maybe that is the problem with the heart. The elasticity is wearing out and the nerves are following a corrosive path. Maybe we are just experiencing AF as a debillitating sympton of a worsening condition and we are fortunate enough to have the foresight to correct the problem. It certainly is not an overnight fix, as we wish it would be, but it was not overnight that we developed this condition. Remember, as well, that all nutrients work synergistically, and the multi-vit. is just as important, because we need extra B vit. as well. Just my hypothesis and I will let you know my outcome. I am presently taking 3000mg of C, working up to 10,000 per day, along with all the above mentioned nutrients.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Richard Marks","Greenville, NC","59","Lone AF (paroxysmal)","6","1/week","a few hours to 2.5 days","mother's death","good, non-smoker, non-drinker, generally active","had CVA iin 12/02, put on sotalol/coumadin since; have had recent episodes in spite of medication","","","sotalol 120 mg bid - general fatigue, lethargy coumadin 5-7 mg/day - no side effects Lipitor 10 mg/day","started on digoxin, then toprol; neither had lasting effect then acebutolol for about 5 years prior to stroke - side effects general lack of stamina, weakness took 325 mg aspirin/day for years (until coumadin)","none","Planning pulmonary vein isolation in 8/03","",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Robert","Concord, MA","62","Atrial Fibrillation","3","18 days","12 hours","none","good","stable","Alcohol Exertion","None--avoiding triggers seems to only delay onset.","Aspirin. My thyroid levels are a bit low and have been taking a thyroid replacement (synthroid). This may have been due to the Amiodarone, or it might be directly related to the afib. Time will tell. ","I've tried several including Atenolol, Protonolol, Sodolol, Actenolol, Tambocor, and Amiodarone. Because of the potential side effects of Amiodarone, I dropped it. Of all these, Sodolol was the only one that seemed to have a slight impact on reducing the frequency of events. ","None","Ablation if and when the frequency increases even with Sodolol. ","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jonathan Keasling","Chicago Illinois","60","Lone A-Fib","10","varies","3-24 hrs","none","good","periodic episodes","vigoress exercise, emotional stress, big steak diners","avoid the above","coumadin, toporol xl, tambacor/ slow heart rate, lack my usual energy, can't tolerate stress like I used to","Aspirin, digoxin","none","PVA"," This disease takes a lot of the fun out of your life as you spend too much time worring about staying in Sinus.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Vim Venders","Toronto, Canada","38","atrial fibrillation, atrial fluter","8","daily","few minutes to 10-12 hours for fibrillation, up to 1 hour for flutter","started after heavy meal (an iteresting thing: one of the doctors I saw has a theory that fibrillation is caused by infection from a bird I had at this time - small $14 budgie - as this bird gave afib&flutter to the person I gave it to (?))","good general health, no other heart problems, don't smoke, drink or get involved in sport","more or less same condition for the past 5-6 years (daily afib episodes)","coffeine (coffe & tea including decoffenaited coffe and coffeine-free natural teas, cola drinks, chocholate), fruit (bananas caused the worst arrhythmias I had to date apparently due to thyramine they contain; also apples and citrus fruit; mellon fruits are fine), smoked meat (thyramine again), aged cheese, soya products, junk food, spicy food, beans, MSG in various food (stay away from chinese restaurants). Also, some medications I tried in the past (Naturopath supplenets like vitamins, minerals; traditional Chinise medicine and even regular Aspirin - regular, low-dose or coated) seems to trigger Afib so I am not taking it. In the past I also tried Coumadine (blood thiner) but I had to discontinue its use after severe chest pain (so I had some kind of reaction to this drug)","strict diet (avoiding all known triggers or consume them sporadicaly as there is a some kind of treshold until I can 'violate' my diet so e.g. occasional coffe is ok as long as I dont take the next one for 4-5 days), moderate physical activities, medication","For the past 5 years I am taking Verapamil (2x80 mg) and Sotacor (also 2x80 mg). What this does is to control Flutter (fast but regular heart beat) but does very little (not to say nothing) for Afib. The major side effect is the fact that my energy level is really low so I constantly feel tired. No other side effects.","In the past 8 years I tried Rhytmol, Digoxin, Tambocor, Amiodorene, traditional Chinese medicine (this actualy triggered Afib), some Naturopath supplements (also, some of the supplements actualy triggered Afib) - all in all, medications I tried so far either don't do anything for Afib or even worse - they trigger it. ","Radio Fequency Ablation in 1997 was attemt to cure Atrial Flutter but was unsuccesful (by the way, it was done using only local anaestethic so I could actualy feel the burns they are making inside the heart and after an hour or so this burning caused unbearable pain so they had to stop - so much about 'painless ablation procedure')","In my case the most effective way to deal with Afib is to control the food I am taking (although it is very difficult for me to do it constantly as I enjoy good food) combined with Verapamil & Sotacor (which does nothing to Afib but seems to control Flutter reasonably well). Also, I will continue to search for other possible ways to deal with arrhythmias.","I don't thing there is miracle cure for Afib and it seems like chronic condition which is here to stay. Only thing we can do is to control triggers and make sure afib does not cause some other damage (stroke). In my opinion Afib belons to the same category as diabetis or hipertension - they can not be cured but can be controled and by doing so hopefuly be able to live long and reasonably healthy life. ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "anon","London, UK","29","Persistent fast AF","1 year 2 months","Persistent","","Was fit as a fiddle - just had a sudden onset one evening on the way back from work","Fine","Still in persistent - have had 8 cardioversions in a year and am awaiting Maze surgery","Don't know any -each time I went into AF it was different situation and the time in between relapses was getting less and less - I can stay in normal sinus rhythm for about a month.","None - medication is only controlling the rate and nothing else. It doesn't keep me in normal sinus rhythm. SO have been referred for surgery.","I am generally quite low on energy and cannot function enough to work. I am not as sharp as I used to be. I do have very active dreams and sometimes nightmares ever since I have been on medication, which has been changed several times. I have also gained a bit of weight but that may also be due to the lack of activity.","Same as above","","Have been referred to surgeons for the possibility of the Maze procedure","I has a sudden onset of fast AF 13 months ago and have had several cardioversions. The medication has only controlled my heart rate. I have tricuspid regurge and enlarged right and left atriums. It'a mystery to my cardiologists and have now been referred for surgery. I am allergic to warfrin and take phenindione and frusimide which are not included in the list of medications. And have been on several medications which on have not maintained normal sinus rhythm. ",0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1 "Liz Hurney","Sydney,Australia","34","Lone AF","4 weeks","only 1","15 hours","bradycardia 12/2000","overweight","reasonably healthy","cyclical oestrogen variances icy-cold drinks ? alcohol","","Nil","IV Amiodarone in CCU Oral contraceptive pill","nil","Currently having cardiac work-ups Want to investigate hormone levels in depth","Have a 2 year old and work part-time,sometimes get extremely tired and hgave ??? ectopics due to this",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Brent Fidler","Hickory, NC","39","Lone Atrial Fibrillation","17","approx every 6 months","permanent until electrocardioversion","none","Excellent health","Sinus rhythm","Alcohol, very cold/frozen drinks, stress, extended anaerobic exercise","Magnesium and Potassium supplements","Propafenone 150 mg x 3 per day, Magnesium and Potassium supplements.","Coumadin and Flecanide","May 2005, Ablation surgery","Possible Pulmonary Vein Isolation if condition continues","The first time I got AF was in 1991 when I was 22 years old. I had an electrocardioversion after coumadin therapy. I stayed in sinus rhythym until December 2001. Since then AF has returned at least every six months. I have had four electrocardioversions since then. I am baffled. Although I do have a family history of deaths from heart attack, my heart has no signs of structural defects whatsoever. I lead an exceptionally healthy lifestyle. I am a triathlete, competitive water skier, and weight lifter with 7% body fat. I maintain healthy eating habits and never indulge in caffeine or tobacco. I do drink on average one alcoholic drink per day. I have a very stressful job as President of a safety product manufacturing company. But that and possibly the little alcohol are the only things that I feel could be causing my AF.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "anono","Malta","73","lone AFib","1","once","36 hours","none","excellent","OK","caffein, MSG, alcohol, altitude","","amiodarone","","none","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "Allie","Chicago Illinois","42yrs","svt/a-fib/IST/PVC'S","4","DAILY TO WEEKLY","ALWAYS LESS THEN 24 HRS","NO","NO","SEMI-CURED(no more a-fib)but still have other arrythmias","sleep/resting in the evening. My arrythmias are triggered by position.ie---laying down flat will almost always trigger svt burst and pvc's.weird!!!,but so true","","Sotolol 120mg bid,warfarin 5-7.5 mg daily Zocor 20mg daily","Tambocor gave me massive pvc's","PVA at the cleveland clinic Dec27,2002 by the Wonderful Dr Natale and his team","Maybe will need a second ablation for the Svt and Pvc's. Dr has me wearing and event monitor and sending in strips to see what's happening. I'm Praying that this will resolve itself with time ","Try and not let this condition crush your spirit.(this is very hard to do when you're dealing with this daily/weekly)Do your 'homework' and then put it in Gods hands.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "D Franco","Ft Worth Texas","35","SVT, Tachycardia","Since 1991","Weekly","2-4 Hours","Hysterectomy","non-smoker, non-drinker, non-drug user","Catheter Ablation Jan 2002 and now returned Jan 2003","Caffiene, stress, laying on left side, too much noise, simple household chores, loss of sleep and fatigue.","Catheter Ablation worked for about 6-8 mos, now problems returned.","None as of Jan 31, 2002.","Lopressor (most recent), side effects-low blood pressure, chills, weekness, fatigue and causes me to shake. Low Blood Pressure, dizziness standing up and fatigue.","Partial Hysterectomy 1991, Complete Hystectomy April 99 & Catheter Ablation Jan 2002.","I'm accepting suggestions - e'mail me at dmfranco@charter.net.","I can relate with all the frustrations that other people are having. It's depressing and especially for me being only 35. I can't do the things I want to do. Holding down a full-time is impossible due to the stress of it. Would love to hear from you and your success stories or any ideas on how to better cope with this mess.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Stuart Webber","Surrey , England","32","aortic anyurisum","32","one per week","20 mins","can not remember, have collasped on many occasions","generaly ok ,ex smoker","cured i hope","stress,lack of food(hunger),dehydration,laying down on right hand side,bending down to tie shoes pick up objects etc,lying on chest,running,fight or flight situations,migraine","staying calm sitting up right deep slow breaths laying on left hand side eating properly","warfarin 2mg 24hrs some bleeding when cut/brusing sotalol 80mg 24hrs makes me calm/less emotional paracetamol when required for pain control and control of migraine ","asprin to thin blood to ease stress on heart parcetamol for control of migraine, has small success amoxacyline for infection control for surgery/dental work,gives me belly ace/dyororea ferrusimide due help combat fluid retention","St Judes aortic conduit & valve implanted summer 2000 countless chest drains following valve implant ","to get my life back to normal like it was before my heart attack in 2000 to get people/doctors to realise you dont have to be 80 to have heart problems(for 30 years my ex GP told me to buck up my self and to 'stop moaning about silly little twinges'.Turns out one good bump end of! I rode a motorcycle for a living!!!!) to get back on a bike ","Sorry about my spellings i know they can suck sometimes !! I have sufured from AF all my life but thought it was normal due to my doctor being incompitant/lazy arse. I only found out what was happening when i arrived at the Royal Brompton in London during the spring of 2000.Gerneraly i feel ok but some times have chest pains across my rip cage due to the surgery i recived. AF gives a flutter about once a week for about 20 mins or so and can gat sacrey at times but normaly it gose away. (If i am at work i can get complaints from people around me as my heart valve gets noisey.Sotalol helps to make me a calmer me tese days ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "David S","Brisbane Australia","65","LAF","Nine months","one to three a week","first was eight hrs., now down to one and half to half an hour","Antibody eating up my red blood cells,(there is a medical term for it-hemolysis-(sp) )","don't smoke or drink","In remission! last afib was 28.11.02","Probably the hemolysis depleated muscles and heart? strength? I do look at Hans bb., have taken on the WW trial and was on UW prior to that. Was put on Lanoxin and a BB, that stuffed me right up in two weeks, came off them, saw a different cardio he put me on Tambocor 'on demand' only have not had meds since 28.11.02.","UW and WW and foods to help the Mg++ and N+ A lot of steady exercise, watching my HR and slooowly building myself up again. vits.3 x 1 mg. fish oil, 1 x 500 iu E., 1 x 50 mg. Qc10., 1 x garlic tab.","Tambocor 'only on demand' 50 mg. if af during the day, 100 mg. if it wakes me up at night (or early am. which is most of the time) Dose make me a bit slugish for half a day or so.","Lanoxin and a beter blocker for two weeks only. Amiodarone via an IV on the first laf/ER visit, took eight hrs. to NSR.","Heart-none","just waiting and taking things at the same rate as i am now.","Had all the 'tests' done when at the ER, no heart problems.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","Lakeville, MN, USA","32","Atrial Fibrilation, Genetic","6+","Constant","Constant","None","Good, no vices","Ongoing treatment","Stress","Sleep","Coumadin/None Cardizim 180mg/None Atenolol 50 mg/None Amiodarone 200 mg/None ","Atenolol 150 mg/Sluggishness and heart pauses","Pulmanary Isolation Ablation, 7/2002. This surgery was incomplete as they found a 10mm x 8mm thrombus (clot) in my left atrial appendage and were unable to finish the procedure for fear of a stroke.","About to undergo cardioversion with the Amiodarone. If that doesn't work we will try other drug therapies.","I am very frustrated with the lack of good treatments for a young person for this disease. I realize that this is because younger people with this disease are in the minority. My familiy is in a genetic study with the Mayo Clinic for our AF.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "James Clifford","NJ","60","Atrial Fib","5 months","Condition ceased after 5 months","","aleric reaction to Verapermil","non-smoker, 2oz liquor per day","undercontrol","none","none","none","Verapermil -developed an alergic reaction after using the product for 4-5 years","","I have had 3 cardio conversion attempts. The first two were unsuccessful and the third lasted only one day. For 5 months from start of chronic Afib I was treated with 400mg amiodarone. I am now back to normal sinus rythym Currently I am considering staying on amiodarone for a while before any other treatments. My doctor told me that within the next few weeks he will take me off of coumadin. ","I have heard a lot of unfavorable comments on amiodarone, but it worked for me. I have had no significant side effects.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anonymous","Upstate, New York","39","lone atrial fib","6 or 8. Also had it for a short time (6 months?) during the onset of puberty, but went away on its own.","2-3 times a week while on toprol, once a month on betapace (this last year)","2-12 hours","none","excellent","under control","Lack of sleep, caffine, stress, alcohol, heavy exercise, rapid drop-off or rapid increase in blood sugar levels, hunger, chocolate or any amount of refined sugar over 1 tspn. Combinations of the above over the preceeding 24 hours.","Meditation, Yoga, Marijuana, Betapace, moderate exercise (sometimes helps, depending on severity of the break-through). Moderating my diet has helped a lot. I have gone from 215 pounds to 190 in the last year and I think either the weight loss, or just the fact that I eat smaller portions now, is helping. Getting sleep is essential, and where all else fails, Ambien has been a great help. Oddly enough, sometimes eating diary products helped - like eating a piece of cheese - back when I was first getting A-Fib. Now, sadly, I need the drugs.","Betapace. Some slight sexual disfunction, cured with Viagra. Some lethargy (resting heart rate is only 53 b.p.m.) as a result of the Betapace. Other medications used: Naproxin, Viagra, Ambien, Viox, Marijuana. The Viagra does increase heartrate (as does sex generally), but this does not lead to A-Fib episodes. Marijuana in extremely moderate amounts also increses heartrate for a short time, but does not lead to A-Fib, and the relaxation and focus it brings often prevents or reverses artial flutter. I am on a potassium supplement prescribed by my cardiologist. Also take multivitimins, Omega 3 fish oils, Glucosimine/Chondroitin, Vitamin E, Vitamin C","Toprol. No side effects, but was nesseccary to increase dosage every 6 months and eventually this medication no longer worked. Lopressor for controlling break throughs, but discontinued after I went on betapace.","None","Live a long happy active life and avoid stroke. Raise my son to be a good person. I'd like to take up Scuba diving and rock climbing. I currently mountain and road bike, ski and do yoga and pilates, and plan to continue these activities as long as possible.","I personally feel that the number one reason why people get this condition is having too much energy and life bottled up inside. Stress is the enemy. You have to let loose and burn off your energy somehow. I've been told that my heart muscle tissue is too sensitive to adrenaline (as opposed to my body making too much of the stuff). It seems like having an outlet to burn off stress induced adrenaline would be a good thing. I also think someone should look into Ephedra. I am willing to bet that my use of this substance as a young man, as a weight loss drug, contributed to my problem now. Mau-haung/Ephedra should be banned or heavily regulated after serious study!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "R.T.H.","Pennsylvania / Philadelphia Area","54","A- Fib","unknown","weekly","minutes to hours","unknown - have been hospital professional for years","good","PVA 8/2002 - may have some flutter ?","To much excersise.possibly getting dehydrated form it. First sighn was in 1982 when running,heart went up to 175,but no other symtoms then.","none for me..","ASA 325 MGM daily Synthorid 75 MCG daily","Amiodarone-Destroyed my Thyriod-A known side effect The medications below slowed my rate,but make you feel like hell.Rythmol seemed to work well for me. All summer I cut my lawn [about two hours walking] and I went to the gym daily. All the drugs for A-Fib are at the 2% level for having a life threating reaction.So a PVA was my choose and if needs repeating so be it.The EP calls it a 'touch up'","To many wounded in Viet Nam x3 and had injuries from running. Approx. 20 surgeries","One day at a time !","After six months off coumadin felt weard.So I talked to freien a Internist who had Brest Cancer and ask her how long did it take till you felt comfort. She was funny stating she knew every pain was the cancer spreading,but at about a year she knew the daily aches and pains we all get are just that.Great comfot for me. So I will be hyper till the year is up.The EP who did my PVA stated about the same. He said allot of people refuse to come off coumadin after six months in fear of the 'monster'returning.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "dkk","Illinois","35","atrial fibrillation and flutter","11","once a week, to once a month","until cardioverted","Fontan Operation","congenital heart defect","unable to work","unknown often related to menstrual cycle","","metoprolol moricizine","amiodarone/lung toxicity sotalol propafenone ","Fontan RF ablation","rf ablation","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,1,1,0,0,0,1,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Nellie Sue","Irving, Texas","59","A Fib","3 years"," First 2 years on Rythmol and not frequently, now on amiodarone and now every 3 to 4 days","amiodarone and just taking cardizem, have PVI scheduled.","none","Have costochondritis","","I haven't figured my triggers out.","Haven't found any","Amiodarone...not working as far as I can tell. I am having episodes every 3 to 4 days, almost like clock work. Off Amiodarone and only on Cardizem CD 180","Rythmol...worked good for over 2 years then started having about 2 episodes a month. The longest was 14 hours.No side effects that I know of.","","Have PVI Scheduled.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1 "GERI","Mass. USA","75","AFIB","3 yrs. mildly","varied","3 bouts of severe tachycardia--45 mins to 1 hr.","none that I know of","good","no fibrillation for last 6 wks.","","","Amiodarone & Coumadin Headaches weakness/lack of coordination in hands","On beta blockers (Atenolol, then Metoprolol) they worked for a while--then AFIB got too severe No side-effects Also using Patanol eye-drops for glaucoma Evista (to prevent osteoporosis) Vioxx (for joint pains)","eye surgery 4 yrs. ago breast biopsy 25 yrs. ago","Trying to stabilize INR Hoping to reduce amount of Amiodarone Finding medications + side-effects limiting Going to consult a Chinese physician ","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "charles","Berkeley CA","67","paroxymal a-fib","first diagnosed 30 years ago","don't know","don't know","stress","lifelong asthmatic, sleep apnea","started doefetilide this week 1-6-03","","","doefetilide","lopressor beta-blockers and calcium blocker led to resolution ot early events atenolol...weak effect flecanide...two hours of sleep a night and extream weakness amioderone....did not totally cover a-fibs and posed too much long term toxicity","none","wait a couple of years for improvement in ablaton methods","I am basically asymptomatic and don't feel my problem. It was detected during lab work for another condition.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Charles","CO,USA","57","Atrial fibrillation","33","chronic","chronic","unknown","good","stable,chronic,minimal symptoms","NA","NA","ASA/none","none","NO","Maybe leave well enough alone","I have had chronic AF with controlled V rate for at least 33 years. It was casualy discovered in Med School doing EKGs on each other. Never felt limited by it but who knows how it would have been without it. Had R & L heart cath with coronary angio 13 yrs ago. No pathology discovered. No meds-cardioversion. Just ignored it so far. Daily ASA ,no stroke yet.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","Orange, Australia","33","Lone Atrial Fibrillation","1.5 years","1.5 years between","12 hours","Migraine and vomiting","non-smoker, occaisional drinker","wait and see","migraine poss. low magnesium ","","Tambocor - as needed during an episode. Not tried yet.","Digoxin on first incident. Sotolol on second incident. Sotolol: tired, slow heart beat (45 bpm at rest, 60 bpm at exercise) ","","Traditional (chinese) medicine. Dietary changes","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Victor W.","Westford, MA","60","Vagal Para. AFIB","5 years","None the last 10 months","Prior : seconds to four hours","none","excelent, non-smoker, non- drinker","controlled by Tambocor","Drinking Spicy Food ","","Tambocor - none Atenolol - none","none","Ablation for Flutter Exposed the AFIB. ","PVA when or if AFIB can not be easily controlled","I am happy that this support group exists.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Roy","Cornwall UK","77","Atrial Fibrillation","newly diagnosed","n/a","n/a","Hypertension","Good. non-smoker, v.moderate drinker.","had 2 small strokes CVE's","none known","none known","Bendrafluazide,Atenolol,Atorvastatin,Warfarin,Finasteride, Irbestartan(angiotensinII inhibitor) No observable side-effects","Cannot recall others except asprin","Trans-Urethral Prostatectomy (TURP) 1988& 1994 Cardiac By-pass (3 graft) 1993 ","Get back to normalcy ASAP","Too early for comments",0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,1,0 "Deb M.","New Hampshire,US","Forty - today!","Paroxymal Afib","1 month but went to ER once 3 years ago for same symptoms","cluster of episodes every two weeks so far","mins to 12 hrs","resting after unusual exertion that day","Fibromyalgia, anxiety attacks, high BP, no alcohol and quit smoking last week after my second trip to ER","in afib right now for third time, has happened every other weekend since Nov.30.02","I don't know anything for sure yet but I got on my puter looking for any connection between laying down to sleep and eating at night and afib. Those are the two things I've noticed so far. Also sitting slouched over is uncomfortable.","Nothing yet but thank you all for the many suggestions on this site.","Atenolol 50mg in am and 25 in pm. Fatigue is only side effect but for a bit of nausea but it only works for a couple of weeks before my doc has to raise the dose because my resting heartrate is climbing. 325mg aspirin daily. ","none","3 surgeries connected with complete hysterectomy in 92,96,98.","Learn all I can and work closely with my cardiologist who has chronic afib himself (12 years ).","I'm scared to death actually but feel better tonight after reading about all of you who are living with this successfully. Thanks! Also I've read lately that Aspartame (Nutrasweet) can cause heart problems including rapid heart rate - and a bunch of other things too. Anyone got any info?",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Darren","Melbourne, Australia","39","Atrial Fibrilation","Recall an episode in1995, but diagnosed July 2002","Average 3 to 4 weeks apart .","18 hrs down to 4hrs","Concussion/ electrocution well before 1995","Well, don't smoke anymore, drink everything Bourbon,VB, & wine.","Presently in sinus although today I have been feeling it trying to come on.","I would suggest a combination of heartburn, chocolate and alcohol tied in with a big late meal and a kip will start it in the early hours of the next morning whilst resting. ","Avoid eating rubbish food after dinner.Get on top of the heart burn as I think that is a big contributer,","Was on Zantac after an Endoscopy in 1997, thaught they may have caused it so stopped them a week ago, havn't exactly had afib yet! I take Aspro when I get an attack and drink 2 or 3 coffees, this usually kicks me back to sinus within an hour. ","Zantac works well for heartburn but not sure if it contributes to Afib probably not. Was given Flecanide once on the first diagnosis which worked in 45 min.","Had an endoscopy in my stomach which confirmed a Hiatis Hernia. Note if I take up smoking the heartburn goes within weeks, or has in the past.","Continue to enjoy life, cop this thing but continue to try and find a common link , to help us all!","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "walt z.","wilkes-barre, pa","30","primary atrial fibrillation","1 year","daily","30 minutes to an hour","none","former smoker, drinker, caffeine drinker","getting treatment","alcohol, caffeine, sleep or relaxation, lying on left side, stress","unknown yet","solatol. light-headed, fatigued after taking. also taking aspirin","","no surgery for this condition. knee surgery 14 years ago","exercise, lay off caffeine and alcohol, avoid sodium, eat heart-healthy diet, handle stress differently","hope that this web site helps others out there with this condition. was experiencing symptoms and had no idea what it was until late-night visit to hospital when I felt like I was having a heart attack",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Judy","Florida USA","47","Paroxsymal Atrial Tachycardia","25","varies","minutes-hours","none","smoker","","Caffeine, stress","none","","Digoxin, blackouts","T&A age 5 C-Section 1979 C-Section 1982 Gall Bladder 1995","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Al","Texas U,S.A","59","afib","15","have had episodes twice weekly","45 minutes to 5 hours","uknown","smoker,obese,poor diet","recently underwent ablation so uknown at this time","My episodes almost always occur at night when I am asleep.I am awakened by the rapid heart beat which can be as high as 220 bpm's but usually ay around 180.I never try to wait them out.I go to the E.R and get converted.At first varopamil worked well but as time passed I have had to rely on the shock paddles.Due to the frequency of attacks,my back and chest is always burned and scarred.I just completed ablation and am hopefull it will solve my problem.","nothing","Lorazepam 2 mg 4 times daily addictive Amlodipine 2.5 mg 1 per day Clopidogrel Bisulfate 75 mg 1 per day Citalopram hydrobromide 20 mg 1 per day Aspirin 81 mg 1 per day Simvastatin 40 mg 1 per day Metoprolol Tartate 100 mg twice daily Gabapentin 300 mg 1 per day Ranitidine hcl 150 mg 1 per day Docusate na 240 mg 1 per day","","none","Improve diet Stop smokeing","The drugs have made me impotent and I stay sleepy all the time",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,1,0 "anon","US","54","afib,rheumatic mitral valve disease with regurgitation, plus other valves--mild","8 months","chronic","symptoms differ but afib always there","acute episode sent me to ER, but on hindsight i must have been having periodic episodes last couple of yrs---same symptoms I now have--onset of menopause @ that time--also MRI of shoulder--thought it was panic attack but I now know it must have been afib-","good health-never smoked-active","very symptomatic---sometimes really bad days-sit in chair all day---sometimes I can function a bit but never normal!","MRI 2 wks before diagnosed in ER local surgery (5 months before diagnosis)---felt like I had the flu next day & lasted about 6 wks that I couldn't work---hind sight ---> afib!","since diagnosis---chronic","cardizem diazide warfarin vioxx (shoulder chronic pain) CA & MG Don't know if my symptoms are from a combination of drugs or just the afib/valve disease itself, or combo---symptoms are SOB on slightest exertion @ times, dizzy, lightheaded, legs and @ times whole body feels like the flu---aching, extremely weak, extreme fatigue, lack of concentration, like in a fog @ times","sotalol---very dizzy & lightheaded while on that---- dogoxin--HR down to 42, so it was discontinued lasix hydrochlorothiazide---Dr thought aching legs due to these diuretics & kept switching, but to no avail---still have aching legs, and weakness.","2 ineffective cardioversions, PVA 3 months ago---went back to chronic afib just a couple days after I got home","sched for cardioversion next month","very disappointed that the doctors can't tell me WHY i feel this bad---they even act like they have never seen anyone feel this bad---like I'm the first one! Very strange! So happpy to find you all here & know that I am NOT the only one! thanks!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1,0,0,1,0,0,0,1 "Cliff Weyhing","Michigan","42","Vagal Mediated Atrial Fibrillation","2","Weekly","6-24 Hours","None","Overweight, GERD","1 episode in the last two months","Sleep. Stress. Alcohol maybe, but not consistantly. Same with tomato sauce (garlic?). Eating late, but once again, not consistantly.","Nothing that has worked consistantly.","Norpace CR 600Mg 2x day. Very dry mouth. Aspirin 325mg/day - No side effects.","Sotalol - No side effects - Regulated episodes to weekly, but didn't eliminate problem. Atenolol - Same as Sotalol Rythmol - Irregular heartbeat worse - got off that after a very long weekend. Cardizem - Lowered A-Fibb heart rate, no side effects","None","To live another 100 years","Norpace seems to be working. Have only had 1 minor episode in 2 months, and it went away 2 hours after I took meds.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Betty","Santa Barbara, California, USA","72","AF","a few times over the years - now 3 months","almost every day now","10 minutes, if I can head it off, up to 4 hours","gastrointestinal problems","actually pretty good but very overweight and some high blood pressure","I feel Ok but worried and edgy","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Sam","Los Angeles, CA","62","lone atrial fibrillation","8 years","6 per year","half hour if I reduce my heart rate with a calcium blocker","","I live an extremely healthy life with the hope of avoiding AF.","I take Tambocor to reduce number of episodes","fatigue, emotional or physical stress,sleeping,alcohol, coffee","With AF I have a very high heart rate. A calcium blocker, reduces my heart rate and AF in a half to three-quarters of an hour. Recently I have also tried carotid artery massage and holding my breath. These actions enable me to take less of the calcium blocker to reduce the heart rate and restore normal rhythm.","Tambocor and Warfarin: If I forget to take Tambocor, which I take mostly in 25 mg. doses (for a total of 75 to 150 mgs. per day), then it can trigger AF, especially if combined with one of my other triggers. ","Amiodarone:episodes of atril flutter Atenolol: made AF more frequent Calcium Blocker: regular use as a single medication did not stop AF, even though I take a dose now to reduce my heart rate during an episode. Digoxin: sent me to ER with a heart rate close to 300bpm Tambocor: Present medication-not perfect, but it combined with a calcium blocker during AF keeps me out of ER. Warfarin: The side effect is mostly the misery of trying to balance my diet to avoid the inconvience of driving out to get my blood tested.","None for heart related matters.","Hang in with the medications until I detect that my health plan will provide an EP who is sufficiently experienced and skilled to do an ablation.","",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Anon","Canada","63","atrial fibrillation","five and a half","varies depending on diet","5 to 6 hours for the big ones","none","ok, smoke","ill","Acid-forming food, walking more than 15-20 minutes.","alkaline-forming foods, Microhydrin","none","Lanoxin, Sotalol","Acute appendicitis","None, until I get rid of this horror!","I caused it by consuming 25 to 30 mg/day zinc pill. The resulting copper deficiency in turn caused some damage not yet well known. I've suspected adrenal gland exhaustion.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Frederick Plappert","Kentucky, Usa","39","CAD, CHF, AFIB, SINUS TACH, CHRONIC STAGE2 ANGINA","1 YR","COUPLE OF TIMES","ONE WEEK","ANGINA","GERD","","STRESS WEATHER CHANGES","CARDIOVERSION","",""," QUAD BYPASS 4/21/98 MITRAL VALVE REPLACEMENT 6/30/98","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,1,0,1,0,0,0,0,1,0,0,0,1,0,1,0 "Guy Gooch","Cedar Rapids, Iowa","67","proxismal(sp?) afib","3","1-2mos","less than 24 hrs, except for 8 requiring cardioversion, one electrical","hypertension, some heart disease,cholesteral","asthmatic(last 3 or 4 mo) ,","relatively healthy, no restrictions on activities","Stress,possibly alcohol but quit drinking after first known episode.","None I am aware of","Atenalol,lipitor,coumadine. Amiodarone:only side effect so far has been sensitivity to sunlight. Advair, inhalent: Makes me hoarse, need to clear throat often.","Propafenone: I think it worsened my condition, taken off when heart disease was confirmed. I have a partial blockage and some scarring, indicating a possible heart attack at some time. ","No heart surgery","Stay with amiodarone in hopes of a better drug in future. Be alert for any side effects and hopefully stop amiodarone before any permanent damage. Alternative is PVA but I have very little symptomatic problems when in afib and Cleveland Clinic Drs seemed to prefer living with the problem instead of PVA stating that they could possibly do more damage than help. This advice was given in April, 2002, I have been on amiodarone since.Would like to try azimilide or dronedarone but don't think the are available. I also had a melanoma successfully removed 8 weeks ago but have many moles and will not be surprised if there are reoccurances. So this may 'get me' before side effects from amiodarone set in. ","When I had the first known episode, being an old jock, I thought I could fix it myself with excercise. I rode my bike all summer including a 400 mi weeklong tour. After the tour I gave up and went to the Dr. He chewed me out pretty good because of the stroke risk and sent me to an EP. I had one electrical cardioversion which lasted only 4 days and have had numerous, about 8, chemical cardioversions using procainamide. Since being on amiodarone I convert on my own usually by excercising. My normal resting heart rate is around 50 bpm and have not tried pushing it past 145, during bike riding. During afib my heart rate may go up to about 100bpm at first then settle down to 65 to 85 bpm. I also play tennis and enjoy weight lifting.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Terry McHoskey","Lansing, MI","60","Lone Atrial Fibrilation","5","about every 3 rd day","6hrs to 3 or 4 days","","excellent","","Nothing definite","","Norpace 150mg 2xday - no side effects; inderal when exercising","digoxin, tenormin, Tambacor no side effects","none","considering ablation","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Claude Martin","Miami, OK","62"," Oct 2000","Oct 2000 until present","always until Tikosyn","From Oct 2000 until Feb 2002 when I started taken Tikosyn","Asthmatic","asthmatic, non-smoker, non-drinker","sinus sence Feb 2002, however I always feal it may return, the afib that is.","None known, was feeling weak and had shortness of breath in Oct 2000, check with family doctor and was diagnosed with afib at that time, was hospital, doctor tried to get my heart in sinus and the bpm (200-250) lowered. Got my bpm lowered, however failed to get my heart sinus. Tried numerous med to get sinus. Continued to be a Afiber until Feb 2002, at that time I was hospitalized for three days, started tikosyn. Have been sinus sence then. Hope I never return to an afib???","None","Tikosyn, Norvase, Digitek, Advair, Singular, Albuterol, Warfarin, Protonix and Terazosin. None: Just too many meds.","Altace, Propafenone, Toprol, Tambocar and Rythmol. Side effect: None, these med just did not do any good.","None","Good to be on Tikosyn (my life saver), hope it continue to get the job done. Retired, visit with the grand baby's.....","Tikosyn was realy a life saver for me, I could feel myself getting weaker and weaker, until I started taken tikosyn. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "graeme middlemiss","Farnham, UK","45","AF","4","variable, tends to come in bouts, maybe 1 week on 2 weeks off","1-12 hours, drugs can return to sinus in 2 hours usually","none","good, very fit, did drink more than prescribed amout - wine, given that up now, non-smoker","still ongoing","alcohol, usually triggered an event 24 hours later. cholcolate a nights sleep (especially noticable on left side sleeping). a meal, I first starting getting episodes after lunch, which was often after exercise. ","Off the alcohol, it helps but does not cure the condition. I am trying a reorganisation of my meal times, i.e. not eating later than 7 pm.","Flecainide, the dose has gradually been increasing, and I am now concerned reading many comments that the effect wears off over time. I started on 100mg per day, I am currently on 200mg which seems to be working. The only possible side effect I have noticed are some headaches, but nothing major.","I had an intrvenous flecainide injection followed by wharfarin when I had my first serious attack (I was cycling 'energetically' and got very dizzy). Second major event I was cardio-verted, that worked for a few weeks but I was quite badly burnt by the paddles!","Only the normal sporty knee stuff.","I intend to get a full body reading of my various toxicity levels, any allergies etc., and intend to get a full nutritional plan. I did not think my diet was that bad, but I am no expert and so will try this route. I am also keeping a keen eye on the ablation techniques, and will hold the matrix procedure off for as long as possible.","While this is a frightening condition, when it is not evident I lead a very active life. I find the social aspect irksome in that it is disheartening (no pun intended!) to go out for dinner/parties etc. and watch others seemingly eat and drink whatever they want with no apparent side effects - but heh that's life. I do have a suspicion that hard exercise in the over forties has something to do with this. I think this is a relatively recent phenomena (exercise over 40 that is) and I have lost count of the number of people I have talked to who know someone who has this and is quote 'really fit'. I like most here have not stopped exercising, I have tried to limit it to < 80% of max, in the theory that keeping fit should help - but I have my doubts! This is a great database, a shared problem and all that.....",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Mike11205","Queens, NY","55","PAF","4","15 times per year","6 to 18 hours","none","very good","PAF is a nuisance","caffienated and decaffienated coffee, caffienated cola drinks. Staying up late the night before combined with late-night eating to excess. The onset of an afib episode almost always occurs during a period of relaxation which follows an unusually stressful period or following unusual physical exertion. Ninety percent of my episodes occur on Friday or Saturday, the other episodes occur on Thursdays. ","Taking propanolol the night before I suspect that I might be vulnerable to afib.","Per my doctor's instructions, I take proponalol at the onset of an afib episode. It does not shorten the duration of the episode but I feel it dampens the amplitude of the heart beats. I have found the medication is much more effective as a preventative as outlined above.","none","none","stay healthy","Stress management and staying away from the known triggers in my case can probably reduce the frequency of episodes to the minimum.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Rick","US","51","Atrial Fibrillation","16","daily","a few minutes to hours","during and after exercise","Good,, non smoker, non-drinker, daily exercise","Partial Control with Rythmol, otherwise chronic A=F","Stress, Sudden exertion, Caffine, Cold Drinks, Sleep, Sometimes Anti-arrythmic medications such as Rythmol. Bananas are the worst single trigger of severe events. Have completly eliminated from diet.","Managing stress. Predictable routine of diet and excercise. Rythmol seems to help but does not eliminate the problem","Rythmol, 3x300 mg each day for four years. Have cut back to 2x300 mg each day due to effects of Rythmol such as bradycardia and PVC's. Lower dose will not return heart to sinus rythem. Non-heart related side effects include, occaisional severe headaches, breathing problems when jogging, memory loss, hair loss, fatigue, loss of muscle tone and joint pain. Take 1 aspirin - 325 mg - per day. ","Digoxen 12 years ago made A-fib worse. Norpace, verapamil, calan, Corgard have been used over the years and none worked. Counadin for short periods after ablation. Discontinued use due to risk of bleeding.","Right side catheter ablation 3/99. This helped reduce atrial flutter. Did not end atrial fibrillation.","Investigate left side ablation if it is recommended as effective and can eliminate dependency on Rythmol.","Lone atrial fibrillation - no other heart or health problems. I am very interested in the succes rates, risks, and prognosis for a left side ablation. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "gini","Englewood Fla","74","atrial fibrillation","2","just had 2nd","3 to 30 minutes","none","general health good, nonsmoker, no asthma, do have GERD","just out of hospital","unknown","unknown","betapace, no side effect","topral, did not stop me from 2nd episode","gall bladder removed, 3 days before 2nd","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Liane","Riverside, CA","45","Atrial Fibrillation, ASD","at least 15","3-5 times/week","1 1/2 hours - 18 hours","I never had a major event - I think I have had it for years - just thought it was stress.","light smoker, moderate drinker","have AF a lot","Seems like anything or nothing at all. Can't really pinpoint much except stress, caffene and perhaps rest and maybe soy sauce or sashimi. I could be just sitting or driving, reading, cooking -- it just comes on. ","On the days I go to the gym, I do not usually get AF. Other than that, nothing.","Sotolol 80 mg BID. (Too early to tell for side effects.)","Coumadin Plavix, lots of bruising Atenolol - Did not control rate very well. (150bpm instead of 170+) Diltiazem - Did not control rate unless I was absoutely still. If I moved, rate shot up into 170+. Also, made me feel as if I was foggy. Flecainide - Could not sleep, eyes did not focus right. Verapermil - Worked pretty well most of the time, still had breakthroughs at least once/wk of 140+ for +/- 4 hours. Digoxin - I used with Verapermil. ","ASD closure 8/02 Right side RF ablation for flutter. 2/03 Left side RF ablation for Atrial Tachycardia 11/03 - Failed, procedure aborted due to too much fibrillation, no focal point. ","","I had an ASD closure on 8/5/02. There is a chance my AF will go away within 6 months. If after that point, I'm still feeling the same way I am going to pursue abalation. I have been lucky so far not have gone through all the terrible (seemingly unhelpful) drug regimens that so many people have done, but putting up with almost daily AF is very annoying and debilitating. I'm going to wait another three months and go from there. 7/7/03: I had a right side RF ablation and it was very succesful. I am now waiting until my 1 year anniversary for my ASD closure and hoping to get a left side ablation. 11/03: Had left side ablation -- failed. Starting Sotolol.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,1,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Bill","MA, USA","55","LAF/CHF","10LAF 2 CHF","5 times per week","4-8 hrs","none","former smoker (stopped 10 yrs) was moderate drinker","as stated upove","no actual trigger all the time Alcohol.. sometimes when I have first drink sometimes next day, sometimes not at all. Usually all the time with wine or hard liquor oan only sometimes with beer. Sudden stressful situations. Sleeping on my left side or back. Sometimes just in the middle of the night. Certain type of foods.","none","lanoxin .125 zestril 40mg/day tambacor 300mg/day lasix 20-40mg/day coumadin 7.5 mg/day cadura 1mg/day kdur 80 meq/day aspirin 81/day xanax .5/day","rythmol...didn't help cardioconversion...lasted l week","none I had a cath scan and it showed only l artery blocked 30%","waitng for somebody to come up with a solution. I think the Tambacor has caused the Congestive Heart Failure and I don't know which is more threatening. I going to an 8 hour meeting on Sat given by a group called Atrial Fibrillation Foundation, led by Dr Brian McGovern who is one of the leading Doctors in this field. He is from Mass General Hospital where my cardiologist is from.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "John McManus","Lambertville, NJ","53","afib","Officially, about 5 years, but probably had the condition longer","sometimes daily-sometimes monthly","15 min. to an hour","none","excellent","more or less controlled-ablated for a flutter a year ago.","","","sotolol - no side effects coumadin ","Rythmol, Toprol, Tambacor","a-flutter ablation hernia operation ","I'm kind of torn. My EP suggests ablation for the afib. My cardio guy is concerned about my low heart rate (~50 bpm) and is leaning towards a pacemaker.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Kieran","Ireland","46","A F","4","Weekly","2 hours to 24 hours","Exercise","Good health, fit, though having to curtail exercise as precipitates AF. Rarely drink and non-smoker","partially controlled","Alcohol, caffeine, chocolate, exercise, eating late","Avoid alcohol, coffee","Flecanide, emcor, warfarin","rythmol","none","Would consider ablation","Fed up and wish the Drs would appreciate the impact on lifestyle",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Dan F","Pleasantville, NY","58","Lone AF","2/3","Average every 22 days","2 - 5 hours","none","Excellent. No other problems","Episodes continue, but cause no problems","None known.","None. I've been off caffeine since second episode, but that doesn't seem to matter.","Aspirin 325 mg. 1/day.","Took cardizem for a month (prescribed by ER physician) before first appointment with a cardiologist, who took me off it. I have low resting pulse, and cardizem made it even lower.","None.","First cardiologist told me to take Norpace; if that didn't work he'd double the dose; if that didn't work he'd go to something with worse side effects. I just got a second opinion from a highly-recommended cardiologist/EP, who said I shouldn't take anything except aspirin, and just see how it goes. I'm switching to him.","I'm fortunate to have no ill effects during my episodes, so the cardiologist said I don't need medication, and am definitely not a candidate for ablation. He said I don't have to restrict my activities, and can even have caffeinated coffee in moderation. He said the chances of a stroke for someone with my frequency, duration, and general excellent health were minuscule. Best doctor's appointment I've ever had! If episodes get more frequent, which they will as I age, or I don't convert, we'll look at other options. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tim","Kent UK","55","AF","40 years with increasing PAC's and now AF","3 times a week","1 hour to 12 hours","Overworking in the garden started the latest problems","Slightly over wieght otherwise good general health / fitness","PAC's (ectopics) several times a day sometimes leading to AF","Large meals especially late in the evening. Alcohol. General stress. Too much exercise too quickly. Sudden changes in temperature. Sudden very loud noises. Sleeping on the left side. (sometimes)","Try not to eat too large a meal too late in the evening. Chew food more thoroughly. Exercise slowly at first.","Bisoprolol (cardicor) 2.5mg twice a day. I take 1 asprin when AF starts. I also take Calcium/Magnesium tablets and Hawthorn extract. Bisoprolol reduces HR to 45 (average) and this makes me tired. ","Propranolol in small doses (10mg) as and when I had PAC's. This no longer had any effect on my PAC's or AF. ","No heart related surgery.","To try other medications for some better results and keep fingers crossed that the AF does not progress to full time. ","",0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","US","65","atrial fibrillatiom","12","Twice a week","lasting from less than 1 hour to just over 24 hours","None","Very good","AF becoming less frequent in the last month","Combination of alcohol and chocolate wiyhin a time frame of an hour. Physical stress ie running hard for an extended period thus raising heat rate to >120 bpm","Suspect regular mealtimes including a regular b'fast","None","beta blocker(atenolol, I believe)/ slow heartbeat (45+/-) Low blood pressure","Spinal tap at age 13 to relieve brain pressure during concussion.","No specific","I suspect a thyroid gland connection. At less than 10 years of age I was on 'Metabolism pills'. Perhaps ADD? Recently Dr. prescribed Amiodarone but I declined due to possible side effect risks.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","California","","Atrial Fibrillation - Vagal Parozysmal","approx. 12-13 years","Ev. 4 to 6 weeks","up to 17 hours","factured knee and eating a good portion of Chinese food","Very good - non-smoker and non-drinker","No heart disease","chocolate, MSG, Licorice, diet sodas, over abundance of sugar","Staying away from the above list of triggers. Trying to eat healthy. Also on a multi-vitamin and the B complex, and Magnesium, Calcium Citrate","Alittle dizzy when getting out of bed. I have to generally get up slowly and sit at the edge of the bed for a few seconds before getting out of bed. My meds are Diltizem, coumadin,a very small dose of atenolol. Being Vagal I know that atenolol is not recommended but I take 12.5mg and it seems to keep the extra beats away. I also take magnesium, calcium,a multi-vitamin w/o iron. I also eat whole raw almonds a I understand it contains magnesium and they are good for you.","Was on Tambocor for short time, but it gave me a problem with my eyes. Also, Digoxin was my first medication. Since I found out that Iam of the Vagal type, I stopped the Digoxin.","Tonsilectomy at 13yrs of age","","The meds I take keep me comfortable and able to go on with my normal activities when I go out of sinus rhythm so as to cope with it until I convert back to NSR. I try not to eat anything past 7:00 p.m. while eating three meals without gurging myself as well and keeping within the healthy food groups.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Kymom","KY","16","Lone AF","1 1/2 years","occassional","cardioverted within 12 - 18 hours...so don't know how long they would last","None","Excellent health..don't drink or smoke","AF managed with occassional breakthroughs. Not symptomatic..feel normal during episodes","Quit caffeine upon onset of diagnosis. Suspect extreme physical activity is trigger","","Sotalol Is tired on this medication but not life altering tired. Thinking of switching..doc said something about Flecinade. Grandfather has AF and has had success with Flecinade. ","Norpace Worked wonderfully for awhile but breakthroughs were occuring","None","Trying to manage through medication buying time for improvements with pulmonary vein isolation","This info is about my son. I am just a mom finding out as much as I can about this.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Greg","Philadelphia","43","Paroxysmal Atrial Fibutalion","8","2 to 3 X's a month","1 to 48 Hours","None","Good Health, Non-smoker, moderate drinker","working on it","Alcohol, Stress, Stenuous Exercise, MSG","None","Just received samples of Toprol XL 25 mg, Aspirin","Atenolol - no real help","None","Try Toprol XL, move on to other medications to see if they work","Would like to cure it vs. live with and treat it with medications that are not very good for you. Interested hearing more about R.F. Ablation.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Maria","Los Angeles, CA","44","atrial fibrillation, atrial tachycardia","5 months","once every week","18 - 44 hours","hysterectomy","smoker","frequent episodes","caffeine MSG Excedrin","no caffeine no MSG containing foods ","Sotalol 160 mg 2x/day - very slow heartbeat (45-55 beats per minute) causing very strong heart contractions; tiredness; but when in a-fib, erratic heart rate max is 130 bpm","Tambacor 50 mg 2x/day with Atenolol 50 mg 2x/day - experienced a-fib every 2-3 days lasting 8 - 44 hours with erratic heart rate from 60 to 170 bpm Tambacor 100 mg 2x/day - same as 50 mg Tambacor 150 mg 2x/day - same as 50 mg Sotalol 80 mg 2x/day - no difference Sotalol 120 mg 2x/day - no difference","hysterectomy myomectomy lasik eye surgery wrist surgery arthroscopic knee surgery","focal point catheter ablation or pulmonary vein ablation","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,1,0,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Adrian MacDonald","Edmonton Alberta Canada","53","Lone Atrial Fibrillation","4","3days afib 2days nsr (approximately)","3 to 4 days","Recived electric shock and burns to my hand","Good health weekend drinker (social) ex smoker","Episodes have increased to 3-4 days after 3 years.","sleep, resting after a meal.","","Now on propafenone 600mg per day in divided doses. It doesn't seem to help very much. went up to 900 mg/day. It wan't very effective so I quit.","coumadin","tonsilectomy at 6yrs. old","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Lon","Roseville, California----USA","68","Lone AF----No underlying heart disease or heart problems","Seven","12 to 14 days","12 to 24 hrs","No unusual circumstances or event preceded first attack","Preceding First AF episode health was excellent","Good but suffering symptoms of recently diagnosed Hyperthyroidism","No specific triggers are known by me to cause afib except possibly fatigue (as a symptom of the hyperthyroidism)","I have tried eliminating certain foods and beverages, but to no avail. Not aware of any known preventions.","Daily aspirin is taken and 120 mg of verapamil at onset of afib. ","Took 120 mg of verapamil daily for two years and on my own went on a as needed basis. Afib sessions have been shorter and milder since going on a as need basis with verapamil. Blood pressure and pulse when not in afib is normal and the verapamil lowered my BP and pulse to where I felt poorly.","Tonsilectomy age 5 Minisectomy rt. knee age 42 Cholecystectomy age 45 Radical Prostatectomy age 60 (full cure) ","Will be scheduling surgery in month of October 2002 for recently diagnosed hyperthyroidism. I have multiple nodules that precludes any other treatment than surgery. I am a certified scuba diver and pretty fair golfer. This afib and thyroid condition is interferring with my recreational activities and I am looking forward to getting back to those activities.","The first two years I had two to four afib attacks per year. In the third year I had no afib. About the time I started having symptoms of hyperthyroidism my afib sessions came on every two weeks. I am hoping that having the thyroidectomy will eliminate or at least reduce the afib episodes.My specific symptoms are insomnia,fatigue,neck soreness, pains in rt. and left triceps, weakness in upper torso and legs, tremors in both hands and atrial fib. These are classic symptoms for my particular thyroid condition.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Edgar Medlin","USA","65","afib","5 months","no single episodes","no single episodes","indigestion for weeks in May 2002","good health-high blood pressure","ok with medication","don't know of any","don't know of any","Tikosyn Tiazac Cumadin Lasix Lotensin No side effects from any meds","Satalol - diziness","Hernia 30yrs ago","My electrophysiologist is confuring with Dr Sonny Jackman @ U of Oklahoma Medical Center about ablation in near future","I would never know that I have this if I would not check my pulse or monitor my BP. It does not bother me at all!!!",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Don Pearson","Houston Tx","56","Atrial Fibrillation","10","2 per month","10-30 hours","All episodes began during evening hours when relaxing or sleeping","Good. Non-smoker, 2 beers per day","AT Fib has subsided significantly.","Sleeping on left side. Relaxing at night, sleeping (Noted association with night sweats). Of the 20 or so initiations of AT FIB during the past year, all [except 1] have started between 10pm and when awaking next morning. Lack of keeping constant sleep cycles. Note: Fraternal twin brother apparently also has AT FIB frequently, with events lasting several days.","I have classic 'vagally mediated AF' (neurogenic). Interesingly, I had episodes lasting 12-24 hours, reoccuring about every 2 weeks for 4 or 5 years. Then my electrophysiologist put me on Tricor to reduce my high triglycerides. I haven't had a single occurance of AF since Jan 2006 (still true as of Aug 2008). ","Betapace (Solatol)- 120mg BID. No signficant side effects other than reduced heart rate, and difficult to exercise much within a few hours of each dose. Not controlling frequency of AT FIB events. Solatol use also correlated to sinus congestion in evening/nite. Also currently taking 82 mg aspirin and 145 mg Tricor. ","Coumadin -- no side effects other than easy bruising.","Tonsilitis in childhood. Appendicitis at age 13. In good health. Mom's side of family all has congestive heart failure (3 sisters). Mom has taken lanoxin for years for irregular beats. Mom had minor heart attacks over past couple of years (age 88). ","EP doesn't recommend switching medicene from Betapace to something else to reduce frequency of AT FIB events (disopyramide? tikosyn?) at this time. Only alternative he'll consider is amiodarone, and doesn't recommend it right now due to it's more potent side-effects. Things seem very stable since being on Tricor to control tryglycerides.","Given that ALL events have started when relaxing, sleeping (except 1), I know my version of AT FIB is vagal mediated. It DOES affect lifestyle. Current EP doesn't recommend much change - 'don't worry about it'. My biggest concern, other than a desire to have the frequency reduced, is increased probability of stroke. Then again, I guess we're lucky compared to other heart patients! ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Robert Dell","USA","52","paoxismal lone a-fib","5","every 6 weeks, variable","8 hours, variable, drug cocktail converts in 40 minutes","sleep,when after stress situations","chronic bronchitis,heart regurgitation, reflux","second pva in one week","1.while asleep (early morning hours 4-6 am), usually after long high stress days. 2. After murder attempt - on me- shot at at close range by derranged individual ","stress reduction cardioversion within 40minutes after drug cocktail; 200 - 300 mg Tambacor, sometimes with one cardizem ","Tambacor; tiredness, vision and percepyion problems, IQ reduction while on med. sleep problems cradizem; nausea, tiredness","tenormin; tiredness","both shoulders, rotator cuffs- full retractions, reattached with s steek anchors third degree burns, skin transplants pva early July, 2002 second pva-pvi scheduled for September 12, 2002","To return to normal if opperation works","the usual, I want my life back",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "xn28dpos1946","San Diego Ca.","55","A-fib (formerly also a-flutter)","three,although I suspect it was intermittent and undiagnosed before.","None, a-flutter removed with ablation and a-fib controlled with flecainide.","Before ablation and flecainide 1 Hr to 8 hrs. However if I am having esophageal discomfort then it's continuous.","Gastric distress, esophageal spasm.","Recently diagnosed hypothyroid. Long term nonsmoker, former moderate drinker. Regular excercise all my life, until this last year.","a-fib is controlled by the flecainide. A-flutter is cured.","Triggers in my opinion: Acid reflux which causes the esophagus to become tender-the corresponding discomfort is the major trigger, Other triggers include not sleeping on my right side and foods that promote gastric distress (dairy, heavy foods before sleeping, acidic foods, mexican food etc..) Other major trigger, alchohol, caffeine.","Controlling gastric distress with Gaviscon (coats stomach) and advil for esophageal discomfort. Flecainide 225 Mg daily (75 mg 3x daily) My prescription is for 150 mg 2x a day but with my physician's consent I am attempting to reduce the dosage slightly but take the remainder in 3 doses. ","Flecainide 150 mg daily. I suspect that the drug is causing reduced libido, drowsiness, and reduced general 'drive'. Energy level seems within the range of 'low normal'for me. Some weight gain with this drug but much less so than with Cardizem. With a very strict low fat, no sugar, no dairy, no alcohol, heavy food-suppliment vitamin-rich diet I am able to maintain proper weight. Thyroid Armour-120 mg/day CoQ10, Magnesium Asporotate, Fish Oil, Acetyl Cystine, Acetyl Carnitine, Lipoic acid, Mega Antioxidants and high potency vitamins.","Previously, cardizem (diltiazem) in maximum allowable dosage, produced significant weight gain.Sotalol (betapace) was also used in conjunction with the cardizem for a while. It had a Prozac-like effect upon me. Amiodarone was attempted at one point but was unsuccessful in correcting my a-fib.Also it was brutal on my veins. ","Epigastric hernia about 8 months before the first visit to the ER for A-fib. However I suspect that I had intermittent episodes as much as 15 years earlier, and I am unclear as to whether the hernia operation exascerbated the gastric distress which I believe was a primary trigger.","I will continue to explore ways to reduce my dependency upon flecainide, including idetic imagery. I am considering a second ablation procedure in which the catheter will penetrate the septum and ablate some focii at the point at which the arteries enter the left atrium. ","I apparently am one of the fortunate ones that has the situation completely controllable with flecainide. I would like to know if anyone has experience with the sort of left-side ablation that I am contemplating. Also I would like to know if anyone familiar with flecainide has any information about symptoms similar to mine and/or any information as to how to combat these symptoms.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "sheldon blackman","USA","42","atrial fibrillation and high blood pressure","2.5","1x per month first 6 mo, none in 2 years","5-10 hours","high blood pressure","good occasional drinker","seem to be curedq","stress","","beta pace. I was having 26,000 pvc a day on this drug","none","none","I have asked my dr. to put me on a toprol only. he wanted to put me on tambacor.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Isabelle","Easton,MD","65","AF, SICK SINUS SYNDROME July 2002, IBS since l998","4","4 per year","1 to 2 days","several falls and possibly salty meal in a restaurant","iron overload disorder (secondary probably due to overeating)","better,because I have lost about eleven pounds","Caffeine, chocolate, overeating throughout the day, eating large meals at home or in restaurants also salty food in a restaurant, second hand smoke, strong odors like paint and varnish, indoor and outdoor pollution, strong emotions like excitement,anger and also disappointment in the lack of integrity in some people, falls, over exertion and dehydration. Colonoscopy prep such as Phospho-Soda (too much salt in it).","I have reduced my intake of food, which includes carbs, fat,sugar,caffeine,theobromine(chocolat products)vitamin K and salt. I am trying to walk on a treadmill more than once a week and I am drinking more water.","Tambocor l00mg AM and 50mg PM Coumadin 7.5mg MWF and 5mg TTSS Aspirin 81mg Colace l prn (when I need it)","None","Minor surgeries l959,l998,l999","I plan to lose more weight(about 25 more lbs) because I think that I'll be able to reduce my intake of Coumadinas a result.","I am delighted with the AFIB list because I will learn a lot and perhaps be able to prevent episodes of AF and in addition,I feel supported by the Moderators and the rest of the members.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1 "vh","San Francisco, CA","54","paroxysmal atrial tachycardia","7","once per week","3-24 hours","","good health, aerobics 4-5 times/week, overweight though, heavy drinker in past but have quit","Number of episodes doubling from year to year and getting longer","fatique, extreme hunger or thirst, alcohol, caffein, stuffing my stomach","Holding breath when I first feel heart skipping beats. Can't be sure I would have gone into full arrhythmia though. Sometimes walking fast when I first feel heart skipping beats will even it out. Again, no way of telling if I was heading for full arrhythmia. Neither works all the time, of course, or I would never go into arrhythmia. ","40mg nadolol - feel tired a lot of the time, low heart rate (low 40's sometimes) 80mg aspirin 500mcg Tikosyn (started 10/02/02)","Digoxin - swelled up like a balloon and had vision problems Cardizem - didn't work and gave me horrible constipation. Toprol - since episodes continuing decided to change to another beta blocker","gallbladder removed 5/02; one parathyroid removed 5/01","","The episodes on Tikosyn seem to be less intense but I am very disappointed in the medicine. My episodes have actually increased since I used to have them approximately every other week. My doctor had told me I might get 2-3 years of complete freedom from episodes. NOT!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Melissa","Indiana","31","A-Fib","since 1995","","the last one i had was about 3 hours","","fairly heathly despite AFib","in sinus","","Not sure yet","Lanoxin,Atenolol,Lasix ,and asprirn","","","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mike","Southern Maryland","26","Lone AF","1/2","3-4 times a week","2-6 hours","None","Drink on the weekends","On my third medication","Taking deep breaths, laying down, eating too much...pretty much anything involving my diaphragm muscle.","Sometimes flexing my stomach muscles seems to make it go away, but that might just be coincidence because other times I just look like a fool flexing his stomach muscles.","Verapamil - Keeps my heart rate down when I have an episode","Atenolol - It made my AF episodes go from 2-3 times a week to 5 or 6 times a day. It also made me sleep about 12 hours a day...no life whatsoever. Diltiazem - Made me dizzy and didn't really do anything for me","My cardiologist told me that I should get an ablation...however he is a military doctor and there is no way I would let a military doctor do that to me... I'll wait until I get out of the military (in a year or so) and see a civilian doctor.","Get out of the military so I can actually be seen by real doctors that know what the hell is going on.","Just glad to know there's a whole bunch of people who have been there and done that when it comes to different treatments.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Diane P","High Desert of S. California","57","AF","3 months","was around twice a week after meds last episode was july 22, 2002","5 to 8 hours through the night before meds, after around 2 hours in early morning.","none","overweight, high blood pressure","take norvasc and diovan for HBP.","Estragen low. HRT - putting on a new patch seems to help. ","Don't know yet!","digital - was very tired when first started, now fine. beta blocker - not sure.","","Hystrectomy 94 Gastric bypass 97 Hernia 97","Getting a complete checkup at cardio office.","none yet!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Irene Foslin","Wisconsin, USA","69","A-fib","one","sporadic","weeks","stress","GERD, UTI","cured presently","Chocolate, stress, coffee","Ablation and implanted pacemaker","Coumadin, Zocor, Synthroid, Prilosec, Lasix No side effects presently.","Ameodarone -- sleepy, headaches, loss of balance Sotolol -- nervous, headache","Carpal tunnel, Hysterectomy, 2 back surgeries, hand surgery, gall bladder, tumor on thyroid, artroscopic on knees","Hope to live to be 100","Glad I am not in A-fib now. Hope to get back to enjoying life.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,1 "Paul","San Jose, CA. USA","51","Proxysmal Recurrent Lone Atrial Fibrillation","8","started withe once in 2-3 months. Presently twice a month","1 to 20 hours","None","No Asthma, No smoking, No drinking, No caffine","AFIB episodes continue","Sugar, caffine, Exercise, Stress","Weight Control, Avoiding Triggers","Atlenol, Coumidin","","None","Try other medications like ca+ channel blockers, Flecanide etc.","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Alan McLennan","Glasgow UK","52","AFib for 3 months, arythmia of and on for 15 years","off and on fr 15+ years","AFib now continuous previously 3 to 4 per year","half day max","none other than minor chest infection after flying from UK to USA","GH good, Never smoked, modest drinker","ILL but still firing on two cylinders","Sometimes stress due to undertaking something new, after dinner speaking for the first time, playing the club final bowling match etc. Not work related. Have suspicion that flying has something to do with triggering.","None yet but desperatly looking.","Warfarin, Amioderone and Digoxin. Was also on frusimide as diuretic but it, combined with warfarin, led to a kidney bleed and 9 days in hospital. Was on sotalol for 3 years until full AFib started then switched to the three above.","None","Kidney removed aged 5 after accident/trauma. Had cardioversion last week but the sinus reverted to AFib within 24 hours.","To carry on living and working and hopefully find a solution.","Good to know there are others out there who share the problem. I also met my old squash partner in the hospital AF clinic last week. He has the same problem!!!!",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "bootsie82","Barnstaple, N/Devon, Uk","55","Was permanent but 2nd ablation a success","10+","24/7","","Big meal","good, but due to meds now overweight","Am still in NSR after 2nd ablation, feel good so far","Big meals,premade cakes,biscuits,flans,chocolate,cheese,1 glass of red fine but not 3,Chinese food,tea,coffee. Reluctant to go back to this type of eating at the moment","Staying calm,sensible eating and no big meals and bearing down helps to.","0.250 Digoxin + 80mg Sotalol BD + Warfarin No Digoxin now.","Diltiezem 300mg weight increase,no help whatsoever Amioderone.","Cardioversion failed to return me to nsr. Changed to Flecainide prior to another cardioversion, this failed too. Ablation in Nov 05 at St Mary`s, london ..Failed. Cardioversion 22/4/06 Failed as well 2nd Ablation 3mnths ago..so far a success.","Will not give up as long as there is a chance of a cure.","Glad Im off Amiodorone,changed Cardiololist who has different idea`s,am still carefull of foods and drink plenty of water to flush the system of all the meds.Feel good on present meds, but wonder for how long. Not a great believer in cardioversion.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Brian","Portland, Maine,USA","31","a-fib still working out specifics","4 years","once a year until recently now once a week","15-30 mins","none","good health, slightly overweight, non-drinker, non-smoker","occasional episodes increased in frequency as of late","any methyxanthines (coffee, chocolate), stress, fatigue, alcohol, ectopy","avoiding above","ASA, Bach flower essence ","metoprolol PRN for ventricular rate control","EP study, occured on 07/12/02 and since that point I have had three episodes. Prior to the study I had 1 every 11 months or so. I have been assured that this is not from the EP study, but I am a little skeptical at this point. The MD was unable to find a tract for the a-fib. He thought it might be starting as PSVT then going into a-fib. This is not the case. Now it has been postulated that the a-fib is triggered by ectopy from the pulmonary veins.","Tai Chi for stress control and investigae eastern medicine a bit.","I feel very frustrated as I am active and have a job that requires me to be active. I get very anxious when the a-fib starts and have a hard time getting it under control. I guess I am a little tired of all the circles I have gone in with the doctors.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "JRBabb","South Carolina","47","AF, recurrent","20","2 to 3 x per year","36 to 48 hours","unknown","none","","drinking something cold, getting hot, caffeine","none","Betapace 3 years, tired all the time.","","no major","would like surgery to stop and get off of meds, and coumadin.","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0 "Allan","Hamilton, Canada","74","Atrial Fibrillation","0.5","Once or twice a week","1min to 6 hours","None","Good - non smoker, mininal drinker","inconvenienced","caffeine, alcohol, exercise, stage fright (performance anxiety), surgery?","avoid caffeine, alcohol, exercise.","Beta blocker - propranalol 20 mg. Taken as needed to stop AF - side effects reduced pulse rate. Prilosec - 20 mg for heartburn - no side effects Warfarin - 5 mg per day for stroke prevention - no side effects.","Indapamide (lozol) for mild hypertension","Gall Bladder (laproscopic) June 2002, since AF diagnosis.","Plan to take slow release KCl (Potassium Chloride) tablets. Magnesium and Potassium supplements in addition to multivitamin, E 400IU , C 1000mg Carotid Artery ultrasound. Substitute aspirin therapy for warfarin therapy. Build a simple ECG test set to review my own ECG when Afibbing. ","I have had an echocardiogram which shows no mechanical abnormaility in my heart.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Erling","Denver, Colorado, US","74","a-fib/ a-flutter, idiopathic, unknown whether vagal/ adrenergic/ mixed","~8. Perhaps a total of ~250 episodes in all, most very debilitating.","1 week to 1 month","<1 hour to 20 hours, always spontaneously converted to NSR","None (that I was aware of)","Excellent; asthmatic when younger; no smoke; little alcohol.","Cured","I never could identify specific triggers, but whatever they were most likely upset potassium/sodium balance and levels, which when reset by the kidneys would cause an episode to self-terminate. To me this is the most logical, perhaps the only, etiology of the 'paroxysmal' form of a-fib. Quite obviously something changes to set the stage for the arrhythmia and changes back to allow the sinus node's rhythmic firing to dominate (it's known that the sinus node continues to 'fire' during a-fib but is overridden by the electrical 'noise'). Another possibility is an upsetting of acid/ base balance out of the required very narrow pH of 7.35 to 7.45, thereby altering sodium/ potassium balance, and perhaps electrical conductivity of the extra-cellular fluids. None of this was ever checked during many (~10) ER visits. ","EPA/DHA oils, elimination of 'bad' dietary fats (to enhance 'fluidity' of cardiac cell membranes). Low intake of high-glycemic foods (to stabilize levels of adrenal cortical hormones, sp. cortisol and aldosterone). CoQ10 and L-Carnitine (for cardiac cellular energy production). Multi-vitamins (including B6, B12, folic acid, and TMG (Betaine) to reduce blood level of pro-inflammatory homocysteine). Vit. E: gamma, delta, tocotrienols. Vit C. Magnesium Potassium. Multi-minerals. ","None ","Warfarin: didn't want to continue because of minor bleeds and loss of Vit. K, an essential nutrient. Digoxin: quit because of 'drugged' feeling. Ca channel blockers (Diltiazem or Verapamil): quit because of tiredness and 'drugged' feeling. Beta blocker (atenolol): quit because it made a-fib worse. ","None (appendix and tonsils out when a youth)","AFIB solved ~6 months ago by nutritional/supplement means. I'll continue with proper diet and supplements since I'm now convinced that the arrhythmias that started at age ~65 were the result of certain nutrient/electrolyte deficits and/or excesses. I'm very fortunate to have not incurred any permanent heart 'remodeling'. Ejection fraction is greater than 70%, left atrial size is less than 4 cm. ","The best advice is to correct, to the maximum extent possible, all internal chemistries before giving in to a lifetime of medications, pacemaker etc; these might solve the a-fib without correcting any other nutrition related diseases, present and/or future. Even if the arrhythmia isn't eliminated nutritionally one might be amazed at the improvement in general health and outlook for the rest of ones life. This is particularely true for anyone on a standard, awful, western, affluent diet, which probably includes the vast majority of respondents to this and other a-fib sites. It's not difficult to do; it does require a lot of reading and understanding, and ideally the help of an informed professional, but the knowledge is all out there.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Hugh","USA","54","Chronic AF , Enlarged left Atrium","Chronic since Jan. 1998","Chronic","chronic","Stress, anger, too much coffee.","OK except I'm short winded.","Annoyed.","Pizza, Caffeine, Stress, Tired.","Cabbage settles my heart down.","Diltiaz ER (CD) 180/24 cap TEVA USA. Dose: 1 a day. Lanoxin 0.25mg. Dose: 1 a day. Coumadin 5mg TAB Dupont PHA Dose: 1 a day.","Rythmol. Made me sick, and I missed work.","Heart surgery at 11 years of age. Patched hole between chambers. ","Haven't made any. Too much depression.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Irene","USA","69","A-Fib","one year","ongoing","long","","relative good health","Underwent catherer ablation and pacemaker insertion this week","Stress","Had five cardioversions -- none successful","Previously took Sotalol, cardizim, ameodarone -- had side effects on each med, consisting of tiredness, headache, water retention, sleeplessness, rapid hearbeat","","ablation and pacemaker on 7/2/02","Don't know","Would like to hear from other people who have had pacemaker and if it helped cure A-Fib.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,1 "Dave","Cardiff, UK","58","Paroxysmal A F","Unknown, but probably at least 3. Diagnosed February 2002","4 - 16 days","20 min - 30 hrs","None known","OK, but AF gets you worrying. Non smoker, was moderate drinker, but now given up","Trying to come to terms with the condition","Stress Exercise maybe. Still looking for others, but not easy to identify. Have given up caffeine, spicy foods, cheese, alchohol, and try to avoid MSG and reduce intake of food additives, but no major benefit as far as I can see.","Have terminated a few episodes by placing my head between my legs.","Sotalol for two months at 80 mg twice daily. Not much effect, but difficult to judge as have no real history of previous frequency. May be reducing the length of episodes. Side effects: Bad taste in the mouth, low pulse rate 48-53,bit of a spaced out feeling. Depressed, but this might just be due to AF. Warfarin 9 mg/day. Slight gum bleed on one occasion","None","Eye surgery in 1965.","Watching developments in Ablation particularly ultrasound, as there does not seem to be a lot waiting to happen drugwise.","Was diagnosed during investigation of a small stroke.By chance went into Afib just prior to ECG. Stroke has been put down to embolism due to AF, which was probably present for at least three years. Who knows? My pulse rate had been suppressed by over blocking with Atenolol prescribed for hypertension so I was unaware of irregular or rapid pulse. I had reported a number of 'Big Pees' to my GP on at least two occasions and had several routine ECGs over the previous few years, but AF did not show on the ECGs and the link with the Big Pee was not made by the GP. This is a condition that can very easily result in depression, anxiety and a reduction in self confidence. Medical practitioners need to treat the person as well as the disease. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,1,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Dorothy","USA","70","Atrial fibrillation","13","Varies from 2 weeks to 4 months","8 to 19 hours","hyperthyroidism","Good","Trying amioderone","Most frequent are heavy meals; however, 50% of episodes occurred under many different circumstances, some even just when awaking. My cardiologist says there are no consistently predictable triggers.","NONE","Amioderone I have been on it for only 7 weeks, but suspect fatigue.","Atenolol -- periodic drops in blood pressure, lightheadedness Sotolol -- No side effects, but an increase in AF episodes.","Repair of ruptured ovary at age 18. Repair of bleeding ovarian cyst at age 22. Hemorhoidectomy at age 23. Hysterectomy (cervical cancer) at age 24. Repair and partial removal of prolapsed intestine at age 31. Insertion of fixator to repair fractured wrist at age 68. ","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dominator","USA","53","AF","3","twice in 3 years","first time-- 5 days then cardio version, this time 10 days and going.","Starving myself and eating water ice when it started","excellent","waiting to see if medicines bring heart back to normal beat.","3 years ago when this happened I was smoking, and drinking regular coffee, and drinking beer 2 or 3 days a week. I believe the AF was triggered when I bought a bicycle and I was trying to ride up a hill, so it was the physical exertion. Since then I quit smoking and drinking anything with caffeine. I drink a 6 pack once a week. Recently, I was trying to lose weight so I ate smaller and smaller meals, but I was still riding my bike and working out at health club. I use to get my heart rate up to 140 bpm twice a week, but I slacked off from doing that. I stopped for a water ice one day and then I ate it too fast and I felt that brain freeze, and then I believe that is when my heart started AF. Also I was on a 40mg maintenance dosage of beta pace for the past 2 1/2 years. That week I missed taking 2 days of beta pace, so that may of had something to do with it too.","They didn't find anything wrong my heart, and I have no symptoms at all. In my case I think this happened because of a poor diet and I was very active and then I missed a couple of days of my beta pace, and I wasn't exercising my heart like I use to."," 160 beta pace--- 300 cardizem--- 5 warfarin","40mg maintanence dosage for 2 1/2 years","none","Get back to regular heat beat, improve my diet, go back to raising my heart level to 140 twice a week, be satisfied with taking beta pace, maybe 2 40mg each day? Heart was shocked back to a normal beat 1 month after the AF started.","I sometimes feel scared more than anything when I lay down and feel the irregular beating and I sometimes feel like a thud feeling in my chest. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "S Hymel","North Carolina","52","atrial fibrillation","1","1 time","2 weeks","hypertension","asthma","","","","verapamil singulair warfarin"," metoprolol ","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "ASoper","Cape Canaveral, FL, USA","59","AFib","1/2 (assumed, not sure when state commenced)","not sure what an episide is; at worst have had to sit & rest while walking dog","see above; not sure what an episode is","stress, perhaps, otherwise not known","smoker (1 pack low tar stuff)","same as before going to ER","","","Rx was cut off after contretemps with physician, now taking aspirin because I've seen it recommended as an alternative for pregnant women. previously on warfarin, verapamil, klor-con,furosemide,digitek","","none applicable (broken leg decades ago, peripheral iridectomy for glaucoma)","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "James Manning","Sydney, Australia","46","AF","10","Weekly","24 hours","","Good","Living with AF","Alcohol Chocolate Over eating Exercise Too many late nights Hot shower Stress","","Of medication after recent RFA Half an aspirin daily","Verapamil Sotalol Flecainide Digoxin","March 2001: Catheter RF ablation LSPV isolation April 2001: Further RF ablation of LSPV, RF ablation of right superior, left inferior, then right inferior pulmonary veins. February 2002: Catheter RF ablation isolated all pulmonary veins. June 2002: RF ablation of isthmus","Change diet to keep of all food additives and try and stay of medication. If AF doesn't improve will reconsider returning to medicines and hatching yet another plan!","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Barry","USA","35","Afib","4","5/week","1-6 hours","Unknown","was in good health regular basketball, smoker, non-drinker","Paroxymal afib not good"," Eating too much Caffeine Alcohol Stress Anxiety(though not sure if this is the chicken or the egg)","Medications Laying Down(best on right side)","Toprol Xl 50mgs/day side effects laziness, fatigue Flecanide(Tambocor)200mgs/day side effects: largely unknown as I have been on this med for only 2 weeks---but--it seems to make my afib more bearable(I can continue working during an afib episode which I could not before beginning this med) I think it lengthens the episode some though. I had a very bad experience when I increased to 300mgs per day for one day. I was awakened with bad afib in the middle of my sleep, which has never happened before. Am going down to 150mg to see if that feels better. Ativan 1mg as needed for anxiety. I tend to let the afib scare me and it feeds on my fear and gets worse. Ativan has helped me in this regard.","Digoxin side effects-made my condition worse by far. Yuk! Lopressor- same as toprol above but not extended release like the Toprol. Inderal- wiped me out completely. Near to unconcious with a pulse of 30 for a day on one dose. Calcium Channel blocker(can't remember the name) did not help at all. ","RF ablation of AvNodal reentry, Ablation of flutter. 2nd Ablation procedure to left side of atrium going after nasties in the pulmonary viens. This one worked for 6 months I was back on the basketball court with no meds and starting to get into shape again. But alas, It came back and is worse than ever."," I hope to have a pulmonary vein isolation type ablation performed in the next 3 months. It seems like my only choice right now. Meds are not controlling it and I cannot live like this. I hope I can keep my job and insurance long enough to get this done."," I hope the best for all of you suffering with this life ruining problem",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0,1,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "CEW","London, UK","45","Starts with AF and can lead to SVT","5 months","3-4 times a week","15 minutes to 1 hour","Nil","Non drinker, non smoker, general health is good","Awaiting ablation therapy","Triedness. After a meal especially in the evening.",""," Sotalol 80 mg twice a day. Side effects: flatulence. 75 mg of Asprin per day.","Verapimil to start with, made condition worse. Side effects: constipation. Changed to Digoxin, slight improvement. No side effects. ","None","Awaiting ablation procedure in a months time.","The AF in my case it has lead to a vagally precipitated SVT rhythm which is a lot more dangerous. One four occassions I have had to go to hospital to stop the SVT rhythm( on two occasions it stopped on its own on the other two I had Adenisone administered to stop it). I get tired more easily and when in AF rhythm I get very irritable. The worrying thing is that the AF rhythm goes to SVT rhythm when I am driving or on a train and not within reach of a hospital. This limits my activities and has prevented me from travelling out of the country.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Franklin D. Ruona","Novato, CA, USA","57","atrial fibrillation","7","3 to 7 per year","minutes to 24 hours +","occured while running a 10 mile distance race","good, non-smoker","I am 2-1/2 months post PVA and think I may be cured.","Generally occurs when I was running. Most frequently when I was running on the track at a fast pace.","","I am currently off of ALL medications. I am taking an aspirin a day.","I took rythmol and diltazem for about two weeks and felt very fatigued and had a tight chest during that period. I came off of these medications and went back onto just digoxin. After two days of hard running I had an episode of A-Fib and I then took rythmol and digoxin until my PVA on 9/27/02. After the PVA I took rythmol, coumadin and lipator for about three weeks. After 3 weeks I developed an arrythmia and was in arrythmia for 5 days before Dr Natale electrically cardioverted me back into NSR. After that episode I was on diltazem, coumsdin and lipator for another 4 weeks. I was feeling very fatigued and achey and I requested to come off of the diltazem and lipator. Dr Natale agreed to have me come off of those medications. After one additional week Dr Natale agreed to have me come off of coumadin. I have been off of all medication for about 3 weeks now and have had no episodes of arrythmias. On 11/30/02 I ran 9 miles and my heart rate was at 120 BPM at one mile and was still at 120 BPM at nine miles. I am hopeful that my heart rhythm problems and episdes of Atrial Fibrillation are behind me.","I had a pacemker implanted in July of 2000 and had a PVA on 9/27/02.","I am starting to resume my regular long distance running training schedule and am hopeful that I have been cured of A-Fib and will be able to resume competitive age group racing in 2003.","My health is excellent. I am a long distance runner and run 50 to 60 miles per week. I have been fortunate in that I have been able to resume my running within a day or two of having an episode of atrial fibrillation. I did not have an episode of A-Fib for 17 months after I had the pacemaker installed in July of 2000, however, I had several episodes since December of 2001. I had my PVA on 9/27/02 and am in hopes that it has cured my heart rhythm problems and that I will be able to return to serious long distance running.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,1,1,0,0,1,0 "Betty Graham","Ontario Canada","59","A Fib","2","random","minutes to 36 hours","none","good, non smoker, social drinker","","caffiene","","Monocour - tired, indigestion, baby asprin","","none","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1 "Harry","Wisconsin, USA","61","A Fib.......irregular pulse with elevated pulse rate","4 months known","Chronic - Constant - Persistent - Sustained","24/7","Not Known","Lean, non smoker, light alcohol, excellent","Still pretty good, not so long winded, but maybe it is aging too.","wish I knew","","Digoxin .25 mg Diltiazem 120 mg Coumadin to eventually reach INR = 2.0","","Heart Cath to prove arteries are clear","Keep racing cars as long as I feel good and run competitively and enjoy it. ","The medications have controlled my heart rate, but it still beats an irregular beat. My doctor and I agree that there is nothing more to do. He even agreed for me to go back to one beer/day. The AFFIRM and RACE studies helped us reach that conclusion. These huge National Health Institutes studies were just released in March. They proved that rate control is as effective (a little more effective) than rhythm control. The measure of effectiveness in the study was survival versus death, as measured over five years.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sue R","Indiana, US","56","Parox. A Fib and atrial flutter","3 yrs - but had some irregular pulse problems two or three times a year since the 1980's","Every 5 or 6 days","24-65 hours","blocked sinus w/ small tumor - causing facial nerve pain like a migraine every day for several months before correctly diagnosed and surgery performed. I felt my autonomic nervous system was different from this pain experience, strong startle effect.","generally good inspite of several health problems, smoker trying to quit AGAIN, hiatal hernia, GERD, high uric acid, high cholesterol, back/leg pain/problems","In and out of NSR every week and during AF feel very weak, tired, short of breath. I get really disgusted when I know it is starting again. I really think I convert without medication except that the meds slow my rate so the episodes are less severe.","Cold drinks/ice cream eaten quickly, heavy lifting, lying on left side, stress, extreme fatique from hard physical work, often go out while resting or while I am asleep and it wakes me when it happens, sudden loud noises or being frightened by being surprised by someone or something can start an episode once in awhile. More than 2 drinks will cause AF - I don't know if wine, beer or liquor is the worst - I just drink very little now.","I avoid lying on my left side as much as possible. I do not use alot of ice in my drinks and I 'warm them up' in my mouth before I swallow. I don't eat ice cream products quickly. I try to get adequate sleep. I usually cannot go to sleep with AF going on so I sometimes take 2 1/2 mg of Valium which helps me sleep inspite of it. Sometimes mild exercise puts me back in rhythm if AF isn't too intense. I am 98% decaf and eat less chocolate than I have in the past. Seldom drink alcohol and only in small amounts.","Probenecid 500mg(high uric acid) Prilosec 20 mg for Gerd and digestive problems, Wellbutrin 150mg (has really helped my back and leg nerve pain), Spironalactone 25 mg -swelling ankles, Sotalol 120 mg am and pm, Digoxin .125 mg am & pm, Coumadin 5 mg 5 days 7 1/2 mg 2 days per wk. Lipitor 10mg, Climara - estrogen patch l per wk, Progesterone 2 2 1/2mg for 10 days per month. I have been on Coumadin many years due to previous blood clots in legs and it thinned my hair some, but since I started Sotalol hair loss has been much, much worse. Sotalol seems to give me dry mouth and unpleasant taste in mouth. I recently stopped Armour Thyroid after years because I felt it was making me more hyper. ","Lopressor 50 mg 2x day (tired)(lower BP than I already had), Digoxin .125mg none, Norpace - did not control AF and gave me a burning sensation in my mouth, felt more tired. Rythmol 150 mg 3x a day - controlled AF for one month but had to stop due to severe esophagitis even while taking Prilosec - so severe I could barely eat or swallow. Sotalol fatique, severe hair loss, loss of appetite, dry mouth/bad taste frequently. I will be stopping Sotalol 6/22/02 to go in hospital to be put on Tikosyn week of 6/24/02. My EP & internist both wanted me to go on Amiodarone - I refused until I give Tikosyn a try -due to the severe side effects of Amiodarone.","Removal of small tumor blocking spenoid sinus and clean out of blocked sinus.","I will try Tikosyn starting next week and hope it works for me for at least a year or two ~ but may go on Amiodarone later if it doesn't work. However, I am very afraid of the side effects. I will be willing to try ablation of some type in the future if it becomes more successful and safer. I appreciate each day I am in NSR and I try to accomplish alot on those days when I feel so much better. I try not to complain about how I feel and do the best I can till things get better. I have to believe their will be a cure in the future for this condition. ","I'm so glad I found this database and AF group. I think it will help me in many ways to be in contact with all of you and I hope something I might contribute would be helpful to someone else. Carpe Diem!!!",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,1,0,1,0,1,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Jeanne","California","54","AF -","","","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Gary","Richmond VA, USA","40","bradycardia and eposodes of AF","4","3 per year","45min","PAC, PVC","Very Athletic","Don't know yet","Alcohol, Tobbacco-chewing, and unknown.","Compleatly stop drinking, and chewing tobbacco.","Magnesium, Hawthorn, Patasium ","","","Possible ablation using RF energy","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Tom","Spokane, WA","46","Lone Atrial Fibrilation","7","weekly","2-3 days","pleurisy","good, non drinker, non smoker, moderate exercise","more time in af than nsr","cold weather, stress","","aspirin,vit-C, vit-E, Fish oil, CoQ10, Magnesium","Toporol and Digoxin (at different times)both made condition worse","None","Try still another Doctor, ND, EP who knows, will keep praying.","Don't have a lot of confidence in conventional medicine, have been to GP and cardiologist. Both visits have resulted in deterioation of condition. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Trevor","Perth Australia","55","Atrial flutter/fibrillation","3","Currently every other day","6 to 8 hours","None that I can tell","Good.Non smoker,light drinker,moderate exerciser","Now in (I believe)neurogenic AF","Currently happens at night or when resting after a meal. Before when in flutter,I have no idea what triggered it as it could occur at any time. I have suffered from mild hiatus hernia,and have chest pain from I think a worsening scoliosis of the spine.I stoop which tends to give me pain in the ribs.","Have tried being off alcohol completely.It seemed to work for a short while.Now no correlation between a drink and AF episodes.","None.Warforin only at the moment until my cardiologist comes up with something else.","Was prescribed low dose rates of flecainide which had no effect.Stonger dose made me feel ill such that I was off work for two weeks. My GP tried beta blockers which I threw in the bin after one day!My blood pressure is 'perfect' so beta blockers had a negative effect to say the least. Have also had digoxin but off that now.","Have been cardioverted.This worked for a year. Have also had ultra sound of the heart which indicated a leaking mitral valve although not serious. My arteries are fine having had an angiogram. Also have had the snake down the throat to see if the hiatus hernia has worsened.(It hasn't) Finally have had cardial ablation which may have cured the flutter but now in AF","I am going to still push my cardiologist to examine the role of my chest pains and possible influence of these pains on the vegus nerve. As medication doesn't work,could be a pace maker for me.","This condition is a bugger and is making me severely depressed especially as otherwise I am healthy.I can't do the things I want to do. Good luck to all my fellow sufferers!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Senior Brother","Bath UK","57","Atrial fibrillation","21","continuous 24/7","","Had hernia repair in hospital 1981 and I suspect anaesthetic set AF","Excellent","Still as it was 20 years ago","","","Warfarin - don't bleed much if I cut myself even deeply Cordarone - very quick to burn in Sun. No eye problems (Have annual checks).","","As I said, hernia under general anaesthetic in 1981 (also other side hernia in 2000)","To live another 20 years ","I would just like to get out of AF and into normal rhythm if only for a few hours just to see what it is like.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anonymous","British Columbia","85","Atial Fibrillation","three","sometimes every few days but usually every few weeks","one hour to 12 hours","Ship board bug","mild COPD non smoker, very light drinker. Slight heart valve leakage","reasonably good health but havd slowed up somewhat","","","0.125 MG dixogen 5.0 MG altace for blood pressure","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "anon","Portland, OR","58","Atrial Fibrillation",".25","daily","","","","not in sinus rhythm, but slowed heart rate","","","Aspirin 325mg daily Toprol-XL 25 mg daily Proppafenone 150 mg 3x day Really feel sluggish","","Breast Cancer Mastectomy & implant","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Bill L","Dayton, OH","59","afib","3","4 known","1-2 days","stress","nonsmoker and drinker","more frequent","over exertion","","toprol, warfarin lotensin drowsy, ","","none","uncertain, doctor recommends Tikosyn but I'm not sure that I ready","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Carolyn","US","54","atrial fibrillation","30+","daily","5 minutes to many hours","unknown if any","smoker","OK then NOT OK","no known triggers","none","digoxin, Prozax no bothersome side effects","","no surgeries","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dorothy","Houston, TX","58","lone paroxsmal a-fib, sick sinus syndrome","15","varies-","3 minutes - 2 weeks","none","drinker","NSR while on amiodarone, taking ToprolXL for PACS & PVCs","I have no known triggers other than dehydration. Have to be careful to dring plenty of water especially after exercising or before flying. As far drinking goes, its not necessarily a trigger, unless I have more than 2 glasses of wine. Exercise used to be a trigger but since I was finally diagnosed with a-fib 3 years, I haven't been up to too much exercise.","","amiodarone - 200 mg./day - tired, no side effects to date toxprolXL - 50 mg./day - tired, low blood pressure coumadin - 4mcg./day - losing hair, bruising.","rhythmol, betapace, cardiazem - ended up with pacemaker because of low heart rate (it would drop into low 30's while on these various medications. Amiodarone is the only thing that's worked for me.","","I'm going to see an ep at Texas Heart Institute in Houston. He works with Michael Duncan, who is performing the Maze at St.Lukes. In the meantime, I'm staying on the amiodarone. Hopefull, something better will come along for me. My cardio has talked about the new AF suppression pacemaker and also he feels there is a new procedure coming along where a maze-like procedure can be done with cathethers. ","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,1,1,0,0,0,0,1,1,0,0,1,1,0,0,1,1,0,0,0,0,1,0,0,0,0,1 "dave reeves","Nashville, TN, USA","52","chronic afib, pacemaker, cardiomyopathy, Mitral Valve prolapse","5-7 since it began","chronic","chronic","exertional heat stroke","good","currently in NSR for the last 2 weeks with amiodarone after cardioversion","now i'm chronic (persistent, seemingly close to permanent. The latest cardioversion lasted 12 hours before reversion to afib. Update: 7/30/02 Been on amiodarone for 60 days and have now been in NSR for the last 2 weeks after electrocardioversion. Feel the best I've felt in a long time.","","amiodarone, cozaar, lasix, coumadin","dronedarone, lotensin (gave me bad cough)","pacemaker implanted 5/14/02","If and when amiodarone quits working, I may try dofetilide. Right now I'm counting my blessings.","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,1,1,0,1,0,0,0,0,0,1,0,1,0,0,0,1,0 "gary","boston,ma","46","paroxsymal atrial fibrillation","3","2/year","8-12 hours","heavy drinking","good","normal sinus rythym","alcohol, caffeine","none","none","none","none","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,1,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Fran Messmore wife of Larry with afib","Naples, Florida, USA","56","Afib, Mild congestive lung,","2","8 or 10 a year depending on stress","He was in the hospital 8 hours ER, sent home still in afib.","Previous smoking, drinking, Viet Nam vet.","asthma, arthritis, dental problems","medical leave from work","Christmas, Easter, Vacation, pressure at work. At the hospital he was on EKG for 7 hours when I got to the ER, I was allowed to give him the fresh vegetable juice I brought, 20 min later he converted, then went back to afib. He trys not to use his inhailers for his lungs, seems they may trigger the afib for him.","keeping calm","Verapamil, Armour Thyroid, Terazosin, Digitek, coumadin, amiodarone, tylenol, albuterol, seravent","Vioxx ","carpel tunnel, war wounds","Doctor wants to put him out and shock his heart when they get his coumadin level right. I am afraid of this.","Doctors are not looking for the answer. They are collecting our money and doing just fine. I have heard this could be electrical, or fungal, but good nutrition will help.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,1,0,1,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John B","Florida, USA","52","AFIB","Less than 1","Widely variable, but becoming more frequent. Monthly or less","4 hours to 16 hours","Colonoscopy as part of routine physical exam","moderate drinker, otherwise excellent health","sinus","Indigestion, stress, more than 2 alcoholic beverages","Avoiding alcohol after periods of physical or emotional stress. Taking anti-acid when I feel a hint of gastronomical distress. Maintaining a regular exercise program.","Coumadine and rythmol.","","None related to heart. Knee surgery 1.5 years ago, several eye surgeries.","Monitor triggers with goal of reducing or eliminating meds.","Afib is a scary thing. However, I believe doctors and ER's have an incorrect protocol for LAF. Generally, I convert on my own whether I go to the hospital or not, but my experience is limited to 6 or 7 episodes. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "don","San Diego","58","paroxysmal a. fib /a. flutter","17","a few per week","6-24 hours","1st occurred in surgery after traffic accident","Excellent, no vices","stable, fibrillating around 15% of the time; almost asymptomatic...just some fatigue; ventricular rate controlled to < 100","In decreasing order of importance: Intense exercise fever alcohol Sleep deprivation dehydration heavy meal caffeine,chocolate ","Nothing clearcut. Reducing weight may help a little. Sleeping on the right side helps a little. Deep breathing can sometimes forestall or postpone an episode.","atenolol (25 mg)...slows resting rate a little, but OK coated aspirin (325 mg)...no side effects atenolol supresses episodes only transiently (for a few days after onset or increase in dose). But it makes the episodes more acceptable (and less potentially damaging) by controlling the ventricular rate.","digoxin: slow pulse, some dizziness disopyramide: slow pulse, slow urination sotalol: slow pulse diltiazem: slow pulse None were very helpful; sotalol had some transient benefits Some degree of listlessness comes with the slow pulse with all of these.","None","May try tikosyn or (when a litle older) amiodarone. Prepared to try more drastic interventions (ablation, etc.) but only if symptoms worsen ","A few years before my first episode, I began intensive exercise, which enlarged my heart, reducing resting rate from mid 70s to 40. I've seen a few reports of AFib in jocks/ex-jocks, and in animal that have large hearts. Can too much exercise be harmful?? The doctors I talked to were unsure. For a many years, I avoided exercise in order not to trigger episodes, but for the past year or so I've returned to running or biking a bit, staying well below maximum effort. Even this does clearly trigger episodes, but it doens't seem to increase their overall frequency much (it mainly just rearranges their timing), so I suspect that on balance this exercise is beneficial. My first episodes were terrifying, but now I hardly notice them, despite (or because of?) their almost continuous presence in my life. A pleasant surprise relative to the early fears. Episodes were initially very short and infrequent (10 minutes once per year), building up to several/week over several years, but their rate has been stable for past 10 years or so. Good idea to create this site...thanks! ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Terri","United States","37","atrial fibrillation","just diagnosed on April 29, 2002","about 10 times so far with the last one being the worse","usually 1/2 hour to 1 hour. The last one lasted for over 2 hours","none","low blood pressure","scared","","","toprol","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Haakan","Sweden","53","Lone vagal afib","5","30 - 45 days","Approx 7 hours","-","Good","Under control","Alcohol, sleep (especially when exhausted) ","Moderate alcohol intake, especially late at night. Sleeping discipline.","Durbis (Disopyramide). Aspirin. No side effects.","Sotacor (sotatol) and Lanacrist (digoxin). Made my vagal afib more frequent.","-","Presently testing breathing techniques (have managed conversion with shallow, fast breathing). Will test tilting bed. Considering ultra sound ablation when available.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bonnie Lander","St.Louis,Mo.","65","Atrial Fib.","two","Every two days","one day","Mital Valve prolapse","Good","Taking amiodarone","Sugar.caffine,stress,cold drinks...sometimes out of no where","None","Multaq...sine Jan.2010.no side effects.","thyroid","ablation 8-4-09","ablation again 5-4-10","I was doing great for many years on amiodarone until it stopped working.ablation worked for a while.waiting for 2nd ablation",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "DavidR","Durham UK","52","Mix of vagal/paroxsysmal AF episodes","15","7-8 times a year","seconds up to several hours (max 28)","none","good, non smoker, reasonably fit","OK. Coming to terms with condition","Dehydration, Red wine, large meals, greasy food, tiredness, stooping, stretching, stress. ","Don't get overtired. Avoid large meals, especially late at night. Don't bend over and extend arms at same time. ","Not taking any medication apart from 25mg aspirin daily and magnesium and potassium supplements. ","None","None","Am losing weight and avoiding large meals and fatty or rich foods. Am keeping calm during episodes and using slow breathing and stretching with moderate exercise to help reversion. Seems to work. Sometimes a small amount of plain food seems to help the heart drop back into sinus. ","Haven't found doctors particularly helpful. They all seem to want to use drugs which have side effects which seem to be worse than the problem. Trying to remember that the problem though frightening is unlikely to be fatal seems to help. At least you feel great when you revert! ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Paolo Petrie","Tacoma, WA, USA","56","A Fib","2","chronic","","none","good","controlled","","","tikosyn - none","","","","Tikosyn in combination with 240mg of diltiazem controls A Fib most of the time.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "tt","us","43","","","","","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "BobS","Christchurch Dorset UK","63","PAF","20","Approximately 2 per month","12 - 18 hours","None","Good general health apart from PAF - Light drinker - non smoker","In sinus rhythm.","None that can be identified. Mostly I wake up with AF or it occurs very late in the evening. Often I find that I have AF when I've been sleeping on my left side. When in AF, lying on my LHS seems to aggrivate the condition.","None that work reliably. 'Burping' does work in very early on-set (within first 3 - 4 AF beats, but nothing works when AF established.","Tambocor - No side effects at present. In the first few days I was slightly dizzy by these symptoms dissapeared in the first month or two. Update. Use of Tambocor was not responsible for my Tinitus as I have now been using this for 6 months with no noticable increase in the ear problem. Under medical suggestion, I've stopped using the 75mg daily medication of Asprin. Update - May 2007. In June 2006 I had a PV ablation at the Royal Bournemouth Hospital. After a month I had some atrial tachycardia and was prescribe diltaziam which I took for a week or so which slowed the heart rate to normal. I stopped the flecainide in August 2006 and had a 7 day Holter monitor in Dec 2006 which showed I was clear of any AF but I did have some occasional ectopic and missed beats. In March Dr Sopher stopped wararin and suggested I start 75mg daily aspirin. Since July 2006 have had no AF. ","Tambocor for a trail 3 month period which did completely stop any AF episodes. However I believe it did start my Tinitus problems and whilst taking it I did feel somewhat 'under the weather'. My cardiologist said that I could change to amiodarone but pointed out that I would have to take this 3 times a day and it could have side effects that could be worse than the PAF. Recently I had an increased number of AF episodes (approx 1 per day) lasting upto 18 hours duration. Having this PAF for a couple of weeks I've reverted to using Tambacor (50mg twice a day) under medical supervision. This has stopped the AF completely and have now been using this drug continuously for about 6 months with little or no side effects. ","None related to AF. I had a slipped disk operation about 5 years after first having AF. Ablation 2006 Success.","I keep a log of the number, eposide length and date of AF. At present the AF frequency seems relatively constant but no clear pattern is apparent.","I have had several tests for any heart irregularities but fortunately there appears to be no abnormalities. My mother had AF in her later years after she was 70 or so - she lived to be 84. My sister has occasional bouts of AF and my brother has been diagnosed with left branch bundle block and also has attacks of AF. He is on warfarin and digoxin which to date seems to contol episodes. He is 52 and my sister 64.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bobbie N","DUBLIN, TX","43","LONE ATRIAL FIBRILLATION- VAGAL ATRIAL FIB","10+","FIARLY FREQUENTLY","15 MINUTE - 3HOURS","DIETING","","","SUGAR LAYING DOWN",""," CARDIZEM- SEEMS TO SHORTEN THE LENGTH OF EVENTS","LOPRESSOR- FATIGUE, SEEMED TO CREATE DAILY EVENTS ","","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mike","Sheffield","54","Paroxysmal atrial fibrillation/flutter (PAF)","recent condition","often","few seconds to twenty mins.","Chest Infection","Good, non smoker, non drinker, regular walker.","serious","Random occurance, sleeping on left side, sleeping on back, chest infections, colds.","","Tambocar Just started medication. Fewer side effects than Sotalol.","Sotalol / bad reaction headache, nausia, light headedness, low energy and tiredness.","Non","Find a cure, find a non medication based treatment, find a medication with limited side effects.","This is a new health problem for me, I need to find good information on treatment and lifestyle changes. Not being medically minded the terminology is often confusing.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0 "Margaret","Ireland","48","Vagal Paroxysmal Atrial Fibrillation","1","1 to 3 weeks"," a few seconds to 3 hours usually about 40 minutes","None","Well controlled hypertension Overweight","well","Occurs at rest in bed at night. Usually wake from sleep. If i lie on my left side. Late night eating or heavy meals. Overindulgence in alcohol. Chinese food. Sometimes tea. Sometimes bending down. Yawning. I always know i am going to get an attack by the skipped beats. ","When i feel the ectopics starting if i get up and exercise","just starting on disopyramide Taking asprin and new blood pressure tablet","Capozide no side effects Arhythmol - made things much worse for me Beta blockers - made things worse and i could not tolerate them","None","Trial of Disopyramide. Maybe maybe a pacemaker if things dont work out","i am glad i have been categorised as vagal induced af because it makes sense now why the other tabs didnt work. i dont like having this diagnosis but it is not as bad as other heart disorders. I really really do not like the idea of taking medications for life. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Phil","Phoenix, USA","70","Atrial Fib.","3","1 per week, but decreased after 1 mo on Amiodarone","6 to 72 hours","Mild Heart Attack","Very Good","Improved, but long term not definite.","Exercise, stress, ham, corned beef","Walking when PVC or missed beats detected.","Amiodarone 200mg/day - side effects not observed (yet). Coumadin - some bruising.","Sotalol. Very slow heart rate. Poor circulation.","None","Investigate radiofrequency ablation, although 2 cardiologists have said it won't work for me, or if it does, it won't last.","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Diane","Milton, Washington","50","atrial fibrillation","four","7-14 days","average around 18 hours","playing tennis","good, non smoker, light drinker.","I try to stay very active but AF limits my aerobic activities.","I have 'susceptible' times of the day. Ususally from 4 PM on. I usually get an increase in ectopic beats at this time. If I partake in alcohol, chocolate or bend over I may go into AF or sometimes it will occur when I'm just relaxing and doing nothing. Quite frequently I will go into AF after aerobic exercise when my heart rate is on the decline (vagal rebound).","I have two types of ectopic beats that send me into AF. The first one is the multiple skipped or extra beats which will send me into AF. If I can get my heart rate up with some light exercise I can sometimes fend off the AF. The other type is probably an atrial flutter or some kind of tackycardia (a series of short fast beats). With this type if I bear down (like having a bowell movement) or plug my nose and simulate blowing up a baloon I can sometimes prevent an occurance. Usually in the end the AF wins out but sometimes I can delay it.","Just started on Norpace after a three day stay in the hospital for observation while the drug was started. I am told I will still get the ectopic beats but hopefully they will not progress into AF.","Digoxin: Did well as sole medication for the first year after diagnosis. Atenolol: Doesn't keep me out of AF but does keep the heart rate down when I am in AF. Does affect my aerobic exercising. Flecanide: Bad experience with this. Didn't keep me out of AF and when I converted from AF to sinus rhythm I had long pauses (5 to 10 seconds) which would cause me to almost black out. Calcium channel blocker: Had Af more frequently as well as bad ectopic beats when not in AF. Carvedilol: Made my asthma worse and severly limited my aerobic exercise. ","none","My current electrophysiologist doesn't think the drugs are going to work for me. If the current drug (Norpace) doesn't work he recommends a dual chamber pacemaker and higher doses of drugs or a pulmonary vein ablation.","I have paroxismal lone atrial fibrillation of the vagal variety. Knowing what I know now... I wish I wouldn't have been put on drugs at all. These drugs send you down a slippery slope. The drugs seem to work for a while but then your body develops a resistence to them and higher and higher levels are required until you virtually become addicted and can't get off of them. If I had to do it over again I wouldn't take daily drugs but only take a drug if I went into AF to keep the heart rate down.",0,0,0,1,1,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Jack Drum","Peoria, Illinois, USA","68","Lone Atrial Fibrillation.","45","one or two a year at start, and near chronic prior to surgery.","Varied from a few minutes to 3 days.","None","Good, smoker for 40 years. Now stopped for 8 years.","Cured in 1998, by the Maze Procedure.","Most of my episodes came on a time basis, which varied over the years. If I was near a AF cycle, I could bring it on early by physical exertion. No known substance triggers. It was time or physical exertion. ","","None","My main AF medication was Quinidex Tried many new ones as the became available, but due to side effects or ineffectiveness always had to revert back to Quinidex. Lanoxin for several years with the Quinidex. Side effects was severe abdominal and back pain. Stopped as soon as I came off the lanoxin. Aspirin, I was never on coumadin.","Radical Prostate cancer surgery 1990 Maze surgery 1998","Live a long happy life free of atrial fibrillation and free of the AF medications. ","After being cured of AF, after a lifetime of dealing with it and the bad side effect of the medications for AF, I find it hard to understand why more people don't opt for the maze procedure to cure this awful ailment. The surgery and recovery was so much easier than I had expected, and life free of AF and medication, (even for a 68 year old), is so wonderful, I just feel great. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0 "Rich O","Boston","53","AF paroxsimal","16 yrs.","For 12 years, once or twice a year. The last few years frequently. But mild","1-2 hrs. BPM 70 to 80.","None","Good. Non smoker and drinker","OK. Mild AF when it occurs. Usually daily. several minor episodes.","MSG, Caffine, Beer wine etc. Bending over, fatigue.","","Atenolol 50 mg. daily, 325 mg. asprin daily. Some degree of tiredness. But manageable.","None","None","PVI ablation. R & L chambers. Probably at Mass. General this year. Had PVA at Beth Israel Deaconness Medical Center, Boston. Dr's. Josephson and Zimetbaum. July, 02.","None",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Paolo Saia","Italy","46","PAF","2","high","1h to 10h","none","good","good","chocolate ,caffeine, alcool, cold drinks ,passive smoking ","cammomille , hawthorn flowers.","Flecainide pills 300 / day , 1 pill every 8 hrs. No side effects , with regular phisycal activity .","none","nothing","increase phisical activity to make blood thin.","I have electronic recordings of my heartbeats in different states. Could I add some picture ,to this data base ,for common use ? ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Beverlyb98107","Seattle","49","Atrial fibrillation/atrial flutter","2 years ago","Every 6- 14 days","20-24 hours","none","diabetic, hypothyroid, high pressure","struggling for control of episodes","","","Toprol XL 25mg once a day - no side effects Coumadin 3 mg a day - just normally easy bruising Amiodarone 400 mg X 2 (still in loading phase) should be reduced shortly - no side effects at present","Digoxin - no side effects Rythmol - no side effects Cardizem - cough, headache, made a-fib worse Sotalol - fatigue, swelling in lower legs, depression","None Atrial flutter ablation in January 2002, not known if effective, went into a-fib during electrophysiology study to document type of atrial flutter and did not convert despite numerous drugs and 5 attempts at cardioversion. Later converted on own.","Hoping for drug that will control for longer than 2 weeks at time. ","Glad to find a group with same problem to share with and learn from",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,1,0,1,0,0,1,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Alex Florence","Bellevue WA USA","64","Atrial fibrillation","4 years","monthly","30-180 minutes","none","good","under medication","Have not yet found a trigger.","","Soltalol 80mg. 3xdaily ","","Angiogram in 1986, and in 1999. ","Thinking about the new proceedure described as 'zapping with an electrical current' I have some resevations as there seem to be a small incidence of failure and future reliance on a pacemaker.","At the present time I ahve recently changed medication and the for six months all seemed well. However about a year ago I had frequent reoccurance and changed to Soltalol, again a period of success but the level of 80mg twice daily did not work, 120mg twice a day had to be monitired with an EKG, seemed satifactory. However still ahd occassional incidences, now trying 80 mg three times daily. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anmarie","Kalamazoo, Michigan USA","30","irregular heart rythm, paroxysmal afib, accelerated av conduction, hypertension","irregular heart rythm=5 yrs, first afib occurence=2 yrs ago","3 occurences in 2 yrs","longest was 8 hrs w/out cardioversion, was shocked other 2 times","none","excellent, could find no cause for high blood pressure","in fine health other than when afib hits","Drs have never determined a true trigger for me, but have advised me to stay away from caffeine, nicotine, any kind of stimulants.","none","I am currently taking Verapamil ER 240mg, Dyrenium 100mg 2X, Potassium, Magnesium, and Baby Aspirin 81mg under Dr's direction. And I do also use St John's Wort and Vitamin E on my own, but Dr is aware of it. No side effects. But Verapamil has in no way slowed my bpms the way they had hoped. Dyrenium has helped my high blood pressure.","Prinivil, no side effects.","no real surgery, have had EP Study done though. Discovered my problem lies on the left side of my heart, not the right side, so no ablation was done at that time. They decided the procedure was too dangerous to attempt at that time.","After 3 attacks of afib at over 300bpm on each occasion, my cardiologist referred me to a Dr at University of Michigan in Ann Arbor. He has agreed that I am a good candidate for radio-frequency ablation and I will undergo that procedure as soon as he has an opening.","After reading many of the posts on the afib site, it seems like many people live with afib on a daily basis with a lower intensity. I sypathize with those people, it must be extremely uncomfortable! I guess I'd rather only have it once in a great while at higher intensity, but it is scary when it feels like your chest is going to explode!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "KenB","Chacago, IL USA","61","Lone Atrial Fib","since 1997, suspect infrequent undiagnosed several years prior","approx 2 per month","8 to 16 hours usually","none recalled","generally good, not in great shape lately (6', 205 lbs)","still enduring (waiting on medicine to address AF adequately)","caffeine, alcohol, fatigue, vigorous exercise","Not sure anything actually prevents it. Even with complete elimination of triggers and uswe of medication still have episodes about twice a month, sometimes more.","200 mg Sectral (Acebutalol) twice daily. Have taken Sectral since 1998. For an 18 month period I weaned back to one per day, but since discontinuation of Flecainide (see below) have gone back to two per day. 1 81 mg. aspring daily.","Lanoxin (Digoxin) .025 once or twice daily from 1997 to early 2001. Verapamil for about 2 months in 1997 (didn't seem to help). Did a 6-month trial of Tambacor (flecainide) in 2001. Didn't help, episodes were more frequent, not less, and I felt that I was mildly depressed when taking it.","None for the Afib. Otherwise, appendectomy in 1958 and gall bladder in 1974.","Will see cardiologist again in 6 months. We're sort of waiting to see what new things come out (either drugs or electro techniques). He feels that current electro procedures are not very effective for lone AF. Have done a lot of Internet reading on AF. I don't think that any current medicines are woth the risks. Although the Sectral seems to reduce the severity and maybe even the frequency of episodes. Also, it has a low degree of risk and few side effects. I believe that the real solution for most people may turn out to be some form of electro ablation procedure once they design one that is effective for AF.","Symptoms of episodes are fatigue (extreme washed out feeling), sometimes dizziness, sometimes mild angina. My GP told me about 2 years ago that I have a very mild hiatal hernia which doesn't require any treatment at the present time. ",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "GM","San Diego, Ca.","57","Atrial Fib.","4.5","3 major episodes needing ER visits/1 minor episode","longest was 5 days","It happens at 3AM every time!! Wakes me out of a sound sleep!","generally good except for weight prob. no cardiac pathology, non-smoker, very little alchol or caffeine","controlled","Work stress and chocolate.","medication","Tambacor 100mg AM and PM, Maxide 1/2 tab, Atenalol100mg daily, ASA.81mg I have no noticeable problems with these medications except the ASA makes me have bruising and large purple spots form trauma. I now take it every other day instead of daily and have less problem. I sometimes forget my second dose of Tambacor at bedtime, but have not yet had a problem even then!","I have been in the Emergency Room on three occasions due to my arrythemia problems. The first time was diagnosed as SVT and treated with three (count them three!) IV boluses of Adenosine, converting on the last one (only with the threat of Electrocardioversion hanging over my head) Adenosine is most unpleasent. The next two times were dx'ed as AF and I was Digitalized and put on Coumadin for three months each time. The first of these I was sent home and Fib'ed for five days with heart rates in the 160's. I converted on my own. The second time I was started on Tambacor and converted with in a few hours of the first dose. Digoxin is unpleasent and makes my heart pound. Caumadin is a danger because your blood will not clot so you are at risk for severe bleeding from injuries. I curtailed my life considerably while on this so as not to risk major injury (no sail boat racing, skiing etc.) Since then I've had one minor episode that converted within one hour of taking Tambacor 200mg. ","Repair of knee/ from skiing accident. Repair of fractured bone in elbow.","Stay on Tambacor. Continue to be caffeine free. Lose weight!","I am so grateful that I can take these meds with relatively no side effects. I still have irregular and skipped beats especilly if I don't take it on time but, basically, it doesn't effect my life on day to day basis. My concern is for the long term. Will the meds work forever? Will I tolerate them forever? Luckily, I have good health insurance but I know that Tambacor is over $200 a bottle. Can I afford it the rest of my life? My cardiologist thinks that treating this prob. with Digoxin and Coumadin in younger, otherwise healthy people with no cardiac pathology is out of date. The trouble is....where ever you present with the problem, you have to hope that the doctor who sees you knows the up-to-date treatment. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Leslie","Australia","61","chronic","two","continuous","N / A","None","Excellent","Living as natural a life as chronic AF permits","glutamates (including MSG), caffeine, excess alcohol","none","aspirin - no side effects","flecainide - nil side effects","none","continue taking herbs and minerals and seeking a solution","have produced a 'summary' based on the experiences of perhaps 150 correspondents over the last five years",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John","Wellington, NZ","50","Atrial Fibrilation","5","year 1, every 2 months; no more till year 5, 2 a month apart","year 1, until reverted; year 5, 3-4 hours","Maybe stress","Excellent, fit, swimmer","OK, no events for 4 months","Red wine, Exercise, forget medication, ","flecainide, 300/day.","flecainide, tendency to cross-eyed early on, adjusted with no side effects now.","Sotalol, no side effect, actually no effect at all.","none","none","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "nikita","antwerp, Belgium","31","paroxysmal atrial fibrillation","2","2/ week or more","1 hour","heart surgery","","unknown","empty stomach or after a full meal certain movements gastritis?","","Inderal ","","heart surgery for ASD","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,1 "Andy L","Cornwall UK","40","AF","1","1-2 days","variable","very bad cold or virus giving symptons of a bad cold.","smoker, mad sea angler ( up and down cliffs ) fit as I can be. The odd beer.","just don`t feel 100 %","Anything containing Thiamin. Stress. Caffeine. Angry wife. Road rage. Anxiety. Fatigue.","Stay away as much as possible from food or drink containing Thiamins. Rest. No red wine. Using a mind trigger to adjust my state of mind to a confident but relaxed feeling. Stay on the wifes good side.","60mg Sotalol, 6mg warfarine.","Atenalol-felt sick and anxious.","Orthopaedic surgery.","Buy a small fishing boat. Go on a nice long relaxing holiday in a hot foreign country and leave my mobile phone switched off. ","As soon as I become aware that I am in an episode of AF. I make a concious effort to change my mood or train of thought to a less intensive frequency during working hours which helps. Also do something once a week that makes me feel good, small and un-noticable to anyone else but something I would`nt normally do like give way to a taxi.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Peter","Houston, Texas","65","Paroxysmal Atrial Fibrillation, [added 7-2005:] Atrial flutter","Unknown","daily to weekly [added 7-2005:] Afib gone, aflutter controlled","1 minute to 48 hours","None identified","Excellent","No improvement in AF [added 7-2005:] AF cured by ablations","Caffeine, stress, bradycardia [added 7-2005:] Aflutter episodes have initiated during sleep, possibly by normal reduction in depolarization time occurring during sleep.","None [added 7-2005:] After two PVI procedures, Afib is cured. I have had two episodes of sustained Atrial fluuter, now prevented by a low dose of Remeron. Off Remeron afer only 3 months, gained 20 pounds!","Betapace 120/slow heart rate, 45-60, Coumadin 5.5/none [added 7-2005:] I am now on coumadin, Zocor and remeron. The remeron has caused weight gain and I am currently struggling to maintain my weight. The Remeron doesn't limit my exercise capacity like the antiarrhythmia drugs did.","Toprol XL-50, Toprol-XL-100, low heart rate, Digoxin-0.25, Sotalol; low heart rate. Apirin 325, none","[added 7-2005:] Cardiac ablations at the Cleveland Clinic Feb-2003 and Oct-2003. Afib appears to be cured. No episodes since then! After the ablations, I had two episodes of sustained atrial flutter that put me in the ER. The remeron is doing a good job of preventing flutter, as well as helping me sleep all night. I now realize that many of the restless nights that I had in the past were probably caused by Afib or Aflutter,","My Cardiologist is searching for effective drug therapy to control rate and hopefully reduce the frequency of AF episodes. Coumadin has been prescribed to ameliorate the risk of embolic stroke. [added 7-2005] My Cardiologist plans to keep me on Coumadin, Zocor and Remeron indefinitely. Now I am on Zocor and Coumadin only, no antiarrythmia drugs, I feel great! My Cardiologist is going to keep me on Coumadin forever, regardless of how long I go without symptoms.","I had an embolic stroke 1/11/02, no lasting effects. MRI showed an old stroke as well. The old one probably occurred while I was on Toprol-XL 50 and Aspirin 325; the recent one occurred while I was on Toprol-XL 100 and Aspirin 325. [added 7-2005] I had another mild stroke in Sept. 2002, while on Coumadin. I suspect that I have had PAF for a very long time, but it only became frequent enough and severe enough to be diagnosed 6 months ago.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0 "michael headley","usa","33","paroxismal a fib","2","1 every 1-3 months, no episodesd longer than 15-20 seconds last year since started rythmol and cardizem","variable, seconds to 8 hours","ingesting cold ice cream","good, strenuopus exercise 4-6 times a week, 5'6' 200LBS low body fat","no sustained attacks for 1 year now, frequent episodes of pac's and palpitations, sob but usdually self limiting","large meals, ingesting things at extreme temps, cold/hot... stress fatigue, straining(heavy weight training). body position(lying down with torso extended, lying right side). ","sleep, relaXATION TECHNIQUES","RYTHMOL 150MG TID, TIZAC 240 MG Q DAY, NOTICED MILD DEPENDENT EDEMA WHEN ON FEET LONG PERIODS OF TIME, MODERATE DECREASE IN TOLERANCE TO STRENUOUS ACTIVITY, FATIGUE, PALPATATIONS ASA 1 Q DAY","","","POSSIBLE CHANGE OR DECREASE IN MEDS, AF ABLATION","I JUST WANT TO FEEL HEALTHY AGAIN, FEEL LIKE MY HEART IS A TICKING TIME BOMB, DAILY I WAIT FORT MY NEXT ATTACK TO OCCUR.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Pat simpson","Amarillo, Tx.","60","Atrial fibrillation","2 for afib, but arrythmia since 1994","daily","few minutes to hours","arrythmia problems","fair, never smoked or drank","daily afib, feel tired alot","cold food or drinks, overeating, bending over, tight clothing around middle, laying on left side or laying back in recliner, being scared or uptight about something. Worse at night.","don't know of any so far","I've tried alot of meds, I am on Lopressor right now, 1/4 tablet twice daily. No known side affects. Sometimes it helps, but of an evening it doesn't seem to.","Toprol, Norpace, Veripimal, Digixon, comadin, and lots more I can't think of. All had side affects for me.","Gallbladder, hysterectomy, heart ablation, varicose vein stripping","Try and find something to cure this problem. May go to the Cleveland Heart Clinic and have the procedure done called Pulmonary Vein Isolation. Heard it really helps.","Just glad to read that I'm not alone in having this problem. I wish that these doctors would realize how this affects our lives and our loved ones lives. I feel for all who suffer from this and pray we will be helped some day.I would love to hear from all those that want to email me at j-psimp@juno.com or at getsel6@aol.com",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,1,1,0,0,0,0,0,1,0,0,1,1,1,0,0,1,0,0,0,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1 "Mary Kay","Louisiana, USA","55","Atrial Fibrillation","4","once every 7-10 days","2 to 14 hrs","grave's disease","high blood pressure, hypothroid due to radioactive iodine, overweight","coping","Sulfites MSG Stress Tiredness","avoiding the above","Cardizem Plavix Amour Thyroid No known side effects.","Inderal No known side effects.","None","To stay off drugs unless they find a real cure. To find alternative ways to cope with afib.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "John91326","Porter Ranch, Ca","55","A-Fib","Probably a good 10 - 12 years although only diagonosed in 8-2001.","Every now and then","Until I calm down usually","Blood is too thick. Had a Pulmonary Embolism years ago which may have triggered this AF problem.","No smoke. Very light drinker. 6 foot, 210, good health otherwise. I walk, play golf, but nothing real strenuous.","Scared! Have an occasional thud in chest area when overly annoyed, agitated, stressed, excited, or exercising. Always thought it was an esophagaus type problem because a thud feeling occurs somewhat higher than the heart level.","Stress. Arguments. Agitation. ","Calming down. Eating smaller meals. Eating slowly. Taking short rests and cat naps. Maybe it is just me, but being able to have good bowel movements seems to alleviate this sense of pressue and thudding as well. ","Coumadin to maintain an INR between 2 and 3. Lanoxin to slow heart rate. No side effects per se.","","None. ","Not sure what to do. It seems people live with this stuff, given some of the recent celebrities listed. Coumadin gives me a lot of piece of mind. Since I have to take Coumadin for the rest of my life anyway (for a thick blood disorder called Protein S and Protein C Deficiency), this might be a case of killing two birds with one stone and just be thankful there is an effective way to treat both problems.","I love the board and talking to people who live this life as people with Afib. So refreshing to get the real side of this -- much different from the doctor point of view. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Robert","Southport","40","Atrial Fibrillation with flutter","5 Months","Daily","10 minutes to 3 hours","asthmatic, depression. mild skin condition.chronic tiredness","Fit","Improved but not cured.","Rest Sitting relaxed. Following meals particularly in the evening. Stress. Cold drinks. Lying in bed. Extreme cold or heat fatigue","Walking cold then warm shower concentration on something other than A.F.","Amiodarine no side effects as yet only five weeks into programme.","Flecanaide condition worsened with severe attacks.","Brain surgery following skull fracture","Will consider ablation as I don't want to continue on drugs.","I have suffered with extreme depression since I was diagnosed.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Al","Houston, Texas","74","Atrial fibrillation","6 mos.","daily","from 15 minutes to 4 hours","Triple bypass surgery 3 years ago","non-smoker, non-drinker past 90 days, excellent health otherwise","Waiting to be cured.","I really cannot say what triggers this, I thought it was overeating, position in bed, even sitting on john, but nothing proves out. Trying different medications and also went to a holistic nutritionalist and trying to control it with his help. Seems to be a bit less but still there. I go to a gym 4 times a week and do a credible workout with no problems. Actually, I prefer to stand and move rather than sit or lie down. Doesn't seem to happen as often.","None that I know of.","Sometimes a little quesy. Might be due to the 40 or more vitamin supplements I started about 6 weeks ago.","None","3 years ago triple bypass surgery.","Try to lick this condition.","It has been very enlightening to find this site. It's nice to know I'm not alone. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0 "Ron S","Oregon, USA","64","AF","1 1/2 year","daily","1 - 4 hours","?","occasional cigar, occasional drink","?","over exertion seems to trigger AF, but doctors state that an association is not likely, nor verified.","medication ","?","?","1990/91: kidney stones (3 episodes) 1993/94: colorectal cancer (remove/reconnect) 1994: back surgery 2001: foot surgery (bunion, hammer-toe)","?","Doctors still trying to control AF with medication. They believe that adjusting doses will achieve desired results, allowing me to eventually get off of coumadin. I am hesitant to do so until there is a substantial timeline of maintaining sinis (sic)rhythm.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Phil Stumpf","Pitman, New Jersey, USA","73","Palpitations, normal rate (60bpm)","1","2-3 times a week,almost exclusively post-prandial","1-4 hours","None","Doctoring for Osteoarthritis,osteoporosis,high cholesterol (all controlled)","Generally in good health,quite active (mentally & physically)","I still have not developed a pattern of triggers, but I am keeping a diary. Sometimes, alcohol triggers, other times, it does not. Overeating, sometimes. Overdoing physically, sometimes. ","I have tried the following, sometimes successful. 2-3 Tums. Running up and down stairs a few times. Lying down on my right side (never left side). ","Tenormin (25mg, morning and night) Fosamax, 70mg, 1x/wk. for Osteoporosis. Lipitor, 10mg, 1x @ night for high cholesterol. Prilosec, 20mg, 1x each morning for reflux. Flovent and Serevent, 2 puffs each morning to control mild Asthma. No noticeable side effects from any of the medications.","None","None","Continue with diary in hopes of determining a pattern. Keep a positive outlook. Continue to see my Internist, from time to time.","I had an Afib event in January 2001, 180bpm, lasted ~24 hrs. Went to ER overnight. Sent home with Tenormin (had been taking 1 Aspirin, previously). No more episodes until October, 2001, when palpitations started. Repeated good results from Stress Test, Echocardiagram, Blood work, Holter Monitor (naturally, no episodes in 24-hour period).",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ron Woodward","Chicago, IL","51","Lone AFIB","5","2/month","3 hrs","none","non-smoker excellent health","controlled somewhat","","","150mg 2X/Day Tambocor /none","Digoxin/none","none","Considering Ablation","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Lisa","USA","57","Chronic Afib","known for 2 months - but probably longer","constant","","none","ok","With medications feel ok","","working on it","Cardizem: seem to get muscle cramps - starting on Magnesium to counteract cramps. Lanoxin: no side effects Alatace: no side effects Coumadin: no side effects (hate those tests)","none","none","Will see what happens over next couple of months.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Jime","Fremont, CA","53","Fast Afib","2 years","3 times/wk","12 hours","none","good health, non-smoker, very light drinker,","OK but with lots of AFib episodes","extensive exercise (AFib next day) ","","Lotensin Zocor Warfarin Metropolo - loss of energy Magnesium - just started","Amiadrone - nausea, weak, disorientated Digoxin - nausea ","Kidney Stone (3 years ago)","","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0 "Joe D.","USA","70","a-fib + flutter","2","4 a month","3 hours","hypotension (low blood pressure)","good","still having occasional attacks","chocolate, ice cream, caffine, eating too fast, not chewing food, washing food down, pressure, acid causing food are ll expected.","eat slowly, chew completely, drink after eating, drink water, etc.","2 50mg tambocor ","rythmol - stopped controlling attacks.","na","if I get worse I will change doctor's to one who his also a electrophysiologist.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "David","Seattle, WA, USA","66","lone paroxymal atrial fibrillation","6.5","average 13 days, (range 1 to 55 days) from 3 yrs. of data","average 12 hours (range 10 minutes to 34 hours) from 3yrs. of data","none","active, athletic, daily exercise, no health problems except PAF, below average blood pressure and pulse rate","","evening meal, over eating, repeated belching, relaxing several hours after exercise","I am very physically active and have never had an episode of AF start during or immediately after strenuous exercise. A few years ago I could even terminate an episodes by moderate exertion but this no longer works, it just causes extreme pulse rate and near fainting.","disopyramide Toprol (very low dose) coumadin","Toprol/ severe fatigue/ not very effective Atenolol/ severe fatigue/ not very effective verapamil/tripled my amount of AF until withdrawn verapamil+digoxin/ same as verapamil alone sotalol+digoxin/ minor side effects/ reduced AF for 5 mo. then it lost effectiveness (i.e. big AF increase) Rythmol(+digoxin??) put me in near full time AF and kept me there for four days until withdrawn. flecainide+digoxin /minor side effects/worked reasonably well for 7 mo. then lost effectiveness","none"," My experience with drugs is that they may work for a time but then lose effectiveness. For now disopyramide is working better than any past drugs. When it fails I may try going back to sotalol which worked pretty well for me in the past but then lost effectiveness. Maybe it will work again after being off of it for over a year. My doctor says I am a candidate for a fairly new pacing device but I haven't read up on this yet. I am trying to follow the progress of ablation treatments. The U. of Mich. has published a paper reporting pretty good success rates. ","My pattern of PAF is strongly vagal.I was on digoxin, in combination with various antiarrhymathics, for over 2 years and then read that digoxin can aggravate vagal A-fib. I therefor stopped taking digoxin (but continued with flecainide). The effect was dramatic but temporary. I had no A-fib for 74 days after I stopped the digoxin (by comparison I had been averaging about one event every 3 days before). Unfortunately after the 74 days my A-fib returned with a vengence. ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Fran","Ross-shire, Scotland","41","Paroxymal Atrial Fibrillation","20 +","","very occasionally now.","Childbirth by epidural","smoker but still very fit","coping very well and getting on with life","Alchohol. Food additives, preservatives (sulphites, nitrates) MSG, Sweetners - aspartame, nutrasweet etc. Gets really bad 6-12 hours after major stress or major activity. Although it never happens during. Heat. Low air pressure","Don't consume anything with triggers in it. If I make a mistake the follwoing alleviates it: Activity and fresh air. Sleep with window open above bed what ever the weather.","None. I came off all my previous meds (digoxin then arythmol, sotalol, flecainide and atenolol) xmas 2001 and 'medicated' with diet (antioxidents and trace minerals etc). 6 months later I have almost eliminated AF. I feel much better without drugs, and am convinced they made the AF worse. ","Digoxin (10 years). Slowed down, more arrythmias, no appetite and no sex drive. sotalol: (1 year) 'forgetting' to breathe and sleep apnoea, ANXIETY, feeling noise as above, fatigue and major sleep problems, nightmares, low blood pressure - 85/35, more arrythmias. No appetite, no sex drive etc. Flecainide: (1 week) full body tremor and pulsating light. Less AF but sinus tachycardia. Atenolol Tiredness, bad sleep, jittery, can 'feel' sudden noise (electric shock throughout body) spasms in fingers and toes. Also don't know if this is connected but joints have become sore since starting. ","N/A","To see a holistic Dr. I am on a waiting list and she expects to see me about xmas 2002. Am convinced that my AF is the result of oxidative stress which has caused an hormonal imbalance in the ANS. I need help in getting my body back in good balance.","After suffering for 20 years with AF and taking most of the tablets in the book I became permanant. But I have managed to stop the permanent AF, and seemingly most runs of paroxysmal AF through good nutrition and ommitting any food additives. Dr's should be educated on the side effects of these tablets and not label the many side effects as different diseases. I have been given many labels for side effects of tablets and effects of AF (they include menieres disease, migraine, Myalgic Encephelomylitis, Central sleep apnoea and epilepsy). Footnote I now know that most of these symptoms are the result of oxidative stress. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,1,1,1,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Rich O","Boston, Ma.","52","Parmoxymal AF","14","Daily","Min. to 2 hrs.","None","Good","","Excertion, caffiene,lack of rest, stress","Vegitative state.","Atenolol 50 mg. Asprin 325 mg. coated","None","None","Ultrasound when available. Will consider the Maze operation.","Thanks for having this resource.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Richard CW","Herts Uk","63","Atrial Fibrillation","Told I have suffered for some years","Do not know what an 'episode' is? After meals","1 to 3 hours","Retired 5 years ago","Non smoker, regular but not heavey drinker","Debilitated! High Blood Pressure.","Food - but I'm not sure what an 'attack' is - help?","None","Warfarin/Fluoxetine/Enalapril/Frusimede - Pain beneath left shoulder blade.","","None","Undergoing battery of tests. Hope feeling of well=being can be improved?","Friends have thought I wanted to end friendship. Wife called into question my honesty although I have no record of dishonesty. Am taking an anti-depressant and the affect, which I resent, is to make me slightly but noticeably silly! ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "mary duffy","","57","paroximal Lone Atrial fibrillation","7 years","one episode to six per year","7-8 hours","hypothyroid and coeliac disease","non-smoker, non-drinker because of prescribed medication.","Maintainence drugs Eltroxin (for thyroid) tambocar, warfarin andAtenalol","1. Mental stress 2.Physical exertion 3.Indigestion of any level. 4.Sometimes nothing at all","Avoid the above situations (as far as daily activities of life will allow)","1. Eltroxin thyroid replacement hormone.100 mcgs daily. Its side-affects include. Cardiac arrhythymias, anginal pain, tachycardia.Interacts with anti-coagualants. 2.Tambocar(flecainide) 150 mgms twice daily. its side effects are many including visual disturbances. 3.Atenalol. 25mgms daily. Side effects include bradycardia, cold extremeties, sleep disturbance, tiredness, low blood pressure and gastric upset +++++++++more.","Isoptin. Side effects, headache and flushing. Rythmodan (Disopyramide) Hypoglycaemia.","None (yet)","Consider ablation, hopefully in Ireland. Success rate not promising at present.","One of the most positive things to happen was to discover websites. Even the best doctors STILL cannot grasp the problem of Afib. My own symptoms are exactly like many of the other suffers and i can understand immediately their particular problem and the situation they find themselves in.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "ph","","46","AF","10","almost constant AF","","none","hypertension"," almost asymptomatic AF","none","none","verapamil, lopressor, aspirin","","none","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Dave Cornish","Coventry, UK","47","PAF","4","Weekly","24 hours","None as far as I know","Good","Getting more frequent - used to be quarterly","Known -> Dinghy sailing, Lying down (!), Late night meals. Suspected -> dehydration, constipation.","Gentle stroll. Being upright","Aspirin. 80mg Sotalol -> much reduced at-rest heart rate (~65 -> ~45 bpm)","None","Varicose veins.","!","I have virtually given up late meals. I can't give up lying down and don't want to give up sailing. Though sailing often results in AF, not sailing doesn't stop it occurring. I have ticked 'vagal' below, but that's just my opinion.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "John Fraser","Vancouver Canada","66","AF","1 year","off & on, mostly on.","off 2-3 weeks","thyroid problem, perhaps","non smoker . Mod drinker","good health","don't know","","currently only on coumadin","very shakey while using & trying Propafenone for a couple of days, which worked for two weeks. Amederone caused visual halos. Also tried cardiversion which worked for a couple of weeks.","","none","I have heard that new evidence (Archives of Internal Medicin (Oct 22/2001)is that the drugs to cure AF are being found to be not worth the risks.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ray","Columbus Ohio USA","47","lone afib","7","2 to 3 days","continuous off amiodarone 3 days on amiodarone","","Good health, smoker, non drinker","no afib two weeks after second ablation","none known","none known","Zestril, aspirin, Coumadin","atenolol, digoxin, sotalol, verapamil, amiodarone, propafanone, aspirin, coumadin Extreme fatigue","Lasso ablation on 10 October 2001. Afib returned one week after. Second ablation on 9 Nov 2001. Almost two weeks with no afib.","Wait and see","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Michele","Pennsylvania","43","lone af","20","every 4 or 5 months","24 hours","stress","good, non smoker, non drinker,","presently experiencing more episodes","caffiene, chocolate, coming down from stress, over-eating","none","rythmol during an attack (600 mg. all at once), atenolol(25 mg. daily) Aspirin, 81mg. daily, vitamin supplement, extra magnesium","lanoxin, propranolol","none","have plans to be evaluated at the Cleveland Clinic.","My doctor is treating me as if I have the adrenergic type, I believe I have a tendency towards vagal or at least mixed type. I think he believes I am just a 40 year old menopausal neurotic woman. Women shouldn't ask questions!!!",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Chris","USA","49","Atrial Fibulation",".5","Cronic","Continuous","none","Healthy non-smoker non-drinker","Cronic Atrial Fibulation","Initial trigger unknown continuous state.","None","Warfarin","Tambocor","None","Live with it until something new comes along.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "John B","Abingdon UK","53","Atrial Fibrillation / Cardiomyopathy","8","2 - 3 per week","1 - 24 hours","None","None Smoker, Lite Drinker","Just putting up with the condition, occurs at rest mostly","None","None","Cordarone 200mg, Diovan 80mg, Cardiicor 7.5mg, aspirin 75mg Will not releave the condition, Loss of sex drive, pain in arms, chest pains ","AS above","None","To try and find a doctor the can offer a real cure so that I can start living again, help if you can","",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "N. Furrey","Arizona","49","proximal afib & atrial flutter","6, treated for only 1.5 year","unmedicated = many times / day, 50% reduction",">1min to <5hours","no recent illnesses","allergic predisposition","improved but still not controlled on meds, side effects minimal","more pronounced late in day through night and early morning hours, laying down","medication only","dofetilide - feeling much better as far as side effects go. Current doseing 375mg bid. Doesn't control the afib yet but it has reduced the number of episodes and to some extent their duration. Unusual occurance - marked dizzyness 2 hours lasting about 1.5 hours before AM dose of dofetilide. ","disopyramide - muddy thinking, unable to find words and verbalize them well, dizzy, blurry vision, neurological weakness and uncoordinated hands/arms, tonal tinnitus in both ears, increased migraines, dryness of eyes (painful), constipation, gut discomfort flecainide - fatigue, very dizzy, loss of appetite, muddy thinking, unable to find words and verbalize them well, numbness of mouth and lips, migraine headaches, malaize, moderate sleep onset difficulty. After 8 weeks severe acute sharp left side chest pain, PM fevers, burning in lungs with exercize, extreme fatigue and malaise, pleurisy, constant caugh, and fluid bubbling in lungs when prone. Aspirin - no difficulty Toprol - bradycardia Amiodarone - severe sleep problems (not well counteracted by Ambien, no positive effect with lorazepam). These side effects persisted very strongly for 84 days and continued noticibly for 118 days. Warfarin therapy was never in control and dangerously high INR = 10. Cardizem - didn't control Afib - used before ablation","Ablation 60 days following amiodarone therapy termination. It was preformed blindly because I would not return to afib during the procedure. It is suspected that this was in part due to the fact I was still under the influence of the amiodarone at the time. The ablation failed within 12 hours.","After 2.5 weeks on drug check with cardio to see if dofetilide dose should be increased.","I have received great comfort from this list and it's wealth of experience. Thank you!",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1,0,1,0,1,0,0,1,0,1,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Mike Seither","New Orleans area","53","paroxsymal lone atrial fibrilation / premature atrial contractions","3 months for afib / 5 years for PAC's","daily when occuring","20 minutes to 12 hours","none","good health","feeling good for the past 2 1/2 months w/o afib","caffeine, sugar, fruit juices, too much fluid intake (over 32 ozs in short period) left side position, sqatting position, pulse over 130, stopping exercise abruptly, too much vitamin intake, stress, overtired, low blood sugar, high blood sugar, adrenal stimulation, mineral depletion, chocolate, coca-cola. Had some gerd before but when I stopped the above stuff it went away.","cut back on sugars, both natural and artificial STOP all caffeine sources, including all coffee(s) both caffeinated and decaffeinated, coca-cola, chocolate, tea, over-the-counter headache rememdies with caffeine. Stopped flonase rx (stiumlant). Always eat small meals with good sources of complex carbs to keep blood sugar regulated and even. Am supplementing minerals, magnesium 750mg, citracal (calcium w/ D) 315mg, potassium 198mg (and a banana a day), also 1 hawthorne berry and 1 Co Q-10. Run 3 miles 3-4 times a week. Stopped vitamin supplements altogether","Cardiologist suggested digoxin but read sources on internet about problems with this if lone afibber and have avoided. Was taking aspirin and fish oil but have stopped as episodes have now stopped.","None","None","Hope to be able to keep up the current regimine. I am now controlling the PAC's to few to none and can exercise again pretty much as before. May try a multi-vitamin again, we'll see but I experimented with one the other day and could feel the ramping up of my heart beats and I stopped it. Too much adrenal stiumlation, apparently. I think its import to both supplement minerals and stop vitamins.","Keep a balance between the adreno and vagal sides by not feeding the adrenals any stimulation. Keep the heart cells balanced with minerals like magnesium, calcium, potassium. Keep blood sugar regulated with a diet similar to a diabetic but not quite as extreme but avoid sugars, chocolates, coffees (all) and soda pop. Avoid vitamin supplements. Once stabilized exercize regularly but avoid strenuous exercise UNTIL you are stabilized. Following this regimine I am free of pac's and afib now for 70 days and feeling very good.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,1,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jesse Potch","Cleveland OH","54","lone atrial fibrillation","7","weekly","1Hr to 4 Days","routine EKG before knee surgery","bad knees, overweight, teetotaler, exercise regularly","lone a-fib","stress (coming down from stress), bearing down, exercise (coming down from exercise), the weekend (coming down from the work week), gulping down a cold drink, chocolate, sleeping on my left side, bending down, overeating, loud, booming music with booming base,","laying on right side, some exercise when I start getting very relaxed, drinking apple cider vinegar (in AM.), (foot rubs help),","asprin (325mg/day) zochor (10mg/day) for cholesterol though it's only 140","atenolol (from 25 to 100 mg/day) made arrhythmia worse digoxin (25 mg/day) made arrhythmia worse flecanide (50mg/twice a day) vision problems, made arrhythmia worse ","rf ablation 07/99 (failed) rf ablation 10/99 (failed) new doctor wants to go back into the right side of my atrium, make a hole and enter the left side, then ablate a pulmonary vein; I don't want to undergo the surgery ","quit all meds except asprin; look at diet, vitamin supplements, exercise, wholistic approach","I look forward to using your database and the support group until 'a cure' is discovered or I can get this under control. I receive a lot of prayer.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "deni weber","Indiana, USA","50","Atrial Fibrillation","1.5","Sporadic, almost 1.5 years before 2, 2 weeks apart","6-8 hours","Intense stress","Have Celiac Sprue","in sinus on Tambocor","stress, illness, too much food, too much salt, skipped beats seem to precede. Seems being tired does me in.","Not sure yet","Tambocor - seems to make me more aware of my heart beat. Dry mouth. Maybe more anxious, not much appetite.","","","Learn to deal with the stress in my life. I am working with kids with emotional disabilities and in graduate school getting my doctorate in psychology. Need to cut down and find a balance.","I find this all kind of scarey. I think I become my own worst enemy with the anxiety the diagnosis has created for me. I have never liked hearing my heartbeat. Never used to and now I am aware of it most of the time. (My worst experience as a kid was at the museum of science and industry in Chicago, IL where they had a large human heart that you walked through - complete with beating sounds. Scared me to pieces at age 4 or so. And I always hated Poe's Tell Tale Heart. Interesting, huh?",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,1,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "ron","California","66","atrial fibrillation","10","now once/week","1-6 hours","Heart by-pass surgery","good, non-smoker, light to now non-drinker, heart condition controlled","good","caffeine, alcohol, over exertion especially upper body, arms and shoulders, exhaustion","None known","Quinidine/unk Atenolol/fatigue Coumadin Zycol for cholesterol control","Baycol stopped when medication was recalled","1982 Heart Bypass surgery 1990 Second Heart Bypass Surgery ","Currently the meds are not controlling the AF. Plan is to ask cardiologist if another medication might work. No plan to risk more surgery at this time.","Up until recently the AF has been tolerable. However as the episodes come more frequently, I hope to regain control.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,0 "Jess","New Jersey USA","39","a-fib","1","chronic","","pre-op for knee surgery","excellent","chronic a-fib"," ","","Coumadin Cardizem Atenolol","","Knee surgery","new meds 2nd cardioversion","also have sleep apnea and a anxiety disorder taking Xanax and Paxil",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ron Hume","Brisbane, Australia","69","'Slow' A-Fib","0.5","Permanent","N/A","4 years of PVC's from Coronary Artery Disease (No angina pain)","Obese for some years, still overweight. Diet controlled Diabetes Type 2.","Cardioversion ineffective. No symptoms at this stage.","50mg Atenolol per day following a positive isotope stress test slowed my heart rate to 34 beats, I felt fatigued and unable to exercise as normal. An EKG prior to an angiogram showed A-Fib had developed 4 weeks (or less)after starting Beta Blocker.","Nil.","40 mg Enalapril (ACEI) per day. 5 mg (reducing) Norvasc(CCB)per day. 4.5 mg Warfarin per day.","Atenolol (BB) See above (possible trigger)","Angiography showed Coronary Artery Disease - two vessel disease (LAD & LCx) Treat with medication.","Diagnosed as probably having sick sinus and AV node disease and with time may be prone to more symptomatic bradycardias. Not for any antiarrhythmic (heart rate too slow ... now 44) No role for internal defibrillation nor biphasic defibrillator","18 Oct 2001 :I have encouraged my GP to reduce Norvasc (from 10mg initially to 5mg) because of posssible adverse effect on sick sinus and arrhythmias. http://www.healthsquare.com/newrx/NOR1306.HTM http://www.rxlist.com/cgi/generic/amlod2_ad.htm http://umm.drkoop.com/conditions/ency/article/000161.htm 20 Nov 01 Update: No improvement in pulse rate with Norvasc reduced to 2.5 mg per day. Returned to 5mg per day to aid control of BP.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "M Bulger","Toronto Canada","48","PAF","4.5","daily","5min to 10 days","","","almost constant AF, just started amiodarone","alcohol, intense exercise","","amiodarone 400mg daily for 2 weeks, then 200mg daily ASA 325mg/ day","sotalol stopped working","Catheter ablation March 2000...unsuccessful","If amiodarone fails then may consider Maze procedure.","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,1,0 "roger","belgium","43","af","3","ranging from 4 weeks to 6 months","chronic at the moment","severe strerss situation launched first episode (flutter)","quit smoking 5 years ago moderate drinker","afib","stress and i suspect some foods and q10","none","some fatigue bad sleeping and dreaming","sensitive for sun","vealve replacements mitral and aortic","retrial cardioversion planned","9 cardiversions since start of problem ",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "tino","US","51","Permanent A-Fib","2","","","Heavy Excercising","Good Health. Smoke occasionally and a couple ounces of Alcohol a night.","Good Health, but way out of shape.","","","One 325 Aspirin every night with a glass of water. No side effects noticed. ","Procainimide gave me lupus-like severe pain and severe joint stiffness in every one in my body. Quinidine gave me flu-like synptons. Soltalol was not effective at all.","","Waiting for a minimally invasive cure. May try Tikosyn if my condition worsens but for now i have no plans to try another drug given my history with them.","When i was paroxsysmal (increasing episodes oer three years0 i had 7 different rythms of various severities that i would experience, and now that i am Chronic, i am at about the 2-3 level. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,1,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Pat M","US","59","AFib","2 yrs 6 mo","monthly","10 to 18 hrs","Pneumonia","Good general health","Still have AFib but less episodes","Not a clue","Not a clue except for meds helping frequency","Pacerone - no side effects that I know of Coumadin - no side effects that I know of","None","Two back surgeries Hystorectomy ","To live with AFib and not get discouraged and terrified when the ticker starts racing - like I'm in a race and going no where FAST!!!!!!!!!!","HELP!",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Lawrence","Saskatchewan, Canada","68","atrial fibrillation","2 1/2 years (since diagnosed)","Had increased from 4 the first year to at least 1 every third day, ceased for 100 days on Rhythmol, now restarted with no particular pattern.","longest was 60 hours, many of 12 or so, currently, on meds, they are shorter - about 3 - 4 hours","passed my 66th birthday !","health good. Never smoked. Was very moderate drinker, none now, not for several years before AF","On Rhythmol and metoprolol - have episodes from 2 days apart to 2 weeks apart.","Caffeine, (chocolate or coffee), continuous stress of various kinds. possibly processed meats","Don't I wish! But I do seem to be an unusual case in that indulging in sex will greatly shorten an episode. It has worked about 80% of the time, and pretty much ALWAYS if the 'cure' is applied after at least 3 hours of AF - long enough for the Big Pee to manifest itself a few times. It HAS NOT WORKED on those times where we tried it immediately upon getting into AF. I also suspect that if I feel on the verge of an episode it would in fact INITIATE it. But it has been uncanny that on so many occasions, I was in full AF well into the - -ahem- preparatory stages, but immediately upon conclusion, the beat was strong, steady, not overly rapid. Sure wish I could patent this.... A sad reflection - on one occasion when the sex didn't work, a cold shower did. Go figure! I suspect it has something to do with an adequate waiting period - for the Big P. ","On 3x150 mg. propafenone/da., 3 x 12.5 mg. metoprolol. Had been AF free for 100 straight days from May 27 to September 6/01 on 2 x 150 mg. da. of Rhythmol, and 2 x 12.5 mg. metoprolol. Possible tiredness, excessively slow HR from the beta-blocker, no noticeable side effects from the prop. I DO experience a constant sick-stomach feeling that I have finally decided is nausea whenever an episode is looming, or when in one. Do NOT think it is a side effect, however, because it was there before I started any meds at all ","Had initially been put on digoxin after my first (known and identified) episode, stayed on it for 8 1/2 months, then restarted it about a month later. Within several months, the episodes increased in frequency to 8 - 12 per month, growing longer as well, up to 40 hours. Dropped digoxin, within 2 months, NO episodes at all for several weeks, then they gradually picked up again. VERY pronounced sick, dead stomach feeling, which I now identify as a kind of nausea.","None - I feel so punk in AF, though, that I feel I WOULD go for surgery if it was available to me.","Hopefully, when the Rhythmol becomes ineffective in limiting and shortening episodes, another med might work. Will NOT try digoxin. I firmly believe it had something to do with exacerbating the AF - because it is in fact DESIGNED to deliver a STRONGER, MORE FORCEFUL BEAT. That I believe increases the probability of converting paroxysmal AF to chronic. On the other hand, for people who are already chronic, it may be just the med to make the AF less debilitating. I believe it is very frequently wrongly prescribed. Further future plans under 'personal comments'","I mentioned above that if surgery was available to me I would most likely consider it. But the medical care system in Canada is not likely to cover the costs - unless I am half dead first from trying every toxic medication in the books! I cannot handle such costs myself - what's the merit in getting rid of the AF only to perish from starvation! Perhaps if the ablation route becomes more reliable I might consider it. It IS hard to contemplate going chronic and living with it, but, time will tell. It does seem that an episode is at its worst shortly after having begun, in terms of debilitating effects, extreme 'antsiness' which makes sleep difficult for me in AF. This is a problem, as I have had several episoes initiated, I believe, by stressful dreams! When the Big P has done its work a few times, my symptoms are less pronounced. I fondly wish I could convince doctors to investigate the sequence of changes that the body undergoes as someone like me proceeds through an AF session right to the point of automatic conversion eventually. What changes? Why does the AF stop at last? Or why, for me, when adrenalin will initiate it, does the adrenalin of sex effect a return to sinus? I would gladly volunteer for guinea pigging this one out!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "dick g","usa","62","afib","1.2","running in the background most of the time","?","nothing","great, finished cardio rehab, doing exercise at home and one maintainance / week"," digoxin and exercise have practically eliminated the symtems","over eat to late wine over two glasses sleep on left side i feel crummy if i over drink lost 50+ pounds still have about 38%EF","sleep on right side","digoxin zestril lasix wafarin atenolol some bloating ","sotalol every thing i could think about thought it would kill me ","none","continue the rehab and build myself up i can run up stairs now, im doing a lot of physical work hobbies of remodling house stick to two glasses of wine","this is an experience i wish only on bin laden actually he should drop dead ",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Jim P","Hawaii","45","cardiomyopathy","3","every other day... at the moment. it was constant","12 hrs to 3 months","cardiomyopathy","good health other than cardiomyopathy and afib","","alcohol, laying on left side, cold drinks, slow heart rate, eating too much, certain non-alcoholic beers, eating anything in the evening","exercise","spironolactone, atenolol (100 mg daily), coumadin, zestril (ACE) Tikosyn, 500 mcg every 12 hours Side effects? Not sure. Hives are a problem right now.","Amiodarone -- incredible sunlight sensitivity, numbness in extremities/tingling, thryoid damage... probablyothers I forgot about. I was on it for 14 months.","None really","Hope they come up with some better class III drugs","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,1,1,0,0,1,1,1,1,0,0,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Jack R","AL","56","LAF","4","Weekly","10-18 hours","","very active(run, bike, lift weights), drink beer and some wine","flutter ablation, PVA scheduled for 10/29/01","stress","","coumadin","ameodarone - difficulty breathing at times, short but intense pain in head, wheezing from lungs","","Scheduled PVA for 10/29/01","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Chas","Bishop's Stortford, UK","58","Chronic AF","4","Continuous","Continuous","Angina","ex smoker, moderate drinker, overweight","living with it","Alcohol consumption in excess of 6 units makes afib uncomfortable next day. Exercise of any sort increases discomfort Stress and excitement increase discomfort","Avoid known triggers to minimise discomfort. Atenolol (recently prescribed) helps with stress/excitement related discomfort. For most of the time I'm now not aware of the condition. But I do still get breathless on exercise and this can lead to angina. GTN helps with this.","Warfarin Digoxin Atorvastatin atenolol Side effects indeterminate - not being sufficiently troublesome to warrant investigation. Some nagging doubts about statins and memory impairement.","Amioderone - sensitivity to sunlight Sotalol - fatigue, but not serious","Coronary Angioplasty including placement of stent January 1998","To try to find a means of getting off of warfarin and digoxin. Update: looks like it will be digoxin forever - and warfarin as well, unless the powers that be can sort out the Zantec (?) side effects.","Having trouble getting used to the idea that I must, from now on, restrict my activities and enjoyment to the point where I cannot join in with others. this was particularly evident this year (2005) when I accompanied my wife and some good friends on a skiing trip but I couldn't join in, in case of serious internal injury and subsequent uncontrolled bleeds (Warfarin). Also getting mightily fed up with having to watch what I eat, drink, etc because of effects on warfarin dosage, weight, etc., etc. In short, after several years of chronic AF and all that goes with it, the enthusiasm to maintain the 'sensible' regime dwindles somewhat. Hmm!",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ben M.","St. Charles, Mo, U.S.A.","70","Atrial fibrillation","4","Chronic","continuous","insomnia","fair, non-smoker, leaky mitralvalve","fair","","","lanoxin,lasix,potassium suppment, librium, coumadin Side effects. rash which itches badly","same as above","none","live with it","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0 "Todd","Washington DC","34","A-Fib","4","Chronic","Constant, when not on meds","None","Very fit, work out regularly","In sinus due to Amiodarone","Wine -- big time. ","Amiodarone is the only drug that is working, worried about long term use.","Amiodarone, cumadin, Toporal XL -- no known side effects","Sotalol, Toporal XL","None","Consider Ablation or maze.","Very frustrated by options. Scared of amiodarone long term. Looking to find best Doc for ablation or cathater maze. Recomendations please email me at toddmalan@aol.com",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Anonymous","Canada","84","Atrial Fibrillation","3","various sometimes 3 months between episodes","half hour ro 3 days","COPD","excellent","periodic episodes","Perhaps emotional tension Perhaps too enthusiastic exercise","None known","81 mg aspirin","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0 "Janet B","London, UK","49","Paroxysmal atrial fibrillation, sino atrial disease tachy/brady cardia","5","daily","","hysterectomy","good, arthritis, hayfever","have a pacemaker, but still get tachycardia","at first mostly at rest in evening after dinner, but now stress or activity but very unpredictable","","fleccainde, often doesnn't work can take more if needed up to 300mg per day. and cause vision problems and constipation. warfarin. ","tenormin - couldn't play sports. too tired. completely ineffective for afib.","pacemaker May 2001. better initially, but a fib bad again now.","may have to give up work as stress a trigger and need to rest during episodes.","My brother also has this condition. No other relatives have it. Has anyone received any disbility allowances or had to leave work?",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,1,0,0,0,0,1 "Donna McGue","Simi Valley, California","60","AF","9 months","4 X in 9 months","3 months longest, 2 weeks shortest","general good health, back and neck problems","non smoker since 1980, very minimal alcohol since 1993, asthma, some arthritis in neck, back and hands, hypothyroidism, early signs of glaucoma","currently in AF","stress, lack of sleep, sugar, caffene","I currently take chinese herbs for circulation and general heart support, adrenal support formula, Q10, V-C, Cal/Mag, herbal antidepression formula, herbal colon cleans formula, HGH, accupuncture to promote better circulation","lanoxin & coumadin (mild diarrhea), levoxil (none), alphagan (dry eyes)","none","none relative to AF","To start keeping records of how I feel modalities to pinpoint triggers ","At first I was very scared now I'm only scared when I am in AF waiting for it to stop.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Greg","USA","48","Vagally Mediated Lone Paroxysmal Atrial Fibrillation","2","1 - 3 per year","36 - 48 hours (then CardioVerted or Bolus of Flecainide)","none","very good","early stage, infrequent episodes","Heavy Meal late in evening All episodes started as I went to bed Sleeping on Left Side","Keep evening meal light Sleep only on right side Elevated head of bed","81 mg Aspirin daily - None Have used Flecainide Bolus for the most recent episode I also take 100 mg Co-Q10, 400 iu of Vitamin E, and 400 mg Magnesium","Flecainide- 100 mg 2x daily, Increased BP spikes, loss of focus I was put on this after my second episode. Stayed on it for 3 months, changed doctors and he agreed to take me off of it, but use it in Bolus dosage for conversion. ","None","Continue with no medication as long as possible. When and episode starts I take 100 mg of Flecainide every 1/2 hour until I reach 300 mg. Then, when it has settled down some, I take a brisk walk. This resulted in conversion on my last episode. (I'm one for one on this approach)","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "James Nearing","Chillicothe, Illinois, USA","33","1992","11 years","2-3 times a week","1-10 minutes","None","None","Fine","After eating, running, sex, working, walking fast.","Cardizem, Lanoxin","None","None","Removed tumor in left femur at the age of 16","Not to much","Is there a cure?",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Dennis Moyer","Lost City , West Virgina","58","Chronic Atrial Fibrilation, Atrial Flutter, premature beats","6 months","sometimes daily, almost always weekly","15 minutes to 48 hours","Flu","non smoker, non drinker, high blood pressure, arthritis osteo.","tired of it, to say the least!","unknown, seem to be no rhyme or reason for the onset of the episodes.","","Amiodorone, Lopressor, Coumadin, lipitor, cardura. ","sotolol, didn't work altace,dry cough in 24 hours diovan, totally wiped out, no strength, no energy, generally whipped.","no heart surgery","being referred to an EP Dr. at U.Va. hospital in Charlottesville, Va. a Dr.Haines for possible Focal Ablation","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "TED","US","37","AF","6 years","4-5 times a year","4-5 days","Holiday Season,Engagement,Sponser of a lrge event with lots of Responseablility","Smoker,Drinker,limited exercise","Occasional Episodes,","Stress,Caffeine,lack of sleep,Alcohol,Nicotene,Stress,Being Startled,Adrenaline!!,Going from state of rest to ammediate action.","Rest,no caffiene,Digoxin,limit alcohol,reduce stress,Think!","Digoxin/none","comidin","none","Raise the Family and hope for the best and enjoy life","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Gregg","US","33","Atrial Fibrilation","9","2-3 month","10 minutes- 1 hour","Pneumonia","good","overall good","msg, bending, excercise, sometimes after eating lying down ","meds, sleep(sometimes to convert)","Rythmol & Atenolol No side effects at this time","Amiodarone: tremors, adverse to cold, stomach, weakness. pins & needles in fingers & toes. Rythmol: n/a flecanide: n/a procainamide: n/a verapamil: fatigue digoxin: n/a ","Ablation of Atrial flutter 3/00","considering 'laso ablation'- encircling the pulmonary veins with ablations, to try and keep the 'foci' from emitting elec. impulses to the atrium.","Overall I'm just tired of dealing with it. I'm fairly well controlled so that I don't worry much about it. But for how long? As you can see I've done my fair share of meds.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,1,0,1,0,0,1,1,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "anon","USA","64","afib","6","average 12 months","6hrs-36hrs","none","good","medicated","fatigue,stress","???","Cardizen and Tambacor Just started on medication so side effects not known","asprin","none","Try the medications and try to manage my lifestyle to prevent further episodes","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0 "Leo","British Columbia","61","paroxysmal atrial fibrillation","15+","daily","variable, minutes to hours","none","excelent, non smoker, occasional drinker","variable","exercise, fatigue, excessive eating and I wish I knew what else triggers it. Aside from exercise, there seems to be no rhyme or reason to the triggers. REcently had pulmonary vien ablation, now exertion seems to trigger episodes more often","none","currently on coumadin and 81mg asa. I have noted that during the last 6 months or so I have started to feel cold inside. I used to always be the warm one in the family but now I am the one to turn up the heat","gave up all other drugs, although I have been on amiodorone in past as well as the usual array of meds listed by others, such as verapamil,made it worse, rhythmol, worked for a few weeks, sotalol, made it worse, digoxin,didnt notice a difference, atenelol, no difference.","tonsilectomy, reemed out prostate 13 years ago.(i have often wondered if there was a connection) various teeth.","do pva again","this condition is psychologically debilitating. it keeps me from my accustomened active life style. ",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,1,0,0,0,0,0,1,0,0,1,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Bill Jocelyn","Jersey, Channel Isles, UK","46","LAF/PAF probably vagally mediated","3 1/2","Can have 4,5,6, days free but mostly every 3 days","Anywhere from 20 mins to 24 hrs","None","Fairly good, not fit, smoke 5 to 7 cigarettes a day","Well pissed off with this condition, not cured.","Can be, bending over, on all fours,eating large or small amounts,Booze. Ectopic beats are the culprits I reckon )","Have taken 1000mg fish oil Co-Enzyme Q 10 by the bucket load Hawthorne Berry Magnesium 800 mgs a day Vitamin B-12 L-Carnitine None of these helped","None. 1000mgs fish oil for blood thinning properties","Have taken Flecainide 2 X 100mg worked for about 3 weeks. Had a whole 17 days free from Afib. Disopyramide didnt do anything at all except for the water retention.Made we feel worse if anything. No side effects from Flecainide","Went in to have my Hiatus Hernia repaired, doctor told me he had cured 2 patients of AFib by repairing their Hiatus Hernias. This operation did nothing because my Hernia was to small at 50mm.I believe it has to be above the 70mm mark. This Dr, said it was a well known fact that large HHernias can cause AFib. Mind u the Operation seemed to work for 9 days or so. But all symptoms are back now even the Gerd type ones and pains in stomach which generally conincide with an attack.","EP study on Sept6th 2001 at St.Georges London to see if they can come up with anything. Had ablation on Sep 6th at London Heart Hospital,this cured my flutter, but at the moment I am worse off, Afib every day,ectopics all day no rest from it not like before,at least I had 3 to 6 days free of this cursed ailment.Will hopefully go back for 2nd attempt once Holter Monitor readings have been looked at.","Dont think I will ever take Amiadorone. If this condition gets unbearable would consider the MAZE to get my life back. Would give ablation a go if I have the correct type of arrythmia. Would try pacemaker etc.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,0,1,0,0,1,1,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "BBH","Manitoba, Canada","49","Atrial Fibulation","12 weeks","Constant","Constant","Constant","Non smoker, occasional glass of wine. Overweight. In good health prior to A Fib. condition","No energy.Short of breath when doing light to moderate work. Tightness of chest.Light headed when bending over or getting up from chair.","","","Centrum Protegra. Coumadine. Gemfibrozil. Metoprolol Tartrate.","Amiodarone","Cadioversion. Failed.","Hope to get this under contol ASAP.","Waiting for results of Echocardiogram to find out why? Found out that I have Cardiomyopathy.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "robby w","Weaverville, NC","37","atrial fibrillation","5","continuous","continuous","My father has afib and was hospitilized in 1996. After making a call to the hospital to check on him, I stood up, and at that moment I noticed something strange happening in my chest. One hour later, I was diagnosed with afib.","good health; non-smoker; non-drinker","For the past 10 months I have been in chronic afib. During this time I have been hospitilized twice to try new medications (sotalol, dofetilide). Neither of these was successful. I have had two cardioversions as well during that time period.","I can't seem to attribute these episodes to anything in particular.","none to my knowledge","dofetilide (tikosyn)500 twice/day lanoxin coumadin no side effects that I can tell","sotalol flecainide norpace lanoxin coumadin","none","I have an appointment with my cardiologist to discuss the possibility of cathater ablation.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "anon","USA","50 (1951)","Chronic Atrial Fibrillation/Arterial Schlerosis/CHF","first episode occured in 1986","none in last two years/3-5 times a month prior to June 1999","30 seconds to several hours","Sudden Death Episode in March 1995","I had smoked for 30 years and had been a drinker of & on","stablized since June of 1999"," Excessive exertion,high stress,excitability"," Relaxation","Amioderone Norvasc lipitor coumadin Side effects= fatigue","","implantation of an ICD angioplasty x 7 replacement of ICD","continue under the medical supervision of my cardiologist and enjoy my Grandson, who I have the pleasure of taking care of M-Th with my wife. He will be four in August","My cardiologist has explained a-fib as an interruption of the hearts electrical sequence. He is unsure as to why it occurs and has used several different medications that were not successful at controlling my heart rhythm's. After four years of different meds and AICD shocks that are no fun at all, he hospitalized me and started me on Amioderone; At first, it didn't stop my a-fib and he subsequently tried using external paddles to convert me. When that didn't work he was very perplexed and talked of the possibility of performing an ablation to the node in the heart that controls the electrical impulses. I checked my-self out of the hospital and took my wife to Hawaii two days later as we were scheduled to go to Lanai' on a trip with our church. I converted to normal sinus-rhythm the first night there and i have stayed that way since.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,1,1,0,0,0,1,0 "andrew r","south florida","37","atrial fibulation","8","monthly","24 hr","excessive scuba diving, going up and down off the boat to fast","no smoker, casual drinker","afib more often then usual","Morning after heavy alcohol, eating, not eating on time then eating, constipation,bubbles in upper stomach lower chest, sometime triggers: Lifting my left out in front of me or holding my head down while standing, turning my head to the left","burping can stop afib from starting, sometimes taking magnesium and pottassium supplements, laying down stops the bubbles that bring on afib.","no medication, last cardioligist put me on digoxin but made afib worse","","jaw surgery at 23, back surgery at 35, ","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,1,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Ken Hunter","USA","54","AF","8","constant","constant","nothing About 20 years ago had an AF episode during a food poisoning incident","good, drink two glasses of wine per day four to five days aweek","in AF all the time, take digioxin and coumadin, not cured","None","","coumadin, digioxin, lipitor no side affects noticed expect thinner blood.","amiodarone - thyroid problems, loss of appetite, sleeplessness, vision sensitivity, urinary frequency, had to stop taking amiodarone due to thyroid malfunction. everything is fine since I stopped taking amiodarone","knee surgery about six months ago","Just live with it. My Dad had it for 20 years and did not die of it. My Mother also has had it for probably 15 years. Fortunately I can still exercise vigorously. I Mountain Bike and Road Bike but had to stop running due to knee surgery. However there is no question I don't have the energy I used to, don't know if due to the reduced cardio effeciency or aging.","See above",0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "redkat313","United States-Chicago, IL","50","atrial fibrillation and hypertension","2","3 or so a year","1/2 hr to 1 hr","I think it was from taking Metabolife","non smoker, very light drinker, high blood pressure","still get attacks","lying down or when I am sleeping ate large meal started walking on treadmill last 2 weeks","none","digoxin-none toprol xl-none xanax-none (for panic attacks that happen while attack in going on) zestoretic-for blood pressure-none","none","Had gall bladder removed a few years ago Had hysterctomy about 14 years ago","to try to figure out how to stop these attacks","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Bill","Pittsburgh","55","Atrial Fibrillation","just diagnosed but may have had brief episodes for several years.","Maybe every couple of months I'd feel my heart flutter","last one went on for about four days, may have went in and out, can't be sure","Was being treated for esophageal reflux, taking protonix 40mg for about 6 weeks prior to this.","No smoking, occasional drink but stopped that when I found out about the esophageal reflux. Had a kidney stone removed about a year ago.","Wondering what to do, what to expect.","I read some of the other profiles, some things seemed familiar. Lying in bed in certain positions, getting up to fast, maybe stress, maybe the heat. ","It's just been a few days since I found out I had atrial fib, haven't found any known preventions as of yet but I'd sure like to.","Protoxin 40mg for the esophageal reflux - I wondered if AF could be a side effect. Coumadin 5mg - just three doses so far - no side effects now Digitex .25mg - nothing for now","Codene - have had a problem breathing after taking this","Ear surgery back in 1966 Kidney stone removal in 2000","Stay on top of this and take it one day at a time, learn as much about this as I can.","I'm new to this and right now I don't know what to expect. I'm not sure if I should just go back to my normal schedule or just take it easy. I felt ok yesterday morning, so I worked some, was out in the heat a good bit and dealt with some stress. Later in the afternoon and evening I didn't feel well. Late last evening I guess I went into normal rhythm and was able to get to sleep. I think I'll try to take it easy today. I always thought I was in pretty good shape, but now I'm wondering. I don't look my age, have always had a heart rate in the 50 to 60 range, blood pressure sometimes up but mostly normal. I did well on the treadmill, they had to tell me when to stop, nothing showed up while I was doing the stress test. This is starting to make me feel old. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Robert","Pittsburgh PA USA","56","1996","5","Very Irregular[- 3 to 5/week","1 - 8 hrs","unknown","asthmatic, kidney stone - otherwise healthy, longtime runner including hundreds of 10Ks and 7 Marathons","holding my own - able to do most things most of the time - not a pleasant condition, but not getting worse","I wish I knew - I thought this might have developed from Asthma medication that preceeded this for two years. Eating may be related, but I can't isolate it. Sometimes a large meal may proceed it and sometimes not. Sometimes I have food with MSG and get AF shortly, but other times this doesn't happen. Same with caffeine, milk products, wheat products, alcohol, etc. Lying down and waking up also seem to aggrevate this. Maybe I have too many amalgam fillings, but my dentist has heard this theory for causing 20 serious ailments and nothing has ever been proven in a conclusive scientific study. Maybe I am low in Magnesium which is also cited as an Asthma cause, but I have never seen a conclusive set of studies on this either. Maybe... ","Beta Blockers (Lopressor) help get me back to normal rhythm, but too much also causes lite-headiness and short blackouts. Tambocor/Flecanide (Calcium Channel Blocker) seems to help too","200mg/day Tambocor 50mg/day Lopressor","","2 cardioversions (both helped for a short while), 1 flutter ablation","Keep studying, talking, and learning - Trying not to dwell on the problem and get on with life. EP thinks a full ablation or MAZE is too risky and thinks my next step is a pacemaker, but I am very reluctant. My cardiologists are brilliant, sincere people who try hard but just don't have a good solution right now. Keeping busy, lots of outdoor activities, and a positive attitude also seem to help. ","Anybody know of a convenient, reasonably priced, acurate device to measure the Afib/heart state[!] please let me know. Good luck to all who have this condition.. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,1,0,0,1,0 "Andrew","Australia","52","AF","3 years","Chronic","30-40 hours before reversion (cardioversion)","none","Great health, slight chest congestion (allergies) all my life","Chronic","Alcohol, stress, perhaps MSG, ","","Amiodarone (CORDARONE), Persantin, Tenormin","Sotalol, Tambacor, Flecinade, Rythmodene","None","Need help ","I am 52 years old, have been a health 'fanatic' all my life - extremely fit, healthy and disciplined. As a child I suffered some kind of rheumatic fever, then throughout my life I have been a highly allergic person to pollens, animals, straw, dust, feathers and certain foods (milk, MSG, some colorings and additives etc). I first started have heart 'flutters' about 3 years ago. My AF's have got worse as I have had more and more medications for the condition. I used to have them intermittantly now, now chronic ... meaning they are always there ... I can feel them currently 'beneath' the amiodarone I was put on 4 weeks ago. Have had 7x cardioversions in hospital since Xmas (6 months ago) and now it is suggested I have ablation therapy but I've yet to see any postings on the internet on any channel which yells success with this therapy - most say still need medication, many say had to have 2 or 3 and others say it didn't help at all. Would appreciate any comments from others.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Michael Reid","Jamestown, NC USA","57","Lone AF","15","2 or 3 times a month","approx 3 days","no major event","General health is very good","Active AF but feeling much better after struggle with Tambocor","stress heavy exercise alcohol/caffine","stress management beta blocker magnesium","Atenolol beta blocker once a day w/some fatigue Altace for blood pressure once a day no side effects Coumadin for coagulation control once a day no side effects ","Took Lanoxin (a digitalis) in concert with beta blocker for some time with some concern over slow heart rate. Took Tambocor on an as needed basis for about two years. When directions were to take it daily, I had a very severe reaction requiring emergency hospitilization. Since Tambocor has been cancelled, I am feeling a great deal better. My irregularity episodes are getting further apart and seem to be lasting a shorter time. I only have about six weeks of history without the Flecainide at this time. A fine drug if one can tolerate it, but BEWARE.","No cardiac related surgery. ","Stress management. Continue zero caffine and significantly reduced alcohol. When in normal sinus rhythm, I intend to get in as good a physical shape as possible. I would like to look into alternative (diets or supplements?) treatment. If condition worsens, I would look favorably into ablation or maze surgery.","The medicinal treatment of AF is an evolving process and in itself is an inexact science. Pay very close attention to the drugs being prescribed. Force yourself to understand the possible adverse reactions. Question your physician completely on symptoms you should look out for and be certain to report them in detail and MOST importantly get a response from your physician that he is aware of the symptoms you have reported.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "peter","london","56","afib","eight","until two years ago twice annually.Then every two months","20 -30 hours","acute stress"," good but hypertension also diagnosed last year for first time","on Amioderone 100mg a day.Zestoretic 10mg for Hypertension . seem well and under control.Absulutely no side effects.I was on flecanide first and had very severe allergic reaction to it.My specialist doesnt want to see me unless the six monthly xrays and","Definitely alcohol and or caffeine.Sometimes exhaustion,not from exercise though.Sugar in big doses.","Avoiding more than 2/3 units alcohol daily.Avoiding caffeine totally.Taking sleeping pills to control insomnia.","See above","see above","none recommended unless I break through medication,in which case two specialists seem to prefer a pacemaker to ablation","Hold tight till the miracle cure arrives.","I was very frightened last year particularly at the risk of side effects from amioderone.Now I am comforted by the 6 month checks I am living a normal busy existence pretty happily.",1,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Joe","Dallas, Tx","51","AF from hypertropic cardiomyopathy","13","Perm at this time","perm","none","Have sleep apnea","in perm A-fib","It does it whenever it damn pleases.","None","Tikosyn, wafarin. No sides noted","Amioderone - breathing problems Rthymol- fatique Norpace- liver problems Betapace - stomach problems didn't work Quinidine - stomach upset tiazac - fliud retention inderal - dizzyness ","None","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "msgander","California, USA","58 will be 59 on 9-1","atrial fibrillation, hypertension, mitral valve prolapse, sleep apnea","AF began about 10 yrs. ago, heart murmur (mvp?) 45 yrs. ago, hprtnsn 3 yrs., apnea many yrs. diagnosed about 1986","Daily beginning in April 01, now every other day - prior to this very sporadic, maybe twice a year or sometimes 0 per yr.","18 hours or so","Old college roommate reunion drank champagne over 3 days & had coffeee in the am. Was drinking champagne when first episode hit. I stopped drinking & took a muscle relaxant Flexeril & they stopped in about 2 hrs.","Excellent. I seldom drink, but alcohol has always had an odd effect on me. At 21 yrs. can remember my heart pounding at 2 :00 or 3:00 a.m.","I'm fine except for AF. I conduct my very physical business even while in AF. I try not to let it interfere with my life. I miss the occasional glass of wine with friends & family. I've recently lost 10 lbs. & am slowly beginning my walks again","Alcohol, coffee, sugar, working too hard, then unable to sleep, continuing hard physical work and becoming more & more tired. Resting after a meal, almost asleep & they hit. Also while eating, after eating, skipping a meal or two then eating always triggers an episode. Eating or not eating is always a component.","Eat breakfast rather early, don't wait until 10:00 or 11:00. Get plenty of rest I think exercise, because the episodes only became worse after not exercising for a year and after a very bad bout of a virus which involved a lot of coughing and the stress of income tax time.","Toprol, Diovan, Premarin, Provera, 2 baby aspirin, and occasionally Flexeril for a back problem. I used to take Flexeril to prevent AF episodes, but don't do that now because it doesn't seem to have the effect on the episodes it used to. I believe if I'm overtired it helps me get a good night's sleep which is probably the reason I thought it worked. I was sometimes dizzy during episodes but the doc changed the way I was taking the Toprol & Diovan. The dizziness has disappeared.","Digoxin in emergency rm. cont'd for a couple of weeks before I left by GP & saw cardiologist who stopped it immediately. No side effects","None pertaining to the heart","Continue with my exercise program, and vitamin therapy. Work hard to maintain balance in my life with plenty of sleep & laughter. Reduce stress in my life and slowly wean myself away from the Toprol. Lose 20 to 30 lbs. and resume light weight training. ","After reading Hans Larsen's website, I'm so grateful I didn't see a doctor for 9 years because of the poor recommendations AFibbers receive for medications. I'm very grateful these episodes are not life threatening even though they can be uncomfortable. The discomfort was relieved greatly by the Toprol, the severity, even though it didn't stop them.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "anon","Midlands, UK","59","Lone Atrial Fibrillation","9","Two per month","2 to 16 hours","none","good, light drinker, occasional cigar","stable","Resting after excercise Relaxing after stressful event After eating or drinking At night while asleep GERD (diagnosed)","Verapamil seems to reduce severity of incidences but not frequency.","Verapamil Lansoprazole (for GERD control) Vitamins esp Magnesium Citrate No side effects","Soltalol No benefit No side effects","None","Watching for possible new therapies/procedures.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Hans George","Sydney Australia","54","Atrial fibrillation","8","every few days","2 to 4 days","none","good","on medication, nuisance only","strong coffee, large meals, fatty foods, chocolate","","Flecanide, no side effects: ","Amiodarone - didn't do anything; Rythmodan - didn't work very well","none","","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "GregM","Florida, USA","34","Lone A Fib.","3","monthly","2 to 14 days","Strenuous Exercise","Very good, no other health issues, 35lbs overweight","Chronic AFib","Exercise.","","Betapace, 480mg /day - no known side effects Coumadin, 5mg /day - no konwn side effects","Atenolol - slight fatique, non-effective. Flecainide - produced dangerous rythms.","None","Explore more triggers, ablations and magnesium treatments.","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Don Pendleton","United States","30","LAF","4","3 x year","average 8 hours","alcohol consumption","ex-smoker, underweight","sinus rhythm","stress (emotional, physical) alcohol, caffeine smoking more than usual not enough sleep exertion nerves","stress reduction, hydration (drinking water) plenty of rest... avoiding the triggers","none currently ","beta blockers in past left me fatigued/blurry headed digoxin...made me nervous/visual disturbances/shortness of breath","none major","stick to regimine of stress reduction/trigger avoidance. see my cardiologist for updates and try to stay positive through everything","a tough spell, very hard for me to adjust to the life changes but things could be worse.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Phil","Florida,USA","74","AFib","12","random","random","none","good","improved","rising too rapidly Extremely cold drinks mental stress [pressure]","regular habits and rest adequate sleep a strict de-caff diet lose weight and 30 minutes walking per day Take medicine EXACTLY as prescribed","sotolol [fatique] cardizem [fatique] lanoxin coumidin [MUST get ProTime on schedule]","amiodarone [medication of LAST resort] [side effects were unreal] Rythmol[not effective on me] Verapamil ","two ablations in 2000 [cured AFlutter 100%] Ablation in 2001 [helped AFib but still on meds]","Try control of AFib with minimum meds,weight loss and learning more and more about AFib","The existance is this AFib group has been of great assistance. Each AFibber is different and I will continue to follow more and more studies and new developments in the final solution of heart rate problems. Will also make myself available to pass along my personal experiences.",0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "JEREMY F.","PORTSMOUTH UK.","66.","ATRIAL FIBRILLATION","4 1/2 years","4 MAJOR ONES, BUT DAILY ATRIAL FLUTTERS","2-5 HRS.","NONE","VERY GOOD. non smoker","As of about march 2003 dramatically improved","SO FAR I HAVE ONLY DISCOVERED TEA,COFFE,ALCOHOL.AND I SUSPECT DIGESTIVE BISCUITES.SPICEY FOOD.","PLEASE LET ME KNOW IF YOU FIND SOME. ","2X 50MG FLECAINIDE PER DAY. 1X NEBIVOLOL PER DAY. jANUARY 2003 BEGAN THYROID TREATMENT FOR HYPOTHYROIDISM. NOW ON 2X 1/2 GRAIN ARMOUR THYROID TABLETS PER DAY. NO REAL SIDE AFFECTS, MAYBE A TREMBLY FEELING. BUT A HUGE IMPROVEMENT IN ENERGY AND WELL BEING","QUINAPRIL AND RAMAPRIL. NO SIDE EFFECTS. AMIODERONE AFTER 3 MONTHS. IFELT VERY ILL. MANY DAYS IN BED. BAD PALPITATIONS.THYROID GONE HYPER. 200 MG. SOLTALOL PER DAY. THIS ALSO MADE ME FEEL VERY WEAK AND UNWELL. IT WAS REDUCED TO 12OMG PER DAY. THIS HELPED.","NONE.","TO VISIT A NEW SPECIALIST IN SOUTHAMPTON.HIS FIELD IS ARRYTHMIAS.","I AM DISSAPOINTED AT THE LACK OF ADVICE THAT I HAVE BEEN GIVEN REGARDING MY CONDITION,AND WHAT I MIGHT EXPECT AND THIS HAS ADDED TO MY WORRIES AND CONCERNS FOR MYSELF. I AM ALSO UNDER THE IMPRESSION THAT MY HEART SPECIALIST IS AT A LOSS TO KNOW WHAT TO DO NEXT, HENCE MY APPOINTMENT FOR A SECOND OPINION. 11/03/04 IN JANUARY LAST YEAR I VISITED A THYROID SPECIALIST IN BIRMINGHAM U.K. HE SUSPECTED THAT MY BLOOD RESULTS ALTHOUGH APPARENTLY GOOD AS FAR AS RECOGNISED PARAMETERS WERE NOT SHOWING THE TRUE STORY. AFTER A FEW WEEKS ON SYNTHETIC THYROID, ALL TO NO AVAIL, HE PRESCRIBED ARMOUR THYROID.I NOW SEEM TO BE GETTING STRONGER ALL THE TIME AND FEEL ALMOST BACK TO NORMAL APART FROM THE ODD FLUTTER.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0 "Robert Verret","Lafayette, LA","46","Vagal AF","9","now, none","na","chronic magnesium delpletion, 1993","mild drinker, excellent health, coach and runner","on hold, Tambocor, 100 mg, TID","","","Tambocor Loss of Balance, stomach problems, but the stuff works","too many to mention, but have tried many","pacing study while undergoing angiogram. Results were good. Could not induce any aryhthmia.","Waiting on ablation, I pray every day","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Ray","Calgary","46","Atrial Fibrillation","14","Just went 4 years without episode - 1993 to 1996 - weekly - 87- 91 - monthly","04/01/01 - 36 hours, 12/15/95 - 5 days, - often 3 to 6 hours","Jogging - Treatment for TMJ - Jaw realignment","Very good, Never smoked, non- drinker","Very good - except for A-fib","Exhaustion, getting tired, alcohol, caffeine, low potassium levels - muscles spasms in back & neck and very sore spine, also assume stress - not sure type of stress - never experienced problems while racing sports cars or long distance sailing or running 5 to 7 miles - Sleeping & Watching sports ","- sleep 8 to 9 hours a day - eat a balanced diet - drink gatorade if exercising and eat a banana a day - absolutley no alcohol & caffeine","Rythmnol (SP)- Metallic taste - sleepy - Zotec - GERD problems","","Tonsils removed TMJ","Keep enjoying life - Life is a smorgasbord - Fight to not let A- fib get me down","With data bases such as this the medical community may find a link and eventually a cure. It's a terrible infliction and has had a severe impact on my life and on families life.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anonymous","Pasadena, California","33","Lone Atrial Fibrilation","2","Twice a year or so until recent upgrade to: Twice a week","1-2 minutes until upgrade to:Go to ER to stop episode status","None","Healthy mountain bike rider","Controlled through medication","Laying down to go to sleep. I am most definately of the Vagal type.","Keep running.","Twice a day of 100 mg Tambacor. No side effects noticed so far.","Atenolol. No effect, side or on the AFib. Cardizem. Again, no effect, side or on the AFib.","None","Continue with Tambacor. Consult with a specialist about other options and getting off drugs.","I have added a multi-vitamin, Fish Oil, and Magnesium to my diet. Beginning to think Magnesium deficiency was a factor.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "George","San Jose, Ca.","48","atrial fibrilation","2","lately about every 3 months (was every 2 weeks)","6 hrs upto 11 days","18 hr. workday, dehydrated","excellent, non-smoker,non-drinker","episodes lately every 3 mo.'s, this last one started 6 days ago.","not sure anymore. ??stress,caffeine,lack of sleep,dehydration, ??? Probably dehydration and/or caffiene. Lately I've had good results drinking a minimum of 1 gallon h2o / day. But last week went on a chocolate eating binge. Forgot to drink enough water on Sunday. Woke up Monday a.m. with afib.","none","atenolol 6-7 mg. once daily( about 1/4 of 25mg tab) (unless afib hits, then I go to 75 mg. while in afib) warfirin ","lopressor at e.r., The last time it didn't have any effect. Hence cardioversion. Digoxin a few times in e.r.","Appendectomy, tonsilectomy.","","Maybe I maxed out my heart rate too many times in my earlier years. I used to run in the hills. My heart rate would stay very high. I also used to use a rowing machine and stationary bicycle. I would sometimes keep my heart rate at 205 for 15-30 minutes every few days. Stupidity?",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Barbara","Bayonne, NJ USA","39","AFIB/SVTs","20","each episode more frequent and serious","sometimes days","Enlarged Heart, Pericarditis, Pneomonia","Recovering Alcoholic/Addict - 15 yrs","New Jersey","Stress, most episodes occurred while sleeping, would wake up. some occurred while resting.","Meds didn't even work ","Absolutely none, since ablation in November 2000","Solatol, and others, but some made me feel jittery, others no libido etc. Still had episodes","Had Catherization and EP Study in November, found 2 short circuits, ablated and wallah no more meds so far.","Live a healthy normal life without afib, svts god willing.","Don't wait to get EP study. I switch cardiologist and he said I was way too young to go through this and he suggested EP and ablation. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "George K.","Kailua, Hawaii","42","a-fib","22","Small ones-daily.Prolonged ones, twice in 4 years","30 hours","During a swim team workout in college","good health, drink wine and have a cigar 2x a month","just came out of a-fib 1 week ago, converted chemicaly","Heavy workouts Stress Drinking cold liquids","","Ecotrin 1x per day Procanbid (Procainamide) 1000mg 2x per day.This drug has given me insomnia for the first time in my life. I used to be a a very heavy sleeper but no more!","I was on a beta-blocker that slowed my normal heart rate of 56-63 bpm down to 32 bpm and was taken off it after 2 days","None","Continue to Exercise ( running,weights etc). I drink wine now instead of beer.I hope to find a drug that will perform better for me.","I first had a-fib as a college athlete (swimming,water polo).The doctors said not to worry that lots of people have it. I could usualy convert myself back by bending over or scrunching up into a ball( if I was in the water).. At age 36 I had my first prolonged case of a-fib which lasted for 30 hours and was converted by a procainamide drip. My most recent bout was 1 week ago (4/01) with the same duration and outcome. I no longer swim in the ocean or surf by myself. I am unable to give up my morning coffee and my evening wine.I belive that I will beat this because I am INDESTRUCTABLE!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jane Gurney","Loughborough U.K.","48","Cronic A.F.","13","now cronic","all the time","Party lots of alcohol and smoking"," Exellent but out of condition, now non- drinker, non- smoker non- excerciser ! mild hayfever .","Pacemaker controls palpitations, now need new one, do get very weary now,","I'm in cronic A'F .But it some times seems to fibrillate 2-3 times 'faster' than my 'normal'. Triggers on these occasions are, hunger, eating too much, tiredness, my heart positively HATES adrenalin, monthly hormonal cycle, alcohol, (darn't have one sip) nicotine.","Once it starts, I take 100mg Metoprolol, that works most times,(thats every day) If it kicks in late et night, I take another 50-100mg metoprolol, that works eventually! meaning, I wake in the morning and it's gone! What has worked more than anything is having this *!*!* illness for 13 years! you sort of, almost get used to it, in other words, the power of positive thought,whilst it doesn't exactly prevent an episode, doesn't exacerbate it either.","Metoprolol and Asprin. I self medicate the metoprolol, in that I only take it once symptoms have kicked in.So some days, I 'only' take 100mg, other 'bad' days, 150-200mg.Aspirin= 75mg per day. Side effects of metoprolol is to make me very, very fatiqued about an hour after taking it. I yawn and yawn my head off! My eyes feel like someone threw powder in them they're so dry. Then that wears off and I'm back to 'my' normal.(?)","Over last ten years, cardiologist tried loads of different drugs. I did'nt memorize names, but none worked for long. Finished up on amioderone, but did'nt want that for possibly 35-40 more years, so stopped that and had a pacemaker and ablation.","Just ablation and pacemaker 7 years ago. It's lifespan is almost over now, so I'll have to have a new one in next twelve months. ","After next pacemaker.which I'm hoping is even better than this one, I want to lose weight and excercise, and resemble Jane Fonda! Up to now,attitude has been, 'why bother' if I'm going to drop dead perhaps with the next 'attack' of A.F.Now I don't think I will drop dead with A.F (thanks entirely to finding A.F web-sites) and feel optimistic about a future,(like having one!)I want to plant my saplings and watch them grow... Not to mention my six sons growing as well!!! To be calm, be happy, have a life..."," If life on earth is a test we A.Fibbers are sorely tested! A friend of mine died of some thing grim recently, but I did'nt, I'm still here, so I'm actually the lucky one, I only got A.F!!!! Long term ,(within 5 years max) I'll have Maze. And try and teach myself to be strong when my 'double' A.F has kicked in!!",0,1,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,1,1,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "anon","California, US","64","2000","1","2 x per week","2-60 hours","none","excellent no smoking, little alcohol","moderate","wine large meals at night emotional distress","none","Rythmol no side effects warfarin no side effects","none","none","research surgery","can function with af ok. Rythmol not very effective.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Tom","Perth , Western Australia","71","Paroxysmal Atrial Fibrillation","Twelve years","Originally every six months , gradually increasing to current approx eight day cycle","From about twelve hours to about thirty six hours . Mostly about eighteen hours","Over exertion in a swimming pool","Other than PAF very well and fit . Five years ago had angioplasty and stent for blocked RCA .","Lifestyle very restricted by AF . For instance I am now anxious about travelling long distances","More than one glass of wine . Fatigue . Most common trigger is NO trigger . Nearly always occurs when I am sitting down in front of Telly in the evening or soon after lying down in bed . ","It seems that when I am due for an episode nothing on earth will prevent it .","One half an aspirin . My cardiologist is not in favour of warfarin / coumadin for me and does not want me on amiodarone or any other anti-arrthythmic .I am also on 10mg per day of Tritace or Ramipril ( Hope Trial ) and 10mg per day Pravachol to keep blood lipid profile acceptable' ","Have tried magnesium and a host of other vitamin supplements . All to no avail .","Five years ago angioplasty and stent for blocked right coronary artery .","Am not emotionally ready for Cox Maze 3 . Believe that Ablation of Pulmonary veins is my best bet . However am concerned that at the present time the risk of a pulmonary stenosis may be too high . Am watching out for advances in cryoablation with diminished risk of a stenosis . ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "tuuliaus","usa","55","AF","3","3-4 per month","4-12 hours","valve repair","good, non-smoker, non-drinker","in limbo","caffeine, alcohol, stress, exhaustion","not known","dofetilide, no side effects cardizem","amiodarone sotalol disopyramide","open-heart surgery","dont know","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,1,1,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "sharon bollinger","el paso, tx","63","AFib","4","daily","a few seconds to a couple of hours","had just begun rehabilitation exercise program","good health, no bad habits","still getting episodes","nothing I can identify","sleep on right side, take a deep breath or two","toprol makes me very tired, blood pressure goes very low","verapamil and tiazac (sp) both made me extremely listless and tired","hysterectomy in 1971","go off of toprol and wait for a cure","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,1,0,0,1,0,1,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,1 "Kevin F","Byron Bay, Australia","52","paroxsysmal AF","16","Several each month","minutes to weeks","","General health is only ok. Hiatal hernia with active ulcerative oesophagitis","","Late nights, large meals, tight waistbands!, excitement (usually not stress) Got a lot worse when I developed thyrotoxicosis from taking Amiodarone","I've never found anything","Cartia (aspirin 100mg/day)","Amiodarone - did a pretty good job until it caused thyrotoxicosis Digoxin - very low pulse rate (mid thirties) and nausea Sotalol - 2nd period on this drug, too many side-effects to list but mainly digestive problems and light-headedness Zantac - for hiatel hernia. Really made me feel lousy Isoptin SR (Verapamil) (120mg/day)- seemed good at first but when the AF really kicked in, it was useless Flecainide - re-tried it after several years - ok for a couple of days, then it dropped my pulse rate so low I couldn't walk. Rythmodan + sotalol - only a slight help ","Failed AF ablation in 1994 AV Node Ablation and pacemaker in Sep 2001","Any comments to kforge@mantissaconsulting.com.au","I was fiited with a dual-chamber pacemaker in August 2001 after the AF became too unstable. Nearly 3 years on, the pacemaker has improved my life immeasurably BUT I have only in the last few months started to feel really WELL again after suffering the effects of long-term medication (in particular Amiodarone). BE VERY CAREFUL WITH AMIODARONE. PREVIOUS HISTORY - For years I have not been able to tolerate vitamin c or citrus juices early in the morning and have had problems with my disgestive system - all the doctors I have seen, have said there is no connection with AF - I'm convinced there is and it's interesting how many other people on this database have similar views. I saw a doctor in Aug 2001 who diagnosed me as insulin resistant and thought he could help the AF through diet, as he had other patients. Unfortunately, my AF became too unstable (ie impossible to live with) so I was not able to conclude his program.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0 "Joan","United States","67","Atrial Fibrillations & Idiopathic Hypertrophic Subaortic Stenosis","20","getting worse the older I get......Last two years about 12 times","1-5 days. Needing zapping (cardioversion)-electric shock","NONE","The heart problem is my big problem. Never know WHEN!!!","still hoping one day to be cured. Live with it daily!","I do not smoke or drink, I do not have caffeine, I do not do anything at all to make these episodes come on. Most of the time it is at night. I am reading in bed, or watching TV or listening to music. I know the minute it starts and feel every single beat from my heart. It does a job on my confidence and I feel as though a hammer were over my head waiting to fall.","I am on all sorts of medication and nothing helps. I have been ablated, cardioverted and waiting for something new TO CURE ME.","ateninol,calan sr,coumadin, corderone. I am always tired and have very little strength especially in the afternoon and at night..........","Who remembers. Nothing has ever done it for more than a few years and the older I get the worse and more stubborn it gets.","2 ablations, 6 cardioversions.....","Try to go on with my life and not let this make me depressed but I am afraid to go away travelling or too far from my doctors and or hospital.......","This is a terrible thing to live with and I do not think that the medical profession is doing enough for all the millioins of people that have it, some worse than others. HELP!!!!!!",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "Dale from Arizona","Tucson, Arizona, USA","44","ideological proxysmal atrial fibrillation, et al","4","varies","varies","myalgic encephalomyelitis, contracted in 1983","disabled with myalgic encephalomyelitis","varies","stormy or damp weather, drinking water, drinking salty water","not certain","Sotalol, Lanoxin, Coumadin / uncertain","Rythmol, Toprol / uncertain","2-stage pacemaker installed","I am studying my numerous health problems and trying to understand how they all relate to each other and hoping to identify a root cause.","Personal website: http://flashpages.prodigy.net/welearn/index.html ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0 "Jam","Lyles, TN USA","39","afib","2","4-6 wks","1-36 hrs","none","well enough","not in afib, but terribly, terribly tired","Sour stuff. My son gave me a candy called 'warheads' that was so unbelievably sour it shot me right into afib. He laughed until he realized I was sick...","None I am aware of.","amiodarone aspirin","Have tried Caridzem (no side effects, but then no discernable afib effect either) Sotalol (no discernable afib effect, left me drained) Digoxin (ditto) and Rhythmol (ditto, plus it made everything I ate or drank taste like it was liberally coated with powdered aluminium.) Now taking Amiodarone, no known side effects yet.","Nothing for the heart...yet. Did have an attempted ablation, unsuccessful, but I don't consider that 'surgery', more of a 'procedure'.","Wring as much fun as I can out of life.","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "John Codling","Holborn London UK","49","Paroxsymal AF","6 year","more than 5 times a week","2 -24hrs","none","asthmatic","coping","stress, excitment","walking","Dofetilide side effect anxity bad excema","every single medication with the exception of Beta blokers","Hearnia repair, rhino plasty","Try for an ablation","This is an awful condition. The medical establiment will have to reconise this and start treating the patientand not keep telling you this is a minor conditon. its thrown my life upside down.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "Af 33","Japan (US citizen)","1968","Atrial Fibrilation, Atrial Flutter, and previouosly had WPW (eliminated by RF ablation 1990)","12 (not including WPW)","Usually 1/day, although I occasionally go a week without noticing anything.","A single skipped beat, to episodes that last 1 week","WPW.","Never have been smoker or drinker, and I limit my caffeine intake. I am athletic and doctors haven't found any irregularities with the structure of my heart.","Fine. However, my AF has gradually but steadily gotten worse over the past 10 years. Had a cathether ablation for AF (line-block tricuspid valve) but nothing changed","strenuous physical exertion, mental stress, lack of sleep, lack of food","Sleeping a lot (8-9 hours/day) helps","Atenolol (Tenormin) --> Low blood pressure and slow heart rate. Flecainide (Tambacor)--> Not sure what to think of this drug because it triggers AF much of the time. (Yes I have read the book 'Deadly Medicine.' ) I am hoping the benefits outweigh the risks. I take aspirin for its (possible) blood-thinning properties","Cibenzoline and Sun Rhythm (a drug made by Suntory in Japan that is probably similar to Cibenzoline ?). Both triggered AF. I also took a whole lot of digoxin when I had WPW. ","EP study 1990 WPW ablation 1990 EP study 1990 EP study 1992 AF ablation 1999","I plan to enjoy myself and be thankful for what I've got. ","1) I would be interested to know other people's occupations. I myself am an 9am-7pm office worker, but think a more flexible schedule would be better for me and my AF. 2) The lack of consensus among doctors and medical research about the causes and best treatments for AF makes it difficult for us patients to make decisions. I think your database may provide important information that will serve as a guide when we are faced with tough decisions. Thank you. 3)Trivia: There is a correlation between WPW and people with long limbs. For example, if you hold your arms out horizontally this 'armspan' is normally equal to your height, but WPW patients tend to have greater armspan than height. (Thus WPW is relatively common among basketball players.) Does anyone know if there is any similar data about AF patients? 4) Media: There was an interesting (1 page) article about Larry Bird a few years ago in Sports Illustrated (Referenced at: http://sportsillustrated.cnn.com/basketball/nba/news/1999/09/01/bird_heart/) Among other things the article describes how Bird played pro basketball with AF. His AF always became more severe in the off season when he wasn't exercising as hard. ",0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,1,0 "Bob Andrews","Los Angeles, California","58","atrial fibrilation","1","daily","5sec or less","","","","","","","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Dolores Uhri","Ridgefield, Washington","76","Chronic Afib","2 yrs.","2 - 3 times per year before becoming chronic","1-2 hours","","Former smoker, occas. drink small quantity","Currently in NSR","Sulfites in food or wine, MSG, excessive caffeine, more than 2 or 3 drinks followed by a big meal.","","Tikosyn (dofetilide) since 11/2000 which converted me to NSR after only 2 capsules in hosp. No apparent side effects, but who knows long term effects. I continue to take coumadin, lasix, dieuretic, potassium, lotensin and atenolol, plus premarin, vioxx, and various vitamins. No clearly apparent side effects.","Listed above. The only thing changed is the addition of the lotensin for my blood pressure and the reduction of the atenolol from 100 mg. to 25 mg. per day, when I converted to NSR.","Hysterectomy 30 years ago, plus minor procedures not requiring major operation.","To continue on the Tikosyn as long as I remain in good health and in NSR - and as long as I can afford it - it's expensive!!! Along with the other meds I take, my pharmacy bills are breaking me up in business!","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1 "Steve T","Menlo Park, CA","51","Afib","diagnosed November 2000","4 per month","10 minutes to 8 hours","None","Also","Managing","Unknown. Too new to AF to have this figured out, but symptoms are most likely to appear in the morning within 1 hour of rising.","meditation","AM dilacor xr 240 mg digoxin .25 mg PM coumadin 5 mg Tiazac (dilacor) 120mg digoxin .25 mg Fatigue","Lopressor - fatigue","none","watchful waiting","None at the moment",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "gle74","Chester, WV","49","Atrial Fib","4","every 4- 8 weeks","10-24 hours","indigestion","good overall health, allergies","still experimenting","indigestion,gas,bloating constipation,usually during or follwing meals, low blood pressure, prolonged bending or stooping, lifting heavy objects, laying flat, bouncing up and down (riding a tractor), standing up or bending down quickly. ","Eat smaller more frequent meals, stay away from gas producing foods, try not to stoop to often","I have tried several different medications. None seemed to work. Went to a specialist in Pittsburgh and he took me of off all meds even aspirin. Said it wasn't helping so why take them. He was correct it didn't have any effect. After a-fib begins, 1 hour after I take 120 mg of fast acting generic cardizan tablet(diltiazim). 60 mg every 4 to 6 hours there after until conversion. If I don't convert in 24 hours I must go to the hospital for observation. I have converted 15 out of the last 18 times in 3 years.","toporol-tired betapase-light headed ","gall bladder no heart surgery","I am going to try keep changing my life style until I run across something that will help keep me out of a-fib.","I am convinced that this has something to do with eating or the digestive process. My doctors say that there is no research that they have heard about to support my theory. I have lost 75 pounds and completely changed my life style. I never indulged in acohol and now stay away from caffine. It hasn't helped my A-Fib but I feel better when not in A-Fib than I did before.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "R. Baldwin","Pittsburgh, PA","37","atrial fibrulation","6","6 in 6 yrs (4 long, 2 short). 3 yrs between last major ones","Small ones are less than minute. Long ones are usually 24 to 60 hours.","Stress, eating heavy late at night. Palp's with standing quick/laying wrong.","Non smoker, occasional beer drinker.","In episode, waiting to convert on own as in past.","I can not say that I have known triggers, however, I have had minor Afib (less than 1 minute) triggerd by standing to quick, laying or sitting up to quick. Common link between my 4 major episodes has been overindulding food before bed, stress (combined work with home), bloated feeling or water retention before bed.","On short episodes (less than 1 minute): calming myself or forcing burp, cough or compression of chest.","Toprol XL (no side effects). Take Verapomil when in Afib only (works well to slow heart and take away annoying Afib feeling, i.e., makes you feel normal unless you check your pulse to find it is still there).","N/A","None","After reading others with late eating symtoms I am going to stop. Also stay away from high salt food at night(Chinese). I will discuss with my doctor possible connections with vagus nerve. ","Email any new discoveries. It seems like a lot of people suffer, I don't understand why someone doesn't dedicate the time to find a common link and cure (maybe triggers to vagus nerve are common?)",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Richard","Milpitas California","65","AF/bradycardia","4","none in 13 months","15 minutes to 2 hours","none","healthy","bradycardia","Had gall bladder removed in March 2002. Once it was removed a persistant rumble in my chest was gone and the incidence of afib went from three to five times a week to one or two times a month. Since the operation, I will go into AF if I do not warm up carefully before exercise, but the AF stops as soon as stop exercising.","Previously found I had spasms in the early morning which would often trigger AF. Learned that increasing my salt intake and taking a few salt pills before sleeping prevents this. Previous trigger was yawning. Learned if that exercise of an adaquate level for at least three out of ever four day will prevent AF. Have been AF free for 13 months. ","","Coumadin - After taking coumadin for two weeks I had a rash over a third of my body, and dizziness to the point I had to stop taking it. Had pacemaker installed in september of 2001 for Bradycardia. My rest heart rate is in the mid forties in the day and goes ito the thirties while I sleep. It is asymptomatic. After I had my gall bladder removed I found that the active tracking of heart rate by the pacemaker was causing contention with my natural heart rhythm when my heart rate was slowing after exercise. Had my cardiologist turn off this function and the contention is gone. I still experience contention if I exercise where my heart rate is approximately at the base rate set in the pacemaker. I believe it is causing more problems I might not have without it.","Pacemaker in September of 2001 Laparoscopic gall bladder removal in March 2002","At some point I will experiment with dropping the exercise routine and see if the AF returns. "," I have not been very happy with any of the cardiologist I have seen and I believe that the AF symptom I have is the result of a condition other than whatever they seem to want to treat me for.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "PaulB","Columbia, SC","50","Atrial Fibrillation","4","once a year originally, now daily","Full time","None specific; significant stress and regular international travel suspected","Excellent; some allergies, Hypertension, high cholesterol","In constant AFIB","Stress, alcohol, caffeine","Amiodarone 100mg/day worked for 2 years. Advised by two new physicians to get off due to side effects. ","Cardizem 120mg Coumadin, no known side effects Xyrtek no known side effects Lipitor, no known side effects Tapazole (for Thyroid)","Amiodarone, none visible; significant sun sensitivity e.g. stay out of the sun or load up with sun block. Caused Thyroid damage BetaPace AF; did not work, and caused fatique Digoxin; couldn't effectively function; Heart rate of 40, unable to speak effectively","None Two cardioversions Cardiac catherization","Another Cardioversion, wait for ablation to improve success rate","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,0,0,1,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Ella","BC Canada","63","LAF","12","weekly now","2 - 12 hours","toxic overload, paint fumes ect.","good health, smoker, non drinker","anxiety and agoraphobia, from too many afib episodes outside (HBM 300+)","MSG, Nitrate, Gluten, any chemicals ingested of from fumes ie. household cleaners, pestisides, perfumes ect. and on and on and on..... and stress is a major trigger","stay calm with deep and slow breathing, and stay away from triggers. I have found taking extra magnesium helps shorten the duration of episodes","Alprazolam (Xanax) for anxiety side effect confusion and memory loss","Rythmol, worked for 2 years and then made it worse, would get afib after taking tablet; Verapamil. Lanoxin/ lost 16 pounds in 3 weeks, and turned zombie like Sotalol/ tired and confused, after a year increased frequencies of AFib attacks, took 10 days to wean of them. took 2 tablets of Amioderone and trembled for 3 days.","none","under care of Naturopathic Doctor, looking for virus in nervous system","went for ablation, but no extra pathways was found. Cardiologist suggested pacemaker, but I chickened out. I take fish oils/ flax oils/ kyolic garlic/ gingko biloba instead of warfarin. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Diann P.","NSW, Australia","(birth date): 25 Nov. 1949","permanent (chronic) atrial fibrillation","permanent started 9. 01. 2 1/2 years paraxsysmol","permanent now"," constant","Heart damage from rheumatic fever; lupus","It was good before the afib. I don't drink or smoke or drink coffee.","challenging","very cold drinks ice cream Don't have to worry about these now because my heart is in permanent af.","","Metoprolol 300mg a day; digoxin 250mg a day Warfarin dosage varies sometimes 12mg a day. Sometimes only 10mg. ","Verapamil SR Sotalol 80mg twice a day. Three times a day for a brief period. Made me more tired and more depressed than twice a day. lanoxin (digoxin) Took this from 1982 til 1998. It was supposed to stop the extra heart beats I had. Didn't really do this.","Open heart surgery 1982 to repair the mitral valve. EPS was done in May 2001. They couldn't find anything they could ablate. They did find that I had 'dual retrograde AV nodal pathways'. But these could not be made to induce SVT.","To get well or at least manage this Afib","This is a very challenging health situation. I don't like it. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1 "Angie","Washington, USA","27","lone prox. af","unknown, many","40 times a day","several minues - up to two days","diagnosed after ablation for SVT","X-smoker (2 years) recovering alcoholic (5 years) kidney stones 3X","reaching for MAZE","any exertion including but not limited to: aerobics, exercise, walking, lifting, showering, raising my arms above my head brushing my hair, carying my daughter, getting out of bed, sex, stress, shopping","don't do anything or feel anything, quietly","none","beta blockers - HR of 40 or less per minute, calcium channel blockers, you name it! Verapamil, Digoxin, Cardizem, Flecainide, Rhythmol (terrible 'food poisoning' like symptoms after only 3 days on medicine - gone 12 hours after stopping)just to name a few. I get really lethargic and depressive on many of the meds I have been put on, and they don't usually do anything at all for my rhythm. ","","Striving towards the MAZE","",0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,1,1,1,1,1,1,0,0,0,0,0,0,0,0,0,1,0,1,0,1 "Richard Burr","Dover, DE USA","55","Paroxysmal A-Fib","5","Daily","Ten Minutes - Eight Hours","Drank heavily at a party.","Good","Ablated at Hopkins 10/28/03. As of 6/3/04 off all meds & in NSR. It Worked!","I wish I knew... Everytime I think I've found one it turns out not to be. Stopped Caffine & Alcohol for the most part. Large meals sometimes trigger it. 7/01 Seems to run a pattern of mild for a few weeks than one - three days of more severe in length and strength then back to the mild tolerable daily episodes.","Ablation! It works, if done by an experienced competent EP.","Diltiazem 240mg x1...(For rate control) Just started Tambocor 100mg x2. No side effects so far. Now on 150mg x2. and 240 Diltiazem. No major side effects. Helped to moderate severity and length of episodes so far.","Diltiazem - No Sides Effects Atenolol - Tired, didn't like how I felt. Some sexual disfunction. Stopped it. then went on Rythmol. Rythmol - No side effects except metallic taste in mouth. Worked for a short time, then didn't help. Actually was better off without it. History of surgery None ","None","Saw Dr Marchlinski at U of P to talk about RFA. He said to wait a year and they should be further along with the proceedure. Claims a 60 - 65% success rate currently and hopes to improve that as time goes on. My insurance won't cover it so I want a better chance of success before laying out the big bucks. My goal is to find a med that works for me with minimumal side effects until the RFA is proven more effective. Tikosyn is the next drug I will try if the Tambocor doesn't work.","I am an active Scuba Diver (every weekend during the season) and I've been lucky enough that my A-Fib hasn't slowed me down so far. I want to keep it in check so I can continue to dive for many years to come. 90% of my episodes occur after 6:00 PM. 7/01 Seems that the ablation isn't what they thought it was going to be! Still no closer than they were a year ago... Same BS....another year.... Heard that for three years now! 11/28/03 - Had an Ablation (Pappone Method) at Hopkins ( Dr Hugh Caulkins) One month and not a single event. Couldn't be happier. He's claiming a success rate in the low 80% range since he switched to this method. Seems much better than focal point ablation. Extremely low rate of complication. Almost no stenosis as they don't ablate inside the pulminary veins. Going next week for follow-up and hope to start the process of weaning off all the meds. 6/3/04 - Still in NSR. Off all meds for four months. Ablation worked! No side effects. Not even a blip. Drink socially with no ill efffects. Still don't drink coffee... Just Decafe.",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Dave Martinson","Seattle, Washington USA","54 Jun/2/1947","atrial flutter/atrial fibrillation","4","1 every 2 months","usually 48hrs.+","none","excellent","much better since I quit taking lanoxin","digestive problems. usually proceded by belching and gas.","currently using digestive enzymes. Helping a great deal.","None","lanoxin. Helped at first and then made the symptoms much more frequent. Read Han's afib report and the BB board and stopped the lanoxin. That was a good move.","Minor rectal surgery. 1995","Closely monitor the Afib board. The drugs scare me more than the afib.","Thanks for all your efforts. It is truly appreciated.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bob Potocki","Michigan","52","A-Fib","3","continuous","continuous","","OK","Controlled","Caffene Alcohol Stress","","Tambocor Cardizem Aspirin Coumadin","amiodarone Rythmol Betapace","2 ablations","","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "bevkus","U.S.","47","Afib","14","Varies greatly. Atleast once a week","2 to 3 days","hysterectomy","fair. Arthritus, migraines, no caffiene, no alcohol, no smoking","not cured, depressed with the whole thing","none","none","none. ","There are to many to remember. The doctors tried all kinds of available medicines. Either they didn't work or the side effects were unbearable. The latest one was Amioderone. That didn't work either. In fact I think it made it worse.","March 1991-cardiac ablation which failed, and a single chamber pacer installed. May 1991-Another cardiac ablation witch failed and a dual chamber pacer installed. November 1998-Pacer was changed.","unknown","I am trying to get information on what is new out there. If I can find something to take to the doctor, maybe we can try something different. I really don't have much hope of finding anything with the way my chemistry works.",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,1 "Dick S","Titusville FL USA","55","atrial fibrillation and atrial flutter","7","3 to 4 times daily for 1.5 weeks then 0 per day for one week","several hours of palpations. Very rapid about 2 to 4 hours","Just sitting there. Next one I had swum for 1.5 hrs, then done yard work","Type 2 diabetic, insulin needed. High blood pressure","Doctors didn't do much. Got worse this fall. Went to new cardiologist who prescribed tambocor/flecainide. AF became atrial flutter. Referred to cardiac electrophysiologist. Just had a catheter ablation on Feb 20, 2001, Flutter stopped, AF flec. control","Exercise, eating, prone position especially on stomach, ice water, ","None until started flecainide and, now, catheter ablation to stop atrial flutter","Flecainide (Tambocor). Side effect - blurred peripheral vision starting 1 hour after taking and lasting for 2 or more hours","Heart rate control medications - lanoxin, cardizem","Catheter ablation (EPS - electrophysiology study) by a pretty neat heart imaging device by ... damn I can't remember. Get back to you on this.","Wait and hope AF and atrial flutter were related. Wait to see if catheter ablation on atrial flutter controls the problem. Lower dosage of tambocor to see if AF returns, then increase dose until controlled. Get off of coumadin/warfarin if AF and atrial flutter stay in control? Try other AF controlling drugs if/when tambocor stops working.","I'm typed out.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,1,0,0,0,1,1,0,0,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "John Ryan","London UK","48","lone paroxysmal atrial fibrillation","6","daily","1 hour","Stress","light drinker","controlled","digestive problems stress caffeine monosodium glutemate","water intake valsalver manouver not mixing proteins for breakfast detox routines","warfarin - none lisinopril - none amiodarone - none","flecainide acetate - none dogoxin - none","cardiovesion x 3 radiofrequency ablation - cured flutter but not fibrillation","non-invasive maze procedure when available","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,1,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,1,0 "John Sieber","Houston, TX","Born 10 Oct 26","Atrial fibrilation","First diagnosed in 1994","Lately, 5 to 9 days between episodes","5 to 76 hours","None","Respiratory allergies, prostate cancer survivor","Allergies controlled by injections, prostate cancer cured by surgery (1996).","Stress or emotional states such as anger, perhaps alcohol, large meals.","Relaxation breathing exercise, cold showers, occasionally carotid massage.","Dofetilide (Tikosyn) and Toprol XL: no certainty of side effects, though perhaps from the Toprol waves of faintness/nausea and tendency to depression. Coumadin: increased vulnerability to skin bruises.","Atenolol: occasional faint spells. Lanoxin, Disopyramide, Betapace, Rythmol: no side effects noticed. Tambocor: slight discomfort when rolling eyes upward or to side.","Tonsillectomy at about age 4. Radical prostatectomy, 1996. Flutter ablation, 1997. ","Probably will request a dosage increase in dofetilide, possibly decrease in Toprol. If AF not controlled, will try alternative approaches, such as Willa's magnet bed, biofeedback, hypnotism, mercury removal, mineral supplements, thyroid therapy.","I very much appreciate having this support group, which together with other Internet resources give me hope that some day I can find a permanent cure for AF.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,1,1,0,1,1,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Dan J.","Tyler, TX","49","paroxysmal atrial fibrillation with atrial flutter","3","Every 3-4 days off medication, every 1-2 weeks on medication","12-24 hours","none","good health, active, non-smoker/drinker, borderline hypertension","learning to live with it","Drinking cold cokes etc. Used to drink cold orange juice late a night, frequent trigger. Frequently starts spontaneously at night while sleeping. ","I've gotten off of all caffeine, quit drinking cold drinks and tried to reduce stress.","Been on rythmol 3 weeks, went 18 days with no A-Fib, have had lots of 'spasm' like skipped beats last few days, one 5 hour AF episode and one 22 hour episode next day. Also taking a 325mg aspirin a day and COQ10. The rythmol has slowed my resting pulse to 48-52, and limits my exercise pulse rate to about 110. Other than having to scale back the exertion rate, there's no problems. ","Was on metoprolol, lowered blood pressure, but didn't seem to help A-Fib. Was supposed to take tambocor but after 3 doses would cause tightness in my chest and neck.","None heart related.","Would like to try ablation sometime, EP MD thinks pulmonary veins may be the problem. Seems to be possible vagal trigger. Will study sites like this.","My EP doesn't seem to get very scientific about things. Try this medication, then another and so on. The info on magnesium etc. in this and other forums is very interesting.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Hank","Cherry Hill, NJ","61","paroxysma atrial fibrillationl","10","daily","one to 36 hours","none","excellant","a-fib canot be controlled by drugs, two ablatations have failed.","anything and nothing","none","amiodarone, I ahve been on it for 11 weeks, no side effects yet. Still in a-fib Coumaden ","","Left pulmonary vein ablation Flutter ablation","Lasso ablation maze","Since so many people are getting this disease, I can't understand why the Drs. don't know more than they do.",0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,1,0,0,1,0,1,0,0,0,0,1,1,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,1,0,0,1,1,0,0,0,1,0,0,0,0,0,1,0,0,1,0 "John Hudson","Cornwall, UK","62","Atrial fibrillation","10","2 - 3 weeks","24 hours","None","Good. Non drinker 4 years. Non smoker. Regular exerciser.","Stable","Exercise Stress Alcohol","Despite removing as many situations as possible that may precipitate an episode, they still occur.","Have ceased all medication for AF and other problems for five months. Now taking only warfarin which is considered a sensible precaution to prevent clotting and risk of stroke. The majority of my side effects have either disappeared or diminished to an acceptable level.","Digoxin Flecainide Valium Trazadone Zopiclone Temazepam Frizium Vertigo/dizziness with quite fierce tinnitus; anxiety with panic attacks; a sense of unreality; unpleasant sensations in the sternum region; palpitations and irregular heartbeat (atrial fibrillation); agoraphobia; quite violent mood swings; tremors in the diaphragm region; itchy skin; sore eyes with blurred vision; cold shiver/pins & needle sensation around face, neck and shoulders (parathesiae); difficulty in achieving a deep breath (disapnea); paranoia; deep sadness; compulsion/obsession; poor relationships; sexual disfunction.","None Had 24 Holter test while in full AF episode. ","Continue with complete abstinence from all alcohol and prescribed drugs. Continue with exercise programme. Continue with monthly blood tests for INR - currently between 2 and 3. Have not consulted a specialist for four years. My doctor wants only to see me if my condition alters.","I believe that my medical advisors do not know what causes my AF and neither do they have any good ideas about how to treat it. I believe self education and self help is the key to successfully coping with what is probably a condition for life. Having said that, I live in hope of being completely in remission once the affects of the alcohol and prescribed drugs I have taken for over 32 years, completely leave my sytem and all withdrawal symptoms have dissipated.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Jack C.","NJ, USA","62","LAF","12","3/4per month","5/6 hrs","None","good, non smoker, light drinker","Trying to manage it.. Otherwise, good health. Thank God.","Physical exertion and stress and /or anxiety. No problem dealing with the physical exertion but later in the day, while at rest, AF can settle in.","I have a history of LAF occuring during the early hours of sleep. For the last few months I have been taking Pepcid and/or Tums before bedtime and have not had an AF occurance during sleep. Don't know why it works and I never took antacids, etc. in the past. Keeping my fingers crossed. I have tried to avoid meds. I take Rythmol at the onset of an AF attack and it greatly reduces the time period to convert to normal sinus rythm. "," See above about Rythmol. I also use aspirin when in AF. Rythmol was prescribed by my current cardiologist. He put me on 500mg daily but I am only taking it when needed. Synthroid to improve thyroid function ( for about as long as I have AF) I have always thought their is a connection but the docs don't agree. "," Toprol did nothing but slowed my heart rate. ","Varicose veins 40 years ago and a hernia in 1998.","Day to day management and continued internet research.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Brandon","Northern California","55","AF","1.5","once or twice a week","2-4 days","None","In good health, blood pressure low-normal, ex-smoker (quit 12 years ago), ex-drinker (one beer or glass of wine per day), now drink decaf","I feel okay in spite of being in A-fib half the time","Possibly stress and going long periods without eating.","Light-medium exercise seems to forestall it, at least temporarily.","Light-medium exercise seems to forestall it, at least temporarily.","Aspirin / Digitalis. The transition back to sinus rhythm was increasingly difficult and frightening, actually.","Major dental surgery within the past two years","???","I finally had to get with the program for fear of stroke. The cardizem doesn't revert the A-fib, but it makes it less onerous. I'm a little breathless and sluggish starting out, but find that after 5-10 minutes I can jog and play tennis nearly as well as formerly. My endurance isn't what it was, however. I find that sometimes after a couple of days of A-fib an hour or so of leisurely tennis will send me back into a sinus rhythm. [A note of caution for those taking amiodarone. I have been informed by my brother-in-law, who is a reputable neuro-ophthalmologist, that amiodarone is a very dangerous drug which in sufficient dosage or duration of dosage can severely harm the optic nerve.]",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Anon","Georgia","47","vagal lone atrial fibrillation","7","monthly occasionally bimonthly; now once to three times per year","4-12 hours","none","excellent, daily exercise, aerobic and strength training (lost 30 lbs.); diagnosed with IgA nephropathy (protein and microscopic blood in urine); hypertension controlled by Cardizem","AF has decreased; no episodes in 2002; two episodes in 2003","Occurs after dinner, usually near or at bedtime. Lying down (left recumbency) or either side. Possibly stress days before. No discernible pattern. Several days of flutter prior to major episode.","None. Just sleep it off if I can.Baroreceptor massage, Valsalva's maneuver, immersing face in ice water, etc. do not work for me. Most recent attack (02/17/06): converted to normal sinus rhythm by running up 3 flights of stairs.","120 mg Cardizem/none; 80 mg aspirin/none; 25 mg diphenhydramine/sedation; 10 mg Lunesta/sedation; 10 mg Uroxatral/none; Zantec 150 mg bid/none ","Norvasc: increase in episodes","None","Continue to investigate for possible 'cures' Continue log to pinpoint triggers Continue to exercise and eat healty foods ","This is definitely irritating when you are trying to sleep! It is somewhat frightening since it is my heart and it isn't acting 'normally'. There is never any loss of function and I seem to be able to perform the same when I am in af as when I am out. I do seem to urinate a lot more when I'm fibrillating. It definitely seems to be related to eating large meals late at night and going to bed on a full stomach. ",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Troy Kelley","US","29","","5","very sporadic.","10-30 seconds.","None","","","Currently lying down will trigger them. I had to go to the hospital for the first time recently. After attempting to go to sleep, I went into sustained AF. I personally believe that stress is the major trigger at this point.","Deep breaths, no caffiene, deep breath and bear down.","Toprol for now. A little fatigue noted, but that's about it.","","None.","Excercise more, no caffiene. Less Stress.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "VV","Northern Virginia","45","chronic AF","12","chronic","chronic","junctional tachycardia, spleenectomy","now overweight, was in great health when AF began","physical activity is limited","emotional stress, excess caffeine (limited caffeine found to settle rhythm), alcohol, MSG, chocolate.","none","coumadin","amiodarone, sotalol - excess fatigue. propafenone, flecanide, verapamil, digoxin - limited side effects noticed.","2 EP studies to ablate junctional tachycardia. Participated in experimental protocol testing linear catheter ablation technique which was to emulate maze technique to eliminate AF. Completed 3 ablations in protocol, 1 on right atrium, 2 on left. AF symptoms were reduced for a limited time from procedure.","Possibly try Dofetalide. Volunteer for another ablation protocol. Wait for Atrial defibrillator technology. Work up the nerve to get the maze procedure. ","",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "John","Teesside UK","44","PAF","22","1 times per year","anything from10 secs to 48 hrs","None","Good health, non smoker, non drinker, slightly overweight","AF once per year awaiting PVI ablation","Tiredness, bending over, laying on left side. After execise as heart rate begins to slow. Caffiene. It is difficult to define any one trigger as cause. I beleive EP study provides best possible chance of diagnosis and cure. Stress, you are often the last person to know you are suffering from stress.Overeating.","Relaxation techniques. Get plenty of sleep. Avoid overeating/indigestion","None","None though on admission to hospital was given Flecainide which did revert heart to sinus rythym.","5 EP studies RF Ablation 10 years ago (2 sessions) - 13 burns.","Counselling for anxiety induced by fear of palps. Breathing technique. Dont let Af rule your life. It is extremely frightening when it happens,but I have always come through it.","For me AF has brought on a bad state of anxiety - agorophobia. Feeling scared about there being no help at hand in the advent of an attack . Since ablation 6 years ago it took me all of those years with the help of counselling to regain my confidence. 18 months ago that confidence was taken away again. I am on theconfidence building road again.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "anon","pittsburgh, pa","18","lone atrial fibrillation","8 months","2 in 8 months","12-18 hours","none","excertional asthma, non-smoker, non-drinker, no drugs","converted with meds","possible caffeine, possible cold medicines such as dimetapp or dayquil","unknown at this time","50mg atenolol-no side effects so far","cardizem-severe hunger","tonsils/wisdom teeth/tubes in ears for infections as a child","hope to find a cause and cure for my a-fib","I wish there was more research and answers for this disorder",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "David Ruffino","Carmichael, California - USA","42","Vagally induced atrial fibrillation","10","Varies - from 2 or 3 a year to once every two years","From 5 seconds to 27 hours","Gallbladder Surgery (Cholcystectomy)","Quit smoking 22 years - Former drug abuser (speed and marijuana). NO drugs in 22 years.","No A-fib in a year, very optimistic","Eating heavy meals seems to make my heart palpitate, and alcohol does the same. I've noticed that milk products seem to cause PVC's and have suspected for a time that I am lactose intolerant. A couple of times at the emergency room it has been reported to me that I had a low potassium level. I have suspected stress as being a factor for episodes. Strangely, indigestion seems to play a factor in the trigger mechanism. Because of this, I eat less, especially during dinner. Nearly all of my episodes have started at or around bedtime. Two things that I attribute to the cause of the condition are that I was an abuser of stimulant drugs as a teenager and that I was exposed to a fairly large amount of DDT when I was a child.","Eureka, I have found it. I believe that the fibrillation was brought on by digestive problems. When I had my gallbladder out, the doc told me I could eat anything I wanted to. WRONG!! Recently, I have put myself on a low fat diet and a lot of things have started to resolve. The heart is beating fine with no PVC's. I'm losing weight and feeling better. I truly think that there was a correlation between a fatty diet and the fibrillation. Oh, and I can drink caffeine again, hallelujah! Finally, my faith in Jesus Christ has helped me greatly. He's the master physician.","A year ago, my new internist put took me off of the drugs below that I had been on for several years with little effect. He put me on sotalol 120mg twice daily. At first I had some transient PVC's but over time that has abated. I feel great and the heart is beating fine. Formally, I had been on Tambocor, digoxin and atenolol. Bad thing is that beta blockers cause easy weight gain which for me is hard to deal with as it makes it harder to lose.","Verapamil - Made me feel strange and dragged down. Lanoxin - I believe this was the cause of many palpitations. Quiniglute - Caused a feeling of muscle weakness and wasting. Atenolol - Totally useless, never betablocked me like it was supposed to.","As mentioned above, I believe that the gallbladder surgery in 1991 precipitated my atrial fibrillation. I have two other surgeries since and neither brought on another bout with fibrillation. I did notice however that after my eye surgery in 2001 that my heart rate was very low, I estimate in the 40's the night after the surgery. Again, it was fine when I was sitting, but upon laying down in bed it became very slow. This should be taken into account by anyone having surgery as bradycardia is common. ","I plan to stay on the Betapace. Because I think there is a correlation between a fatty diet and a-fib I'm keeping on the low fat diet because it is helping. I'll keep trusting God of course. I recently had a blood test where they found elevated liver enzymes. Tests have revealed a fatty liver. Many sources claim that this can be caused by medication. I would encourage any person taking medications to have a liver function test. ","When this all first started I was fearful and confused. I know that there is a lot to fear, like increased frequency of this condition and stroke is always a consideration. I think what freaks most people out is the fact that there is a potential for death, although a small potential, it is still a clear and present danger. Of course, death scares people because what lies on the other side is uncertain for most. Many years ago I made a decision to follow Jesus Christ and to ask Him into my life. Because of this, I know what lies ahead and to put it frankly, if something were to cause me to leave this world for the next, it would without a doubt be better that what we have now. So, if God decides to let me stay here (even with A-fib) then I live here with God. If he decides to take me home, then I go home to eternal bliss. It's a win, win situation! Now, this might have sounded like preaching and perhaps it was. I can say however that the knowledge of what I have said above helps me to live with and tolerate this condition each and every day. ",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0 "Ben Everett","Victoria, Australia","69","AF under control until medication clash Avapro(Irbesartan) v Vioxx (Rofecoxib)","Fainting and heart flutters only last 5 days.","very random but about 10 per day","1sec to 3 or 4 min..","","fair. Non smoker. moderate drinker","Fainting spells similar to postural hypotension. arrithmias/ ectopics","","","I am permanantly on Avapro, an ACE anti-inhibiter. 22 days ago I started Vioxx (an anti inflam'y for arthritus). Vioxx manufacturer states that Vioxx may affect the effectiveness of ACE inhibiters. ","amiodarone (cordarone,pacerone) caused rash. ","Quadruple bypass 12 years ago. Three of the four grafts failed. One stent installed 2 years ago. ","May have to choose between Avapro for heart and Vioxx for arthritis. ","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Alan Clayton","Cheshire","18/feb/1948","A Fib","30ish","irregular - heavy episodes about 14 days at present","10 secs to 1 hour","not known","good health, non smoker, tennis, walking, light drinker","bearing it & evading medication","I thought at one time it was triggered by caffeine / alcohol, but on reflection there seems to be no immediate trigger - it has its own agenda.","none as yet. Will try running up stairs, though when it happens during tennis carrying on playing doesn't help","none. intend to start taking aspirin to reduce risk of stroke. Don't like the idea of Beta-blockers","none","none","hope it will go away ","Since studying other contributors experiences I gave up red wine and the events became much less frequent and less severe.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "JO","TX","47","afib and atrial flutter","2+","daily","hours to days","none","arthritis","controlled for one month","","","tambocor,cardizem,coumadin side effects are some fatigue","tobrol-too slow heart rate, fatigue, blurred vision, dizzy betapace-fatigue, lightheaded verapamil-did not work","ablation 11-00 cardiversion 12-00","another ablation","ablation worked for one week, then went into atrial flutter for one month then had cardiversion which has worked for one month",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,1,0,0,0,1 "John W.","Arlington, TX","50","Chronic Atrial Fibrillation","14 months","","","On vacation in Colorado - altitude above 10,000 feet","overweight, high blood pressure, diabetes","No episodes since being put on Tikosyn","Altitude may have attributed to onset... Or could be stress of travel. I had some unexplained 'illnesses' on two prior vacations. I was also on the diabetic drug that was taken off the market, Rezulin. I thought perhaps my 'illnesses' were because I was on Rezulin at the time. After I was taken off Rezulin, I did not have any problems until four months later in Colorado.","None","I am currently on Coumadin 5 mg, Diltiazem 240 mg and Metoprolol 100 mg. The Metoprolol was just prescribed for a week prior to being placed in the hospital to receive Tikosyn therapy. The Metoprolol has slowed my heart rate considerably and makes me feel tired and listless. But what else is new! January 2001 placed in hospital for tikosyn therapy. Converted on the third day and have remained in normal sinus rythm since that time. Thank God! ","The whole medication thing has been such an up and down rollercoaster. It seems when I try a medicine that starts to help, it is only a matter of time before I suffer what the doctors here call a 'breakthrough.' I was first prescribed Coumadin, Amiodorone and Diltiazem. Felt okay the first time. Began feeling lousy and ill all the time. Unable to work, function normally. Medications changed to Lanoxin(digoxin)for a short period. Felt worse. Finally settled for several months on Coumadin, Covera HS (Verapamil). January 2001 on Tikosyn, coumadin, altace 10 mg, Cartia ST 240 mg.","First onset of AF was placed in the hospital three days on Coumadin, Amiodorone and Diltiazem. Did not convert. Went back to hospital approx 1 month later for cardioversion. Hit me three times, did not convert. Had heart catheterization for suspected blockage from nuclear stress test. No blockage found. In hospital January 23 for Tikosyn therapy. converted third day. NSR since that time 6+ months","I have my fingers crossed that the Tikosyn will keep my heart rate normal. So far, so good.","have not been able to 'live' with this disease, although my cardiologist says that people can live a relatively normal life with it. This has affected me both physically and mentally. I have been unable to enjoy the things in life that I have always done. Every pain I feel in my chest (and I feel pains often) causes me to worry what permanent effect this is having. I was referred to an electro physiologist cardiologist that has given me more hope than a regular cardiologist. I suggest that anyone seeing a regular cardiologist get a referral",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Al S","NJ","53","Atrial fibrillation, mitral valve prolapse","afib = 8 years, MVP = 19 years","on average, weekly","6 to 18 hours","","average drinker until 8 years ago and then none since, never smoked, developed periperal neuropathy of feet 3 years ago - suspect prolonged used of heart medicines","do mild excercise at gym, skiing, etc.","Same as everyone else on here.... MSG... within seconds of eating foods containing it Sugar - usually only if eaten within an hour or two before going to bed Stress - try taking a 20 minute nap.... it helps if you can find time for it Going to bed - 95% of episodes start within 5 minutes of laying down in bed. Seems like when heart slows down some other irregular pacemaker takes over. Heart rate usually falls below 50 at rest. ","Take a nap during the afternoon - it seems to reduce chances of having an episode Avoid sugar after dinner. Avoid MSG (Virtually all canned soups and chicken stock have it. Make your own... ","Norpace 200 Mg and Atenolol 50 Mg for heart Coated aspirin for blood thining Neurontin 2400 Mg for feet none discernable","Inderal, digoxin, quinidine, betapace amadiodarone - shaky ","none","looking for a Afib specialist in NJ area","",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Frank C","NJ, USA","40","Lone Atrial Fibrillation","8","1 per 3 or 4 years","12-24 Hours","None","Occasional Drinker","Fine, overweight","Caffein, Cold Drinks/Ice, Illness (Flu,Cold,Fever), Stress","No Caffein","Metoprolol/ None ","","","Magnesium Supplements, weight loss, stress reduction","I'm lucky to have these episodes infrequently. The three or so times it has occurred have been while sleeping. Woke up with obvious symptoms.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "chris","southampton,uk","31","lone atrial fibrilation","at least 3 not sure","permanent","permanent","none i can recall","healthy non smoker ,non drinker,relativly fit","feel fine never any symptoms although in af all time","n/a","n/a","warfarin 6mg","none","echocardiogram showed no faults except slightly enlarged atrium which is normal for this condition.cardioversion failed after 4 shocks at 360 joules","stay as i am unless cure is found","I only found out i had this condition during a company medical 3 years ago.never had to this day any symptoms of any kind",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Steven B","Oakland Ca.","41","af","3","4","3 months, 1 day,1day,1day (cardioversions)","None","Excellent, athletic","NSR, Flecainide","Chocolate, alcholol, stress","","Flecainide, no adverse affects","amiodorone - horrible sun sensitivity verapamil - no adverse affect","3 cardioversions","None","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Lisa","Prince Edward Island","33","atrial fibrilation","7months","twice a week","1 hour","none","nonsmoker for two years","no energy","","","digoxin and rythmol","atenolol-Could not stay on this made me vey tired. Also on blood thinners for awhile.","","Would like to feel good again. Considering pregnancy but afraid medications would interfere with this.","If this problem persists I do not look foward to being on meds for the rest of my life.",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Colin Semple","Vancouver, BC, Canada","44","atrial fibrillation","5","intermittent","up to 15 hours","fatigue, coffee, beer","pretty good but history of CAD","progressing atrial fibrillation","fatigue caffeine alcohol back pain (probable loss of sleep)","not yet","altase atenolol baycol aspirin rythmol-some insomnia","","angioplasty, August 1998","take each day as it comes be especially thankful for each day of NSR hope that new treatment becomes available as this progresses try to not panic when heart revs up try not to fear the nighttime and going to sleep ","Evening is the worst time, particularly when I'm alone. I am taking up painting to try and keep myself occupied since I've had more than one bout of a-fib start while watching television. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Scott","Georgia","38","AFib","7","Daily","Varies, short and very long.","?","Very good health, non-smoker, very light drinker","Getting worse.","Chocolate, some types. excersion, main problem","None","Tikosyn 500 Coumadin Pindilol","","Radio frequency ablation - unsucessful MAZE - 1/11/01","","I had the Maze procedure done at the Cleveland Clinic this past January.It took about 4 months for the effects of the surgery to be noticed. I have been in normal sinus rythym since May 9th and drug free. I am a very happy person. I am doing things I haven't done in 7 years. No limtations except for my conditioning, which got pretty bad.",1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,1,0,0,0,0,1,0,1,0,0,0,0,0,0,0,1,0,0,1,0,1,1,0 "sharon","pa.","60","atrial-fib","14","3or 4 a month","24hrs","stress","quit smoking 10 yrs ago drank moderate quit","trying to survive atrial-fib","heres my culprits. no chinease food msg puts me in every time;no alchool,strong choclate syphony bar andes mints. get real tired;;;any kind of stress or excitment went to vegas for 60 birthday went in 2x took grandsons on short cruise 2x. i cried this year any vac. or trip ive taken i went in.. it ruins your life just when i thought we could be enjoying ourself... if i stay home read and lay around take walks i seem to be ok....","only prevention i know is take meds..stay calm;moderate exercise...and stay off all above....stay home wait to die.","finally have my meds were i dont have any side affects unless im in atrial;;then i get real dizzy and blood pressure drops to 80&90.......my meds cardizem cd 120mg;;;;betepaceaf 80 mg 2x;;;vasotec 20mg 2x;;;coumadin.","cant remember. just that i was overmedicated...dizzy all time to tired to do anything and really depressed.","","would like to look into that maze operation.... id give anything to be able to enjoy life and travel a little my hubby doesnt drive only me and i always go into atrial on a trip.. doctors dont seem to care here.. they figure 2 or 3 a month isnt enough for concern...but after 24 hrs your pretty well tired.","heres how i feel...they can find a cure for alot of things so maybe we will luck out and have one for atrial never give up hope look at all the by-pass they can do...why cant we be helped to enjoy our life.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Bill Bissell","USA","63","atrial fibrillation","recently diagnosed","first episode","unknown","unknown","smoker, rarely drink","on coumadin....scheduled for cardioversion on 1//10/01","I have no idea what triggered the a fib or how long I had it before being diagnosed. I was in the emergency room at the hospital with gall bladder problem, was given an ECG which showed a fib.","","Coumadin - (5mg)for about 35 days and protime almost weekly remains at desired level. Lanoxin - also for 35 days I have not noticed any side effects from either medication","","2 medial cartilege right knee surgeries (1971 and arthoscopy 1987) gall bladder removed December 2000 salivary gland removed approx. 1990","scheduled for cardioversion on 1/10/01 continue my normal schedule and activities","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "anon","Toronto, ON","26","afib, mitral regurgatation","3 year","every six-eight months","5 hours","drank cold drink","excellent health, college baseball player, never drank or smoked in life","cronic discomfort in heart beat","cold drinks, swallowing too much too fast, especially when first thing after waking up","pace myself when I swallow drinks","coated aspirin once a day","none","none","heathy lifestyle","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Linda","Lafayette, In","53","Atrial Fib","11 mos","once a month for 4 months","7 hrs 7 hrs 9 hrs 2 hrs","Excederine for headaches 4 a day for 1 month","Emphysema, mitral valve prolapse, left hip replacement, arthritis, high cholestrol, menopause","no episodes for 6 months","diet soft drinks, caffeine in drinks, food, medicine,over exersion, stress","no diet soft drinks, no caffeine,no exercising, try to illiminate stress, ya right!!!","Rhythmol 150mg 3 times a day. Lanoxin.25 mg once a day Aspirin 325mg once a day Extreme fatigue, not sleeping well","none","none","To stay stabilized and have no more episodes I hope","AF is extremely stressful in itself. Everyone says stays calm and relax, but if you have been there you know how hard that is to do. Anyone having AF and there are many of you. I send out symphathy and understanding. This is not a fun thing to have and I know that millions suffer from it, but you have to be there to really understand. Hang tough and feel free to talk to me as I am sure everyone with this will say to you also. Good Luck and take care of each other.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mike Wilson","High Springs,Florida","40","paroxysmal af","4","about every 6-7 days","increasing to 72+hrs.","rheumatic heart disease,aortic&mitral valve replaced 3yrs. ago,had enlarged left atrium,congestive heart failure from 4 weeks of af before 1st e.r. visit","good health,hbp controlled with med.,work in construction,high school sports,USMC 8 yrs.,drink beer daily","af is progressively becoming more frequent and longer duration,ready to try different med.","stress,hard liquor,af usually creeps up on me about 1-2am while my guard is down,working long hours is sometimes a trigger,it seems af pretty much sets its own schedule.","during awake hrs.,if i feel an episode coming on,i can usually avoid it by relaxing/calming down etc.","sotalol 240 mg.twice daily/keeps everything slowed down, doesn't maintain sinus rythym for me,finger tips stay kind of numb feeling,keeps heart rate at 80/90 during af.Also take lanoxin .375 mg. daily,cozaar 50 mg. twice daily for BP.,coumadin 5mg. daily.I maintain a 2.5 to 3.5 INR and have,on occasion,bruise/bleed easily. ","quinaglute,did not maintain sinus rythym,used for a year,had loose bowels all the time.atenolol,used 1 month,didnt maintain and made me weak and tired. ","Had heart cath. in 96 ,every thing was clear.Had aortic and mitral valve replaced with St. Judes mechanical valves in 98. Had 3 cardioversions along the way. ","I see cardioligist in a month,would like to try a different med.,such as tambocor,tikosyn,etc..I plan on maybe having an ablation of some sort when they get a little more proficient at it in my neck of the woods.I would like to talk to an E.P.","The biggest problem I have is dealing with all the racket that my mech. valves create when in af. Everyone within 5 ft. of me knows when i'm fibbing,as every irregular beat is heard and felt.Things could be worse.Good luck to all my fellow fibbers!",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,1,1,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,1,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,1,0 "JanMarie","Minneapolis","52; May 1949","Sick Sinus Syndrome, Left Bundle Branch Block, A Fib","1 Yr:Diagnosed 2/00","Irregular - Never Know - Small Episodes in last year","Since pacemaker 1 hour","None","","On medication - a fib under control","","","metoprolol, Amiodarone, aspirin, prinival, lasix, relafen","metoprolol, Amiodarone, Cardizem, Coumadin, Norvasc - discontinued cardizem because of slow heartbeat; discontinued norvasc due to swelling in ankles and feet","EP Study with ablation for Atrial Flutter and implant of pacemaker, had cardioversion at that time because of a fib","Take one day at a time and enjoy my sinus rhythm for now","",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,1,1,0,0,0,1,0,0,1,0,1,1,0,0,0,1 "anonymous","New York","58","paroxysmal atrial fibrillation","2 yrs","first 2 were a month apart, then almost a year til the third.","4hrs, about 24 hrs, about 12 hrs.","working a rather gruesome night job, drinking lots of coffee because i am a morning person, not a niteowl.","general good health except for overweight and mild hypertension. I don't smoke, am not asthmatic, am a light drinker, at the time of the first episode had not had anything alcoholic for about 3 months.","I feel quite well. At the time of the last hospitalization, all the tests they did came out quite normal, nothing to explain what caused the trouble.","caffeine. I am okay as long as I have no more than 1 cup of tea in the morning. I don't drink coffee any more. I got the last episode by 2 nights without sleep, about 5 cups of tea during each of the 2 days so as to stay awake and work, and then climbing a steep hill with some steps in it.","Stay off caffeine, is all I know.","no medications right now except Prinivil for the blood pressure.","Digoxin was prescribed after the 2nd episode, and I took it for a few months, but it made me feel so tired all the time. If I lay down at all during the day I would fall right to sleep, and I couldn't climb stairs. One month it ran short when I didn't have money to refill it, and I began taking it every other day to make it last a little longer. I felt so much better on the days I didn't take it that I just discontinued it. I do take 1 aspirin in the morning and one at night, with the idea of preventing stroke. ","Appendix, 2 caesarians, vein stripping [varicose veins], d&c.","","I sure hope that mess does'nt happen any more!",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Barney","Georgia","52","atrial fibrillation","5","weekly","5 min - 5 hr","shoulder sugery","drinker","occasional afib of short duration","over eating , alchohol , stress , fatigue, MSG (monosodium glutimate)","small meals , no alchohol , no caffine , rest ","tambacor 300mg metaprolol 150mg lipator 50 mg adult aspirin low energy , sleepy at times ","propecia (probably unrelated), rogaine","shoulder sugery 1996 focal ablation sept 1999 ","stay on medication as long as fibrillation is managed have another ablation when needed or new technology found ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Harald N","Grimstad, Norway","56","paroxysmal atrial fibrillation","5","1-10 in a week","5 minute to 24 hour","jogging","good","good","stress, sleeping on my left side, running","","tambocor 300 mg. tenormin 100 mg, albylE 75 mg pacemaker metronic Kappa DR701DDR","","","","",0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,0,0,0,1,0 "Paddy O'","NE USA","65","Atrial Fibrillation","3","2 monthly, but varies","3 hours","Lyme desease vaccination ?","Good, hypothyroid, ex-smoker, 1-2 wines glasses/week","ongoing","None, but onset is like flicking a switch. Above normal exercise seems to bring it on, but about three hours after the exercise has stopped, and probably when I begin to eat. ","None","Synthroid, 112 mcg/day. Asprin during attack. NOW HERE IS AN INTERESTING PHENOMENUM: In March 2001, I reduced my Synthroid medication from 112 mcg to 50 mcg/day and feel much better (but have a greater tendency to put on pounds, and have to reduce diet) I feel much better, without incident since then, touch wood. I have since conferred with my Endocrinologist and switched to 50 mcg of Unithroid. Date is now August 6, 2001. Let us see how it goes.","Coumadin during attacks in 1999. Currently none.","Gall bladder 1972","Follow a CRON diet. Eat organic. Keep seeking cure. More recently am also following Dr. D'adamo's suggested diet for blood type AB+. I like and am doing well on this diet. I am not totally fanatical, but follow 90%. I personaly also interested in anyone's blood type re: AF, should anyone care to let me know. For interested, is the problem spread evenly througout the blood types, or do some types get it more than others. Anything is worth a look. ","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Rich Lew","Ann Arbor, MI","52","AF","20","Yearly becoming daily","minutes becoming hours","none","good health, seasonal mood disorder tendancies, anemia diagnosed in late winter several times","becoming more frequent and of longer duration with greater effect on total well being","over use of alcohol and smokey bars. Stress, both physical and mental. High salt intake, monosodium glutimate suspect too. Food specific related instances numerous","banana a or kiwi a day seemed to work along with supplements. Excercise increases seemed to be very effective in the past. ","Propranol available, no longer used intermittently as needed.","Missed the blues and left a low dosage of antidepressants behind. Funny, I don't remember having many episodes during that period of time now tha I look back ","None except tonsils as a child","Keep finding out more, look at beta-blockers, see Dr., ask about anti-depressant relationships","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "David","Toronto, Canada","63","AF","Diagnosed - 1.5 years; Undiagnosed - 6 Years","Irregular; up to once a day","Irregular; up to 24 hours","Extreme cycling and alcohol","good; non-smoker, regular exercise, moderate drink","Sinus rhythm","MSG, food preservatives, alcohol, caffeine","Avoidance of above substances","Daily dosage: 100 gms. amioderone 5.5 gms. coumadin","Maximum daily dosage (summer 2000): 400 gms. amioderone 100 gms. tambocor Dizziness, light headedness, lack of energy and concentration, severe reaction to sun.","None","Better define substances that trigger AF and eliminate need for drugs.","Would like to find a quasi scientific test to determine sensitivity to various substances",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Steve","Yorkshire UK","48","double/missed beats, flutter","1.5","4-5 times/week","1-6 hours","Excess stress (death of mother, moved job, house, neighbours from hell)","Fit, regular exercise, very moderate drinker (3-4 beers/week)","controlled symptoms (mostly)","Stress Relaxation (when first go to bed) After strong exercise as heart rate drops","Avoiding stress","Sotalol 2 x 40mg per day Initial slow heart rate (45 bpm) recovered after several months. Initial slight nausea and light-headedness.","Verapamil 2 x 40 mg Did not work and made me throw up.","None","Regular exercise routine (swimming, gym, mountain walking, cycling). Annual checkups with cardiac specialist.","I don't understand many of the medical terms - what term is appropriate for misplaced beats?",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Steve F","Kent UK","46","Lone atrial fibrillation (vagally mediated)","2 years","permanent","","none","Fit.Non-smoker. No underlying heart problems.Was drinking socially but cut right down now","Used to occur when resting at night but is now permant following 1st ablation but follow up op due soon.","food & relaxation","Excercise. but now this is not effective","Warfarin ","Sotalol Bisoprolol. Rapidly withdrawn after too slow a pulse at night. 42/min when normal. Amiodarone (withdrawn prior to future ablation)","Appendix removed (after bursting) 1986.","2nd ablation in Feb 2003","1st ablation used new catheter to freeze pulmonary vein at connection to heart. Theory now is that either this vein has reconnected (as ablation initially successful) or that amiodarone was masking activity in remaining 3 veins.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0 "Willa","Washington State, USA","60","paroxysmal atrial fibrillation","2","varies","Usually lasts from 3 days to a week.","Major exhaustion/work pressure, various illness not relating to heart","Arthritis, spinal stenosis, esophageal spasms and gerd somewhat under control.","Healthy, except for nuisances","Wheat, corn, potatoes, rice, chocolate or too much sugar,bending forward, scrunching forward while sitting or leaning back while sitting, lying on left side, lying on my back, too little or too much excercise, getting too tired, relaxing after getting upset. Usually happens at night, but I can usually feel it coming. Eating too late in the evening (after about 4:30 PM). ","Newest prevention for me: magnetic therapy. This has worked very well, and I haven't gone into full afib since I started using them. Walking around (sometimes all night)will keep afib from setting in. Every time I sit or lie down, it will start again until 5 or 6 in the morning. Then I can sleep for 4 or 5 hours. My best prevention is diet. I follow the lists for my blood type in the 'Eat Right 4 Your Type' book. Also, I try to keep my carbs below 30 gm a day. Fish instead of heavier meats is helpful, although 'natural' meats work well. I cook everything I can from scratch - no preservatives or msg. No deli meats, no canned foods except tuna prepared without msg. Did you know that 'hydrolized vegetable protein' or 'hydrolized soy protein' is msg?","asperin, CoQ10, hawthorn berry. I can't tolerate the conventional medicine drugs.","Cardizem caused ulcer, profound fatigue, depression, high blood pressure (even though it's supposed to lower it).","Heart attack in 1993 - I had angioplasty twice: the second angioplasty tore my coronary artery which started the artery to spasm. The afib bouts didn't start until 1999.","Control weight, control diet, live life, have faith in God and peace with my situation. Love my family and friends, and love every moment.","Thank you all for generously sharing your information. I found it in the middle of 5th night that I had walked all night long, trying to stave off impending attacks. I felt as though I had found gold.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,1,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1 "Hank","NJ","61","atrial fibrillation","9","varies","minutes to 15 hours","none","good","still seeking a solution","alcohol, caffeine, sugar, stress, ","quinaglute worked for 8 years but now it is worse than ever","Procanbid (extended release) 3000 daily Lopressor 75 daily Coumaden 2.5 daily So far I have had no side effects.","Procainamide 4000 nausia, lack of appetite, quinaglute No side effects dolfedalide made me feel dizzy and did not help my arrithmia Rythmol no side effects helped for 1 week than failed Flecanide didn't work Sotalol no effect disoapyramide no help Linoxin tenorman dofetilide atenolol ","ablation of left pulmonary vein 11/9/2000 ablation for atrial flutter 11/21/2000","Plan to have the left pulmonary vein ablated again in January. This time they plan to ablate the total circumfrance at one location. If the next ablation doesn't work I will seriously consider having the Maze procedure done.","My arrithmia was under control for 8 years. I was taken off quinaglute because of a long QT wave. SInce being off quinaglute the Drs. have not been able to get my atrial fibrillation back under control. I have been rushed to the ER by ambulance twice in November 2000 with heart rates which caused me to be to weak to walk and had great difficulty breathing.",0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,1,0,0,1,0,1,0,0,0,0,1,1,0,0,1,1,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,1,1,0,0,0,1,0,0,1,0,0,1,0,0,1,0 "annie","washington, dc","43","a fib","three months","once a month at first; this week, every day for the past six days","1-2 hours","none really, slight hypertension","don't drink, smoke or do caffeine. Have a hiatal hernia since 7 years ago, had a diagnosis of kidney disease with protein in urine.","just starting out, mostly freaked out and scared","Haven't been able to figure one out yet. A couple of times it was after eating lunch (pizza once, hot pastrami sandwich another time), a few other times just by standing up and walking around.","None yet","Dilacor XR, no side effects Protonix for stomach acid/hernia, no side effects Prinivil (ACE inhibitor) for hypertension/kidney problem, no side effects Coumadin prescribed today, won't begin until tomorrow (11/2500) Celexa for anxiety and Ativan on occasion, although hadn't used it for months until today.","","Two biopsy surgeries for breast tumors (both benign)","See where this goes. See if I can roll back this from every day to once a month or even less.","I can't believe this is happening to me. I was fine & dandy until late August. I was on vacation, it was a very very hot day and we'd been walking all over the place when I felt this funny feeling in my stomach, and I felt my pulse to see if it was fast and it was skipping beats all over the place. I sat down and drank two bottles of water and went on with my day and was fine. The second time it happened, a month later, I was coincidently in my doctor's office and they did an EKG recording the fib. I corrected myself that time as well. Now i seem to slip in and out of it easily.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,1,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Mike","Canada","49","AF","15","3-4 mo","1day - 8wks","no","no","in control","","amiodarone","twitching, sun sensativity","","no","keep on keeping on","",0,1,0,1,1,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0 "Dale Wood","Ontario, Canada","55","paroxysmal vagally mediated atrial fibrillation","5","2 to 14 per month","1 to 7 hours","","excellent","frequent episodes","fatigue","none","none","digoxin, metoprolol, verapamil - no side effects","none","I'm researching and trying various vitamin and mineral supplements to reduce the number of episodes. Magnesium and potassium are of particular interest to me. I've had intracellular mineral testing done.","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Sue","Akron, Ohio","66","Perm AFib","2 months","constant","","","Hi Blood Pressure, controlled with drugs","Still in diagnostic state","Don't know","","Coumadin - danger of a bleed; limits food, alcohol intake","","","cardio-version as soon as coumadin level is therapeutic","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1 "Theo","Geneva, Switzerland","51","Atrial Fibrillation - Paroxysmal, Lone (Vagally-mediated)","10","1 every 1-2 months","12 - 15 hours","","Excellent - No heart problems - No smoker - Light drinker","NSR","Afib attack always at rest after intense physical exercise (4-6 hours later),or after emotional stress. Anxiety - Chocolate (not always) - Only 1 time after indian food - Sleeping on left side - Very important think, each AFib attack coincides with a spastic colon attack.","Very warm bath, Physical effort can stop an attack, Taking drugs (mebeverine or propanthelline) for preventing colon problems seems prevent Afib (vagolytic effects?).","Flecainide (Tambocor) 100 mg/day - No side effects Magnesium (600 - 700 mg element/day)","Propranolol - Very good for preventing attacks but heart rythm very slow, lot of missed beats and i was very tired. Now, if i made an intense effort (sport etc...) immediately after i take 10 or 20 mg of propranolol (Inderal) and it seems that the prevention is effective.","None","Removing amalgam fillings. Alternative medicine","My Afibs attacks are not debilating - During attacks my heart rythm is 80-85 bpm and i have no serious effects. I hope that AFib will remain paroxysmal. If not,as i don't want take blood thinner all my live, i will see for ablation or for maze procedure. My mother, 80 years old, lives also with paroxysmal attacks from 30 years. For my case (and for a lot of people like me), i'm sure that the fibrillation is only a problem of imbalance between the sympathetic and parasympathetic nervous system.I don't understand why this disease seems concern only the cardiologists.",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,0 "joan","Toronto ON Canada","37","arrhythmia","5","all day","few minutes","","mild asthma, pacemaker, non-smoker, fit","working on it","caffeine fatigue emotional stress exercise","no caffeine less work relax/rest exercise","Amioderone: missed beats Coumadin: bruising Zantac","Rhytmol: metallic taste in mouth dizziness fatigue Digoxin: low heart rate, nausea","pacemaker 16 years ago AV node ablation a few years ago","stick with meds hope for cure","very frustrating",0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,1,1,0,1,1,1,0,0,1,1,0,0,0,1,1,0,0,0,1 "Steve G.","Santa Monica CA USA","66","atrial fibrillation","11","once per week","30 minutes","","never smoked, heavy drinker until 13 years ago, now none, 20 lbs overweight, out of shape, cholesterol","afib controlled well currently by Sotalol","None known - occurence seems random","None known. Usual conversion methods usually don't work. An extra sotalol sometimes seems to stop it.","Sotalol, 80mg 3x/day prescribed, but I take 2x/day to save money","Sequence of meds (all taken in addition to lanoxin), each working for a couple of years: quinidine, quinaglute, tambocor, rythmol, sotalol. Each drug gradually lost effectiveness. Awaiting long-term results with sotalol.","None for heart.","Keep on sotalol until and if it stops working, then on to the next. My afib is currently well-controlled and does not warrant more drastic steps.","My mother had the same thing for many years, controlled with drugs, and lived to 91. Killed by stroke, not known whether associated with afib.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Don S-ddstebbins@adelphia.net","Utica, NY, USA","63"," Atrial Fibrillation","14","Varies widely- recently went 18 months without an episode- then 5 episodes in month. I ate food with MSG or drank wine with sulfites on several occasions.","12 hours minimum, 86 days maximum; typically 36 -48 hours;several episodes of 3 days","","Good , non-smoker, drink alcohol in moderation","Had electric cardioversion on Oct 9th after 86 days-in NSR so far-on Toprol and Coumadin","The underlying cause now seems to be a molybdenum deficiency which leads to sensitivity to sulfites and MSG. Usually the immediate cause is a bad dream or something else that startles me - but this occurs only after I have ingested sulfites or MSG. I quit caffeine and alcohol for awhile, but the attacks continued. After eight years I finally correlated the episodes with meals containing MSG. I recently made the connection with sulfites and molybdenum deficiency. Adrenaline attacks may may brought AF on in a few instances when I was very agitated because of fear of developing AF. These ended when doctor prescibed Prozac about 3.75 years ago.","Taking vitamin and mineral supplements containg molybdenum Avoiding sulfites and MSG under its various names(natural flavor, hydrolyzed protein, sodium caseinate, etc.) Exercise seems to prevent AF from occurring, and sometimes seems to bring me back into normal rhythm, but only after I have been in AF for 12 hours or more. Episode beginning July 2003 did not convert. Needed electrical cardioversion on Oct 9th.","Prozac - drowsiness in the afternoon. Difficulty in getting out of bed in morning. Some signs of lower bowel irritation Coumadin- no side effects Toprol - no side effects Calcium/Magnesium Supplements Molybdenum supplements Magnesium may reduce the effects of MSG","Lanoxin - no serious side effects, but I seemed to be less prone to getting out of breath when I stopped taking it.","None","Try to avoid restaurants with MSG in their food. Increase amount of magnesium supplements. Petition FDA and Congress to take MSG off the approved food additive list. Avoid sulfites","I think anyone who develops AF after eating should consider MSG and sulfites as possible causes- molybdenum deficiency leadding to these sensitivites should also be considered. AF seems to run in my family. My mother and her sister both developed it after age 70. My mother suffered an AF related stroke at age 84. The AF had not been diagnosed before the stroke. My nephew developed AF in his early 30's.",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,1,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0 "Frank","Dublin Ireland","63","lone atrial fibrillation","13 years","initially yearly-then monthly now every six months","8 to 14 hours","","very good","MAJOR progress since removing Amalgem dental fillings","Mercury based fillings Other metal in the mouth Alcohol Fatigue caffeine heavy dinner taking attenelol as a preventive","REmoving amalgem fillings under STRICT protocal Replacing other metal bridges with Composite materials Rythmol/attenol Chi Gung Walking 3 miles per day Yoga taking magnesium infusions","Rythmol Worried about long term use.","attenelol side effect---very low heart rate","No serious surgeries","Removing the mercury fillings produced immediate dramatic effects. Now undergoing various mercury detox programs including Hope to eliminate all medications within one year-through current and other interventions. ","I strongly believe that mercury/other metals in the mouth are the probable initial cause of LAF. Hans Larsen has also got an excellent site on LAF. Good luck and thanks to both of you. ",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "hockeystud","Pittsburgh, PA","35","paroxysmal lone atrial fibrilation","5","nearly daily","hours","","good, moderately active","well-controlled","relaxation","","Tambocor - none","Rythmol - constipation, ED, bad taste Atenolol/Metoprolol/Digoxin - fuzzy-headed","","","",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,1,0,0,0,0,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Bruce","Florida","63","Lone A.F.","5","Every 7 to 30 days","10-22 hrs.","","Good health, active biker, hiker, roller blader. Quit smoking in 1992. Played ice hockey until age 48 and trained to keep in shape. Find I am weak for a week after a bout and do not have full strength for one month. Have 1 drink per day.","Am active biking, walking, etc but am frustrated with recurrences and the fact that I cannot properly build strength. Slight asthmatic condition.","Fatigue -- It may activate other triggers. Alcohol -- Overdoing will trigger attack. Stress -- Especially when relaxing after a stressful situation resolved. Large Meals -- Attacks always after dinner. Heat -- Seems to increase propensity to go into A.F. A.F. Itself -- Longer I am out of A.F., the easier it is to stay out of A.F. Too Full a Schedule -- Need to relax during day or I get stressed. Spicy Foods / Cheese -- Refrigerated Dough Products, Red Wine, Golf, Ice Cream after Big Dinner. ","Exercising at first etopic beats on occasion has prevented a bout of A.F. but not always. Avoiding fatigue seems to be a big help.","Have been on amiodarone since 1996. After loading, I was a 200 mg/day and reduced over next year to 300mg/wk. No attacks in 1 1/2 years. Started attacks again in 1998. Attacks 1998 - 14, 1999 - 22, 2000 - 22. Increased dosage to 100mg/day and was at this in 1998, 1999 and 2000. Recently increased dosage to 150 mg/day. Side effects - slight thyroid reduction, dry eye (may be unrelated), slow heartbeat and reduced exercise tolerance, in- creased cholesterol level went from 149 to 204. Retired in late 1998, but reduction in stress did not reduce episodes. Have slight asthmatic condition that may be related to amiodarone but no lung problems yet. Tracking it. Was converted to NSR twice in 1996 with ibutilide after 72 hour bouts prior to starting amiodarone. Now convert on own. To convert, have night's sleep and if not converted by A.M., do heavy exercise while in A.F. (mow lawn, etc.) Then lay down. Usually convert while laying down. Take following currently - daily -- 1 protegra ( antioxidant combo), 1 400 mg vitamin E, 1 multi-vitamin, 150 mg amiodarone, 83 mg aspirin. In past have taken 250mg magnesium, 12 1/2 mg levoxyl daily but neither seemed to help reduce reduce episodes. ","Have been on amiodarone since onset. Have no heart disease or artery blockage so have considered going to flecanide, propafanone and dofetilide, but physician says amiodarone is the best. However, I am getting frustrated with recurrences. Have not had significant side effects yet! Ran into breathing test problems in august 2001. Decided tochange to tambacor plus digoxin for rate control. Am now on125mg/day tambacor and 0.125 mg digoxin have benn free of a.f. since convertingto tambacor eg. 2 m0nths . ","Had heart catheratization that found heart okay. ","Am hoping dronedarone is shown to be effective and free of amiodarone side effects. Hoping it's the Holy Grail for me. ","Recurrences are very frustrating and slow me down, but still have active life. Am determined to do all possible to stay out of chronic A.F. if possible. x ",0,1,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,1,0,1,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,1,0,1,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "David","Liverpool, UK","47","Vagally mediated Lone AF","2","varies - has been lessening- approx. every 4 months","3-12 hours","","good, light drinker, non-smoker ; have a hiatus hernia; had cardiac catheter and no heart disease found - former marathoner","keeping acid reflux at bay through lansaprazole","over-eating; cold liquids on empty stomach; build-up of acid; constipation; trapped gas (I've kept a log and I have not had any episodes outside these triggers","None really, though once stopped through cold water on face; warning signs are PACs. Once it has kicked in, sleep has helped.","Flecainide (Tambocor); Lansaprazole; 81mg Asprin. Occasional constipation","Atenolol and Sotalol made me v. tired and had no effect on episodes","Vasectomy","Keep the gastric problems at bay and then the triggers will disappear! Keep reading message boards from fellow sufferers Keep a log of ALL episodes or pre-episodes! Will consider removal of mercury in fillings, if sufficent evidence emerges. Don't expect it to become chronic.","Cardiologists don't seem to differentiate between mediations of AF, nor accept particular triggers - would prefer 'idiopathic' (means less work for them). Sufferes themselves are the greatest resource for researching this condition. Despite having had many episodes, and despite knowing that it's unlikely to be life-threatening, I STILL find episodes exhausting, frightening and distressing!",0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,1,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,0 "Vicky","London, UK","47","Atrial Fibrillation - now Persistent. Still vagal characteristics, but more mixed now","6","was 1-7 weekly, now continuous if not on drugs","currently 2 days on 2days off","","OK, apart from the AF (!) Minor asthma, back/neck problems.","Persistent AF only partially controlled by dofetilide. Looking at ablations now.","All the usual vagal AF triggers, night-time, after exercise, after eating, etc, but all triggers require pre-existing digestive upset - without this, triggers have much less effect. However, as at 2 Aug 2001, triggers have to be less than before to set off AF.","None of the earlier preventions (being careful about digestive status) work any more. AF seems to have this adaptive characteristic where it runs around whatever it is you did last time to stop it.","Dofetilide 2 x 500 ug / day. Just starting on 3 x 500 ug / day under medical supervision to see if this helps - I have soem headroom available on my QTc interval. Side effects: dry mouth at night. I also feel it makes the ectopics bigger and thumpier. Aspirin enteric coated 300 mg/day","Tambocor (Flecainide) 100 - 200 mg / day (self-varied) side effects: pro-arrhythmic (ectopics & flutter) at 200 - 300 mg/day, pain in heart area at ~200 mg/day or above. Verapamil - severe constipation. Propafenone - severe gut reaction. Disopyramide: dry mouth, difficulty peeing, blurred vision, *desperate* depression.","Originally not thought suitable for ablation, now scheduled for a flutter-line ablation and possible PVA, if teh higher dofetilide dose doesn't work","Become a philosopher? I shan't ever complain about work, travelling, politicians or whatever, if I can just get my lide back again.","",0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,1,0,0,0,0,0,0,0,0,0,0,1,0,0,0,0,0,0,0,0,0,1,0,1,0,0,1,0,0,0,0,1,1,1,1,1,1,0,0,1,0,0,1,1,0,1,0,0,0,0,0,0,0,0,0,0,0,0,1 "Rick Lenzi","Hubbard, Oho","48","atrial fib","5","2 to 4 times a year","until conversion","","good, non smoker or drinker","sinus rhythmn","","","coumadin lipitor altace","","","","",0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,1,1,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0,0